September 28th
2009
2:27 PM
i was told i was hypothyroid,but i felt fine! dr. put me on 88 mcg's of levoxyl and i all of a sudden came down with the worst case of acid reflux,which i did not have b4.also,heart palpitations.i choked down this med for 3 years,experiencing hours of burning after my daily pill.i could not take it any more! i put myself on a trial month without levoxyl ,and the burning and acid feelings are gone! i feel gr8! i dread being scolded by my doctor for going off it,but i could not take that burning anymore.ive been to 2 gastroenterologists,plus my general practitioner,all of whom said it was impossible for levoxyl to cause g.i distress.if that is so,why has the burning gone now that i stopped taking it?if u have experienced burning with levoxyl,could u kindly email me/i want to know-am i crazy,or is heartburn an issue for other levoxyl users also/plus,i never felt/looked ill in the first place,so even tho my thyroid functioning may not be optimal,did i really need medication yet?maybe someday i might,but i feel fine,i have long thick hair,decent fingernails,full of energy and not cold all the time-so why do i need meds at this point?(if i ever have overt hypo symptoms,i will have to take something,but why fix what is not broken?) ps-my b/p and cholesterol all very good too,altho apparently ive been hypo about 5 years.
-- By buffy2929 | Reply | Private Message me
September 24th
2009
4:56 PM
Wow, what an eye opening experience it is to read all these posts! I was just about at the end of my rope thinking something was horribly wrong with me. Now I firmly believe it's the Levoxyl that is wrong.
I went on thyroid meds about a year and half ago for just slightly under active thyroid. I was actually lulled into it because the Doctor assured me it was a completely safe medicine and taking it would help me lose weight. Always a welcome thing. So I started on 50 mcg. I noticed some degree of improvement. I was sleeping better and having more energy during the day. Next checkup, the levels are in the normal range but just barely. So he doubled the dose. Two weeks later I broke out in a horrible itchy rash. I actually thought about the meds but then I didn't change meds, I was just taking more. I called the doctor and he said, "No this medication won't do that." So I change detergent, soap, everything I could think of and nothing worked. Finally I said, enough and I skipped a dose. During the day the rash got a lot better. Next morning I took another one and within and hour I was itching like crazy again. I stopped taking them, waited a week and called the doctor again and told them. His reaction was "You have to take this." I said, No, I don't and I won't. He actually argued with me that the rash could not be caused by the meds. Now I realize at that point I should have called another doctor but he's in my town, convenient, yada, yada, yada. Anyway he called me in another med which he said was the same active ingredient but different brand. Enter Levoxyl. I've been on 100 mcg for 3 months during which time I have felt progressively worse. Most of these things I didn't attribute to Levoxyl until later. Initially I noticed I was having the hot/cold flash thing. I have no comfort zone. I'm either flushed and sweating or chilled so my nights are spent constantly either searching for cover or kicking it off. Next thing I noticed is that my breasts would swell. Naturally that was a concern but about the time I would decide I needed to see about it, they would be normal for a few days. Sleep? What's that? Tired all the time. Started having confusion and forgetfulness. I even told my co-worker I thought I was losing my edge. I was all of a sudden forgetting things I had done automatically for over 15 years. Then the really scary stuff started. I would wake up in the middle of the night with my heart racing and feeling like I was in a fight for my life. I was afraid to go back to sleep. Joint aches and pains across my upper back, my knee. Tingling in my feet. It just keep getting worse and worse. Still didn't think of Levoxyl. Then Monday of this week I didn't have a pill to take. I forgot to get it refilled. Monday at lunch I told my husband I felt better than I'd felt in months. Tuesday took the regular dose. By noon the mental fog was back, back was hurting and I just felt like crap. Tuesday night went to bed early because I was so tired. 11:40 woke up with the worse anxiety attack I've ever had. Heart was pounding and I was breathless. Wednesday morning I got up and the light came on. I did not take the pill. Entered Levoxyl in google and found this site. I am so angry at my doctor I can hardly stand it. I even went to the official Levoxyl website and all these side effects are listed except for the swelling breasts and confusion but I've noticed several posts here that list those. During those two days I didn't take the freakin' pill both problems improved greatly. This morning, I reluctantly took half a pill. I plan to to that every other day for a few days then skip two days, then three, until I'm off of it. I don't know at this point what I'll do about my thyroid but I won't take this stuff and I won't ignore feeling like crap again. This is crazy. Where is the FDA? Oh yeah, being entertained by the drug companies. What a shame.
Thanks to everyone who has taken the time to post here. It is a sad commentary when we can't rely on our doctors to take care of us but we sure can't. If he had just told me about the bone loss, I would never have started this drug in the first place. My Mother suffered with that and that is something I would not trade for a few lost pounds and a little more energy. No thanks.
-- By debbie220 | Reply | (2) replies | Private Message me
April 6th
2009
3:41 PM
I've been on levothyroxine 150mcg for about 3 months before that it was 100mcg and so on. I have gain lots of weight and tired all the time. depression also, headaches. I hate this gaining weight, sleepy all the time and depression is from gaining weight. I thought this med is to up boost my thryiode but it doesn't seem to be working. my dr. said I'm on the highest dose there is. I don't know what to do any more. I was thinking about taking myself off this but not sure what will happen if i do. I hope there is someone out there that might be able to let me know if they are going through the same things what they are doing and how they feel now.
-- By scooby_beth2002 | Reply | (9) replies | Private Message me
February 16th
2009
3:27 PM
I have been on Levoxyl 100 mcg for 9 months and I never related this rash with the medicine I was taking. I have tried changing my shampoo, bar soap, laundry soap trying to figure out what I am allergic too. I still have this rash-red bumps that sometime itch and when I scratch they seem to bring out more redness. My doctor prescribed me cream but the rash is still there.
I have headaches but I think they are sinus related.
January 24th
2009
11:33 PM
After an ER trip where I discovered I was a hypo, I've been on Levoxyl 50 mcg for just under a month. I recently informed my doctor on the phone I was experiencing swelling directly under my chin after I took the medicine in the morning and it lasted all day. He told me to stop and come in and see him immediately. It's the weekend and I can't get in until Monday. It's the 2nd day I've been off the hormone and today I have numbness in my cheeks, they are swollen, I can't eat much and feel really depressed. I've been in pain for so long and now it's just getting worse. I don't know if I should take the hormone tomorrow morning to see if I feel better or stay off as advised by my doctor. Reading everyone's comments is helpful, as it's very difficult for my family and friends to relate to me during this time and seem to think I'm over-reacting all the time as the pain never goes away. Levoyxyl seems to make me feel better, but I still have a lot of back and neck pain, as well as sensitivity to light, headaches and jaw pain. I'm 215 on a 5'5 frame, I eat quite healthy, avoid all the trigger foods for the thyroid and try to be active, but I can't seem to loose weight. I'm really not sure what to do with myself and am loosing hope.. I'm 24 and feel like I'm 84.
-- By tmichele | Reply | Private Message me
January 22th
2009
2:24 PM
my mother was raised a month ago to 50 mcg, and since then she has eye muscle spasms around her eye,
she has rupchured discs in her back, which doesn't help with the pain, she also has restless legs, i see how she sleeps, and her legs can never stay still, she sleeps a ton, and has static hair, and also hair loss. if you have any of these symptoms please let me know
January 5th
2009
12:20 PM
I have had great experiences with Levothyroxine. I am no longer tired, achey, grumpy, constipated. I feel great. I am only 27 years old and got my hypothyroidism from having my first child. I am excited that my levels are now normal after 3 months (TSH was 25.89). I was on .50 mcg now I am on .75. Feel great!
I am a medical technician and have found that a lot of people who start on a certain medication for hypothyriodism, such as Synthroid - do not fair well if they have to switch. My doctor always says NOT to switch...not EVER. She repeats over and over again to check my prescription every time I receive it. That means checking the pills against each other, because hypothyroidism medication is one of the highest missed - filled prescription. If I were anyone who has had to switch, I would demand to be put back on your original meds. Have your physician write up your symptoms with the new meds and make a recommendation to the insurance company that you NEED synthriod.
November 8th
2008
7:57 AM
All I can say is WOW! I did a search for Levoxyl side effects because in the 2 weeks since my dosage has gone up (200 mcg) I have had a constant headache and my entire body just aches, especially my hips, legs and knees. I have a hard time sleeping because I can't get my knees in a comfortable position. I do have arthritis which has not really bothered me in over a couple of years and this is not the same as my arthritis pain. It is more of an overall achiness and it feels like my bones are sore. I am also having eye twitching occasionally, but I am not sure if that has anything to do with it. What should I do?
-- By jessicaf | Reply | (2) replies | Private Message me
September 10th
2008
2:34 PM
I've been on the same dose of Levoxyl (118 mcg) for 11 years and I have none of the side effects that have been described. My mother and grandmother also have hypothyroidism, but my mom take 110 mg of synthroid, also prescribed by the same doctor that prescribed me. When I was in the 4th grade my thyroids swelled to the size of golfballs, so much so that you could see them when my head was up, and I was extremely tired and had hot and cold flashes- scary for a 10 year old! My doctor recognized it immediately, and put me on Levoxyl. About a year ago, I gained 15lbs for seemingly no reason, but then this summer I lost about 20lbs. The only difference was taking the medicine 1 hr before I ate anything. I saw someone said that after taking the medication she would get hungry, which I also have, but this makes sense, because Levoxyl is in essence trying to up your metabolism and by doing this you are burning more calories and thus become hungry. If you let this hunger pass, about 20 min later you are no longer hungry and feel great! I still get slight hot flashes, but not too noticeable. I would recommend just as other on here have, that the dose that your doctor may give you may not be 'your' number, and to give it time. If you change your dose, give it 3 months, not 5 days like I saw above! If you have to wait 6 months for 2 dose changes isn't that better than hurting your whole life? GOOD LUCK!
-- By hypoclara | Reply | (1) replies | Private Message me
June 5th
2008
3:39 PM
I am just slightly hypothyroid and could go without meds, but decided to try meds, and endocrinologist suggested Levoxyl 50 mcg per day. First day on the drug, felt exhausted by night time, next morning, usually jump out of bed for workout and was extremely tired at the gym, no energy, was starving during the day even after breakfast which is unusual for me, and exhausted by evening, and third day woke up with swollen glands and exhaustion, knew something was up. Decided to research the side effects and found others with similar symptoms and didn't like long term effects so I am going off the drug and hoping I caused no damage to my system. My doctor's reaction was "impossible" that the drug could cause this. My reaction was, "no thank you, I think for myself, know my body, and know this drug caused this reaction." I was feeling fine before 3 days ago, and how could so many have similar symptoms if it isn't the drug.
-- By cwelsh1124 | Reply | (3) replies | Private Message me
May 13th
2008
12:48 PM
I don't know if my dry skin is from the Levoxyl or not. I'm on 25 mcg's and have been for about four years now and am seeking to be off of it as it is the only medication I'm now taking with regularity. As an asthmatic with a slight hypothyroid condition, I've just done "what the doctors ordered." Now at the age of forty-four I'm starting to do some of my own research and be my own advocate. I don't have answers for anyone but I strongly suggest you do some reading at the ****. Just plug Dr. Mercola in a search engine and you should find it. What a wealth of wonderful and informative reading. Watch the "Allopath" video. Food for thought. Physicians treat symptoms and while I'm glad that many meds are there, I'm thinking that the first line of defense AND offense ought to be a look at one's daily nutrition and exercise as well as hydration levels.
Blessings
May 13th
2008
12:32 PM
I have been on Levoxyl 125 mcg for about two months after my thyroid was "killed" with the radioactive pill. Ever since I have been on this medication, I have constant headaches and feel sick on my stomach all the time. I had to go to the ER the past week because of the intense vomiting. The doctors tell me it's not related to my thyroid or the medication. How can this be? I didn't feel this bad when I was hyperactive thyroid. My wife has had to take care of our 18 month old all by herself ever since I have been taking this medicine. I feel like I am missing out on my life! This is terrible!!
-- By bry6009 | Reply | (2) replies | Private Message me
April 20th
2008
11:53 AM
I have been on Levoxyl for about 3 years now, maybe more. My mother , father, and I all have Hypothyroidism. Mine was diagnosed at 19 when I started on Levoxyl and now it is around 3 at 75 mcg. I do have alot of these symptoms, including fatigue, depression,insomnia, major migraines, bloating, but my mom and I also have ringing of the ears and I wonder if this is a symptom. I have been to an ear specialist and had my hearing checked, everything is normal he says. Maybe I just have very sensitive hearing and can hear the slightest things? I don't think so, I didn't have this ringing before a year and a half ago!
-- By lani | Reply | (1) replies | Private Message me
April 14th
2008
3:14 PM
i HAVE SO MUCH COMPASSION FOR ALL OF US SUFFERING ..I have been on 300 mcg of levoxl and i am always filling with fluid,feel like i cant think straight or remember simple things....I have gained 150 lbs in 8 years and its not due to food increase...Myskin is dry and I am exhausted all the time..Hashimotos is what they say I have ..i am sure that this medicine is causing this,but what is the alternative?When i went off it years ago my thyroid tsh level went up to 13!....yet I lost weight!I think new testing has to be done on thyroid and the meds we are using...right after i take my med in the am I get really hungry..thats the only time i get hungry..my digestion is so slow!...Its a terrible way to live being fat when you arent eating like a pig..
-- By longvalleygirl | Reply | (2) replies | Private Message me
December 16th
2007
9:31 PM
I have been on Levothyroxine 50 mcg
for six months I have really bad leg cramps
and in the morning when I wake up I can
barely bend my ankles to walk I am 45 years old I have also gained 10 pounds since
I have been on this medicine. My Doctor is sending me for more blood test, she says
it may be hormonal.
A.R Chicago
October 5th
2007
3:31 AM
I HAVE BEEN TAKING LEVOXYL FOR 22YRS AND I FEEL LIKE I CAN NEVER GET SLEEP,I TAKE MY PILL IN THE MORNING AND CAN'T SLEEP ALL NITE AND AM TIRED OF IT,I WISH THEY HAD AN ALTERNATIVE.THAT WAY I CAN SLEEP AND NOT BE DEPRESSED ALL THE TIME
-- By ace1979 | Reply | (3) replies | Private Message me
September 24th
2007
1:45 PM
I was prescribed 25 MCG tabs of levothyroxine (generic for Levoxyl) by my MD for my hypothyroid. (I was tested at a 4.5 reading -- just below a normal 5 reading). After 60 days of taking levothyroxine EXACTLY as prescribed (i.e.; on an empty stomach, 1st thing in the morning with a glass of water; no vitamins for at least 4 hrs afterward), I started to have symptoms that I've never experienced before: my hands began hurting so bad with joint pain; my lips felt numb; and I was sweating more than I ever had in my life. I decided to stop taking the medication due to these symptoms, and in about 7-10 days from stopping, ALL these symptoms had disappeared and have not returned to date. I relayed this information to my MD who told me that my symptoms had nothing to do with Levothyroxine and that I needed to continue taking the drug. It's more than strange to me how some MDs will not listen to his/her patient -- even more so now that I've read other info on the internet where many other people have had these same side effects taking levothyroxine!! On my own, I am now looking into taking an all natural alternative that I found on wellness resources called "Thyroid helper". I will not take Levothyroxine again if I can avoid it by taking an alternative. Has anyone else out there had success taking "Thyroid Helper"?
-- By maggb1 | Reply | (10) replies | Private Message me
August 25th
2007
6:34 PM
I was recently diagnosed with Hoshimotos Thyroiditis. It's only been three days since I have been on the Levoxyl (100 mcg), but I am feeling slight chest pain and tingling in my face. My heart isn't racing though; it's just a dull pain! I am nervous that it will continue to increase and that other symptoms will come about. Just reading about people's experienced on this site has made me nervous too! Has anyone ever experienced this and if so, did other symptoms follow?
Thanks for your feedback!!!
-- By shelli47 | Reply | (1) replies | Private Message me
August 15th
2007
4:28 PM
I have only been taking Levoxyl for about two weeks, following RAI treatment in May. I'm on 100 mcg. I had gone from being hyperthyroid to hypothyroid - with walking or much movement, it felt like the muscles in my back were being stretched from each side and held up to a sunlamp to the burning point. I was also having upper back pain and a stiff neck.
After a little over a week of taking Levoxyl, the stiff neck is still there, but the back pain has eased off a little. There is just one spot that feels like a sunburn from the inside out. The biggest problem I'm having is with the sodium content - it feels like I've eaten an entire shaker of salt. I suspect that my blood pressure is increasing on this med. I'm noticing restless leg syndrome and while I always have tinnitus, it has worsened in the past week. I'm also noticing fluid retention all over, puffy eyes, puffy fingers, and calves. I'm also having more headaches.
On the plus side, the unbearable muscle pain has eased up some, as I mentioned. I'm less depressed. It's too soon to tell about weight but I think I've stopped gaining for the moment.
July 28th
2007
3:37 PM
I had my thyroid removed 3 months ago and felt great until I started Levoxyl. I've worked my way up to 75 mcg. I cannot finish 9 holes of golf due to muscle aches and throw up my dinner most nights. The only change in my life since the surgery is the addition of Levoxyl. I've heard this will go away after 'a month or so'... Is this true?
-- By foxybrownbag | Reply | Private Message me
May 28th
2007
7:13 AM
I was diagnosed with a sluggish thyroid also and the dr put me on 50 mcg of levoxyl. I had all of these symptoms of low thyroid hormones and didn't know it. I never put all the problems to the same culprit. I had very bad muscle aches, with or without exercise. I kept thinking I had bruised or torn something. I had weight gain on WW and a health study I was on. Nothing, I mean nothing would help me lose weight. I've gained 20 pounds. Which also caused depression. Sometimes I would have low blood sugar, when I've never had problems with blood sugar before. I was very tired all the time. I felt like I couldn't make it in the evenings and some mornings. I would complain to my PCP that I felt like I had just caught a cold - really drained and tired. I have really severe allergies and couldn't figure out why. After starting the meds I felt bad the first day - diarhea, nausea. Then for the first couple of days I felt great. Then the fourth day I couldn't sleep and felt shaky and had nausea only at night. After about three nights of no sleep, I cut the pill in half and took it. Then I was able to rest at night and didn't feel shaky on the inside. I took 25 mcg for about two weeks and then I started feeling the same way again. So I called the office and the dr said to take 3/4 of a pill. That worked fine for the frst week, but then I started getting these headaches that won't quit. I used the process of elimination and the thyroid meds were the only thing that changed. I will have to call tomorrow and see what I can do about that. If anyone has some of these problems let me know. The dr said that it doesn't have any side effects, but I beg to differ. I'm not sure what dosage to take today. I've had these bad headaches with a little dizziness for a week now.
-- By dlcolbert | Reply | (2) replies | Private Message me
May 12th
2007
11:24 AM
I have had thyroid disease for 6 years. I just had my medicine increase less than one week ago from 125 mcg to 150 mcg. The endocrinologist did this with a lab result from over 6 months ago and I was never retested before he upped my dose. 2 days after my new dose I broke out in a rash head to toe. The next day I started itching and went to my doctor and she said I have no idea what is going on with you. Then I went to the Pharmasist and he said you are having an allergic reaction to the dye in the 150 mcg blue tablets (125 mcg are white). The following day I got new medication I now am taking 3 50 mcg tablets. But I now am swollen ankles to feet and elbows to hands. My hands are like balloons. When I go to bed at night my hands are completely numb. Has anyone else had any symptoms like this?? Help I cannot figure this out. I am thinking that I may be over medicated. Thank you Heidi
-- By heidisicard | Reply | (3) replies | Private Message me
February 6th
2007
8:06 PM
Has anyone noticed that when taking Levoxyl you have some irritation after urination. I seem to have a nervous feeling in the urinary tract and after urinating it seems like I have a sensation of irritation. I have had tests for infections but nothing showed up, I am considered Hyperthyroid because of my dose of 150 mcg which is where Endo. wants me to be. I would appreciate anyone who has any input. I do not know if levoxyl makes your urine more acidic or not.
-- By djd1 | Reply | Private Message me
January 24th
2007
7:22 AM
I have been having a lot of trouble with rapid heart beat. I was taking 112mcg. which my endocrinologist increased to 125 because of my blood results, and then the heart problems kicked in. Since then I have tried all sorts of dosages, even going off it for a couple of days (which did calm my heart down considerably). I'm working with 75 mcg now, but after 7 days of that, my heart start pounding away again. I had thyroid cancer so I have to take some kind of hormone replacement, but this is a challenge. I am wondering if Armour might work better.
-- By katherinemoyer | Reply | Private Message me
January 21th
2007
10:23 AM
I took synthroid for several years and became progressively more arthritic, with horrendous tooth problems and congestive heart failure. My doctor switched me to the lowest possible dose of generic levothyroxine for nearly two years, and during that time, I progressively felt better. Then they stopped making the generic 25 mcg, so I was switched to levoxyl 50 mcg (was told to split in half). Since then, the symptoms of aching joints and emotional rollercoastering has returned, along with sleep disruption and heart trouble. There is NO DOUBT that these thyroid hormones cause serious problems in many people. I am now trying accupressure to stimulate the gland, and slowly withdrawing the levoxyl. Already feel much better!!!
-- By cherdav44 | Reply | Private Message me
January 12th
2007
9:52 AM
I have been taking Levoxyl 50 mcg for 7 weeks now. I experience tingling down my left arm and hand one day, but it hasn't returned. I did notice I wasn't as tired around the 4th week. But then started having a hard time falling asleep and it became a pattern. I was up to 2 to 4am everynight. I have kids to get up for school at 6:45am. So this was not good! My Dr. prescribed Temazepam to help me go to sleep at night. It works, but leaves me feeling tired most of the next day. I would really like to find a natural solution.
-- By terri259 | Reply | Private Message me
January 5th
2007
2:57 PM
I don't know whether my issues are related to Levoxyl
(113 mcg) or not, but after I had my thyroid removed Nov. 2005, I started to have a numbness/buzzing sensation in my head and face. No doctor I have been to knows why this is happening. Does anyone else have this feeling? I am very frustrated and haven't felt myself for over a year.
December 27th
2006
12:48 PM
I heard that you can get ringing in your ears (Tinnitus) from this medication...is that true. Should I switch or inquire about other mediation...I take 88 mcg of Levoxyl.
-- By kerri126 | Reply | Private Message me
December 9th
2006
1:49 PM
Hi there. I take 88 mcg of levoxyl and since being on it I have this desire to constantly eat food. I eat when I am not hungry and when I am already full. I do not sleep well anymore and wake up often in the night. I am extremely depressed and very emotional. I think I was better off when I wasn't taking medication. I tried to take my body off of it, and I felt very weak. I was recently diagnosed with Hashimoto's disease and I am scared that eventually i will lose my thyroid. Has anyone else felt like this?
-- By shoeluver11 | Reply | Private Message me
July 24th
2006
10:56 PM
I started at 25mcg, then my doc raised it to 75 mcg. I had no trouble before other than lab results were high. With meds I had a few problems. With increased dose I have nervousness, feel almost like I am on speed when the meds kick in for about 7 hours, then I am so tired I can't keep my eyes open. I have a ravenous appetite and yet, have lost 15 lbs. Not good since I only weigh 125. I have terrible abdominal pain, sweating, a lot of hair loss, leg cramps and headaches (something I never get). My doc wants to raise me to 88mcg. I don't think so!
What else can I take? I am checking into natural stuff now.
July 20th
2006
8:58 AM
I do not have side affects that I know of (50 mcg/day). If I did I would take my self off of it gradually and do the natural health side of treating my thyriod problem. I am now gradually getting off of my Levoxyl and taking several herbal supplements which the doctor confirmed are working better than Levoxyl. I encourage you all to try that...side effects are not good. When you have side effects they are generally treated with another medication. Who wants to take more meds? They are so bad on your liver!
-- By jamie5 | Reply | (1) replies | Private Message me
June 19th
2006
11:54 AM
I have been taking levoxyl for 2 yrs now. I am getting migraines/headaches an average of 3-4 times a week. I have had a ct scan and everthing came back ok. I am
suspecting that it is the levoxyl and I am going to stop taking
the medication. I take levoxyl for hypothyroidism. Does
anyone else experience headaches as a side affect. I have
also notices memory loss and trouble concrentrating
June 16th
2006
5:54 AM
I've been on levothyroxine 50 mcg for about 6 yrs and for the past year I've noticed more and more hair loss, at first I thought it was because I'm 52 and going through menopause, but now I believe its the medication. Going to ask my doctor to switch me to armour. If not I will take myself off this medication.
-- By dargolv | Reply | Private Message me
April 22th
2006
5:02 PM
I have taken Levoxyl for several years, over which time the dosage crept up from 25 mcg to 100mcg based on my bloodwork. At first, I noticed an improvement in my energy level and had no side effects that I was aware of.
Recently, I was stressed and had an irregular heart beat with an inner jittery feeling. I stopped the Levoxyl and found that the tight muscles in my back and butt went away and the heart eventually regulated itself. Of course, the doctor wants me back on the Levoxyl. I have taken it at 12.5 mcg every other day without a problem, but once it is taken daily, the tight muscles come back and I feel very tired.
How do I find a balance between how I feel and the numbers on the blood work? I think that how I feel should be more important than the numbers. Is it possible that the pituitary is sending out too much TSH in error?
-- By sjsh47 | Reply | Private Message me
March 25th
2006
5:42 PM
I started out on 25 mcg, I have a little more energy but my eyes are red and dry. And my legs are swollen, I take a water pill, because I already was retaing fluid, is their any thing I can do naturally, I have gained 20 lbs.
-- By heavensgirl1 | Reply | Private Message me
September 16th
2005
1:17 PM
hey everyone i'm just surfin' through the site of what to do if i missed takin' my med.(levo)and i found this... i'm kind a relate to all your problems about the medication.. i'm takin' 100 mcg. for about 5 months now and i do have all the side effects you guys felt...muscle cramps on the leg and sometimes in my arms too..painfull headaches and others..my question is what if i missed my med. for more than a month lets just say about a month and a half now, reasons are:1st, i missed place my med,that time is was on vacation, second i have to wait days for the appointment to get it and lab test need to be done before they will get a new one .. is that really a big a deal... help with this is really appreciated...
-- By akpinay | Reply | Private Message me
August 15th
2005
9:37 AM
Ok, I am and have been on this med (100 mcg)since April 05. It was suppose to help regulate my thyroid. I have not had a weight issue until 2 yrs ago and they recently found my thyroid become wacked after not having this problem for years. I have bloated up and feel like a stugffed pig, I drink the required water but that does nothing. I too get the heart palpitations or anxiety flutters where I have to STOP everything. My right foot and ankle sometimes become tight and numb but it is said this is normal. How true is that? I have read someof you experienced this. My appetite has not been supresssed and I see no bebeficial facotrs of this med. I am considereing a request to be taken off of this medication because its initial purpose was to HELP with my sudden weight issue and Thyroid issue and I went from 145 and now sit at 230 lbs +/- 7 lbs (water weight). I think we have a problem here and I need it fixed, any suggestions or has anyone else gained weight also or find beneficial uses of this drug? What happened to old fashioned synthroid they use to give out?????
-- By clinipsych2b | Reply | Private Message me
June 27th
2005
6:05 PM
I mostly feel good. I had a thyroidectomy in Jan. 2005 and am on 137 mcg. I developed pop up rashes on my hands and arms mostly and they would disappear overnight. I was getting them every day until I went to a homeopathic doctor who gave me stuff to boost my other gland that suffer when the thyroid (the big dog) isnt perfect. In a couple days the rashes disappeared as well as dry skin. I no longer need lotion. The latest issue I have is my tongue seems too large so that it hurts against my teeth especially when I lay down at night. Has anyone heard of that?
-- By frattsgirl | Reply | Private Message me
June 17th
2005
7:40 AM
I have been on Levothyroxine 75 MCG since June 09, 2005 the only problems that I have encountered was dull headaches I did not think it could have been the medication, because I donot have them daily. My sleep oattern remains the same I have no other known symptoms other than the headaches. Good luck to all.
-- By cha42s | Reply | Private Message me
March 8th
2005
7:25 PM
I was prescribed levothyroxine by my nurse practitioner for a "slightly" underactive thyroid. I have experienced at times, headaches (feeling like the top of my head is going to blow off); stomach problems, cramping, loose stools; anxiety, sleeplessness, fatigue and a lowered libido. I am prescribed .50 mcg, but I took that dose for 2 months and then lowered my daily dose, myself to .25 mcg. I felt better, but still tired. I didn't tell my NP that I lowered my dose. After a month or so, I upped it again, just because I still felt tired. I have been on the full dose, once again, for a month. I still have some of the previous symptoms, but am due for a blood test this month to see where my levels are at. If they are close to being correct, I am going to ask her to lower my dose or stop it all together and try exercising more. I don't know that this is a horrible drug, but I am sure that it is not something to mess around with, if you don't absolutely need to be taking it.
-- By kathystt | Reply | Private Message me
February 28th
2005
6:49 AM
I was diagnosed with Hypothyroidism 2 years ago and originally I was prescribed synthroid. I was tired and cold all the time. I was switched by my doctor to Levoxyl 50 mcg about a year ago. I am only 10 lbs overweight I still have not been able to lose. Over the last 4 months I trained and and completed a 26.2 mile marathon and 3 different 13.1 miles half marathons (running) I have not lost any weight.
My enodocrinologist has recommended that I get checked again to see if the dosage needs adjustment. I have a feeling it is too high.I have recently had some symptoms such as hot and cold flashes, headaches, heart palpitations. I have more energy now than ever in my life. Other than the hypothyroidism I am healthy and should not have heart palpitations. and my endo says that the amount of running may have shocked my body into working more efficiently. I am to be tested in a few weeks. I don't know if this is true but I also heard that if you buy medications that are on the shelf too long that they lose some of
their potency.
February 23th
2005
4:08 PM
I am a 16 year old female who has been on different thyroid medication for at least 3 years. Along with my thyroid disease I have type 1 diabetes also. Right now I am taking LEVOTHYROXINE. I have taken levoxyl, synthroid, and I cant remember any others. Over the years I have gradually increased my dose to 125 mcg. Instead of losing weight with these medications, I've actually gained 25 lbs, and Ive kept my slow metabolism. Ive experienced bloating, gas, fatigue, spaceiness-like out of it, unable to concentrate, increased appetite, and mild depression. I usaully am able to get fantastic grades, and catching on to things comes easy. But now ive lost interest in friends, sports and overall life. I am wondering if this thyroid medication or my other medication- Metformin has anything to do with how I feel or overeating?
-- By meahotty777 | Reply | Private Message me
January 30th
2005
5:50 PM
I have been on levothyroxine 50 mcg for about 8 months, i have gained 20 lbs. i get rashes and my eyes swell and itch very bad, i wonder if anyone else has the same symptoms, and if they are related to the drug, i have stopped taking the drug for now, will see if my symptoms dissapear, and go from there,
-- By jadegreen47 | Reply | Private Message me
January 11th
2005
6:41 PM
I have been talking Levoxyl for years. I had my whole thyroid
removed in 99 with a precancerous nodule. For years
I have had trouble with concentration -- always feeling
kind of "out of it," "zombie -like," but just since about
September I have felt very bad. I have noticed this bad
feeling begins bout an hour or so after I take
my med.
I began in Sept on 88 mcg, then went to 100mcg,
then to 112, and then to 125. I cut myself back to 112
because with 125 I was so so so tired, and cried with
strange anxiety every day. Since cutting back to 112, I don't feel a lot better. During the day I feel to tired to do anything,
and I have lost my interest, personality, and sense-of-humor.
But, on days when I completely skip my med. I feel soo
good, but I can't do that two days in a row b/c then I feel
worse. Also, at my last dentist visit, I had 3 cavities and
I brush my teeth twice a day, every day.
I have another apt. tomorrow (with my specialist).
I hope he can fix me.
I have suggested Armour and Cytomel many times,
but he always says "this is rare that anyone needs to take
these" I hate feeling this way. I want to feel like everyone
else so bad, I just feel like I never will. It is very debilitating.
I have recently graduated from college and I feel like
an old woman -- too tired and bad to go after my career
goals.
Write back anyone that feels this way too.
-- By nattyrw | Reply | Private Message me
July 9th
2004
10:27 AM
I'm on suppressive theraphy w/ Levoxyl -- currently on 250 mcg daily and can't seem to sleep. I've even noticed my breathing pattern changes to rapid short breaths during the day. In addition, my memory was noticeably worsened and I seem slower mentally.
Prior to this dose,. I was on 274 mcg for 3.5 years and I didn't have these all symptoms. My memory wasn't the best but I wasn't complaining.
Isn't it odd to have symptoms of taking to large a dose when in fact my dose is smaller?
After going on the 250 mcg, I notice some rapid heart racing and after this occurred a few times I called my doctor. He said we had just changed my dose and to hang in there to see if things improved.
Now I don't even notice/react when I have rapid heart racing...and my concern to him recently was about the lack of sleep. At best, without Tylenol PM, I am only getting 3-4 hrs a night. There have been some nights I haven't felt like I've slept at all.
My memory is unbelievably poor. I can't remember simple things...and for the first time I'm searching for simple memories (and not just forgotten words) in the mist of conversation.
-- By vmcphee | Reply | Private Message me
May 1th
2004
11:40 PM
I was on 1 mcg generic levy thyroxine - manufacturer - Mylon.
My doctor switched me to Levoxyl 1.12 mcg - manufacturer - Monarch-james.
My TSH was 4.28 and the doctor said that he would like to see it in 3 range and bumped my dosage.
Since this change, I have started to loose hair and feeling aches in hip and my bones are brittle. My fingers in both hand and leg hurt too. I am feeling bloated, started having diareah for last two days.
I feel more energetic though but am not getting sleep quick.
Is the change in manufacturer is a mistake my doctor made. or Levoxyl it self has lots of issues. I understand that they are both levythyroxine.
Can some body expain what I need to do. I have been having panic attacks and severe anxiety too.
-- By skarumur | Reply | Private Message me
April 26th
2004
7:39 AM
For a year I had all the symptoms of hyperthyroidism, rapid heart beat, muscle weakness, no sleep, bulging eyes, weight loss, etc., but the drug Evista masked the thyroid lab tests. When I ceased taking Evista, a subsequent lab test showed extreme hyperthyroidism. No doctor treating me knew of the connection. After treatment with nuclear medicine, I became hypothyroid and required Levoxyl. Dosage is monitored and has remained at 75 mcg for two years. I am "cured" because my thyoid is now normal, and I have absolutely no side effects from the Levoxyl. I am a 70-year-old woman who hates to take pills, but this is mandatory. I had lost 15 pounds and in two years have gained 5.
-- By jpsedlacek | Reply | Private Message me
January 5th
2004
1:53 PM
I have been on Levoxyl for 4 months now. Started at 100 mcg and then to 125 mcg and have just had my dosage of Levoxyl increased to 150 mcg and I have been experiencing a heartburn like tighness in my chest since the day after the increase to 150 mcg. I was wondering if anyone else has experienced this side effect. I felt fine at 125 mcg but my T4 levels were still way below normal. Does any one have any insight?
-- By sharon786 | Reply | Private Message me
August 27th
2003
11:37 AM
ok.. i started the drug three days ago..on the first day i felt like i had a weight in my chest squeezing and puling my breathe away..also i had mild weekness in my legs (but i am a bagboy at a super market and i have to collect carts all day,,using my legs..so i might have just been tired) o ..i am 16...i also got like a swelling feeling in my throat...on the seconed day i had breathing troubles (light) and swelling of the throat...then i felt like i was constpated all day..but i ended up with diahriah...o ya and all through the night my ribs were in pain when i slept on my side,,,like they were bruised...and on the third day i got swelling in the throat and extreme stomach isues...pain, bloat, acid...i ended up throwing up (a little) and it felt like all acid ..because it was!!!...when i got off work i had bad chest tightness...so i took three tums and went to sleep...is this too much to fast... i'm only on .05 (50 mcg)
-- By dieingworld | Reply | Private Message me
October 21th
2009
11:51 AM
i discovered that i had hyperthyroidism which was from grave's disease and grave's thyroid eye disease in jan. 2009. at the end of march i had my thyroid removed. never let anyone use the radiation treatment if it is in your eyes. my surgeon said if we had waited another week i would have been dead. they started me on 75 mcg of levoxyl. it made me mean, i prayed to God to let me die in my sleep every night. the dosage was changed to 88 mcg. my hair was falling out by the handfuls. i kept calling my dr. and being told it was normal. i lost 75% of my hair mass almost to non reversible. i have been on appearex and women's rogaine once a day and am using nioxin hair cleanser and conditioner for 2 months. i have new growth thank goodness. my toes almost froze off my feet, the headaches cannot even be described, i gained 40 lbs, this will be the 3rd time in 7 mos. they need to change my dosage to 100 mcg. my body cannot take it. today i am starting synthroid. until i found this site today i had no idea most of my agony was from levoxyl and it's side effects. thanks so much for all the information. good luck to everyone.
-- By gravesdisease | Reply | (2) replies | Private Message me