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100 Side Effects posted for Levoxyl

November 11th
2008
5:55 PM

I'm on 50mg of Levoxyl I'm 42. I have experienced major gas and heartburn. I have no sex drive anymore and just feel like I'm in a box and can't get out. I thought by seeing a specialist it would help. I just don't know anymore. I told my doctor about my side effects and he said this medication has no side effects. Hmmm after reading all this I am printing and giving it to him. Anyone feel the same. Especially the gas and heartburn?

-- By lisakan | Reply | Private Message me

November 4th
2008
6:41 AM

Thank you all for posting your experience with Levoxyl. My mother started to take this med about a year ago or so. She has experienced all of the side effects listed in postings. I thought she was going crazy. She actually found this site and e-mailed it to me. WOW!!!!!! We have been in and out of doctors (numerous) and hospitals for testing. All test results came back with nothing being wrong with her. She actually just went to Catholic Medical Center in NH (this hospital specializes with heart problems) last week because she too thought she was having problems with her heart. Thankfully all is o.k. She has now taken herself off the Levoxyl. It is amazing what we think will help us can do so much harm to a person. Good Luck to anyone who prescribed this medication. DO YOUR RESEARCH FIRST!

D.NH

-- By denisenh | Reply | Private Message me

October 31th
2008
1:06 PM

I was diagnosed with Hypothyroidism and Hashimoto's Disease 12 yrs ago after my daughter was born. I've been taking Levoxyl 100mcg all these years. Recently I switched to Targets pharmacy & I let them talk me into buying the generic. What a mistake. I've been on the generic for 3 1/2 months & I feel like I have been hit by a truck! I thought I was coming down with the flu. I don't get out of bed, I shuffle out of bed. It's like I have the body of an 80 year old. I also noticed I was hungry all the time. I've been having dizzy spells and my dry skin came back. I have been very tired. I've been taking a nap everyday. The only good thing that came out of it was I started sleeping better, but it's not worth going through all of this. I switched back to the name brand today. I've read where some of your doctors prescribed antidepressants. I started getting very irritable & anxious after my daughter was born, but I thought it was because I was a first time parent. Now, I'm thinking it was the levoxyl. I am slowly weaning myself off of the Wellbutrin. The less medication I take the better. One thing I did was start a personal program with Women to Women a few years back. Once I did, I noticed my fatigue went away. Before I was having to take a nap everyday & didn't want to get back up. I also noticed my memory got better. It's a very interesting website.

-- By tmhtx21 | Reply | Private Message me

September 25th
2008
3:50 AM

Boy, this could take a while. Have been on generic Levoxyl for more than 7 yrs(can't say exactly how long since I stay "fuzzy headed" all the time). Anyway, about a yr ago I became so depressed I went off all my meds -- I'm a diabetic on insulin and also have high blood pressure. I felt good!To try and make this story a little shorter, I went on a diet and lost 70 lbs -- went from 310 down to 240. Then I went back on meds. In less than a yr, have regained all the weight I lost. Also, my legs swell and ache so badly it makes walking painful. Hands, wrists and knees throb constantly. Intermittent headaches so bad I have to wear sunglasses just to tolerate indoor lighting. Hair loss is so severe I'm considering a wig. Skin is dry and itchy and lotions help not at all. Any work I have to do I must accomplish before noon because by early afternoon the fatigue is debilitating. I'm currently on 300mcg of Levothyroxine (up from 250mcg 2 months ago) and doctor wants to increase dosage even more. Had no idea there were other people suffering the same problems until I stumbled upon this site. I take the medication as prescribed (with perhaps less than the recommended full glass of water) but plenty of coffee. Discovered on another site that the coffee may be inhibiting the drug's absorption. I feel so helpless/hopeless. Am considering going back off the Levothyroxine but am seriously worried about high T3/T4 levels. Thanks for listening; guess I just needed to vent.

-- By lorrieps | Reply | (1) replies | Private Message me

September 10th
2008
2:34 PM

I've been on the same dose of Levoxyl (118 mcg) for 11 years and I have none of the side effects that have been described. My mother and grandmother also have hypothyroidism, but my mom take 110 mg of synthroid, also prescribed by the same doctor that prescribed me. When I was in the 4th grade my thyroids swelled to the size of golfballs, so much so that you could see them when my head was up, and I was extremely tired and had hot and cold flashes- scary for a 10 year old! My doctor recognized it immediately, and put me on Levoxyl. About a year ago, I gained 15lbs for seemingly no reason, but then this summer I lost about 20lbs. The only difference was taking the medicine 1 hr before I ate anything. I saw someone said that after taking the medication she would get hungry, which I also have, but this makes sense, because Levoxyl is in essence trying to up your metabolism and by doing this you are burning more calories and thus become hungry. If you let this hunger pass, about 20 min later you are no longer hungry and feel great! I still get slight hot flashes, but not too noticeable. I would recommend just as other on here have, that the dose that your doctor may give you may not be 'your' number, and to give it time. If you change your dose, give it 3 months, not 5 days like I saw above! If you have to wait 6 months for 2 dose changes isn't that better than hurting your whole life? GOOD LUCK!

-- By hypoclara | Reply | Private Message me

September 10th
2008
12:54 PM

I too was a picture of health even with my TSH being off. My old doctor retired and a new one prescribed the levothyroxine.
I never have felt so rotten in my life. Extreme fatigue to the point I am given up many activities I've been involved in for years. Headaches and joint and body pain. I feel like I was hit by a truck!
I stopped the meds and felt fine..cept my cholesterol went up to 262 and my tsh 7 something.
The doctor scared me back on to the levothyroxine.
I am desperate. I wish I knew what to do.

-- By steffie1967 | Reply | (2) replies | Private Message me

September 9th
2008
7:21 AM

I have been on Levoxyl for years. Have experienced all the side affects this medication has and then some more! My hair loss and thinning, depression, bone aches, headaches, fatigue, and much more...finally I asked the doctor is there was anything else out there in the market which had less side effects....there is a natural product which has been in the market for many years called Armour Thyroid (*******). All I know is that if I continued to take Levoxyl, I will most likely end up in bed for life...I am only 43 yrs old and would like to have at least "normal" energy for my age. There is NO reason I should feel a lot older and I know for a fact it is the medication. I have only been taking Armour Thyroid for just a few days but will report my well being in about the next 30 days. Since I was on 100mg of Levoxyl a day, am taking two grains of 30 mg a day for a total of 60 mg of Armour a day. In about 25 days I go for blood work to check levels, so far I experience a bit of nausea right after I take the "new" medication but it does not last all day. Hopefully, this new med will give me my LIFE back! Thanks for reading.

-- By hopeandheaven | Reply | (1) replies | Private Message me

July 31th
2008
3:24 PM

I have hashimotos thyroid syndrome andi have been on Levoxyl for about 5 years, now the medication is .088 mg's. I do not get anxiety depression. i really wouldn't know what normal is because im only 19 and iv been diagnosed for so long. My sex drive is completely there, the only thing that is wrong is that i CAN NOT wake up in the morning. i must find out what will happen if i get off levoxyl to go to the coast guard. please let me know.

-- By awoodonline | Reply | Private Message me

July 2th
2008
11:03 AM

I have been on Levoxyl for about 9 years and have felt awful. I have had weight loss, dry hair, thinning hair,dry skin, muscle aches, migraines and the list goes on. I just got out of the hospital Monday after 4 days of testing of my heart and lungs. I was admitted for racing heart. The doctor's conclusion was anxiety! They said that Levoxyl has nothing to do with my rapid heart rate. The endocrinologist prescribed taking levoxyl .050 on day and .075 the next also a beta blocker, Xanax and Zoloft. I can not take any of these meds b/c they make it almost worse. I KNOW it is not Anxiety and it from the Levoxyl but what do I do?? I am a mess right now can not be in this condition with four young kids and a husband. None of the doctors would say it was the Levoxyl and instead prescribed more and told me to check up with blood work in 6 weeks. I took the .050 yesterday around noon and by 7:30pm my heart rate picked up again and continued until 4:30 this morning. I can not sleep more then 2 hours at a time and wakeup feeling like I am crawling out of my skin. PLEASE let me know of any solutions.

-- By bcantrell | Reply | (9) replies | Private Message me

June 24th
2008
3:55 PM

My mother and I have both been diagnosed with Hashimoto's Thyroiditis and we both take levothyroxine. We both experience extreme pain and she has been diagnosed with fibromyalgia. I have not been diagnosed with fibromyalgia but I experience the pain body also. Another thing. I have been losing my hair. No reason, it's falling out from the root and I have some serious thinning. Memory...what memory. I can't remember anything. Has anyone received advise from a MD? Thanks

-- By stefjudkel | Reply | (5) replies | Private Message me

June 5th
2008
3:39 PM

I am just slightly hypothyroid and could go without meds, but decided to try meds, and endocrinologist suggested Levoxyl 50 mcg per day. First day on the drug, felt exhausted by night time, next morning, usually jump out of bed for workout and was extremely tired at the gym, no energy, was starving during the day even after breakfast which is unusual for me, and exhausted by evening, and third day woke up with swollen glands and exhaustion, knew something was up. Decided to research the side effects and found others with similar symptoms and didn't like long term effects so I am going off the drug and hoping I caused no damage to my system. My doctor's reaction was "impossible" that the drug could cause this. My reaction was, "no thank you, I think for myself, know my body, and know this drug caused this reaction." I was feeling fine before 3 days ago, and how could so many have similar symptoms if it isn't the drug.

-- By cwelsh1124 | Reply | (3) replies | Private Message me

May 13th
2008
12:48 PM

I don't know if my dry skin is from the Levoxyl or not. I'm on 25 mcg's and have been for about four years now and am seeking to be off of it as it is the only medication I'm now taking with regularity. As an asthmatic with a slight hypothyroid condition, I've just done "what the doctors ordered." Now at the age of forty-four I'm starting to do some of my own research and be my own advocate. I don't have answers for anyone but I strongly suggest you do some reading at the ****. Just plug Dr. Mercola in a search engine and you should find it. What a wealth of wonderful and informative reading. Watch the "Allopath" video. Food for thought. Physicians treat symptoms and while I'm glad that many meds are there, I'm thinking that the first line of defense AND offense ought to be a look at one's daily nutrition and exercise as well as hydration levels.
Blessings

-- By unicycle_granny | Reply | Private Message me

May 13th
2008
12:32 PM

I have been on Levoxyl 125 mcg for about two months after my thyroid was "killed" with the radioactive pill. Ever since I have been on this medication, I have constant headaches and feel sick on my stomach all the time. I had to go to the ER the past week because of the intense vomiting. The doctors tell me it's not related to my thyroid or the medication. How can this be? I didn't feel this bad when I was hyperactive thyroid. My wife has had to take care of our 18 month old all by herself ever since I have been taking this medicine. I feel like I am missing out on my life! This is terrible!!

-- By bry6009 | Reply | (2) replies | Private Message me

March 24th
2008
11:23 AM

I've been taking Levoxyl for approximately two years or Hypothyroid. Before that I took levothyroxine, but my symptoms were worse with that. I've never taken Synthroid.
When I was first diagnosed, my TSH level was around 144... off the charts. It tooks about 4 or 5 months before I got level. The medication seemed to make my symptoms increase. Each month however, my TSH level dropped.
I started feeling good when my TSH level was below 10. I felt awesome at TSH level 1.
My doctor became concerned that my level would drop too much so she lowered by dosage to .150mcg. Over several months, I noticed my symptoms returning. I requested to have my level checked but my physician said it wasn't time. By the time I was checked, my TSH was 20.
My dosage was increased to .175 mcg. The last two weeks after the dosage increase have been horrible. Migraines, vertigo, nausea, irritability, and absolutely no motivation.
I've been feeling better over the last two days and think I'm getting level again.
Don't assume your doctor knows you better than you do. Find out the number that works for you and fight for it!

-- By grizzelda75 | Reply | Private Message me

March 5th
2008
11:59 AM

I am on Levoxyl for quite a few years. In the last couple of years have developed a rash that was diagnosed by my dermatologist as "granuloma annulare". Some how I suspect that it might be a side affect of my medication. Any one had this experience?

-- By orit2 | Reply | Private Message me

February 10th
2008
6:29 PM

I've been taking medication for hypothyroid since 1987 with some changes of dosages and brands based on lab tests and, I suppose, doctor preferences. Until 2 days ago I was taking 112mcg Levoxyl, with no side effects, I thought. Recently, my pharmacy ran out of the usual brand and substituted another brand with 7 pills until their shipment came in. No problem. Without medication my throat and tongue starts to swell within 3 days and in 10 days I'm sitting around trying to see how little I can breath. Even that wasn't so bad but the heart beat slowing and then quickening gives an unsettling adrenaline type feeling. OK back to the switch. I retrieve my usual brand when it came in and was 5 days into that when BAM!. intense chest pain woke me up 2:30 in the morning. I took aspirin and TUMS, thinking I covered everything. The pain radiated from the center of my chest to my back, continued tingle sensation down the undersides of my arms, and achy ears. It even hurt to breathe. 30 Minutes later, and after unsuccessfully trying to minimize symptoms using WebMD, I decided to go to the ER. Lots of test later that rule out heart they said I was taking way too much Levoxyl and wrote a prescript for .75mcg. Since researching I've notice other symptoms I attributed to age (am 52) painful joints especially hands, wrist, feet, ankles, and knees that I've been popping Tylenol for 2 years. Stiffness. I'd like to blame the 20 pound weight gain in 8 months on it too but seems like I should have lost weight.
Since I can't go without medication it seems like I'm but to the hunt and peck method of finding the right dosage and brand. Any recommendations on which direction to take?

-- By conni | Reply | Private Message me

February 9th
2008
8:24 PM

I've read about many side effects of Levoxyl and I have experienced some of the "normal" side effects. Since I have been taking Levoxyl I have complained of breast swelling and there are time my stomach will be so extended I can't fit in clothes I wore two days ago. Someone told me that some Levoxyl medication has a high content of lactose. Has anyone ever hear of this? If so, it could possibly be what's going on with me.
MS

-- By midge | Reply | Private Message me

January 15th
2008
8:37 PM

I have been reading all the entries for this website and thought I would pass along some useful information. I have been on Levoxyl for 8 years now and have had lots of the symptoms that all these people have had. I then had an appointment with a great Endo doctor at the *** and discovered some interesting things. There is a number "range" they put all people into when checking your TSH levels, only problem is each person is different and even though the doctor may say your in the range, it may not by the right dosage for you. Unfortunately the only way to determine the correct range for you is to experiment with the dosages and it takes 3 months or more for your body to adjust. Also, thyroid hormones are accumulated in the body and depending how active you are is how you may feel. The hormone pill you take today will not be used by your body for up to 10 days, so if you feel good for a few days at rest, then exercise the next day you may feel drained. It will take a few days for your body to replenish the stockpile of hormones to feel "normal" again. A working thyroid makes hormones as needed, yours now does not so this is why so many people feel fatigued, or racing heart beat if they don't get enough exercise. I also had leg and muscle pain. The medication depletes your body of Calcium and B complex especially B12. My leg and muscle pain have disappeared. I still get headaches, but much less with the B12, and some days I still feel tired but I say again, your body cant regulate its needed thyroid hormone and a synthetic pill is only a substitute.. You will always have some side effects. Hope these tips help someone.

-- By lb1963 | Reply | (2) replies | Private Message me

October 9th
2007
3:14 AM

What is the average doasage for hypothyroidism? Everybody seems to on quite low dosages. I have been on 150mcg the last 2months (on medication 6months, dosage keeps goin up).
Does this mean mine is lower than normal?

-- By j2107 | Reply | Private Message me

October 3th
2007
7:12 AM

My three year old son was diagnosed with Congenital Hypothuroidism at 4 days old. He's been on Levoxyl for the entire three years. Our doctor told us that being on top of his medicine for the first 2 years of his life were so crucial, b/c of brain development. He's a very healthy, active boy. Now my doctor told us he has a heart murmur that had never been detected previously. Is there any chance that the medication can do this or is it simply unrelated? After reading some of the stories, I am scared. I want to know about a natural alternative. Please help, my son doesn't need to spend the rest of his life like this.

-- By concernedmommy | Reply | Private Message me

September 24th
2007
1:45 PM

I was prescribed 25 MCG tabs of levothyroxine (generic for Levoxyl) by my MD for my hypothyroid. (I was tested at a 4.5 reading -- just below a normal 5 reading). After 60 days of taking levothyroxine EXACTLY as prescribed (i.e.; on an empty stomach, 1st thing in the morning with a glass of water; no vitamins for at least 4 hrs afterward), I started to have symptoms that I've never experienced before: my hands began hurting so bad with joint pain; my lips felt numb; and I was sweating more than I ever had in my life. I decided to stop taking the medication due to these symptoms, and in about 7-10 days from stopping, ALL these symptoms had disappeared and have not returned to date. I relayed this information to my MD who told me that my symptoms had nothing to do with Levothyroxine and that I needed to continue taking the drug. It's more than strange to me how some MDs will not listen to his/her patient -- even more so now that I've read other info on the internet where many other people have had these same side effects taking levothyroxine!! On my own, I am now looking into taking an all natural alternative that I found on wellness resources called "Thyroid helper". I will not take Levothyroxine again if I can avoid it by taking an alternative. Has anyone else out there had success taking "Thyroid Helper"?

-- By maggb1 | Reply | (8) replies | Private Message me

June 6th
2007
9:55 PM

My sexual activity has deteriorate after taking Levoxyl. There has been data posted on the internet that negative fertility impact is a side effect of Levoxyl. I have not taken other medication since I noticed the change is the sperm amount, sexual duration, and erectile loss quickly during sexual intercourse. I am not sure if this is because of Levoxyl or age, but I am 36 years old and excercise once in a while. I am going to excercise more often, but am not sure if this will change the sexual dysfunctions I am experiencing. Be careful and talk to your doctor if you take Levoxyl.

-- By portsj | Reply | Private Message me

May 12th
2007
11:24 AM

I have had thyroid disease for 6 years. I just had my medicine increase less than one week ago from 125 mcg to 150 mcg. The endocrinologist did this with a lab result from over 6 months ago and I was never retested before he upped my dose. 2 days after my new dose I broke out in a rash head to toe. The next day I started itching and went to my doctor and she said I have no idea what is going on with you. Then I went to the Pharmasist and he said you are having an allergic reaction to the dye in the 150 mcg blue tablets (125 mcg are white). The following day I got new medication I now am taking 3 50 mcg tablets. But I now am swollen ankles to feet and elbows to hands. My hands are like balloons. When I go to bed at night my hands are completely numb. Has anyone else had any symptoms like this?? Help I cannot figure this out. I am thinking that I may be over medicated. Thank you Heidi

-- By heidisicard | Reply | (3) replies | Private Message me

March 29th
2007
12:50 PM

I seem to experience extreme irritability and headaches after just a couple days of taking this medication. I have tried it before but stopped taking it because it made me feel so bad. The doctors have again prescribed this medication at 75 mg for hypothyroidism and he says that he does not think it is the Levoxyl causing these side effects. Maybe it is just my imagination but I swear I get real irritated and even depressed shortly after starting this medication. I am on my second day now and again I am experiencing these side effects. I wonder after a period of time will the side effects decrease.

-- By sweetangelsong | Reply | Private Message me

January 8th
2007
7:34 AM

Oh gosh! So it's not only me having all these side effects from Levoxyl. I started taking it 7 mos. ago after having my baby. I'm on 88 mg. I feel much worse than when I was not taking it. I feel tired, irritable and have terrible hot flashes one minute and feel cold the next.
There is tingling in my hands and feet. I talked to my doc but he said it's not the medication! So I went to see him again and insisted he change the dosage or put me on something else, so far he slightly changed the dossage. So we'll see how it goes.

-- By masully18 | Reply | Private Message me

December 27th
2006
12:48 PM

I heard that you can get ringing in your ears (Tinnitus) from this medication...is that true. Should I switch or inquire about other mediation...I take 88 mcg of Levoxyl.

-- By kerri126 | Reply | Private Message me

December 9th
2006
1:49 PM

Hi there. I take 88 mcg of levoxyl and since being on it I have this desire to constantly eat food. I eat when I am not hungry and when I am already full. I do not sleep well anymore and wake up often in the night. I am extremely depressed and very emotional. I think I was better off when I wasn't taking medication. I tried to take my body off of it, and I felt very weak. I was recently diagnosed with Hashimoto's disease and I am scared that eventually i will lose my thyroid. Has anyone else felt like this?

-- By shoeluver11 | Reply | Private Message me

July 20th
2006
8:58 AM

I do not have side affects that I know of (50 mcg/day). If I did I would take my self off of it gradually and do the natural health side of treating my thyriod problem. I am now gradually getting off of my Levoxyl and taking several herbal supplements which the doctor confirmed are working better than Levoxyl. I encourage you all to try that...side effects are not good. When you have side effects they are generally treated with another medication. Who wants to take more meds? They are so bad on your liver!

-- By jamie5 | Reply | Private Message me

June 19th
2006
11:54 AM

I have been taking levoxyl for 2 yrs now. I am getting migraines/headaches an average of 3-4 times a week. I have had a ct scan and everthing came back ok. I am
suspecting that it is the levoxyl and I am going to stop taking
the medication. I take levoxyl for hypothyroidism. Does
anyone else experience headaches as a side affect. I have
also notices memory loss and trouble concrentrating

-- By madde_paige | Reply | (1) replies | Private Message me

June 16th
2006
5:54 AM

I've been on levothyroxine 50 mcg for about 6 yrs and for the past year I've noticed more and more hair loss, at first I thought it was because I'm 52 and going through menopause, but now I believe its the medication. Going to ask my doctor to switch me to armour. If not I will take myself off this medication.

-- By dargolv | Reply | Private Message me

June 11th
2006
11:41 PM

Within a couple of days of taking this medication I experienced numbness in the top of my right foot and up the outside of my leg to med-calf. I became unable to lift my foot up or point my toes upwards. When I walked my foot dropped down and I would almost trip when I walked. The first two times it happened it went away within the day. The last time was June 6, 2006 and it has remained since then with no sign of improvement. My doc called it dropped foot syndrome which is caused by a problem with a nerve in the side of my leg. I am still on the medication and hoping the problem will go away as I adjust to the medication. The medication thus far has had no effect on my hypothroid symptoms especially the fatigue. The muscles in my legs feel weaker than ever and the foot problem makes matters worse.

-- By flynn10 | Reply | Private Message me

March 9th
2006
11:25 AM

I started taking Levothyroxine about a year ago. A couple of weeks ago, I started to have problems sleeping. I would fall asleep just fine, but I would wake up in the middle of the night or an hour or two before I would have to get up and would be unable to go back to sleep, even on days where my stress was minimal or not enough to get me anxious around bedtime. It would seem strange that the side effects would start so late into the therapy, but sometimes long-term usage of a drug can cause side effects. I went to the doctor for my yearly physical in January, and my blood test results showed that my thyroid levels were normal. Has anyone else experienced this problem? Please contact me if so. I'm trying to figure out the cause of my insomnia, and it would be great if I could either eliminate this medication as the cause or contact my doctor with information about sleep problems that others have had while using this drug. I believe I'm on the .025 mg dosage. Thanks in advance for any assistance you can provide.

-- By retrogirl77 | Reply | Private Message me

November 1th
2005
7:16 PM

Ever since I've been on Levoxyl, my breasts are so tender
I can't even stand my clothes to rub against them. It
feels like I am pregnant (which I definitely am not) or they
are so full before nursing. Is this a possible side effect?
If so, will it go away? I have been on this medication for
nearly one month.

-- By d6d6 | Reply | Private Message me

September 19th
2005
12:37 PM

I just started this medication and have exessively sweaty hands and feet. Will this continue the whole time I'm on it?

-- By amsconberg | Reply | Private Message me

September 16th
2005
1:17 PM

hey everyone i'm just surfin' through the site of what to do if i missed takin' my med.(levo)and i found this... i'm kind a relate to all your problems about the medication.. i'm takin' 100 mcg. for about 5 months now and i do have all the side effects you guys felt...muscle cramps on the leg and sometimes in my arms too..painfull headaches and others..my question is what if i missed my med. for more than a month lets just say about a month and a half now, reasons are:1st, i missed place my med,that time is was on vacation, second i have to wait days for the appointment to get it and lab test need to be done before they will get a new one .. is that really a big a deal... help with this is really appreciated...

-- By akpinay | Reply | Private Message me

September 10th
2005
7:25 AM

I have been on Levoxyl.100mg, for six months, it was increased over the years. I now suffer from joint and muscle pain. I take no other medication except Ecotrim, 500, for pain and my heart. Was taking a lesser dose of Ecotrim, but increased it becuse of the pain I'm experiencing.

-- By mbs | Reply | Private Message me

August 15th
2005
9:37 AM

Ok, I am and have been on this med (100 mcg)since April 05. It was suppose to help regulate my thyroid. I have not had a weight issue until 2 yrs ago and they recently found my thyroid become wacked after not having this problem for years. I have bloated up and feel like a stugffed pig, I drink the required water but that does nothing. I too get the heart palpitations or anxiety flutters where I have to STOP everything. My right foot and ankle sometimes become tight and numb but it is said this is normal. How true is that? I have read someof you experienced this. My appetite has not been supresssed and I see no bebeficial facotrs of this med. I am considereing a request to be taken off of this medication because its initial purpose was to HELP with my sudden weight issue and Thyroid issue and I went from 145 and now sit at 230 lbs +/- 7 lbs (water weight). I think we have a problem here and I need it fixed, any suggestions or has anyone else gained weight also or find beneficial uses of this drug? What happened to old fashioned synthroid they use to give out?????

-- By clinipsych2b | Reply | Private Message me

June 17th
2005
7:40 AM

I have been on Levothyroxine 75 MCG since June 09, 2005 the only problems that I have encountered was dull headaches I did not think it could have been the medication, because I donot have them daily. My sleep oattern remains the same I have no other known symptoms other than the headaches. Good luck to all.

-- By cha42s | Reply | Private Message me

March 26th
2005
9:57 PM

After reading a number of the letters posted I feel so connected with you all, my heart goes out to you all because I too am on Levoxyl.. I have experienced practically every symptom that I have read and it is not in your head even though the doctors may not know what the problem is they will just treat it with other drugs instead of just changing your medication. I had my thyroids removed 5 years ago and still having problems every time I go to the doctor they are changing my medication. I too have been on different antidepressions and am having problems with my joints and swelling. My sister noticed my skin darkening and I was told that my liver was not good. I know there is so much going on that I still have not addressed but it cause money to go to the doctors and that is a problem but to all of you keep the faith and remember no one knows how you feel but you.

-- By sbwhelen | Reply | Private Message me

March 24th
2005
6:55 AM

I have been on Levoxyl for several years, and it is the only medication I can't live without. I can give up my oral diabetes meds by going low carb, my allergy meds and suffer the hay fever, but Levoxyl is my friend. My levels are low normal, borderline if you will, but I have had muscle fatigue since I was a teenager. When I started the med, I could climb stairs without aching, style my hair without my arms trembling. My thin hair filled in and though it is fine, it is full of volume. The pharmacy switched me to the new generic and within three months, I was aching, my hair was thinning, I was 35 and felt 88. Switched back to the brand name, and am well again. The only negative is I have to drink a LOT of water to stayhydrated, but have to do that w/ the diabetes anyway. Alot of the sideeffects I'm reading here sound like dehydration problems. The anxieties, the fatigues. If you aren't drinking your 64oz of water a day, try it and see if it helps.

-- By fanci | Reply | Private Message me

March 18th
2005
11:48 AM

I was experiencing all the side affects and more PRIOR to taking this medication. What brought it all to light was having a menstrual flow since Jan. 10th and ending early March. I realize there will be side effects I have to deal with - also we must remember there are other factors involved - do we smoke, drink alcohol, eat processed foods, eat too much refined sugars, caffeine? Given the opportunity as I slept way too much prior to this drug, if one of the side effects is that I can't sleep - I'll have a valerian root tea at 8:30 p.m to be in bed by 9:00. Cut out alcohols, caffeine, etc. Should nauseau arise - eat smaller portions through out the day. Should constipation arise - increase water and a less fiber intake. We as individuals must try to find that fine medium to a balanced lifestyle and not depend on the doctors for all of our answers. Our bodies and chemical equations are extremely complex and will be for quite some time.

-- By midniterider000 | Reply | Private Message me

March 8th
2005
8:45 AM

I had my thyroid removed in October, I have been on Levothyroxine for 2 months. In the past 3 weeks I have had a severe headache 24/7, vomiting, nausea, tremors inside, I have been feeling really strange and of course the doctor never even suggested it might be the medication. I am going again tonight to see what he has to say when I bring it up to him. Anyone else out there feeling these symptoms? Please let me know, thanks

-- By doris569 | Reply | (1) replies | Private Message me

March 3th
2005
8:41 AM

Experiancing severe gas and belching due to this medication.

-- By thyroxine | Reply | Private Message me

March 1th
2005
11:54 AM

I have been on levoxyl for about 6 weeks now.

I was placed on this medication after I had my daughter 8 months ago. I was losing my hair and they (the OB and GP) ordered some lab work to be completed - my thyroid was a bit under active. I read some where that this occasional happens after pregnancy, but it would eventually correct itself and all should be good after a few months. (This happend with my first pregnancy also - but they never ordered any labs to be completed). To my dismay, they placed me on this medication.

I noticed for the first 2-3 weeks sever fatigue, I would be motivated in the am, but by the afternoon I was exhausted and needed to nap.

I also tend to have nervousness and anxiety attacks - symptoms that I have never experience prior to being on this medication.

Lastly, there seems to be times where I feel like I have drank 500 cups of coffee and have a huge high, then crash and have a huge low.

Anyone else??

-- By kach1na | Reply | Private Message me

February 19th
2005
12:27 AM

17 year old female. I was diagnosed w/ thyroid cancer when I was 8 and had my entire thyroid and several tumors removed a month after the diagnosis. I've been on Levoxyl for about 7 years. I often experience chest pain, nausea, abdominal pain, and depression. I want to take myself off the medication, because I recently went 3 weeks w/o taking it and the depression went away. Only problem is when I stop taking the medication for more then a month I start to feel really sick, paranoid, and I'm unable to concentrate. I've asked my mom if we could look into an alternative medication, but she believes my doctors when they say that my depression, chest pain, nausea, and abdominal pain are not at all related to my taking Levoxyl.

-- By faithlikethat | Reply | Private Message me

February 16th
2005
4:41 PM

I have been on Synthroid for 2 years now. I started out taking .25 and went all the way up to .75. I have since switched doctors and after he reviewed my records he feels I never had a thyroid problem. He has me going off of it slowly and I'm already feeling better. While on the medication I had major hair loss, gained 20 pounds, tired all the time, bloating, constipation and just felt bad. I'm hoping all of the side effects stop. I hate feeling so fat!! If any one else has gone off of Synthroid please let me know. Thanks!

-- By mphillips | Reply | Private Message me

February 2th
2005
6:46 PM

I have been taking Snythroid for about 18 months. In the past six months, my blood pressure is uncontrolable. I have been on 7 regiments of blood pressure medicine in the past seven months. I have been to the Emergency Room twice in the last two months with tackycardia and irregular heart beat. My fingers and hand feels as though I have carpal tunnel. I started on .25 mg of Synthroid and somehow, whether it was the doctor or the pharmacy, my medication is now 25 mg. I have been to a cardiologist, had a stress test, MRI on my kidneys, holter monitor and they can't find anything wrong with my heart. I switched doctors, hopefully, she can figure out what is wrong with me.

-- By gpstill | Reply | (1) replies | Private Message me

January 26th
2005
4:51 PM

I am 33 and have been on Levoxyl 50 for 6 months for slight Hypothyroid. It seemed to bring me out of the fatigue at first, but now suffering from severe headaches, severe memory loss, insomnia and increased appetite. I just had a dr.'s visit for my symptoms and we did not even discuss the possibility of Levoxyl being the culprit. He suggested that I seek counseling for stress. I am taking myself off the medication and will find a thyroid specialist. KD

-- By kk_empl | Reply | Private Message me

May 5th
2004
2:39 PM

I have been taking Levoxyl 137 for the past 4 months and have never felt so bad. Previously I was taking Levothroid. Over just the past couple of weeks the Levoxyl has been giving me some really bad side effects. On three occasions while driving I experienced very rapid heart beat, had difficulty breathing, tingling and numbness in arms and legs, and lightheadedness. The first time this happened to me I called my endocrinologist since some of these symptoms were listed as side effects and he told me that the low dosage could not give me those effects. So I thought I was possibly having a heart attack and went to the ER, and had some follow up tests with an MD. Both my MD and my cousin who is also an MD feel that it is the medication. I have now been changed back to Levothroid 112. Let's see if the side effects disappear. Good luck to all visiting this site.

-- By tul1029 | Reply | Private Message me

March 30th
2004
5:14 AM

I was taken off of synthyroid 15 months ago. I had 75% of my thyroid removed in 1999. I gained 24 lbs in 15 months. I don't know what this doctor was thinking. I was put on Levoxyl 2 weeks ago and can't stand the sick feeling in my stomach and the pains in my joints all over my body. If anyone has been on medication successfully without side effects please let me know what your taking. I felt like a big whiner until I saw that other people are feeling the same way. Does everyone elses doctor say that there are no side effects to this medicine and that it's not the medicine making you feel this way. Please e-mail me at Stormy5563@aol.com with any comments. I love to know that I'm not alone and losing my mind.

-- By tammy183 | Reply | Private Message me


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