Levoxyl side effects

I was put on levoxyl at 14 because i had thyroid cancer and had lost 90 percent of my thyroid.
I myself have not had any serious side effects from the medication. When I forget to take it I feel completely empty, slow and my mood is irritable. I strongly suggest those of you who are having these problem to adjust your dosage. I have a fantastic doctor with a lot of experience, and he himself has had thyroid cancer and knows firsthand.
Too much will make you sick and too little will cause weight gain or weight loss, energy loss and etc.; all direct results of thyroid issues, not levoxyl

i discovered that i had hyperthyroidism which was from grave's disease and grave's thyroid eye disease in jan. 2009. at the end of march i had my thyroid removed. never let anyone use the radiation treatment if it is in your eyes. my surgeon said if we had waited another week i would have been dead. they started me on 75 mcg of levoxyl. it made me mean, i prayed to God to let me die in my sleep every night. the dosage was changed to 88 mcg. my hair was falling out by the handfuls. i kept calling my dr. and being told it was normal. i lost 75% of my hair mass almost to non reversible. i have been on appearex and women's rogaine once a day and am using nioxin hair cleanser and conditioner for 2 months. i have new growth thank goodness. my toes almost froze off my feet, the headaches cannot even be described, i gained 40 lbs, this will be the 3rd time in 7 mos. they need to change my dosage to 100 mcg. my body cannot take it. today i am starting synthroid. until i found this site today i had no idea most of my agony was from levoxyl and it's side effects. thanks so much for all the information. good luck to everyone.

I have been on Levoxyl 0.112MG for about 18 years. I do have some of the symptoms described by others, hair loss, hot flashes, etc. , but I think the alternative to this is a lot worse. If I do not take it for long periods of time, it gets to the point where I am freezing cold and the bags that develop under my eyes are embarrassing. I think the problem with most of you that are having very bad side effects is the dosage. If the amount is off just a little bit you can feel like you were just run over by a truck. I went through this many years ago. I would suggest continuing to change the dosage until you get it right. I wish I did not have to take it but it is absolutely necessary in my case.

Reply to jackclavey. The same compound a healthy thyroid makes? Not even close. Even the FDA doesn't say that. They call it a "Synthetic" compound.

I'm really glad you can take levoxyl if you need it without any side effects but it's highly arrogant of you to assume the rest of us have systems that react to these chemicals like yours does. If that were the case there would be no need for 90% of the medicine we have on the market. With your comment you are basically calling all of us dimwitted and delusional. It must be nice in your world but in mine one size drug does NOT fit all.

I have been on this drug for years, there is absolutely no side effects from this med. For gods sake, one of the women below says she was diagnosed Hyper and her doctor put her on this!

People, this is the same chemical compound a healthy thyroid produces! You people would have side effects from water!

i was told i was hypothyroid,but i felt fine! dr. put me on 88 mcg's of levoxyl and i all of a sudden came down with the worst case of acid reflux,which i did not have b4.also,heart palpitations.i choked down this med for 3 years,experiencing hours of burning after my daily pill.i could not take it any more! i put myself on a trial month without levoxyl ,and the burning and acid feelings are gone! i feel gr8! i dread being scolded by my doctor for going off it,but i could not take that burning anymore.ive been to 2 gastroenterologists,plus my general practitioner,all of whom said it was impossible for levoxyl to cause g.i distress.if that is so,why has the burning gone now that i stopped taking it?if u have experienced burning with levoxyl,could u kindly email me/i want to know-am i crazy,or is heartburn an issue for other levoxyl users also/plus,i never felt/looked ill in the first place,so even tho my thyroid functioning may not be optimal,did i really need medication yet?maybe someday i might,but i feel fine,i have long thick hair,decent fingernails,full of energy and not cold all the time-so why do i need meds at this point?(if i ever have overt hypo symptoms,i will have to take something,but why fix what is not broken?) ps-my b/p and cholesterol all very good too,altho apparently ive been hypo about 5 years.

Wow, what an eye opening experience it is to read all these posts! I was just about at the end of my rope thinking something was horribly wrong with me. Now I firmly believe it's the Levoxyl that is wrong.

I went on thyroid meds about a year and half ago for just slightly under active thyroid. I was actually lulled into it because the Doctor assured me it was a completely safe medicine and taking it would help me lose weight. Always a welcome thing. So I started on 50 mcg. I noticed some degree of improvement. I was sleeping better and having more energy during the day. Next checkup, the levels are in the normal range but just barely. So he doubled the dose. Two weeks later I broke out in a horrible itchy rash. I actually thought about the meds but then I didn't change meds, I was just taking more. I called the doctor and he said, "No this medication won't do that." So I change detergent, soap, everything I could think of and nothing worked. Finally I said, enough and I skipped a dose. During the day the rash got a lot better. Next morning I took another one and within and hour I was itching like crazy again. I stopped taking them, waited a week and called the doctor again and told them. His reaction was "You have to take this." I said, No, I don't and I won't. He actually argued with me that the rash could not be caused by the meds. Now I realize at that point I should have called another doctor but he's in my town, convenient, yada, yada, yada. Anyway he called me in another med which he said was the same active ingredient but different brand. Enter Levoxyl. I've been on 100 mcg for 3 months during which time I have felt progressively worse. Most of these things I didn't attribute to Levoxyl until later. Initially I noticed I was having the hot/cold flash thing. I have no comfort zone. I'm either flushed and sweating or chilled so my nights are spent constantly either searching for cover or kicking it off. Next thing I noticed is that my breasts would swell. Naturally that was a concern but about the time I would decide I needed to see about it, they would be normal for a few days. Sleep? What's that? Tired all the time. Started having confusion and forgetfulness. I even told my co-worker I thought I was losing my edge. I was all of a sudden forgetting things I had done automatically for over 15 years. Then the really scary stuff started. I would wake up in the middle of the night with my heart racing and feeling like I was in a fight for my life. I was afraid to go back to sleep. Joint aches and pains across my upper back, my knee. Tingling in my feet. It just keep getting worse and worse. Still didn't think of Levoxyl. Then Monday of this week I didn't have a pill to take. I forgot to get it refilled. Monday at lunch I told my husband I felt better than I'd felt in months. Tuesday took the regular dose. By noon the mental fog was back, back was hurting and I just felt like crap. Tuesday night went to bed early because I was so tired. 11:40 woke up with the worse anxiety attack I've ever had. Heart was pounding and I was breathless. Wednesday morning I got up and the light came on. I did not take the pill. Entered Levoxyl in google and found this site. I am so angry at my doctor I can hardly stand it. I even went to the official Levoxyl website and all these side effects are listed except for the swelling breasts and confusion but I've noticed several posts here that list those. During those two days I didn't take the freakin' pill both problems improved greatly. This morning, I reluctantly took half a pill. I plan to to that every other day for a few days then skip two days, then three, until I'm off of it. I don't know at this point what I'll do about my thyroid but I won't take this stuff and I won't ignore feeling like crap again. This is crazy. Where is the FDA? Oh yeah, being entertained by the drug companies. What a shame.

Thanks to everyone who has taken the time to post here. It is a sad commentary when we can't rely on our doctors to take care of us but we sure can't. If he had just told me about the bone loss, I would never have started this drug in the first place. My Mother suffered with that and that is something I would not trade for a few lost pounds and a little more energy. No thanks.

I have been taking Levoxyl for about 2 years. I have told my Endo doctor many that I have had headaches, nausea, stomach pains and have gained 40+ pounds in the 2 years. Every time I go in to review my blood tests and tell her I'm not feeling right I get the same respondents as a lot of you; they are you sure you are not pregnant? you need to change your diet and eat right? you exercising enough?...The Dr always seems to ignore my symptoms. The last 4 weeks have been Hell for me...I woke up one morning thinking my stomach was going to burst. I went to the Er. They did an ultrasound...found nothing..gave me stomach reflux meds and I went home. 2 days later the pain was a lot stronger right under the center below my rib cage. Went back to the er. They gave me more protonics and gave me a gi dr. I went to the GI doctor and got a contrast scan and then a scope. They of course found NOTHING. A week later I woke up again with the worst pain yet and the cold sweats...to the point where I was going to pass out...Went back to the Er where they gave me a cat scan. Everything was perfect the er doctor said. "They said they couldn't tell me what was wrong". I knew I wasn't going crazy and having all these symptoms but no one could explain why or what is was. I was getting fed up of being sick...So I took my Levoxyl like I do every morning and within 15 mins the pain was back. I went online to look up the side effects of Levoxyl and found this site. Its great to know that I am not the only one out there with these side effects from this medication and am not going crazy! I made an apt with my Endo Dr today called and told her this med was making me sick. She made me have an apt with her assistant. I printed off this page to show her I wasn't alone. As of today I am off of Levoxyl. Thanks to the new Dr who FINALLY listened to me. I do not have to take any other form of this med either. Since I just had a nodule not hypothyroidism. Please Can anyone tell me what they went through from withdrawal from this medication? and anything that helped it go away? and How long did the "detox" from Levoxyl last?

EFFFF Levoxyl!!! My life has been really, really difficult since being on this medication. Reading all of your posts truly makes me feel like I am not alone in my struggle, anger, and frustration! If we could only sit in a room and talk about this face to face, how much better we might all feel. I think there needs to be thyroid support groups. Does anyone know of any?

I went back on Levoxyl about 2 months ago, because I was feeling tired again. I took myself off of it a year ago because I felt like I didn't need it anymore. I wasn't feeling great being on it and I had given myself a year on it already. Which by the way was a year from hell. I experienced depression for the first time in my life, gained about 20 lbs. from binge eating (never had an eating disorder or weight problem in my life), was fatigued constantly, then blamed myself for being so lazy all the time, lost friends because I canceled soooo much on hanging out, "I'm really sorry but I'm just not feeling good." Yeah that excuse gets really old to people with a normal functioning endocrine gland. Mind you I was diagnosed with this at 23. Sure I am mad that I have this problem, but when I am trying to get myself well and take the steps necessary per my doctor, it's really frustrating to just not feel like yourself. During the year off of it I took a natural thyroid support. Feeling fine, I slacked on taking the support thinking I had kick started my thyroid.
Two months of being back on it and I'm done! In a moment of emotional anger I threw my Levoxyl pills in the toilet. You know what they did...expanded to the size of a bazooka joe bubble gum piece. Uh that's big considering it's such a small pill.
I went to my doctor today because I've been experiencing bloating, pain and constipation for 3 weeks now. He told me to drink coffee and take benefiber, because perhaps I'm not getting enough ruffage in my diet. Just to see if I'm crazy about the expanding pill, I dropped an advil and tylenol in there. They simply fizzled down. I think these meds are making me bloated etc. and it's not worth it to me to feel this way. My body is telling me something is wrong and I need to listen!!
I eat right, take vitamins, drink PLENTY of water etc. and I still feel crummy.
I have been doing research online and have found a product called IODORAL. It is Iodine and Potassium Iodide. I have read many posts from people stating that this product has given them energy, helped with fatigue, their memory, overall well being. What was shocking for me learn is that Iodine helps fibristic breast tissue along with other parts of the body. Did you all know that 30 years ago breast cancer affected 1 in 20 women, and now it's 1 in 8 ???! Iodine used to be part of our diets. It has since been depleted from our soils and other foods. Bread used to be made with Iodine. Now Bromine is used in the baking process. Did you know that Bromine blocks the thyroid from producing necessary hormones for function. I bought myself some IODORAL and I'm going to see if it works. I am not a doctor but I am a person who is very in tune with their body. The bible says that there IS A CURE for everything on earth. I pray that all of you who have posted on here and are in discomfort do not give up your hope and find a different doctor or start doing your own research and be your own advocate for your health. There has to be something better out there! Something that isn't hurting our bodies! I am not giving up hope yet and neither should you!

I too have been part of this levoxyl war. Been on the drug for 15 years and all my doctor ever does is take my blood and change the dose. I've had 2 biopsies and I'm only 32. Im a RDH and into "natural"things. This is the only medication I've ever taken besides the pill-which I went off 2 years ago-.

I went to recently get a refill and denied b/c I needed to see my doctor. Well, I had canceled an appointment only this past week due to conflict with work. To reschedule it was 2 months out. They would not refill my prescription otherwise.

Funny how Doct tell you to never stop taking medication even if your feeling better....but what it boils down to is they're controlling me taking this med in the long run now. Seems no dire emergency to me if they can't schedule me in for an earlier appt-knowing damn well my med has run out.

So F 'em. I've been wanting off this med for years now since I've went a more holistic approach. I've scheduled an appointment to see a holistic doctor regarding my thyroid and other alignments-thoracic outlet syndrome, trapezius myalgia, joint aches, headaches, lack of energy, lack of sex drive, shallow breathing, fogged head, burning eyes, loss of hair etc etc.

Which I feel is not due to lifestyle, overall health etc-but due mostly to being on levoxyl for soo many friggin years. I eat a lot of fish-balanced-I take herbal sups-researched for years-and I walk-there is no excuse for feeling this shitty.....time to do my own experimentation-be my own guinea pig...aside from seeing what a holistic doctor may have to say.

update from last post, doctor called back, said there are no other reliable alternatives, she said there is armour but not very reliable. I guess I will continue to suffer rest of my life, or go against what doc says not sure what to do. Someone needs to invent something that works and doesn't make you sick!!!!

I have been on levoxyl for about 8-9 years now. I have an under active thyroid which I believe is from radiation over my neck area for benign tumors. I have been reading the side effects from people and I am starting to think that most of my symptoms or side effects are from this medication. Slowly over the years I have developed several of the same things people are talking about on this, especially restless leg syndrome, fatigue, chronic pain in legs, trouble sleeping, anxiety, lack of energy, cold feet/hands, lack of sex drive depression, b-12 deficiency, neck and back pain. I am talking to my doctor tomorrow and see if I can go on something else. I am being treated for all these other things that could all be related to the levoxyl side effects. I had none of these other things before taking this medication, what is going on?

37 - Dx'd w/ Hyperthyroidism at 20 and have been on levoxyl since then. I started at .075 and was increased to .1 when I got pregnant w/ my 1st child at 29. I always thought I had anxiety so until I started reading the posts I didn't put it together. I was always shaky and nervous and super skinny before I was dx'd with hyper and after the treatment I was still anxious so I thought it was a different problem.

The anxiety has gotten much worse in the last few years w/ pressure, family, and career so I went to a psych last week and he gave me lexapro and klonopin. The klonopin had done nothing and I was treated 10 years ago with Zoloft which made things MUCH worse so I won't take the lexapro.

I recently switched to Synthroid .1 because I thought maybe the generic meds didn't work as well. I developed a small rash on my elbow a week or 2 later, then a week after that I got 2 big patches on my back over my kidneys. A bout 2 weeks later I developed a HORRIBLE itchy rash over my whole body. I thought the itching would drive me insane. I saw a dr who gave me prednisone (made me feel awful), after I took the dose pack it came back like crazy. I went to the ED and the dr gave me scabies medication (I was mortified) but nobody else in the house had anything. I went to the derm and they biopsied two areas and a week later have not given me the result. Meanwhile, I'm back on levoxyl and the rash is slowly getting better. It must have been the cause. Anybody else get that??

My doctor switched me from Levoxyl to Synthroid and lower the dosage too.From 150 mg to 125 and now I am on my 2nd day taking Synthroid. I started feeling so dizzy this morning about 2 hours after taking Synthroid. I had this problem in the past with Synthroid, Maybe my body will not take Synthroid very well.

I have been taking Levoxyl for six months since a thyroidectomy in December 2008. Started on 137mcg, reduced to 125mcg, reduced to 100mcg, and now on 88mcg. I take it every morning on an empty stomach with plenty of water. I feel great and have not gained weight. I continue to eat healthy but probably don't exercise as much as I should. I consider myself a very lucky 54 year old woman.

I started taking Levoxyl for Hashimoto's Thyroiditis several years ago and got a headache at the exact same time every day, exactly 9 hours after taking the pill. They switched me to Synthroid (which in the end didn't work so I went on Armour Thyroid and have been great since.)

I just started taking Levoxyl 25mcg. My doctors says my levels are slightly off and I have mult. nod. and this will help them from growing bigger. After taking my first pill I feel a lump in my throat that doesn't want to go away. didn't feel that way before taking the pill.

Hello... I started taking Levothyroxine last July for slight hypothyroidism. I felt great for the first 6-7 months, but then in January the problems started for me. I was getting severe anxiety which the doctor said was stress and he also thought I was depressed. I knew I wasn't, but he put me on Ativan and Prozac. The week I took prozac was the worst week of my life. I thought the effects I had were from the prozac, but now I know now it was my thyroid spiking, which the doctor never checked my levels during this period. My heart rate doubled, I had insomnia, was gagging, sick, felt like my body was on speed and wanted to die. I was prescribed a beta blocker for my anxiety previously which I had never taken, but decided to take when my heart was racing, which helped me feel a bit better for the week, but I knew something was wrong. I had this happen again recently for about a week (and I was on nothing but levothyroxine). I know what anxiety is and I have never had anxiety or depression my whole life until these episodes that happen when taking this medication. By the time I went to the doctor to get labs done, I had been feeling a bit better and he said my levels were fine. I am now wondering if it's side effects from the meds or if it is spikes in my levels making me hyperthyroid instead. All I know is that I cannot live like this!! I have a 3 yr old and I need to be happy and healthy like I used to be before this medication... no more heart racing, racing thoughts, anxiety, and insomnia. Please help!!

I am 34 years old. Back in 1985 I had most of my thyroid removed, due to a tumor attached to it. Since I was 10 until my late 20s, I was on Synthroid. By age 19 I had 3 knee surgeries to remove arthritis. I have suffered most of my life with joint pains, dry skin, weight that is like a roller coaster, and being tired most of the time. In my 20s I was put on Levoxyl. I has been on Levoxyl for several years now. Since being on Levoxyl I have been fighting anxiety, racing heart, joint pain in fingers and ankles, sudden dizziness to the point where i have to sit or pass-out. I feel like I'm 80 and not 34. After reading this site I am printing all this out and taking it to my doctor. No telling how much damage has been done after all these years.

I have been on Levoxyl for about 2 1/2 years. Before I was on levothyroxine, but my new endo said the generics don't work, so he insists on the name brand. I've been taking it in the morning on an empty stomach, and have been battling extreme daytime fatigue ever since. At first I thought it was because I was unhealthy. I had LAP-band surgery, and I use a CPAP machine for my sleep apnea, and I lost 50 lbs, but I've hit a plateau that can't be explained by my food intake, and the fatigue is so debilitating. My GP is adjusting my anti-depressant to see if that makes a difference, but so far no. On my own I decided to start taking the Levoxyl at night before I go to bed. It's only been a couple of days, but I have noticed a marked improvement. I'll talk to my endo about it, and hopefully he'll be at least willing to consider the change.

On a side note, anti-depressants are the best medicine ever discovered. If you are feeling at all depressed, talk to your doctor. Whether the Levoxyl contributes to it or not, the anti-depressants help. I never want to go back in that black hole again.

weight-gain/ alternatives have been availalable.."Amour-thyroid" about.com any alternative medicine sites! Thy-Aid..etc,Synthroid does nothing for thy,roid issue Everything starts there! Bio-denticals deals w/ harmonal...read and learn..FDA lies! Alternatives have "Cured" ask "Breakthrough" Susann Sommers book w/ doctors! Larry King! Truth re: real cures for thyroid,not HRT's..yet another that has killed and/or close to from...Side-effects..alt's do not have side-effects.soon,if enough people stop being lazy and so afraid to take what will keep them alive and happy only then will ALT'S push the bad FDA approved poisons away! Both MUST be explored,but the FDA make billions w/ doctors who get kick backs from each script they write for the infamous SIN-Throid,made my life a horror..hypothyroid issue does not need syn! There are better natural things! Headaches,never get the right dose! Right thyroid tests? Endocrinologists will use those bio-denticals bec- hormone & Thy go together,for all of the idiots out there who think their doctors are sooo good,slowly they are killing them in many ways!

I have been taking Levoxyl for approx. 5 years following having a total ablation of my thyroid due to follicular thyroid cancer. I am constantly tired, have joint pain, trouble sleeping and continue to experience weight gain. The doctor continues to tell me this is not from the medicine and to improve my diet. My vision has also gotten terrible over the past two years. Has anyone else experienced this and do you know of anything that helps?

I am 46 years old. I first started taking Levothyrox 11 years ago during a pregnancy. Now I currently take 200 a day. I have been suffering chest pains. I also suffer bone pain. My hair has not grown in nearly 3 years. I am borderline diabetic and each day when I take the drug, I immediately sleep due to the immediate sugar elevation I feel.

Six months ago my femur broke. It seems due to a Vitamin D deficiency. Now I discover that a few of the nasty side effects that no one ever told me about is Vitamin D Deficiency and also Osteoporosis. Due to the strict bed rest that I have been on from my fractured femur, located near my pelvic, I have suffered muscle atrophy. I am too weak to even stand. So for 6 months now I have not even been able to leave my bed.

Now the only solution I feel in order to possibly save my life is to immediately discontinue the use of Levothyrox. My boyfriend is a little concerned for me doing this but I see no other way. Any feedback appreciated. Thank you.

I've been on levothyroxine 150mcg for about 3 months before that it was 100mcg and so on. I have gain lots of weight and tired all the time. depression also, headaches. I hate this gaining weight, sleepy all the time and depression is from gaining weight. I thought this med is to up boost my thryiode but it doesn't seem to be working. my dr. said I'm on the highest dose there is. I don't know what to do any more. I was thinking about taking myself off this but not sure what will happen if i do. I hope there is someone out there that might be able to let me know if they are going through the same things what they are doing and how they feel now.

Have been on Levoxyl for the past two years and have been having EXTREME hair loss. Would like to hear from anyone having this side effect who has had success with an alternative treatment....either a different drug or an alternate treatment such as Armour, etc. Is coming off Levoxyl cold turkey as dangerous as everyone says it is?

I have been on Levoxyl 100 mcg for 9 months and I never related this rash with the medicine I was taking. I have tried changing my shampoo, bar soap, laundry soap trying to figure out what I am allergic too. I still have this rash-red bumps that sometime itch and when I scratch they seem to bring out more redness. My doctor prescribed me cream but the rash is still there.
I have headaches but I think they are sinus related.

I have been on Levoxyl since I was 19. I am now 49 and a yr ago because of cronic fatigue I took myself off. I noticed I was awake again, my back, legs and teeth quit hurting, I went back on it because the blood test came back funky and after just 2 weeks back on it I feel awful. My back and body hurt so severely I cant stand it and Im taking vicodin I had laying around the house. Tonight its almost unbeable and is interfering with my job. There has got to be an alternative to this type of pain..

Levoxyl makes me Tired and fatigue.
Does anyone get tired and crash 2 to 3 hours later after taking any thyroid medication? I get tired need to lay down, I crash my body lays in the bed and this tired feeling goes away after a hour. It used to last 2 hours. I feel like I took a sleeping pill. This is probably due to adrenals from what I read. I have tried all the armour and t3 that I think adds to the tiredness.

bowel disturbance, nervousness and headaches, migraines cause frequent urination, muscle cramps, neck and left shoulder pain

My serious hell started at age 43 and I am 49 now. Diagnosis was hormonal changes. My doctor put me on Zoloft, klonopin, xanax, flexril, pain killers, and prescribed many other meds to control my very frightening panic attacks, depression, fibromyalgia, migraine, arthritis type pains, knee pains, insomnia, restless legs, tingling, numbness, hot flashes, and many other indescribable symptoms.
Nothing helped. I stopped going to work and stayed in bed most of the year and a year later stopped taking all of the prescription meds because of the serious side effects etc. I continued the Zoloft though. Zoloft helped with my panic attacks but all other symptoms are intact and some new symptoms have joined the list.
New development is that about 6 months ago I started feeling very tired, drained, exhausted, thinking became slow; weight won’t come off (put on 40 lbs last couple of years). My depression and other symptoms listed above worsened.
Now in Dec. of 2008 I got my annual physical done and the blood test showed that my thyroid hormone was low (hypothyroidism) so my doctor put me on Levoxyl which drove me even more crazy (manic depressive type symptom, restlessness, blurry vision, and vomiting. Ear infections, sore throat, cough that won’t go away for weeks. But there were moments here and there when I found myself feeling good and happy but the moments didn't last longer than half hour. There was one week when I didn't get any migraines and my appetite reduced but then there were times when I felt very very hungry and ended up eating a lot.
Fed up with my indescribable hell and the doctors I decided to check into some alternative medicines, home remedies, and herbs. A friend who is a nurse and has been going through worse hell recommended that I start taking Thyroidinum 30cc, a homeopathic tincture, and slowly stop the Levoxyl. So I ordered it online. Then I researched on Black kohosh and bought it in liquid form from whole foods. I also bought chamomile liquid form and progesterone cream. I looked for bioidentical hormonal creams but didn't find any so decided that I will try progesterone cream.
OnDec. 26, 2009 I started taking Thyroidinum 30cc 10 drops in 1 ounce of water three times a day and at night before going to bed I started taking black kohosh only 10 drops in water. Recommended dose of black kohosh is 30 drops in water three times a day (total 90 drops a day). I was little afraid to take that much because I read some reports which said that it can cause liver damage. I tried it couple of times during the day but it made me feel funny so I stopped taking it during the day time.
Now I don’t know what’s making me feel good whether it’s Levoxyl adjusting to my body or Thyroidinum 30cc or black kohosh. Believe it or not I have never slept like this in my whole life before as I have in the past one week. I go to bed at 10 PM and wake up at 9 AM. I have no idea what happens in between. I am happy. Energy is great. I go out to do things I had lost interest in in the past 6 years. No migraines. No joint pains. No body pains. It almost feels like I am woken up from a very long sleep. I don't know what’s making me feel good. It’s too early to tell but I will keep you all posted if anything changes. Please give me feedback regarding my condition and the meds I am on. I will also be posting this message for the greatest and the best homeopathic doctor Pankaj Varma /Max Varma and see if I can get some help in that forum. I started Thyroidinum without consulting a homeopathic doctor and I want to quit Levoxyl and Zoloft in the next week or two. I am afraid to do so but I am really fed up with the doctors heavily medicating me for the past 6 years and all I have felt is minute help in couple of symptoms and gotten twenty additional side effects from the prescriptions. I have not had a normal life since I turned 43 and I will be turning 49 in Feb this year.

I was diagnosed with Hashimoto's Thyroiditis (hypothyroidism) about 9 years ago. My teenager was diagnosed 2 years ago. I have done a good amount of research and have also learned a lot through experience.
*The most critical thing is to NOT accept a generic brand of thyroid replacement. My GYN, family doctor, and my endo (who specializes in thyroid) have told me that generic pharms are only required to match the original drug's ingredients/strength by 75%. As my GYN said, if you're in the business of making a profit, and you can get away with putting in 25% less of the expensive (and unfortunately, the essential) ingredient, that's what you're going to do!
*Measuring T4 alone may not reveal hypothyroidism in the early stages, and it will probably not show everything that is going with your thyroid. I knew something was not right, but my old GYN (got rid of her) tested T4 only and said I was fine. I went to an endo who measures 1/2 dozen indicators, including antibodies and thyroid uptake, and I was correctly diagnosed. He also diagnosed my son early on, albeit, my son was exhibiting numerous symptoms. Which brings up another point -
*Everyone exhibits a different degree of different symptoms. So don't be surprised if your thyroid levels are higher or lower than you thought they would be based on your symptoms.
*Find a doctor that will work with you. I had a doctor that insisted my dosage was correct, even though I was still feeling very tired, had dry skin, etc. I finally found a doctor that acknowledged that there is a range of "normal" thyroid function. He upped my med a little, and I've felt much better.
*Know the signs of too high of a dosage - restlessness, eye and muscle twitches, trouble sleeping, etc. Our endo has us come in 1 month after prescribing a new dosage to make sure it is enough or not too much. If I was exhibiting hyper symptoms, I would not wait 1 month to be rechecked.
*Hormonal changes of any kind can wreck havoc on your thyroid - whether you're a male teenager or a peri-menopausal woman. Your thyroid levels can change quickly. If my son or I experience any new symptoms - fatigue, rapid weight gain, unusually dry skin, muscle aches/pains, etc. - I make an appointment w/ the endo. My son's thyroid had plummeted the last time I took him in, and the endo adjusted his med. Illnesses (flu, pneumonia, etc.) can effect your thyroid levels, as well as stress, so have your levels checked after going through a serious bout.
*Once you have your dosage correctly set - watch your appetite! Hypothyroidism can reduce your appetite, and once you've got that corrected, your appetite comes back. Keep a food journal to track your calorie intake.
*Have an annual thyroid ultrasound to make sure your thyroid is not enlarged and to look for nodules (very common w/ hypothyroidism.)
*TAKE YOUR THYROID 1ST THING IN THE MORNING BY ITSELF 1 hour before you eat. I had a friend who was taking her calcium supplement along with her thyroid every day and later found out the calcium was basically canceling the thyroid. Her doctor should have warned her about this, but I think they assume we know these things. Vitamins, herbs, cold medicines, certain foods, and other medicines/supplements can greatly interfere with your thyroid replacement.
*Women with hypothyroidism should take a calcium supplement (take one with magnesium for better absorption) because we are at greater risk for osteoporosis. I take mine at night, so it does not interfere w/ my thyroid replacement.

After an ER trip where I discovered I was a hypo, I've been on Levoxyl 50 mcg for just under a month. I recently informed my doctor on the phone I was experiencing swelling directly under my chin after I took the medicine in the morning and it lasted all day. He told me to stop and come in and see him immediately. It's the weekend and I can't get in until Monday. It's the 2nd day I've been off the hormone and today I have numbness in my cheeks, they are swollen, I can't eat much and feel really depressed. I've been in pain for so long and now it's just getting worse. I don't know if I should take the hormone tomorrow morning to see if I feel better or stay off as advised by my doctor. Reading everyone's comments is helpful, as it's very difficult for my family and friends to relate to me during this time and seem to think I'm over-reacting all the time as the pain never goes away. Levoyxyl seems to make me feel better, but I still have a lot of back and neck pain, as well as sensitivity to light, headaches and jaw pain. I'm 215 on a 5'5 frame, I eat quite healthy, avoid all the trigger foods for the thyroid and try to be active, but I can't seem to loose weight. I'm really not sure what to do with myself and am loosing hope.. I'm 24 and feel like I'm 84.

I have been on Levoxyl for years. I was diagnosed with Hashimoto's when I was 13 years old. I'm 35 now. I have been on every medication made and this is the only one that didn't make me want to sleep all the time. I have suffered from Depression my whole life, but that started before the thyroid too. My mom was one of the first people to be treated with Iodine when she was a kid and it worked for years then her thyroid acted up again in her 50's. When she was younger it was Hyper and now it went Hypo. She takes Levoxyl now too and it's been great. I think part of my problem has always been a lack of exercise. A lot of the symptoms everyone has mentioned went away for me when I started hiking and walking regularly. After being inactive for so long due to the depression and exhaustion because of the poor diagnosis of my thyroid medications for so long, my blood pressure was too low, my circulation was poor and my depression got worse . Now with a combination of meds for my depression and my Levoxyl, I don't feel like there is a giant weight on me when I wake up in the morning. So many of the meds described have similar side affects I've stopped judging by side affects and rather my energy level, my weight, goiter size and sleep pattern.
Just my experience. Good luck to everyone

my mother was raised a month ago to 50 mcg, and since then she has eye muscle spasms around her eye,
she has rupchured discs in her back, which doesn't help with the pain, she also has restless legs, i see how she sleeps, and her legs can never stay still, she sleeps a ton, and has static hair, and also hair loss. if you have any of these symptoms please let me know

How do you tell what is a side effect and what is normal aging and what is the result of lifestyle? I know without levoxyl I would have nothing because I have no thyroid at all.
Lately I have felt great. My weight is normal and I have enough energy. This didn't happen overnight. I was overweight for quite awhile. At 59 years old I do expect some achey joints and so forth.
But I am totally dependent on levoxyl. I worry if I couldn't get it for some reason I would die.

I have had great experiences with Levothyroxine. I am no longer tired, achey, grumpy, constipated. I feel great. I am only 27 years old and got my hypothyroidism from having my first child. I am excited that my levels are now normal after 3 months (TSH was 25.89). I was on .50 mcg now I am on .75. Feel great!
I am a medical technician and have found that a lot of people who start on a certain medication for hypothyriodism, such as Synthroid - do not fair well if they have to switch. My doctor always says NOT to switch...not EVER. She repeats over and over again to check my prescription every time I receive it. That means checking the pills against each other, because hypothyroidism medication is one of the highest missed - filled prescription. If I were anyone who has had to switch, I would demand to be put back on your original meds. Have your physician write up your symptoms with the new meds and make a recommendation to the insurance company that you NEED synthriod.

ive been on levothyroxine for about 6 years...... for an underactive thyroid gland and i am stunned reading all these side effects as for about 4 years ive suffered from severe joint paint, fatigue ,very low moods , foggy brain, mood swings hair loss, all i want to do is sleep and even then im still tired.
I am 35 and feel about 80 as my back hips legs calfs and feet all hurt so bad.
I have been to the doctors so many times and got no where.
ive been told your in pain because your depressed( who would not be depressed ) but i said i am depressed cause im in such pain.
i remember asking once if it was due to the thyroid or the drug and the doctor said your levels are fine and the drug gives no side effects.
I feel like stopping it right now to be honest.
I only got it after my third pregnancy and i remember reading once it can correct itself as it could be caused by pregnancy ????? any ideas.
ive copied and pasted a lot of these comments and i will be making a trip to doctors to be fobbed off again im sure ....but its worth a try

This is my 4 week of taking 125mg and I have noticed headaches but not sure if this is a side effect. I have headaches all the time the only thing is sometimes it seems like they come on when I first take my dose. But later in the day everything seems fine. Started having knee pain in one of my knees that I injured about 8 years ago not sure if this is a side effect as well, but I will be tracking it and I will be calling my doctor first thing on Monday. I have alot of allergies to medications so hopefully if this is all do to the medication, I can take one of the other that has been mentioned.

I started taking Levoxyl about two months ago and since that time I have suffered from an internal shakiness that won't stop. I was told that Levoxyl has no ill effects, but the handout from the pharmacist shows that nervousness and trembling can be one of the side effects. My blood pressure has also been all over the charts since I started the medication and I feel chest pressure every once in a while.

Hello, told my doctor today of leg cramps, facial rashes and numbness in feet....and specifically asked if they were related to Synthroid? He said no, I have been on it for 2months...and just upped script to .50mcg....and cramps are worse....I am going off the meds. I am in excellent health @ 64 and only went to this Doctor because of back pain.....was tested for a myriad of things...I had none of the symptoms for hypothyroidism.....what natural remedies are there for this . E.

Been taking this for 18 years. No Doc could figure out what was wrong. I have too many allergies. Knee's ache, retain water, moods are way off, dry skin, hair loss, I am now taking armour. I feel fantastic and am losing weight. My skin is oily. TYG

I am having a bloated tummy with plenty of gas, though I rarely consume heavy and oily food. I don't touch potatoes. As a result I am having chest pain and pain radiating down my shoulders and elbows. To top it all I am just 19

I have been on levothroid 25mg for a year but went to see an endocrinologist who switched me to Levoxyl 75mg which I have taken for a week. I have developed tiny bruises on my body. I am waiting for my doctors office to call back to see what they say. I don't think I want to take it anymore. I am glad i found this website. Thanks to everyone for all the information.

I'm on 50mg of Levoxyl I'm 42. I have experienced major gas and heartburn. I have no sex drive anymore and just feel like I'm in a box and can't get out. I thought by seeing a specialist it would help. I just don't know anymore. I told my doctor about my side effects and he said this medication has no side effects. Hmmm after reading all this I am printing and giving it to him. Anyone feel the same. Especially the gas and heartburn?

All I can say is WOW! I did a search for Levoxyl side effects because in the 2 weeks since my dosage has gone up (200 mcg) I have had a constant headache and my entire body just aches, especially my hips, legs and knees. I have a hard time sleeping because I can't get my knees in a comfortable position. I do have arthritis which has not really bothered me in over a couple of years and this is not the same as my arthritis pain. It is more of an overall achiness and it feels like my bones are sore. I am also having eye twitching occasionally, but I am not sure if that has anything to do with it. What should I do?

Thank you all for posting your experience with Levoxyl. My mother started to take this med about a year ago or so. She has experienced all of the side effects listed in postings. I thought she was going crazy. She actually found this site and e-mailed it to me. WOW!!!!!! We have been in and out of doctors (numerous) and hospitals for testing. All test results came back with nothing being wrong with her. She actually just went to Catholic Medical Center in NH (this hospital specializes with heart problems) last week because she too thought she was having problems with her heart. Thankfully all is o.k. She has now taken herself off the Levoxyl. It is amazing what we think will help us can do so much harm to a person. Good Luck to anyone who prescribed this medication. DO YOUR RESEARCH FIRST!

D.NH

I was diagnosed with Hypothyroidism and Hashimoto's Disease 12 yrs ago after my daughter was born. I've been taking Levoxyl 100mcg all these years. Recently I switched to Targets pharmacy & I let them talk me into buying the generic. What a mistake. I've been on the generic for 3 1/2 months & I feel like I have been hit by a truck! I thought I was coming down with the flu. I don't get out of bed, I shuffle out of bed. It's like I have the body of an 80 year old. I also noticed I was hungry all the time. I've been having dizzy spells and my dry skin came back. I have been very tired. I've been taking a nap everyday. The only good thing that came out of it was I started sleeping better, but it's not worth going through all of this. I switched back to the name brand today. I've read where some of your doctors prescribed antidepressants. I started getting very irritable & anxious after my daughter was born, but I thought it was because I was a first time parent. Now, I'm thinking it was the levoxyl. I am slowly weaning myself off of the Wellbutrin. The less medication I take the better. One thing I did was start a personal program with Women to Women a few years back. Once I did, I noticed my fatigue went away. Before I was having to take a nap everyday & didn't want to get back up. I also noticed my memory got better. It's a very interesting website.

Been on Levoxyl dose of 88mcg, for about 9 months. No problem at first. got rid of my symptoms of being extremely tired(all of a sudden, usually high energy person) and cranky. Now though, I have had a weight gain of almost 8 pounds (a lot for me). My hair has fallen out, and irritable. Going to call my doctor and get my levels checked. Something has changed. Get back to you.

too all, i have a slow thyroid, my doctor today put me on levoxyl tabs. 75mcg, gave me samples take one a day in the morn. got my blood work back and thats why the doctor is putting me on this med. cause my thyroid is not working like it should. i weighed out at 282 when i went in this morning for my appt. with him. so i will start tomorrow morn when i wake up. i will let you know what happens in a few days. today is 10-23-08 Thursday. i'm to go back for a blood test next and then to see him the following week to the doctor again. i read all of your comments on this medication sure didn't sound to exciting. till next time. B.

WOW ok this freaked me out. I was just prescribed 50mcg of Levoxyl after reading this I am going to call my doctor back and ask more questions.I haven't started taking it yet. Like what my numbers are and do I really need this. I feel fine, I have energy and think clearly, as well as am active. Just had my 44th birthday. I had a physical and then the next thing I know they are calling me saying take this and see us again in 4 to 6 weeks. Thanks for all the information.
JT California