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350 Side Effects posted for Levoxyl

November 14th
2008
4:30 PM

I have been on levothroid 25mg for a year but went to see an endocrinologist who switched me to Levoxyl 75mg which I have taken for a week. I have developed tiny bruises on my body. I am waiting for my doctors office to call back to see what they say. I don't think I want to take it anymore. I am glad i found this website. Thanks to everyone for all the information.

-- By nealeykidsmom | Reply | Private Message me

November 11th
2008
5:55 PM

I'm on 50mg of Levoxyl I'm 42. I have experienced major gas and heartburn. I have no sex drive anymore and just feel like I'm in a box and can't get out. I thought by seeing a specialist it would help. I just don't know anymore. I told my doctor about my side effects and he said this medication has no side effects. Hmmm after reading all this I am printing and giving it to him. Anyone feel the same. Especially the gas and heartburn?

-- By lisakan | Reply | Private Message me

November 8th
2008
7:57 AM

All I can say is WOW! I did a search for Levoxyl side effects because in the 2 weeks since my dosage has gone up (200 mcg) I have had a constant headache and my entire body just aches, especially my hips, legs and knees. I have a hard time sleeping because I can't get my knees in a comfortable position. I do have arthritis which has not really bothered me in over a couple of years and this is not the same as my arthritis pain. It is more of an overall achiness and it feels like my bones are sore. I am also having eye twitching occasionally, but I am not sure if that has anything to do with it. What should I do?

-- By jessicaf | Reply | Private Message me

November 4th
2008
6:41 AM

Thank you all for posting your experience with Levoxyl. My mother started to take this med about a year ago or so. She has experienced all of the side effects listed in postings. I thought she was going crazy. She actually found this site and e-mailed it to me. WOW!!!!!! We have been in and out of doctors (numerous) and hospitals for testing. All test results came back with nothing being wrong with her. She actually just went to Catholic Medical Center in NH (this hospital specializes with heart problems) last week because she too thought she was having problems with her heart. Thankfully all is o.k. She has now taken herself off the Levoxyl. It is amazing what we think will help us can do so much harm to a person. Good Luck to anyone who prescribed this medication. DO YOUR RESEARCH FIRST!

D.NH

-- By denisenh | Reply | Private Message me

October 31th
2008
1:06 PM

I was diagnosed with Hypothyroidism and Hashimoto's Disease 12 yrs ago after my daughter was born. I've been taking Levoxyl 100mcg all these years. Recently I switched to Targets pharmacy & I let them talk me into buying the generic. What a mistake. I've been on the generic for 3 1/2 months & I feel like I have been hit by a truck! I thought I was coming down with the flu. I don't get out of bed, I shuffle out of bed. It's like I have the body of an 80 year old. I also noticed I was hungry all the time. I've been having dizzy spells and my dry skin came back. I have been very tired. I've been taking a nap everyday. The only good thing that came out of it was I started sleeping better, but it's not worth going through all of this. I switched back to the name brand today. I've read where some of your doctors prescribed antidepressants. I started getting very irritable & anxious after my daughter was born, but I thought it was because I was a first time parent. Now, I'm thinking it was the levoxyl. I am slowly weaning myself off of the Wellbutrin. The less medication I take the better. One thing I did was start a personal program with Women to Women a few years back. Once I did, I noticed my fatigue went away. Before I was having to take a nap everyday & didn't want to get back up. I also noticed my memory got better. It's a very interesting website.

-- By tmhtx21 | Reply | Private Message me

October 30th
2008
10:47 PM

Been on Levoxyl dose of 88mcg, for about 9 months. No problem at first. got rid of my symptoms of being extremely tired(all of a sudden, usually high energy person) and cranky. Now though, I have had a weight gain of almost 8 pounds (a lot for me). My hair has fallen out, and irritable. Going to call my doctor and get my levels checked. Something has changed. Get back to you.

-- By aclake7856 | Reply | Private Message me

October 23th
2008
11:22 PM

too all, i have a slow thyroid, my doctor today put me on levoxyl tabs. 75mcg, gave me samples take one a day in the morn. got my blood work back and thats why the doctor is putting me on this med. cause my thyroid is not working like it should. i weighed out at 282 when i went in this morning for my appt. with him. so i will start tomorrow morn when i wake up. i will let you know what happens in a few days. today is 10-23-08 Thursday. i'm to go back for a blood test next and then to see him the following week to the doctor again. i read all of your comments on this medication sure didn't sound to exciting. till next time. B.

-- By salena1950 | Reply | Private Message me

October 14th
2008
1:30 AM

WOW ok this freaked me out. I was just prescribed 50mcg of Levoxyl after reading this I am going to call my doctor back and ask more questions.I haven't started taking it yet. Like what my numbers are and do I really need this. I feel fine, I have energy and think clearly, as well as am active. Just had my 44th birthday. I had a physical and then the next thing I know they are calling me saying take this and see us again in 4 to 6 weeks. Thanks for all the information.
JT California

-- By perpetual | Reply | Private Message me

October 13th
2008
9:48 PM

Sitting here with heat on thigh fm severe muscle cramp. Had one earlier in hand. Have had many probs with hands lately; thought it was carpel tunnel but pain seems to be randon in hand and fingers. The muscle cramps are unbelievably severe; didn't know about the loss of Calcium and B - good to know. Was taking Levothyroxine .25 with seemingly no effects but when TSH was still over 4.0, MD changed to .50 Levoxyl. Have been on it a month and have had nausea, bowel disturbances; irritable eyes; bloating, depression (which MD is offsetting with antidepressant), and SEVERE muscle cramps in places you wouldn't expect... hands, neck when I yawn, things, stomach, waist... it's awful. After hearing everyone else, I'm weaning off and doing more research. Thanks to everyone for sharing.

-- By nomini | Reply | Private Message me

October 2th
2008
9:51 PM

I was on Levoxyl .175 for 6 years and found it was the only one that worked for me. I do have pain in my joints ,but defiantly have arthritis, I have anxiety and panic but have had this stuff my entire life. About 4 months ago my doctor had me cut my .175 in half despite my level was in the normal range,all it did was wack my thyroid out and now my TSH is 18.4 .Instead of giving me my .175 back he felt I may be getting to much with it (though my levels were always normal on it) and put me on .100.
I did notice when he changed it,I felt nervous and bad for a week now its been 2 weeks and I feel like I always did so far the only difference is im having trouble with constipation and stomach pain and I have nausea ..Not sure though if its the Levoxyl or something else going on.

-- By destiney | Reply | Private Message me

September 29th
2008
9:46 AM

I'm on my sixth week of Levoxyl 50 mcg. I've been feeling great, and even losing some fat. I've been able to work my 14-hour Mondays without any caffeine at all as well. My pancreas must have been stimulated to work more efficiently, because I don't wake up hungry, I don't get the sugar crash and shakiness before meals, and I can go longer between eating without feeling homicidal.

The only weird thing: my lips are extremely dry. They're cracked, chapped and swollen so much it looks like I had a lip job. Even a tiny bit of salt hurts to eat it, as well as wine and spicy food. IDGI.

-- By anastasi5 | Reply | Private Message me

September 25th
2008
9:26 AM

I have been on levothyroxine 75 for two months so far. I started off at 25 then up to 50 and now currently on 75. I have horrible lower back pain along with my knees aching too. It's all the time and Advil or aleve do nothing to relieve the pain. I am miserable and hate living like this. Doing some reading here and other sites I've read that this can be due to the med and some thing about the fillers in it. When I first started the the 75 that my doctor game me from samples at his office that were the name brand all was good. Now that I have been on the generic from my pharmacy I'm in pain. Am I off base here and does any one have similar issue's? I'm calling my endo when the office opens today to see him. Thanks for any info.

-- By smsonsteby71 | Reply | Private Message me

September 25th
2008
3:50 AM

Boy, this could take a while. Have been on generic Levoxyl for more than 7 yrs(can't say exactly how long since I stay "fuzzy headed" all the time). Anyway, about a yr ago I became so depressed I went off all my meds -- I'm a diabetic on insulin and also have high blood pressure. I felt good!To try and make this story a little shorter, I went on a diet and lost 70 lbs -- went from 310 down to 240. Then I went back on meds. In less than a yr, have regained all the weight I lost. Also, my legs swell and ache so badly it makes walking painful. Hands, wrists and knees throb constantly. Intermittent headaches so bad I have to wear sunglasses just to tolerate indoor lighting. Hair loss is so severe I'm considering a wig. Skin is dry and itchy and lotions help not at all. Any work I have to do I must accomplish before noon because by early afternoon the fatigue is debilitating. I'm currently on 300mcg of Levothyroxine (up from 250mcg 2 months ago) and doctor wants to increase dosage even more. Had no idea there were other people suffering the same problems until I stumbled upon this site. I take the medication as prescribed (with perhaps less than the recommended full glass of water) but plenty of coffee. Discovered on another site that the coffee may be inhibiting the drug's absorption. I feel so helpless/hopeless. Am considering going back off the Levothyroxine but am seriously worried about high T3/T4 levels. Thanks for listening; guess I just needed to vent.

-- By lorrieps | Reply | (1) replies | Private Message me

September 19th
2008
9:57 PM

I was put on Levoxyl for 20 years. Hair kept falling out, muscles aches, acid reflux, plantar fasciitis, carpel tunel, tired, cranky, brain fog. I could barely walk and had developed a stutter. I was to be tested for Alzheimers at 45. I was told there was no other drug for hypothyroidism and it wasn't the Levoxyl doing these things to me.

Well I found another drug thanks to the internet and Yahoo Natural Thyroid Group. It was Armour. I have been on Armour for about 2 years now. All those problems I had on Levoxyl are gone. Completely GONE! Wasn't the Levoxyl huh?

-- By liloinker | Reply | (1) replies | Private Message me

September 15th
2008
1:17 PM

extremely depressed after a week of taking levoxyl. Also face is swollen, eye swollen and red and face and eyes burn. These were the same symptoms after taking synthroid after a week. What's next? I am close to being suicidal after having survived lung cancer, surgery, chemo and radiation. To get another primary cancer and have things slide downhill after such a remarkable recovery, I can do nothing but cry after making the decision to have a cancerous thyroid removed that could have served me for years and years since it was such a slow growing cancer. I should have followed my instincts and just left it alone. Now all I want to do is lie on the couch and cry.

-- By judyapel | Reply | (3) replies | Private Message me

September 13th
2008
10:56 AM

I started taking thyroxine about 6 weeks ago - i went to the doc with tingling fingers, bloods showed tsh 34 so doc gave me 50mg thyroxine. Felt awful within a few days i was getting palpitations and felt like my skin was crawling. I couldn't bear even the slightest noise. I had diarrhea (cant spell) fast heart rate, the shakes and couldn't handle lots of people in a room. I am a teacher so it became difficult for me to work. I went up to 100 it got worse, until in the end I decided to stop them.
I am going to wait and see but I would rather be hypo than have these symptoms, my doc said you will feel great soon, pah what a load of c%%%

-- By jackief | Reply | (4) replies | Private Message me

September 10th
2008
2:34 PM

I've been on the same dose of Levoxyl (118 mcg) for 11 years and I have none of the side effects that have been described. My mother and grandmother also have hypothyroidism, but my mom take 110 mg of synthroid, also prescribed by the same doctor that prescribed me. When I was in the 4th grade my thyroids swelled to the size of golfballs, so much so that you could see them when my head was up, and I was extremely tired and had hot and cold flashes- scary for a 10 year old! My doctor recognized it immediately, and put me on Levoxyl. About a year ago, I gained 15lbs for seemingly no reason, but then this summer I lost about 20lbs. The only difference was taking the medicine 1 hr before I ate anything. I saw someone said that after taking the medication she would get hungry, which I also have, but this makes sense, because Levoxyl is in essence trying to up your metabolism and by doing this you are burning more calories and thus become hungry. If you let this hunger pass, about 20 min later you are no longer hungry and feel great! I still get slight hot flashes, but not too noticeable. I would recommend just as other on here have, that the dose that your doctor may give you may not be 'your' number, and to give it time. If you change your dose, give it 3 months, not 5 days like I saw above! If you have to wait 6 months for 2 dose changes isn't that better than hurting your whole life? GOOD LUCK!

-- By hypoclara | Reply | Private Message me

September 10th
2008
12:54 PM

I too was a picture of health even with my TSH being off. My old doctor retired and a new one prescribed the levothyroxine.
I never have felt so rotten in my life. Extreme fatigue to the point I am given up many activities I've been involved in for years. Headaches and joint and body pain. I feel like I was hit by a truck!
I stopped the meds and felt fine..cept my cholesterol went up to 262 and my tsh 7 something.
The doctor scared me back on to the levothyroxine.
I am desperate. I wish I knew what to do.

-- By steffie1967 | Reply | (2) replies | Private Message me

September 9th
2008
7:21 AM

I have been on Levoxyl for years. Have experienced all the side affects this medication has and then some more! My hair loss and thinning, depression, bone aches, headaches, fatigue, and much more...finally I asked the doctor is there was anything else out there in the market which had less side effects....there is a natural product which has been in the market for many years called Armour Thyroid (*******). All I know is that if I continued to take Levoxyl, I will most likely end up in bed for life...I am only 43 yrs old and would like to have at least "normal" energy for my age. There is NO reason I should feel a lot older and I know for a fact it is the medication. I have only been taking Armour Thyroid for just a few days but will report my well being in about the next 30 days. Since I was on 100mg of Levoxyl a day, am taking two grains of 30 mg a day for a total of 60 mg of Armour a day. In about 25 days I go for blood work to check levels, so far I experience a bit of nausea right after I take the "new" medication but it does not last all day. Hopefully, this new med will give me my LIFE back! Thanks for reading.

-- By hopeandheaven | Reply | (1) replies | Private Message me

August 26th
2008
10:44 AM

Hi l have it all too and more!! I am so fed up :( lm cracking up! Does any one get sternum area pain cramps? They scare me the most l cant move :( Sick of docs passing me off grrrrrr

-- By niecsey | Reply | (2) replies | Private Message me

August 25th
2008
6:52 PM

Everyone here PLEASE LISTEN TO ME! Dr. Holtorf in Torrence, California is the only one who tests for REVERSE T-3 and 80% of people are not being treated properly for thyroid function. The Holtorf Medical Clinic is the ONLY way you will find the answers and people are experiencing miracles.

-- By wholehealth | Reply | (1) replies | Private Message me

August 15th
2008
2:24 PM

i have been on the same med and am getting off made me feel nuts crying all the time, hot flashes, my body feels like its on fire very depressed tired panic and anxiety attacks never was like this before being weaned off and going the natural way going to take thyroid essentials and macafem i can't wait to get off this dam pill

-- By fitz | Reply | (1) replies | Private Message me

August 4th
2008
9:24 AM

I've been taking levoxyl for 8 years now with mostly good success. My endo doctor recently upped my dose due to lab results (I think the test results were bad). Now I feel horrible. Headache, dizzy/lightheaded, blood pressure increased, tightness in throat, and muscle cramping. I've been to many specialists concerning the dizziness - everyone says I'm OK; cardiologist, ENT, and neurologist. The symptoms started a few weeks after the dose increase, and have worsened in the last week or two (about 2.5 months out).

-- By rwaustin | Reply | (1) replies | Private Message me

July 31th
2008
3:24 PM

I have hashimotos thyroid syndrome andi have been on Levoxyl for about 5 years, now the medication is .088 mg's. I do not get anxiety depression. i really wouldn't know what normal is because im only 19 and iv been diagnosed for so long. My sex drive is completely there, the only thing that is wrong is that i CAN NOT wake up in the morning. i must find out what will happen if i get off levoxyl to go to the coast guard. please let me know.

-- By awoodonline | Reply | Private Message me

July 26th
2008
1:10 PM

I have gained 5 lbs on levoxyl in 0ne week I am taking 100 mg

-- By priscilla1 | Reply | Private Message me

July 24th
2008
7:04 PM

I have been taking Levoxyl 25 m for about 4 or 5 months. I started taking it because i was waking up in the middle of the night clutching my chest because it felt like my heart would just stop. I had to grab it and start rubbing it thinking that was going to make my heart work again lol. I went to the doctor and she did some ultrasound on my throat and found a sist in my throat around my gland. So then i got the call saying that my thyroid was a lil out of wack. She put me on Levoxyl 25 m. Now i was like 130 pounds tops! I could eat anything i wanted for 28 years and never worried about gaining weight. I had a very toned stomach and all. I am not NOT toned and have rolls of fat on my stomach and it bothers the hell out of me when i sit down. I look like i have a beer belly or something and it is SICK looking to me. I got tired of it so i had called my doctor today and said that it made me fat and hasn't changed anything. I wanted to get off of the med and not be on any medicine at all. The doctor told me that the medicine didn't do that to me, but now after reading this page. I know shes a f-ing lair and i am going to sue her ace off! I have gained over 20 pounds and it has all went to my stomach and sides. These people will pay for this crap! I think everyone should sue them for it cause if more than one person goes to sue then it will become a huge thing and they will not do this to other people that haven't looked up the side affects.

-- By r4v3n79 | Reply | Private Message me

July 22th
2008
9:58 AM

I have been on .50mcg of Levoxyl for Hashimotos for three months now. I definitely have the dry eye issue and am going to my optometrist today to see if the steroid eye drops helped.

In the early weeks I had dizziness and even broke out in a light rash twice. The only thing that hasn't completely gone away yet is the morning sickness-like nausea that I wake up with. But that generally passes within that half hour period before I eat.

To you who have posted or will post, my suggestion is TALK to your endocrinologist. Your dosage may be a little bit off, which may cause some of these symptoms.

-- By herbwoman | Reply | Private Message me

July 2th
2008
11:03 AM

I have been on Levoxyl for about 9 years and have felt awful. I have had weight loss, dry hair, thinning hair,dry skin, muscle aches, migraines and the list goes on. I just got out of the hospital Monday after 4 days of testing of my heart and lungs. I was admitted for racing heart. The doctor's conclusion was anxiety! They said that Levoxyl has nothing to do with my rapid heart rate. The endocrinologist prescribed taking levoxyl .050 on day and .075 the next also a beta blocker, Xanax and Zoloft. I can not take any of these meds b/c they make it almost worse. I KNOW it is not Anxiety and it from the Levoxyl but what do I do?? I am a mess right now can not be in this condition with four young kids and a husband. None of the doctors would say it was the Levoxyl and instead prescribed more and told me to check up with blood work in 6 weeks. I took the .050 yesterday around noon and by 7:30pm my heart rate picked up again and continued until 4:30 this morning. I can not sleep more then 2 hours at a time and wakeup feeling like I am crawling out of my skin. PLEASE let me know of any solutions.

-- By bcantrell | Reply | (9) replies | Private Message me

June 25th
2008
3:55 PM

After being on Synthroid for a few years and getting NOTHING from it, I was switched to Levoxyl for several more years, and got NOTHING for it either. They are some of the most useless medications ever made, and all they do is put money in the pockets of the maker. Armour is what made a HUGE difference in my hypothyroid. ******

-- By nancyadams | Reply | Private Message me

June 24th
2008
3:55 PM

My mother and I have both been diagnosed with Hashimoto's Thyroiditis and we both take levothyroxine. We both experience extreme pain and she has been diagnosed with fibromyalgia. I have not been diagnosed with fibromyalgia but I experience the pain body also. Another thing. I have been losing my hair. No reason, it's falling out from the root and I have some serious thinning. Memory...what memory. I can't remember anything. Has anyone received advise from a MD? Thanks

-- By stefjudkel | Reply | (5) replies | Private Message me

June 24th
2008
3:21 AM

I am so happy to hear this from all of you!! I am 26 years old and was diagnosed with Hashimoto's disease at 17. About 2 years ago my doctor switched me to Levoxyl and my whole life has changed. I got really irritable around my best friend's kids, sharp pain in my left ring finger, TOTAL LACK OF SEX DRIVE (which everyone thought was psychological), and I've become a total couch potato. My relationship with my boyfriend of two year has been up and down because of the lack of sex and laziness. I'm calling my doctor and asking to be switched from this. I am so happy all of you have written about this. Please keep me updated if changing meds has helped at all?

-- By butterwoma | Reply | Private Message me

June 5th
2008
3:39 PM

I am just slightly hypothyroid and could go without meds, but decided to try meds, and endocrinologist suggested Levoxyl 50 mcg per day. First day on the drug, felt exhausted by night time, next morning, usually jump out of bed for workout and was extremely tired at the gym, no energy, was starving during the day even after breakfast which is unusual for me, and exhausted by evening, and third day woke up with swollen glands and exhaustion, knew something was up. Decided to research the side effects and found others with similar symptoms and didn't like long term effects so I am going off the drug and hoping I caused no damage to my system. My doctor's reaction was "impossible" that the drug could cause this. My reaction was, "no thank you, I think for myself, know my body, and know this drug caused this reaction." I was feeling fine before 3 days ago, and how could so many have similar symptoms if it isn't the drug.

-- By cwelsh1124 | Reply | (3) replies | Private Message me

May 13th
2008
9:34 PM

Wow - I just had an MRI today of my head and am scheduled to go through 3-5 hours of tests with a neuropsychologist next week. I have been on levoxyl with no substitute allowed due to this being the only drug that has leveled out my Hoshimoto's disease of the thyroid. My endocrinologist whom I saw on Friday suggested I see a neurosurgeon as "levoxyl can't be the cause of all your issues" which are identical to all of those I am reading about on here. I am a breast cancer survivor, take arimidex daily as well as xetia and a couple of other prescriptions for gastric reflux and anxiety. Now they all tell me that taking all these pills is fine as long as I don't take them all at the same time. Add today prednisone for the severe headaches - 6 at a time - I felt like a drug addict putting them all into my mouth at once. If this all is because of levoxyl I am going to be very relieved yet very PO'd that I have been told otherwise.

-- By hoshimoto57 | Reply | Private Message me

May 13th
2008
12:48 PM

I don't know if my dry skin is from the Levoxyl or not. I'm on 25 mcg's and have been for about four years now and am seeking to be off of it as it is the only medication I'm now taking with regularity. As an asthmatic with a slight hypothyroid condition, I've just done "what the doctors ordered." Now at the age of forty-four I'm starting to do some of my own research and be my own advocate. I don't have answers for anyone but I strongly suggest you do some reading at the ****. Just plug Dr. Mercola in a search engine and you should find it. What a wealth of wonderful and informative reading. Watch the "Allopath" video. Food for thought. Physicians treat symptoms and while I'm glad that many meds are there, I'm thinking that the first line of defense AND offense ought to be a look at one's daily nutrition and exercise as well as hydration levels.
Blessings

-- By unicycle_granny | Reply | Private Message me

May 13th
2008
12:32 PM

I have been on Levoxyl 125 mcg for about two months after my thyroid was "killed" with the radioactive pill. Ever since I have been on this medication, I have constant headaches and feel sick on my stomach all the time. I had to go to the ER the past week because of the intense vomiting. The doctors tell me it's not related to my thyroid or the medication. How can this be? I didn't feel this bad when I was hyperactive thyroid. My wife has had to take care of our 18 month old all by herself ever since I have been taking this medicine. I feel like I am missing out on my life! This is terrible!!

-- By bry6009 | Reply | (2) replies | Private Message me

May 13th
2008
9:23 AM

I had always used the generic form of synthroid & then the generic form Levoxyl. The beginning of April 08' my endo prescribed me the brand name Levoxyl. I take 175mg. everyday. After several weeks I began to have terrible insomnia. It was weird because I initially fell asleep easily but began to wake up every hour of the night for no reason. This went on for weeks. I even tried taking Tylenol PM to help me sleep & I still would wake up every hour if not every other hour & I had very vivid dreams that I would remember. I began waking up in the mornings feeling exhausted from all the dreaming & all the waking up. I believe I became more depressed because I was so tired. Then I read on-line that someone else experienced this while taking Levoxyl. I switched back to the generic Levoxyl & now I can sleep through the night again. I still experience fatigue & have problems losing weight. None of that changed when I switched to the brand name anyway.

-- By catnlee | Reply | (1) replies | Private Message me

May 12th
2008
2:41 PM

5-12-08 Was put on 25mcg in Mar. 08. because of Hashimoto Disease &
Hypothyroidism. At first had more energy & no symptoms. After a month
severe pain in joints especially in hands & left wrist. Muscle spasms in
thighs, calves & shoulders. Neck & back pain. Also headaches. Am
bloated all the time and can't seem to lose weight. Force myself to stay
active, but difficult to do. Irritable because of pain. Oh yes, on l-7-08 my
TSH was 4.270 & 4-29-08 my TSH was 4.430 & Dr. doubled my Levothyroxine to 50mcg & after that above symptoms doubled to
excruciating. After reading this web site no one mentioned extreme dry
mouth, throat & nose with a metallic taste in their mouth as I have. Let
me know if anyone has had this problem. Thank God for this site & thank
all of you that confirmed my problems was not in my head like doctors
want you to think. Thanks M.

-- By toad | Reply | (2) replies | Private Message me

May 12th
2008
11:33 AM

I have had a total thyroidectomy due to thyroid carcinoma about 2.5 -3 years ago. I have been on synthroid and levoxyl and both have caused tingling and numbness in my hands and feet, what I call a general fog (hard to concentrate or think, sometimes talk). I have been tested for neuropathy since endo said radiation may have caused issues. Only to be cleared by neurologist. Now endo switched does lower after rebout of cancer from 300mcg to 274mcg and have knee joints now going numb I want to sleep all the time, general weakness and now low testosterone levels.

-- By notezbeingme | Reply | Private Message me

April 20th
2008
11:53 AM

I have been on Levoxyl for about 3 years now, maybe more. My mother , father, and I all have Hypothyroidism. Mine was diagnosed at 19 when I started on Levoxyl and now it is around 3 at 75 mcg. I do have alot of these symptoms, including fatigue, depression,insomnia, major migraines, bloating, but my mom and I also have ringing of the ears and I wonder if this is a symptom. I have been to an ear specialist and had my hearing checked, everything is normal he says. Maybe I just have very sensitive hearing and can hear the slightest things? I don't think so, I didn't have this ringing before a year and a half ago!

-- By lani | Reply | Private Message me

April 14th
2008
4:04 PM

I was diagnosed with having hypothyroidism, and after having FNAs done on the two nodules that were found during a screening of my thyroid - it turned out that I also have Hashimoto's Disease. I am currently on the lowest dosage of Levoxyl - and have been for about two months, and I have never felt so bad in my whole life. Yesterday I cried the entire day - for no reason. I have migraines several times a day. I get dizzy and have hot flashes and I feel so ditzy lately, forgetting the littlest things. It is a very frustrating way to live, being married with two small children. It is hard for me to explain this to anyone, and I unfortunately take some comfort in reading that I am not the only one living with this. I keep wondering if I will get better, not only for me, but for the sake of my family.

-- By issysmalls | Reply | (1) replies | Private Message me

April 14th
2008
3:14 PM

i HAVE SO MUCH COMPASSION FOR ALL OF US SUFFERING ..I have been on 300 mcg of levoxl and i am always filling with fluid,feel like i cant think straight or remember simple things....I have gained 150 lbs in 8 years and its not due to food increase...Myskin is dry and I am exhausted all the time..Hashimotos is what they say I have ..i am sure that this medicine is causing this,but what is the alternative?When i went off it years ago my thyroid tsh level went up to 13!....yet I lost weight!I think new testing has to be done on thyroid and the meds we are using...right after i take my med in the am I get really hungry..thats the only time i get hungry..my digestion is so slow!...Its a terrible way to live being fat when you arent eating like a pig..

-- By longvalleygirl | Reply | (2) replies | Private Message me

March 24th
2008
11:23 AM

I've been taking Levoxyl for approximately two years or Hypothyroid. Before that I took levothyroxine, but my symptoms were worse with that. I've never taken Synthroid.
When I was first diagnosed, my TSH level was around 144... off the charts. It tooks about 4 or 5 months before I got level. The medication seemed to make my symptoms increase. Each month however, my TSH level dropped.
I started feeling good when my TSH level was below 10. I felt awesome at TSH level 1.
My doctor became concerned that my level would drop too much so she lowered by dosage to .150mcg. Over several months, I noticed my symptoms returning. I requested to have my level checked but my physician said it wasn't time. By the time I was checked, my TSH was 20.
My dosage was increased to .175 mcg. The last two weeks after the dosage increase have been horrible. Migraines, vertigo, nausea, irritability, and absolutely no motivation.
I've been feeling better over the last two days and think I'm getting level again.
Don't assume your doctor knows you better than you do. Find out the number that works for you and fight for it!

-- By grizzelda75 | Reply | Private Message me

March 15th
2008
3:57 PM

Hi Ive been hypothyroid for about 12 years now. After i took radioactive iodine I was put on synthroid.125. Had blinding headaches constantly! Then after about 3 years I was put on levoxyl.125. Blood work sometimes comes back a little elevated but not much to say for the symptoms i am having still to this day.I am so tired i cant even go to the store. Symptoms are,
sever fatigued. headaches. muscle pain in chest and sternum. burning muscles, triggerpoints all over body. broken sleep .severe depression.Eye pain blurry vision lower back pain body feels like a punching bag.I could sleep for 12hrs and still be tired. These medicines have side effects that they are not telling us.I tried armour but it does not aggree with me. Im going to switch to either unithroid or leverthroid.If these do not work then i will try thyroler.Doctor wanted to give zoloft. Please I do not need bad medicine.
This all started when i had to take thyroid meds.Before diagnosis I was a fitness fanatic . I was doing aerobics heavy cardio, lifting weights etc. now i cant even ride my bike.The meds are no good doctors are a waste they think it is in your mind.Let them feel one day like this and see if they can function.I do not think they can.ill see what happens when i change my meds..fibromyalgia? no such thing Fibromyalgia is diagnosed when the doctors cant figure out what is wrong with you so they pawn off some atidepressives.

-- By fitneesq | Reply | (1) replies | Private Message me

March 13th
2008
7:04 PM

I have been on Levoxyl for over 10 years with no problem. When I picked up my refill two weeks ago the pharmacist said that the pill may be a different color but it's just that the company that was making Levoxyl sold it to another company and is now making it. Within a week I was very itchy, then I started getting hives at night and waking up with them in the morning. I also developed severe heartburn. I feel very full and cannot lie down at night. I also can't eat very much at one time because of the heartburn/reflux. My family doctor advised I call my endo which I did. She advised me that she has had patients all week that are having problems with Levoxyl that never had them before. She took me off the Levoxyl and put me on Synthroid. I will start that tomorrow morning and hope I will get some relief soon. The pharmacist said I wasn't the only one going off the 'new' Levoxyl, others have been in all week exchanging their prescriptions as well. Has anyone else had this same situation?

-- By sarahbar | Reply | (3) replies | Private Message me

March 5th
2008
11:59 AM

I am on Levoxyl for quite a few years. In the last couple of years have developed a rash that was diagnosed by my dermatologist as "granuloma annulare". Some how I suspect that it might be a side affect of my medication. Any one had this experience?

-- By orit2 | Reply | Private Message me

March 4th
2008
8:56 PM

Hello Everyone,

I am just amazed by how many people have the same side effects and how many doctors don't listen! I started taking Levoxyl in Nov 2007 after having RAI on Aug. 30th, 2007. I've never been in such pain. Most of it has subsided, but now it feels as if someone divided my body in half and my right side only gets minor muscle aches and joint pains and muscle spasms. But the left side of my body, from my neck to me toes...my muscles feel tingly, knotted, sore, burning points, spasms, itchiness, hives and it come and goes almost constantly. I am currently taking 125 mg. But the weird thing is that before this happened, I would get torturous menstrual cramps. Ever since I started Levoxyl, I get NO cramps - at all! I am trying to find info regarding Levoxyl and how and if it affects hormone levels. Can anyone help me on this? Thanks!!

-- By lillypad30 | Reply | Private Message me

February 27th
2008
12:19 PM

itchy rash, worse at night, on trunk. Worst around neck and chest

-- By sanfang | Reply | Private Message me

February 23th
2008
7:25 PM

I love this page! I have been taking Levoxyl for about 6 months now and my joints are killing me. Especially my wrists and ankles. It hurts to even pick up a half gallon of milk or hold my kids. I am also so exhausted all the time. I was put on 50mcg when I started the medicine but I was not having any symptoms before I started taking the medicine. I am trying to wean myself off of the pills and am down to 25mcg. I am taking b12 and b6 to help fight the fatigue. I also am having a huge problem with my periods, I get them every 2 weeks, and they last a week. This is not fun at all. I am also getting cold sores like crazy. Before I started taking this medicine I would maybe get 1 a year, if that. Now I get at least 1 a month, sometimes 2. It is really frustrating. My skin has changed, so dry and I look like I have aged 10 years. My hair is brittle. I am looking into a more natural route to take, maybe the Armour thyroid would work.I have been to the Doctor who just tells me that it is not my medicine and could be something else. I know it is not something else. All of these symptoms started right after I started to take the medicine. I am going off of it to hopefully feel better. Thanks so much for all your posts out there!!!

-- By kello | Reply | (1) replies | Private Message me

February 10th
2008
6:29 PM

I've been taking medication for hypothyroid since 1987 with some changes of dosages and brands based on lab tests and, I suppose, doctor preferences. Until 2 days ago I was taking 112mcg Levoxyl, with no side effects, I thought. Recently, my pharmacy ran out of the usual brand and substituted another brand with 7 pills until their shipment came in. No problem. Without medication my throat and tongue starts to swell within 3 days and in 10 days I'm sitting around trying to see how little I can breath. Even that wasn't so bad but the heart beat slowing and then quickening gives an unsettling adrenaline type feeling. OK back to the switch. I retrieve my usual brand when it came in and was 5 days into that when BAM!. intense chest pain woke me up 2:30 in the morning. I took aspirin and TUMS, thinking I covered everything. The pain radiated from the center of my chest to my back, continued tingle sensation down the undersides of my arms, and achy ears. It even hurt to breathe. 30 Minutes later, and after unsuccessfully trying to minimize symptoms using WebMD, I decided to go to the ER. Lots of test later that rule out heart they said I was taking way too much Levoxyl and wrote a prescript for .75mcg. Since researching I've notice other symptoms I attributed to age (am 52) painful joints especially hands, wrist, feet, ankles, and knees that I've been popping Tylenol for 2 years. Stiffness. I'd like to blame the 20 pound weight gain in 8 months on it too but seems like I should have lost weight.
Since I can't go without medication it seems like I'm but to the hunt and peck method of finding the right dosage and brand. Any recommendations on which direction to take?

-- By conni | Reply | Private Message me

February 9th
2008
8:24 PM

I've read about many side effects of Levoxyl and I have experienced some of the "normal" side effects. Since I have been taking Levoxyl I have complained of breast swelling and there are time my stomach will be so extended I can't fit in clothes I wore two days ago. Someone told me that some Levoxyl medication has a high content of lactose. Has anyone ever hear of this? If so, it could possibly be what's going on with me.
MS

-- By midge | Reply | Private Message me


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