September 22th
2009
11:58 AM
After several attempts to lower my cholesterol, my doctor has settled on 40 mg of Lipitor, but, after reading these comments, I'm going to self-medicate and work my way off the drug completely. My main complaint is the fatigue and brain fog others have experienced. I do have a shoulder that has developed pain and weakness, and my legs don't seem to be as strong as they used to be, but it's the fatigue and memory/cognitive slowness that concern me the most. Also, like others, I assumed it was normal aging (I'm 58 and have been on statins for about eight years). I'll report my results after getting this stuff out of my system. Good luck to everyone going through this...we're not crazy after all, huh?
-- By blueridgeannie | Reply | (2) replies | Private Message me
August 4th
2009
4:12 PM
I had a small stroke associated with weightlifting--my neurologist put me on lipitor 80 mg (despite the fact that my cholesterol was totally normal)--now about 3 months later my liver enzymes have doubled and I have developed a heart arrhythmia I never had before. I have had to go to the emergency department twice from palpitations and diaphoresis
-- By nfld123 | Reply | (4) replies | Private Message me
July 4th
2009
7:03 PM
I have been on Lipitor for almost 5 years. I started with a low dose of 10mg for 3 years but my cholesterol did not come down significantly enough so the dose was increased to 20mgs two years ago. I have noticed my hair thinning almost immediately after being put on Lipitor but when the dose was increased the hair started falling out where now it is noticeable, at the front along the hairline, on top and at temples. It has become another problem, at this point, like having high cholesterol. It seems to be happening now at an accelerated rate and my scalp is visible from my hairline 3 inches back. Styling is now impossible without coming the hair all the way forward from the crown, what's left of it. I had no idea hair loss was a symptom of Lipitor until I thought about when it started and the fact I take no other medications. There is no history of this type of hair loss in my family. The Lipitor brought my cholesterol level down to preferred levels but if I stay on it much longer I will be bald on the top and sides of my head. I'm worried it won't grow back.
-- By pollyanna | Reply | (4) replies | Private Message me
June 27th
2009
3:42 AM
June 27/09
I am 65 yrs , very active. Play hockey, baseball, slopitch, and jog.
Started on Lipitor 10gm about 5 years ago. About 6 months later increased to 20gm. about 1 years later increased to 40 gm. Did not really notice any side effects. During that time cholesterol dropped from approx in Aug2005 to 8.01: ; Jan06 to 6.37:; Apr06 to 5.3 ; May09 @ 4.2. No problems noticed while on 40s for about 2 years.
June09 doctor increased to 80 gm !? Started to notice muscle cramps and pain . Also started to notice some stomach upsets.Thought I had strained a hamstring muscle from hard running acceleration but not sure now after reading some of the comments. Three days ago , although I always stretch for 1/2 to 3/4 an hour before every baseball which I play 4 times a week, I had very severe muscle cramps suddenly above my calf muscle just below the knee as I started to run to 1st base. I played the rest of the game but in pain and could not run hard . Could not sprint on my toes as I always did , so had to run about half speed but flat footed on the bases but painful,as we had only 9 players. Had hot shower Thursday night after game, massaged calf area with Wintercrest ointment. Got up this morning Friday , muscle sore but can walk on my toes. Tonight @ midnight slight soreness but most of the pain gone. I was thinking that I might have strained a calf muscle playing baseball but noway! I think it has to do with the doubling of the Lipitor from 40 to 80!!!! Will cut back back to 40 gm on my own till I see the doctor.
Will go to see my Doctor ASAP!!!
June 26th
2009
10:49 AM
I truly think my rheumatoid arthritis was the result of taking lipitor. Didn't have any symptoms before taking Lipitor but while on it woke up one day and could barely walk. Doctor immediately took me off of it and I saw significant improvement but still have the disease and its painful effects
-- By eileenpatrice | Reply | (5) replies | Private Message me
June 6th
2009
1:34 PM
Three and a half years ago i suffered a heart attack, i had three stents put in and was put on Aspirin 75mg, Cardicor, 1.25mg, Tritace 5mg and Lipitor 80mg. I was fairly fit at the time, didn't drink or smoke and ate properly.
But now i'm suffering, i've been to the hospital and my GP, but are told there is nothing wrong, my hear tis good. So why am i suffering with light headedness, pains through my body, back, neck, chest, stomach. So much so i thought i had gall stones or kidney stones. My right knee can't be touched, it is so sore. Chest heaviness, eyesight getting worse, slurred speech, depression i could go on.
I've said this to my doctor, he just brushes it off and says i'm on them for life, ....apparently standard treatment for anyone who's had a heart attack. I walk 5 miles a day, eat 5 or more fruit and veg, don't smoke or drink, do all what i'm meant to. My cholesterol is really low, but so is the HDL too. I was never recommended CoQ10 or a vitamin B complex.
It was my mother who told me to research the side effects of all the meds i'm on. I agree, we all want to live a long and healthy life, but at what cost. I am now of the opinion that doctor's are so use to thinking they are near god like, they have forgotten that we are individuals, that we know our own bodies. I'm sick of the fact that the large pharmaceutical companies send out there sales reps to doctor's surgeries and that is what is deciding what the patients end up taking and not the patient's problem.
DOCTOR'S WAKE UP TREAT THE CAUSE NOT THE SYMPTOMS!!!!!!!
-- By dorset | Reply | (7) replies | Private Message me
May 2th
2009
2:59 PM
My husband, a 55 year old diabetic who is currently on dialysis was initially prescribed 20 mg Lipitor about 5 years ago. He began experiencing leg pains, but continued to take the drug. In May 2007 in suffered a minor stroke (clot). Upon release from the hospital, the neurologist prescribed an 80 mg dose claiming studies showed those who have had a stroke benefit from the higher dosage. He recovered from the stroke and was able to return to work in August 2007. On December 31, 2007 he suffered another stroke, however this time it was a full blown cerebral hemorrhage. After he suffered this stroke, I searched Lipitor on the web and to my surprise found an article that stated the higher dosage of Lipitor could cause brain bleeds in people who have suffered a prior stroke. I truly believe this high dosage of Lipitor was the cause, however the neurologist and his regular doctor say no. Of course they would say that, since they are the ones who put him on it in the first place. They blame it on the fact that he has other health issues, however he has been on dialysis since the beginning of 2004 and was able to work and function normally. Needless to say, when he was released from the hospital, Lipitor was no longer one of his prescribed medications. They wanted to prescribe a low dose statin of a different brand, but his cholesterol levels have been excellent without them and I won't let him take another statin. The damage is done, he has difficulty walking, has lost his balance and was forced to go on permanent disbility. He was an active volunteer fire fighter for 35+ years and the fact that he can no longer do all the things he use to do depresses him.
-- By angw | Reply | (2) replies | Private Message me
April 9th
2009
9:06 PM
Not sure but didn't have a problem with sugar until a month after starting Lipitor 80mg. Leg muscles feel like they are going to cramp when I move quickly and I now have much fatigue both muscles and general. AND, I now have to start Metformin for diabetes. No history of diabetes in my family and I am not much overweight and get loads of exercise. I am wondering if the Lipitor could have contributed to the diabetes?
-- By cherub888 | Reply | (2) replies | Private Message me
March 24th
2009
10:00 PM
I am 62 years old and I was taking Lipitor 10 mg for the last 5 years in New York. When I moved to California the new doctor switched to Lipitor 20mg and I started to have strange side effects. After a pause of two days, I restarted and the symptoms were worse: my muscle in the upper arms, and my calves were hurting and week, my back ached, my head was empty nad I felt dizzy all the time.
I stopped two days ago and today I had blood in my urine. What's happening? should I go on any medication at all to lower my cholesterol? My new test was: 179 Cholesterol
HDL 71
LDL 95
I am too scared to start any other drugs like Crstor or Niaspan as I was recommended.
Please advise,
March 20th
2009
2:32 PM
I have stopped taking Lipitor after 3 yrs. I was told I had a mini-stroke because of my slurred speech 6 mo. ago. Since then I have had a battery of tests and my neurologist told me "I don't think you had a stroke." I saw the words "Motor Neuron Disease" (I looked it on the web because I never heard of it before) on the script for my EMG. I blame it all on Lipitor and the wasting of the nerves and the muscles. I sound as if I am drunk. No one can understand me . I am taking speech therapy but it doesn't seem to help.
-- By ddelrio | Reply | (6) replies | Private Message me
February 10th
2009
12:07 PM
Wow! I must be the latest in a long line of Lipitor users and apparently pain sufferers. I have been on Lipitor for over a year. I am 56 years old, active and healthy (thank God). Around November 2008, I noticed a "twinge" in my left hip while sleeping. This has gotten progressively worse over the months and I thought it was due to arthritis (which runs in my family). But after reading these blogs, I am not so sure. If anyone has anything definitive regarding this, ie: tests, studies, etc., I would really appreciate a point in the right direction for more information. I was thinking (until today) that I was headed for hip surgery or something equally drastic. Now that I have a clue that it may be the Lipitor, I want to investigate further and then, if necessary, change to another medication that won't break me down like this. My heart goes out to anyone that has suffered through hip pain. It is a miserable, painful condition that saps your energy and your desire to even move sometimes. I appreciate any help you can offer. God bless all of you. - L. B. ******
-- By rednael | Reply | (8) replies | Private Message me
January 29th
2009
11:10 AM
777
I've been noticing that you as well as bobby are continuously replying to many of the posting. I stopped taking lipitor in December after having chest pains for 10 months which included being hospitalized for 2 days of testing. I'm still having the chest pain although I believe it's getting better. There was a week in the beginning of this month that I had no pain at all but now it's back. My question to you and bobby is you keep saying you still have some side affects for months but fail to list them. What are they and with your experience, why does Lipitor cause chest pain? What have you found out in your research? Is this drug causing damage to the interior lining of the arteries? Is this why many people are getting the pains from?
January 21th
2009
8:09 PM
i m 43 year old male, i took lipitor for almost 5 years(20mg) then on February 2008 my doctor increase my dose to 40mg and then my nightmare begin, i work in a company, very physic job, in end of June 2008 i start to feel bizarre, difficulty to walk, get up in the morning was very hard, climbing stair was more and more dificult, i didn't know at this time that lipitor doing that, i just work harder to compensate for my weakness, and continue to take lipitor until September 2008, almost 3 month after feeling the first sign, but i was blaming aging and my weight to be the cause of my sudden weakness. end of September i was unable to do my job anymore, my co-worker start to do my job for me..it was very humiliated, then i call my doctor and tell him how i feel, and he order a blood test, he said to me after that i have a CK result near 6000, he never speak of lipitor side effect yet, i was suspecting a disease, like poliosis or something else...on my side i search on internet for answer, then my girlfriend read about side effect of lipitor, reading the side effect, i saw rhabomyolisis, reading the sign, was like reading my life for the last 3 month, i stop lipitor, after 3 days my urine became normal, a lot of stiffness i my neck stop etc..but my leg and arm where almost destroy, i past two magnetic resonance + one Emg, that s was the test that tell me lipitor destroy my muscle very severely, i saw a specialist who told me that is the most severe reaction to statin that she ever see along some colleague, the most important thing to know is that you can take lipitor for many year an it s ok for you, but the change of dosage is very critical and had to be check,ck and liver tested, it s almost 4 month now and i still not return to work, they think i be ok at the end of march 2009. statin is dangerous don t take that, vitamin C do the same effect without the trouble...
-- By oups2001 | Reply | (4) replies | Private Message me
January 2th
2009
1:46 PM
I was put on Lipitor 10 mg. last Spring about 8 mos. ago. I have never taken medications/drugs other than aspirin or Motrin or antihistamines. Since that time I have had a strange combination of unexplained symptoms arise throughout the months. These sx's included: Headaches, stiff neck and severe neck pain, acute shoulder pain, hip pains, joint pains, severe knee pain (tendon or Ligament problems?) and loss of movement, hair loss, jaw pain and some memory confusion. Initially, I had severe HA's for several months, but attributed them to stress, however, I had never experienced HA's as a common occurrence. Then we went away to our Maui house to get away from stress, HA's continued, along with leg and shoulder pains. At the same time, I started noticing several strands of hair falling out if lightly touched my hair to move it out of my face. The pains seemed to move around my body at different times, for no apparent reason. I am used to daily exercise, living in CO in the mountains @ high altitude, not usually having muscle soreness. Now, given my leg and knee pains have gotten so bad, I cannot hike and have difficulty climbing my stairs. Skiing is out. Snorkeling caused leg cramps. No explained reason for having muscle tenderness or soreness without my usual exercise at present time. When the pain leaves one area it tends to arise in a different part of my body. At the present time, my hair loss has subsided, as also my jaw pain and headaches. However, my leg pains and knee pains are so acute (for no apparent reason) it is impossible to exercise and difficult to walk that I looked up adverse reactions to Lipitor, finding all my sx's most probably might be attributed to this drug. Partially my fault for not looking up RX information prior, especially being a medical professional for many years. My husband kept throwing away the info when purchasing the RX. Too many unexplained symptoms, I decided to obtain the drug info. myself. I tended to make excuses for months, such as: I am getting older, under stress, must be an old injury, not exercising properly, need PT therapy etc.... I am dc/ing the drug immediately and have an appt. with my MD on 1/5/09 to discuss.
-- By forestseaski | Reply | (11) replies | Private Message me
December 20th
2008
3:38 PM
feeling some relief to have validation to why i have been feeling this way.
i thought i was going the way of father (heart attack in his 40s) due to many symptoms over the past month similar to heart issues, except the leg cramps. i thought of my mother in-law, her diabetes, poor circulation.
i knew i had just had a thorough heart evaluation with my doctor last spring and everything was fine, except my hereditary cholesterol. frustrating. he had prescribed lipitor at that time. last week while driving to my office Christmas party i thought about driving straight to emergency.
food always seemed to help, as well lots of water. I think because i had liquids when eating, dehydration is what was being addressed.
on my own, i stopped lipitor (only prescribed medication i take) four days ago. no more nausea, no more light headiness (briefly early morning yesterday), no more weakness, leg pain decreased; these were my main symptoms.
I also experienced occasional foot cramps, general aches, heaviness in my esophagus immediately upon eating (thought of my mom with her hiatal hernia) indigestion maybe.
I had one episode a month ago (about the time all this started) where out of the blue i thought my legs were going to fall from under me, they became tingly like they were going to sleep, i was light headed as if i could faint. i had just finished a relaxing picnic by a natural stream, on a beautiful sunny day.
doctors who prescribe this medication should be more aware of these side affects. seems they are either not listening to their patients, or do not have the knowledge of these side affects, and in result, should not be allowed to prescribe.
My concern now is how long the discomfort in my legs will last, though they have improved. to make sure no serious damage has occurred,
i will see my cardiologist in two weeks to have blood work.
I would suggest to anyone who has not contacted their physician since stopping the statin, to do so. print a copy of this site and bring it with you!
T. - 47 years - trying to stay healthy!
-- By toddg | Reply | (3) replies | Private Message me
November 21th
2008
10:55 PM
I posted several months ago on this string and wanted to update. I had bloodwork done for the 1st time since I quit the 20mg of Lipitor in August. LDL went from 123 to 210. Total Chol went from 191 to 285. HOWEVER all shooting pains I had been experiencing in legs, feet, and chst are GONE! Went back to my Dr. today, told her that same result and my serious objection to taking any kind of statin and she prescribed CRESTOR while telling me it was more potent than Lipitor! WTF!!!
I refuse this course, am drinking 30 - 40 ozs. of water each day now like I should have been, doubled my CoQ10 to 200mg/day, finally getting back into the gym to lose weight and get the HDL up from the level of 36 it is now. also started to drink the new yogurt type "shot" of Promise for cholesterol that provides 2 grams of plant sterols per day.
I will not take statins ever. I WILL find a natural way to keep my Chol under control. I've also been convinced that you don't have to be at or under the 200mlg of total chol to be healthy. Look at your C Reactive Protein and Homosiytes (sp?) If they are in range you should be good.
I know Lipitor was the cause of my rupturing each of my Achiller tendons a year apart while playing tennis in my late 40's Muscle pain soon followed.
-- By rickinatlanta | Reply | (8) replies | Private Message me
November 4th
2008
3:44 PM
I am asking a question on behalf of my brother. He had a stent inserted about 5 years ago due to blockage in one artery. The doctor put him on 20mg Lipitor and Plavix. Ever since then he has been getting Afib. Twice he has had to go to the hospital to get his heart back in rythm and other times he's able to get it back on his own. He has cut back to 10mg Lipitor and takes 100 mg COQ10. Has anyone else had Afib with Lipitor? He seems to think it's the stent causing it and I'm convinced it's the Lipitor. By the way, his cholesterol was not high, only his triglycerides. Thanks for any input.
-- By ruralex | Reply | (3) replies | Private Message me
November 2th
2008
10:18 PM
I commenced Lipitor 14 years ago at age 47. At that time I was a regular tennis player, walker and generally fit for my age. No problem with Lipitor for the first couple of years until I began to experience hip and low back pain. My GP diagnosed arthritis. Gradually became worse and I started to gather injuries (over stretched ligament in right knee which refused to heal, plantar fasciitis twice) My back pain became far worse, I persevered with tennis believing that exercise would help. I began to "trip" on the carpet and going up stairs (foot drop). I was sent for a CT scan in 2002 which showed spondylolisthesis and root canal stenosisss. On advice from doctor I stopped tennis. Referred to a neurosurgeon who after several months carried out a laminectomy in July 03. Cleared to recommence exercise in December 03 which is when my nightmare commenced. I developed bursitis in one hip, stopped walking until it settled, then excruciating pain in feet, and then bursitis in the other hip and continuing foot pain. I developed rib/back pain, again diagnosed as arthritis even though I felt the pain was muscular. I had one session of aqua aerobics and woke the next morning with plantar fasciitis which continued for 3 months even with doctor, physio and acupuncture treatment. I was then referred to a Spots Medicine Dr who ordered bone scans/x-rays which revealed a stress fracture in my foot. In 2006 I began to notice that my right arm had a tense feeling all the time, I had a loss of dexterity in my right hand which assumed a claw like appearance and my normally neat handwriting became practically illegible. My physio recommended I see a Rheumatologist who said I had "no more arthritis than I would see in any 62 yo", he sent me to a Neurologist who after 5 mins diagnosed Parkinson's Disease. Within 7 weeks of commencing the PD medication I was experiencing Restless Leg Syndrome every night. The neurologist said that my condition had "progressed" and increased the medication - twice. I was then getting RLS DAY AND NIGHT and getting no relief OR SLEEP!!! Finally after 12 months misery my GP suggested that I try coming off Lipitor to see if that was causing my body pain. Within 6 days I felt better, my muscles became less stiff and relax. I went back to my Neurologist who refused to accept my claims, he insists I still have atypical PD (because I do not have tremors). I told him the cure is worse than the complaint and against his advice I weaned myself off PD medication and Lipitor. It was hard going but I NO LONGER SUFFER FROM RLS AND MY DEXTERITY IS SLOWLY IMPROVING. I still have dexterity problems with my right fingers but the tense feeling in my right arm has gone and my "claw" hand is starting to relax My muscles feel bruised all the time. I am still taking my blood pressure tablets and 150mg of Co-Q10 a day. I have been off Lipitor 9 months. It has been a painful journed for the last 8 years and a nightmare for 12 months. My GP has marked my records as "allergy to statins" but says she just doesn't know if I have Parkinson's. I know that I will never take this awful drug again. My cholesterol has skyrocketed but I will have to try and lower it naturally and take the risk. I constantly feel like I have worked too long and hard in the garden, all my muscles are so sore. I really need to know if this damage is permanent and if this drug has caused Parkinson's Disease itself or just PD like symptoms. I guess I will just have to wait and see. I don't think doctor's believe us when we say Lipitor is doing damage to thousands of people. They love it!! When we are aging we are not surprised to get diagnosed with arthritis and this is why we take this medication unwittingly for so long.
-- By kirsty1 | Reply | (4) replies | Private Message me
October 11th
2008
2:24 PM
4 months ago started on preastatin 20mg increased within 1 month to 40mg; could not stand up without help; stopped statins at that time. CPK done 157, this was done to show me I wasn't in danger of rhabdomylysis, I continue to suffer with swelling R leg and severe pain. Leg is still swollen 4 months later.....I am professional RN in ICU ,,can't really do my job as necessary...Should I file for disability; or does someone have an answer to provide relief for this malady???
-- By diana69 | Reply | (3) replies | Private Message me
September 29th
2008
7:54 PM
Eight years ago I started with 10 mg. Lipitor and took it without problems for about five years. Doctor wanted me to change to Crestor and within four months I could hardly walk, shuffled my feet and had pain in muscles. Switched back to Lipitor two years ago and this week began to experience muscle pain so I stopped taking it three days ago. Any time I am in a prone position, or sitting, the leg pain is incredible. Walking there is minimal discomfort. Tried a massage today to no avail. Any way to alleviate this withdrawal reaction, if not, when might it dissipate?
J. in Pain
September 23th
2008
10:35 AM
Three years ago, my Doctor said he wanted my cholesterol lowered. He prescribed Lipitor 10 m every other day.. Last year Cat Scan revealed a clogged minor artery so doctor increased to 20m PER day.. Test results proved Cholesterol down to " perfect" said the doctors BUT the rest of me was falling apart.. Severe muscle cramps in both legs, fatigue, muscles all over had no strength, weakness, nausea, headaches etc.. My cousin who is a doctor had been taking Lipitor herself but stopped because of the above symptoms.. Both my Cardiologist and internist have told me to stop taking Lipitor for a period of time to see if these symptoms dissipate.. After three days I already feel better. I have begun to eat 100% healthy: taking vitamins: vitamin C, Omega 3,6,9. lecithin & exercise, etc. And praying a lot..
-- By johnpeace | Reply | (3) replies | Private Message me
September 12th
2008
2:28 AM
I was on Lipitor for less than a week 2 years ago and the muscle pains were so bad that moving my head was painful. I called the doctor's office and was instructed to stop taking the medication; which I did and felt 'back to normal' within a few days. I haven't had my cholesterol checked since that time, or if I did before surgery, no one mentioned anything negative about it. However 6 weeks ago I had a heart attack. Apparently my cholesterol was twice what it should it have been, and my potassium was incredibly low. So I'm now on Lipitor (standard procedure after having a heart attack and high cholesterol seen as the cause of it) to ensure that another blockage does not occur.
The only problem is I'm now bloated even though I've changed my diet drastically (no more junk food or soft drinks, no 'white' flour products, no dairy products with more than 5% M.F and lots of veggies and fruits). I've lost 3 or 4 pounds but my pants are too tight around my waist, and now I have a my upper abdomen bulges over the waistline. Besides that, I get muscle 'kinks' in very places and after sitting for more than 10 minutes I limp when I take the first few steps.
People have told me to 'keep taking Lipitor and Plavix' but exercise more. The only problem with that is that I have a brain aneurysm and the neurosurgeons don't think it can be operated on 'without it being a very high risk procedure'. The first one ruptured 10 years ago and since then I've managed to control my blood pressure. However the meds I took for that was what lead to my potassium being so low that my electrolytes were imbalanced. That combination of low potassium and high cholesterol is what lead to the heart attack.
I'm 54 and feel as though I'm losing control of 'how' I feel. Between Lipitor, Plavix and diuretics and medication for hypertension I'm not sure if it's one drug in particular that's making me 'ache, limp and look like a blimp' or if it's because of the interaction of all of them. How do I decide 'what' to stop? What's more important to look after first - my heart or my brain?
-- By bvh123 | Reply | (4) replies | Private Message me
September 9th
2008
12:21 PM
I was a competitive runner with a number of sub 3 hour marathons under my belt before I was prescribed statins for elevated cholesterol 2 years ago. The first go round was 40mg zocor but muscle soreness and loss of strength started within 2 months. Switched to NIASPAN but couldn't tolerate it. The last 7 months have been on 10mg of Lipitor and now have intense pain in my legs, soreness in my wrist and thumb and swollen feet. I can still run but much less than before and much slower. I regularly go to the gym but have seen a steady decrease in the amount of weight I am able to lift. I have a blood test in a couple of days and will be looking for myalgia again. I have discontinued the statin and don't plan to start again. I was healthier before the DR decided to "help" me with my cholesterol problem.
-- By runinva | Reply | (3) replies | Private Message me
September 8th
2008
11:33 PM
15 years ago, at the age of 35, I had a major heart attack. After testing, the doctors decided I needed a quadruple bi-pass operation, followed by Lipitor, among other things. I was taking 20mg (the doctor ordered 40mg), but due to financial reasons I took only half. Everything was just great for 15 years. During a routine annual physical this year, my doctor noticed that my liver enzymes were off the chart high. He immediately had me discontinue the Liptor, but stay on all of my other medications. One month later, my liver enzymes were normal, and so was everything else; however, my cholesterol had climbed to 204, and I eat no meat, eggs, or other dairy products. They say my liver damage is permanent. Having had 4 lumbar surgeries and 1 cervical surgery to fuse disks in my spine, I have always attributed my back and other muscle pains to that. Now that I have been of the Lipitor for 3 months, I have not noticed in decrease in pain in these areas.
-- By dftexmex | Reply | (3) replies | Private Message me
September 6th
2008
9:21 PM
question that I have is that has there been any report for side effect sexual for either male or female? If so what was suggested?
-- By richshiela | Reply | (5) replies | Private Message me
September 5th
2008
10:25 PM
I am a 43 year old male in good health that decided to get off lipitor about 3 days ago due to the advice of my physician. I have been on it for 3 years at 20 mg daily. I am an avid runner completing 3 marathons in the last 4years, but lately haven't been able to run more than a mile or so without feeling tightness in my abs, legs, hips, and most recently my hands and elbows have mild to moderate pain. I've been noticing this over the past few months or so. I always thought it was due to over training, but I am convinced these are not normal muscle soreness/strain and I am eager to share my results as to how I feel in a few weeks/months. Today, which is day 3 without the drug, I have INCREASED pain in my hand, and an overall fatigue feeling. Has anyone else noticed this upon stopping the drug? God help all of us. This can't be doing mankind any good other than making the drug companies rich, and unfortunately, most physicians believe that these statins are wonder drugs, and prescribe them like candy.
-- By mooshoe | Reply | (8) replies | Private Message me
September 5th
2008
1:47 PM
I am a 51 y/o white female that has been on Lipitor for 2 years. I am 5' 1" and when I had to go on it my cholesterol was 267 I weighed 112 lbs. I was shocked.... my doctor told me weight had nothing to do with cholesterol. She kept a close watch on me and my cholesterol came down...... and then my ex-husband of 17 years and I re-connected and got back together and I moved so I had to get another primary care physician. I took all my meds to her, she also kept a close watch on everything. At this time my cholesterol is down to 109 and I asked if I could stop taking it, as I take quite a lot of meds, due to different things and if I could stop anything it would be great, but she said it I stopped it, my cholesterol would go right back up. So since I am not experiencing any side effects I'm okay with continuing it.
I surely hate to hear what you all are experiencing with your Lipitor..... could your doc try another cholesterol medication?
The only one of my meds that is giving me any problem is TOPAMAX........ that we are using as a Migraine preventative! HORRORS!!! Today is pretty good day. But my cognitive abilities are in the trash... I say the wrong word when I mean something else...... I search my mind looking for a memory...... I am also on disability since 2002 because of the Migraines....... I have has them since 1978, but they got progressively worse over the years until I was sick more days per week, sometimes more than 7-10 days at the time, having to be in the hospital being rehydrated and on IV pain meds.......... and as awful as the TOPAMAX is.....it has been reduced the migraines to approx 2 per month and they do not last nearly as long.
So sorry, I got waaay off topic, but I know that it is not the Lipitor that is giving me the side effects as it the last med I had to go on and I had no new side effects....... but that TOPAMAX is kicking my behind.
-- By hayneslori57 | Reply | (6) replies | Private Message me
September 3th
2008
1:02 PM
After being on Lipitor for over 5 years, I was told to stop cold turkey by my doctor after my routine blood test. Within 10 days I got blood clots and a pulmonary embolism. I had been on an aspirin a day for over 10 years, I drank cranberry juice often and always ate green leafy veggies. I never had any blood clots before coming off the Lipitor and I am convinced that it caused them. It has been a struggle with the pains in my legs ever since. Has anyone had the same or have heard of someone with the same side effect? ******
-- By rmastroleo | Reply | (3) replies | Private Message me
August 17th
2008
12:12 PM
I was given 40mg Lipitor for elevated cholesterol. I took it until I started having muscle weakness .I am a retired nurse of twenty five years, and knew this symptom was not correct. So I stopped taking the medication and told my doctor of this.He did not protest in any way.My symptoms now include;two torn ligaments, sob,mental deficits, muscle wasting, night sweats, weakness,h/a's, and more. I have not taken Lipitor for two years now. Damage is done.My doctor said it should be out of my system by now. Is this a cover up?
-- By boerne | Reply | (7) replies | Private Message me
August 15th
2008
8:42 PM
I have been on lipitor about 4 yrs. I am a runner and keep tract of my times. I have been losing about 4% of my speed each year and have recently had a large amount of muscle fatigue. Today a ran a 940 pace and thought I was not going to make it home. Three years ago my average pace was 805. Could the 20mg dosage be causing this problem?
-- By rjberger | Reply | (7) replies | Private Message me
August 11th
2008
5:17 PM
I HAVE BEEN ON LIPITOR FOR ABOUT A MONTH NOW AFTER HAVING 3 STENTS PUT IN I AM A 50 YEAR OLD MALE THAT HAS ALWAYS BEEN ACTIVE IN SPORTS, MY LIPITOR SIDE EFFECT ONLY STARTED A FEW DAYS AGO, I HAD SEVERE PAIN IN MY RIGHT SHOULDER SO BAD I COULD HARDLY USE MY ARM THE PAIN GOT SO BAD LAST NIGHT, WE WENT TO THE ER, NO PROB FOUND JUST INFLAMMATION, SO THE DR PRESCRIBED MOTRIN 800 AND A MUSCLE RELAXER, WHICH DID GIVE ME SOME RELIEF IN ABOUT 25 MINUTES .
TODAY WHILE SHOPPING I NOTICED A PAIN NOW IN MY LEFT SHOULDER AND NOW THROUGH THE DAY IT IS JUST ABOUT AS BAD AS THE RIGHT ONE THEN AFTER DOING THIS RESEARCH I WILL AS OF RIGHT NOW STOP TAKING MY LIPITOR I WILL POST MY UPDATE TAKE CARE
August 10th
2008
4:17 AM
I was prescribed Simvastatin 40mg four weeks ago and had horrendous side effects almost immediately eg deep depression, diarrhea, bad stomach aches and night cramps in my legs. Last week my doctor prescribed Lipitor 10mg and I feel no better in fact probably worse. The worst side effect for me is the stomach aches and constant diarrhea and complete lack of appetite. There can be absolutely nothing in my stomach any more. Does anyone else have these symptoms? After reading peoples experiences on here I feel I should stop taking this medication immediately!
Karen
-- By karenbuchanan | Reply | (7) replies | Private Message me
August 6th
2008
1:48 PM
I ran across this site today and THANK GOD that I found it!! My mother wasn't initially given Lipitor because the first statin that her doctor prescribed made her very nauseous. He switched to 40mg of Lipitor about 2 weeks ago and she still gets extremely nauseous and have begun coughing and experiencing cold like symptoms. Her vision is EXTREMELY blurred; so much that she can't perform her job, and her previously prescribed eyeglasses are useless. She had been experiencing pain in her legs during walks that never seemed to get better. We NEVER associated it with Lipitor or the other statin until I decided to dig a little deeper.
I asked her if her doctor had told her to take CoQ10 whilst taking these statins and he's NEVER mentioned it!! As of today, my mother will no longer be taking these "medications". Reading these posts has been eye opening, to say the least. Thanks!!
-- By crj | Reply | (3) replies | Private Message me
August 3th
2008
11:58 PM
46 yr old male and was started on Lip. about a month ago. Overall cholesterol level was 116!! Within 3 weeks I began having soreness move across my legs and hips to begin with, Just a drained feeling. Then leg cramps in my left legs. The drained feeling intensified until I went back to my Dr. last week who immediately ordered me to stop taking any more. I had been off about 4 days when I began have severe pain, lost all color, was not able to get out of bed, could barely talk or walk and was taken to the Doctor's office this past Sat.. I was not able to set up.My wife had to basically talk for me because I was in so much pain, could not communicate, was feeling like I was leaving my body. I do not and have not taken any narcotics or alcohol, but I was given "the field sobriety test", or what I would call it, as I am retired from law enforcement and have given thousands..... But never one for lipitor!!!
I told the Dr. I do not want no drug, I want an answer. I was told to come back on Monday as the Lab. folks wouldn't be in until then. I would not have to wait.
I have used this facility for many years, but I am totally shocked. I feel I have came as close to dying as any situation I have ever been in. I have never hurt to bad. I have never have so many leg cramps. I have never woke up each morning feeling like I have never slept a minute but have been working my butt off chopping wood or digging ditches or climbing mountains all night, simply exhausted.......I will always advise people about this drug....
-- By hazelgreen1 | Reply | (3) replies | Private Message me
July 27th
2008
2:22 PM
I started using lipitor from my doctor, it lowered my cholesterol all around but I started to have lower back pains. At first I thought it might be prostate cancer, but after having to MRI's done they found no cancer, thank god. But I went to an orthopedic surgeon to see what the problem was. He looked at the mri's and saw lower dics hitting my nerve endings. He also thought that it might be muscle problems so he gave me 3 epidurals and that helped for a while took away about 50% of my pain, but I still have the pain, It is hard for me to get comfortable when I sit or even when I am sleeping. I don't want to think that it is the lipitor that is doing it to me but after talking with others I feel it is time to talk to my doctor about it. My doctor said that lipitor is the safest one that will do very little harm to my liver. I am not a doctor so I would not know.. My cholesterol level was 246 at one time now it is 175. I am now facing possible spine fusion to help correct my disc problem. But will also ask doctor to prescribe something else.
Alan
-- By asperling | Reply | (7) replies | Private Message me
July 26th
2008
5:43 PM
Due to the large amount of people who suffer devastating side effects from Lipitor and other statins, I would like to encourage each and everyone of you to tell your story on home video and post that video on****** This will be one of the best ways to alert the world to the dangers of this drug.
-- By bobby | Reply | (2) replies | Private Message me
July 20th
2008
12:16 AM
I have been on Lipitor for over a year know after having a heart attack at 43 and having two stents put in. I was diagnosed with Fibromyalgia by in 2002. Recently, I have been having more arm, leg, back, pelvic, hip and hand pain then ever before. I am going to talk to my doctors now about the side effects. I have just know decided to start halving my Lipitor and may ween off of it completely. I'm on Niacin and Zieta in addition to the Lipitor. Have also been having a lot more digestive problems lately...am to be scheduled for a upper GI. I came here looking for info on the fact that although since being on Plavix (didn't realize Lipitor could be culprit) I have had bruising...today I found knots under two bruises on my upper arm. Not only are there knots but they (the bruises) are a different shade of blue (if that makes sense). Thanks to all who have shared their stories.
-- By tflawhorn | Reply | (2) replies | Private Message me
July 8th
2008
9:30 AM
Lipitor an all Statins deplete the natural enzymes from your muscles.
Your Heart is a muscle. I haved been on Lipitor for a number of years
with many of the side effects posted here. I have had Heart Failure fo
a year now and the best doctors could not help me. My son recently
researched an found a possible solution the indicated Statins deplete
th heart muscled of COQ10 a natural enzyme in the Heart Muscle.
This depletion over time can caused Heart failure due to weak walls.
Since my doctors could offer no solution, I decided to try it for 90 days.
I am off Lipitor an taking 400mg of COQ10 per day.
I am now in day seven an have slept in my own bed with my wife for the first time in a year. I am less restless, an have ha no recurrence of Heart Failure. The drug companies know the problems but thy have
deep pockets an the best lobby to get laws passed and FDA approvals.
They have now received approval to get kids on Statins so they can
make even more money before the patient run out. Thy should be ashamed but they are not!!
July 6th
2008
10:49 AM
I am 53 years old and was almost 4 years on Lipitor and started experiencing periphial neuropathology that was horrible! I had a keen neurologist who took me off after doing several tests for Lyme, Lupus, MS, etc. She said she sees more and more of my symptoms 3 to 8 years plus on Lipitor. I went off Lipitor on June 1st (my birthday), so have been off for more than a month. All of the zapping and tingling has subsided in my hands, feet, face, arms, and head. I still have neuropathology in my hands, some muscle weakness in my arms, and numbness in my toes which are all slowly diminishing. My neurologist says she expects full recovery in 4-6 months. Take B complex vitamins. I take Shaklee's twice a day.This greatly helps in the repair of the nerve damage from Lipitor. My neurologist also recommended me taking FBCx, ******(1-2 with every meal containing fat, the website explains dosage), and 1 tablespoon of omega 3 fish oils in the form of flax or fish to reduce cholesterol. There are other things I take like garlic, cinnamon extract, green tea extract. If you type in "lower cholesterol with supplements" online you will find other things like red rice yeast as well. Good luck!
-- By joannloch | Reply | (3) replies | Private Message me
July 1th
2008
3:45 PM
Because of a “Global economy” - I suspect ingredients (even for Brand names) are coming from China or being manufactured in India with poor to non-existent quality control standards, and is the primary reason for the majority of Adverse Reactions to the Statins in general. Please take time to submit your complaint directly to the FDA, and hope they investigate and take action (see bottom of page for web sites to submit complaint).
My own recent experience with statins: After 3-weeks of being on generic Simvastatin 80mg for elevated LDL, I experienced significant fatigue, shortness of breath with tightness around my chest and a bout of Gout in my left foot. I would encourage patients/consumers to directly send their complaint to the web sites listed at the very bottom, if you are either a U.S. (FDA Form 3500) or Canadian resident. Also, if your physician is unresponsive to your negative experience with Statins (generic or Brand Name), inform him/her that you refuse to continue with this drug, and that you have sent an adverse reaction complaint to the FDA/Canadian equivalent. Provide both your doctor and pharmacy with a copy of the FDA Form 3500 if you’re a U.S. resident, so they know you're serious. Lastly, I'm back to feeling normal, after I "demanded" my physician switch me to generic Pravastatin 40mg (2 tabs a day - 80mg), manufactured by Teva Pharmaceutical - corporate HQ Israel with manufacturing facility in Pennsylvania. By the way, a 90-day supply of this quality-controlled drug is available at Walmart Pharmacy for $10. I hope this helps, especially seniors on a fixed income.
U.S.A.
http://www.fda.gov/opacom/backgrounders/problem.html
CANADA
http://www.hc-sc.gc.ca/dhp-mps/alt_formats/hpfb-dgpsa/pdf/compli-conform/gui-44_consumer_complaint-plainte_consommateur-eng.pdf
Contact Name: Drug Compliance Verification and Investigation Unit Tel: (613) 952-9906 Fax: (613) 954-0941 E-Mail: DCVIU_UVCEM@hc-sc.gc.ca
June 30th
2008
7:34 AM
This is an update from my first posting earlier this year. I still have localized pain in my neck and shoulder area sometimes extending down my arms to my fingertips. I am 58 years old and stopped taking Lipitor 5 months ago. I am always in discomfort but the very severe pain comes in waves at least 3-4 times a month and lasts for about 1-2 days. I have noticed an improvement since stopping Lipitor but my cholesterol count is on its way up so I am trying to control that. Not an easy task but at least I am not totally debilitated as I was in January and February. I am totally off all meds and vitamins as of this writing. I am trying to cleanse myself and start over with diet and exercise. Hang tough ... this is definitely the battle of your life!!! KooKoo
-- By kookoo | Reply | (3) replies | Private Message me
June 18th
2008
3:29 PM
I took Lipitor for 2 years with all the pain in my shoulder, hand and arm as well as fuzzy memory. I had a friend over for Lunch an have no memory of anything that happened including his arriving and leaving on his Harley and we all know how loud they are. I ended up in the hospital with all kins of tests including an MRI all of which I have no memory of to this date. My hospital bills are still coming in as well as all the Doctors that saw me. I just received my Divorce and then this happened , I was out of work for a week , the Doctors thought I had had a heart attack, stroke or aneurysm.I also had all the foot pain making it impossible to stand up , leg cramps, sleeplessness, sheer exhaustion, depression, headache and nausea. The Doctor at the Hospital took me off of the Lipitor and said to take a 325mg. aspirin daily . This happened on March 23, 2008 . I am felling better but I still pain in my shoulder , neck , stomach , and feet and legs but is nothing like it was. Here I am left with a few thousand dollars of Doctor and Hospital bills. Why can`t something be done about all of this we are all going thru? I called the FDA to report it and got no where. Did I really expect anything to happen ! I hope someone gets something done for us . I would be one of the first to sign up to take Lipitor off the market and get what is due us.
-- By ann7173 | Reply | (4) replies | Private Message me
June 11th
2008
7:48 AM
I have been taking 10 mg.lipitor for 3 years or more....I seem to loose track of time because my memory is so bad....I ache and hurt all the time...I have severe back pain...Sometimes my back hurts so bad I cannot do any of my housework....All of my muscles just ache and hurt...I am 47 and I am steadily going downhill with my health....I feel nauseas for no reason...I have headaches...I told my doctor all of these symptoms and she has run all kinds of tests...They all come back normal...She has no idea why I have no energy and why I feel the way I do....She set me up for a stress test because I was complaining with chest pains...That test was normal...She set me up a sleep study...I am now sleeping with a cpap machine with the pressure set at 11.4...After going through all of these tests, I still feel like crap...I was sure after the sleep study things were going to get better...Then I started having such bad pains in the bottom of my feet...I could just be laying in bed and my feet would be throbbing with pain....and when I would try to get out of bed I could hardly walk...After about 5 or 10 minutes I could walk okay but the pain was still there....This is when I started looking around on the internet to see if I could find out what my problem was...I found this site and begin reading all of the side effects of lipitor...I knew right away that this was most likely my problem...I stopped taking lipitor 3 days ago....The only difference I can tell so far is that the pain in my feet is not as bad...I can hardly wait for the next morning because I am so anxious to see how I am going to feel...I am just wondering how long will it take for me to get back to my old self....oh I forgot about my stomach pain...The bottom of stomach hurts so bad at times...I told my doctor and she examined me and ran more tests but found nothing....My doctor does not know I have stopped taking lipitor...I have read that taking vitamin c or fish oil will help with lowering cholesterol..Does anyone know if this really works???
-- By brenda1023 | Reply | (3) replies | Private Message me
June 3th
2008
1:34 PM
age 72 had MI angioplasty and stent.On lipitor for 3years but recently noticed increase in muscle and joint pains and then lightheadedness and walking unsteady and tending to go slightly from side to side.Also a tendency to have nasal congestion.I am an MD and will stop the statin and assess the progress.
-- By kwt1 | Reply | (2) replies | Private Message me
May 24th
2008
12:28 AM
my husband had never been one to go to G.P.s or have reason to take prescription medication( not even an aspirin ) . Finally had a medical test- Cholesterol was high- was not given a chance to change his eating habits- and was placed on LIPITOR ( this was 18 months ago ) and since- everything has gone downhill from there. He has suffered nausea, blacked out, had headaches/tingling sensation,chest pains, aching/fatigue to legs/feet and arms. - shoulder pain- has problems getting up from bed or from sitting position- has generally lost power in his arms and legs. His doctor was advised over the past several months of his pains- but had no idea what caused them and changed the script to Crestor. ( still a Statin drug ). Have ( on good avice from chemist assistant ) now got him on daily dose of Q10- and he ( 2 weeks ago ) decided to stop taking the Lipitor or any other cholesterol lowering statin drug- of his own choosing. He has had several visits to podiatrist to help alleviate the pain to his feet - which are sore and swollen. His liver levels were also high at on stage. All this has happened to him sine he started the Lipitor statin. Prior to this- He has never had previous medical conditions or medication. Seems to point the finger at one reason- LIPITOR !!!!!- THEY CANT BLAME IT ON ANYTHING ELSE. Just want him to get back some energy. He is 56. One more story to add to the thousands of complaints, Why isn't anyone in the medical field / lawyers commenced a full investigation to all these complaints? thousands of people cant be wrong. Bring on Erin B.
-- By tkphelan | Reply | (1) replies | Private Message me
May 2th
2008
3:48 PM
Hubby had angioplasty last month for 95% blockage and still has 75% blockage in two other arteries. Doctors put him on a handful of drugs (blood thinners, blood pressure meds, fish oil, aspirin) including Lipitor. Hubby has gone from healthy to being in constant pain, mostly in the legs. He had knee replacement last year and cant believe that this hurts worse! Also, his urine is darker and he has to 'go' more often. It's only been 1 month, but after reading up on the drugs, I've told him to refuse to take any more of the statins. I love him and want him around a long time, PAIN FREE. What's with these doctors?
For all of you who are suffering and wanting to get off the statins, increase your exercise to as much as you can stand, and then some! You'll not need the drugs anymore. Hubby and I are doing this as well as increasing our intake of legumes (my homemade bean soup for starters). I'd much rather he farts than cries in pain! Good luck to all and God bless you.
April 26th
2008
8:55 AM
I've been on Lipitor for 1 year and have all the side affects that you all are describing.
I've also developed an inflamed liver.
Any one else?
if I get more response, I'm seriously considering a lawsuit against the pharmacy company.
Tom
-- By tommy1 | Reply | (3) replies | Private Message me
April 24th
2008
6:57 AM
I have been reading about the side effects of lipitor for several days now and am scared silly! I have been taking it for nearly 5 years now. My doc warned me about the muscle weakness/pain when I began taking it, but I didn't have any problems and it definitely provided good results for my cholesterol level. During the past several months though, I've begun to have severe symptoms. Actually, looking back, I realize I've had some of these symptoms for awhile but they were so easily attributable to other causes that I didn't pay close enough attention. I am weak to the point of not being able to walk a city block without being tired; my breathing is so labored sometimes just moving around my apartment is a problem. My knees and lower legs are painful, especially after walking. I get frequent, painful spasms in my lower arms and wrists. My speech has become slurred (I sound drunk) and my voice very hoarse - both so much so that people have trouble understanding me. I have trouble concentrating, am forgetful and am often dizzy and light-headed. I take medication for GERD, hypothyroidism, depression and asthma. But in case you think these symptoms could be from one of those (as I did!), I can assure you that I have had multiple tests which determined my thyroid levels are good, my BP is excellent, I have no signs of cardiac disease or diabetes, no sign of any type of stroke, no signs of any type of cancer or blood disease, no sign of pulmonary problems (other than asthma). I stopped taking Lipitor four days ago after consulting my doc. But I got to tell you, I am scared to death that I've been on this drug so long these symptoms won't go away. Any advice or suggestions would be most welcome.
-- By cdsmafp52 | Reply | (3) replies | Private Message me
April 10th
2008
5:37 PM
My doctor increased my Lipitor from 10 mg to 40 mg after my physical in January. My cholesterol was only 182 and my LDL was good. I am now being checked for rhabdomyolysis - a rare but serious complication from the muscle pain and weakness caused by the Lipitor. I never had these problems while taking 10 mg and I have no idea why he increased my dosage so much. I am miserable with neck, shoulder, and back pain and have been for a month. I thought I had hurt myself at the gym and have even been seeing a chiropractor for the pain. My urine is very dark, indicating possible kidney damage and I am so tired I can hardly make it through the day. My depression has worsened despite doubling the dose of my anti-depressant and I have no motivation to do anything. I am looking for an alternative to statin therapy, as I am a 38yo insulin-dependant diabetic and am at a higher risk for cardiovascular disease. Any suggestions out there on alternatives?
-- By mlavender | Reply | (1) replies | Private Message me
October 19th
2009
2:23 PM
I am a 52 year old female and my bad cholesterol is fine but my good cholesterol is low. I have been taking Lipitor now for a few years and have numb hands and feet to the elbows and knees. My feet are extremely sensitive, worse at night and now I'm getting sharp pains that feel like a bug just bit me. My tongue is also always numb and I do get migraines.I have insane stomach issues and food intolerance. I also take medication for high blood pressure, acid reflux, & thyroid. I have now been diagnosed with type 2 Diabetes but control that with diet so far. Until four years ago I had nothing wrong with me. I am slim and healthy. I had a lump in my thyroid which was removed and there was a trace of cancer. Then like dominos all the other conditions lined up. I have had MRIs and all the tests and doctors insist that I am not a severe enough diabetic to have neuropathy. I can hardly wear shoes now and it hurts when I wear runners while I walk and exercise. Does any of this sound familiar to anyone? I hate that my health has become so much a part of my daily life. Does anyone have neuropathy as a result of Lipitor and am I even taking the the right medication since I don't have high cholesterol?
-- By heatherdiane | Reply | (5) replies | Private Message me