Lipitor and lipitor

I have been on and off Lipitor for 2 years approx.
After a typical week on LIP I have left arm weakness, can't breathe fully, can't walk far, my pulse slows down to almost nothing, I get chest pains, my left side chest and around my shoulder is in such pain that if I try to gasp for a deeper breath my heart starts jumping missing beats. If I have some cheerios (low bad stuff) with soy milk (cow products are bad for anyone middle age or above) I can push what ever it is through my system to make it through the night; however if I don't have something to eat or an aspirin I'm sure with the worsening shooting chest pain and shooting pain in my neck and left hemisphere of my head area with accompanying foggy feeling, i'm really feeling that i'm having a stroke....
Get off th LIP and you heart muscle will attempt to repair itself somewhat.
There may be long term damage, so this needs to be solved.

On separate notes:The food companies like Zehrs keep adding fats and sugars into our foods, then the drug companies and doctors are scooping wads of cash to treat the symptoms. When they finally forced the food companies to eliminate trans fats from kids snacks, they added twice as much sugar so now along with obesity they can get diabetes. They rarely work on a cure or fixing the problems because they won't make money on it....
I find it strange that a lot of ladies getting cancer are working hard to raise money for treatments (the pink ribbon effort) but no-one will speak up against all these companies dumping tigger chemicals into our environment (water, air, landfills, products etc) as long as we all have cool hair dyes and appliances and stuff that is on the market making dollars before properly tested. We are the guinea pigs especially now that we are eating cr_p from China.... Guys, get off the drugs if you can;;; Too bad also, my kids are getting bombarded by tv commercials pushing sugar cereals and drugs for every little problem which cause worse side effects. I would like to invent a new good pill so I can become rich!!! ...Thanks, I have enjoyed reading that a lot of people are having similar side effects that I have had.
A higher power (not Al Gore) has given us internet technology to help solve a lot of problems, and protect innocent people from the huge worldwide companies. They have the money, we have the internet hopefully to use for the common good.
P.S. Nothing against Al, He is a great leader trying to do good things for mankind.

Joint pain in fingers, joint pain in knuckles, wrist weakness after a week on 10 mg daily dose of Zetia. Amazing reduction in bad cholesterol and triglycerides when used with daily maximum 80 mg dose. Zetia was discontinued because of these painful side effects. 68 year old male.

I am a 52 year old female and my bad cholesterol is fine but my good cholesterol is low. I have been taking Lipitor now for a few years and have numb hands and feet to the elbows and knees. My feet are extremely sensitive, worse at night and now I'm getting sharp pains that feel like a bug just bit me. My tongue is also always numb and I do get migraines.I have insane stomach issues and food intolerance. I also take medication for high blood pressure, acid reflux, & thyroid. I have now been diagnosed with type 2 Diabetes but control that with diet so far. Until four years ago I had nothing wrong with me. I am slim and healthy. I had a lump in my thyroid which was removed and there was a trace of cancer. Then like dominos all the other conditions lined up. I have had MRIs and all the tests and doctors insist that I am not a severe enough diabetic to have neuropathy. I can hardly wear shoes now and it hurts when I wear runners while I walk and exercise. Does any of this sound familiar to anyone? I hate that my health has become so much a part of my daily life. Does anyone have neuropathy as a result of Lipitor and am I even taking the the right medication since I don't have high cholesterol?

Not a new, but seemingly common side effect, i just recently noted could be from Lipitor.......all over achey dead weight feeling, difficult to motivate and move without great fatigue an achiness....totally out of character & even herbal energy, once helpful was completely non effective. Also have arthritis and a knee replacement...knee ok but rest of body next to completely seized up, including hands, hip, sacro iliac, foot, and extreme neck stiffness and pain. Being a retired nurse i should have noted side effects, but attributed to another BP pill which was stopped... Of course absolutely no change and now tripping to chiropractor and acupuncture hoping to get this body going again, especially with much needed walking, post knee replacement. Also i had gained wt, maybe 10-15lbs in 6 months, but when lipitor ws recently doubled, i gained even more in a 3 wk period, and my midrift is cellulite lumpy looking, unlike ever b4, with my normally preferred very active lifestyle, that is now difficult with probs occurring. The chiropractor alerted me to the potential Lipitor side effects, but i know my cardiologist would not agree with this theory.....so afraid to mention, unless there is some conclusive test to be done. Otherwise they say everybody always wants to complain or blame probs on meds, if nothing else suits the situation. I have discontinued the Lipitor, just for 2 days so far and pray i will feel back to myself asap. Now of course i am torn with the lack of prevention of atherochlorosis and future bypass surgery as in father's family.... Feel like damned if i do and damned if i don't.....so definitely empathize with most. Thanks for commoradery and hoping i am not just becoming a cuckoo hypochondriac.

Well I have been on Lipitor 80mg for years (family history of high cholesterol) although no hearts attacks/strokes ever been attributed to the h/chol....without sounding like I'm a hypo I have 3 disk out in my lower back & years ago suffered intense back as a result...the pain which seems to be now all over is horrid ...I have been thinking that it was perhaps arthritis & old age (59yrs).....several months ago I mentioned it to doctor he said Lipitor could cause side effects but he'd keep an eye on it....well this morning after googling "Lipitor" iv'e made a decision & that is to get rid of this medication...everything I'm reading sounds just like what I have been experiencing...thanks for the input I think I have come to realize that it is the medication that is causing all my problems.

I have been on LIPITOR for years 10mg. at least 8years my doctor told me as long as my blood tests were normal "I had nothing too worry about" through the years I had so many health problems,along with so many tests I thought this pain was normal.My pain was gradually getting worse I started to think this pain has to be because of my age.I'm 67yrs old. Last week I had an appointment with one of many Drs. I mentioned that I felt more pain than usual when I told him I was taking Lipitor he was concerned I was told this medication I should stop but it was up to me if I wanted too or not. I had an appointment with another doctor the same day to found out the results of all my blood tests. I was pleased that all my blood were within normal range but there was the blood test for muscle enzyme,CPK was mildly elevated. I was told that Lipitor could make that test elevated. I had another test that that day and was called and was told that that blood test was elevated a little more.I have been off Lipitor for one week now and never going back to taking Lipitor again. I'm so glad I found out about Lipitor and the damage it could do to your health. I'm also grateful for finding this sight by accident. I hope one day I will feel better also I'm not going back to the Dr. that started me on Lipitor and wanted me to stay on it!

After several attempts to lower my cholesterol, my doctor has settled on 40 mg of Lipitor, but, after reading these comments, I'm going to self-medicate and work my way off the drug completely. My main complaint is the fatigue and brain fog others have experienced. I do have a shoulder that has developed pain and weakness, and my legs don't seem to be as strong as they used to be, but it's the fatigue and memory/cognitive slowness that concern me the most. Also, like others, I assumed it was normal aging (I'm 58 and have been on statins for about eight years). I'll report my results after getting this stuff out of my system. Good luck to everyone going through this...we're not crazy after all, huh?

I have been taking Lipitor for about 6 years suddenly developed a rash on my shoulders and chest. My doctor diagnosed SCABIES!!so I treated myself for that then the rash progressed so I had a biopsy done and after 3 months of agony my slin specialist had taken me off Lipitor as theh test showed a reaction to a drug. I am still itchy prickly and burning on arms legs and hands and cannot tolerate cortisone cream so am on tablets for a week..can anyone relate to this condition? My scalp is also very dry and scaly.

i have never taken lipitor and i never will but here's a warning for everyone- there is actually a company that sells reports for stock investors and they are advising people to invest in the company that makes the one of the only drugs used in the management of ALS. they predict that the ALS patient population (code for customers) will grow as a result of all the people on lipitor.

ok, aside from the fact that it made me sick to my stomach that wall street views the potential suffering and death of ALS victims as a business opportunity (what else is new?), this is a pretty good indication that there is a link. it will probably take years for "science" to conclusively state the connection and for the FDA to take lipitor off the market

in the meantime, save your own life. if you're not taking it, don't start. if you are, stop NOW! cholesterol is not the enemy

Now it makes sense why doctors were so eager to prescribe Lipitor. Pfizer has been hit with a 2.3 billion penalty for illegal marketing promotions of 13 drugs that includes LIPITOR. They were awarding doctors free golf, massages, and resort junkets for "pushing" Lipitor, Viagra, Zoloft and 9 other drugs.

I have used Lipitor and/or other satins for many years. I had to get off a generic a year ago and went back to Lipitor. I believe it caused my tinnitus and muscle and nerve issues all over my body. I recently stopped taking it and now 4 weeks later I am getting some relief. I did find something that has really lowered my triglycerides and my cholesterol. It is a brand new diet supplement that contains a new source of omega 3 and antioxidants. contact me and I will give more info on this wonderful all natural wellness product. It really helped me.

I was taking Lipitor about 15 years ago, and it worked great...My cholesterol went from total: 240, HCL 65 to total 60, HCL 6, yes 6. It has been 15 years and I can not get my HCL past about 25. This stuff is poison!
If that was the only problem I ever had, then no big deal...right...My muscles were destroyed! My CPK reading was almost 2000 and I ached constantly. Nobody should take this garbage, it is pure poison.

Cholesterol slightly elevated Dr. recommended 10mg dosage. Began experiencing neck and shoulder pain, dizziness, nausea, foot stiffness and leg numbness up to the lower thigh. Voluntarily stopped the medication after four months. All noticed side effects disappeared except for the foot stiffness and leg numbness. It has been 2 1/2 years and these remaining side effects are constant. Not optimistic for recovery. Anyone else with similar symptoms?

I want to ask a question. My mom takes Lipitor and just started Vit b . is there side effects to be expected? She just started a new bottle of Lipitor and is exper. dizziness. is this a side effect of one or the other?

I started feeling much better very quickly after being off Lipitor now 7 months. However, the symptoms I had using the RX has cause significant problems. I fell so many times with my weak joints and muscles, that I had severe problems. I now need to have knee replacement surgery after falling so many times injuring my knees and weakened muscles to support myself. I am getting cortisone shots in that knee, as well as physical therapy. My MRI shows a torn meniscus, stretch PCL very thin, cartlidge loss and debris, still swollen with csyt after all these months. With no meds, and lack of being able to exercise, I now have hig-chol back. On and on it goes.... a real catch 22. Take care of yourself, watch out for symptoms. I ignored sx's thinking it was stress but after reading adverse reactions, it fit me to the T.
My original posting re: Lipitor is Forestseaski on Jan. 2, 2009

C.

I have been on Lipitor for almost 5 years. I started with a low dose of 10mg for 3 years but my cholesterol did not come down significantly enough so the dose was increased to 20mgs two years ago. I have noticed my hair thinning almost immediately after being put on Lipitor but when the dose was increased the hair started falling out where now it is noticeable, at the front along the hairline, on top and at temples. It has become another problem, at this point, like having high cholesterol. It seems to be happening now at an accelerated rate and my scalp is visible from my hairline 3 inches back. Styling is now impossible without coming the hair all the way forward from the crown, what's left of it. I had no idea hair loss was a symptom of Lipitor until I thought about when it started and the fact I take no other medications. There is no history of this type of hair loss in my family. The Lipitor brought my cholesterol level down to preferred levels but if I stay on it much longer I will be bald on the top and sides of my head. I'm worried it won't grow back.

June 27/09
I am 65 yrs , very active. Play hockey, baseball, slopitch, and jog.
Started on Lipitor 10gm about 5 years ago. About 6 months later increased to 20gm. about 1 years later increased to 40 gm. Did not really notice any side effects. During that time cholesterol dropped from approx in Aug2005 to 8.01: ; Jan06 to 6.37:; Apr06 to 5.3 ; May09 @ 4.2. No problems noticed while on 40s for about 2 years.
June09 doctor increased to 80 gm !? Started to notice muscle cramps and pain . Also started to notice some stomach upsets.Thought I had strained a hamstring muscle from hard running acceleration but not sure now after reading some of the comments. Three days ago , although I always stretch for 1/2 to 3/4 an hour before every baseball which I play 4 times a week, I had very severe muscle cramps suddenly above my calf muscle just below the knee as I started to run to 1st base. I played the rest of the game but in pain and could not run hard . Could not sprint on my toes as I always did , so had to run about half speed but flat footed on the bases but painful,as we had only 9 players. Had hot shower Thursday night after game, massaged calf area with Wintercrest ointment. Got up this morning Friday , muscle sore but can walk on my toes. Tonight @ midnight slight soreness but most of the pain gone. I was thinking that I might have strained a calf muscle playing baseball but noway! I think it has to do with the doubling of the Lipitor from 40 to 80!!!! Will cut back back to 40 gm on my own till I see the doctor.
Will go to see my Doctor ASAP!!!

MAY 29th, i had a heart cath done. while on the table i had 5-7 sec MI.
was put in MICU, rest of that day and night. moved to heart ward, was put on 24 hour telemetry for 2 days. was started on LIPITOR. had never taken it prior to then.
as of April 8th, i had made a radical diet change, from a lacto/ovo vegetarian, to a "south beach"/modified Atkins NO CARB DIET.
in the period from apr 8th to may 29th, i had dropped 16 pound. i have a bad back, and with the added pounds i packed on, made walking a choir.
with the weight loss, i was walking a lot better. THEN May 29th, LIPITOR was added ............and within 2 weeks, i was having leg weakness, when standing i would feel like my legs couldn't hold me up, walking was now harder then when i had the extra 16 pounds.
sooooo....as of June 14th, I STOPPED TAKING IT!!!!! within days i felt more energetic, and could work a few hours a day. had an appointment with cardiologist June 19th, told him of problems, and that i had stopped taking lipitor. he agreed with me, said to stay on the diet, exercise more, and give it another 6 weeks and then we will check progress.
he did not prescribe any replacement for the LIPITOR. but i have been herbal and homeopathic savvy for a long time so i will continue the OMEGA-3 fish oil, 4 capsules a day, and 4 GARLIC a day.
i mihgt have to add some MILK THISTLE for the liver, if the LIPITOR did any damage.
my diet change if anyone is interested is, chicken, turkey, fish for meats, no hamburgers, or steaks or pork ribs. i STILL do a ton of
VEGGIES, mostly COMPLEX CARBS, lettuce, broccoli, spinach, tomatoes, cukes, zukes, summer squash, and have found a wonderful substitute for PASTA, and its SPAGHETTI SQUASH. split it, microwave 10 min, let stand for 5 min, then take a fork and strip out the meat of the squash, cover with PASTA SAUCE as you would make for PASTA. awesome.

Three and a half years ago i suffered a heart attack, i had three stents put in and was put on Aspirin 75mg, Cardicor, 1.25mg, Tritace 5mg and Lipitor 80mg. I was fairly fit at the time, didn't drink or smoke and ate properly.

But now i'm suffering, i've been to the hospital and my GP, but are told there is nothing wrong, my hear tis good. So why am i suffering with light headedness, pains through my body, back, neck, chest, stomach. So much so i thought i had gall stones or kidney stones. My right knee can't be touched, it is so sore. Chest heaviness, eyesight getting worse, slurred speech, depression i could go on.

I've said this to my doctor, he just brushes it off and says i'm on them for life, ....apparently standard treatment for anyone who's had a heart attack. I walk 5 miles a day, eat 5 or more fruit and veg, don't smoke or drink, do all what i'm meant to. My cholesterol is really low, but so is the HDL too. I was never recommended CoQ10 or a vitamin B complex.

It was my mother who told me to research the side effects of all the meds i'm on. I agree, we all want to live a long and healthy life, but at what cost. I am now of the opinion that doctor's are so use to thinking they are near god like, they have forgotten that we are individuals, that we know our own bodies. I'm sick of the fact that the large pharmaceutical companies send out there sales reps to doctor's surgeries and that is what is deciding what the patients end up taking and not the patient's problem.

DOCTOR'S WAKE UP TREAT THE CAUSE NOT THE SYMPTOMS!!!!!!!

I've been on lipitor and other generic forms of it for the last 8 years since the age of 26. I started on 10mg then 20mg and later 40mg. About 4 years ago I started with severe stomach cramps. The pain is so bad that I have to go home in the middle of the day, I can't walk or sit straight the pain is that bad and NOTHING helps. On a scale of 1 to 10 I would probably put this at a 7 or 8. I would also be nauseous and be really tired. I have had countless opinions and tests done and doctors keep telling me it is an "enigma" and there's nothing wrong with me. We've treated it through coeliac diet, exercise, lots of water, but it never helped. About a week ago I stopped drinking my meds by pure chance. I have not had one incidence of stomach ache. My doctor tells me that it's not possible for the lipitor to be the cause. I am sure he's wrong. Has anyone had a similar experience?

Was on Lipitor 2 years ago and had to come off because of side effects - sever muscle pain.. Prescribed Niaspan instead .. 2 months ago my cholesterol rose to 7.1 and my doc put me straight back on Lipitor - 10mg.. Feeling lousy - neck pain, leg pain, dizziness, fatigue ... head feels fuzzy all the time and get sudden twinges in my chest.. Had stress test done last week and all ok.. Also have severe digestive problems. Going to wait until 2 full months done and going to get bloods done again

I have been taking 40mg lipitor for over 9 years now.

I have had back issues since an injury to one disc (L4?), and had microdiscectomy in 2001? Took about two years to actually get close to normal.

The last few years, I have had multiple issues with shoulder pain, wrist pain, elbow pain, lower back pain, Upper rump muscle pain , and now both hips are killing me (the shoulder, upper rump muscles and hips are by far the worst). And I am now so weak in my lower back muscles, that it feels like I will (and do) pull out my back.

I have seen NO many doctors I can't even name them all. I have had operations, multiple injections (cortisone) taken pain meds, etc. Nothing has helped and in the last year and a half, I have gotten steadily worse. To the point where I can't really do much of any activity. Sleeping at night is painful. Can't lie on left shoulder, and can't lie on either hip for more than a few minutes. If I fall asleep on my side, the pain wakes me up. When I try to walk, 80% of the time, I end up with a pain in my upper right rump (sacroiliac area), that I MUST sit down to get the intense pain to go away, which it does. But comes right back when I walk again.

I have had x-rays, MRIs etc, and never reveals all that much. Disc issues, yes. NOt much else.

Recently, I have begun to get a nasty clicking (catching) on my left jaw (joint?). Not really painful, but something definitely wrong. My dentist sent me to his Chiro. I went and liked him right away. I had gone to another chiro for years and I believe in them. But this one is the best I have seen.

Anyway, one of the FIRST things he suggested, was that it was POSSIBLE that the Lipitor is causing all of my problems. Put me on COQ10, and doing multiple adjustments and treatments. I will be seeing my regular doctor 5/26, and my chiro wants me to see if he will take me off lipitor and put me on Niaspan instead.

I guess my question is: Can Lipitor be fine with me for so long, and then in such a short period of time, turn me into a compete wreck from the pain and wasting away of my body/muscles? I've told doctors for over a year now that there is SOME connection as to all these issues and pain. One Doctor, of course, gave me the "you are getting old" bull. Yes, I am 56 yrs old. But I understand the process of getting old, vs the complete failing of ones body.

Also, IF it is the Lipitor, can it possible all go away? Or should I expect some damage forever?

One more thing, the last ortho I went to the other day for a second opinion, wants me to do a EMG, to see if there is muscle damage. I was not planning on doing it, but wonder now, should I? He was not doing it because of lipitor, as he never even talked about that to me. I had shoulder operation and have not had the results I feel I should have had.

Can anyone tell me if you can just stop Lipitor cold turkey or do you have to stop it slowly? I have been taking Lipitor for 5 years now and I have been trying to find out what is causing my leg weakness. I mentioned it to my doctor who said it si just a fact of getting older. The problem is getting worse and I noticed it started about 3 months after taking the Lipitor and has steadily gotten worse. I am 49 years old a little over weight {which I am working on}. I also noticed my asthma which I haven't delt with since a small child has come back. This may or may not have to do with the Lipitor but the pain in my knees and legs I believe do. It really hurts in the joints of my legs and sometimes in my shoulder area.

What a rotten drug. The past seven months have been hell for me. I am 42 years of age and put on this crap last November. I have suffered from bad headaches, leg cramps, Insomnia, Plantar Fasciitis, mood swings and the list goes on. After seeing this site and all your responses I believe the best thing to do is get of the crap. I will write in 2 weeks to give an update.
cheers from Down Under

took lipitor and erythromycin and now have neuropathy

Do cholesterol lowering drugs do any good? Thats a good question considering the debilitating side effects everyone here is complaining about.
Advertisements in the USA claim "30% reduction" in heart attack and strokes, but does that mean that everyone that takes the drug reduces their individual risk by 30%. Not exactly. The advertisements boast what is called relative risk reduction. The absolute risk reduction is what counts and is less than 1% on most statins. So how did lipitor do on prevention of events? Here is the bottom line: If you are a middle aged male, 100 MEN will have to take lipitor for 3.3 years to prevent one MAN from a heart attack or stroke. WOW! You have to treat 100 guys for over 3 years in order for one guy to benefit.

I am 20 year old female and have a bad family history of high cholesterol, iv been taking 40mg/day of lipitor for nearly 2 months.

i have just turned 20 years old and taking 40mg of lipitor a day for nearly 2 months. i have a high family history of high cholesterol

I have had Type 1 Diabetes for many years (54) without any complications of the disease - until I had a mild stroke. Which didn't affect me. Now my doctor makes me take Lipitor. From the very start of taking 10mg Lipitor per day, I got muscle cramps and leg twitches whilst in bed; muscle weaknesses; I even got Plantar Fasciitis and now I limp slightly in that foot. Before I took Lipitor I used to sleep like a baby. Lipitor has made me from a relatively healthy person despite having Diabetes to what feels like an old lady at aged 55. I know it is Lipitor as when I stop taking the drug all unpleasant side effects mentioned above cease. The trouble is my doctor won't give my Insulin without Lipitor and I need Insulin to live, of course. So I am forced to take Lipitor. I find that exercise such as a good long walk during the daytime helps; without it (eg in bad weather when I cannot get outside) the effects of Lipitor are much worse. My cholesterol readings and blood pressure are always good (even before the stroke) so why should I have to be almost crippled by Lipitor?

My mother, who is in her early 70's, is diabetic and had high cholesterol. She had been taking Lipitor and the doctor increased her dosage. She was experiencing muscle pain for some time, especially when she woke in the morning. The muscle pain worsened and her muscles became very weak. She had been complaining to her doctor for some time. It took a chiropractor to suggest it was the Lipitor. Her doctor finally ordered blood work and her enzyme levels were at 9500. She was immediately hospitalized, tests run and IV's given to flush the Lipitor from her system. She was expected to slowly recover. After weeks, her levels dropped to 6500 then began to rise. Her doctor now says her muscle damage is permanent and plans to give her prednisone to stop the inflammation. This muscle damage is a terrible "side effect" for a drug that was supposed to help her. She can hardly get up or down from a sitting or lying position, can hardly walk and her lifestyle has been severely curtailed. She is also exhausted all the time.

I have to comment..... look at how many entries there are showing side effects.. so many people have the same symptoms. does this not open the eyes of others to accept that it can be a real problem to some people, admittedly not all, but it obviously doesn't agree with all of us. I could not believe my ears the other week when the local GP said that it's rare there are side effects, then 4 hours later a DR. in a hospital emergency department stated that statin drugs are very common for muscle problems, in particular one named brand (need I say more??) Couldn't wipe the smile off my face after hearing someone finally admitting it..
Come on professional people, start listening and accepting that people do know their own bodies and can see and feel so many vast changes in their day to day activities. Maybe guide people to a better understanding of diet and lifestyle before dishing out meds. so quickly. Give us some credit......some of us exercise regularly, we want to live healthy too and all this has done is put a stop to that luxury.
I have to add, I posted earlier this month, I AM getting much better each day, clearer thinking, vast improvement in mobility, so please stay positive and take care of yourselves, obviously we all need a little patience, hard to do after some long term suffering i know, we want overnight fixes just to feel normal again.. :-)

I am 51 and very athletic and in admiral shape. 3 months ago, I began on Lipitor for cholesterol control. I just tore a calf muscle. Coincidence? I'm going off Lipitor until I know for sure. At the time of the muscle tear, myself and my muscles were warmed up. I didn't do anything harsh to provoke a tear. That's what scares me. It just went rip.

I am 43yrs old took lipitor for 2 months.I started having weak muscles,felt like i had worked out all the time.I started gaining weight,which i have always been pretty slim, my feet hurt so bad just to get out of bed is very painful. My legs are weak just to pull myself from sitting position i have to have help.My doctor rechecked my blood the lipitor made my protein,cq-10 very low.I have been off of it for 1 month feeling little relief .Taking cq-10 small improvement i would rather have high cholesterol than feel the pain, by the way i am female i also had stomach pains and heartburn which i have never had this medicine needs to be removed i am very upset for what it has done to me.

64 old male on the drug 10mg for several years, depression, cramps, back pain, foot pain. After talking with a retired Heart Surgeon he convinced me to stop taking Lipitor. Now I see I never should have taken the drug and it tells me how stupid I was not to research it more. The side affects from stopping have caused me some concern and I hope they will be gone in time.

Apr 2009
I am a male 58 yrs old recently had a leg & knee operation, experiencing very bad lower back pain along with cramps on affected leg which is on a cast.

I started taking Lipitor about a year ago.

I to was put on Lipitor 20mg. took it about 1 month and had such pain in my leg muscles I couldn't hardly walk . I went to my doctor he said go off it and I should start Zocor in . A month the pain was worse I couldn't even walk around the mall . I couldn't sleep at night the pain was terrible. Once again I told the doctor he said stop it and we will wait 6 weeks and start Crestor. In six weeks the pain should be gone. It didn't go away I could hardly walk at my job teaching at a Pre School. The pain unreal.I have type 2 diabetes under control for years. Still is.I was told I had arthritis. But now they tell me I have spinal stenosis. I'm on paxil for the depression they said I had and. I feel as bad now as I did 4 years ago when I was on statins. I can hardly walk, my life is pain in my muscles that never leaves and now my back. I was active and watched my weight and walked 3 miles a day. Since taking these meds. I can no longer work, go shopping or go anyplace I have to walk . I have gained a lot of weight . I have something wrong with my knee .I have tried to explain this to 3 doctors and no one listens to me. My health turned for the worse when I started taking Lipitor in 2005. I don't think I'll ever get my life back I am only 58 years old and can't work to support myself.I can't even hold my 1 month old grandson and walk or lift him from his bed. Reading all your messages . I know my health going down like this is from the statin drugs I took . When I sit , I can't walk when I stand Then .I gotta sit in 5 to 10 minutes.And the pain in my knee has progressed. No doctor wants to hear my story and believe me. Thank God I found this web site and read this for my self now I know I'm not crazy. How can I get myself better ? Will I live the rest of my life in pain, and not able to function.Every time I see a doctor they give me another pill to take. I want to just throw them all away .There must to be an answer to this.

I am generally classed as an active, happy and positive person, loving life.... but the last 4 months have been a blinking nightmare....
It seems we all pretty much have the same symptoms, horrid shoulder pain, muscle soreness, spasms, feet and generally feeling like "what the??" is where we are all at..horrid thoughts of MS? Motor Neurons, Parkinsons, etc. all sorts of possible sinister problems.
I too have stopped taking Lipitor only a week ago (and I only started back in October 2008 after "arguing with my doctor for many years not wanting to take it...and i didn't even know about the horror side effects, i just thought it was totally unnatural to strip the body of something almost totally,).. within 2 months I started showing signs of chronic neck C5/6/7 and left shoulder. Maybe I had injured myself once before and suffered pinched nerves, but the pain eventually went, but this is not normal or should I say usual...... I have constant buzzing of left thumb/forefinger and hand and my right leg. NEVER NEVER have I suffered from this type of symptom before in my entire 50 years... Even some days when the spasms are at their worst I get an itchy nose and tingling lips. The scariest symptom of a white flash in my left eye convinced me...So fed up with it and after stumbling on all the negative comments and side effects with this drug I made to decision to take control of my own life. It is too uncanny....As I said, it's only a week now free of Lipitor, I have increased my Vitamin C intake and making sure I take a Mega Multivitamin daily too. There is some interesting reading in various websites of Vitamin C vs Statins...

BUT it would really be nice to read any comments of people who have recovered from these rotten symptoms and what sort of time frame it took to get over them. Is there a light at the end of the tunnel for us all. Some indication of Recovery period is probably our greatest "want to know"... and also...when will i be able to enjoy cycling again. Thank you to everyone for the input and may our strength be returned, not only physically but spiritually as well. :-)

Not sure but didn't have a problem with sugar until a month after starting Lipitor 80mg. Leg muscles feel like they are going to cramp when I move quickly and I now have much fatigue both muscles and general. AND, I now have to start Metformin for diabetes. No history of diabetes in my family and I am not much overweight and get loads of exercise. I am wondering if the Lipitor could have contributed to the diabetes?

I have been off Lipitor for 2 weeks now. I still have slurred speech. My tongue is moving to beat the band. I have been to 2 neurologists and both have told me that I have "motor neuron disease". This drug is POISON and anyone on it should get off of it. I never had a problem before I started taking this drug. Now I am looking at ALS as a diagnosis. That is awful to think that I might have that. I will find out on April 14th when I go visit my Dr. at Mass General. I will let everyone know what comes out of it.
P.

I am 62 years old and I was taking Lipitor 10 mg for the last 5 years in New York. When I moved to California the new doctor switched to Lipitor 20mg and I started to have strange side effects. After a pause of two days, I restarted and the symptoms were worse: my muscle in the upper arms, and my calves were hurting and week, my back ached, my head was empty nad I felt dizzy all the time.
I stopped two days ago and today I had blood in my urine. What's happening? should I go on any medication at all to lower my cholesterol? My new test was: 179 Cholesterol
HDL 71
LDL 95
I am too scared to start any other drugs like Crstor or Niaspan as I was recommended.
Please advise,

My husband has been taking Lipitor for a year. Several weeks after he started taking it he had muscle aches and when he went for a follow-up we discussed this concern and the neurologist said that it was ok and would go away. He had a stroke several years before and had some damage and he was tired. He complained about him getting weaker and his muscles hurting, he has left shoulder and arm pain. His chest hurts on the right side and doctors told him that he has inflammation between the muscle and chest wall but it has not cleared up after many months and meds. He is so weak now and is dropping things. He has some muscle twitching. I think it is from the Lipitor because the symptoms started after he was put on this drug. Doctor says that it is very unlikely..Has anyone else had these problems while taking Lipitor???

I have stopped taking Lipitor after 3 yrs. I was told I had a mini-stroke because of my slurred speech 6 mo. ago. Since then I have had a battery of tests and my neurologist told me "I don't think you had a stroke." I saw the words "Motor Neuron Disease" (I looked it on the web because I never heard of it before) on the script for my EMG. I blame it all on Lipitor and the wasting of the nerves and the muscles. I sound as if I am drunk. No one can understand me . I am taking speech therapy but it doesn't seem to help.

My second trip to this forum. A couple years ago, I developed plantar's fasciitis in both heels and had to give up basketball (at 54), and it took about nine months to recover from that. I had been on Lipitor 10 mg, and, while I can't say there was a cause-effect relationship, I had no problems of this kind before then.

Well, I continued on the Lipitor, and this past fall got horrible impingement pain in one shoulder that evolved to a frozen shoulder (adhesive capsulitis). Tonight I did a quick google search on this and it led me back to this site. Again, I cannot PROVE anything, but I've NEVER had any trouble with joints and just have to wonder.

I read on one link that Frozen Shoulder is on the rise, and wonder if Statin use is possibly behind it. I'm at the point that I may go off these drugs and go hard core Atkins diet again, the only thing that got the excess 30 pounds I'm carrying off, and also gave me "textbook" numbers on my lipid profile.

I'm starting to think this drug is possibly the problem. It's not worth it to take a debilitating and crippling substance just to be able to eat whatever I want.

I have been on 10 MG of Lipitor for almost 3 years. Since I began taking it I have had recurring issues with an anxious feelings, my lower GI is constantly churning and I feel like I am stressed out. I have a low stress job, a stable happy family life and yet I feel nervous all the time. I sleep for 3-4 hours and then wake up and am unable to get back to sleep. I have been forced to take a nap ever day after lunch just to get through the day. Additionally, I developed tremors in my hands and was diagnosed with something called Benign Essential Tremor and put on another medication to control the shaking.

Yesterday I decided I had enough of this and went to see my cardiologist to discuss the symptoms. I stopped taking the Lipitor on my own 2 days before. The doctor told me that none of my symptoms were related to Lipitor! I replied that I was convinced that they were all in fact caused by this drug. He suggested I stop taking the statin for 2 weeks and see if the symptoms stop. I am now on day 4 without lipitor and am already feeling less anxious.

I went to the Nuerologist 2 weeks ago and got her to discontinue the anti-tremor medication. I am going to get all this crap out of my system and hopefully get my life back.

My cholesterol was 360 combined when my doctor put me on lipitor and I am only 25 years old. I had all sorts of side effects but dizziness was the worst. I went to ER because of it and doctor in the ER told me how lipitor does not cause dizziness. We all sure don't agree with that right?! The worst is that my cholesterol did not reduce much at all. After researching more about cholesterol I started taking red yeast rice and took that for 6 months and my cholesterol dropped down to 230. It is very important to take good red yeast rice because if you get cheap brand it won't do you any good. I got the brand called "NOW" ( u can get it online) and I wanted to share my experience with everyone else because I was able to reduce my cholesterol down to normal levels so fast without any side effects ! Now I am 30 and my cholesterol is 213 and just to mention it did not go back up once it reduced when I was 25 and i stopped taking red yeast rice after only 8 months. I also did not change my eating habits. I am thinking I should take it again for few months to get my cholesterol down to 170 range but I am not worried about it too much since It already so much lower than when I was 25 and it's not going back up. Another thing I thought was so great... When I went back to my primary doctor to have my cholesterol checked out after taking red yeast rice, when she saw how much my cholesterol dropped down in only 8 months she asked me to write down the name of the stuff I used so she can have her father use it too because Lipitor didn't reduce his cholesterol down significantly either !! I hope you guys will give it a chance for at least 6 months. My father is taking it now and he can't believe how much his cholesterol is reducing.

Hi . I am a 69yr old male. My doctor has recently increased my Lipitor from 20 to 40mg. My cholesterol reading was 3.6 which he considered to high after a quad bypass. I am suffering painful cramps down the front of both lower legs as well as cramps down the back of my lower right leg. I plan to revert to 20mg to see if the cramps stop. I am not sure if I should stop completely.

I was on Lipitor 20 mg also for about a year. During that time I experienced breathing problems and muscle aches. The Doctor told me to take Co Q10 which helped w/ the muscle aches. But I ended up cutting the pills in half, to help w/breathing a lot. When I told my my Doc that-she said go back up to full dose, I tried for 3 days and was so short of breath I couldn't walk up a flight of stairs.
I stopped and went out and got a $129 heart scan instead. The insurance co. won't pay for it, but the 129 will be made up in three months of not buying this horrid pill. I've since rec. two letters from Lipitor saying they noticed I'm not taking my pills as prescribed.....nice

I am a 52 year old male.8 years ago I had a heart attack.2 stents were put in.I have been on lipitor for the past 8 years.I was on 80 mg. for years,cholesterol got so low the Doctor reduced it to 40 mg.I lived with minor soreness,thinking it was age,arthritis,and a side effect of my very physical job.3 weeks ago joint pain started getting worse! Knee, hips,and especially the shoulders.It got to the point I could hardly crawl out of bed.Feb.20 called the doctor and he told me to stop the lipitor immediately! Today Feb. 24 pain is way less already.I wonder now about long term damage to muscles and joints! I am supposed to call him at the end of the week,very curious about what the conversation will be like. I do not plan to go back on the lipitor especially after reading this web-site.Thanks

I am a 65-year-old female. I was given Lipitor 10mg in Feb 07, which I appeared to tolerate, with the effect of reducing my high familial cholesterol. Because of a genetic enzyme problem, I am careful about my diet; having been a vegetarian for decades. I don’t smoke, and rarely have wine. By May that year my GP increased the dose to 20mg., but days later I was sent to A + E with cardiac concerns. The hospital adamant it had nothing to do with Lipitor.

By mid 2008 I told my GP of dizzy spells, and loss of balance, also swallowing difficulties, but after liver function tests I was reassured it couldn’t possibly be Lipitor.

Early October 08, saw me in hospital with a ‘stroke’, although the CAT scan and MRI were puzzling. I was sent home with no help or guidance after the Consultant insisted Lipitor was not a problem, and I should not reduce it, as it was already a very low dose. Unable to walk to the end of my street, my calf muscles feeling as though I’d run a marathon, and experiencing cardiac stress. Severe neck and shoulder pains, and confusion with words. Frequent muscle spasms in my feet, legs and hands, etc. etc. No energy for anything, and so difficult coping - living alone. End of Dec. a friend from out of town visited, and was alarmed, as she’d researched a web site for her brother, who was using a walking frame. I was astounded at the reports from users of Lipitor, so many suffering in the same way. Although my GP had arranged more laboratory tests for me, I was not prepared to wait.

On 6th January 2009, (almost 2 years later) I reduced my dosage to 10mg., and within days was experiencing improvement in many areas. By 17th January, I reduced to 5mg., (maybe a little hasty) and by 24th stopped it. By 28th my GP could see for himself, the considerable improvement generally, with a lower blood pressure reading.

By then, I could complete half, of what used to be my regular walking regime. To date, I am able to cover more than that, and hope I will eventually be able to cover the full distance. I’m hoping there will be no lasting damage, but am so thankful that my friend found this website. Its scary to think I had no quality of life, and doubt I would have survived more Lipitor. So I’m taking my chances with high cholesterol, and a near normal life.

M.

New Zealand

I read with interest several of the posts here. I have been on Lipitor for about 5 years. I have been experiencing leg pain, back pain, neck, and hand pain for likely 4 of the last 5 years. I have arthritis, I thought. Two weeks ago I ran out of Lipitor. I read several other forums where Vitamin C and Omega 3 were suggested as a possibles to replacing the Lipitor along with generous amounts of water. I said, What the hell, I will give that a try. Within days of stopping the Lipitor, most all the pain has subsided to the extent that I have not had to take any other Pain management medications at all. I was prescribed Perocet for the pain I have been experiencing. Two weeks ago, I had a tough time opening a bottle of soda, or even a relish or pickle jar. Today I can! Coincidence, I think not!!