November 6th
2009
9:51 AM
Dizziness, back ache, severe hip and shoulder pain, transient global amnesia, after discontinued taking of Lipitor, speech problems, loss of words.
-- By smart44 | Reply | (3) replies | Private Message me
October 19th
2009
2:23 PM
I am a 52 year old female and my bad cholesterol is fine but my good cholesterol is low. I have been taking Lipitor now for a few years and have numb hands and feet to the elbows and knees. My feet are extremely sensitive, worse at night and now I'm getting sharp pains that feel like a bug just bit me. My tongue is also always numb and I do get migraines.I have insane stomach issues and food intolerance. I also take medication for high blood pressure, acid reflux, & thyroid. I have now been diagnosed with type 2 Diabetes but control that with diet so far. Until four years ago I had nothing wrong with me. I am slim and healthy. I had a lump in my thyroid which was removed and there was a trace of cancer. Then like dominos all the other conditions lined up. I have had MRIs and all the tests and doctors insist that I am not a severe enough diabetic to have neuropathy. I can hardly wear shoes now and it hurts when I wear runners while I walk and exercise. Does any of this sound familiar to anyone? I hate that my health has become so much a part of my daily life. Does anyone have neuropathy as a result of Lipitor and am I even taking the the right medication since I don't have high cholesterol?
-- By heatherdiane | Reply | (5) replies | Private Message me
October 13th
2009
8:47 PM
I am a generally active and fairly healthy 77 yr old who had been taking 10 mg of Lipitor for over 12 years with no obvious adverse effects. Recently I started having pain in my right leg, severe enough to wake me at night. This was followed by a significant weakness in both legs, and for a while, accompanied by a lightheartedness. The doctor had me take a series of lumbar and leg x-rays which didn't show much of significance. He wrote a prescription for physical therapy, which I did not follow.
I did internet research on my own which made me aware that Lipitor could be the cause, in spite of the fact that I had tolerating the drug for so many years. I told the Doctor of my suspicions and we agree to stop the Lipitor for at least 6 weeks to see. A few days later, all my symptoms were gone. So be cautious, adverse effects from Lipitor can occur anytime.
October 4th
2009
12:03 PM
Loss of appetite and change in taste. I haven't eaten a meal since about 26th March 2009. I have a sweet, sickly taste and I can only eat cornflakes or crisps. Cups of tea don't taste like tea and I try and taste different foods each day but still can't eat anything other than cornflakes and crisps.
They have ruined my life and I have been told it could take 12/18 months so I have another 12 months to go. I don't think I can do it!!.
I would love to hear from people who have had this problem.
-- By rondoro | Reply | (1) replies | Private Message me
October 3th
2009
9:11 PM
Well I have been on Lipitor 80mg for years (family history of high cholesterol) although no hearts attacks/strokes ever been attributed to the h/chol....without sounding like I'm a hypo I have 3 disk out in my lower back & years ago suffered intense back as a result...the pain which seems to be now all over is horrid ...I have been thinking that it was perhaps arthritis & old age (59yrs).....several months ago I mentioned it to doctor he said Lipitor could cause side effects but he'd keep an eye on it....well this morning after googling "Lipitor" iv'e made a decision & that is to get rid of this medication...everything I'm reading sounds just like what I have been experiencing...thanks for the input I think I have come to realize that it is the medication that is causing all my problems.
-- By perfectpol | Reply | (1) replies | Private Message me
September 22th
2009
10:22 PM
I have been on LIPITOR for years 10mg. at least 8years my doctor told me as long as my blood tests were normal "I had nothing too worry about" through the years I had so many health problems,along with so many tests I thought this pain was normal.My pain was gradually getting worse I started to think this pain has to be because of my age.I'm 67yrs old. Last week I had an appointment with one of many Drs. I mentioned that I felt more pain than usual when I told him I was taking Lipitor he was concerned I was told this medication I should stop but it was up to me if I wanted too or not. I had an appointment with another doctor the same day to found out the results of all my blood tests. I was pleased that all my blood were within normal range but there was the blood test for muscle enzyme,CPK was mildly elevated. I was told that Lipitor could make that test elevated. I had another test that that day and was called and was told that that blood test was elevated a little more.I have been off Lipitor for one week now and never going back to taking Lipitor again. I'm so glad I found out about Lipitor and the damage it could do to your health. I'm also grateful for finding this sight by accident. I hope one day I will feel better also I'm not going back to the Dr. that started me on Lipitor and wanted me to stay on it!
-- By kavaa | Reply | (1) replies | Private Message me
September 22th
2009
11:58 AM
After several attempts to lower my cholesterol, my doctor has settled on 40 mg of Lipitor, but, after reading these comments, I'm going to self-medicate and work my way off the drug completely. My main complaint is the fatigue and brain fog others have experienced. I do have a shoulder that has developed pain and weakness, and my legs don't seem to be as strong as they used to be, but it's the fatigue and memory/cognitive slowness that concern me the most. Also, like others, I assumed it was normal aging (I'm 58 and have been on statins for about eight years). I'll report my results after getting this stuff out of my system. Good luck to everyone going through this...we're not crazy after all, huh?
-- By blueridgeannie | Reply | (2) replies | Private Message me
September 15th
2009
8:55 PM
I have been taking Lipitor for about 6 years suddenly developed a rash on my shoulders and chest. My doctor diagnosed SCABIES!!so I treated myself for that then the rash progressed so I had a biopsy done and after 3 months of agony my slin specialist had taken me off Lipitor as theh test showed a reaction to a drug. I am still itchy prickly and burning on arms legs and hands and cannot tolerate cortisone cream so am on tablets for a week..can anyone relate to this condition? My scalp is also very dry and scaly.
-- By kathybrian50 | Reply | (3) replies | Private Message me
September 2th
2009
4:19 PM
Now it makes sense why doctors were so eager to prescribe Lipitor. Pfizer has been hit with a 2.3 billion penalty for illegal marketing promotions of 13 drugs that includes LIPITOR. They were awarding doctors free golf, massages, and resort junkets for "pushing" Lipitor, Viagra, Zoloft and 9 other drugs.
-- By innerpeacedesigns | Reply | (6) replies | Private Message me
August 7th
2009
4:29 AM
CRIMINAL NEGLIGENCE COMPLAINT FILED. I copped the worse of everything and almost croaked with statins. 20 months since stopping the poison, I'm still not right but vastly improved. Medsafe in New Zealand twice posted to prescribes ".. . . warn the patient of muscle pain and if muscle pain or weakness occurs cease the medicine immediately ... "they also warned prescribes "20% of adverse reactions being reported included mental disorder including violence and anger .... "Apart from all my pain, I suffered severe mental disorder and violence to others. I repeatedly presented painful muscle cramps to the doctor, who repeatedly told me age, arthritis, salt in diet etc. I went to my doctor frightened at the nasty way I was treating my wife of 30+ years, telling him it was so bad one of us was going to have to move out until the problem was sorted. he was sympathetic and told me none of his patients had said this to him before, probably true, but Medsafe had. Today in writing I hand delivered a written complaint of criminal negligence to our police and the New Zealand medical council, the doctor ignored clear written instructions putting my life at risk and those around me with my violence and dangerous driving, heres hoping others may be saved. There is a new report out from JACC journal of American cardiology stating the wonderful strengthing and healing power of fish oil, google it. We personally know of about 20 customers, friends and family who have been poisoned, a couple have indicated they will consider following and laying criminal negligence charges.Saturday afternoons are visiting days for prisons in New Zealand if the after hours doctors are closed. I'll post when I hear from the police. This very dangerous practice has to be stopped for the sake of humanity.
-- By oldcarpetcleaner | Reply | (1) replies | Private Message me
August 4th
2009
4:31 PM
1 minor heart attack 5 stents placed over past 6 years thru 4 angio episodes. each hospitalization plavix and statins prescribed each time the side effects started within 2-3 weeks, some times sooner . same crap as most...serious leg fatigue, joint pain, skin is tender to touch. But my FAVORITES are the chest/heart pain that mimic heart attack 'feelings' and the 3AM sweat and anxiety/panic attacks.......3 different statins all the same results symptoms
so intense that i have been admitted 3 times for heart cath, ALL false alarms
S-O-O-O DOC what the hell is going on????? ANSWER: must be reflux, must be stress, must be ANYTHING BUT THE STATINS!!!! each time i quit the statins soon after rehospitalization and each time the symptoms went away......last episode was Friday July 31st. i was really bad....constant chest pain and pressure, legs so fatigued that 1 flight of stairs felt like 10 ...shortness of breath...body aches like you feel when first getting the flu etc. etc you guys all know the crap
they rushed me in to the Cath Lab....nothing wrong...must be stress!! must be reflux!!! bullshit. I quit the Lipitor that day
Today is Tuesday.....I am WAY BETTER each time the same thing, on the statins ...feel like crap, get off the statins and feel almost normal within a week
I will NEVER take a statin again
I am lucky that I have been recovering quickly
August 4th
2009
12:51 PM
statins are poison...bring back oat bran with niacin...the big drug manufacturers killed it...it is more effective than all the statins in the world...the big drug manufacturers are killing us slowly...
-- By jgc711 | Reply | (2) replies | Private Message me
July 27th
2009
4:38 PM
I was taking Lipitor about 15 years ago, and it worked great...My cholesterol went from total: 240, HCL 65 to total 60, HCL 6, yes 6. It has been 15 years and I can not get my HCL past about 25. This stuff is poison!
If that was the only problem I ever had, then no big deal...right...My muscles were destroyed! My CPK reading was almost 2000 and I ached constantly. Nobody should take this garbage, it is pure poison.
July 14th
2009
1:28 PM
Cholesterol slightly elevated Dr. recommended 10mg dosage. Began experiencing neck and shoulder pain, dizziness, nausea, foot stiffness and leg numbness up to the lower thigh. Voluntarily stopped the medication after four months. All noticed side effects disappeared except for the foot stiffness and leg numbness. It has been 2 1/2 years and these remaining side effects are constant. Not optimistic for recovery. Anyone else with similar symptoms?
-- By ter204 | Reply | (6) replies | Private Message me
July 13th
2009
10:30 PM
I want to ask a question. My mom takes Lipitor and just started Vit b . is there side effects to be expected? She just started a new bottle of Lipitor and is exper. dizziness. is this a side effect of one or the other?
-- By fishstix | Reply | (6) replies | Private Message me
July 13th
2009
12:53 PM
I started feeling much better very quickly after being off Lipitor now 7 months. However, the symptoms I had using the RX has cause significant problems. I fell so many times with my weak joints and muscles, that I had severe problems. I now need to have knee replacement surgery after falling so many times injuring my knees and weakened muscles to support myself. I am getting cortisone shots in that knee, as well as physical therapy. My MRI shows a torn meniscus, stretch PCL very thin, cartlidge loss and debris, still swollen with csyt after all these months. With no meds, and lack of being able to exercise, I now have hig-chol back. On and on it goes.... a real catch 22. Take care of yourself, watch out for symptoms. I ignored sx's thinking it was stress but after reading adverse reactions, it fit me to the T.
My original posting re: Lipitor is Forestseaski on Jan. 2, 2009
C.
-- By forestseaski | Reply | (3) replies | Private Message me
July 4th
2009
7:03 PM
I have been on Lipitor for almost 5 years. I started with a low dose of 10mg for 3 years but my cholesterol did not come down significantly enough so the dose was increased to 20mgs two years ago. I have noticed my hair thinning almost immediately after being put on Lipitor but when the dose was increased the hair started falling out where now it is noticeable, at the front along the hairline, on top and at temples. It has become another problem, at this point, like having high cholesterol. It seems to be happening now at an accelerated rate and my scalp is visible from my hairline 3 inches back. Styling is now impossible without coming the hair all the way forward from the crown, what's left of it. I had no idea hair loss was a symptom of Lipitor until I thought about when it started and the fact I take no other medications. There is no history of this type of hair loss in my family. The Lipitor brought my cholesterol level down to preferred levels but if I stay on it much longer I will be bald on the top and sides of my head. I'm worried it won't grow back.
-- By pollyanna | Reply | (4) replies | Private Message me
June 26th
2009
10:49 AM
I truly think my rheumatoid arthritis was the result of taking lipitor. Didn't have any symptoms before taking Lipitor but while on it woke up one day and could barely walk. Doctor immediately took me off of it and I saw significant improvement but still have the disease and its painful effects
-- By eileenpatrice | Reply | (5) replies | Private Message me
June 23th
2009
3:32 PM
MAY 29th, i had a heart cath done. while on the table i had 5-7 sec MI.
was put in MICU, rest of that day and night. moved to heart ward, was put on 24 hour telemetry for 2 days. was started on LIPITOR. had never taken it prior to then.
as of April 8th, i had made a radical diet change, from a lacto/ovo vegetarian, to a "south beach"/modified Atkins NO CARB DIET.
in the period from apr 8th to may 29th, i had dropped 16 pound. i have a bad back, and with the added pounds i packed on, made walking a choir.
with the weight loss, i was walking a lot better. THEN May 29th, LIPITOR was added ............and within 2 weeks, i was having leg weakness, when standing i would feel like my legs couldn't hold me up, walking was now harder then when i had the extra 16 pounds.
sooooo....as of June 14th, I STOPPED TAKING IT!!!!! within days i felt more energetic, and could work a few hours a day. had an appointment with cardiologist June 19th, told him of problems, and that i had stopped taking lipitor. he agreed with me, said to stay on the diet, exercise more, and give it another 6 weeks and then we will check progress.
he did not prescribe any replacement for the LIPITOR. but i have been herbal and homeopathic savvy for a long time so i will continue the OMEGA-3 fish oil, 4 capsules a day, and 4 GARLIC a day.
i mihgt have to add some MILK THISTLE for the liver, if the LIPITOR did any damage.
my diet change if anyone is interested is, chicken, turkey, fish for meats, no hamburgers, or steaks or pork ribs. i STILL do a ton of
VEGGIES, mostly COMPLEX CARBS, lettuce, broccoli, spinach, tomatoes, cukes, zukes, summer squash, and have found a wonderful substitute for PASTA, and its SPAGHETTI SQUASH. split it, microwave 10 min, let stand for 5 min, then take a fork and strip out the meat of the squash, cover with PASTA SAUCE as you would make for PASTA. awesome.
June 22th
2009
8:35 PM
I've been taking Lipitor 40 mg. for over a year. A few months after, I started to notice my ankles were swelling a little bit. I attributed it to the warmer summer weather in Florida. It continued through the winter along with pins & needles on my soles and heels, and my doctor said it wasn't caused by Lipitor. After a 10 hr. flight to Europe in May, my ankles & feet were extremely swollen and painful. It hurt to just touch my ankles and feet. Even my toes were swollen. Bought compression stockings but it did not help. Walking on cobblestones was unbearable. I took my last Lipitor pill on May 30th.
Ankle pain is gone and the swelling has reduced a little but the pins & needles feeling is still here. Ankles look good in the a.m. but as the day progresses, the swelling increases. I don't know what to think! My only choice, I feel, is to wait it out and hope the swelling & tingling goes away. Anyone else with these side effects?
May 27th
2009
6:02 PM
Was on Lipitor 2 years ago and had to come off because of side effects - sever muscle pain.. Prescribed Niaspan instead .. 2 months ago my cholesterol rose to 7.1 and my doc put me straight back on Lipitor - 10mg.. Feeling lousy - neck pain, leg pain, dizziness, fatigue ... head feels fuzzy all the time and get sudden twinges in my chest.. Had stress test done last week and all ok.. Also have severe digestive problems. Going to wait until 2 full months done and going to get bloods done again
-- By filly | Reply | (4) replies | Private Message me
May 27th
2009
3:40 AM
Well it has been 10 days since I stopped taking Lipitor. I am now sleeping 7 to 9 hrs straight - headaches gone - not as moody as I used to be - better concentration at work and huge improvement in short term memory. I forgot to metion that my doctor put me on 40mg hence it didn't take long for the side effects to start. I saw my Doctor and explained that I was off the Lipitor and told him why. He is keeping an eye on me and I will keep you all updated.
cheers from Down Under.
Goose
May 23th
2009
1:06 PM
I have been taking 40mg lipitor for over 9 years now.
I have had back issues since an injury to one disc (L4?), and had microdiscectomy in 2001? Took about two years to actually get close to normal.
The last few years, I have had multiple issues with shoulder pain, wrist pain, elbow pain, lower back pain, Upper rump muscle pain , and now both hips are killing me (the shoulder, upper rump muscles and hips are by far the worst). And I am now so weak in my lower back muscles, that it feels like I will (and do) pull out my back.
I have seen NO many doctors I can't even name them all. I have had operations, multiple injections (cortisone) taken pain meds, etc. Nothing has helped and in the last year and a half, I have gotten steadily worse. To the point where I can't really do much of any activity. Sleeping at night is painful. Can't lie on left shoulder, and can't lie on either hip for more than a few minutes. If I fall asleep on my side, the pain wakes me up. When I try to walk, 80% of the time, I end up with a pain in my upper right rump (sacroiliac area), that I MUST sit down to get the intense pain to go away, which it does. But comes right back when I walk again.
I have had x-rays, MRIs etc, and never reveals all that much. Disc issues, yes. NOt much else.
Recently, I have begun to get a nasty clicking (catching) on my left jaw (joint?). Not really painful, but something definitely wrong. My dentist sent me to his Chiro. I went and liked him right away. I had gone to another chiro for years and I believe in them. But this one is the best I have seen.
Anyway, one of the FIRST things he suggested, was that it was POSSIBLE that the Lipitor is causing all of my problems. Put me on COQ10, and doing multiple adjustments and treatments. I will be seeing my regular doctor 5/26, and my chiro wants me to see if he will take me off lipitor and put me on Niaspan instead.
I guess my question is: Can Lipitor be fine with me for so long, and then in such a short period of time, turn me into a compete wreck from the pain and wasting away of my body/muscles? I've told doctors for over a year now that there is SOME connection as to all these issues and pain. One Doctor, of course, gave me the "you are getting old" bull. Yes, I am 56 yrs old. But I understand the process of getting old, vs the complete failing of ones body.
Also, IF it is the Lipitor, can it possible all go away? Or should I expect some damage forever?
One more thing, the last ortho I went to the other day for a second opinion, wants me to do a EMG, to see if there is muscle damage. I was not planning on doing it, but wonder now, should I? He was not doing it because of lipitor, as he never even talked about that to me. I had shoulder operation and have not had the results I feel I should have had.
-- By stephenzi | Reply | (8) replies | Private Message me
May 22th
2009
2:43 PM
Less than 2 months after taking Lipitor I have been experiencing intense weakness of the legs, especially the hip area. A normally avid walker, last week really woke me up when I was unable to walk over 40 feet without having to stop from sheer leg exhaustion. I'd have to actually lean on my partner until I could manage to shuffle again- a shuffling gait is what I had to resort to just to make it back to the car.
This is bullshit because even though I've had some angina symptoms, right up until I went to the hospital I was able to hike; was still relatively strong.
So today I have spent hours researching side effects and have seen on this site alone many mentions of intense leg weakness and pain with Lipitor.
This, along with simultaneously educating myself on the truth about high cholesterol has convinced me to gradually cease taking this medication.
Instead I will replace with sufficient quantities of VitC, buckwheat combined with gingko, and of course I can never stop with the garlic because it is delicious.
-- By oceanfloats | Reply | (9) replies | Private Message me
May 19th
2009
10:12 PM
Well here is an update from my last post of April 23, 2009.
I am now free from all the headaches, chest pain vertigo almost gone, legs are great, breathing is 100%. So I am still off of Lipitor, and I will stay off.
I have done a tremendous amount of looking online about these satin drugs, and as far as I am concern they are poison for me. Maybe they are good for some I don't know, but not me.
Thank you God for listing to my friends in New York about this stuff, I will not be a guinia pig for any drug company anymore.
God Bless,
L. B., Maine
May 17th
2009
11:17 AM
Can anyone tell me if you can just stop Lipitor cold turkey or do you have to stop it slowly? I have been taking Lipitor for 5 years now and I have been trying to find out what is causing my leg weakness. I mentioned it to my doctor who said it si just a fact of getting older. The problem is getting worse and I noticed it started about 3 months after taking the Lipitor and has steadily gotten worse. I am 49 years old a little over weight {which I am working on}. I also noticed my asthma which I haven't delt with since a small child has come back. This may or may not have to do with the Lipitor but the pain in my knees and legs I believe do. It really hurts in the joints of my legs and sometimes in my shoulder area.
-- By ggcajun | Reply | (12) replies | Private Message me
May 17th
2009
5:55 AM
What a rotten drug. The past seven months have been hell for me. I am 42 years of age and put on this crap last November. I have suffered from bad headaches, leg cramps, Insomnia, Plantar Fasciitis, mood swings and the list goes on. After seeing this site and all your responses I believe the best thing to do is get of the crap. I will write in 2 weeks to give an update.
cheers from Down Under
May 4th
2009
1:31 AM
I am 20 year old female and have a bad family history of high cholesterol, iv been taking 40mg/day of lipitor for nearly 2 months.
-- By get_justine | Reply | (8) replies | Private Message me
May 2th
2009
2:59 PM
My husband, a 55 year old diabetic who is currently on dialysis was initially prescribed 20 mg Lipitor about 5 years ago. He began experiencing leg pains, but continued to take the drug. In May 2007 in suffered a minor stroke (clot). Upon release from the hospital, the neurologist prescribed an 80 mg dose claiming studies showed those who have had a stroke benefit from the higher dosage. He recovered from the stroke and was able to return to work in August 2007. On December 31, 2007 he suffered another stroke, however this time it was a full blown cerebral hemorrhage. After he suffered this stroke, I searched Lipitor on the web and to my surprise found an article that stated the higher dosage of Lipitor could cause brain bleeds in people who have suffered a prior stroke. I truly believe this high dosage of Lipitor was the cause, however the neurologist and his regular doctor say no. Of course they would say that, since they are the ones who put him on it in the first place. They blame it on the fact that he has other health issues, however he has been on dialysis since the beginning of 2004 and was able to work and function normally. Needless to say, when he was released from the hospital, Lipitor was no longer one of his prescribed medications. They wanted to prescribe a low dose statin of a different brand, but his cholesterol levels have been excellent without them and I won't let him take another statin. The damage is done, he has difficulty walking, has lost his balance and was forced to go on permanent disbility. He was an active volunteer fire fighter for 35+ years and the fact that he can no longer do all the things he use to do depresses him.
-- By angw | Reply | (2) replies | Private Message me
April 27th
2009
11:47 PM
I am 51 and very athletic and in admiral shape. 3 months ago, I began on Lipitor for cholesterol control. I just tore a calf muscle. Coincidence? I'm going off Lipitor until I know for sure. At the time of the muscle tear, myself and my muscles were warmed up. I didn't do anything harsh to provoke a tear. That's what scares me. It just went rip.
-- By biller | Reply | (2) replies | Private Message me
April 23th
2009
5:21 PM
I was put on Lipitor 10mg 2 weeks ago after my bloodwork from my yearly physical came back that my cholesterol went up again. Levels are HDL 61 LDL 176. After the first week I called my MD to advise that I was having chest pain and muscle pain in my legs and forearm. He said to cut the dose in half which I did last Thursday. Yesterday all of a sudden I had heart flutters the entire day! I am a 43 female who goes to the gym 3 times a week doing 30 minutes of cardio and weights. I eat right and overall I am in great shape except having high cholesterol. My blood pressure is great, had a stress test and echo last year both negative for any problems. I called my doctor today and advise that I was still having fluttering in my chest and that I am stopping the Lipitor. What good is being on a medicine that helps with one problem but then causes others that you may need more medication for???
I have been feeling like crap ever since being put on Lipitor and I believe that it is the medication that is giving me the problems. Last year my MD put me on Zocor and I stopped that after having the muscle pains. I am now hoping that things will get back to normal and I plan on telling my doctor that these "statin' medicines are not for me and there has to be something else.
April 23th
2009
11:11 AM
I started Lipitor 2 months ago, today is April 23, 2009.
1 month ago I started with Vertigo, doctors have tried many things to get rid of it but can't.
! week ago I started having trouble breathing, talking very short walks, problems still with vertigo, pain (headaches) on my left side, and I never have had headaches, pain in my neck left of the c-7 vertebrae.
Now 2 days ago I have problems swallowing food in the center of my chest, it really hurts, so now I am on an ice cream diet to figure things out.
I went to my doctor yesterday due to all my problems, which are all new in the past 7 weeks, and she did an x-ray, and blood work thinking I had a blood clot in my lungs.
At 6:30 pm last night 4-22-2009 she called me to go to the emergency room and have a cat scan done, and the results were I am loaded with lip-nodes in my chest and arm pits, and it look like cancer, so I have an appointment today at 2:00 pm to see what the plan of attack is.
God Bless,
L. G.
Biddeford, Maine
******
-- By lennygauba | Reply | (1) replies | Private Message me
April 21th
2009
2:26 PM
64 old male on the drug 10mg for several years, depression, cramps, back pain, foot pain. After talking with a retired Heart Surgeon he convinced me to stop taking Lipitor. Now I see I never should have taken the drug and it tells me how stupid I was not to research it more. The side affects from stopping have caused me some concern and I hope they will be gone in time.
-- By bartjb3 | Reply | (3) replies | Private Message me
April 19th
2009
2:04 AM
I to was put on Lipitor 20mg. took it about 1 month and had such pain in my leg muscles I couldn't hardly walk . I went to my doctor he said go off it and I should start Zocor in . A month the pain was worse I couldn't even walk around the mall . I couldn't sleep at night the pain was terrible. Once again I told the doctor he said stop it and we will wait 6 weeks and start Crestor. In six weeks the pain should be gone. It didn't go away I could hardly walk at my job teaching at a Pre School. The pain unreal.I have type 2 diabetes under control for years. Still is.I was told I had arthritis. But now they tell me I have spinal stenosis. I'm on paxil for the depression they said I had and. I feel as bad now as I did 4 years ago when I was on statins. I can hardly walk, my life is pain in my muscles that never leaves and now my back. I was active and watched my weight and walked 3 miles a day. Since taking these meds. I can no longer work, go shopping or go anyplace I have to walk . I have gained a lot of weight . I have something wrong with my knee .I have tried to explain this to 3 doctors and no one listens to me. My health turned for the worse when I started taking Lipitor in 2005. I don't think I'll ever get my life back I am only 58 years old and can't work to support myself.I can't even hold my 1 month old grandson and walk or lift him from his bed. Reading all your messages . I know my health going down like this is from the statin drugs I took . When I sit , I can't walk when I stand Then .I gotta sit in 5 to 10 minutes.And the pain in my knee has progressed. No doctor wants to hear my story and believe me. Thank God I found this web site and read this for my self now I know I'm not crazy. How can I get myself better ? Will I live the rest of my life in pain, and not able to function.Every time I see a doctor they give me another pill to take. I want to just throw them all away .There must to be an answer to this.
-- By dar2920 | Reply | (5) replies | Private Message me
April 14th
2009
9:33 PM
I get these painful cramps in both legs the back of my legs above my
calf muscles. They always come after midnight when I am asleep. i
get up and I have to walk 30 minutes or more until they stop,and for
two days my legs are sore.
April 10th
2009
6:17 AM
I am generally classed as an active, happy and positive person, loving life.... but the last 4 months have been a blinking nightmare....
It seems we all pretty much have the same symptoms, horrid shoulder pain, muscle soreness, spasms, feet and generally feeling like "what the??" is where we are all at..horrid thoughts of MS? Motor Neurons, Parkinsons, etc. all sorts of possible sinister problems.
I too have stopped taking Lipitor only a week ago (and I only started back in October 2008 after "arguing with my doctor for many years not wanting to take it...and i didn't even know about the horror side effects, i just thought it was totally unnatural to strip the body of something almost totally,).. within 2 months I started showing signs of chronic neck C5/6/7 and left shoulder. Maybe I had injured myself once before and suffered pinched nerves, but the pain eventually went, but this is not normal or should I say usual...... I have constant buzzing of left thumb/forefinger and hand and my right leg. NEVER NEVER have I suffered from this type of symptom before in my entire 50 years... Even some days when the spasms are at their worst I get an itchy nose and tingling lips. The scariest symptom of a white flash in my left eye convinced me...So fed up with it and after stumbling on all the negative comments and side effects with this drug I made to decision to take control of my own life. It is too uncanny....As I said, it's only a week now free of Lipitor, I have increased my Vitamin C intake and making sure I take a Mega Multivitamin daily too. There is some interesting reading in various websites of Vitamin C vs Statins...
BUT it would really be nice to read any comments of people who have recovered from these rotten symptoms and what sort of time frame it took to get over them. Is there a light at the end of the tunnel for us all. Some indication of Recovery period is probably our greatest "want to know"... and also...when will i be able to enjoy cycling again. Thank you to everyone for the input and may our strength be returned, not only physically but spiritually as well. :-)
-- By dc0462 | Reply | (4) replies | Private Message me
March 25th
2009
10:24 AM
I have been off Lipitor for 2 weeks now. I still have slurred speech. My tongue is moving to beat the band. I have been to 2 neurologists and both have told me that I have "motor neuron disease". This drug is POISON and anyone on it should get off of it. I never had a problem before I started taking this drug. Now I am looking at ALS as a diagnosis. That is awful to think that I might have that. I will find out on April 14th when I go visit my Dr. at Mass General. I will let everyone know what comes out of it.
P.
March 24th
2009
10:00 PM
I am 62 years old and I was taking Lipitor 10 mg for the last 5 years in New York. When I moved to California the new doctor switched to Lipitor 20mg and I started to have strange side effects. After a pause of two days, I restarted and the symptoms were worse: my muscle in the upper arms, and my calves were hurting and week, my back ached, my head was empty nad I felt dizzy all the time.
I stopped two days ago and today I had blood in my urine. What's happening? should I go on any medication at all to lower my cholesterol? My new test was: 179 Cholesterol
HDL 71
LDL 95
I am too scared to start any other drugs like Crstor or Niaspan as I was recommended.
Please advise,
March 23th
2009
11:30 PM
My husband has been taking Lipitor for a year. Several weeks after he started taking it he had muscle aches and when he went for a follow-up we discussed this concern and the neurologist said that it was ok and would go away. He had a stroke several years before and had some damage and he was tired. He complained about him getting weaker and his muscles hurting, he has left shoulder and arm pain. His chest hurts on the right side and doctors told him that he has inflammation between the muscle and chest wall but it has not cleared up after many months and meds. He is so weak now and is dropping things. He has some muscle twitching. I think it is from the Lipitor because the symptoms started after he was put on this drug. Doctor says that it is very unlikely..Has anyone else had these problems while taking Lipitor???
-- By kathy57 | Reply | (3) replies | Private Message me
March 20th
2009
2:32 PM
I have stopped taking Lipitor after 3 yrs. I was told I had a mini-stroke because of my slurred speech 6 mo. ago. Since then I have had a battery of tests and my neurologist told me "I don't think you had a stroke." I saw the words "Motor Neuron Disease" (I looked it on the web because I never heard of it before) on the script for my EMG. I blame it all on Lipitor and the wasting of the nerves and the muscles. I sound as if I am drunk. No one can understand me . I am taking speech therapy but it doesn't seem to help.
-- By ddelrio | Reply | (6) replies | Private Message me
March 17th
2009
12:10 AM
My second trip to this forum. A couple years ago, I developed plantar's fasciitis in both heels and had to give up basketball (at 54), and it took about nine months to recover from that. I had been on Lipitor 10 mg, and, while I can't say there was a cause-effect relationship, I had no problems of this kind before then.
Well, I continued on the Lipitor, and this past fall got horrible impingement pain in one shoulder that evolved to a frozen shoulder (adhesive capsulitis). Tonight I did a quick google search on this and it led me back to this site. Again, I cannot PROVE anything, but I've NEVER had any trouble with joints and just have to wonder.
I read on one link that Frozen Shoulder is on the rise, and wonder if Statin use is possibly behind it. I'm at the point that I may go off these drugs and go hard core Atkins diet again, the only thing that got the excess 30 pounds I'm carrying off, and also gave me "textbook" numbers on my lipid profile.
I'm starting to think this drug is possibly the problem. It's not worth it to take a debilitating and crippling substance just to be able to eat whatever I want.
-- By jbmitch | Reply | (4) replies | Private Message me
March 12th
2009
9:09 PM
At about the time i started to take Lipitor (10 mg) two years ago, I started to experience severe neck pain which I attributed to spending 8 hours bending over y laptop. I went through physiotherapy, and the therapist recommended a cylindrical pillow which proved o be quite effective. However, my biceps tended to be sore when I woke up. Last week I suffered excruciating pain in the right hip joint. My doctor appeared to finally link my problems to Lipitor advised that i stop taking Lipitor immediately. The hip pain subsided within a couple of days, but a vague feeling of fatigue and dizziness persist.
-- By krish | Reply | (2) replies | Private Message me
March 6th
2009
1:37 AM
Hi . I am a 69yr old male. My doctor has recently increased my Lipitor from 20 to 40mg. My cholesterol reading was 3.6 which he considered to high after a quad bypass. I am suffering painful cramps down the front of both lower legs as well as cramps down the back of my lower right leg. I plan to revert to 20mg to see if the cramps stop. I am not sure if I should stop completely.
-- By superdraft | Reply | (5) replies | Private Message me
March 5th
2009
11:26 PM
I took 20 mg. of Lipitor for about 6 months only, severe pain in my right forearm and right bicep, Muscle weakness in both arms, Neck pain developed and pains in my feet. I quit the Lipitor when I read that the muscle damage could become permanent. the pain in my feet continues and I quit taking Lipitor about one year ago. As I walk, the pain eases up and goes away. It is when I am in a resting position and then start to walk. The first few steps really hurt. I also have calf pain. Will this ever end? Is there a way to speed up the healing process? I guess I don't have a lot to complain about but I hate most meds because of these side effects. Thanks for any feedback, Juleeegirl
-- By juleeegirl | Reply | (1) replies | Private Message me
March 3th
2009
1:49 PM
I am a 52 year old male.8 years ago I had a heart attack.2 stents were put in.I have been on lipitor for the past 8 years.I was on 80 mg. for years,cholesterol got so low the Doctor reduced it to 40 mg.I lived with minor soreness,thinking it was age,arthritis,and a side effect of my very physical job.3 weeks ago joint pain started getting worse! Knee, hips,and especially the shoulders.It got to the point I could hardly crawl out of bed.Feb.20 called the doctor and he told me to stop the lipitor immediately! Today Feb. 24 pain is way less already.I wonder now about long term damage to muscles and joints! I am supposed to call him at the end of the week,very curious about what the conversation will be like. I do not plan to go back on the lipitor especially after reading this web-site.Thanks
-- By glenjoseph | Reply | (2) replies | Private Message me
February 23th
2009
11:50 PM
I am a 65-year-old female. I was given Lipitor 10mg in Feb 07, which I appeared to tolerate, with the effect of reducing my high familial cholesterol. Because of a genetic enzyme problem, I am careful about my diet; having been a vegetarian for decades. I don’t smoke, and rarely have wine. By May that year my GP increased the dose to 20mg., but days later I was sent to A + E with cardiac concerns. The hospital adamant it had nothing to do with Lipitor.
By mid 2008 I told my GP of dizzy spells, and loss of balance, also swallowing difficulties, but after liver function tests I was reassured it couldn’t possibly be Lipitor.
Early October 08, saw me in hospital with a ‘stroke’, although the CAT scan and MRI were puzzling. I was sent home with no help or guidance after the Consultant insisted Lipitor was not a problem, and I should not reduce it, as it was already a very low dose. Unable to walk to the end of my street, my calf muscles feeling as though I’d run a marathon, and experiencing cardiac stress. Severe neck and shoulder pains, and confusion with words. Frequent muscle spasms in my feet, legs and hands, etc. etc. No energy for anything, and so difficult coping - living alone. End of Dec. a friend from out of town visited, and was alarmed, as she’d researched a web site for her brother, who was using a walking frame. I was astounded at the reports from users of Lipitor, so many suffering in the same way. Although my GP had arranged more laboratory tests for me, I was not prepared to wait.
On 6th January 2009, (almost 2 years later) I reduced my dosage to 10mg., and within days was experiencing improvement in many areas. By 17th January, I reduced to 5mg., (maybe a little hasty) and by 24th stopped it. By 28th my GP could see for himself, the considerable improvement generally, with a lower blood pressure reading.
By then, I could complete half, of what used to be my regular walking regime. To date, I am able to cover more than that, and hope I will eventually be able to cover the full distance. I’m hoping there will be no lasting damage, but am so thankful that my friend found this website. Its scary to think I had no quality of life, and doubt I would have survived more Lipitor. So I’m taking my chances with high cholesterol, and a near normal life.
M.
New Zealand
-- By wellington | Reply | (4) replies | Private Message me
February 23th
2009
10:58 AM
I am 68yr old female with neuropathy in both feet and it feels like it is traveling up my legs slowly. My fingers are very sensitive and sometimes they itch uncontrollably. My fingernails are brittle and hair loss has subsided since I cut my dosage of lipitor from 60 mg to 40mg. I was also on lisinopril - and quit it about 3 months ago. I have been reduced to a sitting zombie - not able to sleep at night and able to sit for 3 hours every day unable to move - am I doomed to this life because of lipitor?
-- By laramie | Reply | (2) replies | Private Message me
February 10th
2009
12:07 PM
Wow! I must be the latest in a long line of Lipitor users and apparently pain sufferers. I have been on Lipitor for over a year. I am 56 years old, active and healthy (thank God). Around November 2008, I noticed a "twinge" in my left hip while sleeping. This has gotten progressively worse over the months and I thought it was due to arthritis (which runs in my family). But after reading these blogs, I am not so sure. If anyone has anything definitive regarding this, ie: tests, studies, etc., I would really appreciate a point in the right direction for more information. I was thinking (until today) that I was headed for hip surgery or something equally drastic. Now that I have a clue that it may be the Lipitor, I want to investigate further and then, if necessary, change to another medication that won't break me down like this. My heart goes out to anyone that has suffered through hip pain. It is a miserable, painful condition that saps your energy and your desire to even move sometimes. I appreciate any help you can offer. God bless all of you. - L. B. ******
-- By rednael | Reply | (8) replies | Private Message me
February 10th
2009
8:11 AM
UPDATE: It has been 1 year ago that I stopped taking the poison referred to as Lipitor! The good news is I am feeling better. I have lost 25 lbs in the past year by following a low carb - high protein diet. I am practicing some yoga and trying to walk as much as possible. I have more good days than bad but the bad can still be debilitating. My neck pain is managed by a once a month visit to the Chiropractor who uses the pro-adjuster for treatment. Also I have upper body massage 1-2 per month. I simply refuse to let this get me down! Attitude is helpful! When I am having a bad day, the leg tremors return. I must say in the past 6 months, I have only had this happen 3 times. And for that I am grateful. I am trying to analyze the triggers for the leg tremors. So far I believe they are related to stress and exhaustion. When I push myself and do too much. Still not taking any drugs and my cholesterol is 220. I have accepted this and will live a quality life for as long as God allows! For everyone who is having lingering side effects from this horrible drug, hang in there! I have seen improvement but I don't think my muscle structure will ever be as it was so I am trying to accept the bad days and move ahead and really enjoy the good days!!!! God bless you all! Kookoo
-- By kookoo | Reply | (2) replies | Private Message me
November 7th
2009
10:24 PM
I am a 70 year old woman, I have been on 20mg Lipitor for high cholesterol, 200 total and 25mg of Spironolactone for a not so high blood pressure, for 3 1/2 yrs. Oh, my God, the Spironolactone is a potassium sparing diueretic that is very dangerous and has many uses I didn't know about or the terrible side effects, it causes breast cancer. It's also used to treat women who have an over growth of hairiness, or on a higher dose to treat hair loss and I've gone bald on the top of my head! Plus all of the good foods we're supposed to eat for high cholesterol, fruit & veggies one isn't to eat on this drug, because of lot's of potassium, what a huge contradiction. And muscle pains, and rashes, (eczema, atopic dermititis) that I've suffered from both.
-- By dorothy100 | Reply | (5) replies | Private Message meAnyway, Lipitor, had know idea about the side effects until I looked it up on the internet and read these posts on here.
I stopped taking Lipitor last week and Spironolactone 2 days ago.
I had cholesteral test last week too and saw my dr. Wednesday. He said it was okay that I stopped the Lipitor, but not the other one, why not the other one worse then Lipitor and why am I on this strong drug, geez.
The pain and burning started in my hip for no reason, then my ankles with eczema which started soon after Liptior, then my fingers, numbness, can't pick things up, tingling, burning. Then my feet, yes, just like all of you I have these same problems. This is not just coincidental, this is from the drug Lipitor. I get severe joint cramps in my legs, feet and fingers.
For now on before I take any drug I've prescribed I will thoroughly check for side effects and not take it if they're seriously impairing like Lipitor. I feel like a cripple and older then I should feel, I almost just felt like why live anymore if this is how it's going to be.
Since I've stopped Lipitor I feel a little better, I read that it causes permanent muscle and nerve damage though, oh I hope not, I can barely walk anymore or get up out of my chair. This is all drug induced toxicity of my system. Thanks so much everyone who posted for sharing and enlightening all of us who are suffering from this drug and others.
It should be banned along with Baycol, (a statin) which was banned a few months ago because of these same side effects. With the studies that it only helps maybe to prevent heart attack, well I'd rather be able to walk again and hopefully all this will go away, the rash, etc.