Lipitor and reply

Glad I took the time to read the noncommercial posts! During my thyroid check last year bloodwork showed high cholesterol. I was put on Crestor in addition to having my Synthroid dose adjusted. A few weeks later I was absolutely miserable. Couldn't get out of bed. Everything hurt. My doctor thought I was "depressed" and asked if I wanted anti-depressants. Not needing to add another pill to my daily repertoire - I declined. Six weeks later I am feeling worse and just want to lay down and cry. The doctor had no idea why I would be feeling that way and was convinced it was either depression or thyroid issue. I was getting ready to leave for a trip to Mexico that had been planned a year in advance and was non-refundable - and I didn't have the strength to even pack the stupid suitcase. The trip was a bust - I laid in a pool chair just feeling crappy. What a waste!

Funny thing - nobody stopped to consider I've had a thyroid problem for 20 years and this horrid nightmare just started after I started taking Crestor! A few weeks later I stopped the Crestor entirely and after a couple of months I felt back to normal. Now, three years later - I've been talked into taking Lipitor. In my naivety (because I explained to the doctor that Crestor made me ill) I trusted that it would be different. It's taken three weeks for me to put two and two together - but here I am again - muscle aches - can't get out of bed. Everything just hurts. My knees, arms, mostly shoulders and in between. With all that is an overall lethargic feeling. Lipitor stops today -and if the pattern continues and I feel better in a few weeks - it's no statins for me ever again. I'll just have to eat like I'm supposed to and hope for the best!

My doctor started me on Lipitor over a year ago. I started having muscle pain in my shoulders but didn't equate it to the meds until I was watching television one day and a Lipitor commercial came on. It said that some people experience muscle pain.....I thought HALLELUEH THAT'S WHAT IT IS.....I stopped talking the meds and went to see my doctor who immediately changed my meds to Zocor.....guess what? The same thing happened. Went to see her again and she switched to Crestor.....same thing happened....so I started doing my own research and was amazed at what I learned and bewildered as to why my doctor was acting like I was some whining baby.

No problem, I say to myself and stopped the meds. That was last November, in January I had my yearly physical and blood tests were ordered for me in December......guess what.....my triglycerides were still high so my doctor orders Antara. It didn't say "cor" anything so I'm thinking it's not the same stuff. No, it wasn't the same stuff it was WORSE!! Within three weeks I was crying I was in so much pain. I called her and got her nurse practitioner who says that my doctor said to stop taking the pills and the pain will go away. I call back and say, "you don't understand, I can't sleep, I can't move, I can't function the pain is so bad." After several calls back and forth, and let me tell you I NEVER call my doctor unless something is incredibly wrong and that is less than rarely. Well, my doctors partner tells the nurse practioner that they will not prescribe narcotics for me. WHAT? Who asked for narcotics? I needed relief from this pain.....I would have gone for amputation!!!

So I change docs...more blood work.....high triglycerides, I refuse to take any statins. She says she has something for me that will not cause muscle pain and hands me samples of Welchol.....this one took less than a week for increased muscle pain...again I wanted to trust, but guess what i learned when I went to the Welchol site? The first side effect listed? Muscle pain.

Called the new doctors office to let them know that I was experiencing pain again and was told to stop the Welchol (which I had already done) and take Red Yeast Rice and have bloodwork done in 3 to 6 months and come back to see her. Oh no! Not without research and guess what? A side effect of Red Yeast Rice? Muscle pain.

It has been 4 months since I stopped taking the Antara and took Welchol for a week in that 4 months. Sometimes my shoulders/neck and arms don't hurt too much. Unfortunately most times they do. Both doctors insist that the pain cannot be from the drugs because the drugs have left my body. The new doctor said I probably have myolgia just because I'm 52 and that it's just a coincidence that it happened while taken the drugs but then goes on to agree that I must be "sensitive" to statins. Both doctors treat me like I'm stupid and nuts all balled up in one. I am frustrated and in pain most of the time. I have been trying to find out how long to expect this pain and am dismayed to learn that it can be years or never go away.

Yes I have high triglycerides (so does my mother and she experiences the same kind of pain so refused to take statins) and I've been warned that not taking statins could cause pancreatitis and/or heart problems. My question to that is - "then my choice is chance the heart stuff or live an incredibly painful life?"

I'll take my chances and pray for the best because right now my quality of life stinks!!

I have been taking LIPITOR for about 1.5 years and have been feeling the cotton head but thought it was allergies. for about 8 months or so I have been feeling pain on the left side of my chest and upper back by the shoulder plates. I've told my doctor and had several tests done incl. MRI, C-scan, etc. Once I even had to go to the emergency room thinking I was having a heart attack. But the doc. said the EKG was normal and that it might be muscular. I have not read that anyone else is having the chest symptoms. This is very scary to me. Lately I feel my neck getting stiff and I am also constantly tired and keep waking up at night and have a hard time going back to sleep. I don't seem to have the arm or leg pains that most people here seem to be suffering from but am now convinced it's LIPITOR since it is the only prescription medicine I am taking. I would appreciate hearing from someone who has had the same symptoms I've described above. I stopped taking Lipitor about 4 days ago and do feel already less tired but the upper body pain is still present.

I took Lipitor for 2 years with all the pain in my shoulder, hand and arm as well as fuzzy memory. I had a friend over for Lunch an have no memory of anything that happened including his arriving and leaving on his Harley and we all know how loud they are. I ended up in the hospital with all kins of tests including an MRI all of which I have no memory of to this date. My hospital bills are still coming in as well as all the Doctors that saw me. I just received my Divorce and then this happened , I was out of work for a week , the Doctors thought I had had a heart attack, stroke or aneurysm.I also had all the foot pain making it impossible to stand up , leg cramps, sleeplessness, sheer exhaustion, depression, headache and nausea. The Doctor at the Hospital took me off of the Lipitor and said to take a 325mg. aspirin daily . This happened on March 23, 2008 . I am felling better but I still pain in my shoulder , neck , stomach , and feet and legs but is nothing like it was. Here I am left with a few thousand dollars of Doctor and Hospital bills. Why can`t something be done about all of this we are all going thru? I called the FDA to report it and got no where. Did I really expect anything to happen ! I hope someone gets something done for us . I would be one of the first to sign up to take Lipitor off the market and get what is due us.

I'm a 46 years old male normally good shape,I was put on Lipitor due to high cholesterol and family history of heart problems.I've been on lipitor for four years , 2years on 10mg, 1 years on 40mg and 1 year on 80 mg.
The last 6 months I have been experiencing severe archiles tendonitis to the point where I can hardly walk. I am extremely disatisfied with this drug and have read a lot of complaints regarding this drug.

Has anyone else experienced this side effect?

Please reply to this post.

Thank You

I quit Lipitor (40mg) five weeks ago. I believe I was on a trajectory to disabilty within a year.
The unbelievable left elbow pain has gone (maybe the cortisone worked!). My left knee feels "normal" again, not perfect but nearly like it used to be. Within a couple of days of quitting I had severe pain in my right thumb along the bone, then in the middle of my right hand, then between the first and second fingers in my right hand. I currently have minor pain in my right wrist (this is new) on the pinkie side and minor pain in my left shoulder where the arm joins (this has been intermittent for a couple of months). I am feeling much better - but would not be at all surprised if pain appears in another part of my body before this is all history! There is also plenty of joint clicking going on.
I believe I first reported pain to the assistant doctor to the heart surgeon two weeks after I had the stent put in and was put on Lipitor. I was also on various other medications. I had tingling on the ends of my fingers and toes at random - hard to describe but it was as if a fairly sharp object (like a ball point pen, say) was being pressed progressively harder from the end of the finger/toe and towards the rest of that finger/toe: and as the pressure increased it would suddenly become painful. It was not a tingling/numb sensation but more a tingling which increased sufficiently that it hurt.
I am only being so specific because when I described these "symptoms" the doctor shrugged. If anyone has had similar - and I have seen tingling mentioned here - please make contact with me as I do want to report my experience back into the medical community but find, an exact description difficult. Things never needed to have got so bad if this was the first warning.
I since asked my family doctor if my knee problem was Lipitor related and she thought not: I was referred to Physical Therapy. I also told the physical therapists (who thought my knee should recover much sooner, and were surprised that I had zero mobility pain) that I also had serious elbow pain.
The orthopedic surgeon I saw did not connect the elbow problem to Lipitor.
The heart surgeon (stent insert) could perhaps be the only person who I did not tell of the pains - I don't remember - but I may be so grateful to be alive - that he may be someone to whom I did not voice a complaint!
On the positive - five weeks later I am feeling significantly better.

I'm aged 51 and have had high blood cholesterol for years, diagnosed in my mid thirties. Over the years I have tried changing diet but it didn't reduce tha bad cholesterol. Three years ago I decided maybe I better reduce the cholesterol as they say it clogs up you arteries etc. I went to the doctor and he put me on Lipitor and within a few months my levels were down to normal. I got joint pains in my hands, back, neck , legs and had sore heels after long walks. The doc then decided I'd go off the Lipitor to see if my levels stayed normal but they went back up. After a week the new pains had gone away. I came up with a plan to take 3 x 10mG a week rather than one each day and this worked with a lot less joint pain. The last test I had my levels are back up again so he put me back on 10mG a day and now three weeks later the pains have built back up and I don't like them. Desperate for a different solution I was listening to one of the Juice Plus promotions and something they said set me thinking. They said that having a high level of bad cholesterol doesn't always mean it will badly affect your arteries as it has to react with free radicals in your body to cause the damage. Their theory is that a diet rich in antioxidants will combat the free radicals and generally reduce the risk of disease which also includes any bad effects from high bad cholesterol. Now I'm wondering two things, how do I know if my high cholesterol is causing me any harm? is there a test I can get done to measure how it is or is not affecting me? Can anyone throw any more light on this?

I had a heart attack july 4th 2002, one stent was put in , i took zocor for sbout a year I became unable to work in june 2003, my insurance expired, I go to the free clinic, they give me lipitor, I been taking it for a little over a year, it keeps my chol. level in check, I have been to the emergency room 3 times for violent muscle spasms under my ribs,,,,,,very scary
the doctor told me today it may be the lipitor, anybody else had these symptoms? please reply?

Reply to #8203

It sounds like what my brother has. When he walks, his right foot turns inward towards the left and he nearly trip, that is one of the reason he had a special brace in that leg to keep that right foot straight. After 2 months off Lipitor this is still happening but like I have mentioned below, he is now able to lift his left leg.

The shame of it all is that now with the proper diet is cholesterol is Normal.

Good luck.

reply to 8091

Dropped foot is a weakness in the muscles in the foot which causes it to be limp and involuntarily "flops" when you walk. The front of the foot points downward when the foot is lifted off the ground and if the foot is not picked up high enough to clear the surface,you will trip. The condition occurs when something negatively affects the nerves in the leg or spinal cord. Since all my tests came back "normal" - the doctors are puzzled and are looking at Lipitor.