Lipitor and statin

After several attempts to lower my cholesterol, my doctor has settled on 40 mg of Lipitor, but, after reading these comments, I'm going to self-medicate and work my way off the drug completely. My main complaint is the fatigue and brain fog others have experienced. I do have a shoulder that has developed pain and weakness, and my legs don't seem to be as strong as they used to be, but it's the fatigue and memory/cognitive slowness that concern me the most. Also, like others, I assumed it was normal aging (I'm 58 and have been on statins for about eight years). I'll report my results after getting this stuff out of my system. Good luck to everyone going through this...we're not crazy after all, huh?

I have been taking Lipitor for about 6 years suddenly developed a rash on my shoulders and chest. My doctor diagnosed SCABIES!!so I treated myself for that then the rash progressed so I had a biopsy done and after 3 months of agony my slin specialist had taken me off Lipitor as theh test showed a reaction to a drug. I am still itchy prickly and burning on arms legs and hands and cannot tolerate cortisone cream so am on tablets for a week..can anyone relate to this condition? My scalp is also very dry and scaly.

42 and taking Lipitor 40mg for 6 months. No other issues. 20 lbs overweight but also work out 4 times per week and feel to be in good shape. Lower back pain in middle of night that last until I get up out of bed and it started about a month after taking the Lipitor. If I get up, it goes away. Was so bad that I went and bought a sleep number bed thinking it was my old spring bed. Did not get better. Tried not taking the Lipitor for one night and the pain stopped. Took it again the next and it was back. Going to doctor to ask what is up?

I am a 61 year old mail. Two years ago I suffered chest pain resulting in the fitting of two stents was placed on Lipitor and had the usual liver function test which proved normal. Initially I was put on a low dose but as my cholesterol level did not improve eventually I was placed on 80mg which is the highest dose and this did lower my cholesterol level to a satisfactory level. A few months ago I had severe unexplained back pain which I thought might be due to the statin and when I stopped taking it, very quickly the pain went. I have restarted the medication for about 6 weeks now and in the last few days have had intense pain in my lower legs, hips and lumbar region. I have decided now to stop taking the drug and will be seeing my doctor shortly. Although I am taking other medication (amlodipine, perindopril and bisoprolol) for blood pressure I feel quite sure that my intolerable pain is due to the statin.

1 minor heart attack 5 stents placed over past 6 years thru 4 angio episodes. each hospitalization plavix and statins prescribed each time the side effects started within 2-3 weeks, some times sooner . same crap as most...serious leg fatigue, joint pain, skin is tender to touch. But my FAVORITES are the chest/heart pain that mimic heart attack 'feelings' and the 3AM sweat and anxiety/panic attacks.......3 different statins all the same results symptoms
so intense that i have been admitted 3 times for heart cath, ALL false alarms
S-O-O-O DOC what the hell is going on????? ANSWER: must be reflux, must be stress, must be ANYTHING BUT THE STATINS!!!! each time i quit the statins soon after rehospitalization and each time the symptoms went away......last episode was Friday July 31st. i was really bad....constant chest pain and pressure, legs so fatigued that 1 flight of stairs felt like 10 ...shortness of breath...body aches like you feel when first getting the flu etc. etc you guys all know the crap
they rushed me in to the Cath Lab....nothing wrong...must be stress!! must be reflux!!! bullshit. I quit the Lipitor that day
Today is Tuesday.....I am WAY BETTER each time the same thing, on the statins ...feel like crap, get off the statins and feel almost normal within a week
I will NEVER take a statin again
I am lucky that I have been recovering quickly

Taking Lipitor for about 8 months. A pattern of vomiting attacks every two to four weeks emerged. Usually dizziness and clammy cold sweats precede the attack. Feel perfectly fine again immediately after that vomiting session. Can happen on full or empty stomach. Also usually feel less active and less inclined to initiate tasks at all times, don't seem to be able to think as clearly as I used to. Male aged 67 and generally fit and active. Stopping Lipitor today.

I want to ask a question. My mom takes Lipitor and just started Vit b . is there side effects to be expected? She just started a new bottle of Lipitor and is exper. dizziness. is this a side effect of one or the other?

June 27/09
I am 65 yrs , very active. Play hockey, baseball, slopitch, and jog.
Started on Lipitor 10gm about 5 years ago. About 6 months later increased to 20gm. about 1 years later increased to 40 gm. Did not really notice any side effects. During that time cholesterol dropped from approx in Aug2005 to 8.01: ; Jan06 to 6.37:; Apr06 to 5.3 ; May09 @ 4.2. No problems noticed while on 40s for about 2 years.
June09 doctor increased to 80 gm !? Started to notice muscle cramps and pain . Also started to notice some stomach upsets.Thought I had strained a hamstring muscle from hard running acceleration but not sure now after reading some of the comments. Three days ago , although I always stretch for 1/2 to 3/4 an hour before every baseball which I play 4 times a week, I had very severe muscle cramps suddenly above my calf muscle just below the knee as I started to run to 1st base. I played the rest of the game but in pain and could not run hard . Could not sprint on my toes as I always did , so had to run about half speed but flat footed on the bases but painful,as we had only 9 players. Had hot shower Thursday night after game, massaged calf area with Wintercrest ointment. Got up this morning Friday , muscle sore but can walk on my toes. Tonight @ midnight slight soreness but most of the pain gone. I was thinking that I might have strained a calf muscle playing baseball but noway! I think it has to do with the doubling of the Lipitor from 40 to 80!!!! Will cut back back to 40 gm on my own till I see the doctor.
Will go to see my Doctor ASAP!!!

Well it has been 10 days since I stopped taking Lipitor. I am now sleeping 7 to 9 hrs straight - headaches gone - not as moody as I used to be - better concentration at work and huge improvement in short term memory. I forgot to metion that my doctor put me on 40mg hence it didn't take long for the side effects to start. I saw my Doctor and explained that I was off the Lipitor and told him why. He is keeping an eye on me and I will keep you all updated.
cheers from Down Under.
Goose

I have been taking 40mg lipitor for over 9 years now.

I have had back issues since an injury to one disc (L4?), and had microdiscectomy in 2001? Took about two years to actually get close to normal.

The last few years, I have had multiple issues with shoulder pain, wrist pain, elbow pain, lower back pain, Upper rump muscle pain , and now both hips are killing me (the shoulder, upper rump muscles and hips are by far the worst). And I am now so weak in my lower back muscles, that it feels like I will (and do) pull out my back.

I have seen NO many doctors I can't even name them all. I have had operations, multiple injections (cortisone) taken pain meds, etc. Nothing has helped and in the last year and a half, I have gotten steadily worse. To the point where I can't really do much of any activity. Sleeping at night is painful. Can't lie on left shoulder, and can't lie on either hip for more than a few minutes. If I fall asleep on my side, the pain wakes me up. When I try to walk, 80% of the time, I end up with a pain in my upper right rump (sacroiliac area), that I MUST sit down to get the intense pain to go away, which it does. But comes right back when I walk again.

I have had x-rays, MRIs etc, and never reveals all that much. Disc issues, yes. NOt much else.

Recently, I have begun to get a nasty clicking (catching) on my left jaw (joint?). Not really painful, but something definitely wrong. My dentist sent me to his Chiro. I went and liked him right away. I had gone to another chiro for years and I believe in them. But this one is the best I have seen.

Anyway, one of the FIRST things he suggested, was that it was POSSIBLE that the Lipitor is causing all of my problems. Put me on COQ10, and doing multiple adjustments and treatments. I will be seeing my regular doctor 5/26, and my chiro wants me to see if he will take me off lipitor and put me on Niaspan instead.

I guess my question is: Can Lipitor be fine with me for so long, and then in such a short period of time, turn me into a compete wreck from the pain and wasting away of my body/muscles? I've told doctors for over a year now that there is SOME connection as to all these issues and pain. One Doctor, of course, gave me the "you are getting old" bull. Yes, I am 56 yrs old. But I understand the process of getting old, vs the complete failing of ones body.

Also, IF it is the Lipitor, can it possible all go away? Or should I expect some damage forever?

One more thing, the last ortho I went to the other day for a second opinion, wants me to do a EMG, to see if there is muscle damage. I was not planning on doing it, but wonder now, should I? He was not doing it because of lipitor, as he never even talked about that to me. I had shoulder operation and have not had the results I feel I should have had.

I have been on Lipitor for five weeks. I can't believe how awful I feel. I ache all over. I my arms and elbows are sore; I have had pins and needles in my hands; charley horse like spasms in my calves (mostly at night); sharp knife like pains in my upper thighs; even my teeth hurt. I am a 46 year old female – I can’t believe this. I have made an appointment with my doctor as I have to get off this drug. I have experienced some blurred vision and hearing impairment too. If I hadn’t of found this website – I truly would have thought I was a bit crazy….
I have never had any symptoms like this before and never thought of myself as an old lady - but that is what I feel like. It is unbelievable.
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I am 20 year old female and have a bad family history of high cholesterol, iv been taking 40mg/day of lipitor for nearly 2 months.

My husband, a 55 year old diabetic who is currently on dialysis was initially prescribed 20 mg Lipitor about 5 years ago. He began experiencing leg pains, but continued to take the drug. In May 2007 in suffered a minor stroke (clot). Upon release from the hospital, the neurologist prescribed an 80 mg dose claiming studies showed those who have had a stroke benefit from the higher dosage. He recovered from the stroke and was able to return to work in August 2007. On December 31, 2007 he suffered another stroke, however this time it was a full blown cerebral hemorrhage. After he suffered this stroke, I searched Lipitor on the web and to my surprise found an article that stated the higher dosage of Lipitor could cause brain bleeds in people who have suffered a prior stroke. I truly believe this high dosage of Lipitor was the cause, however the neurologist and his regular doctor say no. Of course they would say that, since they are the ones who put him on it in the first place. They blame it on the fact that he has other health issues, however he has been on dialysis since the beginning of 2004 and was able to work and function normally. Needless to say, when he was released from the hospital, Lipitor was no longer one of his prescribed medications. They wanted to prescribe a low dose statin of a different brand, but his cholesterol levels have been excellent without them and I won't let him take another statin. The damage is done, he has difficulty walking, has lost his balance and was forced to go on permanent disbility. He was an active volunteer fire fighter for 35+ years and the fact that he can no longer do all the things he use to do depresses him.

My mother, who is in her early 70's, is diabetic and had high cholesterol. She had been taking Lipitor and the doctor increased her dosage. She was experiencing muscle pain for some time, especially when she woke in the morning. The muscle pain worsened and her muscles became very weak. She had been complaining to her doctor for some time. It took a chiropractor to suggest it was the Lipitor. Her doctor finally ordered blood work and her enzyme levels were at 9500. She was immediately hospitalized, tests run and IV's given to flush the Lipitor from her system. She was expected to slowly recover. After weeks, her levels dropped to 6500 then began to rise. Her doctor now says her muscle damage is permanent and plans to give her prednisone to stop the inflammation. This muscle damage is a terrible "side effect" for a drug that was supposed to help her. She can hardly get up or down from a sitting or lying position, can hardly walk and her lifestyle has been severely curtailed. She is also exhausted all the time.

I have been on 10 MG of Lipitor for almost 3 years. Since I began taking it I have had recurring issues with an anxious feelings, my lower GI is constantly churning and I feel like I am stressed out. I have a low stress job, a stable happy family life and yet I feel nervous all the time. I sleep for 3-4 hours and then wake up and am unable to get back to sleep. I have been forced to take a nap ever day after lunch just to get through the day. Additionally, I developed tremors in my hands and was diagnosed with something called Benign Essential Tremor and put on another medication to control the shaking.

Yesterday I decided I had enough of this and went to see my cardiologist to discuss the symptoms. I stopped taking the Lipitor on my own 2 days before. The doctor told me that none of my symptoms were related to Lipitor! I replied that I was convinced that they were all in fact caused by this drug. He suggested I stop taking the statin for 2 weeks and see if the symptoms stop. I am now on day 4 without lipitor and am already feeling less anxious.

I went to the Nuerologist 2 weeks ago and got her to discontinue the anti-tremor medication. I am going to get all this crap out of my system and hopefully get my life back.

Wow! I must be the latest in a long line of Lipitor users and apparently pain sufferers. I have been on Lipitor for over a year. I am 56 years old, active and healthy (thank God). Around November 2008, I noticed a "twinge" in my left hip while sleeping. This has gotten progressively worse over the months and I thought it was due to arthritis (which runs in my family). But after reading these blogs, I am not so sure. If anyone has anything definitive regarding this, ie: tests, studies, etc., I would really appreciate a point in the right direction for more information. I was thinking (until today) that I was headed for hip surgery or something equally drastic. Now that I have a clue that it may be the Lipitor, I want to investigate further and then, if necessary, change to another medication that won't break me down like this. My heart goes out to anyone that has suffered through hip pain. It is a miserable, painful condition that saps your energy and your desire to even move sometimes. I appreciate any help you can offer. God bless all of you. - L. B. ******

January 26, 2009
I stopped taking 20mg of Lipitor for the following reasons: arm and muscle pain, wrist pain, neck and shoulder pain, knee pain, foot pain, arm weakness when raising my arms, mental fuzziness. I
Withdrawal symptoms : headache, eye ache, increased neck pain.
My goal is to see if the dosage symptoms decrease within two weeks and maybe I will try 10mg of Lipitor and see if that amount produces the same symptoms. My doctor directed me to a Rheumatologist as recent blood work showed inflammation in the arthritis panel. I am waiting to see if being off Lipitor for two weeks might reduce my arthritis symptoms .
I had a stint put in March 2008 and I am on Plavix (75mg), Lisinopril (10mg) and Lipitor (20mg).

I have posted here before. I have been off the lipitor for almost a week, now. I am still feeling dizzy and wobbly. Does anyone know how much longer I should have this side effect? Also I was reading that elevated cholesterol levels and MI's and strokes can be caused by elevated homocysteine levels.Anyone been tested for this in your blood?

I am a male 45 years and used simivastin another statin for three and a half years. Over this time i had severe muscle pain at time then about 4 months ago the muscle pain in my legs came on with a vengeance. It started in both thighs then calfs got very tight sore ankles feet and eventually got in to my arms. A deep achey sort of a pain and an irritability that casesa feeling like a toxin in my inside elbows that makes me want to stretch all the time. I feel very weak compared to my former self. I tried many things to alleviate the pain but nothing really took the pain away or even decreased it much. sometimes i would lay and groan in agony. I especially noticed that draghts and weather changes made me feel worse????. I stopped taking the simivastin 6 weeks ago. I have not had a lot of improvement but must admit thet i have been trying to push my self over this and probably done more damage. My ck levels are normal but my liver enzyme is increased a little. I started also to take q10 and L- carnitine along with magnesium. I might be improving a little each day but nothing definite. I saw a rheumatologist who has no diagnosis and isn't to committal on whether the statin is to blame. He put me on celebrex which has finally given me some relief. Can anyone relate to the worsening of symptoms with cooler changes in weather? and is there anything else i could do to hasten recovery? Thank you to all contributors on this board although it is the first time i have contributed this board has been a scores of help to me.

AFTER SIX MONTHS ON LIPITOR, IVE SOME PROTEIN IN THE URINE.
AND A LEVEL HIGHER FOR THE LIVER. I AM GOING OFF OF LIPITOR
AS RECOMMENDED BY ME FROM NOW ON. I DONT MIND CHOLESTEROL LEVELS OF FIVE.
I DO MIND DAMAGE DONE BY LIPITOR. I AM GOING BY AND STICKING
WITH THE GUT KNOWING WITH THIS, AND STAYING OFF OF IT. I AM GOING TO TAKE VITAMIN
C. AND LOWER MY NOT HUMONGOUS BODY WEIGHT, BUT AM DOING
A LOT MORE TO HELP MYSELF. I AM NOT GOING TO HAVE
IRRETRIEVABLE DAMAGE DONE TO ME BY THIS PRODUCT. IT IS
BEGINNING TO HAVE THE SIGNS OF JUST THAT. THERE IS MORE
TO LIFE THAN JUST ONE THING, ALL IS INTERACTING, FOR ME THIS
IS A GOOD MOVE.. NEXT THING I WOULD KNOW IS I AM TO BE TAKING
SOMETHING ELSE WHICH WILL THEN CAUSE SOMETHING ELSE AND
SO IT GOES, ON. NO I AM STOPPING HERE, AND HELPING MYSELF
LIKE IVE NEVER DONE BEFORE, WITH CONSTRUCTIVE POSITIVE
INPUT BY OTHERS, AND ALSO MYSELF AND SOME HARD WORK ON
ALL OF IT. IVE NO DOUBT I WOULD BE IN SERIOUS TROUBLE IFF
I CONTINUED TO TAKE A STATIN OF ANY KIND. THANKS BUT
NO THANKS. FROM A LADY WHOM HAS FOUND OUT THROUGH HER
EXPERIENCE FOR HERSELF ONLY BEFORE HARM THAT CANNOT BE
BACKTRACKED IS CAUSED. ITS NOT TOO LATE FOR ME .

I started taking Lipitor in 2004 and by 2008 was taking 40mg daily. I'm not sure exactly when certain symptoms manifested themselves, as looking back they now seem insidious, but I do know they became bad enough in 2008 I went off the drug myself, especially after reading postings like those at this website. After being off the drug for a month, it was clear to me the most of the symptoms dissipated, but it did have a residual affect. I realized I had suffered a loss of range of motion (ROM) in my left arm (frozen shoulder) and have been in physical therapy for over a month to restored 80% of it. I could not have done this while staying on Lipitor as I was experiencing “deep” muscle pain and weakness. I still have some weakness and pain in my left arm and shoulder and don’t know if it is permanent.

I am Hypothyroid and take Synthroid and am currently going through menopause and am on partial HRT. I took no other meds other than the Lipitor. At one point, I thought my symptoms were stress related, but realized my symptoms were causing the stress. Aside from the muscle pain, spasms, tingling and numbness experienced in my left extremities, I experienced gastro intestinal disturbances, occasional vertigo, some lower back problems and other aching in other extremities (like that of flu symptoms). I also suffered recurrent mental fogs, which I initially attributed to some lack of regular exercise (although I lead a relatively an active life), but that was not the case, as even after aerobic activity the tingling and pain would resume.

When I told my physician I had stopped taking the Lipitor (at that time for nearly a month), he didn't blink an eye. I agree with previous blog; the idea of statins are to lengthen your life, but what kind of life is it when you are in misery and nothing short of ceasing the medication brings relief?

I'm not advocating everyone "doctor themselves. Listen to your physician, but most importantly listen to your body and trust your instincts when it comes to these types of medications. Symptoms listed about scripts described as "rare" are usually not that rare at all. You are not crazy.

I was put on Lipitor 10 mg. last Spring about 8 mos. ago. I have never taken medications/drugs other than aspirin or Motrin or antihistamines. Since that time I have had a strange combination of unexplained symptoms arise throughout the months. These sx's included: Headaches, stiff neck and severe neck pain, acute shoulder pain, hip pains, joint pains, severe knee pain (tendon or Ligament problems?) and loss of movement, hair loss, jaw pain and some memory confusion. Initially, I had severe HA's for several months, but attributed them to stress, however, I had never experienced HA's as a common occurrence. Then we went away to our Maui house to get away from stress, HA's continued, along with leg and shoulder pains. At the same time, I started noticing several strands of hair falling out if lightly touched my hair to move it out of my face. The pains seemed to move around my body at different times, for no apparent reason. I am used to daily exercise, living in CO in the mountains @ high altitude, not usually having muscle soreness. Now, given my leg and knee pains have gotten so bad, I cannot hike and have difficulty climbing my stairs. Skiing is out. Snorkeling caused leg cramps. No explained reason for having muscle tenderness or soreness without my usual exercise at present time. When the pain leaves one area it tends to arise in a different part of my body. At the present time, my hair loss has subsided, as also my jaw pain and headaches. However, my leg pains and knee pains are so acute (for no apparent reason) it is impossible to exercise and difficult to walk that I looked up adverse reactions to Lipitor, finding all my sx's most probably might be attributed to this drug. Partially my fault for not looking up RX information prior, especially being a medical professional for many years. My husband kept throwing away the info when purchasing the RX. Too many unexplained symptoms, I decided to obtain the drug info. myself. I tended to make excuses for months, such as: I am getting older, under stress, must be an old injury, not exercising properly, need PT therapy etc.... I am dc/ing the drug immediately and have an appt. with my MD on 1/5/09 to discuss.

Seems like I'm in the same boat as a lot of people here. My dr. started me on Lipitor 40mg last year then raised it to 80mg. I started getting slight buring type chest pains with some sharp pains on the upper right side on my chest. The sharp pains increased when he raised me to 80mg. In Feb. 2008, I started to complain. He blew me off at first and then I ended up in the hospital for 2 days taking tests in March 2008. All the tests came back fine and my dr. explained the pains as "spasms" caused by "low flow" and told me to ignore then because it wasn't my heart...WHAT?? He gave me 2 other meds for the spasms. In Nov 2008, the sharp pains were daily and throughout the whole day. I started to research chest pains with lipitor and could believe the stories I read. It was as if I wrote them myself. I stopped taking lipitor on Dec 2, 2008 and within 2 weeks the sharp pains are almost by gone. I'm still having the slight burning feeling sometimes and was wondering how long this will last take to completely go away.

I took Lipitor for about 6 months. Right after I began taking it, my legs, especially my right leg began hurting. I got off the drug at 6 months because my legs hurt so badly I could not sleep at night. I just had X-rays of my right knee done, and I have almost no cartridge left on my right knee cap. I now may have to have knee replacement therapy. My doctor that put me on the lipitor said that it was not the lipitor that caused. I think it is very odd the pain began when I started the drug.

feeling some relief to have validation to why i have been feeling this way.

i thought i was going the way of father (heart attack in his 40s) due to many symptoms over the past month similar to heart issues, except the leg cramps. i thought of my mother in-law, her diabetes, poor circulation.

i knew i had just had a thorough heart evaluation with my doctor last spring and everything was fine, except my hereditary cholesterol. frustrating. he had prescribed lipitor at that time. last week while driving to my office Christmas party i thought about driving straight to emergency.

food always seemed to help, as well lots of water. I think because i had liquids when eating, dehydration is what was being addressed.

on my own, i stopped lipitor (only prescribed medication i take) four days ago. no more nausea, no more light headiness (briefly early morning yesterday), no more weakness, leg pain decreased; these were my main symptoms.

I also experienced occasional foot cramps, general aches, heaviness in my esophagus immediately upon eating (thought of my mom with her hiatal hernia) indigestion maybe.

I had one episode a month ago (about the time all this started) where out of the blue i thought my legs were going to fall from under me, they became tingly like they were going to sleep, i was light headed as if i could faint. i had just finished a relaxing picnic by a natural stream, on a beautiful sunny day.

doctors who prescribe this medication should be more aware of these side affects. seems they are either not listening to their patients, or do not have the knowledge of these side affects, and in result, should not be allowed to prescribe.

My concern now is how long the discomfort in my legs will last, though they have improved. to make sure no serious damage has occurred,
i will see my cardiologist in two weeks to have blood work.

I would suggest to anyone who has not contacted their physician since stopping the statin, to do so. print a copy of this site and bring it with you!

T. - 47 years - trying to stay healthy!

memory loss, headaches, tias/mimi strokes, kidney stones, blood clot,vertigo, disorientation, muscle spasms, shaking, trembling could not control , dry eyes, stiffness in neck, back pain, twitching of all muscles , blackout when really sick, cant hold arms up, thought I had Parkinson, ms or Muscular dystrophy, motor skills are no longer great, arms and leg muscles bad, cannot write much at all, no strength in fingers or toes.
chronic fatigue and fibromyalga diagnosed not so sure after reading all these side effects.

I posted several months ago on this string and wanted to update. I had bloodwork done for the 1st time since I quit the 20mg of Lipitor in August. LDL went from 123 to 210. Total Chol went from 191 to 285. HOWEVER all shooting pains I had been experiencing in legs, feet, and chst are GONE! Went back to my Dr. today, told her that same result and my serious objection to taking any kind of statin and she prescribed CRESTOR while telling me it was more potent than Lipitor! WTF!!!

I refuse this course, am drinking 30 - 40 ozs. of water each day now like I should have been, doubled my CoQ10 to 200mg/day, finally getting back into the gym to lose weight and get the HDL up from the level of 36 it is now. also started to drink the new yogurt type "shot" of Promise for cholesterol that provides 2 grams of plant sterols per day.

I will not take statins ever. I WILL find a natural way to keep my Chol under control. I've also been convinced that you don't have to be at or under the 200mlg of total chol to be healthy. Look at your C Reactive Protein and Homosiytes (sp?) If they are in range you should be good.

I know Lipitor was the cause of my rupturing each of my Achiller tendons a year apart while playing tennis in my late 40's Muscle pain soon followed.

I am wondering if the plantar foot pain that my husband is suffering for 6 months could be from lipitor that he is taking for several years now. Has anyone have this problem?

I am a 65 year old female taking 20mlg of lipitor for almost 10 years. All of a sudden I started having severe pain, shaking and weakness in the calf muscle. The pain is unbearable. Doctors after doctors including a cardiologist, rhoumatologist and internist don't know the reason. I have stopped lipitor for 3 days. I cry and pray to god to help me everyday. I cannot exercise which is my passion for many years. I am hoping the lipitor is the reason and not something else. I have to wait and see. But I suspect it is.
SR
I do have nausea, depression and low back pain and arthritis and frequent headaches.

I'm not sure my symptoms are the result of Lipitor, but I sure am going to find out by stopping taking Lipitor for a week. My symptoms - the numbing of my left foot, the reduction of motor skills in the left foot - it comes quickly and stops almost right away. I have been on Lipitor for several years taking 20 mg but recently was increased to 40 mg. I have no other
symptoms. Just touching base. Thanks for the site.

I have been on 20 mg Lipitor for years, and as I also have Rheumatoid Arthritis, all my symptoms have been blamed on that. I have been diagnosed with Fibromyalgia and put on Lyrica because of the muscle aches and depression. My lower back, hurt in a car accident when I was 17 years old, had gotten so much worse that I had 12 steroid shots in my lower spine a couple of years ago. They didn't help my back at all, but my blood sugar went from normal to diabetic levels, and I am now on Byetta to try to lower it.
I am a 56 year old woman who was the math specialist in a school district until last December when I had to retire early. My back pain was so severe that I could no longer go from school to school carting materials. I could barely make it from the parking lot to my office. Mentally I was not ready to retire, but physically, I was (and am) a wreck. I have severe muscle pain in my shoulders, sometimes one or the other, but always present. I have tingling in my right hand, especially in my fingertips, and have trouble gripping and drop things easily. In the last few months the pain in my right thigh and calf has gotten unbearable. I thought at first it was sciatica, but I have had sciatica before, and this isn't the same, although there is tingling, burning , but the pins and needles is so deep in the muscles I have just sat and cried, or wanted to scream. I have wished I could just cut my leg off. And...I am on some pretty heavy duty pain killers for the RA: a small dose of prednisone plus Enbrel, Methotrexate, and Vicodin, and this pain is cutting right through all these meds. I get severe headaches, I went off Lipitor for 5 days and seemed a little better, but then went back on, and it came back.
Since I no longer work, I sleep longer, am exhausted ALL the time, have terrible mental fog, am clumsy, cannot stand for more than a minute or so without wanting to scream, cannot walk more than a few yards...just getting to the car is an ordeal. I tell people that I can only shop in shoe stores and furniture stores...the only stores with places to sit down.
I no longer cook or clean, cannot play with my granddaughter, even holding a book to read can be too much, and I love reading. I feel I am just dying bit by bit as I lose parts of myself.
My doctor is really into lowering cholesterol, and has put me on Zetia in the past few months...and it has been in this time that the pain in my leg has gotten unbearable. He wants my cholesterol to be between 50-60, and has said that the Zetia along with the Lipitor will do that. Is this normal or in any way reasonable??? I am having a full blood workup done tomorrow morning, and I want to go off the Lipitor starting the day after.
I came across this web site tonight while looking up Lipitor side effects, and I am shocked. I have so many of these symptoms, and there are so many I had no knowledge of at all. I knew about the muscle aches, but that's all. I hope someone can help me with what supplements and vitamins I should be taking. I started taking CoQ10 a month or so ago. What else should I be taking for my health? I know vitamin C and fish oil, but don't know how much or anything else. Right now I am just stunned with the thought that all of these problems that have left me unhappily retired, exhausted and in constant pain can all be caused from a drug I have been taking to help me be healthier.

Being a scientist, I am reluctant to say my symptoms are completely due to the statin (Crestor) that I've been on for 2.5 yrs. Started with a bulging/herniated disk in my lumbar region 4 months ago. Then increasing leg pain and major leg/foot cramping at night. Had my blood checked for electrolytes and CPK. Electrolytes were ok but elevated CPK (muscle breakdown enzyme). Doc took me off Crestor and now a month later, no cramping and much reduced leg pain. Am going in for a cholesterol check next week to see what the levels are. I wonder how much the Crestor played in my herniated disk. Certainly it has played a role in the leg pain and cramping as I no longer have it to the same degree. The FDA and surgeon general talk about putting everyone on statins. BIG MISTAKE!!!! Maybe CoQ helps, but I am done with statins.

I WORK WITH AN ARCHITECTURAL SOFTWARE DESIGN AND BILLING SOFTWARE. 1 MONTH AFTER I STARTED LIPITOR I STARTED TO FORGET THINGS LIKE CODES THAT I WORK WITH EVERY DAY AND BY THE SECOND MONTH I ALMOST LOST MY JOB WITH AN EVER INCREASING NUMBER OF MENTAL BLUNDERS AND VERY SERIOUS AND YET SILLY MISTAKES. ON MY WIFE'S (NOT MY DOCTOR WHO STILL DOESN'T ACKNOWLEDGE THE PROBLEM) ADVICE I QUIT TAKING IT. 6 MONTHS LATER I AM FINE AND THANKS TO THE PATIENCE OF MY BOSS I KEPT MY JOB. BUT I DEFINITELY HAD A MEMORY LOSS THAT WAS ALMOST DEBILITATING. IT IS ONLY AN OPINION, BUT I THINK BECAUSE THE MAJORITY OF USERS ARE OLDER THE MEMORY PROBLEMS ARE CHALKED UP TO OLD AGE AND NOT THE DRUG. IF I WERE NOT IN A DEMANDING MENTAL JOB I PROBABLY WOULDN'T HAVE NOTICED IT.

4 months ago started on preastatin 20mg increased within 1 month to 40mg; could not stand up without help; stopped statins at that time. CPK done 157, this was done to show me I wasn't in danger of rhabdomylysis, I continue to suffer with swelling R leg and severe pain. Leg is still swollen 4 months later.....I am professional RN in ICU ,,can't really do my job as necessary...Should I file for disability; or does someone have an answer to provide relief for this malady???

Moderately high cholesterol and BP 150/90. Was put on Lipitor 20mg and after a week felt more fatigued than usual but nothing much more than this. Had stress test and angiogram which showed 60-70% block in one artery as well as arrhythmia. Cardiologist bumped Lipitor up to 80 mg which I took for 2 weeks. But by then I was suffering most of the effects described in these postings: aches and pains, giddiness, nausea, extreme weakness and fatigue. I took myself off Lipitor and even after one day my head started to clear aches started to diminish, though urine still a reddish color suggesting a lot more flushing out required. And, best of all, the arrhythmia reduced from moderate/severe to mild (which it always used to be before taking Lipitor). This drug is not for me. I'd rather take my chances without it and rely on strict diet, weight loss, etc. It is surprising that the possible side effects are so understated in the manufacturer's descriptions.

After bypass surgery 10 years ago my doctor put me on lipitor and I've been on it ever since,numerous times I told my doctor that I was tired all the time acheing in my shoulders,he never once took me off lipitor,I found out just a week ago that statens are very dangerous,that if you are on them you should be taking coq10 to replace the cell damage statens have caused.
Ask your doctor why he hasn't told you about coq10.
I quit lipitor on my own,and feel so much better.Believe me take coq10 gel caps,this 65 year old is a believer in this.

I was a competitive runner with a number of sub 3 hour marathons under my belt before I was prescribed statins for elevated cholesterol 2 years ago. The first go round was 40mg zocor but muscle soreness and loss of strength started within 2 months. Switched to NIASPAN but couldn't tolerate it. The last 7 months have been on 10mg of Lipitor and now have intense pain in my legs, soreness in my wrist and thumb and swollen feet. I can still run but much less than before and much slower. I regularly go to the gym but have seen a steady decrease in the amount of weight I am able to lift. I have a blood test in a couple of days and will be looking for myalgia again. I have discontinued the statin and don't plan to start again. I was healthier before the DR decided to "help" me with my cholesterol problem.

I have had all the side effects on 10 mg of lipitor for 13 years. My new doctor told me to get off "TOPROL" and take Bystolic (a new blood pressure reducer).

My doctor believes its the blood pressure medication and not the Lipitor.

Anybody has thoughts on this?

After being on Lipitor for over 5 years, I was told to stop cold turkey by my doctor after my routine blood test. Within 10 days I got blood clots and a pulmonary embolism. I had been on an aspirin a day for over 10 years, I drank cranberry juice often and always ate green leafy veggies. I never had any blood clots before coming off the Lipitor and I am convinced that it caused them. It has been a struggle with the pains in my legs ever since. Has anyone had the same or have heard of someone with the same side effect? ******

I am a 54 year old male who started taking Lipitor about 4 years ago. It seemed OK at first, but over the next several years I began to have increasing amounts of joint pain after exercise. Nor muscle pain, joint pain. And it seemed to be a result of exercise. By the time I stopped it, I was hurting after everything, not just exercise. I felt better within the first two weeks, but it took about 4 months for me to be able to exercise vigorously again. Over the years I seemed to have forgotten how much vitality I used to have. I am a physician, and because of the long lag time until I felt better, I wondered whether improvement might have related to other factors, so after about 5 months I decided to restart Lipitor. It surprised me that after just one dose, I got back all of the joint pain and fatigue when I was at my worst on Lipitor. I was really hurting. Needless to say, I didn't take any more.

Coincidentally, a physician friend of mine who had statin induced polyneuropathy had a similar experience. After his symptoms went away he found that after only one dose the entire polyneuropathy came back.

Stopping and restarting the drug is a way to test the correlation between the drug and the side effect. For such a large spectrum of side effects to recur after only a single dose, it argues that the problems that my friend and I had was due to some sort of immune memory response. I have not seen this in the medical literature.

I am off it now for about 8 months and am able to comfortably play singles tennis and jog - much more energy (and I took 200 mg of CoQ10 a day with the Lipitor).

I was given 40mg Lipitor for elevated cholesterol. I took it until I started having muscle weakness .I am a retired nurse of twenty five years, and knew this symptom was not correct. So I stopped taking the medication and told my doctor of this.He did not protest in any way.My symptoms now include;two torn ligaments, sob,mental deficits, muscle wasting, night sweats, weakness,h/a's, and more. I have not taken Lipitor for two years now. Damage is done.My doctor said it should be out of my system by now. Is this a cover up?

I was prescribed Simvastatin 40mg four weeks ago and had horrendous side effects almost immediately eg deep depression, diarrhea, bad stomach aches and night cramps in my legs. Last week my doctor prescribed Lipitor 10mg and I feel no better in fact probably worse. The worst side effect for me is the stomach aches and constant diarrhea and complete lack of appetite. There can be absolutely nothing in my stomach any more. Does anyone else have these symptoms? After reading peoples experiences on here I feel I should stop taking this medication immediately!

Karen

I ran across this site today and THANK GOD that I found it!! My mother wasn't initially given Lipitor because the first statin that her doctor prescribed made her very nauseous. He switched to 40mg of Lipitor about 2 weeks ago and she still gets extremely nauseous and have begun coughing and experiencing cold like symptoms. Her vision is EXTREMELY blurred; so much that she can't perform her job, and her previously prescribed eyeglasses are useless. She had been experiencing pain in her legs during walks that never seemed to get better. We NEVER associated it with Lipitor or the other statin until I decided to dig a little deeper.

I asked her if her doctor had told her to take CoQ10 whilst taking these statins and he's NEVER mentioned it!! As of today, my mother will no longer be taking these "medications". Reading these posts has been eye opening, to say the least. Thanks!!

I started using lipitor from my doctor, it lowered my cholesterol all around but I started to have lower back pains. At first I thought it might be prostate cancer, but after having to MRI's done they found no cancer, thank god. But I went to an orthopedic surgeon to see what the problem was. He looked at the mri's and saw lower dics hitting my nerve endings. He also thought that it might be muscle problems so he gave me 3 epidurals and that helped for a while took away about 50% of my pain, but I still have the pain, It is hard for me to get comfortable when I sit or even when I am sleeping. I don't want to think that it is the lipitor that is doing it to me but after talking with others I feel it is time to talk to my doctor about it. My doctor said that lipitor is the safest one that will do very little harm to my liver. I am not a doctor so I would not know.. My cholesterol level was 246 at one time now it is 175. I am now facing possible spine fusion to help correct my disc problem. But will also ask doctor to prescribe something else.

Alan

I started taking Lipitor 12 years ( 1997 ) ago as my Cholesterol was at 315. I was always athletic but had a crappy diet. My Cholesterol dropped to 200 within a year. However, in 2001 I ruptured my left Achilles playing tennis. Thought nothing much and that I hadn't stretched enough. Recovered from that and started playing tennis again in 2002. Within three weeks of playing again, I ruptured my RIGHT achilles! At that point I started to question the effect of Lipitor on muscles/tendons with various medical "professionals". ALL said it was nothing to do with medication. I quickly developed a tingling/numbness in both feet that doctors said could not be happening but it WAS!

I've had MRI's, nerve conduction tests, wondered if it was diabetic, alcohol, etc. Finally found sites such as this where real life experiences validated my concerns over this statin. I told my Dr. I was quitting Lipitor last Monday, she had no problem with that. This is Saturday night and I'm sitting here with a NOTICEABLE decrease in my numbness/tingling in both feet that I've had for the past TWELVE YEARS!!

I hope that the statin did cause my "mild sensory polyneuropathy" as was diagnosed in 2002. As of right now, it seems to be getting better in less than one week! I can flex my toes with NO pain and my feet don't feel like dead weights.

I WILL NEVER USE A STATIN AGAIN!

I am a male of 67 years old. I took Lipitor for a year, and after a few months of taking it, I felt muscle pains in my arms and shoulders, as well as my back. I felt weak and could hardly put my socks on by myself. I told my family doctor that I thought the problem was caused by LIpitor. He said it couldn't be possible, but he couldn't figure out what was wrong, so he sent me to a rheumatologist, who gave me an initial diagnosis of polymyalgia rheumatica. I went back for a checkup, and although the sed rate was normal, the C-reactive protein was elevated. He felt his diagnosis was an accurate one. He prescribed prednisone for me. I had some doubts about it, since I am diabetic, and was concerned about the elevated blood sugar it might cause. Well, it did elevate my blood sugar, and I weaned myself off it within three months. My blood sugar went back to normal, and while the prednisone helped the symptoms of muscle pain and aches, after I stopped it, the pain returned with a vengeance.

About a year passed after discontinuing the prednisone, and I felt worse and worse. Any time I engaged in physical activity, such as yard work, I was almost incapacitated for two or three days. I felt weaker and weaker, and by now, my activity is about ten per cent of what it was three or four years ago. I am unable to do anything physical without paying a heavy price.

I would tell the doctor that I felt the problem was caused by the Lipitor. He would dismiss my comments, saying that the pain should have gone away after discontinuing Lipitor. He sent me back to the rheumatologist with results of recent blood tests. Both the sed rate and C-reactive protein were normal. The rheumatologist touched my back and other areas, which caused me to jump. He said it might be fibromyalgia. I told him again that I thought it was caused by the Lipitor. He said the same thing my GP had said: if it had been the Lipitor, the pain would have gone away when I stopped taking it. I know the Lipitor caused the pain, because I tried red yeast rice for a couple months. The pain increased to almost unbearable, so I discontinued the red yeast rice. If I were not susceptible to the pain from the Lipitor, would the red yeast rice have increased the pain?

So here I am with a fuzzy diagnosis from the rheumatologist, and no clue from my family doctor (that he will verbalize, at any rate). My life has gone steadily downhill. I used to be a strong, active person, but now I can do very little, and my strength is a shadow of what it formerly was. What can I do?

I am a 60 yr old woman, and have been on statins for several years, most recently 40 mg. I have been getting more and more side affects over the years that I kept attributing to age, overweight, lack of exercise. After reading so many of these postings, I stopped the statin in March. Some of the side affects i.e. the aches in my arms, hands went away fairly quickly. But my legs still ache so much and the muscles in them seem to be weak, I have a hard time standing up from a sitting position. Do any of you know if it sometimes takes this long for symptoms to go away or is it possible that they won't???

Here are some more side effects that I encountered during my ordeal with Lipitor. A week after I started the medication, I started experiencing blurry and decreased vision, this used to go away and come back sometimes, I could swear I always had 20/20 although I never went to eye doctor, but I never needed glasses all my life, if fact any type of glasses will blurry my vision and make me dizzy. I had my first eyes exam a couple days after I discontinued Lipitor, guess what? I have 20/20 vision.
More details about the back and right arm pain, not only the pain was unbearable, I felt my muscles sagging and they did not have any strength, this thing sucked the life out of my muscles, it made me very tired and easily irritable. My fist victim was my little baby ( my beautiful 4 year old), her daddy couldn’t hold her anymore, I even avoided staying close to her, because anyone who touches that right arm will make it feel like another deep stab to the arm deep into the bone. I have never experienced pain like this. I knew about toothache when I had a cavity at 23, but it was fixed and went away, I even experienced the pain of a broken arm at 16, but this thing was something else. The other victim is my wife, I stopped doing stuff, I used to be a very active dude, I do stuff on weekends with family and even every day after work ( you name it, park, boating, swimming pool, malls etc..). It felt like I was dying one piece at a time, going down the tubes fast with no clue of what was wrong with me.

Because of a “Global economy” - I suspect ingredients (even for Brand names) are coming from China or being manufactured in India with poor to non-existent quality control standards, and is the primary reason for the majority of Adverse Reactions to the Statins in general. Please take time to submit your complaint directly to the FDA, and hope they investigate and take action (see bottom of page for web sites to submit complaint).

My own recent experience with statins: After 3-weeks of being on generic Simvastatin 80mg for elevated LDL, I experienced significant fatigue, shortness of breath with tightness around my chest and a bout of Gout in my left foot. I would encourage patients/consumers to directly send their complaint to the web sites listed at the very bottom, if you are either a U.S. (FDA Form 3500) or Canadian resident. Also, if your physician is unresponsive to your negative experience with Statins (generic or Brand Name), inform him/her that you refuse to continue with this drug, and that you have sent an adverse reaction complaint to the FDA/Canadian equivalent. Provide both your doctor and pharmacy with a copy of the FDA Form 3500 if you’re a U.S. resident, so they know you're serious. Lastly, I'm back to feeling normal, after I "demanded" my physician switch me to generic Pravastatin 40mg (2 tabs a day - 80mg), manufactured by Teva Pharmaceutical - corporate HQ Israel with manufacturing facility in Pennsylvania. By the way, a 90-day supply of this quality-controlled drug is available at Walmart Pharmacy for $10. I hope this helps, especially seniors on a fixed income.

U.S.A.
http://www.fda.gov/opacom/backgrounders/problem.html

CANADA
http://www.hc-sc.gc.ca/dhp-mps/alt_formats/hpfb-dgpsa/pdf/compli-conform/gui-44_consumer_complaint-plainte_consommateur-eng.pdf
Contact Name: Drug Compliance Verification and Investigation Unit Tel: (613) 952-9906 Fax: (613) 954-0941 E-Mail: DCVIU_UVCEM@hc-sc.gc.ca

I wrote the message below on March 9th, 2008, but I think it might be useful if I repeat it.

Please educate yourself.

Are you really sure that it`s high cholesterol that is causing heart disease?

All statins have similar side effects!!
_________________________

It`s very disturbing to read all these stories. I really feel for you.

My experience comes from seeing what happened to people close to me.

They all took statins.

I started to look for information on statins, and other medications in 2004 and it continues to this day although two of my relatives are dead.

I have nothing to do with the health or pharmaceutical industry.

I saw the suffering and it made me very angry.

I am an ordinary lady in her sixties who live in Sweden.

The situation is almost the same here as in the U.S.

There is very little discussion about risks/benefits with this kind of medicatications - or others.

I think it`s a good idea to turn to the Internet and books to get other views about the cholesterol issue.

Is it really true that it`s the cholesterol that is causing heart disease?

Are you sure?

Please visit:

*******

******

*****

Also search articles etc on "Stopped our statins" and on the names of the different authors below.

Also read:

The Cholesterol Myths (Uffe Ravnskov)

The Great Cholesterol Con (Antony Colpo)

Book with the same title (Malcolm Kendrick)

Overdosed America (John Abramson)

The Truth about the Drug Companies (Marcia Agnell)

Malignant Medical Myths (Joel M. Kauffman)

There are many more.

Please look on the Internet for more information about each book.

It´s good to have some other information than the one given by doctors because most of them have been "educated" by the pharmaceutical companies themselves - and why should they talk about risks, side effects etc. They are interested in profits.

Finally - here are some side effects that I have seen:

pains in legs, hands, elbows, shoulders, knees, hips, cracking noise in ribs, muscle weakness, loss of hair, head ache, burning, tingling sensations in hands and feet, numbness, difficulties to swallow, loss of taste, ringing noise in ears, cramps, insomnia, irritation, depression, difficulty with short-term memory and then advancing into more serious problems.

These side effects - for 3 different people - all over 65 - did not come at once.

All of them had taken statins for years (Zocor)

It doesn´t matter which product -all statins have similar side effects.

Search for "Stopped our statins" on Google. It´s a very informative site and under "print articles" there are som articles that you can take along to your doctor for discussion.

I particularly like the one from Weston Price Foundation
and explains the different statin studies and side effects. .

My relatives also had some other medications which makes it even easier for doctors (and patients) to say that it`s just old age.

I am happy for those who get problems right away because then there maybe a chance for the patient and the doctor to see that there is a connection.

You really have to look out for yourself and the people around you!

Good Luck.