Lipitor and statins

I am a 70 year old woman, I have been on 20mg Lipitor for high cholesterol, 200 total and 25mg of Spironolactone for a not so high blood pressure, for 3 1/2 yrs. Oh, my God, the Spironolactone is a potassium sparing diueretic that is very dangerous and has many uses I didn't know about or the terrible side effects, it causes breast cancer. It's also used to treat women who have an over growth of hairiness, or on a higher dose to treat hair loss and I've gone bald on the top of my head! Plus all of the good foods we're supposed to eat for high cholesterol, fruit & veggies one isn't to eat on this drug, because of lot's of potassium, what a huge contradiction. And muscle pains, and rashes, (eczema, atopic dermititis) that I've suffered from both.
Anyway, Lipitor, had know idea about the side effects until I looked it up on the internet and read these posts on here.
I stopped taking Lipitor last week and Spironolactone 2 days ago.
I had cholesteral test last week too and saw my dr. Wednesday. He said it was okay that I stopped the Lipitor, but not the other one, why not the other one worse then Lipitor and why am I on this strong drug, geez.
The pain and burning started in my hip for no reason, then my ankles with eczema which started soon after Liptior, then my fingers, numbness, can't pick things up, tingling, burning. Then my feet, yes, just like all of you I have these same problems. This is not just coincidental, this is from the drug Lipitor. I get severe joint cramps in my legs, feet and fingers.
For now on before I take any drug I've prescribed I will thoroughly check for side effects and not take it if they're seriously impairing like Lipitor. I feel like a cripple and older then I should feel, I almost just felt like why live anymore if this is how it's going to be.
Since I've stopped Lipitor I feel a little better, I read that it causes permanent muscle and nerve damage though, oh I hope not, I can barely walk anymore or get up out of my chair. This is all drug induced toxicity of my system. Thanks so much everyone who posted for sharing and enlightening all of us who are suffering from this drug and others.
It should be banned along with Baycol, (a statin) which was banned a few months ago because of these same side effects. With the studies that it only helps maybe to prevent heart attack, well I'd rather be able to walk again and hopefully all this will go away, the rash, etc.

I am a generally active and fairly healthy 77 yr old who had been taking 10 mg of Lipitor for over 12 years with no obvious adverse effects. Recently I started having pain in my right leg, severe enough to wake me at night. This was followed by a significant weakness in both legs, and for a while, accompanied by a lightheartedness. The doctor had me take a series of lumbar and leg x-rays which didn't show much of significance. He wrote a prescription for physical therapy, which I did not follow.
I did internet research on my own which made me aware that Lipitor could be the cause, in spite of the fact that I had tolerating the drug for so many years. I told the Doctor of my suspicions and we agree to stop the Lipitor for at least 6 weeks to see. A few days later, all my symptoms were gone. So be cautious, adverse effects from Lipitor can occur anytime.

Not a new, but seemingly common side effect, i just recently noted could be from Lipitor.......all over achey dead weight feeling, difficult to motivate and move without great fatigue an achiness....totally out of character & even herbal energy, once helpful was completely non effective. Also have arthritis and a knee replacement...knee ok but rest of body next to completely seized up, including hands, hip, sacro iliac, foot, and extreme neck stiffness and pain. Being a retired nurse i should have noted side effects, but attributed to another BP pill which was stopped... Of course absolutely no change and now tripping to chiropractor and acupuncture hoping to get this body going again, especially with much needed walking, post knee replacement. Also i had gained wt, maybe 10-15lbs in 6 months, but when lipitor ws recently doubled, i gained even more in a 3 wk period, and my midrift is cellulite lumpy looking, unlike ever b4, with my normally preferred very active lifestyle, that is now difficult with probs occurring. The chiropractor alerted me to the potential Lipitor side effects, but i know my cardiologist would not agree with this theory.....so afraid to mention, unless there is some conclusive test to be done. Otherwise they say everybody always wants to complain or blame probs on meds, if nothing else suits the situation. I have discontinued the Lipitor, just for 2 days so far and pray i will feel back to myself asap. Now of course i am torn with the lack of prevention of atherochlorosis and future bypass surgery as in father's family.... Feel like damned if i do and damned if i don't.....so definitely empathize with most. Thanks for commoradery and hoping i am not just becoming a cuckoo hypochondriac.

I have been on LIPITOR for years 10mg. at least 8years my doctor told me as long as my blood tests were normal "I had nothing too worry about" through the years I had so many health problems,along with so many tests I thought this pain was normal.My pain was gradually getting worse I started to think this pain has to be because of my age.I'm 67yrs old. Last week I had an appointment with one of many Drs. I mentioned that I felt more pain than usual when I told him I was taking Lipitor he was concerned I was told this medication I should stop but it was up to me if I wanted too or not. I had an appointment with another doctor the same day to found out the results of all my blood tests. I was pleased that all my blood were within normal range but there was the blood test for muscle enzyme,CPK was mildly elevated. I was told that Lipitor could make that test elevated. I had another test that that day and was called and was told that that blood test was elevated a little more.I have been off Lipitor for one week now and never going back to taking Lipitor again. I'm so glad I found out about Lipitor and the damage it could do to your health. I'm also grateful for finding this sight by accident. I hope one day I will feel better also I'm not going back to the Dr. that started me on Lipitor and wanted me to stay on it!

After several attempts to lower my cholesterol, my doctor has settled on 40 mg of Lipitor, but, after reading these comments, I'm going to self-medicate and work my way off the drug completely. My main complaint is the fatigue and brain fog others have experienced. I do have a shoulder that has developed pain and weakness, and my legs don't seem to be as strong as they used to be, but it's the fatigue and memory/cognitive slowness that concern me the most. Also, like others, I assumed it was normal aging (I'm 58 and have been on statins for about eight years). I'll report my results after getting this stuff out of my system. Good luck to everyone going through this...we're not crazy after all, huh?

The Health & disability commissioner in NZ has received my complaint of criminal negligence re my former doctor. They have now asked my former doctor for a please explain his version of events. The police have written to me saying they are seeking medical advice re criminal/negligence/failing to carry out professional duties complaint. Whilst I agree with everyone's feelings on big pharma, it is my very firm opinion that the doctor is the "retailer" and it is the doctor's direct responsibility to us the customer/patient to monitor and inform us of all safety concerns. Big pharma in covering their butts have warned the doctors to warn the patients. Of the 8 doctors including an anesthetist I have spoken with socially and in consultation, not a single doctor could name any adverse effects with statins beyond mild muscle pain. Given the warnings from pharma on the labels that is wholly shameful & negligent. An effective way to help others avoid being maimed like us, is to fight back from the bottom. The FDA and CARM in NZ take no notice, litigation is expensive and drawn out so neither really helps future innocent victims. I encourage everyone where negligence is fairly on the table to take your complaints to your country's police and medical discipline bodies enough of these complaints will soon have the doctor's "reading & obeying instructions" which would go a long way to preventing more tragic victims.

i have never taken lipitor and i never will but here's a warning for everyone- there is actually a company that sells reports for stock investors and they are advising people to invest in the company that makes the one of the only drugs used in the management of ALS. they predict that the ALS patient population (code for customers) will grow as a result of all the people on lipitor.

ok, aside from the fact that it made me sick to my stomach that wall street views the potential suffering and death of ALS victims as a business opportunity (what else is new?), this is a pretty good indication that there is a link. it will probably take years for "science" to conclusively state the connection and for the FDA to take lipitor off the market

in the meantime, save your own life. if you're not taking it, don't start. if you are, stop NOW! cholesterol is not the enemy

Now it makes sense why doctors were so eager to prescribe Lipitor. Pfizer has been hit with a 2.3 billion penalty for illegal marketing promotions of 13 drugs that includes LIPITOR. They were awarding doctors free golf, massages, and resort junkets for "pushing" Lipitor, Viagra, Zoloft and 9 other drugs.

I have not had good experiences with various statin drugs through the years. I was on Zocor a few years ago. I suffered from a tripping gait at times (seemed as if the bottom of the toe area would stick to the sidewalk and I felt as if I was going head over heels and balance issues), so much so that I was referred to a neurologist. My internist poo-pooed my symptoms at the time until I mentioned the formation of cataracts. That did it. Zocor stopped. On to Crestor. Crestor was briefly tolerated until I was walking up four flights of stairs. While on the second flight, my legs literally locked. I could not raise my legs (thigh muscles had tightened so badly, that I had to stop, regroup, and start again. Next course after a brief respite, Lipitor. I am taking between 5 and 10 mg. as tolerated.

I have had issues with Lipitor as well, despite the 'pediatric' dose. I have felt occasional ankle tweaks, and most recently over this past weekend, upon going down a flight of stairs, my left knee buckled. Thank goodness I did not fall, but the weakness was there for the day. I have not taken Lipitor since last Friday night. My cholesterol level (off the statins) had reached a high of 357. As of the last testing (my first after being started on Lipitor), it was 255 - my LDL was 137. I know that if I stop the medication that the numbers will start to rise. This yo-yo effect is very frustrating but my overall well-being is of my utmost concern. Both parents had heart disease. My father passed away at 63 years of age (heart attack, recuperation, then massive heart attack 22 months later), and my mother had angina pectoris, bypass surgery and recurrence of blockages, only to die from multiple myeloma at the age of 89. My newest symptom is pain in the right side, outer portion of the rib cage area. This started two days ago. I had this when I was on Welchol as well.

It appears to be, not quite all the facts in yet, but my cardiologist put me on a Lipitor hiatis to see if some of my arrhythmia issues, dizziness and light headedness may be associated with Lipitor.
After just 4 days, I am feeling pretty good! Could be placebo? I don't think so.
After being taken from work in an ambulance to the hospital and experiencing 48 hours worth of testing for a possible coronary, I asked my doctor to examine the possibility of Lipitor causing the symptoms.
I do not have a family history of heart disease. I eat well and am a moderate exerciser. When I was bumped up from 20 mg. to 40 mg. around 6 months ago, my symptoms started.
I have to decide now how much of an elevated cholesterol level I am willing to "live" with. My cardiologist said if it turns out to be the Lipitor, we'll try Zocor and maybe get a higher cholesterol level on my labs, but that's okay. How low does the low need to be??

I have used Lipitor and/or other satins for many years. I had to get off a generic a year ago and went back to Lipitor. I believe it caused my tinnitus and muscle and nerve issues all over my body. I recently stopped taking it and now 4 weeks later I am getting some relief. I did find something that has really lowered my triglycerides and my cholesterol. It is a brand new diet supplement that contains a new source of omega 3 and antioxidants. contact me and I will give more info on this wonderful all natural wellness product. It really helped me.

statins are poison...bring back oat bran with niacin...the big drug manufacturers killed it...it is more effective than all the statins in the world...the big drug manufacturers are killing us slowly...

I want to ask a question. My mom takes Lipitor and just started Vit b . is there side effects to be expected? She just started a new bottle of Lipitor and is exper. dizziness. is this a side effect of one or the other?

I started feeling much better very quickly after being off Lipitor now 7 months. However, the symptoms I had using the RX has cause significant problems. I fell so many times with my weak joints and muscles, that I had severe problems. I now need to have knee replacement surgery after falling so many times injuring my knees and weakened muscles to support myself. I am getting cortisone shots in that knee, as well as physical therapy. My MRI shows a torn meniscus, stretch PCL very thin, cartlidge loss and debris, still swollen with csyt after all these months. With no meds, and lack of being able to exercise, I now have hig-chol back. On and on it goes.... a real catch 22. Take care of yourself, watch out for symptoms. I ignored sx's thinking it was stress but after reading adverse reactions, it fit me to the T.
My original posting re: Lipitor is Forestseaski on Jan. 2, 2009

C.

MAY 29th, i had a heart cath done. while on the table i had 5-7 sec MI.
was put in MICU, rest of that day and night. moved to heart ward, was put on 24 hour telemetry for 2 days. was started on LIPITOR. had never taken it prior to then.
as of April 8th, i had made a radical diet change, from a lacto/ovo vegetarian, to a "south beach"/modified Atkins NO CARB DIET.
in the period from apr 8th to may 29th, i had dropped 16 pound. i have a bad back, and with the added pounds i packed on, made walking a choir.
with the weight loss, i was walking a lot better. THEN May 29th, LIPITOR was added ............and within 2 weeks, i was having leg weakness, when standing i would feel like my legs couldn't hold me up, walking was now harder then when i had the extra 16 pounds.
sooooo....as of June 14th, I STOPPED TAKING IT!!!!! within days i felt more energetic, and could work a few hours a day. had an appointment with cardiologist June 19th, told him of problems, and that i had stopped taking lipitor. he agreed with me, said to stay on the diet, exercise more, and give it another 6 weeks and then we will check progress.
he did not prescribe any replacement for the LIPITOR. but i have been herbal and homeopathic savvy for a long time so i will continue the OMEGA-3 fish oil, 4 capsules a day, and 4 GARLIC a day.
i mihgt have to add some MILK THISTLE for the liver, if the LIPITOR did any damage.
my diet change if anyone is interested is, chicken, turkey, fish for meats, no hamburgers, or steaks or pork ribs. i STILL do a ton of
VEGGIES, mostly COMPLEX CARBS, lettuce, broccoli, spinach, tomatoes, cukes, zukes, summer squash, and have found a wonderful substitute for PASTA, and its SPAGHETTI SQUASH. split it, microwave 10 min, let stand for 5 min, then take a fork and strip out the meat of the squash, cover with PASTA SAUCE as you would make for PASTA. awesome.

I've been on lipitor and other generic forms of it for the last 8 years since the age of 26. I started on 10mg then 20mg and later 40mg. About 4 years ago I started with severe stomach cramps. The pain is so bad that I have to go home in the middle of the day, I can't walk or sit straight the pain is that bad and NOTHING helps. On a scale of 1 to 10 I would probably put this at a 7 or 8. I would also be nauseous and be really tired. I have had countless opinions and tests done and doctors keep telling me it is an "enigma" and there's nothing wrong with me. We've treated it through coeliac diet, exercise, lots of water, but it never helped. About a week ago I stopped drinking my meds by pure chance. I have not had one incidence of stomach ache. My doctor tells me that it's not possible for the lipitor to be the cause. I am sure he's wrong. Has anyone had a similar experience?

Well it has been 10 days since I stopped taking Lipitor. I am now sleeping 7 to 9 hrs straight - headaches gone - not as moody as I used to be - better concentration at work and huge improvement in short term memory. I forgot to metion that my doctor put me on 40mg hence it didn't take long for the side effects to start. I saw my Doctor and explained that I was off the Lipitor and told him why. He is keeping an eye on me and I will keep you all updated.
cheers from Down Under.
Goose

I have been taking 40mg lipitor for over 9 years now.

I have had back issues since an injury to one disc (L4?), and had microdiscectomy in 2001? Took about two years to actually get close to normal.

The last few years, I have had multiple issues with shoulder pain, wrist pain, elbow pain, lower back pain, Upper rump muscle pain , and now both hips are killing me (the shoulder, upper rump muscles and hips are by far the worst). And I am now so weak in my lower back muscles, that it feels like I will (and do) pull out my back.

I have seen NO many doctors I can't even name them all. I have had operations, multiple injections (cortisone) taken pain meds, etc. Nothing has helped and in the last year and a half, I have gotten steadily worse. To the point where I can't really do much of any activity. Sleeping at night is painful. Can't lie on left shoulder, and can't lie on either hip for more than a few minutes. If I fall asleep on my side, the pain wakes me up. When I try to walk, 80% of the time, I end up with a pain in my upper right rump (sacroiliac area), that I MUST sit down to get the intense pain to go away, which it does. But comes right back when I walk again.

I have had x-rays, MRIs etc, and never reveals all that much. Disc issues, yes. NOt much else.

Recently, I have begun to get a nasty clicking (catching) on my left jaw (joint?). Not really painful, but something definitely wrong. My dentist sent me to his Chiro. I went and liked him right away. I had gone to another chiro for years and I believe in them. But this one is the best I have seen.

Anyway, one of the FIRST things he suggested, was that it was POSSIBLE that the Lipitor is causing all of my problems. Put me on COQ10, and doing multiple adjustments and treatments. I will be seeing my regular doctor 5/26, and my chiro wants me to see if he will take me off lipitor and put me on Niaspan instead.

I guess my question is: Can Lipitor be fine with me for so long, and then in such a short period of time, turn me into a compete wreck from the pain and wasting away of my body/muscles? I've told doctors for over a year now that there is SOME connection as to all these issues and pain. One Doctor, of course, gave me the "you are getting old" bull. Yes, I am 56 yrs old. But I understand the process of getting old, vs the complete failing of ones body.

Also, IF it is the Lipitor, can it possible all go away? Or should I expect some damage forever?

One more thing, the last ortho I went to the other day for a second opinion, wants me to do a EMG, to see if there is muscle damage. I was not planning on doing it, but wonder now, should I? He was not doing it because of lipitor, as he never even talked about that to me. I had shoulder operation and have not had the results I feel I should have had.

Less than 2 months after taking Lipitor I have been experiencing intense weakness of the legs, especially the hip area. A normally avid walker, last week really woke me up when I was unable to walk over 40 feet without having to stop from sheer leg exhaustion. I'd have to actually lean on my partner until I could manage to shuffle again- a shuffling gait is what I had to resort to just to make it back to the car.
This is bullshit because even though I've had some angina symptoms, right up until I went to the hospital I was able to hike; was still relatively strong.
So today I have spent hours researching side effects and have seen on this site alone many mentions of intense leg weakness and pain with Lipitor.
This, along with simultaneously educating myself on the truth about high cholesterol has convinced me to gradually cease taking this medication.

Instead I will replace with sufficient quantities of VitC, buckwheat combined with gingko, and of course I can never stop with the garlic because it is delicious.

Can anyone tell me if you can just stop Lipitor cold turkey or do you have to stop it slowly? I have been taking Lipitor for 5 years now and I have been trying to find out what is causing my leg weakness. I mentioned it to my doctor who said it si just a fact of getting older. The problem is getting worse and I noticed it started about 3 months after taking the Lipitor and has steadily gotten worse. I am 49 years old a little over weight {which I am working on}. I also noticed my asthma which I haven't delt with since a small child has come back. This may or may not have to do with the Lipitor but the pain in my knees and legs I believe do. It really hurts in the joints of my legs and sometimes in my shoulder area.

What a rotten drug. The past seven months have been hell for me. I am 42 years of age and put on this crap last November. I have suffered from bad headaches, leg cramps, Insomnia, Plantar Fasciitis, mood swings and the list goes on. After seeing this site and all your responses I believe the best thing to do is get of the crap. I will write in 2 weeks to give an update.
cheers from Down Under

I have been on Lipitor for five weeks. I can't believe how awful I feel. I ache all over. I my arms and elbows are sore; I have had pins and needles in my hands; charley horse like spasms in my calves (mostly at night); sharp knife like pains in my upper thighs; even my teeth hurt. I am a 46 year old female – I can’t believe this. I have made an appointment with my doctor as I have to get off this drug. I have experienced some blurred vision and hearing impairment too. If I hadn’t of found this website – I truly would have thought I was a bit crazy….
I have never had any symptoms like this before and never thought of myself as an old lady - but that is what I feel like. It is unbelievable.
.

Do cholesterol lowering drugs do any good? Thats a good question considering the debilitating side effects everyone here is complaining about.
Advertisements in the USA claim "30% reduction" in heart attack and strokes, but does that mean that everyone that takes the drug reduces their individual risk by 30%. Not exactly. The advertisements boast what is called relative risk reduction. The absolute risk reduction is what counts and is less than 1% on most statins. So how did lipitor do on prevention of events? Here is the bottom line: If you are a middle aged male, 100 MEN will have to take lipitor for 3.3 years to prevent one MAN from a heart attack or stroke. WOW! You have to treat 100 guys for over 3 years in order for one guy to benefit.

My husband, a 55 year old diabetic who is currently on dialysis was initially prescribed 20 mg Lipitor about 5 years ago. He began experiencing leg pains, but continued to take the drug. In May 2007 in suffered a minor stroke (clot). Upon release from the hospital, the neurologist prescribed an 80 mg dose claiming studies showed those who have had a stroke benefit from the higher dosage. He recovered from the stroke and was able to return to work in August 2007. On December 31, 2007 he suffered another stroke, however this time it was a full blown cerebral hemorrhage. After he suffered this stroke, I searched Lipitor on the web and to my surprise found an article that stated the higher dosage of Lipitor could cause brain bleeds in people who have suffered a prior stroke. I truly believe this high dosage of Lipitor was the cause, however the neurologist and his regular doctor say no. Of course they would say that, since they are the ones who put him on it in the first place. They blame it on the fact that he has other health issues, however he has been on dialysis since the beginning of 2004 and was able to work and function normally. Needless to say, when he was released from the hospital, Lipitor was no longer one of his prescribed medications. They wanted to prescribe a low dose statin of a different brand, but his cholesterol levels have been excellent without them and I won't let him take another statin. The damage is done, he has difficulty walking, has lost his balance and was forced to go on permanent disbility. He was an active volunteer fire fighter for 35+ years and the fact that he can no longer do all the things he use to do depresses him.

My mother, who is in her early 70's, is diabetic and had high cholesterol. She had been taking Lipitor and the doctor increased her dosage. She was experiencing muscle pain for some time, especially when she woke in the morning. The muscle pain worsened and her muscles became very weak. She had been complaining to her doctor for some time. It took a chiropractor to suggest it was the Lipitor. Her doctor finally ordered blood work and her enzyme levels were at 9500. She was immediately hospitalized, tests run and IV's given to flush the Lipitor from her system. She was expected to slowly recover. After weeks, her levels dropped to 6500 then began to rise. Her doctor now says her muscle damage is permanent and plans to give her prednisone to stop the inflammation. This muscle damage is a terrible "side effect" for a drug that was supposed to help her. She can hardly get up or down from a sitting or lying position, can hardly walk and her lifestyle has been severely curtailed. She is also exhausted all the time.

I am 43yrs old took lipitor for 2 months.I started having weak muscles,felt like i had worked out all the time.I started gaining weight,which i have always been pretty slim, my feet hurt so bad just to get out of bed is very painful. My legs are weak just to pull myself from sitting position i have to have help.My doctor rechecked my blood the lipitor made my protein,cq-10 very low.I have been off of it for 1 month feeling little relief .Taking cq-10 small improvement i would rather have high cholesterol than feel the pain, by the way i am female i also had stomach pains and heartburn which i have never had this medicine needs to be removed i am very upset for what it has done to me.

I get these painful cramps in both legs the back of my legs above my
calf muscles. They always come after midnight when I am asleep. i
get up and I have to walk 30 minutes or more until they stop,and for
two days my legs are sore.

I am 62 years old and I was taking Lipitor 10 mg for the last 5 years in New York. When I moved to California the new doctor switched to Lipitor 20mg and I started to have strange side effects. After a pause of two days, I restarted and the symptoms were worse: my muscle in the upper arms, and my calves were hurting and week, my back ached, my head was empty nad I felt dizzy all the time.
I stopped two days ago and today I had blood in my urine. What's happening? should I go on any medication at all to lower my cholesterol? My new test was: 179 Cholesterol
HDL 71
LDL 95
I am too scared to start any other drugs like Crstor or Niaspan as I was recommended.
Please advise,

I have stopped taking Lipitor after 3 yrs. I was told I had a mini-stroke because of my slurred speech 6 mo. ago. Since then I have had a battery of tests and my neurologist told me "I don't think you had a stroke." I saw the words "Motor Neuron Disease" (I looked it on the web because I never heard of it before) on the script for my EMG. I blame it all on Lipitor and the wasting of the nerves and the muscles. I sound as if I am drunk. No one can understand me . I am taking speech therapy but it doesn't seem to help.

My second trip to this forum. A couple years ago, I developed plantar's fasciitis in both heels and had to give up basketball (at 54), and it took about nine months to recover from that. I had been on Lipitor 10 mg, and, while I can't say there was a cause-effect relationship, I had no problems of this kind before then.

Well, I continued on the Lipitor, and this past fall got horrible impingement pain in one shoulder that evolved to a frozen shoulder (adhesive capsulitis). Tonight I did a quick google search on this and it led me back to this site. Again, I cannot PROVE anything, but I've NEVER had any trouble with joints and just have to wonder.

I read on one link that Frozen Shoulder is on the rise, and wonder if Statin use is possibly behind it. I'm at the point that I may go off these drugs and go hard core Atkins diet again, the only thing that got the excess 30 pounds I'm carrying off, and also gave me "textbook" numbers on my lipid profile.

I'm starting to think this drug is possibly the problem. It's not worth it to take a debilitating and crippling substance just to be able to eat whatever I want.

I have been on 10 MG of Lipitor for almost 3 years. Since I began taking it I have had recurring issues with an anxious feelings, my lower GI is constantly churning and I feel like I am stressed out. I have a low stress job, a stable happy family life and yet I feel nervous all the time. I sleep for 3-4 hours and then wake up and am unable to get back to sleep. I have been forced to take a nap ever day after lunch just to get through the day. Additionally, I developed tremors in my hands and was diagnosed with something called Benign Essential Tremor and put on another medication to control the shaking.

Yesterday I decided I had enough of this and went to see my cardiologist to discuss the symptoms. I stopped taking the Lipitor on my own 2 days before. The doctor told me that none of my symptoms were related to Lipitor! I replied that I was convinced that they were all in fact caused by this drug. He suggested I stop taking the statin for 2 weeks and see if the symptoms stop. I am now on day 4 without lipitor and am already feeling less anxious.

I went to the Nuerologist 2 weeks ago and got her to discontinue the anti-tremor medication. I am going to get all this crap out of my system and hopefully get my life back.

My cholesterol was 360 combined when my doctor put me on lipitor and I am only 25 years old. I had all sorts of side effects but dizziness was the worst. I went to ER because of it and doctor in the ER told me how lipitor does not cause dizziness. We all sure don't agree with that right?! The worst is that my cholesterol did not reduce much at all. After researching more about cholesterol I started taking red yeast rice and took that for 6 months and my cholesterol dropped down to 230. It is very important to take good red yeast rice because if you get cheap brand it won't do you any good. I got the brand called "NOW" ( u can get it online) and I wanted to share my experience with everyone else because I was able to reduce my cholesterol down to normal levels so fast without any side effects ! Now I am 30 and my cholesterol is 213 and just to mention it did not go back up once it reduced when I was 25 and i stopped taking red yeast rice after only 8 months. I also did not change my eating habits. I am thinking I should take it again for few months to get my cholesterol down to 170 range but I am not worried about it too much since It already so much lower than when I was 25 and it's not going back up. Another thing I thought was so great... When I went back to my primary doctor to have my cholesterol checked out after taking red yeast rice, when she saw how much my cholesterol dropped down in only 8 months she asked me to write down the name of the stuff I used so she can have her father use it too because Lipitor didn't reduce his cholesterol down significantly either !! I hope you guys will give it a chance for at least 6 months. My father is taking it now and he can't believe how much his cholesterol is reducing.

Hi . I am a 69yr old male. My doctor has recently increased my Lipitor from 20 to 40mg. My cholesterol reading was 3.6 which he considered to high after a quad bypass. I am suffering painful cramps down the front of both lower legs as well as cramps down the back of my lower right leg. I plan to revert to 20mg to see if the cramps stop. I am not sure if I should stop completely.

Extreme FEAR! I totally forgot to mention this side effect in my original post on Lipitor: EXTREME FEAR,paranoia, auditory hallucinations, Coincidentally, my friend (female) in Calif. also had the exact same paranoia: Man in closet wanting to kill us. We could not sleep in our own beds. We had to sleep in living room on couch. Extreme fear. Coincidentally, my neighbor had the same reaction AND the woman who sold me my new condo could not sleep in her bed and she was also taking Lipitor. She sat in a chair in her living room all night. Now this is a total of 4 women. I do not know if men experience these same fears. My Calif. friend and I used to take a mop handle and slam it into the walls of our Master closet looking for the guy who wanted to kill us. Even after we knew he wasn't there, we still couldn't sleep in that room. I quit Lipitor and my fear of this fictitious guy disappeared! Yayyy!

I am 68yr old female with neuropathy in both feet and it feels like it is traveling up my legs slowly. My fingers are very sensitive and sometimes they itch uncontrollably. My fingernails are brittle and hair loss has subsided since I cut my dosage of lipitor from 60 mg to 40mg. I was also on lisinopril - and quit it about 3 months ago. I have been reduced to a sitting zombie - not able to sleep at night and able to sit for 3 hours every day unable to move - am I doomed to this life because of lipitor?

Wow! I must be the latest in a long line of Lipitor users and apparently pain sufferers. I have been on Lipitor for over a year. I am 56 years old, active and healthy (thank God). Around November 2008, I noticed a "twinge" in my left hip while sleeping. This has gotten progressively worse over the months and I thought it was due to arthritis (which runs in my family). But after reading these blogs, I am not so sure. If anyone has anything definitive regarding this, ie: tests, studies, etc., I would really appreciate a point in the right direction for more information. I was thinking (until today) that I was headed for hip surgery or something equally drastic. Now that I have a clue that it may be the Lipitor, I want to investigate further and then, if necessary, change to another medication that won't break me down like this. My heart goes out to anyone that has suffered through hip pain. It is a miserable, painful condition that saps your energy and your desire to even move sometimes. I appreciate any help you can offer. God bless all of you. - L. B. ******

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I've been noticing that you as well as bobby are continuously replying to many of the posting. I stopped taking lipitor in December after having chest pains for 10 months which included being hospitalized for 2 days of testing. I'm still having the chest pain although I believe it's getting better. There was a week in the beginning of this month that I had no pain at all but now it's back. My question to you and bobby is you keep saying you still have some side affects for months but fail to list them. What are they and with your experience, why does Lipitor cause chest pain? What have you found out in your research? Is this drug causing damage to the interior lining of the arteries? Is this why many people are getting the pains from?

I have posted here before. I have been off the lipitor for almost a week, now. I am still feeling dizzy and wobbly. Does anyone know how much longer I should have this side effect? Also I was reading that elevated cholesterol levels and MI's and strokes can be caused by elevated homocysteine levels.Anyone been tested for this in your blood?

I started taking Lipitor in 2004 and by 2008 was taking 40mg daily. I'm not sure exactly when certain symptoms manifested themselves, as looking back they now seem insidious, but I do know they became bad enough in 2008 I went off the drug myself, especially after reading postings like those at this website. After being off the drug for a month, it was clear to me the most of the symptoms dissipated, but it did have a residual affect. I realized I had suffered a loss of range of motion (ROM) in my left arm (frozen shoulder) and have been in physical therapy for over a month to restored 80% of it. I could not have done this while staying on Lipitor as I was experiencing “deep” muscle pain and weakness. I still have some weakness and pain in my left arm and shoulder and don’t know if it is permanent.

I am Hypothyroid and take Synthroid and am currently going through menopause and am on partial HRT. I took no other meds other than the Lipitor. At one point, I thought my symptoms were stress related, but realized my symptoms were causing the stress. Aside from the muscle pain, spasms, tingling and numbness experienced in my left extremities, I experienced gastro intestinal disturbances, occasional vertigo, some lower back problems and other aching in other extremities (like that of flu symptoms). I also suffered recurrent mental fogs, which I initially attributed to some lack of regular exercise (although I lead a relatively an active life), but that was not the case, as even after aerobic activity the tingling and pain would resume.

When I told my physician I had stopped taking the Lipitor (at that time for nearly a month), he didn't blink an eye. I agree with previous blog; the idea of statins are to lengthen your life, but what kind of life is it when you are in misery and nothing short of ceasing the medication brings relief?

I'm not advocating everyone "doctor themselves. Listen to your physician, but most importantly listen to your body and trust your instincts when it comes to these types of medications. Symptoms listed about scripts described as "rare" are usually not that rare at all. You are not crazy.

I was put on Lipitor 10 mg. last Spring about 8 mos. ago. I have never taken medications/drugs other than aspirin or Motrin or antihistamines. Since that time I have had a strange combination of unexplained symptoms arise throughout the months. These sx's included: Headaches, stiff neck and severe neck pain, acute shoulder pain, hip pains, joint pains, severe knee pain (tendon or Ligament problems?) and loss of movement, hair loss, jaw pain and some memory confusion. Initially, I had severe HA's for several months, but attributed them to stress, however, I had never experienced HA's as a common occurrence. Then we went away to our Maui house to get away from stress, HA's continued, along with leg and shoulder pains. At the same time, I started noticing several strands of hair falling out if lightly touched my hair to move it out of my face. The pains seemed to move around my body at different times, for no apparent reason. I am used to daily exercise, living in CO in the mountains @ high altitude, not usually having muscle soreness. Now, given my leg and knee pains have gotten so bad, I cannot hike and have difficulty climbing my stairs. Skiing is out. Snorkeling caused leg cramps. No explained reason for having muscle tenderness or soreness without my usual exercise at present time. When the pain leaves one area it tends to arise in a different part of my body. At the present time, my hair loss has subsided, as also my jaw pain and headaches. However, my leg pains and knee pains are so acute (for no apparent reason) it is impossible to exercise and difficult to walk that I looked up adverse reactions to Lipitor, finding all my sx's most probably might be attributed to this drug. Partially my fault for not looking up RX information prior, especially being a medical professional for many years. My husband kept throwing away the info when purchasing the RX. Too many unexplained symptoms, I decided to obtain the drug info. myself. I tended to make excuses for months, such as: I am getting older, under stress, must be an old injury, not exercising properly, need PT therapy etc.... I am dc/ing the drug immediately and have an appt. with my MD on 1/5/09 to discuss.

Seems like I'm in the same boat as a lot of people here. My dr. started me on Lipitor 40mg last year then raised it to 80mg. I started getting slight buring type chest pains with some sharp pains on the upper right side on my chest. The sharp pains increased when he raised me to 80mg. In Feb. 2008, I started to complain. He blew me off at first and then I ended up in the hospital for 2 days taking tests in March 2008. All the tests came back fine and my dr. explained the pains as "spasms" caused by "low flow" and told me to ignore then because it wasn't my heart...WHAT?? He gave me 2 other meds for the spasms. In Nov 2008, the sharp pains were daily and throughout the whole day. I started to research chest pains with lipitor and could believe the stories I read. It was as if I wrote them myself. I stopped taking lipitor on Dec 2, 2008 and within 2 weeks the sharp pains are almost by gone. I'm still having the slight burning feeling sometimes and was wondering how long this will last take to completely go away.

Hello I'm a 41 year old female, and I took Lipitor 20 mgs for 6 months about two years ago. When I called my doctor's office to complain about side effects they told me it couldn't be the Lipitor because I had been taking it for a month already, and would have had problems before that. I eventually took myself off of the drug 5 months later. Here are some of the side effects I experienced:
Itchy fingertips, increased blood pressure, 30lb weight gain, shaky hand writing, acne, poor driving skills, poor memory, hair loss, "frozen joints", IBS, incontinence, low grade fever, itchy feet, numb toes, numb hands, foggy brain, joint pain, muscle pain, foot pain, plantar pain, dizzy, jaw pain, back and neck pain, week ankles and wrists, nasal allergies, skin rashes, migraines, heartburn, Increase in Astham, heart palpitations, knee pain, difficulty standing up from sitting position, difficulty climbing stairs, water retention alternating in feet, hands, arms and legs, almost constant taste of bile in my mouth.
These are only the ones I can remember. Two years down the road everything but the muscle and joint pain and weakness is gone. even those have improved a lot. I stopped taking the Lipitor and lost all 30lbs I had gained on it, without dieting, in a months time. I still have two toes on each foot that are partially numb. I have trouble climbing stairs, and getting up from a sitting position. I can do both, but I move slowly while doing them. The pain in my muscles and joints drives me crazy, but I'm grateful that the rest of the symptoms have cleared up. My doctor never believed me about my symptoms, and neither does my new doctor really. Went to the emergency room for asthma that was not responding to my inhaler, and they were about to let me go home when I mentioned to the doctor that I had been on Lipitor. Suddenly a huge battery of tests were ordered including a CT scan and a stress test. When I asked the doctor why he said that they just wanted to be sure that it wasn't something other than asthma. Why did they do that after hearing about the Lipitor? Do they know something? Are there doctors who believe that statins are killing and seriously injuring people? I'm so angry. Even as I sit here typing I know when I stand up I will have massive amounts of pain that I will have to "walk off". My quadriceps have not recovered, and remain ridiculously weak.
If I can stop one other person from going through this I will be happy. Thanks everyone for taking the time to list your symptoms. It makes me feel better to know that someone believes me, and knows what I am going through.

feeling some relief to have validation to why i have been feeling this way.

i thought i was going the way of father (heart attack in his 40s) due to many symptoms over the past month similar to heart issues, except the leg cramps. i thought of my mother in-law, her diabetes, poor circulation.

i knew i had just had a thorough heart evaluation with my doctor last spring and everything was fine, except my hereditary cholesterol. frustrating. he had prescribed lipitor at that time. last week while driving to my office Christmas party i thought about driving straight to emergency.

food always seemed to help, as well lots of water. I think because i had liquids when eating, dehydration is what was being addressed.

on my own, i stopped lipitor (only prescribed medication i take) four days ago. no more nausea, no more light headiness (briefly early morning yesterday), no more weakness, leg pain decreased; these were my main symptoms.

I also experienced occasional foot cramps, general aches, heaviness in my esophagus immediately upon eating (thought of my mom with her hiatal hernia) indigestion maybe.

I had one episode a month ago (about the time all this started) where out of the blue i thought my legs were going to fall from under me, they became tingly like they were going to sleep, i was light headed as if i could faint. i had just finished a relaxing picnic by a natural stream, on a beautiful sunny day.

doctors who prescribe this medication should be more aware of these side affects. seems they are either not listening to their patients, or do not have the knowledge of these side affects, and in result, should not be allowed to prescribe.

My concern now is how long the discomfort in my legs will last, though they have improved. to make sure no serious damage has occurred,
i will see my cardiologist in two weeks to have blood work.

I would suggest to anyone who has not contacted their physician since stopping the statin, to do so. print a copy of this site and bring it with you!

T. - 47 years - trying to stay healthy!

I have been on lipitor 10mg for about 6 mths (after reacting to lipex with severe hip pain and going off that). Am now experiencing abdominal pain, severe headaches, excruciating neck pain and to top it off a droopy eyelid and loss of extreme peripheral vision after a bout of flashing auras and fluid like waves in the outer edge of my eye. After tests my retina is not detaching so what is the cause then. My cholesterol is high when not on lipitor and am wanting to lower it without drugs. I could do with losing 10kg weight but will that bring down the cholesterol. I walk every morning for 30-40 mins. Diet is healthy, a few junk things each week but not overly so.

My brother passed away at 56 of a stroke. So after having my blood tests done, everything was high, cholesterol, CR Protein....doctor put me on 20mg of Lipitor....the very first day, I had severe muscle weakness in my upper thighs, back of my calves, pain in my knees, pain in my wrists, pain in my fingers. What a nightmare. I tried it for two more days, called the doctor told him, he said reduce the dose in half........not a chance, I told him I believe in quality of life, not quantity of life. I'd rather be dead, then live like that.......and yet the doctor didn't tell me to get off of Lipitor!!!

Hi, I am a 45 year old male with high cholesterol. prescribed 20mg. of Lipitor to control it. Am having a strange twitching muscle in my right calf since I started the meds. Forearms hurt, trouble sleeping, twitching in my sleep, apparently, tiredness. I'm worried about going off it. My dad died of a heart attack. Would it hurt to try going off it for about 3 months?

I posted several months ago on this string and wanted to update. I had bloodwork done for the 1st time since I quit the 20mg of Lipitor in August. LDL went from 123 to 210. Total Chol went from 191 to 285. HOWEVER all shooting pains I had been experiencing in legs, feet, and chst are GONE! Went back to my Dr. today, told her that same result and my serious objection to taking any kind of statin and she prescribed CRESTOR while telling me it was more potent than Lipitor! WTF!!!

I refuse this course, am drinking 30 - 40 ozs. of water each day now like I should have been, doubled my CoQ10 to 200mg/day, finally getting back into the gym to lose weight and get the HDL up from the level of 36 it is now. also started to drink the new yogurt type "shot" of Promise for cholesterol that provides 2 grams of plant sterols per day.

I will not take statins ever. I WILL find a natural way to keep my Chol under control. I've also been convinced that you don't have to be at or under the 200mlg of total chol to be healthy. Look at your C Reactive Protein and Homosiytes (sp?) If they are in range you should be good.

I know Lipitor was the cause of my rupturing each of my Achiller tendons a year apart while playing tennis in my late 40's Muscle pain soon followed.

About eight years ago I felt heaviness in my chest along with some pain/discomfort when doing hard physical labor and occasionally in the hot-tub. Following my doctor’s advice and an angiogram, a stint was placed and medication administered – Lipitor and plavix I also went through a 6-month program for cardiac recovery including dietary changes and a proper exercise program. About six month following that I gradually just stopped taking my Lipitor and plavix and returned to my old eating routine and other life-style. I don’t smoke (never did) and don’t drink or otherwise indulge in any recreational drugs. I’ve never been hypertensive with blood pressures typically at 115/68. I maintain a trim and healthy appearing body just naturally or genetically. I eat lots of red meat, not a lot of vegetables, drink gallons of orange juice, and eat much more junk-food than I should. About six years after that (near heart attack) event I was given a “stress test” by my physician… I was then 61 and tested at the level of a 38 year old! Two years after that I had a significant heart attack out in the middle of nowhere! It took almost 6 hours to get me to an emergency room in Spokane, Washington (that’s a story of its own). That was on a Thursday – I was back to work full-time the following Monday (four days later). This time around with more drugs than I could swallow in one gulp! Lipitor, Plavix, Coumadin, aspirin, and carvedilol. The combination or amount was more than I could tolerate and I was weaned off all but the Lipitor and aspirin within a year. My heart has returned to nearly full-function and I have no physician imposed restrictions. All that said, I’ve been gradually developing muscle soreness (pain, actually) in my fore-arms and legs. I’ve been growing more lethargic and tired with each passing month. I’m now 65 and feel that the Lipitor is inhibiting my health… I want to get off it and be “normal” again. Or is it just being sixty five? Can I just quit taking the drug? Leaving only aspirin for blood thinning and the hope of a better diet for cholesterol control.

Hi I started taking Lipitor when I was about 41 and gradually noticed a big toe becoming numb. Then later another toe became numb. I had just started swimming about this time with fins and thought at first it may have been caused by them. But then I stopped swimming and the numbness continued. I visited a Neurologist a couple of years ago who tested for everything and found some peripheral nerve damage to the feet. I said the only thing I could think of was Lipitor. He said here was no conclusive evidence it causes this but explained how nerves are made of Lipids and lipitor limits the production of lipids. I stopped taking it but later my GP said I need to go on something for my cholesterol. He put me on Crestor. I took a Lipitor the other week and my toes tingled that night. So I am convinced it is Lipitor. I am not sure how to reverse the damage though.

No hearing loss in family history. Doctor put my father on 80 mg Lipitor, 1-1/2 years latter he started having trouble hearing. I was taking 40 mg Lipitor after 2 years my left ear went bad, 9 months latter my right ear went bad the same exact way. The ears went bad with a tinny sound to all when the hearing came back the 3 kHz area was very low. I have just put this together the recently. This is not a coincidence, I am sure Lipitor caused this. I also think this caused me to go through Hell from hard bump break outs on my body, had me spend thousands hunting for a parasite that was not there. It was not a rash, small bumps with a hard center.