Lupron and adenomyosis

I went from a rational non-emotional women to a crazy person!!! I feel awful. I would rather have pain than feel this way. I can't sleep though constantly fatigued. Achy body, headaches. Everything tastes like cardboard so I'm not eating well though I have gained a few pounds. I am severely emotional. I almost left my husband this weekend whom I adore, can't stop crying, very depressed and irritable. I want nothing more than to be alone and sleep, which no one can live that way. I am a mother of 3, a wife, and have a full time job. I can't function properly. I will never undergo hormone treatment after I get through this! I am currently on Lupron, just had laporoscopy 2 weeks ago for the 5th time all for endometriosis and I'm only 25. I started Premarin today to assist this anxiety and mood swings. Wish my family and I luck.

Hi, I'm writing this as well as having posted on the lupron petition. This is a nasty nasty drug. I had endo, adenomyosis, and nearly bled to death. I couldn't get a hysterectomy because I couldn't get insurance for a pre-existing condition. My gyno said Lupron's maker would donate a dose. I had a stroke about three days after taking the drug. I had complete double vision. I lost my memory, my mind, I had to have blood transfusions, I had horrible hot flashes, my memory still hasn't recovered nearly 8 years later. I would recommend that anyone who has taken Lupron do a mercury detox, because it is preserved with thimerosol, that's what turns it silver. The memory problems will subside somewhat when you do a heavy metal detox. Montmorillonite Bentonite can help. I have done some research and have read that endo can be caused by an infection, and that colloidal silver may be of use in treatment. I would go holistic, I would deal with the pain, or with anything other than Lupron, it wrecked me and I haven 't really been healthy since then.

Beware, don't fall for the hype, it's just not worth it. BTW, I finally had that hysterectomy. I've never felt better. But I'm glad I waited until after I was able to have a kid.

I'm 23 and I was diagnosed with adenomyosis, which is internal endometriosis (in which the endometriotic tissue grows within my uterine wall) I have been on Lupron since Nov 2007. I do not recommend this treatment to anyone unless they are in dire need. Though I am supposed to be on it for 6 months, I will not be continuing Lupron due to the negative side effects I have experienced. I've been experiencing extreme mood swings, from being enraged, on edge, anxious, emotional, or very depressed. I get intense head aches, very nauseas, swelling in my stomach at times as well as stomach pain, blurry vision, achy bones and joints, confusion, hard time concentrating, forgetfulness, insomnia, cramps and pressure...and the list goes on.
Please inform yourself and do lots of research before ever thinking of taking Lupron. I would never do this again, especially after realizing the harmful effects it has had on my body physically and mentally. I've learned to trust that the best people to listen to are those that have actually experienced this drug, rather than those that are trying to promote it. Everyone that I have talked to that has either taken Lupron or knows someone that has, have had the similar experiences to mine.
I'm disappointed about my experience with Lupron, and I would never recommend this treatment to anyone.

I took one injection of Lupron for fibroids in Nov. 2001. It totally changed my life, I am no longer the same person I was before. It started with severe migraine headaches for 14 days straight and attacks of nausea, lack of appetite. I used to have a strong stomach - now I was very easily nauseated. I never went for the second shot. I began to have panic attacks regularly (I had not had them for over 20 yrs). I was tired all the time, and a person who used to work out at the gym 5 days a week - eventually I quit. Now I just walk. I feel about 65 yrs old (I am just 49). I look old, my face began to droop, my hair thinned. I had bouts of depression coupled with general anxiety. My migraines worsened. My sex drive dropped to zero, I feel almost "sexless". I used to be confident, now I was afraid of everything. I now suffer from irritable bowel syndrome - with bouts of diarrhea, bloating and severe gas pains. I have trouble eating sometimes.. I have had all the tests and no one can find anything wrong with me,and none of the doctors think all these problems are due to Lupron. But, I know - I was NOT like this before Lupron. It ruined my life. I just wish my doctor would have informed me of all the terrible side effects - she only told me about hot flashes. I looked into suing her for malpractice but the lawyers said they could not build a case with no real medical evidence that my symptoms are caused by Lupron. I just wish I had known then what I know now. I tell everyone - NEVER take Lupron. Six years later and I still feel like this. Oh what I wouldn't give to have not taken that drug.

I just finished my last shot in my six month treatment of Lupron. My doc tells me he wants me to do another six months because he has never seen anyone with so few side effects. I haven't had any hot flashes, very few headaches, I'm a little achy now and then, and my moodiness is tolerable. The only thing I would like to change is my ability to get a full night's sleep. I always feel exhausted and like I don't have too much energy. My question, however, is about blood pressure. Since I have started the Lupron, my pressures have consistently been 20 points higher than normal and it's getting to the point where my doc says I need to do something (like hypertension meds) for my own safety. Does anyone else have this from the Lupron? I am 27 and the Lupron has completely taken away my endo pain!!

I just finished my first month. I have endo and adenomyosis. Those symptoms are SO much better. The most frequent side effects for me are hot flashes, memory loss, breast size reduction, slight weight gain, and fatigue ~ but the worst is the migraines. The are pretty much daily.

am 23 years old.took my first 3 month shot 4-1-04.so i am only two months into it.Don't think i will get the next one.and hate dr's that lie.one thing i have found diff then the rest of you all is instead of dryness i seem to be overly wet.and my breast seem to be bigger some days.I am getting the shot for adenomyosis.it has not helped the pain at all.at first i was not swelled up like i was before the shot.but then the dr added back.and now swollen again but my pee problem did not start back.i was peeing every 30 min.s before the shot. ican't sleep depressed throwing up and wanting sweets and salts all the time.mooded and want to be shut away from every one.when i do sleep it has been between 6am and 2 or 3 pm. i know it is driving my bf crazy because he likes to spend lots of time with me yet all i want to do is stay in bed.if i only get the first 3 month shot and not the next will it still help me get pregant?i will be getting married in the next few months and we want to start trying right away.Also dose anyone know how long before it is safe to get pregant afthe the shot?I have had headachs and back,shoulder neck pain and new pains in tummy.I hate this shot feel like i am losing it some days.i for one was doing better with out it. kim

I am 33 years old and and am going next week for my fourth shot. I'm due to get t a total of six for adenomyosis which is similar to enym. I had surgery three months ago to remove fibroids but found out I had this condition. I have not slept in three months. I get up an average of four to six times a night. The hot flashes are the absolute worst so my doctor put me on premrin which has helped with the intensity of the hot flashes, but it makes my eyes very puffy. Since I have been on lupron, I have gained some weight and no matter how hard I work out, I can't seem to drop the pounds. My hair is growing like weeds and my memory (I'm in grad school) is beyond frightening. I can't remember one minute to the next which is really disturbing. I don't have periods anymore. My sex drive has not changed. I'm hoping this is working and I was just wondering if anyone out there went through this and went back to normal and if they did, how long did it take? It's nice to know I'm not as alone as I thought I was before I read all these testimonials.