Lupron and bone pain

I'm 24 and just recently finished my lupron treatment for endo. I'm still having some of the side effects and have yet to start my period again. I honestly would've rather had surgery again for endo than go through months of the side effects. The memory problems, overall fogginess, night sweats, insomnia, mood swings, hot flashes, and just the stress and complete crappy quality of life I've had most of this year has completely affected all aspects of my life. It's not easy at work, at home with my husband- surgery took a day or so to recovery from and this has been a nightmare for months and months. I'd really think about it and research the benefits for you vs the side effects before doing it. If there are any other options- I'd absolutely consider them.

I am 26 years old and I was diagnosed with endometriosis last year (2008). I had pain in my lower abdomen for years and doctors always told me nothing was wrong but I knew there was. Finally a doctor did an ultrasound and found a 7cm mass on my left ovary. I also had a slightly smaller mass on my right ovary. My doctor told me that he would need to do a lap to remove the masses and possibly remove my left ovary because he could hardly see any ovarian tissue on the ultrasound. Thank goodness when he did the lap I was able to keep but ovary but he told me that I had one of the worst cases of endo he had seen. My right ovary was stuck to the wall of my abdomen due to the endo and I even had endo on my bowel. He removed what he could but not all of it was removable. He suggested that I go on Lupron for 6 months to "shrink" the rest of the endo. I have been on Lupron for 3 months. I just went and got my second 3 month injection. I have had some side effects such as Headaches, Bone pain, Hot Flashes, Insomnia, Drowsiness, Increased appetite and major Mood Swings. All of which come and go. I try to stay active but I don't over do it. It seems to help with the joint pain. Most of my side effects were in the first 2 months of getting the injections. I am told all the time that everyone reacts differently to Lupron and there is a pill you can take to reduce the side effects of Lupron but it does reduce the effects of the Lupron so my doctor suggested that I not take it unless the side effects were unbearable. I don't remember what it is called but if you are one of those people having major side effects ask your doctor.

I have read all of these post and I have also taken 1 dose of this drug and now I know all of my issues, including migraines and memory loss, and bone pain and I could go on and on, are all related to this crap drug. I am mad as hell. My OB even told me when I called the office because I actually thought I got a (let me think because my memory is so bad I can't even think when I type anymore) tainted, yeah, thats the word, or infected dose of LUPRON, it made me sick. But, no, it's just the stuff itself. She even told me, LUPRON doesn't cause headaches. You betcha I'll never return to that office. When, and if my memory fully recovers, including when I'm cooking in the kitchen and I can remember what it was I was cooking in the first place, I'd like to try to start a support group for all the women who took this stuff. It has almost ruined my life. I can't tell you the number of times I have sat in the shower and prayed to God to answer me why, and what is was wrong with me. He finally told me what was wrong with me...and it wasn't me. LL

Much of the same, but honestly, not too bad. Hot flashes started one month after the first shot (2 shots/6 mo. treatment), almost to the day. They are tedious but not unbearable. Joint and bone pain, hot flashes, night sweats. I'm now one month past the 6 months, I still have hot flashes and am having a lot of knee pain and some in my left hip.

I gained 20 lbs despite good exercise habits.

But definitely not the horror-stories posted below, I was lucky.

I just went to the Dr. for my second Lupron injection and to get some help with the side effects. Menopausal/emotional me, started crying!!! Gawd! I went in with my list of side effects from the last 3 months (and it was long!) and wondered what was worse, the pain of endometriosis or the life changing side effects of Lupron. My Dr. is wonderful and spent an hour with me; he decided to put me on Provera (progesterone or add-back therapy) for a week to see if the side effects improve. If they do, I get my second dose of Lupron in a week. If not, we stop it all and let my body slowly try to get back to normal (although I have never known what "normal" is since endometriosis) and see how the "therapy" worked. He is strongly encouraging me to follow through with the 6 month course as that is the recommended length of time for the best results. I'm 5'8" and have lost 10 lbs. in the last three months, I'm down to 107 lbs. He told me to try and eat more if I could (although my nausea is constant 24hrs. a day) and make sure to take a daily vitamin and calcium for bone loss. He said that he has never heard of blurred vision to be a side effect of Lupron, "But every woman is effected differently." I'm really hoping the Provera works - any kind of relief is better than this! I'm still having 3-4 hotflashes every hour with extreme exhaustion/fatigue, night sweats, daily migraine headaches, nausea 24hrs. a day, life changing mood swings, and shaky hands. He kept reminding me that this only 6 months out of my life - it's not forever ... forever feels like an awful long time when you can barely get out of bed!

I read up on Lupron and was very hesitant in taking the shot, However, my doctor convinced me that it would be helpful with my Endo which is a stage 4. My doctor said well any medicine is like a restaurant if the side effects are bad then everyone knows just like if you get bad service.
Well I got my first shot about a month ago and I think I should have listened to myself, I traded one pain for a ton of others.
I have severe depression at times and the bone pain is almost more than I can bare. I live on Advil to keep the pain under control. I can barely get out of bed in the morning b/c I hurt so bad and I can barely walk. I am losing hair and it is thinning out horribly. I too have put on weight with regular exercise and watching my diet.
I get heart palpitations to where my heart feels like it is going to jump out of my chest and this is the first month. I am afraid of what the next month will bring. I am only 35 and didn't want to get a hysterectomy.

well i havent started the shots yet but by what i am reading here i am not so sure i want to get these shots!! they found my endo a couple months ago and i have to have the shots but i really am scared!! i have much pain and problems now but it seems like the shot is going to make me worse!! i dont know what to do!! does anyone have any good sites for me to go on and do some research on these shots? someone help i dont know what to do!!! fara

Hi I have been on Lupron for a month. For the first time in 6 months I have not sufferd from any endo pain. Unfortunatley the Lupron has side effects that i am not so sure i would like to contiue with. Does anyone knw of any other treatment for endo? And what can i do about the bone pain???thanks

The first time I used Lupron was about 6 years ago for 8 LONG months. The hot flashes and mood swings were rough at first, but became unbearable towards the end. That, however, was the easy part. I experienced severe depression, and weight gain of about 40 pounds. It did help the endo pain like I could not believe, though.
After about 3 years, I had to go back on it, and at this time, I was engaged to my current husband. I had to warn him that I would be a psycho like he had never seen. It was even worse the 2nd time around. The joint and bone pain was/is unbearable. It has been three years since my last injection, and I still have osteoporosis, severe migraines, joint pain, and have gained a total of 80 POUNDS!!! I work out, eat right, but nothing will take this weight off. My thyroid has been permanently damaged. I am only 31 years old, and I have to make sure I don't fall or bump into anything because my bones could break!
Please, do your research. It DOES work for the endo, no question about that. I feel like a new woman in that area, but I feel like I'm 80 in every other way.

Been on Lupron 1 month now and I have an appointment the 10th of January to see if I can stop. Night sweats aren't too bad but after 2 weeks, I've experienced incredible bone pain all over lasting all day and night. I am on Darvoset's with very little relief. I am 39 years old and I feel 80! Never had pain in the joints and bones before. Headaches, nausea, blurred vision, dizzy- I'd rather have the endo pain instead of this!

Hello - this is my first approach to get information on alleviating the bone pain associated with Lupron. I have been taking Lupron since the summer of 2001 after a radical prostatectomy. How flashes re common and almost tolerable, but the bone pain or leg cramps are not. I have tried Megace, Oil of Primrose, and Quinine sulfate, all useless. Has anyone found a remedy for the cramping? Thanks in advance. PS - this text corrects some typos in a previous submittal. Jim

Hello - this is my first approach to get information on alleviating the bone pain associated with Lupron. I have been taking Lupron since the summr of 2001 after a radical prostatectomy. How flashes re common and almost tolerable, but the bone pain or leg cramps are not. I have tried Megace, Oil of Primrose, and Quinine sulfate, all useless. Has anyone founda remedy for the cramping? Thanks in advance.

I took Lupron several years ago after having a laparoscopy for endometriosis. I had headaches- night sweats - hot flashes - bone pain - and SEVERE depression. After I had a doctor wanting to test my bone density because they thought I had lost alot with this drug - I started reading up on it and stopped taking it altogether. To think that ME (22 at the time) lost bone mass!!!! I should be worrying about this in my later years--not as a 20 year old! This stupid drug also had a huge hand in my divorce after 3 months on this drug. I was thrown into a depression so severe, I couldn't control it at all. I recently found out through my state's attorney general's office that they won a settlement with Lupron for overpricing the drug - why isn't anything being done on the SAFETY of this drug? I worry that for the time I was on this - I need to be concerned with cancer... it did nothing but cause me pain and misery - and didn't help the problem!

I have gotten my second Lupron shot out of three this week. I looked up the side effects for Lupron before I started the shots. The main side effect for me, are the constant headaches. I am suffering from them everyday. I have tried over the counter pain meds, but they are not working. I have more bone pain, but I had that off and on before the Lupron shots. It is more acute than before. No weight gain, at this point. The hot flashes and nights sweats are starting to effect me. The Lupron has ease my constant bloating, due to fibroids. I do not need to take fiber pills now. I have felt some of the benefits, but the headaches are killing me.

Its been a little over a year since my first injection. Two weeks after my first injection I started having severe pain in my bones. It progressivley got worse. I went through with one more shot a month later becayse my Gyno said it wasnt from the lUpron. Its been a yr now and I've seen every specialist out there. No one can give me answer as to why A 19 yr old is suffering so much. I can barley walk in the morning. I'm lucky if I get out of bed. The leg, joint, bone pain has ruined my life. I've been on evry medication. Narcotics don't even help. I would suggest that any one who is thinking of taking Lupron should think twice.

Jessica

I was given 4 Leupron injections in 1994 prior to a total hysterectomy. Since those injections I have experienced
muscular and bone pain in that hip. Just recently I have
been having severe muscle cramps in that hip, buttock
area, upper thigh and down my leg. I am only experiencing
the pain in the hip and leg that received the injections.

Has anyone else had a similar problem ?

I was given the four month injection three weeks ago to throw me into menopause because I have breast cancer.
I have had breakthrough bleeding two weeks and the third week I have had excrutiating neck and back pain.
Mild night sweats, no hot flashes. Anxiety.
Pls e-mail if you have experienced the bone pain. Thanks.

I am a 23 year old female, and this is my second day of my first injection. My side effects were not bad until this afternoon, my injection site is killing my lower back, anyone else with that problem? Also feeling what I think is some type of dull ache bone pain. Felt sick to my stomach here and there but overall everything seems to be bearable. Anyone else with these symtons please e-mail me.

I had my second shot today. So far severe night sweats,bone pain in hands and feet,some numbness in arms and legs.No memory problems so far. If bone pain become worse will not continue treatment. Has not seemed to help with the endo as mich as I would have liked but am still hoping symptoms will improve.Also have nausea everyday!

HOT FLASHE'S, WEIGHT GAIN, BONE PAIN OF FEET AND SHOOTING PAIN UP SHIN BONE, GENERAL DISCOMFORT

headaches, bone pain, neck and shoulder pain, hot flashes