March 6th
2006
6:48 PM
I am 27 years old and have just recently completed six months of lupron. I had my last shot in January 2006. The treatment was for endometriosis. I had been in pain for over 10 years when I finally had a laporoscopy to diagnose the endo. I also experienced "mild" side effects from the lupron. But, let me state first that I CANNOT take any sort of hormonal birth control because of the estrogen. Everytime I have tried BC I have had mini strokes. During my pregnancy I also had a mini stroke due to the increase in estrogen.
While on the lupron, I actually felt better than I have felt in a long time. I had the occassional hot flashes, night sweats, and a lot of weight gain. I gained around 25 pounds in four months. I don't recall any other severe side effects. However, I was also on Elavil (anti-depressant) the entire treatment. So I'm not sure if that helped or not. My problem is that now after being off of lupron, I am having horrible feelings of nausea, dizziness, fatigue and horrible headaches. I went to the doctor today because of an excrutiating headache I have had for three days now. It is a weird headache. It only hurts in one spot on the top right side of my head and hurts when I move my head quickly or move my eyes. The doctor did blood work to check my thyroid and has scheduled a CT scan for next week.
Has anyone ever experienced severe side effects after completing lupron? I am wondering if it is the estrogen coming back. Am I better off to be on the lupron? If anyone has any comments or suggestions, please reply.
This registry is a place to share positive or negative side effects of using Lupron. If you directly experienced a side effect while using Lupron, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
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I need to take it all my life- isn't there any natural remedy somewhere?
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by lisa39, 6 replies, updated 3 days ago.
March 30th
2007
12:23 PM
I had my first Lupron shot on Jan 22, 07 to shrink an ovarian cyst that measured almost 4 inches. The hot flashes are quite ridiculous and wake me up every hour or so at night. I go from feeling so hot to so cold so fast. Also experiencing some joint paint - but I also have a mild form of Lupus and it could be related to that. Feel nauseous every couple of weeks. No periods. Other than that, until I get my next ultrasound to see if the cyst is shrinking, I have been quite happy with Lupron. It's not been fun, but it's better than the unbearable pain near the end of every period that kept me in bed for 2 days at a time. I've not felt any abdominal pain since early January so I'm hoping that means it's working. I feel awful for those who have had a horrible experience.
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