Lupron and fda

I just went to the Dr. for my second Lupron injection and to get some help with the side effects. Menopausal/emotional me, started crying!!! Gawd! I went in with my list of side effects from the last 3 months (and it was long!) and wondered what was worse, the pain of endometriosis or the life changing side effects of Lupron. My Dr. is wonderful and spent an hour with me; he decided to put me on Provera (progesterone or add-back therapy) for a week to see if the side effects improve. If they do, I get my second dose of Lupron in a week. If not, we stop it all and let my body slowly try to get back to normal (although I have never known what "normal" is since endometriosis) and see how the "therapy" worked. He is strongly encouraging me to follow through with the 6 month course as that is the recommended length of time for the best results. I'm 5'8" and have lost 10 lbs. in the last three months, I'm down to 107 lbs. He told me to try and eat more if I could (although my nausea is constant 24hrs. a day) and make sure to take a daily vitamin and calcium for bone loss. He said that he has never heard of blurred vision to be a side effect of Lupron, "But every woman is effected differently." I'm really hoping the Provera works - any kind of relief is better than this! I'm still having 3-4 hotflashes every hour with extreme exhaustion/fatigue, night sweats, daily migraine headaches, nausea 24hrs. a day, life changing mood swings, and shaky hands. He kept reminding me that this only 6 months out of my life - it's not forever ... forever feels like an awful long time when you can barely get out of bed!

Wow. I have been reading all of your comments about Lupron and I am shocked. Here I am fighting with my insurance company to let me take a second course of Lupron. I only was given 6 months worth and FDA (according to my insurance) won't allow me anymore because of the dangers????

I have been in severe pain with accompanying problems from endo. Had a complete hyrsterectomy already years ago, but the endo came back (which I did not know it could) in various other organs that you can't operate on. My only choice was Lupron. I would be down in bed 2 or 3 times a week with the pain from endo, which irritated my bladder, my bowels, my sex life, you name it. Upon receiving the 2nd shot I felt so good I almost screamed! NO PAIN! It was the best 6 months of my life.

Now I am in total and severe pain everyday. Having fibromyalgia on top of it does not help either.

Anyway, I just thought I would voice my experience with Lupron.

PLEASE READ BEFORE TAKING LUPRON DEPOT:
Hey there, I just thought I would add my experiences with the drug for everyone. I am a 25 year old with stage IV endo. I have already done a Laparoscopy and removed some of my endo. Started the Lupron on a six month treatment. My doctor said I would probably lose my period in a couple of months... well, I was due for my period two weeks after first shot and I didn't get it. I didn't have a period from then on.

This drug is great for only one thing: pain removal. It's been great for this aspect. I was in SO much pain that it was unbearable, but the Lupron Depot shots REALLY helped with this. No pain whatsoever.

HOWEVER:
Side effects: Wow...these are extreme!

WEIGHT GAIN:
Now, I am a very healthy person. I was a college cheerleader and in shape. I eat well and exercise very regularly. This did not help one bit after taking the shots! Within six months I have put on 30 pounds!!! And this is even though I am still exercising more than ever and eating amazingly! It just doesn't seem to matter.

HOT FLASHES:
My hot flashes are severe. I carry a fan with me everywhere I go--and use it all the time. They can come on me so sudden. Sometimes they are based on emotions (e.g. if I get nervous or excited or sad...they come on really strong).

NIGHT SWEATS:
Um, yeah...it's gross. I keep a fan on my face, the window open, barely any clothes on, no covers...and I still sweat!!!!!

INSOMNIA:
I have not had too many good night sleeps since I started the shots. I will say though that as long as I am kept cool through the night then I have a better chance of sleeping well

NAUSEA:
It's strange, but I never get nauseous...not even from motion sickness, but I have been starting on the last shot of the treatment. It was so bad that I would throw up!

One last thing, I tend to have a messed up equilibrium a bit. Seriously, I find myself walking crooked all the time!

On a whole the best I can say is that this drug makes you feel like it's not really your body. I kind of feel like my body has the flu or something.....it just feels weird and strange all the time. You can tell your body is all screwed up.

Other than that I haven't had anything else.

This drug is GREAT for pain removal and it's also nice to not deal with a period for a while, but the other side effects are so horrible that I would rather deal with the pain.

I just pray that the weight I gained will come off after the estrogen returns to my body....

REPORT LUPRON SIDE EFFECTS TO THE FDA:
https://www.accessdata.fda.gov/scripts/medwatch/medwatch-online.htm

Reporting your illnesses to this site does nothing. They don't even post the REAL number of people who put their comments on here and are sick from this drug. Please copy and paste the fda page & fill out a report. Something has to be done. Even the people that this drug "helps" may become very sick in the years to come and their doctors will deny that they or the Lupron was the cause.

Lupron can give you a horrible auto immune disorder. It did to me. I'm not kidding. Get off of it as soon as possible. You can email me for more info. This stuff is toxic and the FDA dropped the ball on approving it for use on us. I got terribly sick using this and I was so active and healthy before. I tried to sue them. Got bullied by their defense attorneys. I'm still sick. All the sickness was drug related. Trust me. Get off this drug. You are better off taking pain meds for any endo or whatever hurts than to put this in your body. Sorry to scare you. Be smart get off the stuff.

My father (92-yr) given a 1 month shot. He developed severe breathing problems and cried a lot then became very despondent and irritable. As a nurse, I did a lot of research and found a web site that lists 40 side effects for women and 43 for men (FDA ranked.)

Huge side effects after the second shot, never went back for the third. I've been to three doctors, two ER's and my partner called the police to take my to a psychiatic hospital. My liver function tests (AST and ALT) are abnormal. I have no memory, blurred eyesight, and generally unable to function at the simpliest task. I have called the FDA and filed a med watch form and called TAP pharm.

PLEASE everyone call TAP pharm (they know Lupron is bad) the number is ****** and the FDA ******

I have greatly improved by going to a Chinese trained physician, I highly recommend it. WE all have to complain.