Lupron and gyno

Hi, I'm writing this as well as having posted on the lupron petition. This is a nasty nasty drug. I had endo, adenomyosis, and nearly bled to death. I couldn't get a hysterectomy because I couldn't get insurance for a pre-existing condition. My gyno said Lupron's maker would donate a dose. I had a stroke about three days after taking the drug. I had complete double vision. I lost my memory, my mind, I had to have blood transfusions, I had horrible hot flashes, my memory still hasn't recovered nearly 8 years later. I would recommend that anyone who has taken Lupron do a mercury detox, because it is preserved with thimerosol, that's what turns it silver. The memory problems will subside somewhat when you do a heavy metal detox. Montmorillonite Bentonite can help. I have done some research and have read that endo can be caused by an infection, and that colloidal silver may be of use in treatment. I would go holistic, I would deal with the pain, or with anything other than Lupron, it wrecked me and I haven 't really been healthy since then.

Beware, don't fall for the hype, it's just not worth it. BTW, I finally had that hysterectomy. I've never felt better. But I'm glad I waited until after I was able to have a kid.

I am on my third moth of the Lupron shot! I was basically three choices as to how to take care of my severe Endo and severe Anemia caused by the Edno those three choices were 1. Do nothing and eventually bleed to death.
2. Take Lupron and 3. Have a Hysterectomy! Okay I am 27 years old and bleeding to death from a period is not an option I was even willing to ponder (what idiots for giving me such an option), having a hysterectomy was something I thought about but then after doing much research I decided No and I did research Lupron and although I read horrible things I felt that was really my only option to some hope of relief and I also thought, I am a big girl I can deal! Well I am dealing, I have not experienced a hot flash but I do have night sweats, headaches and feel sick to my stomach on a daily basis! The side effect that I really am suffering from is total hair loss. I mean I have hair on my head but I use to have the thickest hair and get so many compliments on it and now when I brush it, wash it, run my fingers through it or just put it up I literally will have a hand or brush full of hair. My hair was so thick I could not get it into a barette and I would have to use those think hair ties sometimes two hair ties and now I can use a kid hair tie and tye it once! Me and my baby niece who is 16 months old share hair tyes! I have done more research on Lupron since starting it and although I have not experienced many of the side effects listed that you could suffer a red flag went off when I read, it does not cure Endometriosis and there is really no cure, just pain management and so I am at the point where I believe I am going to stop and find alternatives myself and if that means going to GYNO after GYNO then so be it. The side effects I have suffered from are minimal however if the pain is going to return after I stop Lupron then why go through the pain of side effects? This is soley my opinion and I am posting to get it the madness of my chest that I allowed my Doctor the guy I pay take control of my health! I am now taking that control back.

Wow. These posts are too scary for words. I was diagnosed with endo of the diaphragm 6 months ago. My gyno suggested 6 mos. of the pill and then 6 mos of Lupron. Today is the last day of my pill--- I have an appt. with the Gyno tonight to discuss starting the shots. After reading all these opinions/posts, I'm thinking I'd rather just deal with the pain of the endo! What other options are there?? What can I discuss with the Dr.? I'm only 23 and I don't want to go through all this.... it seems I have no other choice.

Its been a little over a year since my first injection. Two weeks after my first injection I started having severe pain in my bones. It progressivley got worse. I went through with one more shot a month later becayse my Gyno said it wasnt from the lUpron. Its been a yr now and I've seen every specialist out there. No one can give me answer as to why A 19 yr old is suffering so much. I can barley walk in the morning. I'm lucky if I get out of bed. The leg, joint, bone pain has ruined my life. I've been on evry medication. Narcotics don't even help. I would suggest that any one who is thinking of taking Lupron should think twice.

Jessica