November 16th
2007
9:37 PM
I took one injection of Lupron for fibroids in Nov. 2001. It totally changed my life, I am no longer the same person I was before. It started with severe migraine headaches for 14 days straight and attacks of nausea, lack of appetite. I used to have a strong stomach - now I was very easily nauseated. I never went for the second shot. I began to have panic attacks regularly (I had not had them for over 20 yrs). I was tired all the time, and a person who used to work out at the gym 5 days a week - eventually I quit. Now I just walk. I feel about 65 yrs old (I am just 49). I look old, my face began to droop, my hair thinned. I had bouts of depression coupled with general anxiety. My migraines worsened. My sex drive dropped to zero, I feel almost "sexless". I used to be confident, now I was afraid of everything. I now suffer from irritable bowel syndrome - with bouts of diarrhea, bloating and severe gas pains. I have trouble eating sometimes.. I have had all the tests and no one can find anything wrong with me,and none of the doctors think all these problems are due to Lupron. But, I know - I was NOT like this before Lupron. It ruined my life. I just wish my doctor would have informed me of all the terrible side effects - she only told me about hot flashes. I looked into suing her for malpractice but the lawyers said they could not build a case with no real medical evidence that my symptoms are caused by Lupron. I just wish I had known then what I know now. I tell everyone - NEVER take Lupron. Six years later and I still feel like this. Oh what I wouldn't give to have not taken that drug.
-- By kkraft | Reply | (3) replies | Send Private Mail
July 6th
2007
9:34 AM
I have not taken Lupron. In fact, I refused to take it at my doctor's insistence. I am a healthy 45 year old woman - why would I give that up for a temporary fix (6 months at most) for my endometriosis when I may have other options?
I don't want to trade my low blood pressure, healthy body weight, healthy bones, ability to sleep, clear skin, normal bowel movements, lack of severe migraines and lack of irritability for lack of endo pain.
I do not discount the endo pain - it can be crippling - but so is this drug! Everyone must make their own decision regarding whether or not to take Lupron but please, please do your research. Most doctors don't let you know that you have options. Call the Endometriosis Organization and ask for a specialist in your area. Endo is a little-known and often misunderstood disease. Find yourself a surgeon with a great deal of experience with endo - NOT an OB with a great deal of experience delivering babies.
It really upsets me to see so many women feel that they have to pay this price to relieve the pain. I am going to an endo specialist for a second opinion in a couple of weeks. I don’t know what he’ll say about my case but I am pretty sure the answer won’t be Lupron.
I am not usually a person who senses a doctor or a drug company is unethical, but remember, there will be no greater advocate for your health than yourself! Educate yourself, and ask your doctor lots of questions. If your doctor gives you a hard time – find another one. It’s your body and you have to live with the consequences.
-- By annalisa | Reply | (1) replies | Send Private Mail
March 27th
2007
7:42 PM
Lupron is terrible! I was given lupron after my lap which discovered endometriosis. I had my second injection last week. My pelvic pain is still here and now the Lupron side effects are killing me. I have insomnia, restlessness, bad mood swings, back hurts all the time, fatigue all the time, depression, headaches, and awful HOT FLASHES. I was not given other options but to take this poison. If I had done my research I would have said hell no to Lupron. It's all about the money...Dr's and pharmacy companies are making the big bucks while most of us suffer. Oh yes, and my blood pressure, which is normally low (110/60) is now up to 150/100. I'm not thinking this is too great for my health. And another sad thing is that the long term effects are not really known. I WILL NOT take another injection. I would rather take my regular endo pain over this in a heartbeat. Don't let them fool you.......Lupron is a VERY BAD thing. Anyone who is thinking about....do you research and think long and hard . Is it worth it? I don't think so...
Kelly
November 1th
2006
10:58 AM
September 27th
2006
6:15 AM
My sister is currently on her 5th month of the Lupron shot. She has had serious, and unexplained complications that her doctors have been dissmissing as not results from the shot. She lost 45 lbs in less than 3 months, has high blood pressure, and recently blackouts. Her first resulted in only stitches, but the second time she was behind the wheel, and almost died. Now the doctors have banned her from driving, and are sending her to see Nuerologist, and Cardiologist for exams. They still say this is not a result of Lupron. Our family tends to dissagree.
-- By applesauce77 | Reply | Send Private Mail
April 20th
2006
5:29 PM
53 year old, runner, given shot for fibroids,Day after 1st shot (30 day) side effects started: High blood pressure, racing heart, shaky hands, flushing. Had these problems for a couple of days, then started with chest pain, chest heaviness, shoulder and neck pain feeling like I couldn't breath, pounding heart, barely able to make it up the stairs in my house. Ended up in the ER from the severe chest pain - all tests were normal.
additional side effects two days later - blurry vision at times, tingling in hands and feet, occasionally spreading up to my head, insomnia, pounding feeling in my chest, another trip to the ER - again all tests normal. Now on top of all the above, I am having severe indigestion and feel like I have a large lump in my throat and have a hard time swallowing. I still have 2 weeks left. Hope it all goes away soon - also have been bleeding for about 10 days - What a nightmare!!!
This registry is a place to share positive or negative side effects of using Lupron. If you directly experienced a side effect while using Lupron, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
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by celine302002, 3 replies, updated 1 day ago.
January 25th
2008
8:39 PM
Hi...I'm glad I found this sight! I don't recommend Lupron; I think its bad side effects outweigh its good ones.
I only took one 3-month shot of Lupron in July of '07. I had horrible hot flashes...which I was told to expect, but the vaginal dryness, lack of sex drive, weight gain, breast changes, vaginal dysfunction, and, I believe the high blood pressure I now have is associated with this drug. I actually started looking for side effects online because my blood pressure has been elevated ever since taking Lupron. It is now January '08, and I still don't feel normal!
-- By davism | Reply | (1) replies | Send Private Mail