January 28th
2008
8:25 PM
My husband and I found out he had Meatastic prostate cancer 13 months ago..We went to the doctor because his lymph glands were hudge.. He has been on the Lupron injections ever since.. He had really bad hot flashes for the 1st few months but that has past, but now he is very moody and angry for no reason.. He yells and gets angry over the littlest things i think he is going crazy and he is driving me nuts, he has no desire for me and is rude and acts like he don't even like me sometimes.. it is torture to me..He has depression he doesn't enjoy anything like he use to.. whenever we go try to have fun he gets all stressed and makes the fun turn into miserable..He acts as if he has no problems..He has some big rashes on his legs and crack and I am pretty sure it is from the Lupron shot also.. he has a little aches and pains. Very tired all the time..just about a week ago we found out the Lupron shot is not working very well anymore, his psa level went up to a 15..I am thankful for the shot because i know it has saved him some time to be here.. I love him so much, but the way he is now has caused me to feel like he is a grouchy roommate on his period 24/7.. There is other things like casodex to take but i heard it does not work as well as the Lupron..Hopefully one of these days they can find something that works even better then Lupron without the side affects..The lupron Shot has helped many people live longer, but what about the quality of life he is miserable but I am sure he rather be alive and miserable.. Good luck to everyone with the Lupron shot, it is a trying time when they or you go through these changes and do not understand why you feel negative and unhappy..
-- By sadwoman | Reply | (2) replies | Send Private Mail
October 10th
2007
8:34 PM
I just started my first Lupron shot yesterday & my jaw will not stop jittering. I had been getting hot flashes for the last 3 period & had slight insomnia. Last night I finally fell asleep at 5am to then have to get up at 6:45 am to get my son off to school. Due to the jiteriness that I've been feeling I feel as tho I am on some sorta crazy drug that I really shouldn't be on! After reading some others side effects on this sight I'm really starting feel I made a wrong decision going on this Lupron shot.... My Dr. refused to give me a 2nd laparoscopy & I just couldn't handle the pain shooting down my legs from my abdominal area due to the endometriosis. I have always had BAD reactions to hormones... I should've known this wouldn't be good either. But my Dr. ensured me the side effects really were'nt that bad.... he's a damn lier!!!
-- By newlupronuser1 | Reply | Send Private Mail
August 31th
2007
6:20 PM
I am a 23 yr old mother of one. I have severe endometriosis and I let my doctor talk me into taking the LUPRON injection, without researching it first. My first week on the shot I started shaking severely and was always sick to my stomach. I now am in the second month of my first dose and I have no appetite what-so-ever, I am losing my hair, I swell in my knees, ankles, and stomach, I have severe mood swings, I am forgetful, and I only get about 4 hours of sleep a night (if that). Most days I hurt in the bend of my legs at the groin area and am unable to get off of the couch to play with my 3 yr old little boy. I now have to buy my clothes a size larger than what I wear because of all the swelling. Sometimes I shake so bad that I can't hold anything in my hands or even walk straight.
-- By jodio | Reply | (1) replies | Send Private Mail
September 10th
2006
9:15 PM
I've been taking Lupron for a little over two weeks. I chose the back of my arms as the injection site. For the first thirty minutes or so afterwards I'll feel a slight numbing/tingling sensation in the arm that I recieved the shot in. I've also noticed increased muscle twitching in my legs and arms at night while lying in bed which makes it hard to sleep sometimes.
-- By shawnmichelle1205 | Reply | Send Private Mail
August 23th
2006
9:33 PM
I am too on Lupron and I've gained over 30 pounds from two IVF cycles. I have weakness in my legs. I am stoping the meds tonight. I hope there are other meds that I can take to control my cycles for my transfer. I just can't do it any longer!
-- By sheronceh | Reply | Send Private Mail
July 14th
2006
8:35 PM
My leg bones ache badly. Now my hip bones, both sides hurt. When I have been sitting for any length of time and get up, I can really feel it in my hip bones and legs. I am going see if taking a lot of calcium will help. With the pain in my bones and the hot flashes, if I could do it over again, I would try to find something else to help my endometriosis, and never, ever, get the shot.
-- By mslyn88t | Reply | Send Private Mail
May 15th
2006
4:00 PM
I have been taking 10 units of Lupron for the past 11 days as a prep for IVF. I feel terrible! I have gained several pounds. I have been having stomach pain and burning as well as abdomial pain. Now I am having weakness and numbness in both of my legs. The pain and weakness started as soon as I took the first shot, but when I told the doctor, I was blown off. Now I am having trouble walking. At times my legs feel as though they have fogotten how to walk. I hope that I don't have to take this much longer.
-- By clnber77 | Reply | Send Private Mail
May 4th
2006
1:35 AM
I started on Lupron because of extreme pain in my lower left abdomin thought to be ovarian cysts or endometriosis. Within 24 hours of each shot, it would feel as if my legs were broken. It hurt right into the bones and I wouldn't be able to walk or even sit comfortably. It would last about a week. I finally gave up, my mobility was so impared. Now, I'm waiting for exploratory surgery and possible hysterectomy.
-- By wallace917 | Reply | Send Private Mail
February 19th
2006
1:53 PM
I have been getting DEPO LUPRON 11.25 every 3 month for
prostate cancer for the last 15 months and I have swelling of my legs can this be one of it's side effects?
August 19th
2005
8:49 PM
22.5 mg every three months for prostate cancer. hot fllashs, sweats, body took on female appearance, hair loss on upper torso, swollen breasts, sensitive testicles, shrunken penis, Low back ache, weak legs, loss of equilibrium. Second opinion urologist took me off lupron, said it wasnt necessary. No problems with prostate at any time. Reaction disappeared except for low back ache, weak legs, equilibrium, shrunken penis which I have had 4 years and may be permanent.
-- By jerrykslr1 | Reply | Send Private Mail
April 10th
2005
12:50 PM
am 56 year old male taking lupron injections for prostate cancer for the last 10 months. Experiencing hot flashes, am very emotional, easily exhausted, used to play racquetball regularly but now can only handle a slow game of doubles, pain in pelvic area and legs, lost sex drive. Now I have a different pain -- my left leg feels like a boa constricter is wrapped around it -- it has been that way for almost a week (i got a three-month shot 1-1/2 months ago on my left side -- i'm trying to figure out if this pain is due to lupron
-- By lap04 | Reply | Send Private Mail
January 18th
2005
8:03 PM
I've been on Lupron for 1 month now. I've had hot flashes,night sweats very moody and I haven't been to work in 4 days because my hips and legs hurt so bad. The longer I stand the more I hurt. I'm scared.
-- By jenene | Reply | Send Private Mail
September 8th
2004
10:59 AM
I had one shot(long period styrength) of lupron a year ago.It brought my PSA down from 12.5 to 1.5 but as a very active 79 year old the side effects,particularly loss of muscle size and strength has really been disturbing. Even going up slight slopes is felt on my muscles and there is an accompanying loss of stamina. I wonder if there is an effect on heart muscles because my stamina has been so much reduced. Genitals shrank significantly (now regained after not taking the hormone a second time). There was also a minor reaction, complete loss of hair on my legs.As a formerly very active person I am really hesitant in having another shot.
-- By jorcl | Reply | Send Private Mail
September 16th
2003
10:31 AM
My husband started with the lupron in July 2003 (he gets a shot every 4 months) for prostate cancer. Happpy to report that the tumor has reduced and his PSA count is now normal, but the side affects of lupron are numerous. He is always hot, and we have a batttle of the covers at night, constant muscle pain in legs and back, very moody and its not natural to see a man cry so easily, because he had 90% of his thyroid removed and is taking thyroid replacement therapy (snythroid), for some reason he is so off balance, which seemed to have improved when he first started taking snythroid. He can't remember anything and is very unsteady on his feet. We live in NY City and his lawyer's office is in the city right across from Macy's Dept. Store in Herald Square. He gets really paranoid when we go to the city and holds onto me like a three year old. I am thankful that the lupron is helping him as far as the cancer is concerned but the side affects of taking this drug are numerous. My husband's breast are almost as large as mine and he complains constantly of soreness. He is just a mess to say the least. The doctor says he has to continue the shot until there is no trace of the cancer and the tumor is completely gone. This does not sound good to either of us. Our lives has changed so dramatically.
-- By carnicec | Reply | Send Private Mail
June 4th
2003
8:29 AM
i just had my 3rd shot this past weekend. I'm still having ALOT of hot flashes, and i hate them. I'm very emotional and cry over stupid things that never would have effected me before. I don't like that feeling. My sleep is awful. When i finally do fall asleep, i'm waking up constantly because of hot flashes and nightsweats. Because of my lack of sleep, i've had bronchitis twice already. I'm so tired all of the time since i'm not sleeping. I've noticed that i get annoyed easily and i'm beginning to feel increasingly depressed. A new side effect i've noticed is limb jerking. my arms or legs will suddenly give a slight involuntary jerking movement, somewhat like that feeling you get when you're sleeping and feel like you're falling. My weight is fluctuating. One week i'll have lost 5 pounds, then gained 7 pounds the next week and on and on...i'm annoyed easily and i have absolutley no sex drive. I hate this so much and don't want to ever do it again, but the thought of the pain i had before is even worse. i feel backed against a wall. i'd like to just have a hysterectomy and be done with it, but i'm too you apparently (25). I'm trying desperately to find out if this is my only option. there MUST be something else out there. anyway good luck everyone
-- By pravda | Reply | Send Private Mail
April 15th
2003
2:12 PM
Eczema, severe dry skin & hair growth out the wazooooooo, extreme facial hair growth, and i now shave my legs everyday instead of once a week. I also suffer from insomnia and hot flashes.
Now the good part I am pain free and anything is worth being rid of the pain from endometreosis. I have suffered with endometreosis for 19 years. This is really a saving grace.
April 28th
2003
9:20 AM
I have been on lupron for the past 2 months, I am moody, I forget alot, my breasts are getting flat, I can cry any time, lost insterest in everything, legs hurt alot, feel light headed, and sick, the headaches are so bad, the 2nd shot was my last..just wander if I will ever get back to my self again..
-- By bellbottomblues | Reply | Send Private Mail
This registry is a place to share positive or negative side effects of using Lupron. If you directly experienced a side effect while using Lupron, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
-- Please see our disclaimer
July 28th
2008
3:09 PM
I just went to the Dr. for my second Lupron injection and to get some help with the side effects. Menopausal/emotional me, started crying!!! Gawd! I went in with my list of side effects from the last 3 months (and it was long!) and wondered what was worse, the pain of endometriosis or the life changing side effects of Lupron. My Dr. is wonderful and spent an hour with me; he decided to put me on Provera (progesterone or add-back therapy) for a week to see if the side effects improve. If they do, I get my second dose of Lupron in a week. If not, we stop it all and let my body slowly try to get back to normal (although I have never known what "normal" is since endometriosis) and see how the "therapy" worked. He is strongly encouraging me to follow through with the 6 month course as that is the recommended length of time for the best results. I'm 5'8" and have lost 10 lbs. in the last three months, I'm down to 107 lbs. He told me to try and eat more if I could (although my nausea is constant 24hrs. a day) and make sure to take a daily vitamin and calcium for bone loss. He said that he has never heard of blurred vision to be a side effect of Lupron, "But every woman is effected differently." I'm really hoping the Provera works - any kind of relief is better than this! I'm still having 3-4 hotflashes every hour with extreme exhaustion/fatigue, night sweats, daily migraine headaches, nausea 24hrs. a day, life changing mood swings, and shaky hands. He kept reminding me that this only 6 months out of my life - it's not forever ... forever feels like an awful long time when you can barely get out of bed!
-- By tweetyrmj | Reply | (4) replies | Send Private Mail