March 6th
2006
6:48 PM
I am 27 years old and have just recently completed six months of lupron. I had my last shot in January 2006. The treatment was for endometriosis. I had been in pain for over 10 years when I finally had a laporoscopy to diagnose the endo. I also experienced "mild" side effects from the lupron. But, let me state first that I CANNOT take any sort of hormonal birth control because of the estrogen. Everytime I have tried BC I have had mini strokes. During my pregnancy I also had a mini stroke due to the increase in estrogen.
While on the lupron, I actually felt better than I have felt in a long time. I had the occassional hot flashes, night sweats, and a lot of weight gain. I gained around 25 pounds in four months. I don't recall any other severe side effects. However, I was also on Elavil (anti-depressant) the entire treatment. So I'm not sure if that helped or not. My problem is that now after being off of lupron, I am having horrible feelings of nausea, dizziness, fatigue and horrible headaches. I went to the doctor today because of an excrutiating headache I have had for three days now. It is a weird headache. It only hurts in one spot on the top right side of my head and hurts when I move my head quickly or move my eyes. The doctor did blood work to check my thyroid and has scheduled a CT scan for next week.
Has anyone ever experienced severe side effects after completing lupron? I am wondering if it is the estrogen coming back. Am I better off to be on the lupron? If anyone has any comments or suggestions, please reply.
August 25th
2005
1:37 PM
Reading the testimonials here about the side effects of Lupron made me relieved. I now feel I am not alone in suffering from these horrible side effects. I thought I was imagining things or making them up, as my doctor and nurse said that there should be no side effects at all.
My first injection was on Feb. 2005 and my last one (to last for three months) was on May. So starting today, the medicine should make its way out of my system, I hope.
The first few days after my first injection, I had horrible pain in my joints and bones, and I was extremely panicky. I thought I was losing my mind. My husband and mother found it hard to calm me down, and I missed several days of work.
Pain from my endometriosis and cysts did go away, but I still suffered from recurring urinary infections (which I've never had prior to the injection), hot flashes, dizziness, weird headaches, panic attacks, nausea, and several instances where I found it hard ot breathe and felt like fainting. And after reading this site, I realize my memory loss or inability to form sentences correctly sometimes is probably because of Lupron also.
My performance in my work has decreased since I've been on this medication. I have no desire anymore to please my husband. And sometimes I'd get really depressed or emotional for no reason at all.
Lupron has helped with the endo and cysts, but subsequently, I lost who I was before becoming ill. I don't want to say that it ruined my life, but since my first injection, my life has changed drastically, and not for the better.
My advice for those who will be treated with this drug, don't merely accept that there are no side effects and you'll be fine. Take a second opinion, do a lot of research.
The internet, from my experience, has been a lot more informative regarding my condition and treatment than many of the doctor's I've seen.
-- By nsyahmal | Reply | Send Private Mail
This registry is a place to share positive or negative side effects of using Lupron. If you directly experienced a side effect while using Lupron, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
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September 29th
2006
4:07 PM
I had my first injection of Lupron August 25, 2006 and the side effects have been horrible. They started out as mild headaches and joint pain too severe migraines and joint pain so bad that I can't walk at times. Not to mentions the hot flashes and night sweats. After 2 surgeries and 1 ovary left at the age of 26 they said that it was Lupron or hysterectomy. But the dr wanted to do the Lupron b/c I have had too many surgeries and he was wanting to avoid another one. I have been into the dr 3x this week and called them the other 2 days. They said that I was showing signs of stroke and put me on the add back therapy and painkillers and told me to get to the ER immediately if it got worse. That does not sound ok to me. I have missed so much work b/c I can't keep my eyes open and sick to my stomach from the severe migraines. I do not recommend taking the shot. Nobody told me of the real side effects until after I had the injection. If anyone has any ideas on how to get these headaches to go away it would be greatly appreciated. I feel like I am losing my mind.
-- By scheheraheglin | Reply | Send Private Mail