Lupron and migraines

I have read all of these post and I have also taken 1 dose of this drug and now I know all of my issues, including migraines and memory loss, and bone pain and I could go on and on, are all related to this crap drug. I am mad as hell. My OB even told me when I called the office because I actually thought I got a (let me think because my memory is so bad I can't even think when I type anymore) tainted, yeah, thats the word, or infected dose of LUPRON, it made me sick. But, no, it's just the stuff itself. She even told me, LUPRON doesn't cause headaches. You betcha I'll never return to that office. When, and if my memory fully recovers, including when I'm cooking in the kitchen and I can remember what it was I was cooking in the first place, I'd like to try to start a support group for all the women who took this stuff. It has almost ruined my life. I can't tell you the number of times I have sat in the shower and prayed to God to answer me why, and what is was wrong with me. He finally told me what was wrong with me...and it wasn't me. LL

I had my second Lupron shot this last mid October that lasts, supposedly, 3 months. So I will be 5 months in this mid December and I have to say I was one of the people who was fine with Lupron...up until now. I had and have all of the typical side effects of hot flashes, headaches, memory loss, mental fog, etc. Then I had my first ever migraine a week ago that knocked me on my butt for 2 days. My memory loss and depression are by far, by far, the worst side effect I have experienced. At this point I am concerned my memory problems and mind fog will not go back to normal, which has already adversely affected by daily life. I was one of the people who spoke positive of this injection even after reading all the horror stories but now I am beginning to wonder if they were right on some levels. When reading all the different experiences I would get confused and wouldn't know what to believe. I am not saying I would change things, the jury is still out as to whether the benefits will outweigh the difficulties, but my personal experience and symptoms have been getting worse just in the last few weeks, so that would be between month 4 and 5 on it. I could lead a pretty normal life up until recently and I'm a pretty tough person, I clean houses for a living and work hard with a packed schedule so I am not just stating little symptoms I experience but ones that actually have affected my daily life. Just being honest so you know what to possibly expect, depending on your body's reaction. That is a point to keep in mind, everyone's body reacts differently but if the majority of people are saying the SAME side effects, makes you wonder if there is a consistent pattern.

One thing I will tell you that has helped me is B vitamins regularly in your system and staying as active as possible. Write things down to remind you for the memory issues, don't over-commit to things because of the mental affects-it hits you hard when you can't follow through, and try to watch your sugar intake, which messes with your emotions. Hope this is helpful.
I would love to know from someone who has the same symptoms (which looks like almost everyone who is on it) and who is now off of Lupron for at least a few months, if the symptoms of memory loss and mind fog go away. Is my memory permanently damaged?

I am 30 years old and have been put on Depo Lupron after a laproscopy to help with endometriosis. I am 2 months into a 6 month course (one shot every 3 months) of Depo Lupron and my life has drastically changed. I started feeling life altering hot flashes and night sweats two days after the first shot and nearly drown myself in sweat 24 hours a day. I experienced a little postpardum depression after giving birth 6 years ago but have found myself sunk into a sinking hole of depression and anger like I've never felt before. I bawl at McDonald's commercials and become enraged if the dishwasher isn't loaded properly! I am ecstatic one minute and severely depressed the next. I have even had thought of suicide since being on this shot. I am normally a very outgoing, athletic, cheerful, happy person - but since taking this shot, I have become a stanger in my own head. I tell my family all the time that I need to "go stick my head in the freezer" to cool off because of the horrific hot flashes. I have to carry a handheld fan with me 24 hours a day and sleep with ice packs to keep cool. Since the shot started 2 months ago, I have lost all sexual drive, am thoroughly exhausted by 9am and find myself crying at my desk at work by late afternoon because I am so tired. My family thinks I am going crazy and I've never fought more with my husband. My daughter has gone to grandma's for awhile because I'm just so tired and irritable that I feel like an awful mother. Migraines have also come full circle since the onset of the shot as well as blurred vision and shaky hands. I'm a little achy throughout the as well. I know that everyone responds to medication differently, but I'm finding a lot of people with the same side effects as myself and have to wonder why the doctors don't warn patients about these types of problems before prescribing medications such as Depo Lupron. I don't think I'll be going back for the second shot. Could it get any worse?

hi I'm 28 yrs old and have been diagnosed with endo. i have been taking the Lupron shot since August 07. I'm only suppose to be on them for a year. 2 weeks after my 1st shot, i started getting severe headaches w/ nosebleeds. also, I'm so exhausted all the time. after my 2nd shot i started passing out with severe headaches. i told my doc about it and she took me off the shot til i got a cat scan which came out normal. at the beginning of February 08, i was back in the er room 3x in a matter of 48 hours, thats when an ob/gyn at the hos. gave me another shot of Lupron. since i got this 3rd shot, i started having severe migraines and passing out again along with extreme exhaustion. I'm very angry my doc won't do the hysterectomy. she says, I'm too young. but the shot sends u into perimenopause, whats the difference. i was taking the hormones as well before my doctor took me off the shot but they made me really, really angry all the time. when the doc at the hos. gave me the shot, she didn't put me back on the hormones. this shot is suppose to help me but instead its ruining my life. i have severe headaches and exhaustion with the shot and severe pain without the shot. i don't know what to do. I'm not suppose to have any pain after i get off the shot for up to like months or years i was told. the shot started to where off at the end of January and i had to get it again in February when i was originally suppose to take my 3rd shot. i still have pain in my stomach, it just makes it tolerable. my other side effects r: mood swings, hot flashes, night sweats, no sex drive, extreme nausea, depression, stomach pains, swelling in my stomach, weight gain, and of course severe headaches. this is effecting my life so much. i do not recommend getting the depro lupron shot to anyone. of course everyone is different, but if the shot effects u like this, i recommend u not taking it. i will not be taking my next 1. i will be calling my doc 1st thing tomorrow morning cuz i passed out Friday with my 6 year old daughter here and no one else. i have been so afraid of this happening with my kids here and it has happened. as a mother u don't want your children to have to go thru something like that without no one else around. has anyone else had these side effects? i can live with most of them, but i can't live with the extreme exhaustion and severe headaches with passing out. thank u for listening.

I took one injection of Lupron for fibroids in Nov. 2001. It totally changed my life, I am no longer the same person I was before. It started with severe migraine headaches for 14 days straight and attacks of nausea, lack of appetite. I used to have a strong stomach - now I was very easily nauseated. I never went for the second shot. I began to have panic attacks regularly (I had not had them for over 20 yrs). I was tired all the time, and a person who used to work out at the gym 5 days a week - eventually I quit. Now I just walk. I feel about 65 yrs old (I am just 49). I look old, my face began to droop, my hair thinned. I had bouts of depression coupled with general anxiety. My migraines worsened. My sex drive dropped to zero, I feel almost "sexless". I used to be confident, now I was afraid of everything. I now suffer from irritable bowel syndrome - with bouts of diarrhea, bloating and severe gas pains. I have trouble eating sometimes.. I have had all the tests and no one can find anything wrong with me,and none of the doctors think all these problems are due to Lupron. But, I know - I was NOT like this before Lupron. It ruined my life. I just wish my doctor would have informed me of all the terrible side effects - she only told me about hot flashes. I looked into suing her for malpractice but the lawyers said they could not build a case with no real medical evidence that my symptoms are caused by Lupron. I just wish I had known then what I know now. I tell everyone - NEVER take Lupron. Six years later and I still feel like this. Oh what I wouldn't give to have not taken that drug.

I am a 23 yr old mother of one. I have severe endometriosis and I let my doctor talk me into taking the LUPRON injection, without researching it first. My first week on the shot I started shaking severely and was always sick to my stomach. I now am in the second month of my first dose and I have no appetite what-so-ever, I am losing my hair, I swell in my knees, ankles, and stomach, I have severe mood swings, I am forgetful, and I only get about 4 hours of sleep a night (if that). Most days I hurt in the bend of my legs at the groin area and am unable to get off of the couch to play with my 3 yr old little boy. I now have to buy my clothes a size larger than what I wear because of all the swelling. Sometimes I shake so bad that I can't hold anything in my hands or even walk straight.

I just took my 5th shot last week. The hot flashes are terrible some days and hardly noticeable others. Some times I just want to scream in anger for no reason. I feel like I'm hypersensitive to everything. I don't want to cry, I just want to lash out in anger. I've got one dose after this and am praying that it will have been worth it to have some relief from the endometriosis.

I have not taken Lupron. In fact, I refused to take it at my doctor's insistence. I am a healthy 45 year old woman - why would I give that up for a temporary fix (6 months at most) for my endometriosis when I may have other options?

I don't want to trade my low blood pressure, healthy body weight, healthy bones, ability to sleep, clear skin, normal bowel movements, lack of severe migraines and lack of irritability for lack of endo pain.

I do not discount the endo pain - it can be crippling - but so is this drug! Everyone must make their own decision regarding whether or not to take Lupron but please, please do your research. Most doctors don't let you know that you have options. Call the Endometriosis Organization and ask for a specialist in your area. Endo is a little-known and often misunderstood disease. Find yourself a surgeon with a great deal of experience with endo - NOT an OB with a great deal of experience delivering babies.

It really upsets me to see so many women feel that they have to pay this price to relieve the pain. I am going to an endo specialist for a second opinion in a couple of weeks. I don’t know what he’ll say about my case but I am pretty sure the answer won’t be Lupron.

I am not usually a person who senses a doctor or a drug company is unethical, but remember, there will be no greater advocate for your health than yourself! Educate yourself, and ask your doctor lots of questions. If your doctor gives you a hard time – find another one. It’s your body and you have to live with the consequences.

I just finished my last shot in my six month treatment of Lupron. My doc tells me he wants me to do another six months because he has never seen anyone with so few side effects. I haven't had any hot flashes, very few headaches, I'm a little achy now and then, and my moodiness is tolerable. The only thing I would like to change is my ability to get a full night's sleep. I always feel exhausted and like I don't have too much energy. My question, however, is about blood pressure. Since I have started the Lupron, my pressures have consistently been 20 points higher than normal and it's getting to the point where my doc says I need to do something (like hypertension meds) for my own safety. Does anyone else have this from the Lupron? I am 27 and the Lupron has completely taken away my endo pain!!

I am 21 years old and have two children, I have been dealing with endo for about 3 years now, I have tried it all, I have used every type of birth controle there is out there, I have had 3 laprascopic surgeryies to try and remove it, I have tried hormone pills, a lupron nasal spray, and now the lupron shot, this is my last resort short of a hystorectomy.....the endo pain is truely unbearabel for me....but since getting the lupron shot I have had hot flashes, mood swings, bone and joint pain, migrains, night sweats, memory loss and a rash....I hardly can work because of the side effects and am on the verge of losing my job, mostly because I have so few "good" days since starting this shot about a month ago, my fianc'e and I argue alot now....mostly because he doesn't seem to be able to understand what I am going through.....if you are going to be put on any hormonale therapy please just make sure you do your research....I am also taking the add back therapy which seem to be of no help.....good luck...

I WAS ON LUPRON FOR 6 MONTHS. IT WORKED GREAT FOR MY ENDO SYMPTOMS BUT IT CAUSED SO MANY OTHER PROBLEMS. THE HOT FLASHES WERE UNREAL. I WAS NOT MYSELF,MOODY,CRYING ALL THE TIME. IT PUT A HUGE STRAIN ON MY MARRIAGE, FAMILY,AND FRIENDS. I GAINED WEIGHT 10 LB. THE FIRST MONTH.AND ANOTHER 10 THE SECOND SHOT AND STILL COUNTING.LEG PAIN,BREAST LUMPS,DRY SKIN. IT HAS BEEN ALMOST A YEAR SINCE MY LAST SHOT. I HAVE ALL MY ENDO PAIN BACK, IT CAME BACK ALMOST AS SOON AS THE LAST SHOT WORE OFF. MY DR. WANTS ME TO DO IT AGAIN. BUT I WOULD RATHER SUFFER FROM THE ENDO. I STILL HAVE WEIGHT ISSUES, TERRIBLE MIGRAINS, SADNESS. I DON'T FEEL LIKE I AM THE SAME PERSON FROM BEFOR THE SHOT. I AM 30 YEARS OLD AND FEEL LIKE AN OLD LADY. I CAN BE FINE ONE MIN. AND THE NEXT IN SO MUCH PAIN I CAN HARDLY WALK OR SIT. I DON'T WORK BECAUSE I ONLY FEEL "GOOD" A FEW DAYS A MONTH. I DON'T UNDERSTAND WHY DR.'S WON'T LISTEN TO THE LADIES WHO HAVE TAKEN THIS DRUG. DO NOT TAKE LUPRON.

I was on Lupron for endo 4 and 5 years ago, two times. The second time without add back therapy. I started migraines at that time and basically had them for 2 years almost non-stop. I am ultra sensitive to estrogen level. I also had joint aches, night sweats, and severe depression. I finally had a hysterectomy two years ago and got rid of my migraines with a nice steady dose of estrogen. I can't lose the weight. I still have joint pain.

The first time I used Lupron was about 6 years ago for 8 LONG months. The hot flashes and mood swings were rough at first, but became unbearable towards the end. That, however, was the easy part. I experienced severe depression, and weight gain of about 40 pounds. It did help the endo pain like I could not believe, though.
After about 3 years, I had to go back on it, and at this time, I was engaged to my current husband. I had to warn him that I would be a psycho like he had never seen. It was even worse the 2nd time around. The joint and bone pain was/is unbearable. It has been three years since my last injection, and I still have osteoporosis, severe migraines, joint pain, and have gained a total of 80 POUNDS!!! I work out, eat right, but nothing will take this weight off. My thyroid has been permanently damaged. I am only 31 years old, and I have to make sure I don't fall or bump into anything because my bones could break!
Please, do your research. It DOES work for the endo, no question about that. I feel like a new woman in that area, but I feel like I'm 80 in every other way.

I am currently on my Lupron and have found it to be a nightmare for me! I am only on it for one month. My doctor is wanting to see if the cyst and fibroids are the sourse of my pain. My pelvic pain has pretty much ended, but I would take it all back in a heart beat if it meant all these side effects would go away. Hot Flashes lasting about 10 minutes at a time, night sweats so bad I have had to change my clothing, migrains (I've had 5 in two weeks) that just knock me out for a full 24 hours, memory loss, joint pain, itchy skin, and mood swings like nothing I have ever experienced. To top it all off, I have had quite heavy bleeding while on it as well. I finally called the doctor and told him I was suffering more now than before the shot. He is going to put me on a small dose of esterdol (sp?) and see if that will help while I wait for this junk to leave my body. I just pray the effects will not be permanent.

I am happy for those who have found help for endo and cancer from this drug and I realize that some people will not have serious effects, but a certain percentage does. There's no way of knowing what you will do until you try it, but just be prepared that you could be one of unfortunate ones who do suffer horrifically while on Lupron.

My Doctor must really hate me! That is what I keep telling myself after my first Lupron injection. It has been absolutely horrible. Sure, my fibroid pain is better, but that is a small consolation compared to the migraines, hot flashes, night sweats, mood swings (very severe and un able to control) , memory loss and just kind of brain fog all day long, and horrific joint pain. All of which keeps me awake all night. It's been so bad I can't even appreciate the fact that the pelvic pain is better. I just pray these side effects will not cause permanent damage. I think our doctors need a good shot in the butt of Lupron for prescribing this stuff!

I do realize though that this drug has helped many people who are suffering with endo and that not everyone will experience these side effects. You will not know what your body is going to do until you try it. I don't know what the percentage is of people who do suffer while on the drug, but I just know I am definitely in that percentage and will NEVER take another injection of this stuff and will look over my doctors shoulder to make sure he writes in my records not to ever give me this stuff again!

I had my first injection of Lupron August 25, 2006 and the side effects have been horrible. They started out as mild headaches and joint pain too severe migraines and joint pain so bad that I can't walk at times. Not to mentions the hot flashes and night sweats. After 2 surgeries and 1 ovary left at the age of 26 they said that it was Lupron or hysterectomy. But the dr wanted to do the Lupron b/c I have had too many surgeries and he was wanting to avoid another one. I have been into the dr 3x this week and called them the other 2 days. They said that I was showing signs of stroke and put me on the add back therapy and painkillers and told me to get to the ER immediately if it got worse. That does not sound ok to me. I have missed so much work b/c I can't keep my eyes open and sick to my stomach from the severe migraines. I do not recommend taking the shot. Nobody told me of the real side effects until after I had the injection. If anyone has any ideas on how to get these headaches to go away it would be greatly appreciated. I feel like I am losing my mind.

I have been getting the 7.5mg injection once a month since July 2006. I had a uterus the size of a 5 month pregnancy and have several fibroid tumors. My uterus has shrunk (not sure about the fibroids) but I have been having so many side effects I don't know if I would do this again if someone told me about them. Thankfully my last shot was Sept 8th and I will have a hysterectomy in October. I did lose the stomach but regained it with the weight gain!!!! My bones are always aching, constant teeth ache, headaches (mild migraines) every day. Now I have been experiencing dizziness and nauseous. I have been coming home from work the last couple of days because of this. I am so tired all the time - I take a nap during my lunch hour to just get through the day. Oh and the memory loss is so difficult for me. I cannot even remember co-workers names. I can't remember what I was supposed to do when I get across a room. I have to set a timer to remind me that I am cooking dinner!!!! I would definitely not recommend Lupron for any long time use. If my doctor told me that I would have to get another shot - I would say NO!!!!

I just finished my first month. I have endo and adenomyosis. Those symptoms are SO much better. The most frequent side effects for me are hot flashes, memory loss, breast size reduction, slight weight gain, and fatigue ~ but the worst is the migraines. The are pretty much daily.

I was given Lupron 2 years ago to treat my endometriosis and I am still suffering from the side effects...migraines, joint pains, numbness of both hands sometimes, weight gain,hair thinness....when will these side effects stop?

I've had 2 lapo surgery's and 3 yrs ago I went thru a different type of Lupron shots. A year ago my endo pain returned in full force. I started my new set of Lupron shots 2 weeks ago. My first concern was that my period lasted 10 days and That's never happened before. And now I've started having horrible migraines not to mention the mood swings and nightime hot flashes. But so far it's all worth it because my extreme endo pain is almost gone. Hopefully it will all be gone soon.

I wasn't due for my second shot until Dec. 1st and not sure if I was going to get it. I decided to get it and got the second and last shot on Nov. 17th (my bday) Yeah happy bday to me. Once again I have really bad hot flashes all day and night long. The anxiety was severe again too. I was put on medication for the anxiety back in September after the first shot, so I just started taking it again. I didn't have any weight gain from the Lupron, but I did from anxiety meds. My migraines were really bad for the first month of both shots, but after that they went away. Almost done with Lupron thank god. Good luck to all who are on it or who are going to start it.

I am only 29, and Lupron makes me feel 75! I am having memory loss. My body hurts when I move. My migraines have gotten worse, more frequent. Weight gain is not mentioned in their info but I know it is from Luporn. I have been on it for 11of the past 14 months. Miserable, but praying it works. If it doesn't work this time, I will not do it again.

Six and a half weeks ago I had laprascopic surgery to find out what was causing me all my pelvic pain. I had seen a number of doctors for my pain and they all said the tests are fine, there is nothing wrong with you. Finally I found the doctor that did the surgery. This doctor found some tiny cysts on both ovaries, small scaring, and a whole about the size of a dime in the little pouch on the back side of the uterus.(not sure what it is actually called). He suggested the Lupron shot as treatment for this problem. I did some research but I didn't find out about the side effects I have read on hear. It has been a little over 3 weeks since I got my first lupron shot.
The hotflashes started within a couple days. I don't have them once in a while I have them all day and night long. Now I am getting the hot flashes and then after it stops I am freezing. In the past couple days I have become very nervous and anxious, crying, scared, heart feels like it is racing, and a sharp pain in my chest. I also suffer from daily migraines and the lupron has made them worse. Since these new symptoms started on the weekend I can't get a hold of my doctor. I am calling him first thing in the morning. I am still having the pelvic pain. The only time I don't have the pain is when I am having sex (it used to hurt worse during sex before the shot). I have always had a high sex drive but now it is higher than it ever has before. My breasts have grown a little, which is not a problem because I am small chested (happy they didn't get smaller). I can't think straight, trying to talk to people is not working so well. I get fumbled and can get a word out right. Typing this message has taken me so long when normally it would have been done in no time at all. Before this shot I typed 90+ words a minute. Now I think it's about 20 and always having to use the backspace key. I am really getting scare about these symptoms. I am not supposed to get my next and final shot until december. I really don't want to get it. Sorry if I was too descriptive in this message. I am just going crazy.

I'm 44years old.My last shot was the 8 oh may,a week after that i suffer a Mini Stroke (TIA).The doctors believe it was because of the Lupron.No Doctor want to say that for sure.Before the TIA,I have some of the symptems of many of yours like,fatigue, decreased libido, : cholesterol, triglycerides,migraines,disorientation, memory loss ,hot flashes, sleep disorder,lost vision on my Right eye.
After The TIA,this is what I'm suffering at this time.(The most misleading information given is that the TIAs do not do any lasting damage. They do, believe me. I have done a lot of searching, getting info on TIAs and the cause of them. I have kept a graph of when they occur and their severity. Those affecting the right side of the body leave different problems to those affecting the left .TIAs, they are a slow, destructive condition that badly damage the patients confidence in living normally. I never go out on my own now in case of a TIA.
I describes the feeling as like a rippling sensation over the top of her head, this is quickly followed by loss of feeling in either left or right side. Right side tends to affect speech, giving garbled nonsense instead of normal conversation. These TIAs tend to go quickly and do not cause much damage. Left side TIAs cause the weakness in arm and maybe leg as well, but seem to affect co-ordination and awareness. I Don't know what I'm doing, but can speak normally. These TIAs do have more lasting effects, as she can be "vague" for a couple of days before snapping back. .
And all of that Because of Lupron,Can some one help us Please. ******

I just received my second shot for Lupron. I took my first shot three months ago and had very mild side effects. I have some hot flashes, back pain, occasional migraine, and food cravings, but overall I feel better. (I have metastatic breast cancer that has spread to bone, which is why I'm taking Lupron, along with Femara and Zometa).

I also continue to take excellent care of myself (which I have for years), including working at a job I love, taking daily long walks, some yoga, very clean diet, acupuncture, homeopathy, and supplements. Taking 200 mg of alpha lipoic acid with meals and eating many snacks throughout the day seems to help with the migraines as this evens out my blood sugar.

Overall I'm pleased with the drug and all my doctors agree that I'm doing extremely well and, amazing as it seems, after quite an ordeal, getting well.

K

I am 24, and was diagnosed with endo at 18 after suffering excrutiating pain since I was 11 when the "curse" started. I started lupron for a six month period prior to my second lap, and I felt hot flashes more than anything. I was so excited about not having any pain that I forced myself to ignore anything else. After the surgery, I felt pain during my periods, but it wasn't bad at all. Slowly, but surely, the pain returned, and became just as bad as when I was 18.

Last year,(spring of 2003), I couldn't take it anymore, and none of the painkillers worked at all, so my Dr. put me back on lupron in Sept. of 2003.

I HAVE NOW TAKEN LUPRON FOR 21 MONTHS OUT OF MY LIFE!!! It was my choice to do so, because of the pain, and in hopes that I am saving a few eggs in my one ovary. I still experience hot flashes, but not as bad or as frequent as before. The bad news is I have gained 40 pounds, and exercise does NOT help. I do have migraines, but only once in a while, and I do have trouble remembering a lot of things. I constantly forget words, to pay bills, and even names of people I see everyday.

THE WORST IS THE WEEK BEFORE THE SHOT IS DUE. I BECOME AN EMOTIONAL MESS, CRYING, SHAKING, DEPRESSED, AND VERY NEEDY. Nothing helps, but when I get the shot, I'm ok. I tell my fiance it's my estrogen fighting testosterone, and he seems to buy it. Inside I'm paranoid.

I am also having trouble with my eyes. It's hard to focus on anything, they feel itchy, watery, and the pain from the migraine is worsened when I can't get my eyes to focus.

I plan to stop the shot in sept of 2005, and hope to start a family. IF THERE IS ANYONE OUT THERE WHO HAS TAKEN LUPRON FOR MORE THAN SIX MONTHS, PLEASE EMAIL ME AT ******

I just had my third shot of Lupron about 2 weeks ago and my side effects are becoming stronger but it isn't so bad that it interfers with my normal routine. The most severe side effects that I have noticed is migraines and night sweats. I am 21 and taking this for endo. This was basically my only option if I wanted to have kids in the future so it is well worth the pain and suffering for 6 months. I believe what had helped ease my side effects is loading up on plenty of soy(for hot flashes & night sweats), calcium(for my bones), chromium(for yeast), and add back called norethindrone that my doctor prescribed.

I have had 4 shots of Lupron, after having surgery for endometriosis. I am 39 years old and had the surgery for a suspicious ovarion cyst found on ultrasound. Turns out I had significant endometriosis, but have had 3 children despite this. My side effects have been hot flashes, insomnia, back, spine and hip pain and most distressing, an increase in migraines. I tried taking the add back therapy but that just increased my headaches. After recently vomiting during a migraine, my heart started racing and beating irregularily. My husband brought me to the ER and I was given IV's to get my heart back in rhythm and was also given numerous tests to see what was wrong. They were all normal. The atrial fibrillation may have been caused from vomiting, from the Lupron, who knows. When I went to my OB after all of this, she took me off of the Lupron. My advice is to think hard before taking this drug. It definately helped my pelvic pain, but as a mother with 3 small children, I felt the side effects were too difficult for me.

In July of 2003 I recieved my 2nd round of injections after BEGGING not to have then again. I had them 8 years ago for endometerosis, but after 6 laps, it just grows right back in a matter of weeks. No meds seem to easy my suffering, except when a sympothtic docter gives a script for a pain killer from time to time. The depression hit like a brick wall, i was thrown into the pits of hell emotionaly over night. They started adding more lupron for the increased pain and I lost it. I sat on my kitchen floor with a scaple and made a decision i'm sure I would never had made with out that shot running my life, it was me or the endometreosis that night. So I cut right down into my own belly looking for it. Now, i'm an educated for the most part stable woman, and this shot made me ragging crazy. I thought, women need to know that these hormons are not meant to be taken lightly. Has any one else lost there marbles while on this? I since have had migrains that land me in the ER, and have gotten my scrupples back, but for three months. I was not me. And to tell you the trueth, only the good Lord got me through. I was recentley aproved for a hysterectomy, but was told that the effects of that would equal that of the lupron. Think about it hard befor you bend over and take that shot.............

I was diagnosed with endometriosis in Novemmber 2003 from having a diagnostic laproscopy. I am getting a shot of Lupron every month for 6 months. The side effects are getting worse each month....hot flashes, migraines, constant hunger...I've gained about 10 pounds, feel and look bloated all the time...lately i've been feeling really depressed, i cry all the time for no reason. very paranoid. My body hurts increadibly bad- my joints when i wake up are horrible.

I was diagnosed with Endometriosis in March 2002 and a few months later started taking Lupron. My doctor wanted me to take it for 6months, but after the 3rd month, I could no long take the side effects. Before starting Lupron, I had the endo pains, but was pretty much healthy. After starting the Lupron injections, the pain did not improve, only worsened. I had unbareable hotflashes all day and night long. I still have them from time to time and I am only 19. I also have migraines (which I never really had before Lupron). And to top it all off, my immune system is so bad that if I am around anyone that is sick, I will get sick also --no question. Of course, I'm not able to prove that any of this is from the Lupron itself. And I know that it has helped others. But I wish someone would of better informed me before I started the treatments. The doctor only told me that it would put me into a chemical form of menopause and would make me pain free. I just want anyone who is thinking about starting Lupron therapy to really consider all of the risks before doing so. If you really feel its something that you need, then far be me to try to tell you not to do so. But definitely research it as much as you can, as doctors are most likely to tell you only the good aspects (since they are only making money in the long run).

Doc wants to do Lupron prior to surgery. After reading the feedback here I am very aprehensive. I'm 37 - suffering with endo since 15. Should I just demand a hyst? No child bearing in the past or future. Anyone find success with the treatment without additional headaches? I already get migraines about once a month. More would push me over the edge.

Complicated migraines, scar tissue on brain, traveling parasthesia, hypertension, thyroid nodules, hair loss, insomnia, memory loss, depression, fatigue, decreased libido, increased: cholesterol, triglycerides, & liver enzymes, gastro-intestinal disorder, etc...............