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Lupron and muscle weakness

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50 Side Effects posted for Lupron

June 10th
2008
8:54 PM

I had surgery in August, 2006 for Endometriosis, and a Lupron injection 2 wks later. That one injection changed my life. Even though it was a year and a half ago, I'm still feeling the effects. Which is what brought me to this site -- I'm searching for an answer.

These were/are my symptoms:

-- I experienced immediate and increasing hot flashes that lasted for nearly 6 mos.

-- Extreme fatigue and the "activativation" of Epstein Barr Virus. I started sleeping 18-20 hrs/day and lost my career job because of it.

-- Cognitive dysfunction, memory loss, loss of concentration, etc.

-- Blurred vision (and I have otherwise perfect vision!)

-- To date, I have gained 40 lbs that will not budge no matter what my diet!

-- I have severe muscle weakness and burning (such as if I go up a
flight of stairs). Muscle atrophy and stiffness.

-- My joints (hips, knees, feet) hurt and I have a lot of back pain.

-- I have TMJ quite badly and it causes my arms to go numb.

Last year my doctor ordered a hair analysis for heavy metal poisoning -- and my levels were off the charts. I've read that Lupron is suspended in thimerosol, or mercury, and that raises a host of issues that I'd like to research, if anyone has info on that.

Today, I am doing much better in terms of being out of bed and active, but I am unable to lose the weight, despite an organic, all natural, gluten/dairy/sugar/corn/soy/caffeine/etc. free diet! My belly is always bloated and big.

I am really active, but I tire easily and still haven't been able to get over that "hump", as it were, and really exert myself. Before my surgery and the Lupron and the EBV, I was an avid dancer. It is my passion and I can hardly do it at all now. I cannot swim a full lap in a pool without my leg muscles burning.

I have read of some people having good experiences with Lupron, but I have read far more horrifying ones. Part of me doesn't want to accept that Lupron is the cause of what I'm experiencing...could it really be that simple? And part of me is happy to shed the burden of guilt that "I must just not be trying hard enough" in exchange for an outside cause. I guess research and knowledge is the best medicine in this case. =}

-- By jssrabbit | Reply | (1) replies | Private Message me

December 10th
2005
10:44 AM

Diagnosed with early prostate cancer in April, I chose external beam radiation and two three month injections of lupron as my treatment. Aside from the daily hot flashes and total loss of libido, I've experience extreme weakness in my pelvis and thighs after sitting for a period of time. I am now in the last week of the second injection. How long will it take for my libido to return and is the muscle weakness permanent or will it end when and if my testosterone ever returns to nomal levels. I am quite annoyed the full extent of the side effects of lupron were not discussed with me prior to treatment. I fear that the exhorbatant cost of this drug creates too great an incentive to proscribe it. I anyone can answer these question please post your experience.

-- By tonyhpta | Reply | Private Message me

December 13th
2002
11:15 AM

headaches, insomnia, hot flashes, EXTREME fatugie, muscle weakness, hair loss, weight gain

-- By mexphile2 | Reply | Private Message me


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