November 11th
2009
6:53 PM
I got diagnosed with endometriosis about a month ago and had emergency surgery. I had my first shot of Lupron a week after my surgery. I am now experiences the hot flashes, mood swings,and not being in the "mood". I have not noticed anyone else saying anything about the side effects being not in the "mood". I am only 24 years old and getting married in February. I need help!!!! I am suppose to get my second shot on the 23rd of this month. I am not sure if I should get it or not. My husband-to-be and I would like to start a family right after our wedding. I feel so bad for him I don't want him to have to turn to movies or anything else to have to get pleased. I am still young and should not be going through this. I need help and don't know what to do.
mpluv05
October 14th
2009
9:59 AM
ok, so I am 28yrs old just had my lap for endo on October 1 and my doctor has recommended lupron, and am going to be getting the med in a week to 2weeks,but after reading this I am soooooooooo scared to even get near this med. Its like you either take this with the hope of saving fertility and no pain..or not and have endo ravage your body and you will live with unbearable pain!!! I have no idea what to do,and i am so scared after reading this. Is there anyone that did not have weight gain, headaches etc...anyone that can testify that lupron actually worked for them? did any one have a baby after doing this. my bigs thing is being able to have a baby. Cause right now its my health on the line, my ability to have children, my ability to have a normal life free of endo pain or these crazy, horrible side effects...please help me!!!
-- By jadejean | Reply | (3) replies | Private Message me
May 22th
2009
11:03 AM
I've been searching for answers on LONG TERM side effects of Lupron hoping that it could give me answers as to what's going on in my body now!
23 yrs ago my fertility dr. gave me Lupron to inject MYSELF EVERY DAY (experimental back then). I had SEVERE endo since the age of 16 and was fighting that as well as trying to get pregnant thru invetro. I was 26. At 29 I had an emergency hysto. Now at 48plus I have chronic tendonitis where the tendons will shred off of the joints. I have been diagnosed with C spine and T spine disease, osteoarthritis and a mystery that I'm going to have to go to the Mayo to figure out (hopefully). I have tumors that are growing in my lower back...growing around nerves, tendons and bone, They aren't sure why they are there, why they are growing, or even what they are. Surgery removed 2 of them...but pathology shows foreign matter other than tissue/bone. All they DO know is that it is not cancer. One year ago I started losing weight (25 pds) for no reason. I'm now holding my own at 112 and hoping to figure all of this out. I can't help but wonder if Lupron or any other experimental drugs I was on has something to do with this. Is there anyone out there that used this drug so long ago??
April 16th
2009
11:22 PM
I am 26 years old and I was diagnosed with endometriosis last year (2008). I had pain in my lower abdomen for years and doctors always told me nothing was wrong but I knew there was. Finally a doctor did an ultrasound and found a 7cm mass on my left ovary. I also had a slightly smaller mass on my right ovary. My doctor told me that he would need to do a lap to remove the masses and possibly remove my left ovary because he could hardly see any ovarian tissue on the ultrasound. Thank goodness when he did the lap I was able to keep but ovary but he told me that I had one of the worst cases of endo he had seen. My right ovary was stuck to the wall of my abdomen due to the endo and I even had endo on my bowel. He removed what he could but not all of it was removable. He suggested that I go on Lupron for 6 months to "shrink" the rest of the endo. I have been on Lupron for 3 months. I just went and got my second 3 month injection. I have had some side effects such as Headaches, Bone pain, Hot Flashes, Insomnia, Drowsiness, Increased appetite and major Mood Swings. All of which come and go. I try to stay active but I don't over do it. It seems to help with the joint pain. Most of my side effects were in the first 2 months of getting the injections. I am told all the time that everyone reacts differently to Lupron and there is a pill you can take to reduce the side effects of Lupron but it does reduce the effects of the Lupron so my doctor suggested that I not take it unless the side effects were unbearable. I don't remember what it is called but if you are one of those people having major side effects ask your doctor.
-- By vstout73 | Reply | (2) replies | Private Message me
April 9th
2009
1:25 PM
Last year I had so much pain that I ended up in the emergency room twice. I was tested for everything and finally my doctor send me to the lab for an ultra sound. I was diagnosed with ovarian cysts and small fibroids. I was scheduled for a surgery and I was diagnosed with endometriosis on January 20, 2009 by laproscopic surgery. The doctor said my endometriosis is severe and the adhesions are all over my ovaries, bowel and bladder. I had another surgery march 3, 2009 to remove an ovarian cyst and endometrioma. The surgery was suppose to take 3 minutes or so and ended up taking 2 hours. The organs were stuck down so bad that the doctor ended up having to remove my right ovary and fallopian tube. The doctor scheduled me to start LUPRON on April 15, but after reading the comments here, I have decided not to try lupron. I am not in any pain now from my endometriosis, so I prefer to weigh my options. I ordered many books on the natural treatment of endometriosis and will try that avenue. I suggest that you read and research before trying any drugs, because at the end of the day we will be the ones suffering not the doctors.
-- By angel4lisa | Reply | Private Message me
January 18th
2009
2:31 PM
I WAS DIAGNOSED WITH ENDO ABOUT 10 YEARS AGO WHEN I WAS 21 YEARS OLD. I WAS TOLD I WOULD HAVE TO HAVE A TOTAL HYSTERECTOMY BY THE TIME I WAS 25. I LIVED OUT OF STATE AND DID NOT LIKE THE DOCTOR I WAS SEEING SO I JUST DISMISSED IT. YEARS LATER AFTER MOVING BACK HOME AND GETTING MARRIED TO A WONDERFUL MAN WHO DOES NOT HAVE CHILDREN ( I HAVE TWO) I WENT TO MY OLD DOCTOR THAT I WAS REALLY COMFORTABLE WITH. TOLD HIM ALL OF MY SYMPTOMS AND ABOUT MY PAINFUL PERIODS AND HOW ME AND MY HUSBAND HADN'T GOTTEN PREGNANT AFTER FOUR YEARS OF TRYING. HE SCHEDULED ME FOR A LAPROSCOPY TO LOOK AROUND AND SEE WHAT WAS GOING ON. HE IS ALSO A FERTILITY SPECIALIST SO I KNEW HE WOULD TRY TO DO WHATEVER POSSIBLE FOR US TO HAVE A CHILD. I HAD A CHOCOLATE CYST ON MY RIGHT OVARY, ENDO, AND THE ENDO HAD FUSED MY BOWELS TO THE LEFT SIDE OF MY ABDOMEN. I HAD ALWAYS HAD PROBLEMS WITH CONSTIPATION BUT I JUST THOUGHT I WAS LIKE ALOT OF OTHER WOMEN. HE TOOK CARE OF ALL OF THAT AND WHEN I WOKE UP HE TOLD ME HE WOULD LIKE FOR ME TO GO ON LUPRON ONCE A MONTH FOR THREE MONTHS. THIS WAS ON SEPT. 11TH. I HAD READ ALL THE BLOGS BEFORE HAND ABOUT LUPRON AND I WAS VERY SKEPTICAL AND JUST PLAIN SCARED ABOUT TAKING IT. MY DOC TOLD ME IT WOULD HELP W/ THE PAIN AND AFTER TAKING IT FOR THREE MONTHS IT WOULD HELP US GET PREGNANT. I TOOK MY FIRST INJECTION BEFORE I LEFT THE HOSPITAL THAT DAY. THE FIRST COUPLE OF WEEKS I REALLY COULDN'T TELL ANY SIDE EFFECTS EXCEPT FOR HOT FLASHES. THEN THE HEADACHES STARTED. I HAD ALWAYS GOTTEN MIGRAINES, BUT THESE ARE 100 TIMES WORSE. I COMPLETED MY THREE MONTH CYCLE OF TAKING LUPRON ON NOV 6TH. I HAVE TURNED INTO A MOODY, CRANKY, ANGRY PERSON. IT IS UNCONTROLLABLE. AFTER MY LAST SHOT BEGAN TO WEAR OFF I GOT A HEADACHE SO BAD MY HUSBAND HAD TO PICK ME UP FROM WORK AND TAKE ME TO THE E.R. THEY TOLD ME IT WAS HORMONAL AND THAT I WOULD JUST HAVE TO DEAL W/ IT. THEY GAVE ME A SHOT AND SOME SAMPLES OF BUTALBITAL. THE SHOT DIDN'T DO ANYTHING AND THE BUTALBITAL ONLY MADE ME SLEEPY. I HAD THIS HEADACHE FOR OVER A WEEK. THEN IT JUST WENT AWAY. WHEN I HAD MY LAST SHOT MY DOC TOLD ME I WOULD HAVE A PERIOD WITHIN 6 TO 8 WEEKS AND WHEN I OVULATE AFTER THAT I SHOULD GET PREGNANT. IT TOOK ME OVER TEN WEEKS TO START. I FINALLY STARTED MY PERIOD A COUPLE OF DAYS AGO. I FEEL AS IF I HAVE ALREADY HAD A CHILD WITH ALL THE BLEEDING AND THE PAIN. IT IS UNBEARABLE. I FEEL SO SORRY FOR EVERYONE AROUND ME BECAUSE I DON'T EVEN KNOW THAT I AM BEING HORRIBLE. THROUGH THE LUPRON I HAVE GAINED 20 POUNDS, HAVE HAD SEVERE HEADACHES, HAVE BECOME VERY FORGETFUL, VERY VERY MOODY, AND JUST FEEL LIKE A TOTAL DEFERENT PERSON AND NOT IN A GOOD WAY. I WILL NEVER TAKE LUPRON AGAIN!! NEVER. IF ME AND MY HUSBAND DO NOT GET PREGNANT AFTER THIS I WILL JUST HAVE THE HYSTERECTOMY AND BE DONE WITH IT. I AM HOPING I BECOME LESS MOODY SINCE NOW MY BODY IS STARTING TO GO BACK TO NORMAL. OR AT LEAST I HOPE IT IS. HOW AM I SUPPOSED TO GET PREGNANT WHEN I AM SO MOODY THAT NO ONE CAN STAND TO BE AROUND ME? PLUS I NEVER WANT TO HAVE SEX. DOES ANYONE KNOW EXACTLY HOW LONG IT TAKES LUPRON TO TOTALLY GET OUT OF YOUR SYSTEM?
-- By kat1977 | Reply | (5) replies | Private Message me
November 28th
2008
9:09 AM
I am 39. I suffered with endo for 5 years until I found a doctor who would operate on me. She did and found that my uterus and left ovary were, in affect, fused to my left side with edno. She could not even move the organs. So, she could not cut out any endo. She suggested Lupron Depot therapy for 6 months in order to shrink the endo by depriving it of estrogen. I just completed the 6 months and it was great. The only side affect I noticed was a few hot flashes each month. They got a little worse in my 5th and 6th months. And, in this 6th month, I experienced some mild spotting. All in all, it was a great experience and I actually lost 5 lbs during the 6 months! It was SO great to be without the pain and without my period for the time. What a breath of fresh air! According to my experience, I would highly recommend the treatment.
-- By mloperfido | Reply | Private Message me
September 14th
2008
4:23 PM
I was absolutely miserable on lupron. It all started with a softball sized cyst on my L. ovary that burst and landed me in the hospital from the pain. I didn't even know it was there! The Dr. went in to take it out with the scope, and told me that I had stage 3 endometriosis. I never had any pain, so I find it hard to believe that I even had endo. At any rate, he told me in order for it not to come back, I would have to go on Lupron. He told me I may have some hot flashes and vaginal dryness..I read the brochure on it and I thought the side effects would be worth saving my reproductive tract.
I gained 30 lbs during my 4 months on lupron. The hot flashes were terrible, I would have 2 or 3 in an hour, drip sweat, and then freeze. The vaginal dryness was so bad it itched internally, I had to use massive amounts of lube to have sex--which was nearly impossible because my boyfriend couldnt stand to sleep with me constantly moving around, dripping sweat, throwing blankets on and off. I began to have anxiety attacks and terrible mood swings.
I wouldn't recommend this medication to anyone, ever. I was on the monthly dose,refused to stay on the medication after 4 months (June), and just finally got my period a few days ago. I still get occasional hot flashes, especially during or after drinking alcohol. I am doing about an 1 1/2 hours of cardio a day, besides using my bike for transportation, eat clean 90% of the time, and weight train a few days a week. The scale is not budging and I've been at that for about 6 weeks. It is frustrating to say the least. Does anyone know how long it takes your body to get back to normal??
-- By kharistas | Reply | Private Message me
June 27th
2008
12:42 AM
I ONLY HAD ONE INJECTION AND THE SIDE EFFECTS WERE HORRIBLE. I HAVE A 2 YEAR OLD LIL BOY WHO IS WONDERFUL. WHEN HE WAS A YEAR AND A HALF I WENT TO THE HOSPITAL FOR SEVERE BLEEDING AND FOUND OUT THAT I HAD BEEN PREGNANT AND WAS HAVING A MISCARRIAGE. THEN 6 MONTHS LATER I HAD AN IRREGULAR PERIOD WHICH HAD NEVER HAPPENED BEFORE. I HAD ONE AND THEN TWO WEEKS LATER HAD ANOTHER AND IT WAS VERY PAINFUL. I WENT TO SEE MY GYN AND HE DID A VAGINAL ULTRASOUND AND TOLD ME I HAD A CYST THE SIZE OF A GOLF BALL ON MY LEFT OVARY. HE PUT ME OF A HIGH DOSE OF BIRTH CONTROL TO DISSOLVE IT. TWO WEEKS LATER I HAD TO GO BACK TO THE DR BC I WAS STILL IN A LOT OF PAIN. THE DR THEN TOLD ME HE WAS GONNA DO A LAPROSCOPE. WHEN I CAME OUT OF SURGERY THEY HAD INFORMED ME THAT I HAD ENOMETRIOSIS AND THAT MY BLADDER WAS STUCK TO MY UTERUS AND MY UTERUS WAS STUCK TO MY ABDOMINAL WALL. I ALSO HAD THE ENOMETRIOSIS ALL OVER MY OVARIES, UTERUS, AND BLADDER. IT WAS VERY PAINFUL. MY DR SUGGESTED THAT I TAKE A 6 MONTH TREATMENT OF LUPRON. SO I DECIDED TO GIVE IT A TRY. I TOOK ONLY ONE INJECTION AND THE SIDE EFFECTS WERE HORRIBLE. I HAD MOOD SWINGS, HOT FLASHES, STOMACH PAIN, CRAMPS, FATIGUE, TIREDNESS, JOINT PAIN, SWELLING, WEIGHT GAIN ETC... I CALLED MY DR AND HE PRESCRIBED A HORMONE PILL WHICH DID NOTHING. SO I DECIDED NOT TO TAKE ANYMORE INJECTIONS. THAT WAS ALMOST 3 MONTHS AGO. I AM STILL IN SEVERE PAIN SOMETIMES IT IS HARD TO GET OUT OF BED (WHICH I HAVE TO GET UP EARLY EVERY MORNING I HAVE A 2 YEAR OLD). I STILL HAVEN'T HAD A PERIOD AND IM EXTREMELY RESTLESS AT NIGHT I AM TIRED BUT CANT SLEEP. DOES ANYONE KNOW WHEN I SHOULD EXPECT A PERIOD??
-- By pann | Reply | Private Message me
June 16th
2008
6:26 PM
I am 30 years old and have been put on Depo Lupron after a laproscopy to help with endometriosis. I am 2 months into a 6 month course (one shot every 3 months) of Depo Lupron and my life has drastically changed. I started feeling life altering hot flashes and night sweats two days after the first shot and nearly drown myself in sweat 24 hours a day. I experienced a little postpardum depression after giving birth 6 years ago but have found myself sunk into a sinking hole of depression and anger like I've never felt before. I bawl at McDonald's commercials and become enraged if the dishwasher isn't loaded properly! I am ecstatic one minute and severely depressed the next. I have even had thought of suicide since being on this shot. I am normally a very outgoing, athletic, cheerful, happy person - but since taking this shot, I have become a stanger in my own head. I tell my family all the time that I need to "go stick my head in the freezer" to cool off because of the horrific hot flashes. I have to carry a handheld fan with me 24 hours a day and sleep with ice packs to keep cool. Since the shot started 2 months ago, I have lost all sexual drive, am thoroughly exhausted by 9am and find myself crying at my desk at work by late afternoon because I am so tired. My family thinks I am going crazy and I've never fought more with my husband. My daughter has gone to grandma's for awhile because I'm just so tired and irritable that I feel like an awful mother. Migraines have also come full circle since the onset of the shot as well as blurred vision and shaky hands. I'm a little achy throughout the as well. I know that everyone responds to medication differently, but I'm finding a lot of people with the same side effects as myself and have to wonder why the doctors don't warn patients about these types of problems before prescribing medications such as Depo Lupron. I don't think I'll be going back for the second shot. Could it get any worse?
-- By rmjtweety | Reply | (10) replies | Private Message me
March 19th
2008
10:14 PM
I am taking Lupron as I had horrible endometriosis, two large-grapefruit sized tumors and several smaller implants removed. I lost my right ovary, and part of my left in the process. I am 28, newly married, otherwise healthy, and I want to have children, so I went on Lupron that my surgeon/OB suggested- monthly for six months. I read a lot of side effects and was TERRIFIED to go on it.
My own husband is an M.D. and I made him call different doctors in his hospital to see what they had to say...in a few days he called about 5 different OBs. Thankfully, they said that those that had side effects that were extremely severe was pretty rare. Still, I was scared.
I am now into my second month on Lupron and I have to say that the side effects aren't nearly as severe as I thought they would be. No hot flashes, no hair loss, no crazy depression, no anything else. I DO have fatigue, but it's manageable with coffee and extra sleep. I have some mood swings- mostly I feel more grumpy. The most noticeable and bothersome is the lack of sex drive and vaginal dryness. I also have trouble achieving "the big O."
Still, so far, very manageable. I'm not sure if it'll be worse if time goes on. But I feel like everything on the internet is really negative. I'm not discounting the tales of people who have had a bad time, but I wanted to put out there that it isn't always the worst thing in the world.
-- By suzannes | Reply | (2) replies | Private Message me
October 7th
2007
9:53 AM
well i havent started the shots yet but by what i am reading here i am not so sure i want to get these shots!! they found my endo a couple months ago and i have to have the shots but i really am scared!! i have much pain and problems now but it seems like the shot is going to make me worse!! i dont know what to do!! does anyone have any good sites for me to go on and do some research on these shots? someone help i dont know what to do!!! fara
-- By faraway2 | Reply | (3) replies | Private Message me
September 26th
2007
3:25 PM
I am 17, soon to be 18, and have suffered from this horrible pain over my right ovary (basic area) for near 5 years now. I have missed my whole high school years, ended up being home schooled from the pain and graduating early. I FINALLY have a job that I love, but I'm afraid I won't be able to last. I go in to work with pain, get fevers because of either the pain or inflammation. I have had 2 laps, the first one showed nothing (I also, in 8th grade when all this started, had a 5.5cm cyst on my right ovary), the second showed endo on my right ovarian ligament. I have tired almost every birth control out there, and all they do is make me 10 times worse (odd, but true). Now this new doc wants me on Lupron. After all I have read, I'm scared to take it. I'm supposed to take it Friday. The bad thing is, I already have an auto immune glitch (we believe, every problem I have is linked to auto immune), I don't want to be worse. Recently I was on DEPO, which is horrible (seriously, don't take it you gain so much weight and it is so hard to get off, you bleed for like a month or more after you stop... it's awful). Every time I get this pain I bleed 10 min later, badly. I just want this gone, but I don't want any other problems too occur. If anyone has any links that specifically list the side effects of lupron or anything else that might help me, I would love it.
-- By jazz1020 | Reply | (1) replies | Private Message me
May 1th
2007
9:04 PM
In brief, I am a 35 year old mother of two. I have been suffering with endo since I am 14. I had a span of 4 years with no symptoms at all and in Sept. 05 I had a total hysterectomy for endo and cancer cells on my cervix. I recently spent a week in the hospital for 2 endometriomas which are on the one and only ovary I have left, they are both bleeding and my doctor whom I trusted and his colleagues recommended a 6 month depo-lupron injection treatment before they do surgery to fix up the endo, they are reluctant to remove the remaining ovary due to my age but I will INSIST until someone listens. They did not tell my husband or I about any side affects and because I was in a tremendous amount of pain and because I trusted Dr. Shine so much I accepted the treatment, they faxed my husband the prescription at his work and he had to go find it when he did finally found it he brought it to St. Marys hospital and the nurse injected me and 2 days later I went home, I was sent home with celebrex, iron pills and morpheine pills for the pain...well I was back in the ER 3 days later because the pain was unbearable, my blood pressure was high and I was going insane, I met with the gyno on call and she expressed her disgust with her colleague for not telling me about the side affects of lupron and how the drug worked. My first shot was on the 13th of April and today is the first day I am feeling human, I have little endo pain but let me tell you the hip and back pain are killing me slowly. I am a very active mother and wife and I play sports but even the thought of that now hurts. I have not been able to work and will not return until I feel good, I am REALLY scared of getting the next injection which will be on the 11th of may and my new doctor told me to go through with the treatment for the next 5 shots because even though it will not be easy she insists that it will help me and once I am done they will perform surgery, I have set-up 2 other appointments with specialists and my Family Doctor is the only one that has been there for me, he follows me daily and has set-up a bone density test. Is there anyone with similiar situation that can help me out. I have other side affects but the hip and back pain are the ones I will never forget, I think I would have 10 more births drug free then to have to experience the pain again after the next shot...
-- By tigerrs4 | Reply | Private Message me
September 29th
2006
4:07 PM
I had my first injection of Lupron August 25, 2006 and the side effects have been horrible. They started out as mild headaches and joint pain too severe migraines and joint pain so bad that I can't walk at times. Not to mentions the hot flashes and night sweats. After 2 surgeries and 1 ovary left at the age of 26 they said that it was Lupron or hysterectomy. But the dr wanted to do the Lupron b/c I have had too many surgeries and he was wanting to avoid another one. I have been into the dr 3x this week and called them the other 2 days. They said that I was showing signs of stroke and put me on the add back therapy and painkillers and told me to get to the ER immediately if it got worse. That does not sound ok to me. I have missed so much work b/c I can't keep my eyes open and sick to my stomach from the severe migraines. I do not recommend taking the shot. Nobody told me of the real side effects until after I had the injection. If anyone has any ideas on how to get these headaches to go away it would be greatly appreciated. I feel like I am losing my mind.
-- By scheheraheglin | Reply | Private Message me
August 10th
2006
4:08 AM
I am 21 and I have had endometriosis for the last 5 years. I currently have a large cluster of endo on my right ovary that is causing extreme pain. I have already had a laporoscapy in the past and my doctor wants to try the lupron this time around. Let me just say that I hate it. I cannot bear it anymore. I would rather have the surgery again. I have been suffering from TERRIBLE headaches. I am also very moody, have awful hot flashes, night sweats,and nausea. If you can avoid taking the medication, please do.
-- By lindsaysfairies | Reply | Private Message me
April 21th
2006
3:19 AM
Had surgury to remove ovary from endrometerosis then in about 5 yrs. had a laparascopy to remove endro again. I am 31 and the Insurance would not pay for complete removal of female organs to get rid of it once and for all. So doctor said Lupron Shots. I was on them for 3 months. It started out after 1st month with cravings leading to weight gain, severe headaches, being dizzy, breathing problems, THEN by the 3 1/2 month mark things changed drastically pain in foot couldn't walk traveled to my shoulder and arm thought I was having a heart attack so was ambulanced to hospital all test showed nothing. I could not walk was in a wheelchair and pain plus all the other effect above. Sent to a neurologist who told me some truthfull answers finally. SIDE EFFECTS LISTED FOR THE PHYSICIANS TO KNOW BUT NOT TOLD TO ME WERE ( PARALLISES AND COMPRESSION OF THE SPINAL CORD) I did not have my 4 th shot of Lupron and after a 2 more months and a lot of prayer from my church family God came thru and healed me I am up out of the wheelchair and walking as if none of this nightmare happened. I have to deal now with the excessive weight yet hopefully it will go too.
-- By lsedlow | Reply | Private Message me
February 6th
2005
6:59 PM
I was definitively diagnosed with endo at 27, but had symptoms for years prior. I am now 42. My doctor told me at the age of 27 he was not going to put me on Lupron, as the side effects could be horrific for a woman that age; my goal was not conception, but rather pain relief. He said if I could ride it out until I started showing menopausal symptoms, then we would go with the Lupron prior to hysterectomy.
The endoscopy done at that time bought me about 4 months of relief, then the symptoms started to slowly recur. With my having had a precocious puberty, it was a pretty sure bet I would go premenopausal in a few years.
Started at age 37; the endo pain has gotten so severe that it now keeps me up nights, mid-cycle (whenever that may be - my cycles have been doing their own thing now). I already have hot flashes, night sweats.
I was given the Lupron 2 weeks ago, in order to calm the inflamed lesions prior to my hysterectomy in a few months. They also plan on taking one ovary, and this will give my body an adjustment period prior to surgery (the hope is I can maintain my female hormone levels without redevelopment of full blown endo before I am naturally finished with menopause).
Headaches? Night sweats? Hot flashes? Insomnia? Had them before I started Lupron.
And in my case, I have lost 4 lbs in 2 weeks without really trying; except for the fact my craving for candy is diminished. I still eat some, but when I go to the store, I can pass the candy aisle without even having to browse, to see what's new. I just don't care anymore.
December 18th
2004
4:33 PM
I am 24, and was diagnosed with endo at 18 after suffering excrutiating pain since I was 11 when the "curse" started. I started lupron for a six month period prior to my second lap, and I felt hot flashes more than anything. I was so excited about not having any pain that I forced myself to ignore anything else. After the surgery, I felt pain during my periods, but it wasn't bad at all. Slowly, but surely, the pain returned, and became just as bad as when I was 18.
Last year,(spring of 2003), I couldn't take it anymore, and none of the painkillers worked at all, so my Dr. put me back on lupron in Sept. of 2003.
I HAVE NOW TAKEN LUPRON FOR 21 MONTHS OUT OF MY LIFE!!! It was my choice to do so, because of the pain, and in hopes that I am saving a few eggs in my one ovary. I still experience hot flashes, but not as bad or as frequent as before. The bad news is I have gained 40 pounds, and exercise does NOT help. I do have migraines, but only once in a while, and I do have trouble remembering a lot of things. I constantly forget words, to pay bills, and even names of people I see everyday.
THE WORST IS THE WEEK BEFORE THE SHOT IS DUE. I BECOME AN EMOTIONAL MESS, CRYING, SHAKING, DEPRESSED, AND VERY NEEDY. Nothing helps, but when I get the shot, I'm ok. I tell my fiance it's my estrogen fighting testosterone, and he seems to buy it. Inside I'm paranoid.
I am also having trouble with my eyes. It's hard to focus on anything, they feel itchy, watery, and the pain from the migraine is worsened when I can't get my eyes to focus.
I plan to stop the shot in sept of 2005, and hope to start a family. IF THERE IS ANYONE OUT THERE WHO HAS TAKEN LUPRON FOR MORE THAN SIX MONTHS, PLEASE EMAIL ME AT ******
-- By chela_lrr | Reply | Private Message me
October 1th
2004
7:07 PM
I am 17 years old, and have been dealing with cysts and Endo. since I was the age of 14. I'v had 3 scopes. Two of them to remove cysts (one on ovary and one inside of ovary, which was thought to be cancerous at the time, and was acutally neg.) Third scope, they found Endo. I just got my first shot of Lupron about 4 days ago. Havn't felt any side effects yet, and pray they won't be bad! My doc. put me on a pill to counter react the side effects, has anyone else been put on tha pill? If lupron don't work, what do I go to next? A Histerctomy? Too, scary for my age!
-- By danaedrewes | Reply | Private Message me
April 6th
2004
10:52 AM
I have taken my first shot almost 3 weeks ago. I am 36 years old with 1 child(15years old). I have a history of fibriods, scar tissue from prior surgeries. I only have 1 ovary due to cysts and tumor growth. I am in bad need of a tummy tuck due to prolapse abdomen muscles which leads to bad back pains. (Insurance won't cover) I do not know a day without pain to be honest. After my intial shot, I suffered a bad case of reflux. (Taking Protonix for it) Have gained some weight and feel very swollen. My legs are constantly hurting. I am not as active as I used to be, feeling very old & dry. I was already having menopausal symptoms before I started treatment (taking Zorloft)so the flashes & mood swings do not bother me. On the other hand I am not feeling the pain the same as I was and I feel in good spirits. Unlike others, I have increased sexual desire, problem is, I'm not currently in an relationship. After reading these comments not sure if I want to take a second dose. Has any female had any good results from the treatment? I really do not want an hysterectomy. Would appreciate any comments or shared views.
-- By laditea | Reply | Private Message me
November 14th
2009
7:20 AM
I am a 33 year old female who was diagnosed with severe endometreosis after an emergency lap in July of 2009. I had it around my bladder, a mass in my left ovary, and all over 3/4 of my pelvic walls. I have been on Lupron since. I just received my 4th injection. I was in severe abdominal pain that was steadily getting worse until this 4th injection, so I went to get a 2nd opinion. He recommended I stay on the Lupron. The goood news is the pain has finally eased! I am still foggy, forgetful, irritable. I am working out more than ever, am not losing, but not gaining anymore.
-- By tp1209 | Reply | Private Message meTo the people who wonder about getting pregnant after this, I have heard MANY wonderful stories of people who were able to after this treatment...so it is a possibility :) I had my son when I was 21, and am hoping to get married and have another child, so I am holding onto the faith that this will work.
I know that this feels horrible with all the side effects, but if there is even a possibility of having another baby, I am willing to go through it. Good luck to you all!