March 24th
2008
2:41 PM
Wow, I must be one of the very few lucky people out there that had a good, no awesome experience with Lupron. After graduating from High School in 2005, I moved on to college. It was here that I started gaining weight, having blurred vision, moody, bad periods, intense cramping, and just general unhappiness. I just wanted to be normal. After gaining 100 pounds in 2 years, yeah thats right, I went from a #1 Volleyball player, Im tall, who weighed in at 150 pounds to a 250 pound unhappy woman, I decided that I needed help, I wouldn't eat for days, and I would gain 10 pounds. SO, off I went to the doctor. Well, after 43 blood tests, 9 xrays, 5 ct scans, 2 ultra sounds, 10 trips to the ER and so many bills I was in debt, I had an answer. Polycystic Ovarian Syndrome. My only question, Thats IT?? Well now, a surgery could cure that right?? Ha, so I had surgery and that is where they found Endometriosis lining my insides, wonderful, how much more lucky could I get? haha. That is when my doctor said I could try Lupron. She explained side affect, and gave me info, and said it was up to me. At this point I just wanted to finish college, so I went for it. Best decision I have ever made!! I finished my first 6 month treatment in October 2007, and have been pain free for over a year now, a few hot flashed and headaches were worth it for me, I have never felt better. Now Im married and trying for baby no 1, and I have never been happier. Goes to show the miracle of how each individual is different, and you never know whats going to happen in the future.
-- By wantingit | Reply | (1) replies | Send Private Mail
March 18th
2008
5:35 PM
I was part of a class action lawsuit that was about the price not the side effects. I got a small check as I just had a so-pay.
Anyway, I have to reiterate that LUPRON takes about 1 year to leave your system. I had a huge boil where the injection site was. (i had 3 shots, 3 weeks apart)
My tiny fibroid was not my problem. I had HEAVY, LONG (10 day) periods, the worst cramps ever, I was gaining weight although I rode my bike 10-15 miles a day, and swam 5 miles per week. I had a balloon ablation first, then the Lupron for another surgery that did not happen due to my uterus shrunk too much.
I then went to a fertility/endocrinologist specialist. He asked if I had my thyroid tested by my OBGYN. I said "no".
That was my problem! All that agony for 2 years and all I needed was a $20.00 blood test.LUPRON SUCKS...give it to your doctor~
March 2th
2008
7:17 PM
hi I'm 28 yrs old and have been diagnosed with endo. i have been taking the Lupron shot since August 07. I'm only suppose to be on them for a year. 2 weeks after my 1st shot, i started getting severe headaches w/ nosebleeds. also, I'm so exhausted all the time. after my 2nd shot i started passing out with severe headaches. i told my doc about it and she took me off the shot til i got a cat scan which came out normal. at the beginning of February 08, i was back in the er room 3x in a matter of 48 hours, thats when an ob/gyn at the hos. gave me another shot of Lupron. since i got this 3rd shot, i started having severe migraines and passing out again along with extreme exhaustion. I'm very angry my doc won't do the hysterectomy. she says, I'm too young. but the shot sends u into perimenopause, whats the difference. i was taking the hormones as well before my doctor took me off the shot but they made me really, really angry all the time. when the doc at the hos. gave me the shot, she didn't put me back on the hormones. this shot is suppose to help me but instead its ruining my life. i have severe headaches and exhaustion with the shot and severe pain without the shot. i don't know what to do. I'm not suppose to have any pain after i get off the shot for up to like months or years i was told. the shot started to where off at the end of January and i had to get it again in February when i was originally suppose to take my 3rd shot. i still have pain in my stomach, it just makes it tolerable. my other side effects r: mood swings, hot flashes, night sweats, no sex drive, extreme nausea, depression, stomach pains, swelling in my stomach, weight gain, and of course severe headaches. this is effecting my life so much. i do not recommend getting the depro lupron shot to anyone. of course everyone is different, but if the shot effects u like this, i recommend u not taking it. i will not be taking my next 1. i will be calling my doc 1st thing tomorrow morning cuz i passed out Friday with my 6 year old daughter here and no one else. i have been so afraid of this happening with my kids here and it has happened. as a mother u don't want your children to have to go thru something like that without no one else around. has anyone else had these side effects? i can live with most of them, but i can't live with the extreme exhaustion and severe headaches with passing out. thank u for listening.
-- By mtigerangel70 | Reply | (2) replies | Send Private Mail
December 13th
2007
8:10 PM
Hi All,
Just wanted to share a positive Lupron experience. I began Lupron in Dec 2005 and ended in Jan 2007. I took monthly Lupron shots for a year straight. However, my Dr. prescribed an add back drug called Norethindrone which I took once daily the entire time I was on Lupron. The only side effect I had was about a 10 pound weight gain. When I asked my doctor if this was from the Lupron he said maybe 3 or 4 pounds of it. I was eating right and exercising during this time period but was still gaining weight. About a month after I came off Lupron I began losing weight and was able to fit into my old clothes a few months later. I am sure it was the Lupron that caused me to gain weight.
If you are taking Lupron without any add back drug, this seems when all of the other horrible side effects come into play. Just wondering if anyone had a really bad experience even while taking the add back drug.
November 29th
2007
5:12 PM
I am Shela_lrr. I continued with Lupron until August 2005. Within 6 months I got pregnant, and had a beautiful baby girl in November 2006.
I know that Lupron saved my eggs as I had hoped, and I am so thankful. Even though I hated all of the side effects, I still think that I should go back to using it sometimes. No periods, and I would like to think that I still have more eggs to save. I am glad I used it.
This registry is a place to share positive or negative side effects of using Lupron. If you directly experienced a side effect while using Lupron, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
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by stacy888, 2 replies, updated 2 days ago.
July 28th
2008
3:09 PM
I just went to the Dr. for my second Lupron injection and to get some help with the side effects. Menopausal/emotional me, started crying!!! Gawd! I went in with my list of side effects from the last 3 months (and it was long!) and wondered what was worse, the pain of endometriosis or the life changing side effects of Lupron. My Dr. is wonderful and spent an hour with me; he decided to put me on Provera (progesterone or add-back therapy) for a week to see if the side effects improve. If they do, I get my second dose of Lupron in a week. If not, we stop it all and let my body slowly try to get back to normal (although I have never known what "normal" is since endometriosis) and see how the "therapy" worked. He is strongly encouraging me to follow through with the 6 month course as that is the recommended length of time for the best results. I'm 5'8" and have lost 10 lbs. in the last three months, I'm down to 107 lbs. He told me to try and eat more if I could (although my nausea is constant 24hrs. a day) and make sure to take a daily vitamin and calcium for bone loss. He said that he has never heard of blurred vision to be a side effect of Lupron, "But every woman is effected differently." I'm really hoping the Provera works - any kind of relief is better than this! I'm still having 3-4 hotflashes every hour with extreme exhaustion/fatigue, night sweats, daily migraine headaches, nausea 24hrs. a day, life changing mood swings, and shaky hands. He kept reminding me that this only 6 months out of my life - it's not forever ... forever feels like an awful long time when you can barely get out of bed!
-- By tweetyrmj | Reply | (3) replies | Send Private Mail