This registry is a place to share positive or negative side effects of using Lupron. If you directly experienced a side effect while using Lupron, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
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February 6th
2005
6:59 PM
I was definitively diagnosed with endo at 27, but had symptoms for years prior. I am now 42. My doctor told me at the age of 27 he was not going to put me on Lupron, as the side effects could be horrific for a woman that age; my goal was not conception, but rather pain relief. He said if I could ride it out until I started showing menopausal symptoms, then we would go with the Lupron prior to hysterectomy.
-- By zbmomma | Reply | Private Message meThe endoscopy done at that time bought me about 4 months of relief, then the symptoms started to slowly recur. With my having had a precocious puberty, it was a pretty sure bet I would go premenopausal in a few years.
Started at age 37; the endo pain has gotten so severe that it now keeps me up nights, mid-cycle (whenever that may be - my cycles have been doing their own thing now). I already have hot flashes, night sweats.
I was given the Lupron 2 weeks ago, in order to calm the inflamed lesions prior to my hysterectomy in a few months. They also plan on taking one ovary, and this will give my body an adjustment period prior to surgery (the hope is I can maintain my female hormone levels without redevelopment of full blown endo before I am naturally finished with menopause).
Headaches? Night sweats? Hot flashes? Insomnia? Had them before I started Lupron.
And in my case, I have lost 4 lbs in 2 weeks without really trying; except for the fact my craving for candy is diminished. I still eat some, but when I go to the store, I can pass the candy aisle without even having to browse, to see what's new. I just don't care anymore.