Lupron and severe headaches

hi I'm 28 yrs old and have been diagnosed with endo. i have been taking the Lupron shot since August 07. I'm only suppose to be on them for a year. 2 weeks after my 1st shot, i started getting severe headaches w/ nosebleeds. also, I'm so exhausted all the time. after my 2nd shot i started passing out with severe headaches. i told my doc about it and she took me off the shot til i got a cat scan which came out normal. at the beginning of February 08, i was back in the er room 3x in a matter of 48 hours, thats when an ob/gyn at the hos. gave me another shot of Lupron. since i got this 3rd shot, i started having severe migraines and passing out again along with extreme exhaustion. I'm very angry my doc won't do the hysterectomy. she says, I'm too young. but the shot sends u into perimenopause, whats the difference. i was taking the hormones as well before my doctor took me off the shot but they made me really, really angry all the time. when the doc at the hos. gave me the shot, she didn't put me back on the hormones. this shot is suppose to help me but instead its ruining my life. i have severe headaches and exhaustion with the shot and severe pain without the shot. i don't know what to do. I'm not suppose to have any pain after i get off the shot for up to like months or years i was told. the shot started to where off at the end of January and i had to get it again in February when i was originally suppose to take my 3rd shot. i still have pain in my stomach, it just makes it tolerable. my other side effects r: mood swings, hot flashes, night sweats, no sex drive, extreme nausea, depression, stomach pains, swelling in my stomach, weight gain, and of course severe headaches. this is effecting my life so much. i do not recommend getting the depro lupron shot to anyone. of course everyone is different, but if the shot effects u like this, i recommend u not taking it. i will not be taking my next 1. i will be calling my doc 1st thing tomorrow morning cuz i passed out Friday with my 6 year old daughter here and no one else. i have been so afraid of this happening with my kids here and it has happened. as a mother u don't want your children to have to go thru something like that without no one else around. has anyone else had these side effects? i can live with most of them, but i can't live with the extreme exhaustion and severe headaches with passing out. thank u for listening.

Hi All,
Just wanted to share a positive Lupron experience. I began Lupron in Dec 2005 and ended in Jan 2007. I took monthly Lupron shots for a year straight. However, my Dr. prescribed an add back drug called Norethindrone which I took once daily the entire time I was on Lupron. The only side effect I had was about a 10 pound weight gain. When I asked my doctor if this was from the Lupron he said maybe 3 or 4 pounds of it. I was eating right and exercising during this time period but was still gaining weight. About a month after I came off Lupron I began losing weight and was able to fit into my old clothes a few months later. I am sure it was the Lupron that caused me to gain weight.
If you are taking Lupron without any add back drug, this seems when all of the other horrible side effects come into play. Just wondering if anyone had a really bad experience even while taking the add back drug.

I was diagnosed with prostate cancer in 2004. Began taking Lupron Depot in 3 month intervals for 13 months because of the advanced stage of the cancer before radiation treatment. Almost immediately, side effects occurred, to wit: hot flashes, insomnia, mood swings, aggitation, severe headaches, ringing in the ears, dizziness, muscle and joint pain--particular in the neck, shoulders, elbows, knees and ankles--anxiety and panic attacks, bewilderment, night and day sweats for no apparent reason, high blood pressure and incidents of weakness accompanied by unexplainable general feeling of being ill. Ceased taking the Lupron in fall of 2004. I am still experiencing most (not all) of the side effects. Blood tests have shown the presence of the drug in amounts higher than expected still in my body however continuing to diminish. Good luck! Being strong willed is a must to endure many of the side effects delineated here. I anticipate I have 2 or 3 more years of hell before the Lupron dissipates from my body. "And this will pass..."

Had surgury to remove ovary from endrometerosis then in about 5 yrs. had a laparascopy to remove endro again. I am 31 and the Insurance would not pay for complete removal of female organs to get rid of it once and for all. So doctor said Lupron Shots. I was on them for 3 months. It started out after 1st month with cravings leading to weight gain, severe headaches, being dizzy, breathing problems, THEN by the 3 1/2 month mark things changed drastically pain in foot couldn't walk traveled to my shoulder and arm thought I was having a heart attack so was ambulanced to hospital all test showed nothing. I could not walk was in a wheelchair and pain plus all the other effect above. Sent to a neurologist who told me some truthfull answers finally. SIDE EFFECTS LISTED FOR THE PHYSICIANS TO KNOW BUT NOT TOLD TO ME WERE ( PARALLISES AND COMPRESSION OF THE SPINAL CORD) I did not have my 4 th shot of Lupron and after a 2 more months and a lot of prayer from my church family God came thru and healed me I am up out of the wheelchair and walking as if none of this nightmare happened. I have to deal now with the excessive weight yet hopefully it will go too.

This is the drug from hell! Nothing really happened after my first one-month shot, just a few mild hot flashes. My doctor had wanted to give me the three-month shot, but I insisted on the one-month to see how my body reacted. A month later I was given the three-month injection. The hot flashes increased dramatically. About a week later I started to feel like I was truly going insane. I was having serious panic attacks, I could cry over absolutely nothing, and I had this wierd disconnected feeling. Couldn't sleep, was exhausted yet had nervous energy, palpitations, feeling of unease all the time. This was pretty intense for a few days and was quite frightening. I had severe headaches, and I am not a person who gets headaches very often. Worst of all, I have had SEVERE joint and muscle pain. Twenty years of fibromyalgia was NOTHING compared to this. I had never had neck and back problems before, and now I'm experiencing pain all the time. I get weakness in my arms and legs, and often I feel a strange twitching feeling in my legs and neck. It has been over two months since I had that three-month injection. I'm due to go back for another one in early July, and I've already decided against it. The hot flashes seemed less intense for a little while, but now they're increasing along with night sweats. Nothing helps with the vaginal dryness, so my sex life is non-existent (not that I really care since this has killed my sex drive anyway). I had read about some of the scarier side effects before going through with this and asked my doctor about them, and he brushed my concerns off, saying that this stuff doesn't happen, I would likely just get some hot flashes. I'm very upset that I was pushed into having the three-month injection because now I'm stuck with this poison in my body. I think the pharmaceutical companies push the three-month injections. They got paid by my insurance company, that's all they care about and there's nothing I can do about this now. Anybody know if the doctors are getting kickbacks for pushing this on patients? For me this was follow-up treatment after having surgery to remove endometriosis and to remove one ovary that was severely affected. With that ovary gone I don't even know how necessary it was to follow up with Lupron. I'm 42 and will probably be going into menopause in a few years. Despite endometriosis I was able to have a baby at age 37 and was then free of endometriosis for almost four years. I will say I would probably think this was all worth it if I was going to try to get pregnant again, but I'm not, so I think this was all an unnecessary risk to my health. Anybody with similar experiences or info on Lupron, please feel free to email me at ****** Good luck to all!