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4,500 Side Effects posted for Mirena
 

February 9th
2010
9:12 PM

Hi, am sitting here reading these posts and finally I dont think I am going crazy; Have 3 kids, got the Mirena in about 15mths ago as was happy with my lot and have a child with Special needs so am really busy with him; Lately I have been in to my doc with lower back ache like I was 95 not 35, got an xray and all they saw was the mirena, but no problems, also went to doc as I never have a period but get all the pains and usually down 1 side which is so painful it makes me jump out of my seat; then in Jan I bleed for 10days, my GP said I was ovulating????????? Now I am in agony and I am bleeding since yesterday and it is BLACK in colour ???? I have no idea what it is going on with me, I have noooo sex drive at all, keep thinking Im pregnant as I have all the side effects, expecially morning sickness; Sex, if it happens can be painful too, dont want to get pregnant and not pushed on going back on the pill; In the past I have become pregnant very very easily and really dont want to take the risk???? WHAT SHOULD I DO AND IS IT THE MIRENA THAT HAS ME LIKE THIS

-- By autimum | Reply | Private Message me

February 9th
2010
8:16 PM

I had Mirena for year and half. a year after having it i started getting CHRONIC MUSCLE PAINS, SEVERE CHRONIC UPPER BACK PAIN, mainly left side, SHOULDER PAIN, mainly only left shoulder, ANXIETY, INSOMNIA, CHEST PAIN, BREAST PAINS, nAUSEA IN CAR RIDES, DAILY NAUSEA FOR 5 MONTHS, i thought i was gonna die from the pain all over my upper body!! Been to chiropractor, cardiologist, Emergency rooms twice, Primary drs.. all my tests were fine !!! the ob said its not related to Mirena. i even quit my job., that didnt help me get better.. I know it is Mirena that caused all that because as soon as i took Mirena IUD out i was getting better after 24 hours.. getting better day by day, i use to have to take advil everytime i left the house. muscle relaxers and 4 advils at once just to sleep....Now that the stupid MIRENA is out i can sleep breath and move with out taking medicine !!! WHAt a BIG RELEIF !!! I THOUGHT FOR SURE THAT ITS GONNA KILL ME...i never would recomend it to anyone!!! I suffered for 9 months until i removed it. i also heard it takes a TIME for the body to go back to normal so i am taking it easy til then. but i for sure feel better now that its out. what a reliefffff !!

-- By jessysnipsnip | Reply | Private Message me

February 9th
2010
8:15 PM

Mirena class action
My name is Jessica Bonner. If you are interested in joining the class action i am starting with the following lawyer Brian goldenfarb. He willing to help me. he wil work with another law firm. i spoke with him my self today told him whats going on. he is a PRODUCT liability lawyer. He said suing by myself wont work. the only way this can work is if i can gather at least 10, 20 or 30 people to go against this company it can happen, THE MORE THE BETTER. Class action is the only way. He is willin to do this. my homework is to gather as many woman as i can, and i need you to email my private email jessysnipsnip@aol.com and i need the following information: You dont have to be local, as long as you live in america. and knowing he is in my town i can be the one to visit him, and i know he is real. The local bar association of middlesex county has reffered him to me.
email me at jessysnipsnip@aol.com
1) Full name,
2) Address,
3) Phone numbers,
4) I need the email to include that it is ok for this lawyer to contact you, and call you.
5) When the iud was inserted,
6) When the side effects began.
7) if taken out, and when.
8) please keep any medical records as well on hand.

Please feel free to visit www.mirenalegalhelp.com

WE CAN DO THIS, I WILL BE THE LEADER, PLEASE JOIN ME AND EMAIL ME! I PROMISE I WILL MAKE YOU ALL HAPPY WITH THIS OUTCOME! WE SUFFERRED WITH PAIN AND WE NEED OUR JUSTICE, FOR LOSS OF TIME, LOSS OF JOBS, PAIN MEDICATIONS WE TAKEN, MARRIAGES THAT HAVE FELL APPART, UNKOWN PAIN, DOCTORS TELLING US ITS NOT RELATED, BUT WE ARE GETTING BETTER AFTER ITS OUT. THEN WE SHOULD NOT HAVE EXPERIENCED THESE HORRIFIC SYMPTOMS! THE TRUTH IS WE WERE SUFFERING FROM THE UNKNOWN MIRENA.

Brian Goldenfarb, Esq.

Law Office of Brian T. Goldenfarb

197 Route 18 South

Suite 3000

East Brunswick, NJ 08816

Phone (732) 514-6655

Fax (732) 514-6755

www.8778carlaw.com

bgoldenfarb@8778carlaw.com


http://home.intekom.com/pharm/schering/mirena.html

-- By jessysnipsnip | Reply | Private Message me

February 9th
2010
7:23 PM

I have pains in my groin area after urination I have had the mirena for 14 months and have only started experiencing these sharp pains after urinating now for the past few weeks

-- By mufasa60 | Reply | (1) replies | Private Message me

February 9th
2010
5:39 PM

For the person that said i should get it out.... Sure why not lets see my fience is bi-polar, adhd, and gets kidney stones contantly lost his job over it. So theres no income coming in at this household. Lets also not forget i get pregnant incredibly easily(my son was concieved while on bc and using a condom) and while on bc i also feel like id rather beat ppl over the head then hear what they have to say and with three children their bdays being 4/9/07, 1/9/09, and 11/8/09 that isnt an option. i havent been pregnant since my last child and thats wonderful for me. I have hypothyroidism which they say can make you infertile(deff not my case) which has also caused my last two children to be born 4 weeks premature my second child didnt have complications but my third spent two weeks in childrens hospital from being born with a collapsed lung.... and also when they say it doesnt enter your blood stream the mean directly enter it, it takes time for it to even take effect. but unless you all just have really bad doctors or something my ob even worned me that the worse side effect would be death, but under my situation this was my best option. plus i dont like having to take pain killers everyday, levothyroxin, blood pressure meds, and also try to remember a little pill. ive had migraines since i was 16 and the blood pressure med is to prevent them, had a hypothyroid since i was 16. But if anyone has a suggestion other than mirena id gladly listen. And getting my tubes tied was not an option im only 22!!!!

-- By pittygurl87 | Reply | Private Message me

February 9th
2010
2:48 PM

Just an update from my post below (February 9th, 2010 at 5:38am)....After I took out the Mirena, I felt such a sense of relief. I was a little worried that I'd hurt myself taking it out but since my doctor had done an ultrasound I figured I'd be ok & that it wasn't embedded. Anyway, for the first time in a long time, I slept like a baby last night, about 7 hours total! And I didn't have any nightmares like before. I also feel like a new woman this morning.....already feeling like I'm getting back to my old self. I did wake up with a migraine around 7:30 but my migraine meds knocked it out pretty quickly (Max-Alt....a wonderful medicine for migraines, by the way). I also didn't wake up starving like I had been doing. I'm spotting a little since taking it out, but I'm quite used to that from the last 40 days. I expect I'll start a period within the next few days but I don't care. I'm just so happy to have that thing out of my body! Thank you to all the people on here who are sharing your experiences. It made me feel so much better to have the truth about Mirena & to know that I wasn't losing my mind. It certainly helped me to make the decsion to take it out. I wouldn't suggest that everyone just go pulling their's out though, just in case your's could be embedded, as that could possibly be dangerous. I'll keep you posted w/how I do now that it's out. I'm wondering if anyone knows if there is an agency (FDA or CDC maybe?) we can report all of our side effects to so that the manufacturer can maybe put the truth in their literature. Any thoughts?

-- By katiedid70 | Reply | (2) replies | Private Message me

February 9th
2010
2:47 PM

I've had my mirena in for two years not and have not had a period at all. But all the side effects are still there. I feel as if I am soo BLOATED and can't release. I also have gained 70lbs in the last year and a half. I went from a size 7 to a size 15. I am going to have the mirena removed to get back to a healthy size. Oh yea the doctor told me that I would only gain 5lbs from the mirena.. I was lied too. Don't let it be you.

-- By datbabymama102 | Reply | (2) replies | Private Message me

February 9th
2010
11:27 AM

I had the Mirena inserted a week ago, since then I have had pain and cramps like never before and I have been bleeding heavily as well. I don't believe that this should be normal, although my gyne keeps telling me to give it time, I am seriously considering taking it out. Getting married in march, don't want to sit with this nonsense!

-- By unhappy37 | Reply | (1) replies | Private Message me

February 9th
2010
7:52 AM

Hello, I just had my Mirena taken out. I had it in for only 7 months, it was the worst 7 months of my life, i kept getting ovarian cyst after cysts.. My uterus kept contracting which was causing extreme amounts of pain to the point where i was on pain killers almost every night.
I developed Breastmilk, which surprised me because my daughter is 2 and i don't breast feed.
I had trouble during intercourse, my moods were erractic, one moment i was happy then i was in a bad mood or crying for no reason.
I didn't get my periods, but i still got period pain every month.
My body even starting acting l like i was pregnant, i was bloated all the time, i had cravings and would have morning sickness.
I wouldn't recommend any one getting one, doctors say that it is the best thing to have, but they do not tell you what could happen to your body.
I would suggest if you wanted to take it out, take it out, it is not worth you being in pain and unhappy, because it will be worse on you and your family in the long run. There is always other options out there to use for contraception. In the end it is your decision, not the doctors

-- By belwarren | Reply | (1) replies | Private Message me

February 9th
2010
5:38 AM

I had my Mirena IUD inserted Dec 31, 2009. It has been 40 days now. 40 days of hell & bleeding or spotting every day. I have endometriosis, infertility, PMDD & extremely painful periods so I was hoping that this IUD would help with all of that (except the fertility, of course). I've been trying to figure out why I was so tired all the time & just didn't "feel right". Everyone keeps asking me what's wrong & all I can say is that I just don't feel right. The day after I had it inserted, I had the worst pain I've ever had in my life but I didn't want to go to the doctor. So at my follow up appointment, my doctor did an ultrasound to make sure it was not embedded in my uterus. It looked fine. I've gained weight so I went to a diet doctor & got phentermine. Even with the phentermine, my appetite is CRAZY & I seem to always be hungry. I've been on phentermine before & it worked. I lost 20 lbs. Last night, I started having a pain in the back of my right leg, right behind my knee. I knew I couldn't have injured it because I was sitting ALL day working on my tax returns. I got worried about a possible blood clot. I've also had a hard time sleeping. I'm exhausted, but can't sleep. So, after 40 days of bleeding or spotting & depression & weight gain & pain and more migraines than usual, I finally decided to google Mirena side effects & I came upon this page. All of these posts on this site have just validated my concerns that it has to be because of the Mirena. So....I just went to the bathroom and pulled it out myself. It was completely painless. I knew it would take a while to get an appointment with my gynocologist & he may try to talk me into keeping it and I definitely don't want that. I have fine hair & it's not exactly thick, so when I saw the part about hair loss, that was enough to convince me. The thing is, I researched it before I agreed to it & never found all of this terrible stuff. I don't think the literature they gave me had any of this in it! I'll check that again tomorrow. I suppose we'll see what tomorrow brings. Hopefully within a few days I will be back to normal. I don't even care about the heavy bleeding and PMDD anymore.....I just want to be back to my old self.

-- By katiedid70 | Reply | (1) replies | Private Message me

February 9th
2010
5:12 AM

Mirena Foreign Website Info
they dont disclose in USA

http://home.intekom.com/pharm/schering/mirena.html

-- By jessysnipsnip | Reply | Private Message me

February 9th
2010
5:10 AM

check out this foreign website on Mirena

http://home.intekom.com/pharm/schering/mirena.html

stuff they dont tell people in the united states!

-- By jessysnipsnip | Reply | Private Message me

February 9th
2010
4:21 AM

i just had my primary dr. do silicone level testing in my blood work. it came out very very high in my blood. i urge everyone to get tested only because silicone takes years to get out of the body sometimes permanent. i am post mirena two weeks and i did test four days ago and it came out to be .39
(the normal amount in a person should be .05).(anything over .10 is abnormal)
so drs lied to us when they said mirena does not enter our blood stream. and that is why our symptoms take time to go away. but there not as bad as when we had the mirena in. Silicone is deadly at any level. please get tested even if you had mirena out for long time. silicone does not clear over months or years.
that right there is proof it is extremly harmful
also google side effects to silicone and they are very similar to what we had.
thank you
jessica bonner
i might as well go be a dr. since i know what to test my self for better than the silly drs. who thought we were the crazy ones!!!

Mirena class action
My name is Jessica Bonner. If you are interested in joining the class action i am starting with the following lawyer Brian goldenfarb. He willing to help me. he wil work with another law firm. i spoke with him my self today told him whats going on. he is a PRODUCT liability lawyer. He said suing by myself wont work. the only way this can work is if i can gather at least 10, 20 or 30 people to go against this company it can happen, THE MORE THE BETTER. Class action is the only way. He is willin to do this. my homework is to gather as many woman as i can, and i need you to email my private email jessysnipsnip@aol.com and i need the following information: You dont have to be local, as long as you live in america. and knowing he is in my town i can be the one to visit him, and i know he is real. The local bar association of middlesex county has reffered him to me.
email me at jessysnipsnip@aol.com
1) Full name,
2) Address,
3) Phone numbers,
4) I need the email to include that it is ok for this lawyer to contact you, and call you.
5) When the iud was inserted,
6) When the side effects began.
7) if taken out, and when.
8) please keep any medical records as well on hand.

Please feel free to visit www.mirenalegalhelp.com

WE CAN DO THIS, I WILL BE THE LEADER, PLEASE JOIN ME AND EMAIL ME! I PROMISE I WILL MAKE YOU ALL HAPPY WITH THIS OUTCOME! WE SUFFERRED WITH PAIN AND WE NEED OUR JUSTICE, FOR LOSS OF TIME, LOSS OF JOBS, PAIN MEDICATIONS WE TAKEN, MARRIAGES THAT HAVE FELL APPART, UNKOWN PAIN, DOCTORS TELLING US ITS NOT RELATED, BUT WE ARE GETTING BETTER AFTER ITS OUT. THEN WE SHOULD NOT HAVE EXPERIENCED THESE HORRIFIC SYMPTOMS! THE TRUTH IS WE WERE SUFFERING FROM THE UNKNOWN MIRENA.

Brian Goldenfarb, Esq.

Law Office of Brian T. Goldenfarb

197 Route 18 South

Suite 3000

East Brunswick, NJ 08816

Phone (732) 514-6655

Fax (732) 514-6755

www.8778carlaw.com

bgoldenfarb@8778carlaw.com

-- By jessysnipsnip | Reply | Private Message me

February 8th
2010
5:17 PM

I have been having side pains for the last year. In January 2009 I went to have a iud check and she said it was a cyst on my ovary. I went in last dec 2009 and I had another one...dont know if its the same one. And at a check up today I still have it and I have another small one on my left ovary. I have read the common side effects of the mirena, and it common. I am going to have it removed, as now if they are still there in 6 weeks I might have to have surgery to have them removed. Has anyone ever had cysts?

-- By stunned | Reply | (1) replies | Private Message me

February 8th
2010
8:53 AM

Wow!! I had a session with my personal trainer tonight. 2 weeks ago I had weighed in at 71.6 kilos (158 pounds) and was dark and depressed because that meant that notwithstanding the diet and the new exercise regime with the new trainer, I'd put on 3 kilos (6.6 pounds) in 3 months.

So I told him when I had the Mirena out I'd want a weigh next session - 67.3 kilos (148.4 pounds) !!!!!!! That's a 4.3 kilo (9.5 pound) loss in 2 weeks!!!!!!!!!!! Nothing has changed except for removing the Mirena - in fact I had a VERY naughty Saturday night dinner!! My appetite hasn't really subsided yet though. I still find it hard to not eat, especially on a quiet weekend when I'm not busy.

-- By trixichick | Reply | Private Message me

February 8th
2010
12:17 AM

Well it's official, you can't get a diaphragm in Australia! So the only non-hormonal form of birth control is the old fashioned condom.

Post-removal update: My period lasted about 36 hours and was just light ... brown stuff, nothing red or clotty or scary. I had sex (with a condom) - no pain, no bleeding afterwards. In fact I had slight small period pain beforehand but it went away afterwards (first time the old "sex cures period pain" wives tale has worked for me). Libido isn't all back but seems to be improving. I still feel a little dull/heaviness in my lower belly.

The girls at work reckon I've lost weight just over the weekend but I'll wait for my personal trainer to weigh me tonight and measure my waist. No Mirena "crash" so far.

My friend who got hers out the day after me (and got it in the week before and had way more side effects) has been "bleeding like a stuck pig" since getting it out.

No new acne on my chin or chest - can't see my "back-ne" but it feels better. My hair - I was convinced I was starting on the hair loss slide - my already fine hair feels less and I'd noticed more shedding in the 1-2 weeks prior to removal. Nothing has really changed there yet either.

-- By trixichick | Reply | Private Message me

February 7th
2010
11:34 PM

I have had the Mirena twice. The first one was perfectly fine. It was inserted December 2003 and then replaced in December 2008. November 11, 2009: I had what I now believe to be my first anxiety attack. Of course, I didn’t really know what it was. I just thought I was sick and went to the doctor. They did flu tests, blood work, EKG and urine tests. Everything was normal. From then on out, I began not sleeping very well. Really up and down all night. On December 28th I was back at the doctor with almost the same symptoms. My son was just diagnosed with the flu and I thought it might be the flu. Again, test and again normal, they even tested me for mono. They gave me an antibiotic and sent me home. On January 2nd, I had my first night of almost no sleep. By Wednesday I thought maybe I was having a reaction to the antibiotic. I called the doctor and pharmacist and they both said no way. I couldn’t stop crying, I couldn’t sleep. So, then I started thinking I was possibly going through early menopause. I called by OB/GYN to have hormone testing done. They got me in that day at 3:00. She prescribed Prometrium 200 MG, until they got the test results back, to try to help me sleep. I can’t take Tylenol PM or Advil PM, that stuff keeps me awake. So, I went home and again no sleep. There were nights I would get a couple of hours sleep but most nights none at all. I’m crying and constantly in knots. I go back on Monday, January 11th, for my blood work results and my dhea levels are at 2313. For my age, it should be around 110-550. They draw more blood to see if it is my ovaries and may have to have them removed. She prescribes be Ambien CR 12.5 MG so that I can start sleeping. The test comes back high the next day and they schedule a sonogram on Thursday, January 14th. My sonogram was completely normal. There is nothing wrong with my ovaries. Now the OB/GYN says they recommend I go to an Endocrinologist because she says it has something to do with the adrenal gland. I go to the endocrinologist on Thursday, January 21st and they want to do a 24-hour urine collection, saliva test and more blood work. I take this to the lab on Monday, January 25th. The Ambien is not really working. Some nights a couple of hours sleep, most nights none. I am unable to work and thank God for the people I work for. They know this is not normal. I missed more work in the past month than I had in the 10 years I have worked for them. I had to wait 4 more days to get the results and they finally scheduled me a CT Scan on Monday, February 1st, to check for a growth or mass in my adrenal gland. They called later that day to tell me that the blood work, urine and CT Scan were completely normal, but were still waiting on the saliva test for my cortisol levels. I called them on Tuesday, February 2nd, and they said the test results were normal. I’m constantly crying and not sleeping. I was in so many knots, nausea, panic, pain. I really can’t explain how I felt. That night I didn’t sleep again and decided it was time to call a Therapist. I thought I was going crazy!!! Wednesday, February 3rd, I called a counseling center located across the street from where I work and they said they would not be able to prescribe me anything but would help me learn how to deal with my anxiety. I was going crazy. I was loosing my mind. I called my MD and I think I scared the receptionist. I just wanted someone to help me. I went in at 11:00 and basically had a nervous breakdown in the doctor’s office. He prescribed me Xanex and wants to see me in a week and possibly put me on an anti-depressant. I came home and took one pill. I finally began to relax. About an hour later a fiend text me and said another friends daughter was having similar symptoms and her mom suggested it might be the Mirena. She and I got ours about the same time. Now, I had questioned this early on, but was told no way, so I didn’t think about it again. That afternoon I started researching the internet and came across all these websites with all these horror stories. Oh my!!! I started crying more. I called my OB/GYN and scheduled to have it removed Thursday, February 4th. I went in and what really stunned me was she was more concerned about me getting pregnant at 41 than anything else. I’m literately going crazy and she was worried about me getting pregnant. The next day, Friday, February 5th, I began to feel like me again. I had withdrawn from my friends, I had missed so many of my son’s games and it had consumed my life. I plan on telling anyone and everyone who is even thinking about getting this horrible Mirena my story. I can’t explain the depth of how I felt that last day. This has been the most horrific month of my life. To go without sleep for a month will drive you crazy. At first my biggest symptom was the insomnia and it escalated from there. I spent months and so much money and time to find out it was this stupid little device driving me crazy.

-- By cindy75068 | Reply | (1) replies | Private Message me

February 7th
2010
4:58 PM

Just curious...had anyone ever started another form of BC prior to having the Mirena removed? My GYN wants me to go on the pill a month before taking it out so I won't have to wait for another hormone to take effect. Just wondering if anyone else had done this and if so, did it help to alleviate the symptoms of the dreaded "Mirena crash"??

-- By grantsmommy | Reply | (1) replies | Private Message me

February 7th
2010
5:29 AM

I had my Mirena IUD for 5 horrible months (Aug 09 to Jan 10). I posted my experience with Mirena about a month ago, but this is a quick listing of the side effects I experienced with an update about the removal of it:
SIDE EFFECTS
• Bleeding most of time (either light or a heavy period for two weeks each month)
• Yellowish, globby, very smelly vaginal discharge, when not bleeding
• Constant, severe pain in lower uterus, feeling like my body was pushing out the IUD
• Cramping higher up, like during my period
• Severe, debilitating pain in left ovary for one month (the third month after insertion)
• Weight gain (like 5mos pregnant…my clothes didn’t fit…and strange texture to skin on stomach
• Severe pain in abdomen
• Digestive difficulties
• Diarrhea
• Lethargic, it took 1-2 hours to get my body moving in the morning (my body felt like it was made of lead)
• Hair loss from the back…left and right sides of my head (at 5 months with it and now…after removal)
• Very oily scalp with three large, bizarre pimples on my scalp (at 4-5 months with it)…which is very strangely where the hair loss areas are
• Sores from the constant bleeding or maybe from pads rubbing
• No libido (a hug seemed to irritate me and I felt pressure on my stomach)
• Pain and numbness in my arms
• Lack of sleep. My body felt sore and tired all the time, yet I slept very restlessly

REMOVAL of IUD
I had mine removed at a clinic for women. I couldn’t wait to see my OBGYN. I was really sick and in pain. Removal was nothing and I only felt a very mild period-like cramping for the next 20 minutes. The severe cramping like labor pains stopped immediately once it was removed. With it, I bled for 5 months…I stopped bleeding as soon as it was out. My collarbones and hip bones re-appeared after 10 hours as the swelling of my body slowly went down. I felt energy come back as soon as it was out. I didn’t bleed at all and had no other obvious side effects for two days, but I did get my period on the third day. It was a very heavy period lasting 6 days.

If you can imagine, I bled for 5 months, so it was almost shocking to go to the washroom and NOT find blood each time. It took weeks to get used to that. I now have my next period, on schedule and things seem to be back to normal. The one thing that is really upsetting is the hair loss. I have a scrawny ponytail, like a 7-year-old girl now. I have long hair, so it will take YEARS to grow my hair out. That still has me crying daily, I am sadly admitting to all of you. I am working out like crazy at the gym, to get my weight back down (and it’s finally better), but I cry about the fact that I can’t feel my ponytail at the back of my head because it’s so thin and light.

My IUD was removed at a clinic, but I finally went to my appointment with my OBGYN a few days ago. She was sad when I told her I had it taken out. She was also happy when I said yes to it. Why would a doctor be emotional about what I do with MY body? It was bizarre. She RAVED about how wonderful this would be for me and I was only told about irregular bleeding as a possible side-effect...nothing more. I told her everything at this visit, as I could only speak with the receptionist when I called each month upset about pain or bleeding. I was told to give it time and wasn’t allowed to speak to my doctor. So, I explained the entire situation to her. She said in two years, she only had two patients with similar problems, and the other patient was that morning. She found it odd that we appeared on the same day…and had no other complaints for two years. Maybe because women end up removing it elsewhere (I had to wait more than one month to get in for the removal…but I went to a clinic the next day (thanks to a miracle and a cancelled appointment from another patient). Some women end up in emergency or remove it themselves. These doctors insert them, but they don’t always see the patients again. I know there are mostly horrific stories here, but why do our doctors claim to have such great reports from other patients?

My life is almost back to normal. I feel lighter, look better and have an interest in men again. I am however, still very upset about my hair-loss and haven’t adjusted to it yet. I am so glad I had mine removed. With Mirena, it’s not just the scary side effects, it’s also the ones that perforate the uterus or break off or cause serious medical issues. These are very dangerous and life-threatening problems. I personally, do not believe Mirena is safe, but at the very least, there should be full information given to each and every patient who decided to have one inserted. I would have never put my body at risk like I did, had I known about the possible side effects. The brochure from the medical company is a promotional brochure to sell them…and does not list half of what I went through with side effects. Good luck to all of you out there.

-- By angeaa | Reply | (1) replies | Private Message me

February 6th
2010
8:32 PM

I had mirena put in on Jan 11 09 just had it removed last monday. I had alot of side effects to it...very mean spoke my mind to everything, cramping, ghost kicks, irregular bleeding from 3 weeks at a time, bloating, discharge everyday, bad bad odor, had a ok sex drive but it was painful, hair loss and it was massive hair loss, and plenty more. Overall it was a ok expereince. It did its job as far as a contraception but i went in for my yearly monday and they wanted to check it and she could see the strings but wanted to do a sono and when she did she noticed the mirena imbedded in my lining and i had a cyst the size of a chicken patty haha...but not so funny killer pain..i figured something was up and they said it happens only to 1% of women lucky me right? well they removed it immediately no questions asked and i was nervous about getting pregnant but they switched me to a pill witch wasnt excited about and its loestrin and it works great so far and im back to normal..just my review on mirena.

-- By aac | Reply | (1) replies | Private Message me

February 5th
2010
8:21 PM

Ladies, I am here on behalf of my wife, who is recovering from the worst four days of her life....I found her face down, unresponsive on Monday morning. I called 911 and she was rushed to the hospital. There they did every test imaginable (MRI, Cat scan, x rays, spinal tap, multiple blood tests....) They found nothing...She began having pseudo seizures while at the hospital. Unfortunately the Dr.'s at the local hospital were not able to find anything abnormal. We then ask that she be transferred to Mass. Gen Hosp (Tuesday). All the while she was continuing to have these pseudo seizures more often and with more intensity. She also complained of numbness and tingling in her extremities. (For months her hair was slowly falling out and she had been complaining of unusual neck and back pain, headaches and carpel tunnel like symptoms as well.) At Mass Gen she received the best of care and the utmost attention. She was placed in the neuro ICU. There they reviewed all the tests and data and decided to put my wife on a streaming EEG. The Dr.'s hoped to catch her brain activity on the EEG to rule out, or in, epiplipsey . The EEG in fact showed that it was not epiplipsey and these were some kind of convulsions, that very much appeared like a seizure (hence, "psuedo seizure" was introduced). The doctors could find nothing neurologically wrong and all tests were normal. Meantime the the psuedo seizures were coming every twenty minutes by now and were progessively getting worse and my wife's body was starting to really give out due to fatigue. She was nauseas this whole time as well. A friend called me and asked me if I had seen some of the things posted on line, about the side effects of the mirena (Tuesday). I told her I had not. Luckily, Mass Gen had a computer lab open to patients and family of patients. I ran down there and started perusing through copious amounts of information and anecdotal info about the terrible side effects of the mirena device. I printed up a lot of the heavy hitting material and went back to the doctors "armed and dangerous"......It all fell on deaf ears. I told the Doc. that I didn't care what they thought and that they had to take out the IUD, period! They finally removed it after some "counseling" and protesting (Wednesday). Amazingly, within 8 hours the seizures subsided and my wife's conditioned dramatically improved...I warned her, based on my reading that she would be experiencing some unfortunate issues due to her body having to readjust to "being on it's own". We are now home, 48 hours later and she continues to improve by leaps and bounds! The Dr.'s will not admit that it had anything to do with the mirena. They say it is physiologically improbable that it had anything to do with these issues.....Tell that to my wife. As a side note, my wife did not experience any side effects for the first 2 years after having the IUD implanted. If you have the mirena or are considering using it as birth control, please consider all the pros and cons. The last thing I do want to say is that these side effects will probably not happen to most women. My wife does have a history of adverse reactions to progesterone. (We were hoping this device would be different because of the local release of the hormone.) I am NOT telling everyone to not use the mirena but BE CAREFUL! If you are experiencing any of these symptoms and have the mirena in.....consider removing it.

-- By eduballstars | Reply | (3) replies | Private Message me

February 5th
2010
6:26 AM

So it's Friday afternoon now and I got my Mirena removed on Friday morning. I got my period this afternoon. I'd been feeling a dull ache like "almost" period pain most of the afternoon but ignoring it, then went to the loo and found that surprise. A pair of panties almost ruined ... lucky I brought a change with me and a bunch of different sized pads as I don't know what to expect.

Decided to can the gym tonight and go home and be lazy.

I was also fitted for a diaphragm while getting this thing removed. Funny thing - THEY DON'T STOCK 'EM IN SYDNEY ANYMORE! Haven't been able to get my gyno on the phone to tell him yet. Maybe he has a secret stockist. Hubby said an emphatic NO to vasectomy ... let's see how he feels when he's stuck with condoms and nothing else ... or (god forbid) a baby!!!

-- By trixichick | Reply | Private Message me

February 5th
2010
4:45 AM

ive been reading all of you people post on here but in the sheet the doctor has you read and sign tells you all the side effects of the mirena.... and every womans body adjust differently. take for instance i went for my 6 week check up after having my son went there to get the mirena and couldnt because i never have a period naturally after having a kid so they put me on yazmin to kick me into a period.... my body bled like crazy i was having all the side effects most of you are listing on here. i was so happy when i finally stopped and went to the dr to get it put in. it was uncomfortable but i wouldnt say painful getting it placed, but then again ive had three kids naturally one of them causing a third or fourth degree tear and a lot of stiches. i spotted for a couple hours and was sore but no big deal then my two year old kneed me while playing rough the next day.... bled for about 2 weeks after that and now im done. but like i said every womans body reacts differently what works for one woman might now work for the next. but how can any one attempt to file a lawsuit against mirena when its in the paperwork your suppose to read and sign before its inserted???

-- By pittygurl87 | Reply | (5) replies | Private Message me

February 5th
2010
3:38 AM

I was wondering how many oh you all, have had a miscarriage after having the Mirena IUD removed?

-- By beccastar | Reply | (1) replies | Private Message me

February 5th
2010
3:29 AM

Can someone PLEASE tell me WHAT kind of TEST your doctor has to order to test if there is silicone in your blood? I have contacted 3 of my physicians and they all say they need to know the exact name of the test because there is no test for silicone sickness, they want to know what kind of test to order and have no problem doing it but need to know what it's called!!!!!!!!

ladyz28@sbcglobal.net

-- By sweetillusions | Reply | (3) replies | Private Message me

February 4th
2010
6:34 PM

I thought I was the only one experiencing these problems. I had my son December 2007 and my weight had gotten up to 270lbs. August 2008, I decided to get the Mirena because it seemed convenient and "worry free". At that time I weighed about 265lbs. For several years I have weighed between 250-265lbs. I haven't changed anything about what I do and now it is February 2010 and I now weigh 285lbs. It seems like I gained the weight over night. When I realized that I was tipping the scale at almost 300lbs that's when I woke up and said to myself, what is going on? I asked one of my friends that had the Mirena for 5 years no problem and she said that it was my imagination. I have an appointment set to get the Mirena taken out in April. But, in the meantime, I have joined 24hour Fitness and cut back my portions. I have lost 10lbs so far. But, in order to lose that weight, I have been working out on the elliptical full speed for an hour burning 730 - 800 calories. I know it has to be the Mirena. I've never gained this much weight in such a small amount of time. I have also experienced several yeast infections, which I use to never ever get yeast infections. Now, I get them on a regular. I have always experienced a dramatic drop in libido while on birth control. I took Ortho-tri-cyclen for several years. I really didn't have a problem with it. It's just that taking a pill every single day left too much room for error. That's how I ended up with my beautiful son. So, yes, I pretty much don't have a sex drive and my husband is really upset about it. For years, I didn't care, but now I am thinking it's because I didn't have the urge. I'm young and I want to have a healthy sex life. I have gained so much weight that everything is just bulging out everywhere. I can't wait until I get the Mirena removed. We all have to realize that the Mirena is making our hormones whack. I'm sure it's common for us to have all of these problems because it's just not natural. Good luck to everybody.

-- By tjsellers | Reply | (1) replies | Private Message me

February 4th
2010
6:08 PM

I forgot to mention the weight gain in my last post. I was losing all of the weight I gained from being pregnant prior to the Mirena insertion. (I gained 10 pounds over the recommended 25 due to complications...this was dr monitored weight gain) After having Mirena inserted, I gained about 3-5 pounds a month. After having it removed in November, I've lost 10 pounds...5 of those was within the first 2-3 weeks. I still have a long way to go, but I can't believe a little thing like Mirena can cause so many problems.

-- By luvmykids2 | Reply | (1) replies | Private Message me

February 4th
2010
6:02 PM

I am 32, I had my Mirena place 3 years ago this month. I was 16 years old when I was diagnosed with endometriosis. I have learned to live with horrific periods and excruciating cramps. I had my first child at 20 and she helped the endometriosis considerably but I was still not "normal". I had my son at 22 and it went all down hill from there. I started bleeding more heavy, my menstrual cramps felt like contractions that did not come minutes apart, they were constant. Every year they got worse and worse. Three years ago, I was bleeding to the point that it was considered hemorrhaging. I could put in a super plus absorbency tampon and a night time pad, take my children to school 3 miles down the road and while walking to my front door have blood running down my legs. I went to the Dr. and begged for a hysterectomy but they always want to try something else first. Right? They told me about the Mirena and I really didn't want to hear it but I guess this is the only option they are going to give me so what do I do. They sent me home with the nuvaring to make the bleeding stop for now. I had to go through a who counseling about the mirena and they tell you all the pros and cons. They never lied to me, I went into this know every possible adverse reaction and side effect. The pros really out weigh the cons no matter what these people tell you. When I went to have it in I was in the middle of my cycle, they will tell you it is better be on your period or shortly after, it will be less painful. I was not so it was painful. Nothing I couldn't take, it does hurt but very tolerable. I bled for it seemed like forever....2 1/2 weeks. Heavy and thick, mucousy blood. I had cramps for about a week, different than I am used to it was almost a constant sore feeling. They tell you to take ibuprofen but that didn't do anything for me. I really considered getting it taken out. Other people I know who have them told me to wait, just give it a chance. Get past this and it will get better. 3 years later......best decision I ever made! I LOVE it!! I still have periods, very regular. I really wish they had this years ago I hate I wasted so many years in pain and misery every month. Most people who say they have problems with the mirena never gave it a shot, it hurt and they took it out. There are a few whose bodies really doesn't work well with it and have adverse side effects but for the most part everyone I know who has given it a fair shot loves it!

-- By djb007 | Reply | (1) replies | Private Message me

February 4th
2010
5:47 PM

I had my Mirena placed February 2009. At first I loved it, it seemed great! Although a lot of women report not having periods with Mirena, I still had mine & it was still regular. Well this was at first. About 3 months later, around mid-May, my periods stopped all together. I actually gave away all of my pads/tampons because I thought I wouldn't need them again for 5 years! The only symptom I had at first was hair loss, but it was a lot more than usual. After summer ended, around August, I began having crazy periods. Sometimes I would bleed for 2 days, not bleed for 5, then bleed for 5 more days. It was a lot heavier than usual & sometimes contained small clots. I had cramps that were honestly worse than childbirth (and I had my son naturally with no meds!). Honestly I've never been in so much pain. When I'd have my period, I would have to stay in bed the majority of the day and I barely ate anything. I felt horrible. Then the next month, I had no period again. Around the end of September, I began having tons and tons of side effects. I felt horrible all the time. I was moody & always yelled at everyone (normally I am very easy to get along with). I just always felt like I was sad or extremely mad. I also just didn't feel "right" physically...I'm not sure how to explain it but it was aching pains, cramps, back aches, sore legs (felt like blood clots), numbness in my arm (I also had this during pregnancy), hair loss, ache problems, etc. Mostly everything that other people are reporting. Well, right before Thanksgiving 2009, my Mirena fell out. I'm not sure if thats why I was having so much pain or not, but I'm sure it contributed to it. I wish I would have found sites like this prior to having it inserted & I would NOT have done it. The doctors make it sound like its the greatest thing in the world, so convenient, no periods, lasts for 5 years, etc. But its really awful. I thought I was lucky to not have symptoms at first, but the last few months were awful. I had a dr appt with my obgyn the last week of November. Because it fell out on its own, I did have bleeding right afterwards for about 2 days...then I had a dr appt...about 4 days after that, I had a regular period that lasted about 5 days. I then had a period right after Christmas & it was really strange. I bled for a day, very very heavy and some clots...then I quit bleeding for 3 days, then started normal bleeding for 2 days. I quit bleeding for a day, and bled again the next day. Now its the first week of February & I haven't had another period. Just wondering if anyone has any advice. I don't know if its the Mirena drugs in my system causing this or something else. Any suggestions are appreciated.

-- By luvmykids2 | Reply | Private Message me

February 4th
2010
11:03 AM

Lumps, large masses, and discoloration of breasts
Swollen breasts
Unexplained rashes
Weakness
Chronic Fatigue
Unreliable energy - hyper-active, alternating with no energy
Severe pain in bones, joints, and muscles - feels like 10 inch screws turning in my bones
Tingling
Numbness in a total limb or half of body, numb hands, numb face, numb fingers, numb lips. I cut myself and do not realize it until I see the blood dripping or smeared.
Dry eyes, dry mouth, dry vagina
Morning stiffness
Shortness of breath, progressively becoming worse, effort to breathe
8-13-2000 Lungs Riddled With Silicone
Severe chronic diarrhea
Loss of memory
Profuse sweating
Depression from chemical imbalance
Loss of teeth, teeth turn to mush inside and break off
Blurred vision alternating with 20/20 vision
Severe and frequent eye infections
Auto-immune deficiency - every little cut or scratch becomes infected, difficult to recover from cold, flu, bronchitis, injuries, surgery
Injuries, such as from an auto accident, magnified and become worse instead of healing rapidly. Each injury takes longer to recover
Severe allergies to things never allergic to before, including medications, supplements, food, and food additives, plants, flowers, dust, pets, peanut butter
Shooting pains in different parts of body
Bulging disks in low back
Sciatic severe pain
Loss of balance
Dizziness
Loss of depth perception, constantly bump into things, trip, fall down
Severe muscle spasms and body cramps, including major organs
Extreme nervousness
Inability to concentrate
Hot spots on skull which move around
Beads of silicone coming to surface and pop out as beads of plastic
Bizarre symptoms that appear and disappear
Extremely low blood pressure prior to double mastectomy 1977
Extremely low blood pressure alternating with very high blood pressure after double mastectomy
Normal Cholesterol prior to double mastectomy
Sky high cholesterol after double mastectomy
Large blood clots from nose
Dark red bloody wax from ears, wake up and ears have bled on pillow
Blood-clotting problems after surgery
Ultra-Sound of my chest two years AFTER double mastectomy revealed the inside of my entire chest looked like the total snow on a television screen. The Radiologist told me this is silicone.
Two years after double mastectomy, I am once again getting lumps in my sunken chest which is now growing in bumps.
Two years after double mastectomy, silicone capsules are forming in my chest and near my underarms
Diagnosed with probable Pulmonary Fibrosis - March 2001
Gallium Chest Scan positive for Pulmonary Fibrosis - both lungs
Severe muscle cramps, muscles twist like pretzels without warning - back of thighs, chest muscles, feet, calves.
Twitching in my limbs, like little electrical switches are turning off and on.

-- By olechka912010 | Reply | (1) replies | Private Message me

February 4th
2010
10:59 AM

wow i wish i knew all this before i got mine i learned my lesson that means i'm going to do research for now on on anything i go get you know. i have had many problems like you guys do i feel moody all the time i feel depressed and i dont want to be near any one i cry all the time and its starting to really piss me off cuz i'm tired of crying for no reason. i feel dizzy alot and i do eat what i need to eat. i've gained weight instead of loseing it i'm tired of going to stand on the weight thingy and it just goes up higher and higher and yet i diet for a while. i feel like i lose alot of hair and i'm starting to freak out that i'm going balled. BY ANY CHANCE DO YOU GUYS KNOW IF AND WHEN YOU LOSE HAIR HAVING MIRENA DOES YOUR HAIR GROW BACK? i have really bad anxeity attack. i feel like someone is always out to get me and i always always feel paranoid. i thought i was just going crazy but now i know its not me and its just the birth control i thought i was the only one who was going through all this. i'm glad to kno i'm not alone. i'm going to get it removed. and i cant weight and maybe i'll lose all the weight i want. and i can finally fit into my old clothing i gained 45 pounds since july after getting my mirena.

-- By olechka912010 | Reply | (1) replies | Private Message me

February 4th
2010
8:23 AM

A day and a half post Mirena removal. I haven't had any spotting, my minor cramps are gone. I was quite bloated this morning but this afternoon I feel great and had a sweaty workout at the gym. I got up feeling much less creaky this morning and that persisted all day, with much freer movement and my cactus ankle and arthritic thumb also were almost painless!

I will weigh and waist measure Monday. Fingers crossed.

-- By trixichick | Reply | (3) replies | Private Message me

February 4th
2010
4:25 AM

I had mirena for exactly one month and it was the worst month of my life.

To keep it short I weighed 230 after having my son And now weigh 182 since I had the mirena I couldn't loose not one pound.
I eat once a day small portion no fat no soda no sugar no salt intake I walk 6 times a week and burn 250 on the tredmill so I know it wasn't me.

After reading all the forums I had it removed yesterday I now weigh 177.0 doing what I always do and No changes. I lost 5 pounds almost over night. I also feel a million times better.

Also had these symptoms with mirena: tender breast spotting for two weeks periods twice that month I had it lots of cramps very paiful to put in not out btw headaches back aches nasuea dizzy tired no energy and no sex drive chest pains spotting after sex very moody pain in joints lost hair in patches it would set off my panic attacks bloated in tummy area stomach pains that I never had before acne in my chin insomia swollen feet ankles and hands and very bad depression.

If your not happy with it take out it's not worth it I'm just glad I got my life back.

-- By unknown308 | Reply | (2) replies | Private Message me

February 4th
2010
4:23 AM

I think you all our crazy...no not crazy but I think these symptoms you are all having is very rare most people do fine on the mirena. I have had my mirena in now for 3 years. I had it placed at my 6 week check up after the baby. I had a little cramping the day they inserted the mirena (which is to be anticipated). But if any of my friends or family or strangers ask me about birth control I tell them all mirena is the way to go it is the best thing I have ever done and it is the best thing out there at this time. I too had some concerns about if i was going to feel it inside me or if my partner would be able to tell a difference but all were faulty.For all of you woman to say you want a website or further a law suit on the mirena company it is not going to happen because on the statistic scale you are the very few who this can happen to. There are always side effects to birth controls.

-- By xonevesxo | Reply | (1) replies | Private Message me

February 4th
2010
4:13 AM

I had Mirena put in May of 2007. It's the first and last one I will ever have. It was put in almost a year after my second daughter was born. I was told all of the same things by my doctor that most of you ladies have been told. That my periods would be irregular for the first few months (which they were). That they would lighten and become more regular after several months (which they did). That there was generally less cramping and pms symptoms, that has been true too. However, I have had more side effects that have made it impossible for me to justify keeping it in. I would not recommend this birth control to anyone I know. It has been such a relief to read everyone's stories and know that I am not imagining things! When I first mentioned to my husband that I was seriously considering having Mirena removed, he wasn't thrilled. I understood because it is a convenient method. So I was dragging my feet for a little while about whether to have it removed or not. Now I have made up my mind. I told my husband either he gets the snip or we go back to using condoms. He's not too keen on either idea. But I've had enough!
I have never had "perfect" skin, but after the first year on mirena, my skin is TERRIBLE. I have more problems with acne now than I ever did as a teenager. I have used every kind of acne medication you can think of, with no success. From neutrogena, to proactiv, to expensive department store brands, everything. I also use the BareMinerals make-up, which is suppose to be so pure you can sleep with it on. All of these things and still I have the worst breakouts.
I also started experiencing migraines after about a year on mirena, which I have NEVER had a migraine before in my entire life. I always feel tired and lethargic. Then I get down and depressed because I feel like I'm being lazy. I started using anti-depressants because of the migraines. I figured they were somehow stress related.
In May of 2010, I will have had Mirena in for 3 years. I have an appointment February 23rd to have it removed. I would urge anyone considering this method of birth control to think twice. I'm so glad I found this site, it has made me realize that I was right all along about my symptoms. Hopefully all of our stories can help others out there.

-- By erriberri151 | Reply | (1) replies | Private Message me

February 4th
2010
2:50 AM

MY HORRIBLE EXPERIENCE WITH MIRENA

I had Mirena inserted around August 2009. The procedure was uncomfortable but not painful. I was told that my period would start getting lighter and slowly diminish. I had spotting for couple of days and the bleeding stopped.

For the next 4 weeks I experienced headaches, cramps, and fatigue. My lower tummy section felt very sensative. I could not even sleep facing down because the pressure caused a lot of pain. My husband said that he could feel a pinch during sex. At first I didn't believe him but then he showed me the "pinch".

Approximately 2 weeks after the insertion I got my first period. It was definitely very light but it lasted 2 weeks. At my 30 day check up visit I mentioned all the side effects to my doctor. She told me this was normal and should go away in the next 30 days. She did not want me to take out this expensive device. In addition she cut the strings so that it would not interfere during sex.

The next 3 months were unbearable. The headaches got worst, the lower backache pains did not allow me to sleep, getting up to go to work was difficult, and I started feeling chest pains. Almost like a burning sensation going through my veins. This is the time when I also started having a discharge. It was clear and odorless. It almost felt like I was peeing myself. Yuck!! There was never a day where I was padless.

All the symptoms got more intense as the months progressed. In January of 2010, I scheduled a visit with my GYN. I needed medication for a yeast infection. She gave me a prescription. She also scheduled my yearly pap smear toward the end of January. The yeast infection went away right after I took the medicine. I finally could not take the migranes and body pain any longer and I also got another yeast infection. At my yearly exam, I told them I wanted it out. I had enough. Finally it was out!!

The procedure did not hurt one bit. It was the same as having my yearly exam. Light bleeding for the day and that was it. I couldn't believe it but my body felt back to normal by the next day. No more pain!!! 2 days later I started bleeding again. HEAVY!!! I thought that this was my regular menstral cycle coming back but 3 days ago I start seeing huge blood clots. I'm talking about the size of a silver dollar. They just keep getting bigger and bigger. This is very scary!!!

I guess I'll just wait another week or so to see if it gets better. I understant that all bodies are different but I don't think that anyone should go through this.

-- By anakuper | Reply | (1) replies | Private Message me

February 4th
2010
2:23 AM

I went to the doctor today who is recommending Mirena. I am so glad I found this webiste. I am trying to decide between Mirena and ablation. The side effects sound worse than what I am currently experiencing.

-- By copper | Reply | Private Message me

February 3th
2010
6:41 PM

I had my Mirena taken out January 27th, so it's been exctly one week. I was told that I would have a regular period within the next couple of days. Well, I've been bleeding since last Friday, it's been really heavy bleeding. This is not regular for me, my normal periods were 2-3 days and not this heavy. Not only am I bleeding but I'm having alot of large clots and I mean large blood clots (about every 30 minutes during the day at night I don't have them I think maybe because I'm on my back? Not really sure). I've been having these large clots since Saturday and they are bout the size of a half dollar and larger. Has anyone else had this problem? And if so what did your Dr do for you? That is if they did anything.

-- By shashonbroussard | Reply | (1) replies | Private Message me

February 3th
2010
5:05 PM

I experiened two years of pure hell with Mirena! It started with acne and moodiness. Then came the extreme pain during sex, weightloss (which im not complaining but still), acne in strange places like my neck, cramps, bloating, lymph node swelling, nausea, frequent migraines that were so bad I would throw up, stomach pain so bad that I actually got tested for intestinal diseases, and breast pain. Then at the two year mark the worst symptom of all began, my HAIR STARTED FALLING OUT!!! I am a stylist so to me this was a huge deal! Needless to say I decided this was the final straw and had my Mirena removed one month ago! I am happy to tell you that my hair has since then stopped falling out my acne is clearing up and I am returning to my old happy self again. Now this was not instant I did experience what I would like to call the mirena crash for about two weeks with involved bad breakouts, extreme moodiness, and I was basically an emotional wreck I would cry over the slightest of things! But I can tell you it was extremely worth it! The best thing that I can tell you ladies is to have mirena removed asap! My doctor promised me that most of my symptoms were not caused by mirena especially the hairloss but ironically when i had it removed it stopped almost immediately!! Don't believe them I had tried to have mine removed a few times before i finally did but my doctor always talked me into keeping it by giving me some other medication to fix my issues! Do not take no for an answer and no matter what they give you it is not going to help! I have been taking welbutrin, estrogen, and lorozapam for months now with no relief of symptoms! You are not crazy and the problems you are having are from mirena! HAVE IT REMOVED! I honestly think there should be a class action suit against the makers of this drug for not properly labeling the side effects obviously with this many women having issues THERE IS SOMETHING WRONG!!!

-- By jordanamw87 | Reply | (2) replies | Private Message me

February 3th
2010
3:57 PM

Hi ladies~
I am new here and wondering if anyone has had the particular effects from Mirena that I have. I am actually 1 year into my 2nd one (the first one was GREAT-which is why I went back for this one) and ever since it has been inserted, it has been one thing after another. I too have the awful PMS, irritability, increased IBS symptoms; but about 2 months ago I started with vaginal irritation/redness that gets increasingly worse throughout the day-by the evening I am very red and irritated on the inner labia. I have changed my detergent & soap to fragrance free, I sleep without underwear, I even did a 3 day Monistat with no relief. I finally went to the GYN last week and she tested for yeast & BV which both came back negative, and she gave me a Nystatin-Triamcinolone cream to use. So...has anyone out there had any of these external type symptoms with Mirena, and did they stop after having it removed? I am planning to do that and go on the pill soon anyway!

-- By grantsmommy | Reply | (1) replies | Private Message me

February 3th
2010
11:19 AM

12 hours post mirena removal - no spotting, no pain since for the last 5 hours or so. I even did an aquarobics class tonight! First night's sleep tonight ... check in tomorrow.

-- By trixichick | Reply | (2) replies | Private Message me

February 3th
2010
4:49 AM

I'm a veteran on this site. Still up-in-the-air about what is wrong with me since the Mirena. To those of you still suffering with symptoms months after removal of Mirena, have you looked into Adrenal Fatigue? I had the Mirena removed last year, and am still having trouble coping. My symptoms are low BP (some days 80/45), extreme lethargy, almost like a low Blood Sugar feeling, depression (sadness, tearfulness, hopelessness) often feel overwhelmed, no sex drive, sugar cravings, trouble sleeping (but tired all the time), poor circulation while sleeping, and my most troublesome symptom is the pain in my limbs (joints especially).. it's like a burning, throbbing, aching pain. Sometimes it's so bad I can't cope with it. But it hasn't been half as bad as it was last summer. I was virtually suicidal before I was treated with Prednisone. In one day I felt fantastic, and I was only on the Pred for 2 weeks (25mg/day) it lasted about 6 weeks after I quit it. I have been up and down over the past few months, but never as bad as I was before the Prednisone. At the time I was being treated for Enthesopathy, but we now have excluded that diagnosis. It is definitely hormonal. Could it be that I am low on Cortisol (Adrenal), and the Prednisone, being a cortico-steroid, has filled that void? I have done saliva tests and am awaiting the results (BTW, saliva testing, they say, is far more accurate than blood. All my blood tests are normal)... just thought I'd throw my story out there in case anyone else is in my shoes. Please reply to my post rather than just adding a side effect. I'd love to hear back from you. Also, I never thought I'd say this, but see a Naturopathic Doctor, not a medical onev if you are getting nowhere. If it is hormonal, doc's won't figure you out because most don't believe in saliva testing, therefore won't find anything wrong with you!

-- By i_want_me_back | Reply | (2) replies | Private Message me

February 3th
2010
12:00 AM

I had my Mirena taken out this morning.

I'd taken a couple of nurofen (ibuprofen) on my way to the doctor. When I was up on the table, speculum in, he couldn't find the strings. He said damn - I'll have to put you under again (general anaesthetic). So i said - can you fit me for a diaphgram while i'm up on blocks? He took the speculum out and was fishing around with his fingers and then he found the string, so the speculum and forceps went back in, and ouch - out it came - like a bad pap smear with a scrape combined with a very hard pinch and a cramp. A spot of blood. Remember I'd never had kids so my cervix was shut tight and I was kinda stressed about how much it would hurt. It only hurt for a few seconds really.

While I was massaging my tummy he showed me his display of diaphragms in different sizes, he guessed one, put it in, i couldn't feel it, and he said "that's the one" and he wrote me a prescription for that and a spermicide. And that was that.

He said my period should come whenever my cycle tells it to. We don't know when that will be as I never had a period on the IUD and i was on the pill for so long we don't know what my cycle will do. I seem to remember it being a 6 week cycle in my teens.

While paying i took a couple of naprogesic and now i'm kinda dopey and numb (naughty me mixing drugs) but feel heavy low down, but apart from very minor low grade cramping so far so good. But then again it's barely been an hour and a half.

He suggested I keep a diary to track my periods because I have no idea what my body will do without the extra hormones.

I will continue to post my progress - especially re my biggie, the weight, and also my cycle and spotting, pain etc.

-- By trixichick | Reply | Private Message me

February 2th
2010
8:24 PM

on monday, january 25th, around 9:30am i had the mirena inserted. although, i did walk into the office intending to get the copper-wrapped IUD 8the ten year version), i was talked into the mirena.
my menstrual cycle is heavy, and every month i spend the first day or 2 of my mens in exruciating pain. usually, the routine goes like this : i feel slight cramping before bed of my first sign of flow .. and then i wake up in the middle of the night from extreme sweating and wringing pain in my ovaries. somehow, i muster up enough energy to crawl (yes, crawl) to the bathroom and throw up...or dry heave. finally, i roll around on the cold (clean ;P) tile floor because it feels good against my fevering skin. on occasion, i pass out on the floor and wake up later and get to bed ... but usually i just roll around for about an hour before the pain subsides or someone hears me crying and brings me ibuprofen and helps me to bed. usually, there is a small pool of sweat from my brow left under where i was using the floor as a cool pack on my forehead.
now, that is in the extreme of it, when it's milder, i still wake up from pain and throw up, but i can usually walk and have strength to open a bottle of pills. the one time i was at my boyfriend's house,he said i was crying and moaning in my sleep in between throwing up ... but i didn't have to roll on his bathroom floor (thank goodness for that) .. he's also spent hours caring for me while i slpet and slept as he rotated my heat pack. anyhow ... my cycle sucks, and i would love relief from it, so when my DR told me about the 'positive' side effects of mirena .. ie: lighter mens and less cramping etc ... it sounded ok.
i was very open with her about how i felt negatively about hormones .. ever since i was young and took bc i had adverse reactions. i hve only ever been on the pill and that sucked. constant bleeding and weight gain. so, she had both iud's out, and was so persistant on me getting the mirena due to my condition .. so i agreed and went through with it.
OUCHHHHH!!!!! either one, to insert, would have been just as painful, and it was so bad.
i am surprised i walked out of there and took the bus home. reading how other passed out, i am glad i didn't because it was the worse pain ever. my sweet man escorted me home, and fed me a hearty breakfast. the rest of my 2 days off was spent on the couch. by the time i was due back at work, i wasn't ready for it .. i should have taken the week off. it was a hard week and i am still cramping.
i notice a slight, but constant, headache that elevates at times. nausea, for sure .. and just a general uneasy feeling in the pit of my stomach. no discharge .. that i have noticed, but i do notice a lack of natural lubrication. my bf and i did have intercourse on the 4th day, and although i didn't necesarily get my kicks out of it, it didn't hurt. there was not many positions that felt right, anyhow .. because you can feel the thing in there. buzz kill. not to mention i have thrown up about 5 times in the last 5 days for no apparent reason. i haven't eaten anything off or different than my normal diet.
well, now reading all these posts .. i want to take it out. mainly because of the cilicone poisoning!! whaaaaa???
we'll see what happens as this goes on, but i am feeling from my gut to make the apt. to have it removed on my 1 month check up apt. i think most of you ladies would agree.
thanks for being here for eachother!!

.masha victoria

-- By mashka | Reply | (1) replies | Private Message me

February 2th
2010
6:44 PM

I started using the Mirena after my son turned 1. I thought it would be my solution to birth control, little did I know. The first 4 month I bleed and had bad cramping; then after the forth month it stopped. Everything seemed fine the 5th & 6th month but OMG on the 7th month I got a headache. It's now 6 months later and I still have the headache. Yes for 6 month I've had constant pain, from the front to the back of my head and in my shoulders; I've also had muscle ache's as well. I've been to several Dr.'s and no one can tell me why I've had this headache for so long. One of my Dr even when as far as to run a CAT scan. After reading that some other women had side effect from the Mirena I decided to have it taken out. So amazeling within 72 hours of it being out my headache was gone. Even though no Dr will say it's related I find it hard to believe that almost as soon as I had it taken out I felt better. And now that it out I've been bleeding for 5 days; I've been passing blood clots the size of a half dollar, I surely hope my body get's back to normal soon.

-- By shashonbroussard | Reply | (1) replies | Private Message me

February 2th
2010
4:53 PM

I'm 38 years old. I had my only child in 1998. After my son was born i used a coil IUD for five years and had to removed it because of the many infection it gave me. Another doctor told me about Mirena and i decided to try it. It's being four years and in the past two years i've developed an extreme skin problem in my face. I've being having problems concentrating and also have felt more depress in the past year and almost no sex drive. My doctor says it is not the Mirena but I've decided to have it remove next week. This has being really hard for me, i have a wonderfull family and friends, but only a person feeling like this knows how desperate it can be. I hope it is not to late for me to prevent all those symptoms to keep developing after taking the Mirena out. I really sure this problem are caused by it.

-- By marlin | Reply | (2) replies | Private Message me

February 2th
2010
4:46 PM

hi there,,, found a great page about mirena.. list of side effects are below... looks like i come under the RARE reaction to this evil little thing ..With so many awful side effects why is Mirena even on the market.. ?????????
Web Address is
http://www.medsafe.govt.nz/Consumers/CMI/m/Mirena.htm

Adverse effects
Serious side effects
If a pregnancy occurs in the case of method failure, the risk that it may be ectopic (located outside the womb) is increased. This requires immediate medical attention (see symptoms listed in the section "What else you should know"). Pelvic inflammatory disease, which may be serious, can occur during the use of the IUS. Enlarged ovarian follicles may require medical attention. MIRENA may pierce the wall of the womb. In addition, cases of breast cancer have been reported (frequency unknown).

Other possible side effects
It is perfectly normal for you to experience changes in menstrual bleeding patterns during the use of MIRENA. The changes may include spotting, shorter or longer menstrual periods, irregular bleeding, prolonged interval of bleeding or no bleeding at all, heavy flow and menstrual pain.

Ovarian cysts have been detected in 12% of women during the use of MIRENA.

Allergic skin reactions may be due to the IUS.

In addition, the following undesirable effects that may be associated with MIRENA have been reported. These side effects have been listed by the parts of the body that they may affect and how common they are.

The following definitions apply when the words "common", "uncommon" and "rare" appear in this leaflet relating to adverse effects:

"very common" means more than 1 in every 10 patients may experience these.
"common" means between 1 and 10 in every 100 patients may experience these.
"uncommon" means between 1 and 10 in every 1,000 patients may experience these.
"rare" means between 1 and 10 in every 10,000 patients may experience these.

Nervous System and Psychiatric Disorders
Common - headache
- depression
- nervousness
- decreased libido
Uncommon - migraine
- altered mood
Digestive System
Common -abdominal pain
- nausea (feeling sick)
Uncommon - abdominal bloating
Skin and Subcutaneous Disorders
Common - acne
Uncommon - excessive body hair (hirsuitism)
- hair loss
- severe itching (pruritis)
- inflammation of the skin (eczema)
Rare - rash
- hives (urticaria)
Musculoskeletal, Connective Tissue and Bone Disorders
Common - back pain
Reproductive System Disorders
Very Common - uterine or vaginal bleeding including spotting, infrequent periods
(oligomenorrhea), and absence of bleeding (amenorrhea)
- benign ovarian cysts (see the section called "Enlarged ovarian follicles")
Common - pelvic pain
- painful menstruation (dysmenorrhea)
- vaginal discharge
- inflammation of the external genital organs or vagina (vulvovaginitis)
- breast tenderness
- breast pain
- expulsion of MIRENA
Uncommon - pelvic inflammatory disease (infection of the female upper genital tract, the female structures above the neck of the womb)
- inflammation of the lining of the womb (endometritis)
- inflammation of the neck of the womb (cervicitis/Papanicalaou smear normal, class II)
Rare - perforation of the womb
Investigations
Common - weight gain
General Disorders
Uncommon - swelling (edema)

Similar side effects have been reported when MIRENA has been used for hormone replacement therapy in combination with estrogen preparations.

These side effects are more common during the first months after insertion, and subside during prolonged use.

If you are concerned about any of these side effects or notice any side effects not mentioned in this leaflet, please inform your doctor or pharmacist

-- By joey69 | Reply | (3) replies | Private Message me

February 2th
2010
3:56 PM

Wow its crazy, Ive had my mirena for almost five years, and Ive had every single side effect that these woman have stated. Ive had thoughts that, it could be causing my stomach cramps. But not all these other symtoms. Its really scary to think thats whats causing me all these problems and I have alot. No sex drive pain everywhere, Im always itching, headaches, horrible discharge, Sometimes bleed for no reason. Im ill and depressed constanly, and Ive always been a happy person even when I had no birthcontrol and regular periods and cramps. Ive been dealing with these problems for almost five years and am now really scared I have no insurance or medicaid and want this out of me.

-- By pamela9981 | Reply | (1) replies | Private Message me

February 2th
2010
8:38 AM

So I thought about it over the weekend and I rang my gyno yesterday to ask to have it removed. His secretary was lovely, she understood, said it happens a lot. She said he'd do it in his rooms and I should be fine. If I want to take painkillers that's up to me. As my cervix is tight shut having had no kids I'll err on the side of OUCH and take something in anticipation. I will post my progress. I'm having it out tomorrow.

By the way - if anyone was wondering - I'm in Sydney Australia. My friend is getting hers out in 2 days.

-- By trixichick | Reply | Private Message me

February 2th
2010
8:28 AM

Hi there, I am from Australia and have had shocking effects from the Mirena and need to know if anyone has started a class legal action case in relation to what this thing has done to us. If there is no class action i would be interested in hearing from anyone from Australia who would be willing to participate in starting a class action .. Cheers JO

-- By joey69 | Reply | Private Message me


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