Mirena and agony

I cant believe i have just found this page!!

After feeling more sore inflamed 'hormonal' spots on my poor cheeks i decided to look up 'mirena related acne'.. i knew that it had some side effects, like possible skin breakouts, but i really didn't think that i would have ended up with skin like a pubescent teenager.

i was diagnosed with severe endometriosis after years of complaining to my gyne at 19. i tried all the usual route of contraceptive pills, oestrogen and the mini pill, but non seemed to suit me, so i was recommend the 'mirena'.

i first had one implanted 4-5 yrs ago, this had to be removed after barley 5 months. i was doubled over in agony on the bathroom floor and often had my breath taken away with excruciating stabbing pains.

i had my current one inserted in May 2007 at 23, under general anaesthetic whilst having a laparoscopy to try and remove some of the endometriosis. Granted i felt rough after being in surgery for 5 hours, but once all the stitches were gone i thought i would begin to feel human again.

i have put on quite a bit of weight, i went from 7 1/2 stone to just over 9 stone in just over a year (i don't know what it is in lbs sorry!) believe me at 5ft in height it's noticeable!!!!

i have never previously had migraines until the mirena, i now have them every 2-3 months or so.

my poor long suffering boyfriend thinks i no longer 'fancy' him as my libido has gone!
my breasts have become so painful and swollen it hurts to sleep on my side, its painful if i even try to run up stairs, and the boyfriend is no longer allowed to touch them!!

and at certain time in my cycle, my tummy becomes so swollen, i look 5 months pregnant, in fact i was asked the other day when was my baby due...i was really not impressed!! during the swollen tummy time sometimes when i am sitting down it feels like the mirena may burst out of my back passage.. (not a nice image i know) there is a sharp stabbing pain and then a wave of nausea comes over me, this stabbing pain can last on and off for a full day.. i have told this to my gyne.. he had said it must be irritable bowel syndrome!! i have never had IBS before!!

all this at 24 nearly 25, i'm supposed to be enjoying these years, but with my skin the way it is and my body confidence shot, it is really really depressing.
i just thought for so long i was being silly and over reacting to everything, but obviously i'm not the only one..i would not recommend the Mirena to anyone, i fact i would not wish it on my worst enemy. ther are far too many side effects!

I am 35 years old and LOVE my Mirena. I have NEVER felt better. All these "side effects" sound so crazy to me. I know 10 women who use this product and not one of the complain about anything. They all love it. Its their word of mouth that inspired me to look into it. I have had mine since March 06. I fear for all of you who are having "side effects" that you might be blaming this product, and ignoring that there can be some thing other than the IUD causing your problems. All of these comments are hell bent on blaming Mirena. I'm not saying that its not causing any of these side effects with some of you, but for some, I am wondering if your too busy blaming it, then finding out if there is really something else wrong. I didn't think it hurt that bad at the insertion, a little crampy, but nothing we as women couldn't handle. After I saw this site, I literally contacted the women that I know use it and they all were shocked that people were having such a hard time with it. You would think 1 out of us 10 would have something to say if there was a problem. The only thing in common that we all have is that we went to the same Dr. So maybe that could be an issue with some of you. I didnt bleed for weeks or months. And the pill NEVER could regulate me . Within 3-6 months I had a 90% decrease in my periods ( just like this product states it would do) i had used the vaginal ring before this and that caused some moodiness and was a bit odd during sex, But Mirena has made me feel free, not moody, no pain, no period, I have a strong sex drive ( mainly because I no longer have the worries such as did I remember my pill? Is the ring still in place or did it fall out?) My boyfriend never feels it or the strings ( and I have a short cervical neck!) Nor have I heard such things from my friends and family who do use it. I think if I was having some problems and stumbled across this website I would panic and blame Mirena as well. But in my opinion all these symptoms are things we as women will have happen due to stress, age or routine ob/gyn issues. i actually read in one of these comments someone asking about a lawsuit.... Are you kidding me??? If I were all you with these problems I would seriously check with your doctors and make sure there is nothing else causing your issues...Don't just blame a product with out making sure you know everything thats going on within your own body. I wouldn't take that chance but I am not the one with any problems. I'm sure this method isn't for everyone but my point is that I hope you don't overlook a more serious or undetected problem. good luck to all.

Aged 40 and with an 8 year old son, I had Mirena coil fit on 1st August after having the depo injection for almost 2 years and being fed up about my weight gain. I was advised by doc that there was no weight gain with Mirena as the hormone was local rather than in your blood system. I was in absolute agony around half an hour afterwards. It felt like I was having contractions every 3 minutes. Rang doctor and was told to take Ibuprofen along with Paracetamol, which I did. The cramps didn't subside until around 5 hours later. I was in tears with the pain. I suffered for around a week after with period pains. All seemed ok after, other than I checked and couldn't feel the strings. I also asked my partner to check and he couldn't feel them......I went last week for my four week check and neither could the nurse! I am now going to have a scan on Wed 10th Sept to see where it is! Can anyone tell me what happens after this....if they find it what will they do?

didn't have Mirena, but another kind of IUC or IUD whatever you want to call it. I sure hope young women know they could die. Sorry to see these things back on the market. At age 21 I had complications, the device embedded in my uterus and became infected. No one wanted to admit it was the iud. The infection turned into acute peritonitis which is usually fatal. I did live, but had to have a complete hysterectomy. A bit extreme for a 21 year old. Spent 3 months in agony in the hospital. Took 2 years to recover. I had all the side effects associated with premature menopause - premature wrinkling, loss of interest in sex, not to mention no more kids for me.
I later did some research to find out that stones were inserted into camels to prevent pregnancy during long trips. The camels died screaming in agony in the desert from the stones. It works about the same on women.

Hi all,
I have spent the last 2 days on the Internet reading about Mirena; as a matter of fact, I had mine removed 2 days ago. For the last 10 months, my life has been horrible. I had the Mirena inserted in November of 2007, I was also coming out of a divorce, so I (and my doctor) was attributing my extreme depression, anxiety attacks to it. I started noticing that my hair was falling out and it just kept getting worse and worse. I went to see my doctor again and she said I had anemia (I was having very heavy periods and bleeding through my periods). Doctor said anemia causes hair loss. I went through different tests, saw a dermatologist, I always mentioned I had the Mirena, but no one seem to relate that to anything. I actually went on the Mirena site a couple of times, but the side effects listed there were very mild so I discarded the thought that the Mirena was causing my depression and my hair loss. There is no mention whatsoever about hair loss. Months went by, I kept seeing different doctors since my hair loss was getting worse and worse, my once beautiful, thick hair had become extremely thin, I have two holes on my scalp. I continued to bleed heavy and my ob/gyn said to give it some more time. My life was a complete mess, going to work was a struggle, dealing with my kids was a struggle, some days I would just lay in bed and cried for hours, I started to believe that my life had no purpose or reason. I was truly in agony, I am sure those of you who have gone through this know exactly what I mean. Anyway, I can't believe in all this months it never occurred to me to google mirena and hair loss....or mirena and suicidal thoughts, etc., etc. I thank you all for sharing your stories and I hope we can figure out a way to let all of those mirena users out there suffering that the answer to their agony is simply to have the Mirena removed. I look forward to my new life, new hair. It has been 2 days and I don't know if it is a state of mind, but I feel so much better already.
Thx
Jessica M.

Just an update about the class action suit discussed previously, and Aamaya had provided us with the Florida attorney, Justin Wikin: I got a letter in the mail yesterday stating that they would not be pursuing suit against them. They said that they deal mainly with wrongful death cases and it does not mean that the case does not have merit, just that it is not their specialty. I will be doing some research here locally in Ohio to see if I can locate a practice to pursue this. If anyone comes up with something, please let us all know.

I had Mirena inserted in Feb. 2007 and it was the most painful experience of my lif (and I have 2 children). I cramped and bled for weeks. All of which I was told was normal. I would have sharp pains that would come and go as well. On or about December 17, 2007 I was having terrible pains and became nauseated and was vomiting uncontrollably. I told my husband something was wrong and that I needed to go to the hospital. As he was trying to get the kids ready to bring me to the hospital I fell on the floor in pain and could not walk. My husband called the ambulance to have them bring me to the hospital. When I got there they thought I had a stomach virus or a ruptured appendix. After completing an MRI they found that the MIRENA was lodged in my fallopian tube and I needed to have emergency surgery to have it removed. I had to wait in agony and pain until the next day for them to perform the surgery and I am still recovering. DO NOT GET MIRENA!!

We need to file a class action suit to get this product off the market. It is harmful and they lie and say there is a less than .1% chance of this happening which just isn't true.

I have been on mirena now for 10 months. I was on the depo for 10 years prior. I loved my depo adn only went off of it after Kaiser said I could not do it any longer. I was told that mirena was a god send and a lot like my depo. I can say that the combination of depo and mirena I have not had any period at all. but that is where the happiness ends. I have experienced moths of breast pain. it hurt to touch them let alone put anything on them. after about 6 months and numerous trips to the vet it disappeared. then I got a small rash on my neck and by my arms. went to dermatology and since then I have been there, or to my primary or an allergist every week since then. the rough severley itchy skin is constant. remarkably every 29 - 32 days it fades for 2 days or so and just when I am sure it is going away wham back it comes and each time it is getting worse and worse. having never had any skin problems before I believed the doctors tha tit was folliculitus, then they said dermatitus, then they said uticaria and then hives or the last straw i was causing it that it was in my head. i just got a new allergist and while she doesn't knwo if it is my mirena she can tell me I have histamine levels that are off the chart. my husband is allergic to a lot so we already use free & clear everything and my housse is spotless but I am still being told it is soemthing I am doing to myself. I have also been reevaluating my things and I relaize I have been experiencing a lot of numbness and joint pain. so much so that my primary sent me to a rhuematlogist and he ran every test for lupus, and many other diseaeses adn even cancer. I was going crazy. Iwas beginning to think maybe I was mental. I have since been researching mirena and I am finding it so much more than what the pamphlet says. I finally got the nerve to call my ob, adn she ahs since been researching things with me and we know for sure that no matter what next week I get my mirena removed. I am just feeling so alone and depressed. I am 33 years old and instead of enjoying my new marriage I am contemplating a divorce becasue I do not want him to be stuck with soemone who might be crazy. seeking support and anyone else who feels this way.

wow this is interesting reading, I had the Mirena coil put in 3 years ago. It was agony while it was put in and I had severe cramps for about a week. Then I had terrible acne for about 6 months, now it comes and goes and isn't too bad. Since having the mirena coil in I have gained some weight, gone up a dress size.
My periods stopped completely.
The past few months I've been thinking about getting it removed.I've had terrible Irritable Bowel Syndrome for the past year with bloating and cramps. Also insomnia, weepyness,irritability, I feel so tired some days but just can't sleep at night, I feel stressed out and depressed.
Also I've been getting a lot of headaches and migraines which I thought were just because I'm so tired. Now I'm thinking maybe its because of the coil, but I'm not sure because it wasn't like this at the beginning