Mirena and blood clots

I HAD MIRENA INSERTED JAN 11TH OF 2008. I HAVE GAINED WEIGHT I HAVE CRAMPS SO BAD AT TIMES I CANT MOVE I HAVE JOINT PAIN BACK PAIN AND HEADACHES I HAVE SWEATING PROBLEMS WHEN MY PERIOD IS ON I HAVE LOTS OF BLOOD CLOTS AND MY MOOD SWINGS ARE OUTRAGEOUS. ITS ODD THAT WHEN U TELL YOUR DOCTOR THEY PRETEND AS IF MIRENA IS NOT THE PROBLEM AND MAYBE TRY TO GIVE U SOMETHING FOR THE SIDE EFFECTS THEY KNOW ITS CAUSING OR THEY PASS IT OFF AS SOMETHING ELSE BEING WRONG. IF IT WASN'T FOR THIS WEBSITE I WOULD HAVE JUST PASSED THESE SE OFF AS NORMAL IM TALKING TO MY DOCTOR ABOUT REMOVING THIS THING I HOPE THAT I BE OKAY AND NO HORRIBLE LIFETIME PROBLEMS OCCUR BECAUSE OF IT

i had the iud since sept 2006 and had it removed last week. i had felt it the entire time ive had it. id go thru hell with cramping and no bleeding. my weight would fluctuate from 135 to 150 in a matter of days, i haven't been able to get back down to my pregnancy weight of 117. i was so depressed that i tried to commit suicide. id cramp and bleed after sex, during i could feel it sometimes my husband could too. i had migraines that would last for days multiple times a week. my eyelashes, brows and hair has thinned out a lot. my skin is horrid with acne that would last for months with the same break out. i was bloated all the time. i was super moody, didn't have patients for anything or anyone. i am usually a pretty layed back person on mirena i was completely opposite, im surprised my husband hung in there! i was constantly constipated, frequent urges to pee, didn't want to out outside. when i was having it removed, my doctor couldn't find the strings, luckily she found them. my experience with mirena was horrible. i don't recommend it to anyone. after it was removed my stomach felt so much better. wasn't constipated, didn't feel a hard uterus, the pain that would shoot down to my feet stopped. my doctor did tell me i might have a mini period, which i am now. but im telling you i feel a lot better now that it is out of my body. if you knew me while i was using the IUD, you would think i am a different person now. i wish i had never gotten it in the first place...

I guess they call it birth control for a reason WOW! What partner would want us around.... No sex drive, miserable, headaches, nausea, infections (the list goes on) I'm glad I had it removed...

Wondering if any of the other women are experiencing leaking, clear fluid into their panties every morning. I have had my Mirena in for almost a year since the birth of my twins and every morning since I had it inserted when I first wake up and usually after I stand up a get a gush. I spoke to my doctor and he said it was because I didn't have enough estrogen to he put me on a patch for that. I feel like a true chemistry set these days. I am tired, feeling depressed, a TON of my hair has fallen out all round my face and my face broke out horribly. I am considering having it taken out but don't know if I should blame all these side effects totally on the mirena or if some of it not the hair portion is due to being a first time mom to twins.

Please let me know if anyone else is suffering from the morning gush. The best way to describe it is like the clear fluid that weeps from a wound.

so i posted on here a week ago to see if i was going crazy. turns out i wasn't. i have had this horrible mirena for a month now and the side effects are not getting better so i called the doctor today and said i wanted it out. the girl that answered the phone put me on hold went to talk to the doctor and said the doctor was going to call me and she scheduled me a day to get it out. the doctor called me this evening asked me what was going on and i told her that i was feeling really depressed, having a hard time sleeping, horrible back pain that my kidneys hurt and that i was sick of this bc and want it out. she told me that the mirena should not be causing these side effects that that it had to be something else. i told her that i have never had these issues before getting the mirena. i don't see why all these doctors think we are the ones that are going nuts. what is the big deal in wanting it taken out if its not right for you? she finally agreed to take it so i have an apt thurs so we shall see if i go back to being NORMAL after its removed. i will keep you posted.

also does anyone know of any other bc that does not have a risk for blood clots? that was the whole reason for me being put on mirena cause there was no risk for that. i have had them in the past from and IV and no doctor will put me back on normal bc.

Hi - I am stunned at all the awful experiences that users of the Mirena are describing on this and other websites!
I had mine removed 5 days ago - principally because my hair was falling out in worringly large amounts. I wasn't sure it was the Mirena, but decided to get it taken out anyway as I had experienced pretty constant bleeding since having it fitted in March. It was only after having it removed that I checked the internet, and have realized since that I have been suffering from other symptoms that I had not realized could be related to the Mirena. Apart from the hair loss, I have experienced a terrible foggy and tired feeling, dizziness, sore and swollen eyelids, strange spots around my hairline, one sore breast (!), a feeling that I couldn't be bothered with things - including my children, dry skin patches on my face and grumpiness. However, as a working mum of 2, with a husband who is away quite a lot, I had just put this down to a busy life where I don't have time for myself always. Now I think it was the Mirena!
Having had it removed, I can feel the fog lifting, though not the tiredness. I have experienced heavy bleeding and blood clots - now subsiding, but feel more cheerful. My hair loss, however, is seemingly getting worse...has anyone else had a similar experience please? Any advice on how to deal with this and how long it might take to stop would be greatly appreciated!

Hi,
I had mirena inserted June 5th, a couple days later major cramping and bleeding. I felt sick, nausea and flu like symptoms- no fever. I thought I would hang tight and be tough in hope that the symptoms would dispate and I would be period free and baby free for 5 years. Well, the cramps lightened up but the bleeding never did. Sometimes it would slow down then in the middle of the night I'd wake up with the sheets ruined. Mentally I've been slowly going down hill, getting increasingly irratatable, sad, and just moody. I couldn't stand bleeding non stop and having a foreign thing inside my body. My husband and I haven't been intimate since it's been in. I had mirena taken out Friday July 18th and Saturday I started heavy bleeding with clots. I had to get super plus tampons and overnight pads just to walk around. Normally I have heavy periods so I'm not concerned that I'm over bleeding but this just adds to the nasty list of side effects of mirena. Not to mention I'm still breastfeeding my now 4month old son and was always looking forward to a period free several months because of the breastfeeding. I hope I didn't pass anything off to him thru the milk, they say it's "safe" for breastfeeding mom's but I wonder with all these crazy side effects. It's out and I will not put anything in my body again.

i've had my mirena in for almost 10 weeks, i had my baby girl on April 2nd, and got mirena may 12th and everything was fine at first... besides the fact that i've been bleeding ever since i had it put in, and on 2 occasions have passed flesh colored blood clots, had severe cramping, weight gain, headaches, depression, paranoia, anxiety, anger, extreme appetite gain, loss of sex drive, and many other strange side effects... i never would've thought that these things were caused by this IUD, until i read how many other women were having side effects to... then finally i realized how this thing worked... it doesn't prevent pregnancy at all... there's a chemical that thins the lining of your uterus, therefor, an egg gets fertilized, travels to your uterus, and your body aborts it, so you are time after time becoming pregnant, it just makes it physically impossible for you to carry the baby in your womb... which raises this question to me... does this mean it could cause tubal pregnancy? which is a risk to your life?! hmmm...

I had the Mirena put in six weeks after having our daughter, on June 30th, 2006. I never was able to loose weight, and felt very bloated, moody, with pains in my sides (ovary level), and then in the Fall of 2007, I noticed a significant loss of vision in my left eye. I went through $40,000 worth of hospital visits, and one 8-day stay, to figure out that the Mirena had caused a rather large blood clot to form on the outside of my brain in the main vein that crosses over the top outside brain. I have suffered from multiple ER visits with migraines lasting up to 72 hours, even after shots and meds. I have been going to the University of Colorado Hospital for treatment and it has taken over six months to get me on a medication regiment that will hopefully alleviate my debilitating headaches and now am living with the possibility that my vision may never get better in my left eye. The Dr.'s I have seen: an eye surgeon, a Neurologist, a Neuro-ophthalmologist, a Retinal Specialist, and the multiple local MD's. The tests run on my body and head have been very extensive, including blood tests, multiple MRI's and the final MRVenagram that tests the flow and drainage of and around my brain that found the blood clot and have ruled out everything from MS, to Pseudotumor Cerebri (which is a lifelong disease offering only pain management for the most part), as well as a macular deterioration related with people over fifty, not 24, they have also ruled out any pre-existing tendency for being prone to blood clots . This has been the scariest thing of my life and so consuming and debilitating, that I would never recommend the Mirena to anyone. I have missed so much work and the traveling to doctors have been a drain on our financial situation. This kind of information needs to get out there because Dr's are denying any relation to the Mirena. My Dr's have definitely diagnosed my problem as the Mirena. The swelling of spinal fluid was my body trying to protect itself and that swelling caused such great pressure on my optic nerve that my macula, where a person has central and fine detail and focusing, wrinkled in a layer of my eye that cannot be operated on. I can no longer read out of my left eye and the stress that created for my right eye is a contributor to the migraines. I also see double at night, when lights or signs are illuminated by the headlights of my car. I am seeing two images! This is very hard to accept and not being able to read for very long also upsets me. The likelihood of my vision repairing on its own is slim to none. Thanks Mirena. SO please, please help the word get out!!!! Also caution anyone you know who is planning on getting the Mirena, or who has one in to be aware of any changes. My experience has been very extreme but maybe women out there are going through the same things I have been and no one will recognize the relation to the Mirena. I am only glad my Dr. was willing to admit the Mirena was the cause.

I don't know if seeing all these posts help me or scare the crap outta me even more (none the less very helpful), I have no insurance and really want to get my IUD removed. I had it inserted when my daughter was 8 weeks old that was about 11 months ago. I have had nothing but problems, severe cramping, nausea, periods that last a whole month, one month it will be icky brownish discharge with a lil blood here and there, I will stop for about 2 weeks and get it again this time lasting about 3 weeks then i will go about 6 weeks and have it again this time with severe cramping and bleeding for a whole month straight. then i may not have it again for 6 weeks etc... I have really nasty blood clots that look very fleshy. I also have had very thick yellowish stinky discharge everyday i don't have my period ( I have NEVER smelt this bad) I feel like im losing my mind Im so absent minded i forget the simplest things, my arms and legs go numb and tingly, my hair is falling out in clumps, im extremely moody and very impatient. and the tiredness is really starting to bother me, no matter how much i try to stay awake its almost impossible, i literally need to take a nap every 3 hours it seems like just to function...I feel like im falling apart. Has anyone else had a lot of these symptoms? And what should I do about getting it taken out....I don't qualify for Medicaid so I was wondering if i should just go into the hospital the next time the pain gets bad and see if they will remove it any advice will be helpful! And good luck to anyone else going through problems with this IUD.

I've had my Mirena IUD for approx. 3-4 months. It's lasting for over 1 week. Also, yesterday and today I've had heavy bleeding and blood clots. I was a bit surprised to notice this considering the Mirena is supposed to lighten your menstrual flow. I have fibroids and my gynecologist inserted the Mirena to lighten the bleeding. However, my period is heavier now and lasting going in to two weeks. I left a message for my doctor to contact me so I can speak with him about this. I don't know if anyone else has experienced this

I'm 22 years old and have been having really heavy periods with extreme clotting. My current period has lasted a little over 3 weeks. I went into the doctor's office today and they inserted the Mirena. Within 4 hours I was having very severe cramping and it was very painful to move. About 6 hours after it was inserted, it came out with one of the blood clots. I have been having very heavy bleeding and more large clots since it has fallen out.

I had 2 c-sections back to back and I had so much complications with the patch in the past that I figured the natural choice was the IUD. I talked to my OB/GYN and he suggested the MIrena. I did a little research and talked to a few women who had it and htey seemed to like it, so I figured what the heck, might as well...

BIG MISTAKE!!! I had a lot of pain when the IUD was put in, but right away I started gaining weight. I gained 30 lbs and even with running 2 miles 4 times a day and doing other activities, I lost nothing. Additionally I started having my cycle for 2 weeks straight and had constant breast sensitivity and pain, back pain, pain in my lower abs, weakness in my joints, mood swings, NO SEX DRIVE WHAT-SO-EVER, gassy, bloated all the time, etc... Basically, you name the symptoms, I had them.

I finally had the Mirena removed on Thursday 19 Mar, 08 and I am so happy I did. I am seeing changes already, my body is in serious withdrawal though. I am tired and listless, sleepy and moody, but I am hoping these symptoms will soon past.

My advice to anyone wanting to get this IUD put in, think twice!

Can someone tell me how long it took for the symptoms to go away?

Well... I have a 6 week old son and am looking for a new form of birth control. I had blood clots during my pregnancy, so I can never be on things like the pill, the patch, the shot or the ring.Our only options really are condoms or an IUD. At my 6 week PP check up today, my doctor strongly recommended Mirena. After reading this I am not too sure of what I should do. I just can't imagine using condoms for the sole purpose of not getting pregnant over the next 2-3 years with my husband of 4 years. What should I do?

Hi All,

I have recently had the Mirena coil fitted, (first week in Jan 08 this year). The insertion was so painful that i nearly fainted twice while having it fitted.......that night i couldn't sleep as i was in so much pain and was bleeding heavily. I am now 5 weeks on and can't get through the day without taking 2 Ibuprofen and 2 paracetamol every 4 hours as the cramping pains are so back that i can't concentrate on anything. I also started bleeding 9 days ago and instead of getting better it's getting worse. I went back to the clinic after calling every day for advise from the doctor who said my side affects were normal!! after explaining to the doctor that i was also taking the Femodene pill as the doctor who fitted the coil said this would help the coil settle in quicker. Anyway they said i should come in as it sounded like the coil was expelling......they did an examination and told me that everything is fine and that what i am experiencing is normal and that i should try and give it another 6 weeks. Can anyone reading this give me some advise ?? i called my doctors again today and can't get an app till the 21st of Feb. This thing is beginning to get me down and doing nothing for my sex life with my partner.

I wish i found this kind of site before i go the Mirena fitted.

I thought I was going crazy until I found this site. I had my Mirena put in on Nov. 19 2007. It was a pretty painful insertion. I never got dilated nor was I told to take anything before hand. My doctor (Who is a man and not a Ob) Told me there would be slightly to no pain at all. I got into the car and immediately started having horrible cramping on my left side. I felt extremely dizzy and hurried home. When I got home I began spotting pretty severely. Almost blood clot type spotting. Two hours after I was balling my cramps were so bad. I could barely pick up my 9 month old daughter. That whole night and the next day I was miserable. I felt like I had morning sickness. I had an allergic reaction to Ibuprofen so I usually only took Tylenol. I took three still with no help with the pain I called my doctor to see if he'd call in Tylenol with codeine. That helped a little but I was still pretty crampy. After a week of bad cramps with little help from the Tylenol, I started to get really nauseas. I can barely get out of bed in the morning though I stay awake most of the night. My body is always achy especially in my legs. I have shooting pains down them. I am severely depressed and started having anxiety attacks which I haven't had in years. The cramps aren't as bad but the emotional side of it as well as constant back pain is making me miserable. Not to mention I have gained 8 pounds in less than a month. I am normally pretty consistent in weight. I am really considering removing it. I had a very weird period that came a few days late and consisted of only clots of blood. I am already kind of a hypochondriac but I have been feeling the exact same symptoms most of you have posted. Even the shortness of breath with a tightness in my chest. I was just starting to run everyday before i put the Mirena in, I can barely do a brisk walk just a week after it was put in. I have an appointment tomorrow to talk about removing it. It will suck since my insurance didn't pay for it. I paid 698.00$ cash. But if it gives me my life back I will get it out as soon as possible. Has anyone had these symptoms and had them go away after a few months? All my friends are saying stick in there but I don't know if I can. If I had found this site before I got it put in I would have ran the other way! Thanks for all your posts!
Rachael

I HAVE HAD MY MIRENA COIL OUT NOW FOR 12 DAYS AND SINCE THEN I HAVE BEEN BLEEDING NON STOP AND IT HAS BEEN COMMING OUT IN BIG BLOOD CLOTS AND I AM CHANGING EVERY TWO HOURS. LOOKING BACK NOW I REALISE THAT I HAD SUFFERED A LOT OF SIDE AFFECTS SINCE HAVING THIS BUT NEVER ASSOCIATED IT WITH THIS. I HAVE EXPERIENCED HAIR LOSS, MOOD SWINGS, SKIN PIGMENTATION CONDITION, BLOATED STOMACH, WEIGHT GAIN AND CONSTANT DISCHARGE, THE ONE GLAD THING THAT I WAS GLAD IT DONE WAS MAKE MY PERIODS LIGHTER. GLAD I FOUND THIS SITE.

I had the Mirena IUD inserted in March 2006, 6 weeks after my first child was born. I had it removed on July 26, 2007. At first, I didn't notice any symptoms. I had spotting for a while and then just regular shortened periods after that. My first noticable symptom was that I was extremely fatigued. For the last 6 months I feel that I was living in a haze, very tired, and felt that I wasn't able to function. I felt like I was way older than 31. In fact, a few months ago I was so worried about what I was going to feel like when I was 80. I went to my PCP and she could not find a medical reason for my fatigue after doing extensive bloodwork, so she thought maybe I was depressed. I went to my therapist and she very quickly verified that I wasn't depressed, I'd been seeing her for a year already to work on family issues so she knew me very well. My joints ached and I also experienced arthritic like symptoms in my hands - I could not twist a bottle cap off or open a sealed jar at all. About 3 months ago I started to get chin acne, then it moved up the sides of my face around my hair line and then all over my forehead to the point where it was very painful to touch. I was terribly moody, snappy, and emotionally stressed out all the time. I feel that the last year and a half have been wasted and I wish I could go back and not have it inserted.

After removing the IUD, I had bad cramps and my period came 2 weeks early. Blood was heavy, dark, and clotty at first (alot) and now is just medium flow, but bleeding for almost a week now. I've also had lower back pain since it's removal.