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50 Side Effects posted for Mirena

September 30th
2008
11:32 AM

Well I had Mirena for 15 months and had it removed almost 6 weeks ago. With Mirena I had mood swings, bloating, nausea every night (toward the end), was thirsty, soooo tired, mild cramping, and I'm sure I'm not remembering everything....so I was hoping all my problems would go away as soon as I got it out, but I feel like it's worse! I'm a hormonal mess, crabby, angry, depressed on and off. I'm still so tired, bloated, my fingers are so puffy in the mornings I can hardly get my rings on, and I've gained weight since having it out! I had a period that started 2 days after having it removed that lasted a week, and haven't had another since (I was expecting it last week). From what I've read here and on other forums it sounds like you can't expect a regular period right away. What have others' experiences been after having it out? How long did it take for your period to be normal again? (If ever!?)

-- By happymommy | Reply | (1) replies | Send Private Mail

September 22th
2008
11:49 AM

I got Mirena put in Feb of 07 almost a year after my second baby. I thought it was the greatest thing one earth for almost the next year and a half. I always had light periods so I stopped having periods completely since it was put in. I had no side effects whatsoever until Aug 08. I started having mild headaches that turned severe and did not go away for over 20 days.

That was my first sign. I started having pelvic pain (which has since gotten much worse) resembling ovarian cyst pain. I started bloating like crazy and my clothes were very tight and uncomfortable. I started experiencing pregnancy symptoms which worried me so I took a pregnancy test and it came out positive. I took another one later and it came out negative. I went to my regular Dr (because she had to order the tests for insurance purposes) and their tests came out negative. I've been pregnant 9 times (7 miscarriages) so I don't need a pregnancy test to tell me I'm pregnant. I know I was but my lack of periods wouldn't allow the uterus to hold a pregnancy.

I looked up my symptoms online and found hundreds of women with the same experiences. My Dr looked for the Mirena and couldn't find the strings or the device so she ordered an emergency ultrasound (lucky for me I have great Drs). They found the Mirena pushed further back in my uterus and that I had a large cyst (which I already knew I had from all my pain). My headaches got worse, my uterus pain got worse, I had back pain like crazy, I became so tired I could hardly move, and I was constantly nauseous. With a husband, 2 kids, and a job there was no time for all of that. I talked to people at work recently and they said when I was experiencing the best of my symptoms they were talking to me and I was looking at them like I was telling them to F*** off with my facial expression. I had to explain to them that it was the extreme headaches and the pain I was in and not them. I didn't realize it got so bad that my facial expressions showed it!

I went to my Ob/Gyn for an appt I had scheduled weeks before my pain started and told the PA about my symptoms so she looked for the strings and found them so the Mirena was back in place. She asked if I wanted it left there and I told her HELL NO. She pulled it out immediately and called it a demon, which makes me believe she knows about the horrible side effects. She didn't try to talk me out of it at all, not that I would have let her. Both of my Drs were very understanding to my need to have it removed and were willing to do it.

After I had it removed I continued having those symtpoms but they are beginning to fade off. I did have one day where I woke up and I was a raging B**** from the minute I opened my eyes and I don't know why. I apoligized profusely to my family and I knew it was my hormones but I could do nothing about it. Later that day I had my first ever anxiety attack and I freaked out. It was TERRIBLE. I've had continuous spotting since then. All these are our bodies' way of telling us to stop polluting our poor bodies. It's called "the crash"

Well ladies good luck with your little demons and remember the side effects continue until your body can regulate itself again. Don't give up cause it will get better.

-- By lovebeingamama | Reply | Send Private Mail

September 13th
2008
12:53 PM

This site is helpful knowing that its not just me. I got my IUD around march. My fiance & I got engaged a month before I had it put in. I just got into nursing school, so pregnancy is not an option!
During this time I was feeling

Depressed

Anxious

Difficulty concentrating

30lb Weight gain

Decrease desire of wanting to kiss

An appetite that doesn't seem to be satisfied.

Vaginal ithcing (feels like a yeast infection)
I blame the itching entirely on Mirena. I haven't had sex with my fiance (waiting after we exchange our vowes), so its not because he is being unfaithful. Its sooo uncomfortable.
As far as the weight gain, I have been feeling really guilty, loss of self-control, not to mention the guilt that follows. I'm glad to know that I'm not the only one. In speaking with other ladies who have had an IUD. I can't blame Mirena entirely. I've heard pro's & cons.

SO far 7 months with this IUD. I think I'm going to take it out after reading all of these blogs & my own experiences. I thought I should give it more time but I'm getting married soon & I don't fit my wedding dress.

-- By lushez | Reply | Send Private Mail

August 30th
2008
10:43 AM

For all of the poor girls who are searching "mirena experiences" because you are looking for a sure thing contraceptive-
This site is only for people who have had BAD experiences. Read them all if you want, but take into consideration they are the 3%, or whatever number, that had problems. None of these women deserved it, asked for it, needed it, or wanted it, but unfortunately their bodies responded to it in such an ugly manor.

Here's my experience so far....Had it inserted 8/06/08. Insertion was fine. Felt that speculum more than I could feel the actual insertion of the mirena.
Slight cramping afterwards...not immediately-went home and for like 20 minutes had cramps lighter than my period cramps.
For the first week bled lightly, second week had an actual period, week three and week four just spotting. The doctor told me this can go on for up to six months...kinda worth it if you think about it.
No acne problems so far, my hair is fine (and trust me, if my hair was thinning, falling out, or anything like that I would take the mirena out!), muscles and joints feel like they did before pregnancy, still breastfeeding (I know that they say that the mirena will make you produce less breast milk-tell that to my breastfed 13 pound 24 inch long 2 month old. he would disagree)
My breasts are a little tender and at first I was slightly bloated (less than if I were on my period) but that has subsided. Abstained from sex for a month after insertion per my doctor's orders, so I will come back and post if there were any problems with that...NEXT WEEK! yay!
Know that I understand the side effects could show up later.

Now again, EVERYBODY will experience something different. We are interfering with nature. Birth control is one of the most unnatural things we could do to our body.

Again, since this site commonly comes up when searching the mirena, I want for women to know that it might work for them better than it did for others.

-- By iheartvinny08 | Reply | (5) replies | Send Private Mail

August 28th
2008
4:08 PM

Just had mine inserted..it wasn't a pleasant experience at all as my cervix kept tightening up. I didn't feel well the rest of the day, cramping, bleeding, and fatigue. Better today. I hope I don't develop further problems/
What surprises me about this site is that many of the things you are describing are listed by the pharmaceutical company and the FDA as warnings and precautions as well as possible side effects. My doctor went through all of these step by step with me. I have a follow up appointment in 4 weeks and then another at 12 weeks then annually...all to check the device.
Yes, it is terrible that you had to go through these things, but this is a foreign device that is inserted in your body to deliver progesterone...if you are breast feeding, this will get to your infant; you are at risk for an infection; you are at risk for it to move/dislodge; it is a hormone and you may have adverse effects; it shouldn't be used if you have fibroids; immediate postpartum use is cautioned.
I am glad you are sharing your experiences, but I think it would be even more useful to report them to the FDA. Thanks.

-- By reader1 | Reply | (2) replies | Send Private Mail

August 26th
2008
1:26 PM

I am feeling so tired and let down with the marina. I had it fitted on the 1/08/08 and feel that my body has changed. I am bleeding so heavy, i have headaches, and feeling generally unwell. Has anybody taken this device out themselves my e mail address is ****** I would love anyone who can help or talk about their experiences to contact me. Also I have a good career and feel at the moment I can't cope....does any of this ring tru to anyone else?

-- By bernie1966 | Reply | (1) replies | Send Private Mail

July 31th
2008
12:26 PM

A lot of people are complaining of the same symptoms, and saying they are going to get the Mirena out.....can more people update us with the results of having it removed? Did all the symptoms go away?
I've recently had a lot of the same symptoms (basically feeling pregnant--headaches, very tired, mild cramping, bloated, pants very tight around the waste, lower back aches, indigestion, and just a general yucky sick feeling like morning sickness--and wasting money on 2 pregnancy tests so far!), which seem now to have been PMS-related (PMS which lasted about 3 weeks before my period), though I've not had PMS like this since having the Mirena put in, and it's been over a year now. And my periods have been very irregular the whole time. I basically had spotting for about a year, then nothing for like 2 months, then this whole thing followed by a light period lasting 8 days.
I'm thinking about getting it removed, but would like to hear others' experiences with having it removed. Did these symptoms go away??

-- By happymommy | Reply | (1) replies | Send Private Mail

July 26th
2008
7:17 AM

Hi - I am stunned at all the awful experiences that users of the Mirena are describing on this and other websites!
I had mine removed 5 days ago - principally because my hair was falling out in worringly large amounts. I wasn't sure it was the Mirena, but decided to get it taken out anyway as I had experienced pretty constant bleeding since having it fitted in March. It was only after having it removed that I checked the internet, and have realized since that I have been suffering from other symptoms that I had not realized could be related to the Mirena. Apart from the hair loss, I have experienced a terrible foggy and tired feeling, dizziness, sore and swollen eyelids, strange spots around my hairline, one sore breast (!), a feeling that I couldn't be bothered with things - including my children, dry skin patches on my face and grumpiness. However, as a working mum of 2, with a husband who is away quite a lot, I had just put this down to a busy life where I don't have time for myself always. Now I think it was the Mirena!
Having had it removed, I can feel the fog lifting, though not the tiredness. I have experienced heavy bleeding and blood clots - now subsiding, but feel more cheerful. My hair loss, however, is seemingly getting worse...has anyone else had a similar experience please? Any advice on how to deal with this and how long it might take to stop would be greatly appreciated!

-- By beckintrude88 | Reply | (1) replies | Send Private Mail

July 23th
2008
2:41 PM

I have had my Mirena for almost two years and I think it's the best medical decision I have made in years. I was on the pill for years and even had depo shots for a while. The depo mad me moody, irritable, and downright nutty. I have had none of those issue with Mirena. I have not had a period in a year & a half, and I have enjoyed every moment with my implant. People blog about bad experiences, but rarely share good ones. I just wanted to spread the word that it is GREAT for me. Like you, I read good & bad before I made my decision, and I am SO glad I did it despite reading blogs liek this one.

-- By emmyememem | Reply | (3) replies | Send Private Mail

July 22th
2008
4:14 PM

I just wanted to thank every woman who took the time to post their story. I just had a baby in March and was scheduled to have the Mirena device inserted tomorrow. I'm still breastfeeding and the pill makes me sick to my stomach all the time anyway, so my doctor made Mirena sound like such a perfect alternative. She stressed how low in hormones it was so it sounded so innocent and easy. I've just spent an hour reading all of these terrible stories and called to cancel my appointment. I'm actually going to direct my Doctor to this site and recommend she read up on a little real life, rather than pamphlets of clinical studies. My best to all of you recovering from this experience and again, thank you, thank you, thank you!

-- By tizzyliz | Reply | (1) replies | Send Private Mail

July 18th
2008
11:43 PM

i want to start off with IM SOOOOO GLAD I FOUND THIS SITE!!!

i though.. well i wasn't actually sure what to think.. i got my mirena at the end of January 2008.. at first things were going good... yes my periods got longer.. 3 times longer then normal actually.. i wasn't too worried because the OB said that might happen at first. then slowly i started loosing my sex drive ( im only 25 that really shouldn't happen) started getting achy, especially in my joints, so i started drinking more water. then my clothes started getting tighter.. i cut out soda all together and started watching what i eat more closely..i have also had some pretty bad anexity attacks lately.. which i never had before i got this thing.. i dint know what to do i though i was going crazy.. i talked to my doctors and basically got nothing out of that.. im now in my 6th month of having mirena and i have gained almost 30 pounds!!!! yes i have been hungry all the time but i either restrain myself fream eating altogether or eat healthy snacks.. i exercise daily and still am unable to lose any weight.. the numbers on the scale just keep creeping up and up.. im am moody and easily worn out.. i have no energy at all.. which isnt good with a 3 year old that has more energy then the sun.. i had no idea that mirena could cause any of these symptoms.. but the more i have been reading about it and the more site like these i find, the more i realize that the most likely culprut of losing myself is mirena.. i have decided that on Monday im calling my OB and demanding she remove it!! i want my old self back again.. i wasn't perfect but at least ill be me.. thank you all for sharing your experiences, you made a world of difference!!!!

-- By nhbubbles | Reply | (1) replies | Send Private Mail

July 17th
2008
9:03 PM

After reading these posts, I am glad I didn't change my mind about having the MIUD removed. I have had all sorts of problems since that evil piece of plastic was inserted. I didn't think much of it at first and thought maybe I am just tired because I have my period and cramps alllllll the time. The relationship I was in was bad and thought maybe I was tired and moody because of that. After a couple of months - boyfriend free - things didn't change. I had horrible mood swings, my concentration was shot. My work ethic went down the toliet, I felt like a 10 year old kid with ADD. No energy, back hurt on a regular basis, carpal tunnel came back with a vengence and TMJ (I don't know if that's related but I've never had it before), acne, weight gain, no sex drive, and a constant itching around my neck. I am sure the NP was ready to try to talk me out of it and wait the full 6 months for "side effects" to go away. Well, the last 5 sucked, I really didn't want to deal with this crap any longer, besides with the price of gas, I can't afford the money for the regular buying of feminine products. I am only 6 hours free of this and I am already feeling a little better. I don't have that "pressure" you feel in your belly and a have bit more energy. I am so looking forward to the next few weeks when things start to get back to normal!!! If you have any doubts about this thing....get rid of it. Its really not that bad to get it out, 99 times less painful than getting it inserted!!!

-- By jenm739 | Reply | (1) replies | Send Private Mail

July 14th
2008
4:16 PM

I GOT MIRENA IN ABOUT 2 1/2 MONTHS AGO AND WELL I AM NOW SUFFERING FROM THE SAME SYMPTOMS THAT ALL THESE OTHER WOMEN DESCRIBED. I HAVE PAIN THAT COMES AND GOES IN MY ABDOMINAL AREA, I FEEL TIRED ALL THE TIME, IRRITABLE, DEPRESSED, HEADACHES, BAD CONSTIPATION, WEIGHT GAIN, HAIR FALLING OUT, AND BLOATED SO BAD THAT I LOOK LIKE IM 5 MONTHS PREGO. IT SUCKS I FEEL LIKE I AM GOING INSANE TO THE POINT WHERE I CANT EVEN STAND MYSELF, I DON'T KNOW HOW MY HUSBAND DOES IT. OH AND TO TOP IT OFF 1 MONTH 1/2 INTO HAVING IT I HAD TERRIBLE PELVIC PAIN I COULD NOT EVEN WALK, AND SO I WENT TO DR. AND THEY SAID THAT I MIGHT HAVE A CYST SO NOW I HAVE TO GET AN ULTRA SOUND TO C IF IT IS A CYST OR NOT. UP UNTIL TODAY I DIDN'T CONNECT MY SYMPTOMS WITH THE MIRENA EXCEPT FOR WEIGHT GAIN AND THE POSSIBILITY OF CYSTS. THEN I WAS TALKING TO A FRIEND OF MINE THAT WAS CONSIDERING THE MIRENA AS WELL AND SHE MENTIONED IT TO HER AUNT WHO HAD IT AND HER AUNT TOLD HER NOT TO GET IT AND TLD HER HOW THE MIRENA IS THE PORTAL TO HELL. SHE CALLED ME TLD ME ABOUT IT AND WELL THEN I STARTED TO LOOK FOR OTHER WOMEN'S EXPERIENCES AND THAT IS HOW I CAME ONTO THIS PAGE, AND OTHERS ALL WITH NOTHING BUT THE SAME COMPLAINS. MAYBE 1 OR 2 GOOD EXPERIENCES BUT THE REST WERE BAD. I HAVE AN APPOINTMENT ON 7-21-08 TO HAVE IT REMOVED AND GET BACK ON THE PILL THAT I WAS TAKING FOR ALMOST 9 YRS AND NEVER HAD A PROBLEM WITH. I CANT WAIT FOR MONDAY TO COME. I WILL LET U ALL KNOW HOW I FEEL AND HOW MY LIFE CHANGES AFTER I GET IT REMOVED. UNTIL THEN ALL I CAN SAY IS DON'T GET MIRENA ITS THE PORTAL SO HELL!!!

-- By birdy8479 | Reply | (2) replies | Send Private Mail

July 3th
2008
2:17 PM

I am having strong cramps this past week and I've had my Mirena in for almost 2 months. Wish I had seen these message boards before hand. My doctor did tell me it would take between 3-4 months for everything to settle down. Don't think I want to wait that long. Now I found out yesterday that I have an ovarian cyst...something that I didn't have 2 months ago. It really is an evil little device, isn't it? Too all of you that are having positive experiences...I wish it was me!

-- By brmhlda_61 | Reply | Send Private Mail

June 27th
2008
9:17 AM

Sorry people - had Mirena for a year now and have had absolutely no problems. The best thing I ever did infact. No periods, no side effects like with the pill, absolutely great. Sorry to hear that it's not like this for everyone but I am sure that there are many more people like me that have had great experiences. Good luck!

-- By spikina | Reply | Send Private Mail

June 14th
2008
10:32 PM

Back to report for those interested in post removal stories/experiences - 3 months post removal here. The first 2 months were so much better - I was back to my normal self, running each morning, working and then having enough energy for my kids and husband. Periods were normal 5-6 days like before and 25-28 day cycles. This month period was much heavier, with many more clots. I had to change tampons every 2 hours just to be sure that overflow didn't happen. It actually caught me off guard since the previous months were so normal. Weight is slowly coming off which confirms to me that Mirena was cause since I'm not doing anything any differently exercise/food wise. Will continue to update as life goes on......

-- By davenport4 | Reply | (3) replies | Send Private Mail

June 13th
2008
2:07 PM

There are many new posts on here from women describing their experiences, and then I've noticed a few on here also who appear almost angry that women are "blaming" Mirena for all of these issues. So it has become apparent that those few select women have not read through many of the earlier posts, or have taken the time to educate themselves enough on Mirena.

So I thought I'd hop back on and reiterate some earlier posts: There is substantial proof and documentation of all of these side effects, and many more, as written in the product monograph which was released in Canada by the Bayer Corporation themselves. This site will delete links, and it's almost 50 pages, so I won't copy and paste. If anyone is interested in the link to this information, let me know, I'll send it in a private e-mail.

Additionally, there have been several other studies done in the UK...those are short enough that I'll copy and paste those below.

Suffering Women: YOU ARE NOT CRAZY! This product can cause catastrophic issues for us. I say that it "can" not that it always "does".

Yes, there are women who have had good results with Mirena. And many of the women on here are not pissed just because there are side effects...it's that we were not warned that these COULD BE side effects, and when we go to our doctor's, many of them are discounting our symptoms as being "all in our head" when there absolutely is a reason behind all this.

To those of you who want to be nasty on here...go find someone else to whine to...we don't want to hear it. We are here to support each other through a very real time for us. You are outnumbered. You may call us "middle-aged"...and I guess to those of you barely out of puberty, being 30 might be considered just that; however the correct terms would simply be more mature, and much more wise, than you. (And I wouldn't have a need for birth control if my reproductive system was so "undesirable" and "non-functioning" now would I?) ;)

Here's those studies...sorry this is so long:
"Kingman et al.'s success in controlling menorrhagia in women with inherited bleeding disorders (BJOG 111:1425–1428) echoes numerous reports in women without complicating haematological conditions. However, they ignore the metabolic effects. The LNG-IUS is associated with high systemic absorption of the progestogen, and serum levels of levonorgestrel (LNG) have been recorded around 511 pmol/L.1 This is the equivalent of two LNG-containing minipill tablets daily continuously. LNG suppresses Apolipoprotein AI (Apo AI) formation by inhibiting the ABCA1 transporter protein.2 The synthesis of Apo AI is a fundamental step in the initiation of reverse cholesterol transport, which is enhanced by oestradiol and statins and when deficient, the ensuing atherosclerosis in animal models can be reversed by the administration of Apo AI.3
The epidemiological observation of the relationship of breast cancer with the use of progestogen only contraceptives goes to the 1980s,4 but these were mentally rejected by many physicians because it did not conform with the doctrine of ‘oestrogen induced’ mammary carcinogenesis. The validity of the latter hypothesis was challenged in a randomised clinical trial of oestrogen only treatment5 and a wealth of biological data show that progesterone and progestogens in general and LNG in particular being established mammary epithelial mitogens.
The LNG-IUS also suppresses oestrogen production, inducing a clinical situation not unlike a premature menopause in at least 50% of treated women. Oestrogen deprivation for the number of years such treatment is being administered will have a profound effect on bone mass and vascular reactivity. Similar concerns have recently been widely circulated regarding the use of depot MPA contraceptive preparations.
Given that it is unlikely that a randomised controlled trial of the size of the Women's Health Initiative one will ever be mounted to test the long term effects of the LNG-IUS, caution is required, particularly in treating older women, for whom treatment may bring forward the menopause.
The idea that LNG-IUS works entirely as a local progestogen should be revised, and patients and doctors should be warned about the metabolic and carcinogenic risks, whatever the marketing pressures.
May WahabaaObstetrics and Gynaecology, George Eliot Hospital, Nuneaton, Warwickshire, UK & Farook Al-AzzawibbObstetrics and Gynaecology, University Hospitals of Leicester, Leicestershire, UK"

-and-

"Mirena: the other side of the story
AAA Ewiesaa Consultant Gynaecologist, The Ipswich Hospital NHS Trust, Suffolk, UKa Consultant Gynaecologist, The Ipswich Hospital NHS Trust, Suffolk, UK
Sir,
I read with interest the article by Halmesmaki et al.1 that only 48.7% of women randomised to the levonorgestrel (LNG)-releasing intrauterine system Mirena, kept it in situ until their 5 years follow-up visit, while the rest either had it prematurely removed (8.5%) or underwent a hysterectomy (42.7%). It supports the growing evidence that women’s satisfaction with Mirena (Schering Health, Newbury, UK) is limited. I do not find this surprising. A colleague and myself previously reported (as an abstract) a survey including 160 Mirena users in Suffolk in which we found that 46% of women had had the system removed within 3 years of insertion (median duration = 260.5 days; range = 4–1460 days). The most common reasons for early removal were unscheduled bleeding, abdominal pain and progestogenic adverse effects; including bloatedness, headache, weight gain, depression, breast tenderness, excessive hairiness, greasiness of skin and lack of sexual interest.2 Our data related to a selected population who had the Mirena inserted under general anaesthetic after hysteroscopic examination of uterine cavity to exclude lesions, such as submucous fibroids. I would expect the continuation rate to be lower in women having the system inserted without prior exclusion of intrauterine pathology. The satisfaction rate in our cohort of women, as assessed by visual analogue scale of 0–10 cm, was only 49% (unpublished data).
Halmesmaki et al.1 reasonably attributed the detrimental effect of Mirena on the sexual function to the higher incidence of lower abdominal pain in users when compared with those who underwent hysterectomy. Furthermore, the decreased satisfaction of sexual partners could be due to the inhibiting effect of the irregular bleeding, which is the most common adverse effect of using Mirena.2,3 The observed decrease in women’s sex drive could also be due to the systemic effect of the progestogen absorbed into the circulation, indirectly affecting the sexual partner. The argument used by the authors that serum concentration of LNG is extremely low and that its influence on ovarian function is limited has been disputed recently by many investigators. Xiao et al.4 found that Mirena was associated with substantial systemic absorption of LNG and recorded serum levels of around 500 pmol/l. This is equivalent to two LNG-containing ‘minipills’ taken daily on a continuous basis. Moreover, a retrospective observational study documented that 21% of Mirena users experienced progestogenic adverse effects.3 Wahab and Al-Azzawi5 reported that Mirena suppresses oestrogen production, inducing a clinical situation similar to a premature menopause in at least 50% of treated women. The prolonged oestrogen deprivation will have a profound negative effect on women’s sex drive, which may explain the sexual partners’ decreased satisfaction.
In fact, despite the popularity of Mirena as a contraceptive method and in treating menorrhagia, the continuation rate and women satisfaction level have not been adequately assessed in the UK population. A large well-designed study is required to evaluate these important factors so that women can be adequately counselled. The idea that Mirena works entirely as a local source of progestogen should be revised, and the recent concerns about Mirena should be made clear to women regardless of the marketing pressures.5
AAA Ewiesaa Consultant Gynaecologist, The Ipswich Hospital NHS Trust, Suffolk, UK"

-- By nyrek | Reply | Send Private Mail

June 11th
2008
11:14 PM

I can't believe some of the things you people are blaming on the Mirena! There is NO substantial evidence that supports ANY of your claims! I had the Mirena put in on the May 16 and, while it was painful to put in, I haven't had pain since! My only complaint is that I haven't stopped spotting. My sex drive is IMPROVED if anything but the bleeding has made it hard to "engage". As soon as the spotting lightens enough, I "engage" and then right after, I start bleeding again. But that is no big deal since I was told to expect this pattern. As for those of you little teeny boppers who are just dating and haven't had a child yet...What the hell are you even doing on the Mirena??? Did you not hear that you aren't a good candidate for it????

-- By mommyh | Reply | (4) replies | Send Private Mail

June 10th
2008
8:16 PM

I've had my Mirena in for about a month now, and honestly, it hasn't given me any problems. Of course I had cramps in the first week, and spotting for the first 3 months or whatever...but I can truly say that I love this birth control, and I hope not to get the negative side effects like most of these women. If you are considering the Mirena for birth control, talk with your doctor. If you have problems, talk with your doctor...if you're pissed off because you feel like you wasted your money, maybe you should take a second to think about it...neither you nor your doctor can look into a crystal ball to find out how something will effect you. But please, if you are considering the Mirena, don't decide against it because what a bunch of middle-aged women (with less than healthy reproductive systems) said. I'm 20 years old, and this IUD is a blessing.

-- By sabrina1987 | Reply | (9) replies | Send Private Mail

June 8th
2008
1:17 AM

I just had Mirena removed yesterday, and could feel relief in my body with a half hour. Yes, truly-a feeling that I removed this "irritation". When I saw the size of the Mirena-and the shape of it, internally understood why my body was swelling. It scares me that so many of us are exhibiting the same types of symptoms. I had this inserted 4 !/2 years ago and have gained 30Lbs., experiences of depression and strong mood swings, changes in my skin-acne, and an increased libido.

What I notice the most after removal is the very distinct sensation that its out. I didn't realize that I just got used to this being in my uterus.The swelling was so obvious it looks like I am 5 months pregnant. I am 5'4 and when I first had this inserted I wore Size 6. I now wear Size10, 12. And its not my diet-I do not indulge in junk food,or large portions. I exercise 4-5 times a week, and have a great sex life..

I think that the Pharmaceutical community and Physicians are aware that this is a problem, They just aren't acknowledging it...YET. Who knows what the long term effects are.
I have had this out for about 36 hours and I feel a sense of comfort in my own body... It is not my imagination and I would call anyone in our "medical Community" ignorant for not standing up to the obvious fact that this IS A PROBLEM.

-- By bluskyrobbi | Reply | Send Private Mail

June 7th
2008
4:45 PM

I looked into mirena last year and was a little worried about the side effects. The gyn really didn't push it so I let it go. Went to a new gyn this year and he was so excited about it, telling me he has inserted over 400 of them and how everyone has been so happy with it. I was told I would have a little discomfort during the insertion, but besides a little cramping I'd be finein a couple of hours. Well I had mirena inserted one week ago. It was more painful then I was led to believe. After the insertion I was told to rest a minute and left alone. Around 5mins later I proceed to check out and ended up passing out. I am a strong healthy 40yr old. Never expected this. Ended up in the E/R (they said it was a sudden drop in BP). So now besides paying $800 for the mirena I'm going to get stuck with ambulance and e/r charges! I guess I'm just lucky I didn't pass out on the drive home. On top of that I've been so irritable, moody and so fatigued. Any hope in these feelings lessening with time. I'm a little worried after reading everyones experiences. Keep you posted

-- By sabsun | Reply | Send Private Mail

May 15th
2008
7:08 PM

I am 3 weeks post removal and I am still experiencing aches and pains throughout my body, still have the 10lb weight gain, some mood swings and extreme tiredness and some periodic bloating...I am fed up! I have 2 questions: Has anyone found anything about this hormone levonorgestrel and how long it takes to get out of your system? Second, if anyone knows of any suits against these people, let me know because this is really interfering with my life and with my children and my boyfriend!! This is ridiculous, I didn't know about all of this crap prior to getting the Mirena and wouldn't have gotten it if I did know, and I am still paying for it after removal! Please let me know...thanks!! : )

-- By lauraos | Reply | (10) replies | Send Private Mail

May 6th
2008
9:42 PM

I don't know if seeing all these posts help me or scare the crap outta me even more (none the less very helpful), I have no insurance and really want to get my IUD removed. I had it inserted when my daughter was 8 weeks old that was about 11 months ago. I have had nothing but problems, severe cramping, nausea, periods that last a whole month, one month it will be icky brownish discharge with a lil blood here and there, I will stop for about 2 weeks and get it again this time lasting about 3 weeks then i will go about 6 weeks and have it again this time with severe cramping and bleeding for a whole month straight. then i may not have it again for 6 weeks etc... I have really nasty blood clots that look very fleshy. I also have had very thick yellowish stinky discharge everyday i don't have my period ( I have NEVER smelt this bad) I feel like im losing my mind Im so absent minded i forget the simplest things, my arms and legs go numb and tingly, my hair is falling out in clumps, im extremely moody and very impatient. and the tiredness is really starting to bother me, no matter how much i try to stay awake its almost impossible, i literally need to take a nap every 3 hours it seems like just to function...I feel like im falling apart. Has anyone else had a lot of these symptoms? And what should I do about getting it taken out....I don't qualify for Medicaid so I was wondering if i should just go into the hospital the next time the pain gets bad and see if they will remove it any advice will be helpful! And good luck to anyone else going through problems with this IUD.

-- By manda51807 | Reply | (5) replies | Send Private Mail

May 5th
2008
11:11 AM

Like most of you state in your posts.........I cannot begin to describe how relieved I am to have found this site. I honestly thought I was losing my mind. I had Mirena placed in December '06. It was uncomfortable during the actual procedure, but not too bad. Then within a day or two I was in severe pain and bleeding like crazy with severe lower back pain. I was told to take ibuprofen and allow my body to "adjust". I went for my follow-up ultrasound and the placement looked fine although I was still bleeding like crazy and very uncomfortable. After several more calls they brought be back in for another ultrasound, told me that my uterus must have gotten bacteria in it during placement and that I had an infection. They sent me home on antibiotics and pain medicine. I bled pretty regularly for 6 months straight accompanied by lower back pain, fatigue, and headaches. Finally the bleeding let up only to be followed by a multitude of other nasty side effects. Depression, anxiety, fogginess, forgetfulness (severe), waking up with headaches every morning, nausea (to the point that I can't tell you how many pregnancy tests I've taken), weight change (redistribution, thicker waist, tummy, and hips even though actual number only changed by about 5 pounds), feeling swollen and bloated when I wake up in the morning, NO libido whatsoever and feel like crying during sex because it's nearly impossible to reach orgasm (this has never been a problem previously), hair loss (becoming more noticeable over time), dandruff, boil-like acne on my face and back, dry eyes and blurred/double vision, chronic yeast infections and dryness in that area too. The list goes on and on. I went to three different doctors and had tons of bloodwork done, all came back normal (thyroid, hormones etc....) I was told over and over that it couldn't be the Mirena. HA! How can this many women be delusional? I called last week and got an appointment for May 20 to get it removed. After reading this forum my husband called the doctor himself and I don't know what he said, or how he managed to do it.........but I'm going in tomorrow morning at 10:20 am to get it removed and you better believe I'm going in armed with this website and others I've found. Physicians need to be more aware of this! Even if it's not common, it's miserable for the 1 in 1,000 woman who gets the worst of the side effects. It's literally ruining my life and my marriage. It's impossible to be a good wife and mother when you feel terrible everyday.

-Amanda

-- By butrfly9 | Reply | (3) replies | Send Private Mail

April 30th
2008
6:48 PM

I had Mirena inserted two months ago. I swear, it has made me crazy. Just ask my husband and my kids! In the 60 days that I've had it, I've bled for 55. I'm tired all of the time, irritable, and often depressed. I've also gained 9 pounds. I have not changed my eating habits at all and I work out! Regularly 5 times a week. I look like I'm about 4 months pregnant, my stomach is so bloated and it doesn't seem to go away. I wish that I had looked up side-effects before I had it inserted. I was told that I wouldn't have any side effects because the hormone was only released into the uterus - WRONG. I'm thankful for all of you that have shared your experiences. Its nice to know, its not just me. I'm going to get it taken out so I can feel like myself again. I might as well be pregnant anyway, I look and feel like it! (seriously, my hands and feet even swell up at night.)

-- By lookpregnantanyway | Reply | Send Private Mail

April 22th
2008
8:11 PM

Hi all.
I am really dis-heartened right now. I cannot seem to get this thing taken out yet. My husband and I are self-employedso we have to take out our own health insurance. Our ins. company said that side-effects are a "disorder of the reproductive system" and there is a six-month waiting period to have anything done and we have just gotten it. So I went to an after hours clinic that I called waited until today thinking I could get it removed. WRONG!!! :( Today they said they could not remove it. More over, naturally the doc there said that there was no way all these side effects were from the mirena. I was so upset.
To anyone who has had this taken out, how many of your symptoms have gone away? How long has it taken?
Please e-mail me at ****** or private message me and let me know your experiences with post-removal and side-effects that cleared up. I am ready to take action on this mirena as women need to be informed of the possible side-effects of this drug. I have been suffering for 1 year and 10 months.
Thanks for reading!

-- By april8830 | Reply | (1) replies | Send Private Mail

April 21th
2008
1:32 PM

I've posted previously about my experiences with the Mirena....had it removed Feb 7 after only 5 months due to acne, bloating, low libido, dizziness, heart palpitations, mental fogginess. In the 5 months that I had the Mirena, I had two periods, one that started Dec. 24, 07 and one that started Jan. 17, 08. After the removal, I had 2 days of a light period/spotting and that's it. Multiple negative pregnancy tests but still no period. So I called up my Dr's office and he wanted to run some labs, test my FSH and Estradiol. They said it would be a week to a week and a half....but the nurse called me back this morning! She starts off with "Are you somewhere where you can talk?".....she tells me that an FSH of 34 or higher is considered menopausal...and mine is 107!!! I am 43! So the Dr wants to repeat the test in 6 weeks and then I have a consultation with him a week later. I had been having periods prior to the Mirena, even though they would occasionally come a few days early or a few days late. I am absolutely stunned. I have been having hot flashes at night...not sweats but waking up hot....and I guess that's why the Dr decided to do some labs. I wonder (as I'm sure he is) if this Mirena, and the lack of ovulation, is the reason for this or if I am really menopausal at this point. My Mother did not experience menopause until 49 although I know that does not necessarily mean that it will be the same for me. I am just stunned.

-- By red1964 | Reply | Send Private Mail

April 5th
2008
11:45 AM

I decided to give a quick update for those you interested in post removal experiences. I'm at Day 4 of being Mirena free. I've also been taking a cleansing and detox 2 week program for 4 days. I can tell a HUGE difference. I've lost about 3-4 lbs since before the IUD was removed. The bloating was gone immediately and my energy level was back. The headaches are gone and I feel so much more like I should feel as a 31 year old mom. :)
Today I've had some bleeding, but non of the symptoms I've had for the past 18 months. For those of you that are questioning what's happening to your body, listen to your gut. Most likely the Mirena is just not right for your particular body and is what's causing you to think something has taken over your life!

-- By davenport4 | Reply | Send Private Mail

March 27th
2008
10:29 AM

I think you guys are all crazy liars. I have mine and I love it also I work in a GYN office and I've asked the other women who had it inserted and they all love it too.

-- By ang80179 | Reply | (19) replies | Send Private Mail

March 13th
2008
2:52 AM

My Mirena Removal....
So i posted here a few weeks ago after I found this site. I had EVERY side effect listed and was so freaked out that i immediately made an appointment for removal.
For those of you reading and wondering what the removal is like..
Well, NOTHING like the insertion. I was so so nervous and it was over before we actually started. The DR was surprised that i was back in his office to have this removed. He then proceeded to do an ultrasound to be sure it was placed properly before removal. And yes, all was OK on the position of it. I explained to him my reasons and he looked at me like he had never heard this before. I honestly can not imagine with all the women he sees that NONE of them have complained. But...as I was getting dressed afterwards, I took a good look in his office. There was Mirena literature ALL over the place. In fact, that was the ONLY thing he was advertising. Not to mention...they made me pay up front with the insertion back in Nivember...billed my insurance and I still have yet to receive my reimbursement. Oh yeah, and that...they charge more than the actual Mirena costs, then they bill your insurance for the price they know they will pay and the DR then makes about $150 profit. Nice.
Ok, back to my side effects post Mirena. The removal was not painful at all. I did spot for about a week- nothing too heavy but it was clotty and def there.
A couple of days after the removal it felt like I was coming out of my skin something terrible. I figured this was my body adjusting to the lack of hormones. I also had some headaches.
It has now been 2 weeks and the spotting has disappeared. I also can see the bloating of my stomach is starting to go away. It looked like I was about 4 mos preggo while I was on it. I also have an increased sex drive. And sleep-- well let me tell you, I have not slept this good in a very long time. I am actually sleeping more than 6 hours now and the night sweats have also discontinued.
I can't believe EVERY time I come to this site and look up Mirena ALL the people that have posted their experience as being negative. Yet, the DR looks at me like I am crazy! I have been seeing him for years and I have never complained about something like this. I really am so happy that I have it out and wish I would have done my research on this prior to insertion (which was one of the most painful things ever!)
So..for those of you out there that are either contemplating having it inserted...I say NO WAY. And for those of you out there that are nervous about the removal or not sure..I SAY YES, DO IT! For our bodies to be reacting this way, it is clear to me that it should not be inside of us. Listen to your bodies...they really do speak to you and let you know when something is not right. Forget about the DR saying it is safe or he has not heard of any of these side effects...YOU be the judge.
Good luck! And I promise it gets better once you get that lil' demon out!
Mona

-- By monanigro | Reply | (10) replies | Send Private Mail

February 26th
2008
3:05 AM

I posted a few days ago about my experiences with Mirena. This is an update. I'm so happy to have that thing out!! I haven't had any heart palpitations since the day I had it out. After reading pages of posters' side affects here, I noticed quite a few other people have had anxiety/heart palpitations/irregular heart beat with it also. I'm so glad that I listened to my instincts and just got it out. I started bleeding two days after I had it out, HUGE clots, lots of bleeding like I just gave birth! It went away a couple days later then came back again. I guess my body is really trying to clean itself out. I also had already lost 1 pound in 2 days after having it out. I know it's only a pound, but I know it's a loss because my pants are fitting better. I really don't think Mirena was worth the weight gain, acne, loss of hair on my head, additional facial hair, and worst of all the anxiety and palpitations. I've always been extremely sensitive to birth control pills, but this was supposed to be different, the hormone was localized so there weren't supposed to be as many side affects. That apparently wasn't the case with me. This may work for some people, and that's good for them but it's not for me.

-- By angierae71 | Reply | Send Private Mail

February 15th
2008
11:48 PM

I had a horrible experience with the Mirena. Weight gain, high blood pressure, mood swings, loss of libido, etc. I got the Mirena removed on Monday, and I am already feeling better. I started a blog detailing my experiences with the Mirena, and would love for more ladies to come participate and share their stories.

-- By oregongirl | Reply | (1) replies | Send Private Mail

February 4th
2008
3:46 AM

I've had Mirena since mid-2001, and my closest friend has had it since about three months later. We're both on our second ones. Other than heavy bleeding and cramping for the first couple of weeks after insertion there have been no negative side effects. My periods have become so light, it's barely a hassle, it's awesome. No hair loss, no libido loss, no mood swings (any more than ever, anyway, and less because no more PMS), the only weight gain was when I ate crap and didn't exercise, when I went back to eating healthy and exercising the weight came back.

So, if you found this website and think that getting a Mirena means you'll necessarily get these terrible side effects, think again - some percentage of people will have some side effects, but then there are tens of thousands of women out there not having any, most of them not looking for websites to post their experiences on.

In fact, I came across this site looking for whether they've extended approval for how long the Mirena can be left in (supposedly they were doing studies for seven vs. five years, and possibly longer).

-- By ak999 | Reply | (1) replies | Send Private Mail

January 23th
2008
11:46 PM

I've been skimming through all of these blogs and I feel like I must be one of the lucky few that didn't get an side effects from the Mirena. I had it implanted on Sept. 21st 2007 ( 6 weeks after I had my baby) and since then I really haven't had any problems with it. I didn't feel a thing when it was implanted and after wards... just a little bleeding but no more then a panty liner. I stopped having my period with in the first 3 months. Sure the occasional spotting here and there, but nothing to get stressed over. My hair was falling out more the usual in the shower, but my doctor assured me that it usually happenes after women have babies and will go over after the first few months. So to all the women who've had problems, I'm sorry to hear it, maybe the Mirena just wasn't right for you all. But it sure was right for me. ;)

-- By htownzgabby | Reply | (2) replies | Send Private Mail

December 29th
2007
11:23 PM

Update on my Mirena removal....I have had it out for about 36 hours now - just a day and a half. I have a slight headache, but I don't even feel like I need to take Tylenol... certainly not like the migraines I had for the past two weeks straight. No more sore breasts, no new pimples on my back or chest, and my back no longer itches at all. In fact, the pimples I have are slightly smaller - I hope this means they are going away. And I can tell I'm in a better mood. I like to look at experiences to see what can be learned, and I think one thing I have gained is a glimpse into what people feel when they are diagnosed with depression. I would have never understood those feelings had I not just experienced them - and it was only for two months. After reading posts of people who are still feeling the effects after a month or longer, I feel fortunate to be having such an immediate recovery, although I'm sure I could have ups and downs over the next few weeks who knows. Good luck to all of you - you have my full empathy & support!

-- By goodyearchic | Reply | Send Private Mail

December 29th
2007
8:33 AM

My Mirena was taken out four weeks ago. Apart from some side effects not leaving yet (occasional nausea, IBS), I had some surprises: the eczema on my hands which had been there for AGES, has suddenly cleared up completely. My hands are normal again!
I also had trouble with my labia, especially on the left, it was hugely swollen (which didn't make me feel good about myself as you can imagine. It looked horrendous). My OBGYN said it would go away on its own, but it didn't. Now my Mirena is out.... it has returned back to normal in a few weeks time! Has anyone had the same experiences?

Claudia

-- By claudia1969 | Reply | (1) replies | Send Private Mail

December 19th
2007
3:11 PM

I posted on here last week about my experiences. I thought I'd give a little update. I was supposed to get it out yesterday, however my stupid insurance requires that the doctor give a written request after I've had a pap before they'll "allow" it to be removed. When the nurse first told me this I was furious! I thought it was going to be hard enough to convince my doctor, and now we've got to convince my insurance. However, since I've had it inserted, I have moved to another state. That meant I was at a brand new doctor yesterday and didn't know what to expect. As she walked in the room, she was reading my chart and was asking about my periods. When I told her I didn't have any while on Mirena until two weeks ago, she became VERY concerned. She said that is not normal, and you should be getting your period, even if you have an IUD. She asked if I was having any other symptoms, and I said the most obvious one was my weight gain. I have gained, I learned after being weighed yesterday, almost 45 lbs in the last 6 months. She stopped what she was doing and looked me square in the eye and said "That is NOT normal! Have you ever gained that much before?" I told her no, never that much in that short period of time. That was all the information she needed to decide I needed this thing out immediately. She quickly did my pap and explained to me that with Mirena, it gives off different hormones than the pill. That is why when people have problems with the pill, they usually suggest trying Mirena. However, there are people who react badly to this different hormone. And the first obvious sign is when you don't get your period, especially several months in a row. She couldn't believe this was not explained to me and gave me the impression that she does not regularly recommend Mirena to her patients. (A stark contrast to my previous doctor who could not stop talking about how wonderful Mirena is and that "all" her patients love it). While I was getting dressed, the doctor went to the front desk and filled out the necessary paperwork to get this taken out. She also told me to make an appointment to have it taken out - which is Jan 8. What doctor takes the time to do paperwork right then and there?! I was very happy that she was taking me seriously, but it also concerned me that she was so worried about me getting it out too. I just don't understand how two doctors within the same field can have such vastly different reactions! She also told me that after I get it taken out I need to have blood work done about a month later to make sure my hormones are going back to normal, because if not, there may be other things wrong. (How scary is that?! Mirena may have caused other, more permanent problems!) Now I'm just hoping the paperwork goes through and I can actually get it out on January 8!

-- By sadie47 | Reply | Send Private Mail

December 18th
2007
7:47 PM

Hi, I've just had my Mirena taken out ( thank Heavens) and can now get my life back. The only good thing was no periods for five years. The hormones gradually ran through my system and all the side effects crept up on me.
My allergies got MUCH worse.
My skin thinned.
I felt three thousand years old , ALL the time.
It stripped a goodly amount of calcium from my body, my teeth started crumbling.
( after two months post removal, my bone and teeth density has improved out the site! WITHOUT supplements My dentist and doctor are now a lot happier)
I had NO sex drive at all.
My weight crept up with NO lifestyle change, 30 kilos! - I have lost on average half a kilo a week since removal. NO diet change, NO activity change.
I've always had slight hormonal acne on my face and nowhere else... with Mirena I had it all up my formerly crystal clear back and diarriere, bust and even scalp.
Lots of other minor crap.
Please, if you have sensitivities to the pill and other hormone treatments, DO NOT go here. I thought I was just aging rapidly- bull dust! I'm just glad that my husband gave me all the support I needed to bring this tragedy to my doctor and Gynie's attention. For so, long I thought it was just me.
Now I'm having my tubes clipped. Hormonal interference just doesn't work for me

-- By jaya22 | Reply | (2) replies | Send Private Mail

December 12th
2007
5:21 PM

After reading many of your experiences, I feel the urge to tell my story. I got my Mirena put in back in June 2007. My doctor had been encouraging me to try Mirena because I was having such problems with my periods while on the pill and I had tried different types and brands and nothing seemed to be helping me. So, finally after about 2 years of her telling me to try it, I did. Since I have not had children, she said I needed to have it put in while on my period so that my cervix was more open. I called her on the first day of my next period and got it put in. It was very painful to be inserted, and the horrible cramps lasted about 48 hours, but then went away. My period also got worse during that time, but then completely stopped two days later. I didn't get my period again until two weeks ago, which stunned to me. My doctor had said that I may have spotting the first couple months, but then that would stop and I would no longer get my period. Since it has been 6 months since I've had it, I thought it was very odd for me to suddenly be getting my period again. Along with the actual menstruation, I got the cramps, headache, bloating and everything else wonderful that comes along with a full blown period. I only had menstruation for 3 days (the shortest period of my life) but the cramps have continued constantly for the last 2 weeks. I decided I should look up the side effects of Mirena to make sure it wasn't abnormal. I got the same information from their website as I did from the pamphlet I'm sure we all got from our doctor - saying that only a very small percent of woman have any side effects at all. So, I thought I was making things up. But the more I thought about it, the more I realized all the things that have changed for me since I got it put in. That's when I stumbled across this site and found I'm not the only one and I'm not imagining all these things! I gained 30 lbs in the first 3 months - I blamed it on stress because we had just put our house on the market, however I had never in my life gained THAT much weight in such a short period of time. I am now over 200 lbs and I'm only 5'3". I have been desperately trying to take the weight off, but it won't budge and I'm only continuing to gain more. It is getting to the point where my weight is starting to cause other health concerns. Also, I have not had a single good night of sleep since I've had Mirena. I again blamed it on stress (but to be honest, I've lived through much more stressful times in my life without the tremendous weight gain and insomnia). After several weeks of trying OTC sleep aids, I went to my doctor and she gave me a 10 day supply of Ambien. The first 2-3 nights it helped, but then that also stopped working and I was back to sleepless nights. I found there is an herbal supplement that helps me sleep, but it only works for a few hours at a time, which obviously is better than nothing. I have also had cramps on and off throughout the last 6 months, sometimes they are very sharp stabbing pains that make me buckle over in two. I have also realized that I may be having depression - I don't feel suicidal, but I get very down very easily and stay that way for much longer than I ever have. I have actually had such horrible down days that I've called my husband at work crying and begged him to come home. I have never in my life done that until Mirena. I'm sure that I have more symptoms, but I have been able to persuade myself that they are "normal" or explained them away otherwise. I think that Mirena and the OBGYNs must be in cahoots. I was not warned about any of these problems - I was only given the small pamphlet and told it was so wonderful. I think there are a lot of other women out there experiencing all these side effects but their doctors are telling them it's normal or blaming it on something else. And they aren't realizing it is Mirena that is causing all these problems! I have an appointment for next Tuesday to get mine taken out and I cannot wait! I am finally going to be able to sleep again!

-- By sadie47 | Reply | (2) replies | Send Private Mail

November 29th
2007
11:14 AM

I had Mirena inserted 4 weeks ago and have had slight spotting but nothing more than needing to wear a panty liner daily which I did before anyway. I had pretty bad cramping for a few hours after insertion and since then nothing more than a little bit here and there (not more than a minute or so each time). I've been reading all these terrible side effects and am in disbelief that neither my Doctor nor the Mirena website mentioned HALF of these. Of course this only happens with some women but I believe everything should be laid out on the table as possible side effects. I do not feel that Mirena has effected me in the least compared to most of these women who have posted experiences but I still feel it is unfair that they list about 7 side effects on their website and say they have about a 10% chance of happening. Good luck to everyone who is using Mirena or who ever has!

-- By hottness07 | Reply | Send Private Mail

October 31th
2007
4:28 PM

Oh my goodness!!! I am SO glad I found this site. I got my Mirena April 2007. I had been on Depo for far too long and as my husband and I still don't want children for now, Mirena seemed the next best bet. I HAD done research and at the time didn't find anything that scared me off. I wish I had dug around more! I have been having various side effects, one of which is the HORRIBLE itchy and sore breasts I get every couple of weeks or so! I have had to hide just so I can rub the dang things to get some momentary relief! I also get the worst dang migraines once a month...about 2 weeks before I spot. The lightbulb recently went off that the weird acne I've been getting is likely related to this dang thing inside me too. I have NEVER had acne and am used to getting compliments on my "good skin". I am 29, have a good skin care regime and have the worst skin of my life! Add that to bloating and sore, itchy boobs, and oh boy, do I feel just great about myself! I didn't even mention the arthiritic-like pain I've been having in my hands and my carpal tunnel symptoms that started about July...I am going to make an appt with my doctor asap. Even if there are many possible explanations for everything, this is too weird. Getting this thing out of me would be a good place to start!

-- By missmaine | Reply | (3) replies | Send Private Mail

September 19th
2007
6:24 PM

I am so glad I found this site. I chose Mirena because the copper IUD was giving me heavy bleeding , so this appeared to be the great solution.
The bleeding decreased but at the same time other symptoms appeared.
After eight months of visiting doctors of all kinds, taking pills for deppression, and going on never-ending diets, I found a doctor whom I have never seen before, and he looked at the facts from a distance.
It was him who suggested that Mirena could possibly have something to do with my gain loss (22 pounds) , mood changes, hair loss, incredible bloating of my stomach after eating and tiredness.
Reading this experiences only made me more certain to have it removed as soon as possible , hoping to get back to my old self soon.

-- By chris05 | Reply | (2) replies | Send Private Mail

September 16th
2007
8:06 PM

I can not thank-you all enough for sharing your experiences with the mirena IUD! I know some have had a positive experience and that is wonderful, I am not one of them. Although it has not been horrible, I will not use this form of birth control again!

It started with insertion, which was uncomfortable followed cramping and weeks of bleeding. However, this did decrease and I would spot occasionally. I haven't had the weight gain or really the acne problems some of you have had but I have definitely experienced mood swings, hair loss and decreased libido!! When I asked physician about this, she said that I should go on dates with my husband and maybe I wasn't sleeping through the night. When I explained to her that I do in fact have time alone with my husband, that we go out on "dates" and my children have been sleeping through the night for close to 2 years, she said nothing!

Long story short, I am having it removed tomorrow.! Althoguh I am looking forward to, I know there will be more weeks of having a heavy period. Right now we are thinking of trying for our third but my alternatives for birth control are slim to none...

-- By chase1 | Reply | Send Private Mail

August 22th
2007
3:10 PM

You guys are such complainers. You waited 9.5 months to have it removed, that's on you.

-- By nicolecmt | Reply | (2) replies | Send Private Mail

August 19th
2007
1:18 PM

I have 2 children and my doctor just prescribed Mirena.....I didn't want to go back on the pill. But after reading the messages on this site, I am reconsidering having it inserted. Do any of you know if you can get an iud without horemones anymore? I know they used to make copper ones but there may be side effects to that too?? any info would be great.

-- By west1 | Reply | (1) replies | Send Private Mail

July 31th
2007
1:15 PM

I've had Mirena for 4 1/2 years. A doctor in Australia recommended it to me since I was very sensitive to birth control pills and could not use them. Yes, it hurt the first 3 months, but no more than the years of painful cramps I got every month with my periods. Now I have no cramps, no periods, and none of the craziness that accompanies it. My doctor used a local anesthetic when she put it in, which sounds like it is the best way. I would recommend that to anyone considering having one put it. I just wanted to let people know that there are some people who have positive experiences with it. I have not experienced weight gain, acne, moodiness or loss of sex drive. But as we all know every womans body handles things a little differently!
I'm very lucky to have had it inserted in Australia because many American doctors will not give it to women who have not had children.

-- By lhairs1 | Reply | (1) replies | Send Private Mail

June 14th
2007
12:28 AM

Had mirena inserted 24/5/07 whilst having a hysteroscopy, all was ok for 2 days then suffered severe bleeding with pain. passed a massive clot now awaiting scan as doctor & nurse cannot find coil.I think it is around somewhere because I feel so terrible. No energy so tired despite sleeping like a baby. If I sit down I fall asleep. I feel like a zombie. I am not able to work because I feel Unwell. Has anyone else had these experiences?

-- By jennyf | Reply | (1) replies | Send Private Mail

March 21th
2006
10:56 AM

Never have had children so the insertion of the IUD was the worst pain I have ever felt, even if it only took a minute. I recommend something stronger than motrin, because it hurts really bad. I had a constant but light bleeding for about 4 months after the insertion. I know have had it in for 3 1/2 years. No weight gain, occasional spotting, no periods. Severe PMS, breast tender 3 weeks out of every month. Acne, chronic fatigue, stomach aches, headaches, and occasional dizziness. Overall I am very happy with it, the only thing I really hate is the acne on my face and sometimes chest and back, which I never had before, and the chronic fatigue.

-- By chandra_321 | Reply | (1) replies | Send Private Mail


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List any side effects using commas to separate each one: (optional)
eg: headache, nausea, stomach pains, depression





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This registry is a place to share positive or negative side effects of using Mirena. If you directly experienced a side effect while using Mirena, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
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