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Mirena and hives

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50 Side Effects posted for Mirena

November 17th
2009
5:47 PM

I got my Mirena o June 18th, 2009. It is now November 17th and I have an appointment to have it removed this Friday. It started with unexplained hives and rashes constantly. The bottom of my feet, my palms, my knees, upper arms, throat and stomach. I was on constant high doses of Prednisone and anytime I started lowering my doses, the hives returned. I went to the ER three times for swelling and hives so bad I could barely see and could barely breathe. seemingly caused by NSAIDS, which I had never had a problem with before.Next was severe lower abdominal pain accompanied by groin pain so bad I could barely walk. Friends said it sounded like cysts, but, when I had an internal ultrasound done, nothing was found. After that I had severe breast pain and swelling. The final straw was the constant all over muscle aches and joint pain in my knees. I feel like I am 100 years old! I am tired all the time no matter how much sleep I get. I went to a dermatologist and I mentioned the Mirena, as I had to my OB, his response was "middle age". I thought I at first has Lupus, but, the rash did not fit that description. I changed detergents, blamed it on a foster dog, anything I could think of. Finally after reading so many posts and finally finding a connection with the rashes and hives, it can be nothing other than the Mirena. I even noticed that this device had the second most posts on this site. I can not wait to have the Mirena removed.

-- By jbugler | Reply | (3) replies | Private Message me

September 9th
2009
5:40 PM

I've had the mirena out now for close to 3 months. At first I was losing a lot of water weight - I had gained well over 20 pounds in 6 weeks after having it inserted. Unfortunately, I have plateaued in my weight loss, it's always easier to gain weight than to lose it, right? I still have numbness in my hands, to the point where I am quite clumsy, and I have spells of fatigue and dry-mouth. Before removal I had suffered from the anger and depression towards myself and others, and though it has improved significantly, I still have days where I feel like I could snap just because the 2 year is talking too much. I have found that a multivitamin in the morning gives me a little more boost through the day, and Motrin helps with some of the aches and pains. I'm not quite back to 100%, but I'm getting there. The hardest part for me to come to terms with is how poorly I've treated my boyfriend and our children because of the side effects. Even after 2 or 3 months without it I do suffer some of the side effects, but each day I can feel it starting to get better. I've even woken up a few mornings with feeling in my hands, instead of the tingling "sleep" sensation. All of this from 6 weeks of an IUD... Ugh.

All of the symptoms I suffered were made in previous posts including:
Nausea, severe cramping, severe mood swings, minor hair-loss, increased back pain - especially in lower and middle back, souring/reduction in breast milk, severe weight gain, fatigue, mental fog, vision changes, dry mouth, loss of libido, aggression towards others and myself, severe depression (thoughts of hurting myself), shortness of breath, hives and many more I'm probably not even aware of hahaha. Good luck ladies, this one is a doozy - and remember to report ALL symptoms related to Mirena to the FDA.

-- By becs84 | Reply | Private Message me

July 2th
2009
8:53 PM

I feel so relieved to have found this website. I am going to call the doctor and have my Mirena removed ASAP! I have been experiencing many different random health problems lately. Which is strange because I am an extremely healthy person. My husband was laid off from his job and we lost his health insurance, so through all my symptoms I have just been suffering through it because I couldn't afford to go to a million doctors and have a million different tests run to find out the source of my symptoms. It started with itchy hives on all of my joints, elbows, knees, knuckles, toes and fingers. Then a symptom I had gotten during my pregnancies called PUPPP which is basically ugly, little, red bumps that ooze a clear liquid and itch like the dickens on my hands, fingers and legs. Then a big knot developed under the skin on my right wrist. The pain started on top and started radiating all the way around my wrist. Then the numbness, tightness and pin-prick pain occurred in my fingertips, then my hand, then my entire arm went numb from the elbow down. I also had horrible pain in my reproductive area on two different occasions that had me doubled over in pain. It felt exactly like contractions. I also have been bleeding every day for several months. Not enough to call it a full blown period, but bleeding every day. Some days, blood streaked mucus, other days full on blood clots would drain out of me. I've has horrible back pain and have been very fatigued even when I am careful to take care of myself. I also am naturally a very optimistic person who can handle bumps in the road of life, but lately, even though I hate to admit it, I have been down-right depressed. I have lost interest in all my interests, have a hard time shaking off life's set-backs, find myself on the verge of tears a lot, and basically have just wanted to pull the covers over my head and not wake up until I can just feel like myself again. Then last night my lips started to tingle, numb and swell. Then the same thing happened again tonight. I told my husband I am just falling apart and don't know what's wrong with me! I have never had any health problems before and now it's a new symptom practically daily. He said he had been doing some research and that he thought I was allergic to my IUD. I immediately Googled "Allergic reactions + Mirena" and found this website. It is such a relief to know that I might actually have an answer to all my problems. I can hardly wait for the doctor's office to open in the morning, I want this thing out right now and I want my life and ME back!

-- By seyngstr | Reply | Private Message me

June 18th
2009
6:34 PM

i posted some "side effects" a few days ago that i feel are related to the mirena. in the past few days since, i've found that the use of my arms and hands has severely diminished, being achey and unable to grip for too long - the aches in my back have increased, even trying the heating/cooling routine before bed. I thought back to what made me stop breast feeding (baby was only 3 months at the time) - and it was after a night that i'd pumped out some milk for the next day, in case we went to my mother-in-law's for the day, and it was almost like a dirty/milky/watery color, something I'd never seen in feeding my 1st child, whom i had to pump milk w/ b/c she'd been unable to latch.

I've been "itchy" all over - and noticed just today (june 18th, 2009) blotches that look like hives on my chest and neck area - the only thing that I know for a fact that i'm allergic to, to give me hives is medication containing sulfa.. i've always verified that anything i'm treated w/ has NO sulfa in it at all, including this implant. - i've not been around any kind of poison ivy/sumac/oak at all.

i'm desperate to have it gone now.

-- By becs84 | Reply | Private Message me

June 5th
2009
7:44 AM

I got Mirena in April 2009. After 2 weeks I started noticing I was getting hives. At first it was not that bad but the hives got worse and worse. I reacted allergic to my supplements and started to react to food. Even though I was on a strict diet to avoid anything that could possibly cause any reaction the hives were getting worse. I had Mirena taken out yesterday. My doctor thinks I had an allergic reaction to Mirena. I still have the hives. I have lost lost of weight and life is pretty hard when you have hives non stop! I hope it get better.......

-- By soprano | Reply | Private Message me

May 11th
2009
9:49 PM

Has anyone had a rash or really bad itchy skin? Around mid body?

-- By beccastar | Reply | (3) replies | Private Message me

January 9th
2009
2:54 AM

I HAD NO PROBLEMS WITH MIRENA. I got it in November of 2007 so a little over a year now. I was 19 when I got it ( and I've never had children). The doctor put numbing spray on me, then gave me a small shot to numb the area before he put it in. It was 10 seconds of REALLLY uncomfortable pain but nothing too unbearable. However, my sister just got it about 2 weeks ago and was put on Vicadin because the pain was so bad.. I bled for about the first 2 months straight.. and after that, nothing. I hardly have any cramps, headaches, mood swings,etc. The day after I got my IUD put it, I went on a similar web site to find these same complaints. I told my boyfriend if he noticed any mood swings, depression, etc. then to let me know and I would have it taken out. Over a year later, it is still in. I am definitely one of the lucky ones that seemed to have no bad experiences. I break out a few times a month but I'm a 20 year old girl and acne runs in my family.. but nothing out of the ordinary. I don't know if maybe the symptoms will come later.. or If i just got really lucky. Everyone is different I guess. My heart goes out to those who weren't as lucky as I was with this.
(If it makes you feel any better, the birth control patch made me break out in hives and puke for 6 hours, the pill made me bleed almost every day, and the shot gave me a bad reaction and I spent the night in the hospital.. so I've had my fair share of bad birth control experiences).

-- By mirenaprob | Reply | Private Message me

November 24th
2008
6:50 PM

I've been on Mirena for about 14 months now. For the past 3 months I've experienced this awful allergic reaction on my face. I'm not completely sure it's being caused by the Mirena but it's weird to me that every time I've gotten this rash it's been between the fist and last day of my period. the rash starts with hives on my nose, chin, under my lower lip, and cheeks, and by the next day is blisters that crust over. By the 4th-5th day or so it's just very dry looking skin. It itches and burns so badly though and I don't know if I go through this again. If anyone has any insight PLEASE email me at ******!!!!

-- By casey22482 | Reply | Private Message me

November 10th
2008
11:12 PM

I just recently had the mirena iud inserted. Oct 30 2008. 3 months after having my first child under a normal vaginal delivery. When I have asked my doctor regarding any side affects he stated that women may have heavy bleeding the first 6 months/ and that after those 6 months that your periods will actually disappear.

The first week that I had the mirena in, I began bleeding almost instantly. Blood clots the size of my closed fist came out of my body from the uterine wall I suppose. I went through a super tampon/ and a pad in an hour and a half. ( I am one of those women who normally use a super tampon maybe once in a while/ normally a reg. size does the job) This bleeding has not stopped since the mirena was inserted.

Looking at a computer screen is part of my daily routine at work. It seems as though my eyes feel blurry through out the day as I am working. Towards the end of the day I can barely stand to look at it. This has never happened to me before. It is almost like I want to turn all lights off and sit in the dark, with no noise(headaches).

Of course sex drive is at the all time low. Who is in the mood to go for it when you are bleeding with a terrible headache?

The first few nights I had a horrible time falling asleep and staying asleep.

Well... at this point I have had headaches... all day for a week now. My head hurts like someone is pounding it against a wall. I have not had a headache in years. My stomach has been upset/ feeling as though I may have to throw up.

I am afraid that I may start seeing the other symptoms that ladies have talked about.
When you had the symptoms did they all happen at once or one at a time over different time periods?

-- By melis657 | Reply | (9) replies | Private Message me

October 7th
2008
8:22 AM

Has anyone experienced hives with Mirena? I had it put in about 7 weeks ago and now I seem to have broken out in hives on my arm. I have not experienced any other significant side effects so far.

-- By sueh24 | Reply | (3) replies | Private Message me

July 8th
2008
3:39 AM

Here is my Mirena Story.

I was 6 weeks post partum....I had mirena inserted...it was very painful and I was not warned about that.
About a week later I noticed yellowing in the whites of my eyes which I thought could be coming from a iron def. since I just gave birth. So I made sure I was eating well and taking vitamins. I also had severe itching at night especially on my ankles and legs. Oh and sex drive was gone. It was fine the 6 weeks after birth but as soon as mirena was in it was gone!!! I went to the doctor about a month after insertion and asked to have it removed, of course my doc said it couldn't be iud causing my problems...come back in a month...So I did....within this month I started having severe anxiety, insomnia and panic attacks, to the point were I actually thought I was loosing my mind. Of course again the doc told me that it wasn't iud and prescribed me an antidepressant which I reluctantly excepted. I'm not depressed...my life was perfect before mirena!!! I finally went back for the third time and decided I wasn't leaving until somebody took this thing out of me!

Here is a list of other side effects that I had/still have!!

acne
migraines
extreme lower back pain
numbness and tingling in hands and feet
vision problems
fogginess
An ADHD type feeling
inability to focus or concentrate
extreme fatigue
feeling of throat closing up
heart racing and palpitations
night sweats
sinusitus
dizziness and light headiness
headache

The problem here is that the doctors don't even know how extreme these side effects can be and they keep telling us that it's not the mirena. PLEASE trust your instinct.....I wanted to trust my doctor but I knew in my heart what was causing my problems...I am only 1 week post mirena and I am still having a lot of my problems but I can tell a difference. DON'T LET IT GET OUT OF HAND....TAKE IT OUT!!!!

DON'T GET MIRENA...IT MAY WORK WELL FOR SOME...BUT IN MY OPINION IT IS NOT WORTH THE CHANCE THAT THESE HORRIBLE SIDE EFFECTS COULD HAPPEN.....HAD I BEEN INFORMED PROPERLY I WOULD HAVE NEVER HAD MIRENA INSERTED!!

Good Luck Ladies!!

-- By insomnia | Reply | (4) replies | Private Message me

June 2th
2008
1:01 PM

This website has been a blessing for me - a person who seemed to feel crazy for all the symptoms I was having. I had mirena put in place in March 2008 after the birth of my second child in December. I was so excited that I didn't have to worry about birth control - I could focus on taking care of my family and work, etc. I couldn't have been more wrong about it. All was fine at first until April of 08 (two months later). I started to notice a red, bumpy rash on the trunk of my body. It progressively got worse with each passing day. It began to look like hives on my legs (behind my knees) and then on the inside of my arms. It has gone all over my back and finally to my face last night. I looked at the mirena website and it said to call your doctor if you had a rash with hives. So I did and they assured me that mirena WAS NOT systemic and couldn't be the problem. They maintained that it was probably an outside source. Instead they offered an anti-depressant. I needed something to help with what I was going through, so I started on Lexapro. That has been the only positive thing that has kept me from falling apart. What's the use in calling them if they don't listen to you? I have finally decided to have the mirena taken out in two days. I am so ready to get back to feeling normal. I was wondering if there was anyone else out there with similar side effects with the rash. If someone would have told me that this was a possibility, I would never have signed up for this!!!!!!
I will post again once I have it out and give an update!!

-- By valbs101 | Reply | (7) replies | Private Message me

May 11th
2008
11:26 AM

I am soooooooo glad to have found this site. I, like many, many of you, also thought there was no way in the world all my symptoms were being caused by the Mirena IUD, because all of my doctors have told me time and time again that the level of hormones being released by this thing is SOOOOOOOO tiny that it couldn't possibly be causing all that's happening. I had the Mirena inserted in February 2007... by August of 2007 I started experiencing hives all over my body that began as a burning/tingling in my hands and feet, and within a matter of a few weeks had spread to my entire body. I now have had this on-going rash (hives) that never has fully gone away for the past 9 months. My doctors all could not tell me at all what was causing it. I have been taking antihistamines like crazy to keep it "in check" but some days even those do no good. My grandma and mother kept telling me to get this IUD out, but I told them it couldn't possibly be from it due to what the doctors had told me and because I'd had it in since February and didn't get hives until August. However, I truly believe this MUST be the cause, as it's the only new thing in my life during that time period... I've always used the same soaps, ate the same foods, and NEVER have I had any outdoor allergies. It MUST be the Mirena. In addition to the hives, I CANNOT LOSE WEIGHT, have stayed at 174 pounds since having this inserted. I have tried exercise, dieting, etc. and notice NO changes. Due to the ongoing hives my body is going through a constant fight against this allergy, and as a result, my neck has a giant cluster of enlarged lymph nodes that will NOT go down in size. Probably because my body never gets rid of this foreign body so it's continually tried fighting it and just can't so they stay swollen. I had my lymph nodes biopsied and I do NOT have cancer... I am going tomorrow morning to have it removed immediately and I will be absolutely STUNNED if it turns out to not be the cause. I am THAT certain the Mirena has caused all of this. I would NOT recommend this IUD to ANYONE. It is absolutely the worst thing I've EVER experienced in my life. I plan to get in contact with the attorney mentioned in an older post below about the class-action lawsuit. I have spent 9 months of living in pure misery with burning, itching, red and swollen hives all over my body, living in total anxiety not wanting to leave my house and have others see me and think I have a disease. Not to mention all the time and medical costs that I have incurred from seeing doctor after doctor that can't diagnose me.

-- By carlyandlee | Reply | (5) replies | Private Message me

May 6th
2008
9:04 AM

basically, this was my experience with the paragard:
1. Dec 2004 - Paragard iud was placed post-partum after my 2nd daughter was born. i was breast-feeding, and had no noticeable symptoms until Nov 2005.
2. Nov 2005 - had my first period since my daughter was born. it was heavy and crampy, but i thought "i haven't had a period in 2 years, so this is the price i pay..."
3. Each period hence was heavy, long at 6-7 days, and cramps were intense. again, i just decided that i could manage.
By the end of 2006, my periods were so bad that my husband and i decided i had to see the doctor.
4. Jan 2007 - saw the doctor about removing the copper IUD. she said that the paragard should not be causing such bad symptoms, and since i was did not want to get pregnant, she decided we should try to control the symptoms with birth control pills and Prometrium. I did not want to try Prometrium since I was unsure of how I would react to the hormone. she believed that i might be suffering from severe pms, called PMDD. note that i loved and trusted this doctor - i had some complications during my 2 pregnancy, and some problems post-delivery, and she was attentive, personable, and caring. i was very comfortable and trusting, so i listened to her recommendations. i tried yaz, yasmin, and 2 other pills over the next 3-5 months, but was extremely nauseous and sick with all of them (plus break-thru bleeding).
5. Feb - September 2007: i started having pre-period symptoms of nausea, vomiting and/or diarrhea, abdominal cramps, severe fatigue. the first 2 months that i had these symptoms, they were so bad that i believed that i had an intestinal virus - same cramping, throwing up, and bad diarrhea, plus this was BEFORE my period. I then made the association between my symptoms, and the fact that they occurred 3-5 days before my period, and then they would subside about 3 days after my period started. my periods were still long with heavy bleeding.
6. September 2007 - was having same symptoms, but started 7-10 days before my period, and they were so bad that my husband had to take off from work to take care of our 2 girls each month (i stay home with them). i went back to the doctor during September, and was told to modify my diet (no white flour, sugar, low fat, high protein, lots of water) and to try some vitamin supplements since i didn't want more medications. she again recommended taking 100 mg Prometrium to help ease the symptoms. I asked to remove the IUD, again, and she said that "before she took out something that expensive, she wanted to make sure that something else was not wrong" - I was shocked at her statement, but agian I liked her and trusted her, so i went along for the sonogram.
7. October 2007 - In the meantime, I was desperate, so i took the vitamins and Prometrium, which sent me into what i can describe only as a psychotic episode. i had severe emotional outbursts, i was irrationally angry and irritable, and had absolutely zero patience. i am usually a smart girl, and in my normal "mental state" would have associated that the Prometrium had caused this severe reaction, but I was no where close to my normal state of mind, and i just thought that my physical symptoms were now affecting me mentally.
8. LAte Oct 2007 - BY this time I am so down and really ready to get my life back. I am still sick with nausea, diarrhea, vomiting, severe abdominal cramps, severe fatigue, and now my abdomen stays sore and tender through the whole month. FINALLY the doctor calls with the ultrasound results. she said that there were 2 small ovarian cysts - and i was relieved - i thought that FINALLY, we were getting somewhere - but in the next sentence she said that she didn;t think that they were responsible for my symptoms. i was deflated - and at such a loss of words. i listened to her tell me how she thought that i had IBS, and that she was going to refer me to a GI doctor. i know that IBS is a catch-all category of symptoms that some doctors throw on people they can;t diagnose. and remember, i was just a few days out from recovering from 1) having a severe personality reaction to a drug, and didn't know it was because of the Prometrium - i thought i was going mad, and 2) i was just getting over being sick before my period - AGAIN.
I finally called her back a few hours later and left a message with the nurse "since she doesn;t think that the cysts are causing the symptoms, could we please remove the copper IUD?" i never got a reply.
I called my niece who is an RN at a respected women's health center in NC and cried a lot and told her what was going on. she got me an appointment with a doctor there for mid nov 2007.
10. Mid Nov 2007 - tell the NC doctor my medical history, and she says "we need to get that IUD out". in less than 30seconds it is gone with minimal discomfort, 25% of the abdominal soreness and tenderness is gone within 24 hours of removal, and completely gone within a week. THIS WAS THE FIRST TIME IN MONTHS THAT MY TUMMY WAS NOT TENDER OR SORE!!!
i have a follow-up appointment for mid Jan 2008 with the NC doctor and possible placement of the Mirena
11. Nov 29, 2007 - have my first period in over a year where i am not sick etc - it is heavy and a bit crampy, but is shorter in duration.
12. mid dec 2007 - i start to suspect i may be pregnant, but think that we have been cautious, and my period is probably going to be irregular with all of the crap that has gone on
13. jan 5 2008 - yep - i'm pregnant!! but that was ok - we wanted another anyway.
14. jan 7, 2008 - catch the respiratory flu that has been going around and stay VERY sick for 4 weeks, and i just know that something is unusual - i can't eat i am so sick and am so weak that i shake whe i stand up - call a new local OB doctor and see them.
15. jan 30, 2008 - have miscarried the pregnancy
16. April 2008 - the new ob doctor places a mirena
17. first of may 2008 - my husband is asking if i feel ok, that he has seen similar but much less severe symptoms in my mood as when i was on the Prometrium. i have never had acne this severe on my face, neck and back - it actually hurts and i have some scarring even though i have not picked at it.
By the way, my new local OB told me that HE WILL NOT PLACE PARAGARD COPPER IUDS FOR HIS PATIENTS BECAUSE THEY WORK BY CAUSING INFLAMMATION IN THE UTERUS.
however, he also said that i shouldn't have any issues with the mirena, and now i am starting to wonder if i am going slightly mad...
i want my life back...
i now realize that there is a side effect to EVERYTHING that you put in your body...
i am terrified of getting pregnant right now even though a few months ago i was excited about this wonderful possibility...
i am now talking to a counselor to try to work out the events of this past year+ so i can move on...
i feel like my voice was NOT heard or even acknowledged...
the reality is that WE are ultimately responsible for our own well-being, both physical and mental, and that doctors do treat with preconceived notions about the way health should be and how medications and devices should work...they listen to pharmaceutical reps and not their patients...
i don;t know what to do about birth control now...i suspect the mirena is making me feel this way, but i am terrified of getting pregnant, i can't take birth control pills, and am hesitant to put any thing else in my body that is a chemical...however, i have no libido anymore (my poor wonderful husband) and i use to enjoy the closeness and intimacy of being with my husband...
i don't know how this affects your decision about the copper iud, but i just caution about 1) be careful with sex after the mirena is removed and 2) be mindful of anything that we eat or place in our body.
i do know that i could not find any other information from women who experienced my symptoms, but i find it very difficult to believe that i am the only one who experienced this.
lots of luck, and thank you for sharing your experience with the posting site! it has helped me make an informed decision about removing the mirena, and i hope that the information here will help you make an informed decision about the copper iud.

-- By jennap | Reply | (6) replies | Private Message me

March 1th
2008
9:23 PM

Does any one start bleeding when you lift or do workouts.I have had my iud since July 2006.Is this normal?I also have weight gain ,breakouts on my face,body always aches and is sore.I have had to go to a chiro to help with the pain in my body also!Help is this the iud?I am almost 49 years old do i need this at all now???

-- By donnamoma | Reply | (3) replies | Private Message me

February 27th
2008
8:40 PM

Hi everyone, I just have to tell you all what a comfort this site has been for me. I really feel like a crazy bitch frankly with all of my mood swings, ill patience and irritability....among so many other side affects. It upsets me to think how much this is affected my family. I just had Mirena removed last night and I've been on the verge of tears all day. Has this happened to anyone else? How have you all felt after you had it removed?? How long did it take before you started feeling normal again? I'd had had it in for a little over 2 years and I almost feel like I don't even know what normal is for me anyone. I take an anti-depressant and hate the idea of needing to be on medication. I've been trying to wean myself off and every time I have tried in the past I crash really bad. I'm sure that has something to do with me feeling so crappy but I'm hoping that things will even out soon. Thanks for listening.

-- By bodensmom | Reply | (5) replies | Private Message me

February 27th
2008
9:54 AM

Anyone have extreme skin sensitivity? The right side of my face and scalp have a minor burn/itch feeling. I also seem to have some small goose eggs on my head. I'm seeing the OB today. Should be interesting.

-- By ldunk99 | Reply | (4) replies | Private Message me

February 12th
2008
1:56 PM

Hi I have had a Mirena coil for the past 2 and half years. For the last 18 onths I have been suffering with Chologenic Urticaria. I react to change in temperature (cold to hot) devole hives and itch. Each attack will last for 20-30 minutes. Also have pain in my knees and legs and have trouble walking up the stirs some days. Has anyone had these type of systems?

-- By isabelnorwich | Reply | (7) replies | Private Message me

October 29th
2007
12:51 AM

On the evening after my insertion, 10/11/07, which was rather bloody and took two OBGYN"S to put in place, I began feeling very ill! Shivers, cold, sweats and a very high fever set in! I was sick and in pain! It was a horrible night!!! The next a.m. I phoned my M.D. and told him what happened. It was hard to tell for him if it was caused by the Mirena insertion or something else. However, he ordered me on antibiotics for 10 days. Three days after the antibiotics finished, I began itching severely, ALL OVER MY BODY and it has not stopped!!! I am scratching my skin off!!! The itch comes the inside and my skin welts up and hives show up. The intensity comes & goes. The areas of the body vary. However, I am continuously itching; at times in desperation!!! I have held back from the E.R. this weekend, awaiting for Monday to go to the Dr.s office. I heard from a Berlex Rep (my Brother), that in 5% of women, skin disorders have been reported!!! HOW NORMAL IS THIS??? I do not wish this side effect to anyone!!! It's horribly distressing & nerve wrecking!!! Not to mention, skin destroyer!!! I have sores from scratching throughout my body... I s till don't know if Mirena is the cause, but I have not been able to determine anything else responsible... I will let you know what happens...
Sylvia in Miami Beach

-- By sylvialatimer | Reply | Private Message me

September 26th
2007
8:02 PM

I have been on mirena now for 10 months. I was on the depo for 10 years prior. I loved my depo adn only went off of it after Kaiser said I could not do it any longer. I was told that mirena was a god send and a lot like my depo. I can say that the combination of depo and mirena I have not had any period at all. but that is where the happiness ends. I have experienced moths of breast pain. it hurt to touch them let alone put anything on them. after about 6 months and numerous trips to the vet it disappeared. then I got a small rash on my neck and by my arms. went to dermatology and since then I have been there, or to my primary or an allergist every week since then. the rough severley itchy skin is constant. remarkably every 29 - 32 days it fades for 2 days or so and just when I am sure it is going away wham back it comes and each time it is getting worse and worse. having never had any skin problems before I believed the doctors tha tit was folliculitus, then they said dermatitus, then they said uticaria and then hives or the last straw i was causing it that it was in my head. i just got a new allergist and while she doesn't knwo if it is my mirena she can tell me I have histamine levels that are off the chart. my husband is allergic to a lot so we already use free & clear everything and my housse is spotless but I am still being told it is soemthing I am doing to myself. I have also been reevaluating my things and I relaize I have been experiencing a lot of numbness and joint pain. so much so that my primary sent me to a rhuematlogist and he ran every test for lupus, and many other diseaeses adn even cancer. I was going crazy. Iwas beginning to think maybe I was mental. I have since been researching mirena and I am finding it so much more than what the pamphlet says. I finally got the nerve to call my ob, adn she ahs since been researching things with me and we know for sure that no matter what next week I get my mirena removed. I am just feeling so alone and depressed. I am 33 years old and instead of enjoying my new marriage I am contemplating a divorce becasue I do not want him to be stuck with soemone who might be crazy. seeking support and anyone else who feels this way.

-- By smoore74 | Reply | (21) replies | Private Message me


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List any side effects using commas to separate each one: (optional)
eg: headache, nausea, stomach pains, depression





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