September 14th
2008
11:04 PM
Hello Fellow Women Against Mirena (WAM! O.K. I'm going to copywrite it) I am so, so, so relieved that I'm not alone. Don't get me wrong, I wouldn't wish this ....on anyone, but just like the support groups for any cancer (which I have to take a blood test for), or disease, it helps to know your not alone. I know that sounds corny, but I have always been a person who's feet hit the floor at 5:30a.m. and don't stop until 11:30p.m. and was able to lift 75lbs over my head, handle a charging stallion (not the hubby as noted by you all...not happening), now I am 50lbs overweight, don't eat at all, I used to be a grazer, ate little bits all day long just like my horses. Now if it wasn't for them waiting for"Mom" with their big brown unjudging eyes,cuz animals don't care about you being fat etc, but they do want their Mommie time back. I think that we should keep our removed Mirenas in little viles or zippys and chuck them on the desks of the CEOS who manufactured this demon ...then ask them to try their product out on their wives, girlfriends, daughters. mothers...I bet they wouldn't...I think after surgery to get it removed, I'll be mailing a package to Bayer and the company who makes it in Finland.....Look out Bayer in Wayne, NJ...your going to get your product back and I want a refund!...Thanks WAM, you have lifited my spirits..and if I happen to flat line in surgery, guess who I am going to haunt!!!
-- By minihorse3 | Reply | Send Private Mail
August 20th
2008
2:44 PM
I am so glad I found this website. I had the Mirena inserted on April 14, 2008. Since then I've been having anxiety attacks and I'm always tired no matter how much sleep I get. My mom had an accident 2 days after Mother's Day (May 13th) and passed away on July 17, 2008 so I thought my issues were related to everything going on with her. On July 24th (the day after her funeral) I was transported from my doctor's office to the emergency room via an ambulance because I was having chest pains for about 7 hours. After 2 EKGs, and blood work, they could not find anything wrong (thank goodness) and I made the doctors aware that I had the Mirena. I haven't had chest pains since then but I googled Mirena side effects because I still have bouts of anxiety and I am extremely tired. After reading the posts I think my symptoms may be related to the Mirena. I will have a talk with my OB/GYN and see what she thinks.
-- By njaka | Reply | (2) replies | Send Private Mail
August 14th
2008
7:44 PM
I put my mirena last June. For a few weeks I was fine with it, but as soon as the first period came all my problems started!! I've been having bad headaches, irregular bleeding, very long periods ( 10-12 days). Those headaches seem to be an every day thing for me now, to the point I thought that I might have something really serious!!! I want to go back and take it out. I wish I had seen that forum before!!
-- By myr2712 | Reply | (2) replies | Send Private Mail
August 12th
2008
12:42 PM
I am 21 years old, and i had mirena put in about a year ago. the first three months were really awful for me, i had bleeding and cramping and i called my gyno and i told her about it, and she said its normal, it will go away just wait it out. she claimed she has one too. so i waited and she was right, it did go away. For about four months now i have had cramps that are getting worse. They have recently been so bad i was nearly throwing up, i can't sleep at night...ive had what feels like hot flashes. sex is incredibly painful too. I've felt bloated more and more each week, and ive felt more depressed than i have ever been in my life. (i've never suffered from depression at all) Ive started to have awful thoughts which have not been suicidal but thoughts like my child would be happier without me, i'm not a good mom... i'd catch myself thinking this stuff and just know this is NOT ME!!! i have never felt like this before!!! I've been so tired, absolutely burnt out. I can't find the energy to do anything. Just folding laundry has been hard for me... this isn't normal. this isn't who I am. My patience has worn thin, im constantly pissed off and yelling, aggravated. I'm not happy at all.
i just went to the doctor yesterday and she said i have a bladder infection so just wait it out again. I haven't told her about these side effects because i wasn't sure if it had anything to do with the mirena... but After reading these stories I KNOW IM NOT CRAZY, it IS this stupid IUD!!! I have constantly told myself this is so unnatural it doesn't belong in me, my body hates it. But... I have a two year old, i do NOT want another one anytime soon and i felt like this was the perfect option!! its not worth it, its not perfect and i'd rather use the pill and condoms than deal with this. I;d actually give up sex til i were ready to risk another one than deal with this. I'm calling TODAY to have this removed ASAP. I'm so glad i came online and looked for Mirena horror stories... because this thing has made my past few months a horror story.
August 11th
2008
5:00 AM
I've had mirena inserted about a month after my son was born he's now 15 months. I haven't had any side affects until now. Today is Monday Aug 10, 2008. On Saturday I was completely out of it. I was experiencing cramping, nausea, spotting, and the worst vomitting. What was wrong with me. Everyone suspects that I am pregnant. Not to mention that I slept for almost 7 hours on Friday. I have been searching every website to see if anyone experienced a pregnancy on mirena. I have found helpful advices. My husband says he's sueing if I'm pregnant, but I will be more concerned about having a healthy baby. At 22 this would be my third baby, it was unplanned nevertheless I will be happy. I pray that the baby is healthy and beautiful. I will see a nurse today to confirm if indeed I am pregnant. No birth control is 100 %. I don't know who to prevent pregnancy. I think it is Gods matter and man can not take it into their own hands. He said to be fruitful and multiply. Keep me in your prayers as I would for you.
-- By taylormakes3 | Reply | (5) replies | Send Private Mail
August 7th
2008
5:18 PM
Hi all! I am not sure this is a new side effect, but it certainly hasn't been the most pleasant one. I have had ZERO sex drive.
I had a baby in early Feb 08, had the Mirena inserted Apr 08. I thought my lack of interest was just being tired from dealing with the baby or frustration with learning how to be a mom and wife. Hubby and I had a little tiff over me not wanting to, again the other night, when it hit me. While plenty of the times I was tired or frustrated, more often than not, I truly just had NO interest. I would think, yeah, I could but I don't want to. This did not happen until after the mirena.
I was very active prior to pregnancy, during pregnancy and even after pregnancy (pre-Mirena). Heck, the baby wasn't even sleeping through the night then! He has for months and I still wanted nothing. I don't think I realized it was a possible side-effect. The pamphlets say - "this is not a complete list, please see your health professional"
As soon as I realized it, I called my OB to have it removed. They had a cancellation and I was able to get right in. After reading some of your posts, I am beginning to wonder if the fog I have been in can be attributed more to that as well. Time will tell.
-- By sszabo2 | Reply | (1) replies | Send Private Mail
July 18th
2008
2:11 PM
Gosh so happy I found you ladies. I got my in mine in this May, after delivering my 2nd son in March. I can't stop eating, always hungry, haven't stopped bleeding, dry skin, constipation, major major back pains, no energy and weirdest is pregnancy nausea in the evenings. I'm on the phone right now to either take it out or talk to my doc more about it. Thanx ladies for all your stories.
-- By angelgee | Reply | (2) replies | Send Private Mail
July 10th
2008
2:25 PM
didn't have Mirena, but another kind of IUC or IUD whatever you want to call it. I sure hope young women know they could die. Sorry to see these things back on the market. At age 21 I had complications, the device embedded in my uterus and became infected. No one wanted to admit it was the iud. The infection turned into acute peritonitis which is usually fatal. I did live, but had to have a complete hysterectomy. A bit extreme for a 21 year old. Spent 3 months in agony in the hospital. Took 2 years to recover. I had all the side effects associated with premature menopause - premature wrinkling, loss of interest in sex, not to mention no more kids for me.
I later did some research to find out that stones were inserted into camels to prevent pregnancy during long trips. The camels died screaming in agony in the desert from the stones. It works about the same on women.
May 20th
2008
6:31 PM
Hello, I'm 30 yrs old and I had the mirena for about 5 yrs. The reason I had it for so long is that I have a auto immune disorder and I thought it was coming from that. But now that i'm listening to everyone else, It's starting to make even more sense. I remember before I got it put in; I didn't experience any problems and I had the immune disorder than but it didn't bother me physically. When my 5 yrs. was up I had it removed and I started to feel much better. What was really dumb is that I had it replaced not knowing that it may be the mirena. Now, I have it in for 3 months now and I feel worser than the first insert. I have high blood pressure now and I never had a problem with that before. My hot flashes has begun after the second insert and I'm having more and more panic attacks now and the only thing that I can do is cry feeling alone and that my family did not understand what i am feeling. I cried to my mom and told her what's wrong with me and I told her it's not the auto-immune disorder because those symptoms only give me dry eyes and nose and other salivary gland problems. I'm having hot flashes and not able to sweat and also feeling bloated even more in my waist line and what tops the cake is that I'm getting pre-cancerous cyst on my cervix now, It's has to be check every month. I told my doctor that maybe it is the mirena and he said no because the hormone only stays below my waist and I said well my cervix is below my waist. My mom said it's the mirena. I'm glad I found this website.
-- By misty30 | Reply | Send Private Mail
May 11th
2008
10:33 AM
Thanks everyone for posting on this site. I am a 22 year old mother of two. I had the mirena put in a couple months after my son was born in august of '07. My mother has been telling me she felt like the mirena was the cause of all my "issues" for the past few months. I thought the mirena would be perfect for me seeing as how I didn't remember to take the pill like I was suppose to. The only con I had heard from other women was that it hurt when the mirena was inserted. I felt no pain when the doc inserted it; cramping was minimal the following weeks so I thought I had it made. However.....
Slowly but surely most of the side effects you ladies have complained of began. I've had arthritis and back problems for years but NEVER the kind of scrutinizing pain I have felt since I got the mirena. My hands hurt me so badly I have a hard time feeding my son his baby food and fixing my little girls hair. My back gives out often, especially when I'm picking up or holding one of my children. I lost weight really well after my son was born but since the mirena I have gained 30lbs and am still gaining. I, like so many others, exercise and am a very active mom as well. I don't eat a whole lot but thought my eating must have been the problem so I tried dieting (a low fat diet, the same one I always used to get down to whatever weight I wanted to reach). Unfortunately nothing I do seems to work. The weight won't come off. Talk about repulsion. I don't even want to think about sex; and I have always been one who wanted my husband both emotionally and physically, but not lately. I have a lot of fluid which adds to the number I see on the scale. I stay bloated. My hair is falling out so bad the drains in our showers stay clogged. I have had more migraines the last few months than I have had in my life. My mind is so fuzzy, I can't seem to think a lot of the time. I stay sooooo tired. My moods are all over the place. The nausea I have had the last couple of months makes me feel pregnant again. All of our side effects are listed in the mirena info pamphlet we get from the doc when it's inserted. It's ludicrous that any doc would say that the mirena ISN'T the cause of these symptoms. The next time a doc tells you mirena can't cause these side effects PUT THAT PAMPHLET IN HIS FACE AND ASK HIM IF HE CAN READ!!!! The pamphlet does say that only 5% of women have these side effects, but, HELLO, someones in that 5%. I told my mother for the longest time the mirena was doing me no harm and that her concerns were nothing. Then I found this site and now owe my mother an apology. Mirena is a good choice for some women but not for others. Thank you ladies for all of your input. God Bless you all. I'll be praying God's hand is upon you all.
April 10th
2008
11:33 PM
Update: Exactly one week post removal and I'm feeling like a new woman, mom, wife, teacher, and friend. I have more energy than I ever expected. The detox/cleanse is working wonders for my appetite and weight and the weight seems to be coming off w/out a lot of extra work. I have enough energy now to get through a whole workout whereas before I struggled. Moods are not so dominant now and the headaches are gone. Besides the small amount of spotting the first few days - nothing. Will continue to update as the weeks go by.......
-- By davenport4 | Reply | (4) replies | Send Private Mail
March 25th
2008
8:47 PM
Hello ladies. I'm a 19 year old college student and I was having problems with fainting and it was suggested that I get the IUD put in because some women start to faint while taking the pill.
I've had it since December 2007, and I absolutely hate it. I have extreme mood swings, one minute I'm happy and the next I'm not. I feel like Ive come into a deep depression that I cant get rid of. I have extreme pain in my right ovary area, my back is constantly hurting, I probably have a headache more than not, I cant sleep at night, and I have a horrible odor that can be smelled through my clothing.
I'm so angry at the doctor who put it in. He told me nothing of these symptoms and even told me that women loved the mirena. I went online and it seems that on every forum women are hating it. I almost feel like marching in and giving him a dosage of the pain I've been going through these past few months.
I would NOT recommend the Mirena to anyone. It just simply is NOT worth it. But, does anyone know of what we can do for the symptoms? I want the IUD out, but my mother paid for it out of her own salary, so I feel obligated. Thanks for all the help ladies!
-- By arickamarie | Reply | (3) replies | Send Private Mail
March 22th
2008
9:53 PM
I am a 24 year old mother of two, a Four year old, and an 8 month old. I got Mirena inserted 10 weeks after the birth of my daughter. It sounded so appealing, just get it inserted and forget about it. Well it's been almost 6 months and I certainly haven't forgotten about it. I had constant bleeding when I first got it, I bled for two straight months. And more often then not since then. It is always unpredictable, so I usually either wear a tampon, or pantyliner, which is horrible. I have no idea when my menstrual cycle is anymore, and I always used to be like clockwork. Even when I'm not bleeding, I am having more discharge. I am always tender in my uterus, and quite often, I actually have contractions. It even hurts if my kids set on my lap too hard. I also have extreme moodiness, with feelings of guilt after outbursts. I haven't really gained weight, but I feel very bloated in my stomach. I have no energy, which I need with two kids. And about four months ago I broke out with eczema like rashes on my face. I never struggled with acne, and it never occurred to me until my mom suggested that it may be from the mirena. We don't think we want anymore children, but I feel like we are too young and it is too soon to do anything permanent. But I'm not sure if this is worth it. I have an appointment on April 2nd with my OB to discuss this, and I just might have it removed.
-- By mammajenni | Reply | Send Private Mail
March 21th
2008
12:36 AM
Hello I had mine inserted yesterday...28 mom of two boys 7 and 4. I lost my pamplet and decided to do an internet search to keep an eye on the symptoms they say to watch out for. I have to say that this information is a little scary. Now my dr. didn't push this on me... I asked for it cause Im just not good at taking the pill and the patch and ring aren't covered by my insurance. I will now keep close watch on my weight (trying to lose weight already so that wont be hard) my periods have never been regular, so that wouldn't be anything new. I have some PMS issues already so I'll make sure to watch for the mood swings, I have some semi-world meltdowns every month without using birth control. I thought that hormones would help with that. As far as my sex drive, well lordy pray I don't have that problem cause I'm almost always the aggressor...daily. ;) So the insertion was not really bad a bit longer than a pap smear but the dr. and nurses and I were joking the whole time. I appreciate all the women who have posted here, I hope that you get healthy and happy. You have opened my eyes and I will watch for these things and have it removed right away if I experience them.
-- By melissaissim | Reply | Send Private Mail
March 16th
2008
12:37 AM
I am very thankful that I followed my instincts to go to this website. I have had so many different side effects from the Mirena but, I did not put them all together until today. I am a mother of four children and was at a birthday party when another mother asked me what was I using for birth control. I responded to her and told her that I was using the "Mirena". She went on to tell me that she herself was once using "Mirena" but after losing almost all her hair she got off of it.
So tonight I can relate to many of you with the symptoms of Mood Changes, Tiredness, ******Hair Loss*****, Stomach Bloating, Heart Palpatations, Weight Loss, Headaches, depression, acne, *****Memory Loss*****. And, of course these symptoms are not symptoms that you will see if you do research on the Mireana as I myself have done. This week I am calling my Doctor to have this removed. One positive did come from this (I HAVE NOT GOTTEN PREGNANT) but I am ready to be back to normal with my body again. As another mom stated my husband needs his wife back and my children need their mommy back.
Thank You
-- By smileydas | Reply | Send Private Mail
March 12th
2008
11:35 PM
I love it. I've had it for a week now. Very little spotting, minimal cramps, and no discharge. I was told of the side effects, and knew all of this before I got it. Hormones act differently to some people. I did not react well with the patch or pill. So far, so good with Mirena. I don't think a lawsuit or complaint is exactly the way to go. You should start with talking to your doctor more and seeing if they give out pamphlets or just did not tell you everything you were supposed to know. I also believe not everyone's symptoms should be blamed on Mirean. People usually "feel" things they don't really have, esp. after coming on here and reading things. You can make your body feel that stuff. The insertion was not comfortable by any means, but it also wasn't a pain that I would ever cry or scream over. I'm 21, relatively healthy, and never had children. I work in healthcare and see people react like this all the time-no tolerance to pain, and just wanting an excuse as to where some of their "pains" come from.
-- By brandnewb4u | Reply | (9) replies | Send Private Mail
February 7th
2008
12:12 AM
I've had Mirena in for about a year and a half now. I've never had anxiety and depression so bad in my life! It was to the point where I had to get on ant-depressant meds. and I was going to get anxiety meds. tomorrow! My hubby and my mom urged me to come online and check out the side effects first and I stumbled across this site. I'm so glad that there's nothing wrong with me! This just isn't worth it! I'm going to warn everyone that I know!
-- By justlookinout | Reply | (2) replies | Send Private Mail
December 18th
2007
12:52 PM
Am Kelsey, 30 years old mom of two first shot pregnancy kids - 31/2years old and a 20 months old. i had Mirena IUD inserted after my second baby and had it for 13 months. All was well save I was in very bad moods all the time.
After removal is now the nightmare. I used to get pregnant ONE SHOT - but first cycle was 40 days anovulatory, second cycle was 37 days anovulatory, third cycle I ovulated and had low progesterone and miscarried (Yet Mirena releases small doses of progesterones - it messed up my natural progesterone release hence the anovulatory cycles because Luteinizing hormone does not trigger my ovaries to release progesterone on their own) at 61/2 weeks.
Before the pregnancy - I was diagnosed with a left ovarian cyst 5.2 cm in size. This happened when my body geared to ovulate and did not release enough Luteinizing hormones and formed a cyst...another side effect of Mirena.
Got my fertility painfully back and conceived again first cycle after miscarriage BUT my progesterone levels started going down and I am now on progesterone supplements to help maintain the pregnancy.
Mirena IUD must have contributed in killing my baby at 61/2 weeks due to my body being unable to produce progesterones on it's own.
Now pregnant and at 5w4d no fetal pole detected and my levels of progesterone are rising just because of the progesterone levels. Might be having a blighted ovum - all this pain because I made a choice to ruin my life with Mirena IUD
If you are considering Mirena IUD and wish to have children in the future - THINK AGAIN, that might be hard to achieve, if at all!!
-- By kel1977 | Reply | (1) replies | Send Private Mail
December 17th
2007
1:40 PM
I had the Mirena inserted over a year ago.And up to this point had no problems. For the past month, family, friends, and co-workers have mentioned (very nicely) that my hair seems to be thining. I had noticed some hair loss, which seemed to be more than normal, and just shrugged it off. But then my kids were complaining and pulling off strands of long blond hair from their clother, and the furniture, and saying; Mom what's going on, your hair is everywhere?. Then I really knew I had a problem, and have noticed considerable amounts of hair all over my clothes, and I do seem to have less hair. I made an appt. to meet with my obgyn.
-- By annemaurice | Reply | Send Private Mail
December 4th
2007
8:41 AM
I am getting mine removed FRIDAY!! And Friday can't come soon enough. I am kinda bummed tho for having to go back on the pill but I can't hack this ANY LONGER!!! One of my friends works for a GP and I went to him because of some of my side effects. The flu like symptoms minus having the flu (had it for at least 2 to 3 mos now) NO sex drive (causing trouble with my marriage. Hubby is taking it WAY to personal), swelling in my hands, feet, legs, and face. (my face will feel flush and BAM I'm swollen!!) VERY BAD MOOD SWINGS!!! Very Bad isn't the word for it!! There are no words to explain my moods!! ANYHOW..... I sent this to my friend to read and she pulled it up at work. Well the GP said that this isn't a reliable place to go for information on the side effects. "There are NO positive side effects to anything." Which is true BUT he seems to think going to Web MD or some sight like that is more reliable than here. And that this sight shouldn't scare me and he wouldn't urge me to have it removed after reading this. (OH YEAH I forgot to mention joint pain, I have HORRIBLE joint pain in my hands, wrists, elbows, knees, ankles, and feet. The worst of it is in my wrists and elbows) Back to what I was saying. To that (this sight not being reliable) I say go to Web MD and post there too! I pray that I can get back to me after this comes out!! I hope it don't take too long either! I MISS the old me and HATE the new me!! But FRIDAY HURRY UP AND GET HERE. And for anyone who has had it removed........ anything I should be repaired for??? Thanks for your time!
-- By angi13425 | Reply | (7) replies | Send Private Mail
August 24th
2007
3:57 PM
I am so glad that I found this site! I feel like I could have written most of these posts. I had the Mirena inserted a year ago this month (when my daughter was 2 1/2 months old), and all was great the first six months (after the initial bleeding had stopped, anyway). These last six months have been SO hard. My mood swings have been HORRIBLE. I am constantly yelling at my 3 older kids and husband, over nothing. Things that would never have bothered me before, drive me crazy now. I hate the way this has affected me. I feel like I am such a mean person sometimes, not the good mom I want to be. It has caused me terrible anxiety problems, I have panic attacks, skin breakouts, loss of sex drive, I am constantly tired, the list goes on and on...Reading through all of these posts today has convinced me to call my midwive's office to make an appointment to have this thing removed. I can't wait.
-- By kasiem | Reply | (2) replies | Send Private Mail
This registry is a place to share positive or negative side effects of using Mirena. If you directly experienced a side effect while using Mirena, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
-- Please see our disclaimer
September 18th
2008
1:02 AM
Hi - I posted a couple of days ago (around the 15th). I had the Mirena taken out yesterday. Yes, still bleeding. Yes, with medium to large-sized clots. Oh, I forgot this side affect also - for some time when I had it in, I had a tinging or numb-like feeling passing through my top lip - I thought I was going crazy at first but I realized it had been happening more and more and it wasn't my imagination. I've had this also since it was removed; not as often though.
Could it be that we are the "3%" that has a problem with this IUD??!! I am following up with a second opinion with another OBGYN because I was concerned that the radiological tech said my uterine lining was "very thick" and my friend's mom (who is a nurse) asked right away if the doctor was doing a D & C...(!) Any suggestions or ideas or comments???
-- By jnoto | Reply | Send Private Mail