Mirena and prednisone

Hi, I'm a 35 year old, who is now on day 4 without the Mirena. I woke up on Monday morning with what I believe to be the dreaded "Mirena rash". I called my OB immediately and requested it be removed, much to my dismay, he was very rude about my suggesting that I was having these problems because of a silly little IUD. I told him that a friend of mine had led me to this website and he basically told me not to believe everything I read, even after I explained to him that thousands of women, experiencing the same side effects, with only one common denominator could not be wrong. He sarcastically said that he hoped removing my "little" Mirena would solve all of the worlds problems.

So, in response to my complaint about this rash, he prescribed me Hydroxyzine which is an antihistamine. I take it religiously 4x a day. Mind you this was Monday, yesterday I ended up in the ER because I just couldn't stand the itch, and it was spreading. They put me on Prednisone, and still no relief.

Does anyone have any ideas for me? This thing is like the plague. I work in a hospital and cannot go in looking the way I do with this rash all over my face and neck... If anyone has successfully treated this, please email me...******

Thank you ! F.

My symptoms started with aches in my ankles and I thought I should stop wearing heals for a while. But then the tingling pain moved up into my lower legs and then my arms/wrists over a period of a few days. I felt like I was having constant shin-splints. I was heavy joint/muscle pains. Then the back of my head hurt really bad on the left side, just at the top of my neck/bottom of my head, and was also really sore to the touch. Then massive headaches. Probably migraines, although I have never had them before. My MD immediately put me on celebrex, which did nothing. I was eating Advil and Tylenol like candy and couldn’t sleep. So the doc put me on steroids (prednisone). That took the pain away. After a few days, while at work, the vision in my left eye went in and out (perfect vision to completely gone). I have never had any issue with my eyesight before - perfect vision. Then at one point (actually while I was in for my first MRI) my vision never came back. No one thought it was serious enough until I demanded to go to the hospital. I spent three days in the hospital, where they ran tests after tests (including MRI, Lumbar Puncture, blood work, neurological tests, echogardiogram, dobblers, etc). Upon leaving the hospital actually diagnosed me with Optic Neurosis, and gave me a 15% chance of getting MS later in life. We were all relieved it was not MS, like they originally suspected. After going to the Eye Dr, they told me that was not the case. This kind of eye stuff only happens to people in their 80’s! I will never regain my vision. If my diagnosis had been optic neurosis, it would not explain the joint pain. I have seen specialist after specialist over the last two months, and they still have no idea. Every test I have undergone has come back clear and I am perfectly healthy. My doc said we might have to go with the retinal specialists theory - which was a piece of cholesterol that clogged the artery in my eye. I just don’t get why a piece of cholesterol would have caused me so much pain over the rest of my body. After viewing this site and the Mirena pamphlet that I found online they give to the doctors, I really think it was the cause. The packet even notes, if you have symptoms like visual loss and headaches/migraines for the first time, to remove it immediately! I did not get mine removed until a month after my vision loss. Every doc I have seen I have asked if it was Mirena and not one of them thinks that could be the cause. But it is ironic, that when you see someone for the first time, the first question they ask is if you are on birth control or any other medications! I think I need to show them this site, so they can read other women’s symptoms. I did also have all the other symptoms as well - weight gain, irritable, oily skin, cramps, moodiness, vaginal odor, gross discharge, headaches, nausea, low sex drive, hot flashes, anxiety, restlessness at times, fatigue, and the list could really go on and on.

My mother actually stumbled across this site and encouraged me to look into a possible connection between my severe joint pain and the Mirena IUD. I had the IUD inserted in July of 2007. For a few months following I experienced breakthrough bleeding but that did eventually end. I suffered from some mild bouts of depression and would completely fly off the handle at my two children. Always linked it to stress. My sex drive became nil. But no other real problems to complain of. But this past Nov (2008), I started having pain in my wrists and hands. I type all day so I assumed carpel tunnel. Then we began a kitchen remodel. After one particularly tough day of demolition, moving and climbing up and down stairs, I became really stiff and sore. Of course I didn't think much of it until a week later when the pain was getting worse, not better. After a few more weeks, the joint pain became so severe that I could not get up and down off the couch, off the toilet, out of the car, without wincing in pain. I felt 90 years old! My doctor had prescribed Naproxen (which wasn't helping at all) and gave me a course of Prednisone. The Prednisone made me feel like a million dollars. Problem is, you can't stay on it. That's when we found this site. I immediately called my OB/GYN and had the IUD removed 2 days later. Of course, doc didn't believe this could be the issue (Surprise, Surprise!). Once the course of Prednisone was over, the joint pain gradually came back, albeit not as bad as the first time. RA and Lupus panels were negative, no thyroid disorder, no diabetes. Going to see a Rheumatologist next month so we'll see. I can mention that I already see a difference in my moods. I feel more patient with my children lately and that alone was worth having the stupid IUD out.

I had my 2nd child in June '08 and had Mirena placed on 8-8-08 with no discomfort or problems of any kind. I had already heard great things about it from two co-workers who LOVE theirs. This past weekend I finally started poking around on the computer because of my husband's constant complaints of the "whiskers" poking the head of his penis when we have sex. Lo and behold, I find this page and am BLOWN AWAY. I felt so relieved. I have never been one to have headaches, nausea, back pain or low sex drive. I had been attributing those things to a combination of being significantly overweight, having two babies under the age of 19 months and being on Prednisone (for rheumatoid arthritis). I also have been experiencing a lot of fatigue, night sweats/hot flashes, weight gain, swollen breasts, dizziness, swollen hands/feet, and crazy mood swings. I know that all of these symptoms can probably be explained away as being due to the prednisone, my weight, my life right now (two babies and working full-time) and any number of other things, but there are so many women who have Mirena who are reporting the EXACT SAME SYMPTOMS. I can't just be a coincidence. So anyway, I went to my doc today to have it removed and he, of course, told me that he doesn't believe that any of my symptoms are due to Mirena. I had it removed anyway, but he did tell me something I didn't know: the tiny amount of hormone is delivered locally, as opposed to oral contraceptives' systemic delivery in a larger amount. Go figure. In any case, I am disappointed and have mixed feelings, but I cannot wait to see if my sex drive returns and my lower back pain subsides. I also want control of my moods, weight and breasts again! We discussed the Essure, but I'm just not sure I'm ready to put something foreign in my body again right now. I don't want anymore kids (I'm 40 and have two already), but the options for 98%+ are limited. Everything seems to have a drawback. Oh well. I'll just be glad to see if the symptoms were related to Mirena. If not, I'll get it put back in.

Has anyone experienced hives with Mirena? I had it put in about 7 weeks ago and now I seem to have broken out in hives on my arm. I have not experienced any other significant side effects so far.

I have been on mirena now for 10 months. I was on the depo for 10 years prior. I loved my depo adn only went off of it after Kaiser said I could not do it any longer. I was told that mirena was a god send and a lot like my depo. I can say that the combination of depo and mirena I have not had any period at all. but that is where the happiness ends. I have experienced moths of breast pain. it hurt to touch them let alone put anything on them. after about 6 months and numerous trips to the vet it disappeared. then I got a small rash on my neck and by my arms. went to dermatology and since then I have been there, or to my primary or an allergist every week since then. the rough severley itchy skin is constant. remarkably every 29 - 32 days it fades for 2 days or so and just when I am sure it is going away wham back it comes and each time it is getting worse and worse. having never had any skin problems before I believed the doctors tha tit was folliculitus, then they said dermatitus, then they said uticaria and then hives or the last straw i was causing it that it was in my head. i just got a new allergist and while she doesn't knwo if it is my mirena she can tell me I have histamine levels that are off the chart. my husband is allergic to a lot so we already use free & clear everything and my housse is spotless but I am still being told it is soemthing I am doing to myself. I have also been reevaluating my things and I relaize I have been experiencing a lot of numbness and joint pain. so much so that my primary sent me to a rhuematlogist and he ran every test for lupus, and many other diseaeses adn even cancer. I was going crazy. Iwas beginning to think maybe I was mental. I have since been researching mirena and I am finding it so much more than what the pamphlet says. I finally got the nerve to call my ob, adn she ahs since been researching things with me and we know for sure that no matter what next week I get my mirena removed. I am just feeling so alone and depressed. I am 33 years old and instead of enjoying my new marriage I am contemplating a divorce becasue I do not want him to be stuck with soemone who might be crazy. seeking support and anyone else who feels this way.