November 6th
2009
5:37 PM
SIX HOURS POST REMOVAL- I had my mirena removed today after 3 years and nearly 3 months. My side effects included headaches, sore breasts, weight gain, nausea, severe hair loss, depression, severe pitting edema of my right foot, cramping, hip pain, exhaustion, severe mood swings, and acne. During the first six months I had constant bleeding, which I had been told to expect. I took regular pills everyday and the bleeding stopped. Then the hair loss started. My hair came out in clumps and was EVERYWHERE. I lost about 15 inches of my hair in spots. I went to the salon and got a fantastic hair cut, I attributed my hair loss to stress. Now I'm not too sure. I also didn't feel like I was myself with the odor that I developed. No matter how many times I showered I felt not regular. Slowly but surely over the past three years I have gained 30 lbs. I worked out to try to get the weight off, I lost nothing and in fact gained weight! The pitting edema of my left foot started in July of 08. I have been tested for everything including diabetes, heart problems, clotting disorders, pregnancy, high blood pressure, kidney problems, and the list goes on to the tune of $6,000. I went to my OB back in the spring and was told if they could find nothing else then they would remove the IUD. In the interim I lost my job and subsequently my insurance. I luckily was able to get coverage again and immediately set an appointment for the removal. Insertion hurt like nothing I have ever experience, removal was quick and almost painless. I also ended up with BV (bacterial vaginosis). I feel and look as though I am about 6 or 7 months pregnant. My belly is actually the same size as it was when my son was born. I weight about 15 lbs more. My breasts were extremely swollen and sore.
I instantly felt better after removal. My hip immediately stopped tingling. I have no back pain. It felt almost like a lifting if that makes sense. I am curious to see what the next few weeks will bring and I will definitely keep you all posted.
-- By crebre80 | Reply | Private Message me
November 5th
2009
12:26 AM
I had the Mirena put in November 2008. And this is the WORST birth control I have EVER had. I have uterin contractions, hot flashes (im 19 yrs old) No sex drive, bitchy, and no period for over 6 months. and nothing is getting better. So I got the depo shot which is 99.7% effective. And no side effects. I wouldn't ever recommend this birth control.
C
-- By chels_e1990 | Reply | (1) replies | Private Message me
November 4th
2009
11:42 PM
I had Mirena placed in August 2009. I was so excited when I first heard about it; shorter, lighter periods, decrease of cramping, no taking a pill daily, birth control for up to 5 years... Well I am so ready to have it taken out! My face broke out worse than a hormonal teenager and I have NO sex drive since it's been inserted, none. Also I have to wear a panty liner every day and night due to spotting. I didn't experience any weight gain but would rather take a few pounds versus all the side effects I do experience. I would not recommend Mirena to anyone and am scheduling an appointment to have it taken out asap.
-- By magdalenavg | Reply | Private Message me
November 4th
2009
10:54 PM
I've had the mirena for only about two months now and about two weeks after it was placed my stomach ballooned to over twice the size it was before and I've gained about seven pounds that are unexplainable. I have not had a regular period which is understandable but I cant deal with the weight gain and bloating. I just had a baby four months and am trying so hard to loose the remainder of the baby weight,and I was doing extremely well until I got the mirena, and nothing drastic has changed about my diet or exercise routine.Does anybody have any idea how long this is suppose to last or what I can do to combat the bloating/weight gain besides getting it removed?
-- By cgillam | Reply | (1) replies | Private Message me
November 4th
2009
2:41 PM
All I can say is OHMYGOD! I had no idea about all these side effects. I had my son April 4th, 09 and had the Mirena placed October 21st. Since then, I have been constantly spotting, I have headaches, and no motivation to exercise. I have been moody and felt overall like blah. I have noticed some joint stiffness and discomfort in my hands as well as muscle tenderness in my legs. I have not experienced any weight gain or loss at this moment, nor have I noticed a change in hair loss...but will definitely be aware of the possibilities. Well I have a appt. for my follow up, I am going to inform my doctor of my side effects as well as yours, and see if this really is the best option for me. The last thing I want is for this to inconvenience my life when I got it just for the opposite...Good luck ladies!
-- By queenbender | Reply | Private Message me
November 4th
2009
10:16 AM
iVE POSTED BEFORE ABOUT THE CHRONIC HEADACHES I GET WITH THE MIRENA, I ALSO GET PRETTY MUCH EVERY OTHER SYMPTOM EVERYONE ELSE SEEMS TO BE COMPLAINING ABOUT BESIDES THE WEIGHT GAIN I ACTUALLY LOST A LOT OF WEIGHT INSTEAD, WHICH I WAS ALREADY A PETITE PERSON WHEN I GOT THIS THING INSERTED I WEIGHED AROUND 118 AND IT DROPPED ME DOWN TO 100. SCARY....IVE HAD TO EAT THE EQUIVALENT OF LIKE TWO GROWN MEN JUST TO GET BACK UP TO 110!! I AM DESPERATE TO GET THIS THING OUT BEFORE IT TEARS MY RELATIONSHIP APART MORE THAN IT ALREADY HAS, CAN ANYONE PLEASE RECOMMEND A GOOD BIRTH CONTROL, THAT COULD POSSIBLY CAUSE ME TO GAIN WEIGHT!!!???
THANK YOU FOR ALL YOUR HELP AND HONESTY LADIES IM SO RELIEVED I AM NOT CRAZY AND JUST THINKING UP ALL THIS IN MY HEAD!!!
November 3th
2009
9:52 AM
I am amazed to see so many woman going through the same things I am. I really do feel like I have been going crazy with my doctors. Since I have been on the Mirena I have experienced, weight gain, depression, nausea, excessive tiredness, cramps in my uterus and breast tenderness. I also have a hard time sexually. I cant seem to get wet either. Although my sex drive is there I still can get wet. I also have lost hair on my head and have started getting hair on my face. YUK!!!!!!Since I have been on thr Mirena for the past 2 years I have maintained my weight but have lost nothing. I am going to get it taken out really soon, since my husband was nice enough to get a vasectomy. Hopefully these mood swings and tiredness will go away.
-- By dazzednconfused | Reply | Private Message me
November 2th
2009
12:56 PM
I'm so glad I'm not alone. I was diagnosed with Crohn's disease in July 2008, so I was placed on really strong medication the cut the effect of my current BC to 50%. So I decided to have the Mirena placed. It was placed Jan. 2009. A few weeks later, I experienced tenderness and swelling in both my breast. I went to see my GYN and she said it was normal and it should subside soon, but she sent me for an UltraSound to make sure. The results showed that my milk ducts were dilated. (And I was not Pregnant) A few months later I was experiencing severe depression, mood swings,bloating, facial acne, cramps, but the worst one of them all was the itching in my breast. Not to mention the 25 lb weight gain and my breast doubled in size. I would eat at any given time and had cravings. I felt like I was pregnant all the time. When I mentioned the itching to my doctor, she said I needed to see a dermatologist. I saw one the same day, and he also said he thinks it's the hormones in the Mirena. So I had it removed today. I hope everything goes back to normal.....
-- By onekisha00 | Reply | (1) replies | Private Message me
November 2th
2009
10:35 AM
I am in the older age bracket of 40 and over and I have had the Mirena for over 3 years and I have had no side effects to speak of. I have had other IUDs in the past and also have had no problems. My bleeding has been minimal to nothing, no weight gain or other side effects that were listed. Each body is different, where some body have higher rejection when have something inserted into it.
-- By kkkennel | Reply | Private Message me
November 1th
2009
11:40 PM
Migraines, weight gain, dizziness, depression, no sex drive, some what of an odor and discharge, spotting, numbness and tingling in my hands and feet, nausea, mood swings, tired a lot.
-- By brittlv89 | Reply | Private Message me
November 1th
2009
10:57 PM
I am happy that I have come across this website. My son was born in July 2nd, 2009 and I had the Mirena IUD inserted on August 24th, 2009. The insertion wasn't all that painful, but the cramps that followed were. It lasted for approximately 2 weeks following and I had some spotting here and there. I have had serious cramping on my right side and after sexual intercourse, I always bleed and cramp on my right side. I have complained about my right wrist hurting bad and my thumb seemingly being dislocated. After reading these post I see that I could possibly have joint pain as a side effect. I can honestly say that the joint pain didn't start until after the Mirena insertion but I never associated it with that.
I thought that I'd love the Mirena because I wouldn't have to worry with pills or having to remember to take birth control, but the side effects are not worth it. I have also had some weight gain. Serious mood swings. Depressed moods and very emotional. Ive been short tempered about just minor things and I haven't been motivated to do much of anything around the house.
I'm debating on whether or not I should have the Mirena removed. I'd hate for any of my symptoms to get worse.
-- By jlynn0702 | Reply | Private Message me
October 31th
2009
4:49 PM
Hi, I am on the mirena and I have been on ther for almost 2years. At first everything was fine. I don't have a cycle but that didn't bother me cause all the BC I've been on is like that. But know no sleep it's like I sleep but I am not sleep. I have to take Tylenol PM. My sex drive is horrible I can't even get into it or can't get wet either. And especially the weight gain that I experience I'm a person that hardly ever gain weight. I talk with my physician and said that it could be my thyroids I went through all the test everything seems to be fine. I was also thinking about going to a urology doctor.I scared to get the mirena out I have 2 kids and been with my significant other for 9 years. I want to get off but I don't know what else to get on. I have been on everything you can think of and I am not trying to have anymore kids. THIS IS HORRIBLE I MA TO YOUNG FOR THIS
-- By dseed | Reply | Private Message me
October 30th
2009
1:19 PM
I just want to say how happy I found this site. I'm not alone! I thought I was going crazy or that my body was shutting down completely. I had my mirena put in Sept. 2006 and my body has become something I don't even recognize. I am extremely bloated all the time and it hurts every time I eat and use the bathroom. I keep on thinking maybe I have Irritable Bowel Syndrome, but it doesn't make any sense because the symptoms showed up after I had the Mirena put in. I thought it might be food sensitivities so I got tested and have been trying to cut those foods out but it doesn't seem to be helping. I have tried all sorts of natural remedies but it never seems to go away.
I have gained 40 pounds since I the Mirena put in even though I have never have had weight gain problems before, I eat healthy and I am active. I also have a difficult time concentrating and focusing on anything. I also get dizziness, depression, irritability and mood swings. I also have been experiencing a sharp pulling or stinging in my uterus at times as well as joint pain (especially in my hips, knees) and painful intercourse with bleeding afterwards. My hair is also falling out and I have lost my desire for sex.
I've also noticed a drastic decline in my immune system. I have never been as sick as I have been in the last three years of my life. I seem to always be getting sick. For the first three months after the Mirena was inserted I had frequent bouts of yeast infections, bladder infections and still three years later I have these types of infections frequently. Not only this but I seem to catch everything that is going around when before the Mirena I hardly ever got sick.
Finally after reading the posts on this site I can trace all the changes in my body to when I had my Mirena put in. I am so upset that I have been suffering for 3 yrs with these side effects and it has taken until now for me to figure out that the Mirena doesn't just effect your uterus it effects your WHOLE body. I cant believe I trusted the doctor I went to when I had it put in that said that the hormones would only affect my uterus. NEVER, NEVER USE THIS PRODUCT!! It is coming out as soon as I can have it done! Please ladies if you know what it is like to have it removed let me know.
-- By danealfrancisco | Reply | (1) replies | Private Message me
October 29th
2009
9:11 PM
I'm partial to Mirena. I had it for all 5 years, but still debate as to whether my weight gain, hair loss and joint pain were related. I got it shortly before my boyfriend of 2 years broke up with me, starting drinking a bit more and was in general stressed out. So stress & alcohol equals weight gain. Weight gain (30 lbs in a year) equals joint pain. The hair loss is another story. It might be stress, but I went long periods afterward without stress and I could pull out rat size clumps of hair once every few weeks from my shower drain. I had it removed on October 6th 2009. I immediately started NuvaRing. 3 weeks later, I'm DONE with that. That's another story. Overall, though, I don't think the majority of the side effects were caused by Mirena and the 5 years I had it in were good. I won't get another one, just because I'm still skeptical. I think I'm going to take some time off birth control with hormones. We'll see how it goes. I can't say I'd recommend Mirena due to all of the horror stories I've read. Maybe in a year, if all my symptoms go away, I won't be so wishy washy.
-- By eightthirty | Reply | Private Message me
October 29th
2009
8:12 PM
I got my Mirena in about 20 months ago and almost immediately my life started going downhill. I got moody, depressed, started gaining weight, my skin broke out in TERRIBLE cystic acne. Then I started having trouble sleeping at night, and was waking up EXHAUSTED every morning. etc etc. At first I blamed job stress. Then poor eating habits. Then poor skincare products, my new apartment...everything but the IUD.
I have Type 1 Diabetes, so I see an endocrinologist regularly and when I went in yesterday to show him this new BALD SPOT on the top of my head, and talk about my random weight gain, despite joining weight watchers and exercising every single day, he started asking me questions and determined that that IUD needed to come OUT. He said if the hormones were affecting my body enough to cause acne, and increase my insulin dose (I went from 10 units a day to 20...a HUGE increase!) then it was most certainly affecting my hormones enough to cause weight gain, hair loss, etc. It even explained why I suddenly needed to get waxed every three weeks instead of every six.
Unfortunately all the literature indicates that removal comes with terrible bleeding, clots, and cramps. I'm going on vacation in less than one month and I'm super bummed that I have to keep it in until I get back from vacation but I'm not going to the most civilized region so I don't want to risk the kinds of horror stories I've been reading while abroad.
-- By epi | Reply | (1) replies | Private Message me
October 29th
2009
11:47 AM
I have had Mirena for over a year now. I have been battling hair loss thinking it was from stress. My Dr. put me on Prozac and recommended that I even use Rogaine. Never once did they lead me to believe it could be from the Mirena!! I felt like I was losing my mind. Bouts of rage, constant hair loss, acne, weight gain. I am meeting with my OBGYN on the 11th to discuss removal. I am hoping these side effects subside rather quickly. I just don't know if the hair will return
-- By jmkaufman | Reply | Private Message me
October 29th
2009
11:43 AM
I have had Mirena for a little over a year now. I thought the hair loss was just from stress in my life so I have been on Prozac and using Rogaine to help with the hair loss - with no luck. Now after reading all of these posts, it makes sense that it is from the Mirena. I have had to horrific mood swings and bouts of rage, hair loss, weight gain and acne. I am scheduled to see my OBGYN for removal on the 11th. I am hoping that the hair loss will at least stop. My stress is from worrying about my hair loss, so I might even be able to come off the prozac and live a normal life. Please post if you have had your removed and the side effects subsided. Thanks!
-- By jmkaufman | Reply | Private Message me
October 26th
2009
2:06 PM
I'm 48 and got a Mirena put in last January at the suggestion of my doctor. I'd been having menstrual migraines and we thought that a steady dose of hormones might help with the dips and prevent my headaches. Well, it has helped some, as the headaches don't come every month anymore, however, I do still get them, so it hasn't really done what we hoped. Add to that my (growing!) list of symptoms and something has to be done. I am very active. I do Taekwondo 4x a week and was working out 5x a week this summer in preparation for my black belt test. You would think that I'd lose weight with the workouts I've done for the past 10 months, but no, my weight has increased over 10lbs! And it's not muscle, either: My breasts, waist, hips and thighs have all increased. I feel bloated, tired to the point of exhaustion even after 8 hours of sleep, and all of my joints are achy. The brain-fog has gotten so bad that I've had to go back on ADD meds to try to maintain my focus at work. I'd been doing my workouts for 3 years prior to getting the Mirena, and I never felt tired the way I feel it now! I'm seeing my doctor next month and this thing is out of here!
-- By tkdmom | Reply | (2) replies | Private Message me
October 25th
2009
9:05 PM
I just had a mirena put in on Thursday, after the recommendation of the obgyn (she said she had one).
When I was asking my questions I was concerned about the acne, since I never really had it in my life and the possible headaches. BUT reading the above postings is not very encouraging: low libido, weight gain, mood swings. I will surely be back to post the results after a month.
Note: I have not had children, but since I was prone to severe pain/length of periods that is how mirena was suggested.
INSERTION was excruciating! "3 small cramps" was in fact pain that left me quivering and in shock. Doctor's need to be more transparent about the insertion process (especially if you have not had kids).
I will be back after my 4 week check up with the latest report. (and if need be, I will be assertive in the removal demand.)
Thank you so much, ladies.
October 24th
2009
11:38 AM
Thank the Lord that I found this site.
I was up until 2 AM last night searching for answers.
My doctors insist that there is nothing wrong with me. I was starting to think that I was crazy.
I am 33 and had my Mirena put in in May 2008 after having my fourth child. I did a lot of research and talked to a lot of doctors before deciding that this was the right birth control for me. Not once did I run across any of the side effects that I have in all of my previous research.
Since then I have had headaches, nausea, bloating, gas, back pain, fatigue (severe now), moodiness, tingling in my arms, hands, legs and feet, weight gain, and now this strange sensation of fluttering in my belly.
I have taken a dozen pregnancy tests over the last few months. I could swear that I am pregnant. Of course they have all come out negative.
I want to get this out of me NOW. I wish that I could do it myself. The doctor that does the IUD's at my clinic only comes in a few days a month. I wonder how long I am going to have to wait until I can get it removed ? !!!
To be honest I would rather have baby number 5 instead of dealing with all of these side effects any longer. Even my husband agrees.
Thank you all so much for being honest and getting your stories out in the open.
If I hadn't of found this site, I would have kept on trudging along with this dang IUD in and being miserable.
I am all for a lawsuit against Mirena. Women need to be aware of these possible side effects.
I am going to call the clinic first thing Monday morning to setup an appointment for removal. I will try to post as things move forward.
Once again thank you all from the bottom of my heart for being so honest. I wish you all the best of the luck.
October 23th
2009
10:44 PM
23th
2009
10:36 PM
MIRENA is the worst thing EVER!!!!!!
I got Mirena as my husband and I were lacking in the sexual side of our relationship because we both HATE using condoms.I have a 31/2 year old son and we have decided that for now we are happy and would like if we didn't have anymore children right now so I talked to my doctor about Mirena.
Let me start by saying that my labor 6 hours with NO pain meds was nothing compared to the pain I had when they put it in. Then the bleeding started right away I was bleeding for 8 weeks then had 1 week free and now have been bleeding for about 8 weeks. I had 2 ultrasounds to make sure it was in proper and everything was "fine" my doctor says everyone's body reacts different.
The symptoms I have are Occasional Cramping,
Sever bleeding,
headaches,
irritation in my legs (same symptoms as RLS),
Depression,
no sex drive,
back pain
Weight Gain (17lbs in 2 weeks)
and the weirdest symptom is hard to explain but its the same feeling in my body as if you were to touch a 9volt battery to your tongue! Every now and then I have little shocks and its so annoying. I have had mine in for 17 weeks and I have an appointment in 8 days to have it removed...Back to condoms it is
October 23th
2009
8:00 PM
I've had my Mirena out for nearly 2 weeks now, after 15 months of living with the side effects. I've posted before about fatigue, crankiness & irritability, low-grade depression, weight gain, poor sleep, headaches, etc -- same old story as everyone else -- that came on gradually over the months. I'm still SO grateful to this website for making it clear to me that this wasn't just typical exhaustion due to having 2 little kids (now 3yrs & 16mos) or post-natal depression. Anyway, getting the Mirena removed turned out to be an ordeal in itself -- the strings disappeared and the doctor couldn't see anything with a speculum, so I had to wait 3 weeks to get an ultrasound and it turned out to be in the right place (phew!). Then I had to wait nearly 2 months to have a hysteroscopy -- they dilate your cervix and poke a camera up inside your uterus so they can see where the coil is, then they can pull it out. The poking and prodding was a huge drag, uncomfortable but not excruciating. When they actually pulled it out it barely hurt at all. I was a bit sore for a day or two, like mild period pains but nothing serious.
So, here's the update so far: My sex drive came back the very next day after being completely gone for ages! That was such a nice feeling again, to actually want to be with my husband instead of just going along for the sake of the marriage! I haven't felt sick or achey in my joints since it came out either, and the headaches are pretty much gone after being a constant in my life. I'm sleeping easier, and generally feel healthy again -- such a relief! My energy levels are still really really low though; I sure hope they start to come back soon. I think it's going to take awhile since I'd pretty much stopped exercising due to feeling so ill and tired all the time. I'll have to build myself back up through eating better and getting back to the gym, so unfortunately I think the weight-gain and fatigue are going to take longer to 'cure'. But still, I'm so glad to have it out and know that whatever happens to my health now, at least it's not being caused by hormones that just don't belong there.
Hang in there everyone; and don't be afraid of the pain in having it removed.
-- By luluweezie | Reply | Private Message me
October 20th
2009
4:14 PM
Hi I am dumb struck by coming across this site i never dream it could be my mirena causing my unexplained symptoms but the more an more i read it i am fighting with my hospital to get it removed A.S.A.P. i have suffered severe dizzy spells,heavy legs,fatigue,sweats,headaches,loss of concentration,mood swings,bloating,thinning of hair,weight gain, depression,dont want to communicate,just fallen apart in the last 17 months,had number of tests all come back normal,i been back to hospital today to fight this corner an they need to see how many women this really affects as every doctor i have seen says no way can it be the mirena but reading all these this needs looking into.i am worried about the dizzy spells they are my most concern along with panic attacks that come out of the blue..makes me think it may be my mirena after all :( just want to be back to my old self again..i have been to A& E at least 9 times with same symptoms only to be put on diazepam which i don't like to take,i am so upset that i still got to wait 6 weeks+ to have it removed as i got to go under to have it done as they cant reach the threads they are up instead of down...i am hoping after my long wait that i have now found an answer to all my symptoms an the mirena needs to be looked into more.an after it is removed i hope i get better as i have also read it can have after affects.nightmare wish i never had it put in.....
-- By marylou2 | Reply | (1) replies | Private Message me
October 19th
2009
7:13 PM
This is my Mirena story. I got it inserted just over 4 months ago. Other birth controls were not working very well for me, as I had irregular bleeding with them often. So my doctor recommended Mirena. Insertino was awful. It hurt terribly. I almost passed out in the office from the pain (and I am not a wuss when it comes to pain). On the drive home I had to pull over to throw up - I was so nauseous from the pain. The extreme pain (which, to me, was worse than when I was in labor) lasted for a few days then subsided.
I bled for 30 days straight after insertion, which was awful. I also have experienced hair loss, acne, irritability and weight gain (without changing my diet and exercise levels). Over the past four months I have also had awful back pain and extreme cramps that seem to come randomly. My periods come and last 10 days.
Recently, I decided that I'd had it with the Mirena. I went to the doctor today and had it removed. After talking with her about my side effects, she was very supportive in my decision to have it removed. She believes I may be overly sensitive to the progestin in it. Removal was super-quick and easy and virtually painless. I'm looking forward to life without this thing!
-- By jazzgirl3212 | Reply | Private Message me
October 19th
2009
2:19 PM
I had no noticeable side effects when I first got it but now two and half years later, I have all the symptoms cited by other contributors. My breasts ache all the time, I have trouble concentrating, feel exhausted (even when I go to bed at 9:00 pm), feeling worthless, weight gain, bloated, arguing and complain all the time. Oh, and the ovarian cyst that caused soreness in my abdomen. I have so many symptoms and never put it together with the Mirena, probably because they came on slowly over time. The last year has been horrible! I'm finally getting it out tomorrow. Has anyone else experienced a gradual increase in symptoms over time?
-- By sebass222 | Reply | (2) replies | Private Message me
October 18th
2009
10:46 PM
SEVERE ACNE, FACIAL HAIR, WEIGHT GAIN, DECREASED SEX DRIVE
-- By justme123 | Reply | Private Message me
October 16th
2009
5:30 PM
I am 42 years old and have the Mirena IUD for almost 4 years, that is until Tuesday, October 6th....yee haw! I finally had it removed. After 14 lbs of gradual weight gain, despite not changing my diet AND increasing my workouts, heart palpitation (sp) and higher blood pressure than normal and a bout of bleeding that I have never experienced in my life, I went to the gyno. In the changing room the nurse asked me if I had a Mirena IUD, I responded yes, in her broken English, she said, lots of weight gain, huh? Side effects, huh? I was mortified. I began doing research and made the decision to have it removed. Let me say, in a week I have lost 5 lbs, my stomach is not bloated, my breasts do not hurt, I have had my regular period, I am back to myself again. It served its purpose for me, but I wish I would have been told the side effects so that I could have made an educated decision.
-- By mnimouse | Reply | (1) replies | Private Message me
October 16th
2009
2:20 AM
I had my mirena removed about one week ago after a year and a half of having it in. my doctor had told me that I would have no side effects as it only dispersed hormones locally. My experience was very different! The most noticeable were: immediate weight gain (10pounds in 6 weeks from inserting it), inability to lose weight with diet and exercise, terrible mood swings and depression for no reason at all, extreme fatigue and lack of energy (I couldn't stay up past 9pm), bad acne, hair loss on my head and increase of facial hair (go figure!), constant bloating (I looked pregnant all the time), definite decrease of libido, nausea (which led me to see many gastro dr's as I was convinced I had a stomach bug), vertigo, terrible discharge...you name it, I've had it. The thing about Mirena is that the side effects are accumulative and subtle to begin with, so it takes a while before you make the association. Since removing it a week ago, I have noticed a major increase in my energy level (I love it! i feel alive again...), increase in libido, sudden disappearance of depression and mood swings, and bloating is gone. I'm happy to have my body back and feel liberated! I replaced mirena with a regular Copper IUD. In the past I've had increased bleeding during periods with the copper IUD but I'll have that any day compared with my experience with Mirena. The doctor that removed it for me told me that she never advises woman to use mirena unless they have a medical problem such as fybroids, very heavy periods etc...Mirena is used as a cure for these conditions. Her reasoning is that if you are a healthy woman with no hormonal problems, why would you ingest hormones into your body in this manner and mess with your system? The fact that periods stop with mirena means that hormones are all over your system... I advise all women to listen to their bodies...you know better then any doctor if a contraceptive is right for you. There are always other options for you if you are not happy.
-- By tdf | Reply | Private Message me
October 15th
2009
6:07 PM
I got Mirena after my second baby and thought it was FANTASTIC! I never even started my period back and there seemed to be no side effects and no weight gain. I was worried about side effects because my libido plummeted with BC pills but the Dr. told me that it is such a tiny amount of hormones and it is delivered so locally that I shouldn't have any problems.
I've always had about two to three Migraines with aura a year tops. But about three months with Mirena I started having one, two, or three a month with no meds helping. I tried everything and finally I got my Mirena out. The following month I had three migraines and thought I was back to square one. But then they went away. I haven't had one in four months! I think that the hormones took a while to get into my system and then took a while to get out. I'm now using Paraguard and although I have heavy painful periods at least I can take meds for it and there are no hormones!
October 15th
2009
8:20 AM
MIRENA SUCKS!!!! I have experienced each side effect possible! mood swings, discharge, weight gain, bloating, etc.......... Up until this past month I have had no period!!!
-- By gabby21 | Reply | Private Message me
October 15th
2009
1:09 AM
Ok, I have PCOS and had the Mirena put in 3 months after the birth of my last child in 2004 and thought it was great. No more fluctuations never knowing when or if I was getting a period...I just never had one, have not had one in 5 years years. The strings disappeared several years ago, had an U/S and they said it was still in place. I have had zero libido in that time, terrible mood swings, fluctuating weight and depression, thyroid problems, etc etc, all put down to depression. Well 6 months ago the headaches started, the vertigo... the ensuing DR trips have turned up an abnormal brain MRI and not much else no one has thought to think of the IUD. The MRI shows possible demyelination, vasculitis or sequelae to migraines...these are little white spots in my brain. If I find out these things are caused by this IUD there will be hell to pay. I am due to have it removed at the 5 yr mark in November..... I guess dig it out if they can find the strings. Will be interested to hear comments on this.
-- By kiwibaitnz | Reply | (1) replies | Private Message me
October 14th
2009
6:37 PM
My experience with Mirena has been great! I previously had extremely heavy periods (we're talking soaking an overnight pad in an hour) and Mirena solved that problem--I have almost no period at all anymore. My five years just came up, and I had it replaced. Any "side effects" I've experienced I have attributed to perimenopause. I'm 42 years old, and early menopause runs in my family, so any minor weight gain around the middle, low libido, headaches, I attribute to that, since my doctor's office has confirmed low estrogen through blood work. I love Mirena and plan on continuing with it!
-- By chsed | Reply | Private Message me
October 13th
2009
11:03 PM
I have had several things but am not sure if they are due to the mirena but I have always been good tell I got mirena
here are the symptoms I have
severe bleeding 8 months straight
head aches
increased appetite
weight gain
dizziness
faint
depressed
really moody
mean
angry
tired extremely
cant sleep well
memory loss
memory problems
blurred vision
and recently extremely painful sex
it hurt so bad It was all I could do not to cry
it felt as though I was in labor
I did not have the heart to tell my husband i was in pain cause we rarely have sex due to the constant bleeding
it is the best birth control I have ever heard of cause you cant have sex if your bleeding all the time. I want to remove it but getting a hold of my doctor is like a joke and I don't know what to do cause I need my memory I have a family that needs me as i used to be not the mean upset all the time me.
October 13th
2009
5:36 PM
I am so glad that I am not alone in this!! I have had Mirena for 2 1/2 years. The insertion was not that bad and I thought it was going to be wonderful!! Well....I was wrong!! I have always had migraines with aura, but I have had more frequently, terrible weight gain, ZERO sex drive, fatigue and terrible mood swings. I have had ENOUGH!!. I was told, like most of you, that Mirena can't cause side effects like this, but YES it can!! I am having it removed on Thursday, although, I do like the idea of just taking it out myself. (Save me $40) I have friends who have it and love it, but as for me, I would think long and hard before getting one!!
-- By moodymama | Reply | Private Message me
October 11th
2009
6:34 PM
I chose to have the Mirena inserted in August of 2009. I found this site because I have been bleeding for three weeks straight, and the doctors were unavailable to advise me (holiday weekend). I see now that my experience is a side-effect of the IUD. I have also seen a diminished sex drive, fatigue, loss of energy, and constant cramping.
I was very hopeful for the Mirena. Five years without having to worry about birth control, wow! My first complaint is the pain involved with insertion. I was told to eat a big breakfast or early lunch before the procedure, and to take a few advils prior to the appointment. I did - however, I was still not prepared for the process. First, they measure your uterus to make sure that it is the right size, with an instrument similar to the IUD. I was in tears the entire time. I wished someone had told me to bring a friend or my partner with me to hold my hand. It hurt so much! The nurse was as understanding as she could be, but said that once the package has been opened, I would be charged the full amount. I went ahead with the procedure, wondering how I would reschedule during a period and with a busy work week. I was in pain the rest of the day, and felt extremely uncomfortable for a few days after. The pain and bleeding still did not go away, and after a week I made an appointment to check on the IUD's position, if there was any preforation of the uterus; etc. The strings were there, and they just told me that the cramping and spotting is normal. To me, it felt like the doctors tell you the best case scenario, and as you approach more and more of the side-effects, they confirm those as a possibility.
Before the Mirena, I have used DepoProvera, the NuvaRing, and Ortho-Tri Ciclen. I didn't like the weight gain from the Depo, the NuvaRing is somewhat expensive through my insurance, and the traditional birth control bills, like Ortho, are a hassle if you happen to miss a day. I thought that the Mirena was the best solution to my situation.
Be aware. I have been through childbirth, and this was a painful experience for me! I wish I would have read the comments on this site before opting for the Mirena... at least I would have been a more informed & educated consumer.
-- By grovemom2 | Reply | Private Message me
October 11th
2009
1:48 PM
well i had the mirena inserted 8 weeks after i had my 2nd baby,which was was may 14th 2009,i felt fine tell about 6 weeks ago,i started having pain in the center of my chest rite below my breasts,went to the doctor he said it was inflammation,he gave me naproxen,which didn't help at all,went back to the doctor,still couldn't find anything wrong,the pain has spread to the left side rite below my breasts,now im having anxiety attacks every day,tired all the time,headaches,backaches,nausea,weight gain,hair loss,the doctor said i have bacteria vagionous,gave me flagyl ive been taking for 5 days now,i told my doctor at my last doctors visit i thought all this was from mirena and i wanted it removed,he told me to wait a few days to see if the flagyl worked,it hasn't so far,i have a doctors appt. tomorrow and im gona tell him to remove the mirena.i feel the mirena is causing all of this,i guess i will see.i just want to be myself again!
-- By crissy1978 | Reply | Private Message me
October 9th
2009
10:05 PM
My name is Stephanie and I had the Mirena IUD inserted in 12/2004, about a year after I had my daughter. I had some cramping in the first few months following it's insertion. My periods slowly lightened over my first year and now I haven't had a period since. I will spot every once in a long while for about a day. I have lite acne problems but nothing that can't be handled with washing my face before I go to bed at night. I didn't not experience any weight gain while using the IUD. I think women forget to change their eating habits after the baby is born. YOUR NOT PREGNANT ANYMORE! I love this contraceptive and plan on using it again. Mood swings maybe but I'm a woman that comes with the territory. Anyway, if you are thinking about using this IUD don't listen to only the complaints, this is a good contraceptive it's just not for everyone but that's with any contraceptive on the market. Be smart research all contraceptives, find what your body can handle.
-- By stephaniec26 | Reply | (1) replies | Private Message me
October 9th
2009
2:00 AM
i had the Mirena IUD put a few months ago. It was extremely painful to have it put it, especially since i don't have any children. But my experience is a pretty positive one. The main thing i was concerned about before i got Mirena was weight gain, but to my surprise ive actually lost weight. i do have some negative such as, i notice my hair sheds a bit more but my hair is naturally pretty thick, ive notice breaking out on my back, and i get random cramps that last less then 5 minutes. My periods are another concern as if right now.. there very very light but they last so far about 10 days. Even though i have some minor side effects, I LOVE MIRENA, and i have/having a very positive experience. :)
-- By babii000 | Reply | (1) replies | Private Message me
October 8th
2009
2:11 PM
I had Mirena inserted about 2 years ago and I'm having it removed later this week (thank goodness). I have gained 30 lbs, suffered from terrible fatigue and joint pain, mood swings, thinning hair, depression, total lack of sex drive and worst of all DEBILITATING migraines (especially after an orgasm.....I suppose that's a good reason for lack of sex drive!).
I had no problem with insertion, but was immediately aware of vaginal odor that was never there before....just an unclean sort of smell....really annoying and still persists. I miss my old periods (very normal, one week of PMS, 4 days of bleeding, then done). Now I have about 3 weeks of horrendous PMS with breast swelling, weight gain, fatigue, depression, increased appetite then I "spot" for 8-12 days! Horrible! I'll take 4 days of bleeding over 8 days of "sludge" anytime.
I hope removing it will end these issues.
-- By wengwyn | Reply | Private Message me
October 8th
2009
8:33 AM
Hi I am having the same side effects that I have read from others! My Mirena was inserted in 6/08. Slowly but surely all the side effects have appeared. Mood swings, oily skin, acne, weight gain, and the worse of all, the hair loss. I have always had thick long hair! My thyroid has always been a problem and my family doctor said my constant thyroid fluctuations may be the reason for my hair loss! It is now 1yr and 4mos. since I've had the Mirena inserted and I have lost over 50% of my hair! Balding diffusely, but majority on the crown of my head. It is to the point of severe depression I do not even want to go out anywhere, because of the embarrassment. I am scheduled to have the Mirena removed this coming Monday! I am worried that if this is the reason for my hair loss that it may not regrow! I've read that once the hair follicles die they do not rejuvenate. Has anyone gone through this same process, did your hair regrow? I'm am literally having anxiety attacks thinking about my outcome! Can't sleep, crying constantly, totally preoccupied with the thought! Driving my family nuts with constant lack of enthusiasm for life!
-- By tricia1 | Reply | Private Message me
October 7th
2009
8:58 AM
Hello everyone,
I have my Mirena put in 6 weeks after my baby was born, around the last of Sept 2008. I had very light periods for a few months then just some spotting here and there. I keep a yeast infection all the time. I have also had hair loss,weight gain,mood swings,acne,facial hair, the list goes on and on. I went the the doctor to see if anything could be done other then removing it, i have 4 kids and don't want to get pregnant any time soon. The DR checked me and could not find the strings. I then had a vaginal ultrasound that reviled that I have a softball size mass of some sort surrounding the Mirena.The Dr is hoping that it is just some built up fluid and has but me on provera to make me have a period. He wants to see if this mass "come out on its own" before we do anything else.I go back in 3 weeks, i'll post back and let you know what is going on. I wish I had NEVER had this thing put in
October 6th
2009
1:28 PM
I had my Mirena inserted in May 2009, I no longer have my period. No mood swings, no cramping, no bloating, no headaches other than when my 2 year old has her tantrums. I love it. I wear a panty liner just in case, however I still haven't spotted. Did it hurt when it was put in? Of course, you’re having something shaped like a T put into you cervics which should be tightly closed. The pain after the procedure was like period cramping. No weight gain no breakouts. I absolutely love it.
-- By analago | Reply | (1) replies | Private Message me
October 5th
2009
12:41 PM
I have had Mirena for 18 months now. I love it. I have had no side effects that you all are describing. I have 4 friends that switched and all love it and only one had to have a follow up to have the strings shortened.
As far as the weight gain, ladies, let’s be honest. We are not 18 anymore and as we get older it is only going to become more difficult to keep weight off. Blaming it on a B/C....lets think about that last chocolate bar we ate because we were busy carting the kids off to a sports practice HMMM....
With any drug comes side effects, headaches, nausea, and some other terribly worse, but lets again be honest, all of these were pointed out in the literature available.
I just thought I would take the time to write my support as this does work and work well for some women, just not all, same as any other form of B/C.
-- By quilt5 | Reply | (4) replies | Private Message me
October 4th
2009
3:03 PM
I had my Mirena inserted on Aug 12, 2009. The insertion was very painful. I had taken 800 mg of ibuprofen before the procedure but it didn't touch the pain. I am 40 years old and have had two children naturally with no medication, I feel like I have a high pain tolerance. I had severe cramping and bleeding for about 24 hours. Luckily my husband came with me, I would not have been able to drive home. I have spotted or bleed ever since. I don't know when I'm having a period or just spotting. I have been passing chunks of what appears to be tissue????? I have an offensive odor. I have not noticed weight gain but I am bloated and my clothes are tighter. I am am very moody and get frustrated easily, no patience. I have a lack of energy and don't have much of a desire to do any of the things I love. I have frequent headaches......Now for my major complaints.....I have tingling leg sensation down my legs with a warming sensation, I get extremely nausea. I have had extreme crapping in my abdomen which goes around to my lower back. They tend to be more on my right side. Very comparable to labor pains but with no peaking just stays intense. My breast feel like I'm breast feeding again and hurt all the time. We no longer have sex because it hurts to bad, besides I bleed all the time and stink! Wow if that dosent take the desire away! At times I feel as if I have a UTI, I believe this all contributed to the Mirena. I too called my OB/GYN and he said theses are not side effects of the Mirena.whatever! It is coming out Oct 9, 2009 at 2:30 p.m. I wish I would have researched it more. Thanks for sharing your experiencing because I felt like I was just falling apart.
-- By lowrnaj09 | Reply | (1) replies | Private Message me
October 4th
2009
12:31 AM
I had the Mirena placed in 2004 after the birth of my second child. I had weight gain, mood swings, hungry all the time (i would sleep eat), depressed, joint pain and was tired all the time. I eventually got it removed 3 years later and my symptoms got even worse. I was severely depressed, my sleep pattern was abnormal, my mind was fuzzy, couldn't concentrate, joint pain worsened and had absolutely no energy. I started itching and having tingling sensations and "bug biting" pain/sensation especially in my extrementies. It was weird. It stimulated a hormonal response that affected my central nervous system. I know it did. I will never be convinced otherwise. It was a shock to my system. There needs to be studies done in this. I finally drug myself to the my general practitioner 3 months later and I thought that I would get admitted in a psych ward. I was hardly functioning. No kidding. I had no reason to be depressed. My life was better than ever. I was not admitted, but I was put through the ringer for tests and my healthcare bills became outrageous. I had tons of blood work, sleep studies, saw a neurologist, had a myelogram, mri, and put on several medications which added to the weight gain. It has been almost 2 years now and I am just now starting to feel like myself. All of the tests were inconclusive. The neurologist dx was something neuromuscular. I am not on any medication now, but am not 100%. But I know that damage was done and I am older. So I'm afraid that I will never feel great again. I wish I had never had the Mirena. Never. I know I miscarried once and suspect that it happened twice. I didn't have a period for those 3 years but it was not worth it. This product should be recalled.
-- By rxmindfulrn | Reply | Private Message me
October 3th
2009
3:49 PM
Hi, I am a mother of 2, and not quite 23 years old and got the Mirena inserted at my 6 week check up after having my second. I read all the literature that the Dr. gave me and I was sure that Mirena was the right thing for me (no where in the brochures did I read anything about the symptoms Ive read about here or anywhere else on the internet). I started having incredibly horrible mood swings, bloating, fatigue, nausea (sooo bad, every day) back pain, neck pain, no sex drive (!!!), depressed, lazy, headaches (to the point where I thought my head was going to explode), constantly hungry, acne, smelled maple syrup constantly, complaining all the time about everything, weight gain (only 7 lbs but I just had a baby, I need to lose weight, and I'm nursing),chest pain, and some other symptoms but the most important one is the stomach pain i was having. The pain in my stomach felt like a knife, and I kept having pain in my right side. So after a few days of this pain I went to the dr. he ordered an ultrasound of my abdomen and I am scheduled to get that done Wednesday. My doctor thinks that I may have gallbladder disease or something else seriously wrong with me that we suspect is induced by the Mirena. Keep in mind that I've had this thing in me for about 4 months!!! So after my doctors appointment I typed into google "side effects from Mirena" and Omg, I wish that I had done that before I got the thing inserted, those brochures about the Mirena make it seem like a Godsend and I am all for a lawsuit due to the problems I am having and the depression Ive felt. My 3 year old has suffered from my mood swings, every time id feel it coming I had to make her go to her room :( that poor girl deserves to have a mother that is not so depressed and ill that she can actually play, and both of them deserve that really, and im doing the best I can.... anyways I removed it myself yesterday, i had a hard time finding it but I took it out and I feel as if a huge burden has been lifted, EXCEPT I have been cramping very bad, spotting and incredibly sick, i also read about this thing called "the mirena crash" no matter how long you've had it in, if the hormones were in your system then you are effected and can feel very ill from it (and it can happen to women who had no problems while on it at all, even after 5 yrs). Im hoping that I have nothing wrong at my doctors appt on Wednesday when I get the ultrasound, and it may just be a cyst, turns out that is a side effect of mirena as well, that and bleeding the first several months (oh yeah, I did for about 2 months maybe 10 weeks altogether) Im also hoping that my daughter whom I am nursing is not sick as well :/
oh and for anybody out there thinking that the only women gaining weight are fat to begin with, well I am usually 105 lbs, after my baby I weighed 145, lost some weight, went down to 130ish gained it all back then some, losing weight is easy for me because I diet and exercise like I should, now I am doing all that and nursing a child.... and hello weight, when it really should be goodbye... well goodbye mirena I WONT miss you!!!!
-- By l0vegreen47 | Reply | (2) replies | Private Message me
October 1th
2009
6:19 PM
Vertigo, weakness, fatigue, exhaustion, aching numbness in arms, numbness in face arms and legs, extreme pressure in head and neck, burning feeling radiating from the base of my neck through shoulder blades to arms, foggy brain, waking up feeling (for no reason) like I have a major hang over, chills, aching feet, weight gain, feeling very fearful of my symptoms because they feel like nothing I have ever experienced.
THESE LAST 4 WEEKS HAVE BEEN HELL!
I had my Mirena inserted on June 30 2008. I experienced mild discomfort for the first 4-6 weeks. The spotting was the worst of it and that was no more than an inconvenience. I was happy with my choice of birth control.
Then this hell began about three months after insertion.
During the last week of September the symptoms listed above started. They were mild at first but by within a week and a half I felt HORRIBLE. I suspected that it may be the Mirena, but at the same time I thought I was dying.
October 1 or 2nd (it is all a blur) I was home by myself when I started feeling the numbness and head pressure coming on again (my symptoms were coming and going, not constant) so I laid down on the couch to get off my feet. All of a sudden I felt like I was losing consciousness. I grabbed the phone and called my husband to get me to the ER. I thought I was dying. A blood clot or something. Once there, they did blood test after blood test, an EKG, urine tests, and basically I was told that there were no major system problems. I know this sounds a like classic anxiety, but I know it is not. I have to say they were very good there and encouraged me to see my family physician (whom I had already been to earlier that week) again.
I called to make an appointment to have the Mirena removed the very next day. My GYN kind of shrugged off what I was going through saying that it was anxiety and asked if I still wanted the thing removed!!! of course I did. Having that thing removed was very empowering. I was feeling so helpless and it was the one thing that I could do to possibly help my situation. The feeling of relief was amazing.
I did see my family physician again who agrees that what I am going though is related to the Mirena. She did ordered a CAT scan (came back negative) just in case.
Post removal (It has been 17 days) I have been slowly getting better. My "episodes" are getting more and more diminished and further apart. I have noticed that I am flooded with exhaustion after each of these "episodes". I also never know when there going to strike making it hard to make plans. My husband has been very supportive through out and was convinced before I was that it was the IUD. He has volunteered to get a vasectomy.
GOOD LUCK TO ALL YOU LADIES.
If you have stumbled across this because you are desperately searching for answers, all I can tell you is that I believe that the Mirena IUD has had devastating effects on many, many women, but hang in there you are not alone and you are not insane. What you are experiencing is very real. Have it removed ASAP!!!!!!!!!!
October 1th
2009
4:47 PM
I have had a fantastic experience. I had some initial spotting for a few months, but since then have been without my period for 2+ years and I have had no mood swings, weight gain, moodiness or anything! It has been the best birth control device in my whole life (now in mid-40's) and I recommend it all my friends. Sorry to hear about others with side effects, but I felt I needed to share my experience, which has been fantastic.
-- By katherinesfo | Reply | (1) replies | Private Message me
September 29th
2009
5:33 PM
Had my mirena removed yesterday after spending the weekend in the hospital for "cardiac telemetry" (observation). This was my 2nd major event this year that made me feel as if I were in need of immediate medical attention. I have had too many days of dealing with "cloudiness", blurred vision, headaches, waking with body aches, abdominal "flutters", irritability, chest pain, numbness/weakness/tingling in arms and legs, thinning hair, and horrific weight gain! The sad thing is that I didn't realize all these things had a single culprit until the end of my 5 years. I'm just glad that it is out, and I have brighter days ahead!
-- By mirenightmare | Reply | Private Message me
November 7th
2009
1:18 PM
Some of this may be TMI for some, but I believe in not pulling the punches:
I had mine inserted 12/07 when my youngest was 8 weeks old. I had the para-guard (no hormone) previously and loved it, I didn't take into account how poorly I have done with hormonal BC in the past (2 pregnancy's on the pill, 30lbs weight gain in 6 weeks of the patch, constant 'morning sickness' with the shot, etc) all I heard was no more periods....
After doing the HGC diet (as a last resort) I am finally down to the weight I was 2 days before my dd was born. At my peak I was 20lbs more. I want to get pregnant again next spring, but I have at least 35 lbs to loose before even considering it.
I bleed 2-3 weeks out of the month- too light for even the lightest tampons, but still no fun. I have actually developed raw spots from wearing a pad ALL THE TIME since I never know when the bleeding will start.
And, best of all, I hate sex. I have always had a great sex drive (I'm 29 with four kids) but now if my husband even looks like he's thinking about it I snap at him. When I finally give in (maybe once a month!) it hurts horribly for days- two main types: even with copious amounts of lube I am still dry enough that I feel swollen and bruised. On top of that I cramp for a full day - Feels like I've been punched in the stomach repeatedly. And then the bleeding starts.
Also some (relatively mild) acne, constant, but manageable (never a problem before). Including some in the groin area that end up as boils when on a stretch mark. I had never attributed it to my IUD until reading these posts, but had never had them previously.
The only reason I've had it this long is we lost our insurance shortly after the baby was born (DH laid off after 10 years in construction) I am calling my doctor on Monday to find out how much it will cost to have it removed!
I would ( and have) recommend IUD's to all my friends, but if any have ever had a problem with any hormones- para guard it is!!
-- By jgill | Reply | Private Message me