November 28th
2004
2:32 AM
Following an op on 12th Sept I was given a self administered morphine pump, (Safe measured doses??). Within 6 hours I was experiencing extremly dry mouth, and De-jevous (I knew what was going to be said or done before it happened.)Then the most terrifying hallucinations. My senses were wide open. I could hear every conversation in the ward and outside all at once and it was all going on in MY head. The smell of flowers at the other end of the ward was overpowing.
Along with this came hot and cold sweats even though my temp and pulse were normal. I had the shakes and was VERY confused and frightened and became paranoid. I ripped out all my tubes and phoned the police to say they were trying to kill me. The hallucinations lasted about 4/5 days and the rest about 3 weeks. All this was made worse by the fact that neither Docs or nurses accepted all I was going through. I had no sympathy understanding, counselling and was expected for the most part to look after myself.
I now have post traumatic stress due to how I was treated in hospital during this personal crisis.
January 21th
2005
2:22 AM
My husband has been on Morphine quick release since Jan 2004. He became sleepy , fall asleep anytime anywhere.
This fall , Oct 2004 we went to cancer treatment center in Zion, Ill and they put pain pump in, Medtronic with Fetanyl and Bupivicaine. That seemed to work ok for his long term pain but needed something for breakthrough pain.. They recommended Actic lollypops but the copay was $50 per month so we went with the morphine liquid. That worked ok but like all of you say, his decision making deminished and he slept alot.. Two weeks after he was home he was admitted for dehydration and high BUN. The pcp put him on MS Conten he came home and seemed ok for a week then the side affects started .. jerking , sleeping with wild dreams , talking out loud, seeing people who were not there, it has been awful.. I got on the internet and found out some info.. For one thing the dr put him on laxic and MS Conten should not be used with this med. There are so many things the drs do not take into consideration. Especially the drug interaction.. It has been five days and he is finally calming down.. He is very week, and shaky, dry mouth, eyes roll around. eys open when he is really sleeping. Hallucinations are awful. I have taken him off all morphine. even the MSIR.
Is there any pain med for cancer patients that do not have these horendous side effects. Plz share . thanks!!!
Furious with drs who are ignorant of drugs uses and their side effects.
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