Neurontin and headaches

Well, Neurontin does take away some nerve pain, not big nerve pain like the leg nerve pain upon walking and sleeping. It does have side effects. I got dizzy, constantly sleepy, a sore throat, nausea, stomach aches and headaches. I took the pill apart to reduce the dosage. 100 mg. was too much for me, driving wasn't a good idea since I had a head injury and drugs can affect you more strongly (comprised). I stuck with it for three weeks, but now my stomach as doubled up. I can't stand stomach pains along with nerve pain. I did like the effect it had when sleeping, but I can't stand big time stomach pain when awake. Forget it. I will just deal with the pain.

Hello everyone..I have many great things to say about Neurontin. It has been a miracle medication for me. I was in a car accident in 2000 as a passenger my face and head hit the windshield at 80mph. my jaw was broke and the back of my teeth were broken.
Little did I know it was extremely traumatic! My MRI's came back fine and I moved on with my life. About 6 months later my life began to change a brown spot covered my eyesight in the left eye. I began falling all the time and having seizures.
I had another MRI's of by brain done it came back negative. Not one Doctor could seem to understand what was wrong with me. I was put on Topamax for bad headaches that seemed to help. I began loosing weight and continued having seizures(Granmal) where you lose ur vision and it began to effect my speech and i would become confused.
My life was like this for 5 long years. Life didn't get better, I began to be soo tired and felt exhausted all the time. One day out of no where , I couldn't raise my head to get out of bed for work, my whole right side was burning and i was in pure agony!!! i will never forget that day. I had to have my Daughter help me up and i could barley walk...I pushed myself to keep going thinking this is all in my mind!! theres nothing wrong with me.. The MRI's are negative. I proceeded with my day in so much pain and limping all day.
It finally went away and I was fine again fo a small amount of time, I started not being able to remember things ....and forgetting from one second to the next and getting lost when I would drive...i began to panic and have anxiety, I felt like my life was out of control. I called my Mom and she said she had noticed a change in me, things I guess I didn't even know. She said I couldn't hold a conversation as before and i would slur my words and I couldn't recall what she would tell me.
My attacks moved to 4-5 times a week sometimes having seizures 2-3 times a day. I ended up having to be taken care of and moving where my Mother was so she could watch over me. I didn't get better. I couldn't work and I couldn't do much of anything.
My Mother took me to a MS specialist and he was the one who noticed there was something wrong! My face and legs would jerk and I couldn't sit still ..I had so much going thru my mind what could be wrong? I had 2 Sets of MRI's this time and it wasn't fine this time...My Spinal Cord was barley attached to my Brain Stem and CV 5-6 in my neck.
I was at the stage of being in a wheelchair not that I hadn't been using one from time to time and needing a cane.
I was sent to ER Surgery and had a stay in the Hospital and really thought I was a lucky Person to have made it for 5yrs without dying. It has been 4years and I still have soo many problems, I'm held together with a steel plate in my neck that holds mt together.
I'm now 41 years old and I wonder what my future holds. I'm not the same girl I used to be and probably never will be. I have to have Neurontin 600mgx4 a day and 1000mg Keppra a day...Without it I would not want to live the pain is unbearable for me! The only negative side affect is my hair falls out and I have severe Insomnia. Neurontin is a Miracle for me!

I wish all of you the BEST! Prayers for all of you.....

I am a recovering heroin addict. Everyone thinks I am sober. However, I feel differently. I have been taking Neurontin for about a year now and am completely addicted to it. My doctor began prescribing me 300 mg. 3x a day. when I realized it gave me a calming, relaxing, energizing feeling. It made me feel like I could handle anything. My kids, work, cooking, the laundry, my emotions. Everything was perfect, I was in total control. I convinced the doctor I needed more, "MY BACK PAIN BECAME IMENSE!!" I am now up to 900mg, 3x a day and am honestly popping 15- 20 pills at a time. I am so disgusted with myself. I have tried to stop and feel trapped. When I take my normal dosage I feel extremely dizzy, anxious, confused and disconnected. My stress level is very high. I feel like the world is coming down on me. My body hurts. I feel like I've been hit by a truck. I cannot handle reality. I found this website. looking for help, an alternative, someway to help me get off this shit. I get headaches and SEVERE diarrhea. Neurontin is extremely addictive, physically and mentally!!!

i have been on neurontin for nerve pain in my legs due to vasculitis for a few weeks now. i have only noticed a small increase in appetite. my eyesite seems to be out of focus, but its so bad anyway that i have no idea if its the neurontin or just my eyes, and minor headaches i had no pain relief either........absolutely no improvement at all. my doctor just raised my dose from 900 mgs a day to 1200 the other day. still no pain relief but i am now getting a bit dizzy. i guess we will see what happens!

mood swings, short term memory loss, extreme sleepiness, edema, light flashes, constant ringing in ears that varies in tone, depression, stomach pain, flu like body ache, headaches, ear ache, continual nasal congestion, weight gain, constipation, dry & flaking skin & hair

My doctor put me on Neurontin for nerve damage to my foot related to heel spur surgery. I started taking it on the 17th of this month with it having no effect on the pain (I was only taking one dose a day at 300 mg). He has since upped me to 300 mgs twice a day. I am now having problems with bladder control, infrequent headaches, sleeplessness, inability to climax and horrible bloating and gas. If I hadn't been on other pain meds for the past 8 months, I would stop taking it. Any suggestions?

I have been on Neur for 7 yrs. I take 4800mgs. a day for severe headaches. I recently have developed a bad muscle like pain in the back of my head, near where spine goes in. Its getting quite unbearable. Anyone else have this?

This isn't about "Neurontin", even though one of my Doctors put me on it back in April of this year. I just need to know if there's a website that may provide some answers. I find myself or I've been told that I stare out into space with my mouth a gape. I can hear people and I know that I'm staring into space but I can not answer or really move my head good. I always have headaches. Please, Is there an helpful website for me to go to????

i have been on neurontin 4 6 yrs cuz of fibromyalgia and at one point i tried 2 stop it and i tappered off slowly but i started getting very depressed, confused, panic attacks. i was in emergency almost everyday, i jus sat there in a daze with a feeling that somethoing bad was about to happon 2 me, i lost alot of weight from diarrhea everyday. my dr said i think u should go bac on it so i didbut something else i noticed was that when i was off of it my hair was growing in thick and fast but when i went back on it my hair is now falling out, not growing and very damaged no matter how many treatments and or trims i give it!! when i was on it b4 i noticed my hair wasnt growing correctly but i didnt no it was from the neurontin, i thought it might have been but its not listed as a side effect. then i came online and looked it up and hesrd from other people and they all were saying the same thing, that there hair was a mess and falling out or not growing!! i hate this med so much but it helps with my headaches like no other. i recently went on cymbalta and im tappering off neurontin i dont know how it will go but im gonna try.im also finding out that alot of other meds im on could b contributing to this hair issue 2. please feel free 2 send me mail i would love 2 hear other peoples comments bout meds, and 4 anyone with questions bout neurontin i have been on it long enough 2 no the answer.

I,ve had a stroke, I,ve been on Gabapentin (neuronton) for 3 years. I take 600mg 3 times a day. I have memory problems; I feel weak most of the time. My daughter says I stare out into space lots. Ihave alot of headaches. I don't go a day without getting sick!!!

Since starting on Neurontin for headaches, a little over a year ago, I've been diagnosed with: IBS, Colitis and High Blood Pressure. I have also had swelling and pain in my ankles and legs and constant debilatating abdominal pain and bloating. I tend to go from constipation directly to diarreha. I never had trouble with my blood pressure (other than with my first pregnancy) until I started taking this medication. It always ran about 115-120/75-80. I've started looking at info. on the web regarding Neurontin. I've learned a lot. It has many more side effects and medical causes than I was first informed about. The makers are also being sued for having their Reps. lie about it's uses and "cures". I've also read that it has terrible side effects when trying to stop. It has helped my headaches, but I feel I've paid a price for them to stop. I think that my headaches were not as bad as the abnominal pain that I'm experiencing. I'm going to see my Dr. and find ou how to stop taking it.

I've been on neurontin for about 3 years. I take 2400mg per
I have all of the ill effects mentioned above plus one more. My vision is impaired 40 % worse than when I first started this medication. I would have to say that I too am very frustated with this medication now. I have short term memory loss, weight gain, chest pain, constipation, swollen extremities, no sex drive, headaches, excessive feelling of euporia, depressed, and much more. The one thing I can say is that it did help the problem for which I was prescribed. Chronic neck pain/spasms. Go figure!

I don't know if this is a new one or not, but my 8yo daughter is taking Neurontin as a last-resort medicine for intractable Complex Partial Seizures. She is on 800mg 3x/day. It has been like giving her speed--she can't sit still, can't concentrate, and runs through the house flapping her arms like wings or jumping up and down and flapping. She has experienced the trembling legs, the dizziness, the headaches.

To the mother of the child for whom Neurontin acts like speed:

Neurontin takes away irritability (or nerve-firing threshold) of the involuntary muscular system, and it sounds like the physical phenomenae is just another manifestation of the seizures for which she had the drug prescribed.

Poor kid, those side-effects sound TERRIBLE, and as her mother I would immediately talk to her doctor about change of dosage, or something else -- anything else -- the effect N has on her shows it's either not the right thing for her problem, not enough dosage, or another not-yet-understood indication of inappropriate treatment. The fact that she has headaches indicates it's not just her Mom's unwillingness to deal with a hyperactive kid. Having-headaches means it's poisoning her system. Please act as her advocate and protector in this matter.

And it's NOT the last-ditch treatment for seizures: ask her medical team about surgeries. If they won't do that, then either find new doctors who will give you access to everything possible that modern medicine can provide to help seizures, or explain the trade-offs of living with medicinal side-effects and the risks of surgery.

Jan S. Kauffman, Neurontin userid, parent and grandparent, Masters in Counselling, certificate in elementary education, survivor of decades of fighting the American medical system

I TAKE NEURONTIN FOR SEIZURES FOR 3 MONTHS(300MG-3XDAY)NOW, AND I GOT 20 POUNDS ON THOSES 3 MO. I HAVE A TERRIBLE APPETITE, HEADACHES ARE BETTER, BUT SWELLING ON MY KNEES,LEGS,THIGHS,HAND,FEET,MUSCLE PAIN, CONFUSED,NUMBNESS OF TIP OF FINGERS,TONGUE,AND ONE SIDE OF MY FACE,PAIN OF THE BACK OF MY NECK,MEMORY LOSS, LACK OF MY CONCENTRATION,AND INSOMNIA OR DIZZYNESS....BUT ON THE OTHER SIDE NEURONTIN HAVE BEEN WORKING SO GOOD FOR MI SEIZURES THAT I DON'T KNOW IF I SOULD DEAL WITH THE SYMPTOMS FOR A LITTLE BIT UNTILL MY BODY GET USE TO IT OR JUST TELL THE DOCTOR AND TRY SOMETHING ELSE...FANTAXYAMODELO4U@aol.com