May 16th
2009
7:52 PM
Hello everyone..I have many great things to say about Neurontin. It has been a miracle medication for me. I was in a car accident in 2000 as a passenger my face and head hit the windshield at 80mph. my jaw was broke and the back of my teeth were broken.
Little did I know it was extremely traumatic! My MRI's came back fine and I moved on with my life. About 6 months later my life began to change a brown spot covered my eyesight in the left eye. I began falling all the time and having seizures.
I had another MRI's of by brain done it came back negative. Not one Doctor could seem to understand what was wrong with me. I was put on Topamax for bad headaches that seemed to help. I began loosing weight and continued having seizures(Granmal) where you lose ur vision and it began to effect my speech and i would become confused.
My life was like this for 5 long years. Life didn't get better, I began to be soo tired and felt exhausted all the time. One day out of no where , I couldn't raise my head to get out of bed for work, my whole right side was burning and i was in pure agony!!! i will never forget that day. I had to have my Daughter help me up and i could barley walk...I pushed myself to keep going thinking this is all in my mind!! theres nothing wrong with me.. The MRI's are negative. I proceeded with my day in so much pain and limping all day.
It finally went away and I was fine again fo a small amount of time, I started not being able to remember things ....and forgetting from one second to the next and getting lost when I would drive...i began to panic and have anxiety, I felt like my life was out of control. I called my Mom and she said she had noticed a change in me, things I guess I didn't even know. She said I couldn't hold a conversation as before and i would slur my words and I couldn't recall what she would tell me.
My attacks moved to 4-5 times a week sometimes having seizures 2-3 times a day. I ended up having to be taken care of and moving where my Mother was so she could watch over me. I didn't get better. I couldn't work and I couldn't do much of anything.
My Mother took me to a MS specialist and he was the one who noticed there was something wrong! My face and legs would jerk and I couldn't sit still ..I had so much going thru my mind what could be wrong? I had 2 Sets of MRI's this time and it wasn't fine this time...My Spinal Cord was barley attached to my Brain Stem and CV 5-6 in my neck.
I was at the stage of being in a wheelchair not that I hadn't been using one from time to time and needing a cane.
I was sent to ER Surgery and had a stay in the Hospital and really thought I was a lucky Person to have made it for 5yrs without dying. It has been 4years and I still have soo many problems, I'm held together with a steel plate in my neck that holds mt together.
I'm now 41 years old and I wonder what my future holds. I'm not the same girl I used to be and probably never will be. I have to have Neurontin 600mgx4 a day and 1000mg Keppra a day...Without it I would not want to live the pain is unbearable for me! The only negative side affect is my hair falls out and I have severe Insomnia. Neurontin is a Miracle for me!
I wish all of you the BEST! Prayers for all of you.....
-- By shellfulton | Reply | (1) replies | Private Message me
April 28th
2007
5:51 PM
I have been on 900 mg/day of neurontin for about 2-3 months. Recently I have developed rash spots on arms, body and neck. I have appointment with doctor in 2 more weeks. Has anyone else experienced rash from this medication? Am on several other medications.
-- By horace | Reply | (1) replies | Private Message me
January 12th
2005
9:55 AM
I AM 82 YEAR OLD FEMALE I HAVE NERVE DAMAGE IN LEGS AND FEET DR HAS PUT ME ON ALL MEDICATIONS HE PUT ME ON NEURONTIN I DONT KNOW IF I WILL MAKE IT GETTING A LOT OF PRESSURE IN MY HEAD DOES ANY ONE ELSE HAVE THE SAME PROBLEMS
-- By hacksawkid | Reply | Private Message me
March 6th
2004
9:41 PM
I am totally suprised at the various things Neurontin is prescribe for. Neurontin is an anti-seziour medication. I am taking Neurontin, Lamictal for Bipolor as they say...which I truely do not believe in diagnoses at all. I just attended an all day conference put on by Dr. Glasser, intitaled, also his book, "Danger, Psychiatry can be dangerous to your mental health."
The pharmicutical companies are making lots of money off of us since we are ginipigs. I have expereinced on anti-psychotic, Prolixin, shouldn't be on in the first place, only 2nights..spent two hrs in ER. As for Paxil gained 100lbs on (Jan97-Aug.02), & when tapered of had withdrawal symptoms (week after I started withdrawal, I saw a story about it on 20/20) even though withdrawal symptoms left it took me a yr to recover, whats positive of getting off the med, I have lost the 100lbs, + 5 more. Depakote, also caused some weight gain and some hair loss (taken off this before yr before paxil) One thing dr. never tell you is the long term effects or if there is any withdrawals.
I think the best way is to learn the ends and outs of all your medications you are taking. You know your body better then they do. Even if prescribe medication, learn all u can about it before taking it. Expecially the medications that effects your brain. I also feel that some of this medications can cause harm to a brain. You do have choices and its your life. (There is much more to this story about me, for example, pinch nerve in neck for 13yrs). If u would like to know more about me or have any questions I will be more then happy to reply back. ******
May 19th
2003
3:19 PM
I was just prescribed Neurontin for PLMS (periodic limb movements in sleep) - basically, I twitch all night long. I also tend to experience side effects from most medications. I'm not on anything else except Prevacid for GERD and xanax as needed (about 1x/month). I also take a supplement for my joints, and 5HTP for mild depression/anxiety (works wonders!).
Can anyone offer some advice? Anyone else take Neurontin for RLS or PLMS? Sounds like most people posting here are taking many more medications than I, &/or have many medical issues. Was wondering what to look out for. Can anyone list some basic, common side effects, and those more serious to look out for? Thanks!
December 17th
2002
9:43 PM
I have been taking Neurontin (they said for my anger)for approx. 5 mos. I only take 300 mg even though I should take a lot more. I also take Paxil 40mg for anxiety, OCD and panic attacks. I have been on Paxil for almost 5 years. The reason I say I should take more Neurontin is because it definitely helps my well-being but I still get terrible anger outbursts. I am not inclined to ask for an increased dosage of Neurontin because there are some side effects that I do not like. The little stuff I can deal with but the two issues that are really bothering me are the feelings of lethargy I get and my short term memory loss/concentration. It seems like the higher dosage I take the worse the effects get. I do not believe that it's the Paxil because I have been on it for so long and the only side effects I seem to have are when I try to get off of it. I would also like to mention that I have tried LOTS of medications, I mean LOTS! None of them have worked successfully. Neurontin is the only one that seems to be helping me control my anger but I can stand feeling sluggish and out of it all day. Suggestions from anyone? Does anyone else take Neurontin for an anger problem? Or, does anyone know of any other meds work just as good w/o the side effects? Please let me know. Thanks!
-- By crimsnlust | Reply | Private Message me
July 22th
2009
11:12 AM
I have a disk bulg and was prescribed narcotics, and injections in my lower back at about 6 mo intervals. I have abruptly gone off my medications and went on 2 300mg per day working up to pain relief. I just received injections so pain is levels are tolerable. the neurontin is give nuvaring me sever anxiety, raising blood presser to high levels for me, insomnia, nervousness, How long before these side affects go away? Any one else experience this?
-- By dawnski | Reply | Private Message me