Neurontin and topamax

Hello everyone..I have many great things to say about Neurontin. It has been a miracle medication for me. I was in a car accident in 2000 as a passenger my face and head hit the windshield at 80mph. my jaw was broke and the back of my teeth were broken.
Little did I know it was extremely traumatic! My MRI's came back fine and I moved on with my life. About 6 months later my life began to change a brown spot covered my eyesight in the left eye. I began falling all the time and having seizures.
I had another MRI's of by brain done it came back negative. Not one Doctor could seem to understand what was wrong with me. I was put on Topamax for bad headaches that seemed to help. I began loosing weight and continued having seizures(Granmal) where you lose ur vision and it began to effect my speech and i would become confused.
My life was like this for 5 long years. Life didn't get better, I began to be soo tired and felt exhausted all the time. One day out of no where , I couldn't raise my head to get out of bed for work, my whole right side was burning and i was in pure agony!!! i will never forget that day. I had to have my Daughter help me up and i could barley walk...I pushed myself to keep going thinking this is all in my mind!! theres nothing wrong with me.. The MRI's are negative. I proceeded with my day in so much pain and limping all day.
It finally went away and I was fine again fo a small amount of time, I started not being able to remember things ....and forgetting from one second to the next and getting lost when I would drive...i began to panic and have anxiety, I felt like my life was out of control. I called my Mom and she said she had noticed a change in me, things I guess I didn't even know. She said I couldn't hold a conversation as before and i would slur my words and I couldn't recall what she would tell me.
My attacks moved to 4-5 times a week sometimes having seizures 2-3 times a day. I ended up having to be taken care of and moving where my Mother was so she could watch over me. I didn't get better. I couldn't work and I couldn't do much of anything.
My Mother took me to a MS specialist and he was the one who noticed there was something wrong! My face and legs would jerk and I couldn't sit still ..I had so much going thru my mind what could be wrong? I had 2 Sets of MRI's this time and it wasn't fine this time...My Spinal Cord was barley attached to my Brain Stem and CV 5-6 in my neck.
I was at the stage of being in a wheelchair not that I hadn't been using one from time to time and needing a cane.
I was sent to ER Surgery and had a stay in the Hospital and really thought I was a lucky Person to have made it for 5yrs without dying. It has been 4years and I still have soo many problems, I'm held together with a steel plate in my neck that holds mt together.
I'm now 41 years old and I wonder what my future holds. I'm not the same girl I used to be and probably never will be. I have to have Neurontin 600mgx4 a day and 1000mg Keppra a day...Without it I would not want to live the pain is unbearable for me! The only negative side affect is my hair falls out and I have severe Insomnia. Neurontin is a Miracle for me!

I wish all of you the BEST! Prayers for all of you.....

I am taking 800 mg three times a day and have been for a little over a month now. It is an excellent mood stabilizer however I have gained over 30lbs since I have been on it and extremely bloated. I am not a fat girl so I think its time for me to end the madness. This medicine would be perfect if it didn't make me want to stuff my face 24/7 and lay around all day.

I have had severe idiopathic peripherial neuropathy in my hands and feet for 10 years. The dr. prescribed 1800 mg of Neurontin, but 6 months ago, after a long time of being more tired than you can imagine, and blood in the urine which the drs. couldn't never find a feason for, I talked him into letting me to gradually reduce it to 600 mg. The dr. has now put me on 150 mg of Topamax, and says he may increase it to 200 mg if I go off Neurontin. My question is, has anyone experienced any side effects similar to those of Neurontin, or any side effects on Topamax?

Neurontin did to me much of everything mentioned above. I got the swelling of the lower extremities, which didn't go away after I stopped the drug. I still swell there, and am about to be evaluated for kidney function to see if my kidneys have been damaged. I've been off the Neurontin for over a year. I went to Topamax, which works just as well without any side effects for me.

(By the way, I took it for neurogenic pain.)

One thing I've not seen mentioned though, is rotting and brittle teeth. Mine went really bad. I had to have several caps replaced, and several caps put on, and also had to have three different root canals duing my Neurontin use.