April 20th
2009
2:53 PM
I was prescribed Paxil and started out at 10mg. then they gradually increased it up to 60 mg a day. Later on they added I think it was 200 mg of Wellbutrin. I was on Paxil for I think 2.5 to 3 yrs. What happened was I was so out of it I didn't know what day it was. The HMO would have to call me to remind me to come in that day for my doctor visits. I slept most of the time and was just worthless. I didn't care about anything much and didn't have the energy to do much of any thing. This was a drastic change in me and my family hung in there with all this. I actually drove which is not a good idea at all. But when they put you on this you don't realize how bad you are on this stuff and once you are on it for so long then you are either a captive at home not able to do anything or you try to take back some part of your life. You also can't just go off of it cold turkey at 60 mg. I tried and it got bad and went back on it. After I got really bad all I did really is drive to therapist appts or to nurse practitioner who managed the Paxil and Wellbutrin. After being on 60 mg of Paxil and Welbutrin for awhile/months and I was so out of it, that is when they said we need to back me off of it. I think it accumulates in your body and I think you can kind of have an overdose in a sense. They didn't really monitor it that well and took their sweet time recognizing it. But they didn't say anything about it. I think that is what happened to me but no one at the HMO said that. Instead they got me scared that I was going to run out of therapy sessions allowed while on Paxil and that is why they were going to back me off of Paxil. I guess another patient had that happen to her and they didn't want that to happen to me. I then say my therapist very rarely while I was backing off of the Paxil. She acted like I was ready to handle everything on my own. I had no idea that suicidal thoughts were in my future when backing off of this drug. But they sure knew it, a lawsuit in California had been filed the month after I started taking the drug and it was all about the lack of disclosure about the withdrawal issues. First I got off of Wellbutrin and then they slowly backed me off of Paxil. It was physically wrenching. Throwing up and diarrhea all at the same time. Painful is not the word. I have given birth to two kids and pneumonia and this was much worse! Chills, tremors, I felt sick all the time. This went on for months. When I talked to nurse practitioner they pretended that it was no big deal. I wasn't sure what was happening. I finally got pissed off about the whole thing and never called them back and they didn't follow up either. Not even therapist. They hoped I would go away quietly which I did. When you are in the throws of this and you know who did this to you, you really don't want any more of their harmful help. It took at least a year to feel better. There is this uneasy weird feeling and zinging noise that lingers for a long time. But my memory is a fraction of what it was. My short term memory is very difficult. I know that Paxil was responsible for this. How do I know? Well when you are on Paxil and if you have a recall on a bad incident and you start to emotionally react to it, Paxil will offset it by making you sleepy. It literally targets your emotional reactions and those thoughts connected to it. It tries to disconnect the feelings from the thoughts. These disconnects also disconnect your ability to remember other things. Even after I got off of Paxil I noticed that I would get sleepy when I thought of stressful things. It has taken me about three years and I am talking better and can remember many more words. I talked very simply for so long since I couldn't recall basic conversation. It targets emotional responses and I got to a point where I was really numb about a lot of stuff due to the constant tapping down by Paxil. I feel like it disconnected those connectors to your brain that talk to each other. My family made jokes about me and how simple I got and how I couldn't remember anything. They are worried that I have alzheimers disease or will get at this rate. I could not work on Paxil at those high doses I was on and while I was withdrawing. I found that afterwards my memory was so bad that I missed so many simple things that I would have never missed before. I am concerned that my memory lapse will cause a big mistake that may hurt someone. I was out of work for so long. I volunteered to keep myself busy until I got too bad. It would keep me busy. I also noticed that while on Paxil I was uninhibited and said things that hurt folks and I was unable to monitor myself like normal and couldn't determine what was not appropriate to say all the time. I had an emotional disconnect to myself but also to others. This hurt some folks and cost me a job. My memory is so bad that I have to write down important things if I really want to refer to it again. I also have given up on going back to school. I couldn't test well at all. I can not remember what I did 5 minutes ago let alone a chapter I have read. I am only 52 now and I feel so much older due to this. I suffer from Fibromyalgia and IBS. I was so upset with my doctors at HMO since they didn't warn me of the withdrawals. When they put me on Paxil I was adamant about not taking an addictive drug. My family has had a history of addiction and I was not going there. I know how bad it can get. Paxil's withdrawals is very much like the withdrawals that addicts go through. I was devastated by not only how doped up I was on Paxil but also all time I wasted on it and with the year just trying to withdraw from it. Then the time just trying to get some of my memory back to function. I am mad that there is no way I could go back to school to better myself. I am mad that no one warned me of any of this and if they would have I wouldn't have taken it. How many of you would take a drug knowing that you memory would be messed up? Not many. Certainly not me. My daughters know what a tyrant I am about drugs and alcohol. This is not something I would have opted for if the whole truth were known. They certainly don't warn you that your memory will be like swiss cheese afterwards. No one in my family has had such memory loss. No alzheimers disease. In fact quite the opposite is the case. My grandmothers were very clear at older age, so menopause can not be a big factor and beside this happened before menopause. Also grandfathers and father were very clear getting older. My family noticed a definite change while I was on and after Paxil. The irony was that when I started to go back to HMO for regular care which took me a long time to trust them enough for them to do even that, someone at HMO had put in my automated chart that I was allergic to Paxil. They won't say who put it in either. I was not allergic to it but they are now saying that I had a bad reaction. But what I say is after seeing so many "bad reactions" on websites like this I am convinced that this is more than isolated cases but rather the norm of what happens to patients who take it. HMO doesn't want to admit wrong doing. Paxil seems to have kept a lid on it. Besides how do you measure a bad memory and how do you prove it after the fact? You are getting older and who is to say it isn't genetic. But I was on it for maybe 2.5-3 years. I was so out of it I don't remember how long I was on it. I also was suicidal when coming off of it. I even called a crisis line since I couldn't trust the HMO. I was irrational. For those of you still on it I think you are doing more harm than good. I don't believe all the facts have come out about the side affects from these types drugs. Who would be doing the studies? Certainly not he drug companies, FDA is a joke and if you think the attorney generals are doing much think again. Yeah a couple states like CA an NY they did settle on suits about suicide for kids but they settled quietly. The doctors who prescribe these drugs also are in a catch 22 like my HMO. They don't want to be linked in this and will avoid it too. What attorneys can afford to go up against all those high powered attorneys for those loaded drug companies? Not many. No one is actually dying from this and that is another reason there won't be much done on this either. Fortunately today we can hook up online and share our stories and this is the first step in documenting what is really happening to patients.
Be so careful coming off of these drugs. Give yourself plenty of time to get normal. Make sure you are seeing a therapist you can trust and is trustworthy. It takes an alcoholic about a year to rid their bodies of the toxins that have built up in their tissues. I do believe that is also true of Paxil. Be kind to yourself and get good support while doing so. It can be a very lonely physcially and mentally anguishing time. Think of yourself like someone who has had a brain injury or stroke. You need to practice to get things to reconnected as best as possible considering. You will never be like before you took Paxil but with time and patience and hard work it can get better or you can develop ways to compensate or work around or cope with such memory loss. Financially this can be devastating and it was for us. The loss of income and finally a bankruptcy. We paid dearly for taking this drug. It can be very frustrating and you have to look long term. I think it is very easy and cheap for HMO's to pass out pills rather than schedule needed appointments for therapist and other alternatives. Before they started to take me off of Paxil I was warned by my HMO that I had exceeded my number of appts allotted for a 2 or 3 yr period. So I may end up without any therapy while on Paxil. That is the reason why they decided to back me off. I had apparently used something like 32 appts in two or three years and I was getting close to not being able to have any for a long while. This was interesting approach since by then they knew that suicide was linked with Paxil. They will put you on Paxil and they will leave you high and dry without at therapist if you actually use one regularly and use up a normal amount of visits. I have very little compassion for HMOs. What was amazing was listening to the nurse practitioner tell me if these drugs don't work there are lots of other ones we can use. These are the easy going drug pushers of today and they prescribe these drugs without much thought. They make it cheap and easy and they will swear to your face they aren't addictive but are basing it on very little research. They regurgitate what ever the drug companies tell them. The cost cutting with HMO's is almost frightening. I also have problems sleeping too. I wonder if the drug messes up your serotonin levels since it does make you sleepy so much of the time and when you are off of it the brain is fried from all that artificial serotonin that it no longer knows how to manufacturer it well. I think that is what maybe causing my Fibromyalgia since this is a condition where you muscles never repair themselves at night due to lack of sleep is one theory. I was always a deep sleeper before all of this. I think there maybe a connection.
Finally depression. When you can't remember what you did 5 minutes ago or simple things it gets more than frustrating, you get depressed at how limited you are now. The pain from the fibromyalgia is constant and that too is depressing. I wish someone could put together the data on this to prove the link to memory loss and how it has affected our serotonin levels.
The only way you can stop companies is to sue them. Government won't do it really. A class action suit might work.
February 13th
2009
4:24 PM
I'm a 22 year old student that has been on paxil for three and a half years. Paxil changed my life--my anxiety was absolutely debilitating. But like a lot of you, I'm now facing a new problem: memory loss. I constantly 'misplace' words, forget appointments, and periodically even forget things like my age. My studies have suffered because of it, but again like a lot of you, the withdrawal symptoms and the potential of my anxiety returning is terrifying.
I'm not sure what I can do. I am physically addicted and emotionally dependent on this drug, yet I'm also a young man with a worsening memory and grad school ahead of me.
-- By cdoell | Reply | (1) replies | Private Message me
February 4th
2009
7:14 PM
Holy crap this website is depressing! Paxil is not all bad people! I've been on it for 1.5 years. I'm a 24 yr old female. I take it for social anxiety and panic attacks. It takes about 3-4 months for your body to adjust to taking it. You are likely to experience MINOR side effects. I had a lot of sweating, tiredness and HAPPINESS. Yes, I was really happy...its an anti-depressant after all. After that you might be a little more tired than you use to, but other than that it is fine. You can't quit cold turkey, you have to be weaned off of it...just like you will be gradually put on it. I take 30 mg a day, but started at 10 the first couple weeks. Don't get freaked out because of all the bad reviews on here. Everyone just wants a place to whine about their bad experiences and how horrible their life is. Paxil cured my panic attacks and my anxiety. I feel so much better. I think so much more clearly and I don't constantly worry about what everyone thinks of me. Would recommend paxil to a friend.
-- By howdy | Reply | (4) replies | Private Message me
October 16th
2008
8:53 AM
I took paxil when I was around 24 years old. The stupid psychiatrist (who was so cold, and never smiled, and then asked me to tell her how I felt) at the time never warned me about NOT stopping it cold turkey. So one day I did stop and I experienced symptoms already described by other people: extreme relapse into depression and anxiety, felling like I "wasn't real", social phobia, agoraphobia and feeling suicidal. Now I am on Effexor and my doctor says "there are no withdrawal symptoms". I was put on Effexor due to a diagnosis of major depression last 6 months ago and I believe it was all precipitated by hormonal birth control. All the doctors and psychiatrists I spoke to about the possible link between hormonal birth control and depression and anxiety told me there was no link (or that it was very rare). I hate the attitude of the medical community:(
-- By nomoremeds | Reply | (4) replies | Private Message me
October 9th
2008
11:28 AM
I have been on Paxil for about 9 months now (20mg) and it has been a wonderful aid to my severe health anxiety and depression. Though the side effect have been around since the early months I have noticed an increase in them lately such as my vivid dreams have gotten very strong, ability to climax has decreased, but the insane sweating has improved.
All in all there a lot of side effects related to this medicine but in my opinion they do not come close to out weighing the benefits of the medication.
Before you begin this medication make sure you ask you doctor lots of questions and understand that this medicine can be a bit life changing since it comes with withdrawal when you decide to tapper off. But in my opinion it is a great tool when battling anxiety, another great tool is therapy too! Therapy has been a huge help for me and I totally recommend going to see someone if you are able!
Hope this helps.
-- By lizzle | Reply | (1) replies | Private Message me
June 15th
2008
4:10 PM
When i was 13 i was put on paxil for major depression. I stayed on it till i was about 17 after a downward spiral of depression that lead to a suicide attempt. After that the doctors decided that Paxil wasn't benefiting me anymore and decided to take me off of it, cold turkey. At that time i was on 40mg.
I started getting zapping headaches, muscle spasms, i was sensitive to light, my body ached, i had hot flashes, pretty much anything over stimulated me... i was irritated with just hearing anyone talk, i was completely out of touch with anything around me and i didn't feel like i was real.. I basically shut myself in my room for over a month getting over paxil. My family was afraid i was planning suicide.
After that, it's made me afraid to take any of my prescribed antidepressants, but i just cannot go through that again. At the time they put me on it, there was nothing that said that it was addictive, i was even told that there was no proof that it was addictive.
Also, I still experience the headache zaps to this day, and im 22 now, and i never had those type of headaches before paxil. I really think my mental illness is a lot worse from paxil. I have depersonalization disorder now, my short-term memory's crap, im more uncoordinated, im a lot more depressed and social phobic.. i know part of it could be from not taking any meds at all.. but i know that paxils really screwed me up, and i would have been a lot better not taking it at all. I just wish they would have warned me before putting me on it, or warning me before taking me off.
March 12th
2008
4:24 PM
I am on 10 mg. of paxil and have been on it for about 4-5 years. I would like to come off but am worried about all these crazy withdrawal symptoms everyone talks about. I have gone as many as 3 nights without takiing any and never experienced "jolts", maybe a little jittery and confused. I am thinking about doing 7.5 mg. for about a month, then go down to 5 for a month, then 2.5 for a month.
I hear all these stories and wonder if the people who have all these bad withdrawls were on high does and if they weaned themselves off.
PLEASE HELP.
Thanks.
-- By floralparkchick | Reply | (4) replies | Private Message me
January 2th
2008
12:35 PM
I was on Paxil for 12 years.
The early years I struggled to stay awake then gradually over 4 ti 5yrs I developed a boundless energy, with a constant elated and irritable mood, my thoughts and behaviors leaned towards the aggressive while highly confident. Never used a winter coat with temps well below freezing, I was always warm. Never needed more than 2hrs sleep each night.
Developed muscle aches, rash on both cheeks and along bridge of nose.
I read up on Paxil and discovered that these symptoms were Paxil related. I took myself off of it. I was on 20mgs then one month of 10mgs after that I quit cold turkey. While withdrawing I felt like my head was in a wind tunnel, a constant whooshing sound going round with dizziness, brain jolts, agitation, anger and crying, After 1 month of being off I began to feel better. If you want to quit you just have to tough it out. Once you get passed the withdrawals it is well worth it. I understand the link between school shootings, criminal behavior and serotonin reuptake inhibitors. It is wonderful after quitting to be in control of your thoughts and actions once again. I suggest you never start taking this medicine as it will be a nightmare withdrawing from not to mention the psychotic behavior it is known to cause in some cases.
February 2th
2005
1:53 PM
I have been taking Seroxat for about 6 years now, for panic attacks and mild depression,at first i didnt like the feelings i was getting, but stuck with it ,glad i did coz they turned me into a very happier more confident person,very rarly get a panic attack now and i can even go out and get drunk without thinking im going to die,did not effect my sex drive at all,started remembering dreams for the first time ever. I have lost hair and i have put on a lot of weight but this could be put down to getting older and drinking ? who knows ,
I would like to stop taking Seroxat just to see if i lose weight , but I cant coz I know, after forgetting to take tabs for a couple days the cold turkey is horrible ,
Paul
-- By papillon | Reply | Private Message me
January 26th
2005
9:43 AM
The generic paroxetine has not worked as well for me as the regular Paxil. I have been trying to wean myself off with no success. Once I went cold turkey and was almost hospitalized . Any suggestions?
-- By kingram | Reply | Private Message me
August 31th
2003
9:35 AM
I took paxil for over a year, I stop cold turkey because I read one of the side effet,affect your liver, I felt dizzy spells my head felt disconnected, I had terrible nightmare my sex drive decreased, weight gain, chest pain , slow heart beat , felt so tire and sad after getting off paxil, I'm going back to my doctor . I'm reserching every medication prescribed to me before I take it.
Don't take Paxil or Paxil CR.
-- By herlindamarkw | Reply | Private Message me
January 3th
2003
3:18 PM
Paxil caused weight gain, lightheadness, vertigo, weird felling of not been all there, like a fuzz when out, was perscribed Paxil for Anxiety and panic attack but I stoppped cold turkey. this caused my blood pressure to rise really high , also a racing pulse, am weaning off after told by doc to get back on a see if it had an effect on blood pressure and pulse, it has lowered my blood pressure and pulse but i feel terrible with the side effects, can't wait till I get off and find something that workes for me, Xanax does by they don't llike to prescribe it for very long.
-- By lckyjustme | Reply | Private Message me
June 2th
2009
11:36 AM
im a twenty four year old student on paxil since i was fourteen.
-- By saragregg | Reply | (1) replies | Private Message mecoming off this medication is nearly impossible, i have tried at least ten times. The reason i have decided to come off it for good is because of memory loss. I can spend up to one hundred hours studying for a test and still only get about seventy percent.
Another reason i have decided to come off paxil is tooth decay. I now have a cavity in every single tooth and have lost three teeth due to paxil.
A common side effect of paxil is dry mouth. With out salivia in your mouth, it becomes difficult for your mouth to wash away bacteria, leaving you with tooth decay.
Im coming off slow, cutting up pieces of paxil to take each night, about two milligrams less per night. Ive been all the way up to sixty milligrams and im now down to twenty and hopefully will be free and clear within a few months. This is not a medication you can come off by cold turkey. you must cut it down very slowly