Pentasa side effects

I have been taking 8 500 mg caps of pentasa a day for over seven years for what doctors told me was Crohn's Disease. I just found out that I don't have Crohn's Disease and I am in shock not to mention that I have lost over fifty pounds and in bad stomach and back pain. What is going on. I will add that the four day hospital stay has really hurt me emotionally, money wise and I am heart sick. Patricia

I took 1g of Pentasa twice a day for a week I couldn't stop urinating and I would also break out in sweat it would be running off me by the end of the week I started having terrible diarrhea it never stopped for three days if I dran water it came straight through me I had to see the consultant who told me to double the dose to 2g twice a day I managed 3 doses I was so ill I couldn't move my shoulders or my neck and I had terrible chest pains I thought I was dying I was told to stop taking them and my symptoms stopped 2 weeks later I am still weak and absolutely shattered. I wouldn't want to ever take them again

I am taking it for about 3 months now I feel so depressed! is this normal? I have no appetite or urge to eat as I am afraid of been in pain after! But this is really getting me down and I am so tired. I am waking up all hours of the night with my stomach, I admit it has eased off the pain I had but the Depression side of it is so hard.

Oh, and when you take the blood tests make sure to look at the Creatinine. That number will help tell you about kidney function.

BE VERY VERY CAREFUL WHILE TAKING THIS MEDICINE. Get regular blood tests. I have Chron's disease. This is the drug I was supposed to have been taking to keep me in remission once I got there. (I took it while I was trying to get into remission as well- actually not into remission yet.) I landed in the hospital for what the "DR.s" say was "unrelated severe back/flank pain." Aside from it being the worst hospital experience I've ever had (they told me that nothing they could see was wrong and that the ER was only for life threatening conditions. ) After mixing up every conceivable test they possibly could, the ER dr came in with blood results and said well we have to keep you in the hospital because your KIDNEYS ARE SHUTTING DOWN. I was freaked because he made it sound like they were already almost gone. Luckily a nephrologist came to see me quickly and explained that it had lost 1/4 of its function but that she thought it could be fixed. After an exam and talking she determined it was the PENTASA that had done this. She said that I had to immediately stop taking it and that if that was the problem as she suspected my function would come back up to the reasonable range. It was the Pentasa and my function did come back. What was trying was that all the GI doctors and hospital doctors other than the nephrologist hadn't even thought about Pentasa as a possible problem because they say that "there is less than a 1% chance that Pentasa would shut down your kidney function." None of the doctors in their time had actually seen someone who it had happened to. If I hadn't landed in the hospital for back pain my kidneys would have shut down completely over time without me having a clue and the consequences of that are scary to think about. I'm just glad that I had at least one doctor that looked at the overall picture and examined the "less than 1% chances."

a friend of mine said that she was hospitalized from pancryitis due to pantasa is there any truth to that email me back im on pantasa now and it scared me
StylesJ017@aol.com

last year i had a parasite . did not know this for 3 months. my diarehia turned into ulcerative colitis. this was all confirmed by a colonascopy. had to take flagel for the parasite and medication for the colitis. also took prednisone. my dr. wants to put me on pentasa to take as a maintenence pill. what are the side effects to this pill. i am doing very well now and i really don't feel confortable taking 1500mg. a day all the time. what do you think????? and what are the side effects????????? thank you

fatigue, weight gain, hair loss, enlarged breasts, depression....... all started 3-4 years ago (very subtle) after starting Pentasa

Weight gain. Increase in appetite?

question: is weight gain a possible side effect of taking Pentasa for a Crohn's patient?

elevated liver enzymes a 66 and 69. this is a question. is it possible . didn't happen until stared taking Pentasa