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PredniSONE and absolute hell

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50 Side Effects posted for PredniSONE

October 19th
2007
5:29 AM

In June I found out I had actue renal failure. One of the many medications I was given was prednisone. After a few weeks I grew so weak, tired and in a lot of pain. I even had to take a medical leave from work(4 months).
I was told to expect the moon face, hunchback, the acne..However, my sypmptoms worsened to point I didn't want to eat(lost 30 lbs) could hardly move and had to be hospitalized(almost went on dialysis). They flushed me out for a week at the hospital and avoided dialysis.
Once out of the hospital I proceeded to keep the weight off, but the side effects just mounted. I had thrush in the mouth(the worst feeling), sleeplessness, I had every side effect listed and I mean all with the exception of hallucinations and depression. The miracle was that what I was expecting weight gain, moon face did not happen.
Around September my doctor started weaning me off prednisone b/c I told him I cant take it anymore. Wouldn't you know it the minute I started getting weaned off the medication I got the moon face and acne. I cant beleive how much acne I have and the moon face and extra chin that came along with it are not cute. In 3 days I gained 10lbs and feel like I'm gainiing everyday. This might bring on the depression that has yet to occur. Why is this happening now that I'm being weaned. I started at 80mg a day and now I'm down to 30mg and next week down to 20mg.
I know this drug did its job and I pray that I dont have to be on it at all once the weaning process is over, but this is hell. I really feel doctors should tell you everything that you can expect. I didnt know enough about this drug(I know there is the internet I should have used it) and had I known then what I know now I seriously might have asked for some alternatives. This drug may be a miracle in the medical community, but for those of us who have to take it, its hell. Does anyone know how long it will take for the moon face, acne, and weight gain to go away?

-- By mrfun4 | Reply | (1) replies | Private Message me

October 10th
2007
12:08 PM

I am 19 years old and I recently was taken off of it 2 years ago when I switched doctors. Prior to the switch I had been on it for 16 years. I prob have some of the worse side effects. Because it causes an increase in appetite I ate but I didn't eat all the time, and I ended up gaining over 100lbs. I have a black-brown ring around my neck and for the longest time I thought it was dirt that wouldn't come off so sometimes I scrubed my neck sometimes to the point that it was raw.I have bad acne on my back and its just horrible.I cry every single night because of the side effects.I just want to know if anyone on here can help me.

-- By tsmith07 | Reply | (2) replies | Private Message me

September 30th
2007
6:41 AM

I am 21 years old and was recently diagnosed with rheumatoid arthritis in my hands, fingers, and wrists. My doctor put my on 60 mg of prednisone at first and then had me slowly go down to 20 mg a day. I have since been trying to go off of it myself. I can't stand the side effects any longer. I have this constant charlie horse pain in my hips and legs, i am so hot and constantly flushed, i feel so depressed ( i am normally a happy all smiles kind of person ) i have done nothing but cry everyday for the past week because I just feel like so many people don't understand or believe anything I am saying. I thought maybe some of this was all in my head until I found this site. Is there any other medications out there that don't have all these terrible side effects? I feel as though the pain from the arthritis is far less worse than this.

-- By korannicole | Reply | (2) replies | Private Message me

September 26th
2007
9:35 PM

PLEASE REPLY! ok i wrote on this board about a month ago, and i was complaining about all the horrible side effects i was having.....however things have gotten much much worse since then, and i must admit that i have been bad. very bad. i am secretly winging myself off of the steroids b/c I cannot handle the depression and not being myself anymore... I've been on Prednisone for a year now and started winging myself from 15mg when I last wrote on here to now 10 mg... my hair is falling out in HUGE clumps, and I am NOT overexaggerating when I say I am going bald... does anyone know if this could be from tapering the drug, or would you say it is probably because of my condition possibly returning from tapering the drug too low???? I just want to know if IMMENSE hair loss is affiliated with steroids...I have not seen anyone else mention anything.

-- By marian0000 | Reply | (6) replies | Private Message me

September 17th
2007
8:07 AM

I must add my recent experience with Prednisone to this forum:

I have been suffering from constant lower back pain and a torn shoulder injury (rotator cuff) for the last several years. A week ago I got a slight case of Poison Ivy. My doctor gave me Prednisone - starting at 60 mgs. a day, tapering down to 10 over 12 days. I was unsure as to whether I wanted to be on a steroid , especially after reading some of the testimonies here at this forum. But I went ahead and took it. I must say this has been one of the most amazing experiences for me.
Not only did my Poison Ivy immediately begin to go away, but lo and behold, practically ALL my back pain and shoulder pain went away. I also found myself with this amazing positive mental attitude. I began to get up and enjoy my job everyday (normally I am somewhat depressed and stressed out). It was such a major change for the better - I feel like I have been living the resurrection!! Yet I know it is only due to absence of pain and increased energy brought on by the Prednisone. I feel like a happier, younger version of myself. Prednisone has even helped me sleep better! So, evidently, for some people, prednisone is a wonder-drug.
I did note a very slight manic edge at times, but never unmanageable and always very positive. As soon as I decrease the dose, the pain and inflammation in my back and shoulder starts to return. What a shame that this drug causes osteoporosis and other long-term affects. I wish I could stay on it forever!!

-- By andrew333 | Reply | (2) replies | Private Message me

September 12th
2007
7:59 PM

I am a 19-year-old female pre-med student who has been taking this nasty drug for exacly 1 year now.... The amount I am on continues to change, for my disease keeps returning and leaving remission. I finally get down to 10mg from 40mg, and have to go back up when symptoms return!!! This is SO discouraging. The worst part is, no one understands the physical and emotional agony this drug brings on. I'm 19 and feel like I'm 90. My body aches, my weight is constantly fluctuating, I bruise from simply being poked (being a clumsy person, I look like I am beat!!), my bones feel as if they are about to break, and I am SEVERELY despressed. Being in college and taking rigorous classes, this is just too much for me to handle anymore... My 5-year relationship with the love of my life/best friend is falling apart because of my horrible mood swings.. don't blame him for leaving. I feel as if this drug has ruined my life more than the disease itself...Does ANYONE know if one's body and mind returns to "normal" after FINALLY being off this drug??? I pray to God the answer is yes... I would appreciate someone's reply and/or insight, because my Dr. fails to tell me about ANY side effects until I mention something. PLEASE REPLY!!!

-- By marian0000 | Reply | (7) replies | Private Message me


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