February 27th
2008
5:40 AM
Stay away from Prednisone
My prayers to all of you who take these destructive "medications". here's my short story.
I had been diagnosed with Sarcoidosis back in 2003. My doctor gave me 60MG per day (three 20 MG tabs) for over six months, with the weening off period lasting another six. To make a long story shorter. I went through many of the same problems like, bloating in the face and body, rashes, a bump that looks like a wart--that still won't go away, and a continuing state of memory loss. I get baffled easy now. I also continue to go through mood swings.
But here's the kicker, I haven't taken Prednisone for over 3 years and I was trying to begin lifting weights. I thought I popped something in my arm, but the doctor says that I have "aseptic necrosis", that has developed in my left shoulder and soon to start in both sides of my hips. For those who don't want to "google" the term, basically parts of my shoulder and hip bones are not getting blood flow and are dying (necrosis).
With my memory loss, I am having difficulties performing at work and doing routine tasks at home. I did not think this "medication" would have affected me this much.
Prednisone needs to be on the banned list of medicines.
-- By kontra | Reply | (1) replies | Send Private Mail
November 7th
2007
7:32 PM
SORRY HAVEN'T TRIED IT YET CHECKING OUT WITH OTHER PEOPLE WHO HAVE TAKEN IT.COULD ANY ONE LET ME KNOW HOW IT WORKS FOR THEM? THANK YOU.WILL BE STARTING SOMETIME TOMORROW PLEASE LET ME KNOW THANK YOU
-- By sandpkny | Reply | (3) replies | Send Private Mail
November 2th
2007
1:34 AM
Hello EveryOne out there...OK OK....
Now Why have I been out of touch since Sept 14th.... 2007???
I have been VERY VERY ill.....
Y'See, I went to see this new Doctor (Quack) for continued pain in my chest (sternum) area....that I have been having trouble with all Summer. (Severe Costochondritis/Fibromyalgia) By Sept 14th, this Quack who claims to be a Doctor had given me this prescription for Prednisone pills (20 mg each)....with orders to take mega doses of this toxic poison in order to combat the pain I was suffering. I was so desperate to get out of pain that I went ahead and filled the prescription and started taking the pills that eventful Friday night. I made the fatal mistake of trusting this Doctor!!!
If I had any sense God gave green apples I would have researched this a little before taking this medicine!! I would have run like all heck in the opposite direction!
I had been taking these reccomended large doses for approx two weeks back then per Doctor 'Quack's' order.... I have been hooked after the first week....and now currently desperately trying to get off of it with only marginal success!!
I have been on this Prednisone crap for some 49 days, currently and desperately trying to get off of it....with terrible side effects!! I have experienced every side effect known to the Devil himself and even discovered some new ones that I never knew was possible!? Case in point! I can't sleep night after night without terrible withdrawals all night long!!! I am forced to contend with them every night here. Not to mention I fight the withdrawals all days long too. I have this inept doctor and I am sorry I even went to him in the first place...!
The withdrawals I am now getting are harder to deal with than the original chest pain itself!!! Not to mention even eating the so-called 'wrong' foods sets off even more withdrawals almost immediately. I am now extremely sensitive to light and the sun~ not to mention.....noise....and stress....
I am much sicker from this Quack Doctor's so-called "HELP" than I ever was before....
I don't mind saying his name and trying to steer everyone away from this jerk Doctor here in Las Vegas who takes advantage of people in pain when they are desperate by feeding them toxic poisons and passing the poison off as something harmless thats gonna help them??? Just ask me who he is and I will tell you. I have no qualms about it....
Bottom line is I have spent this last month trying to get off this crap and I just found out that the withdrawals may bother me up to a YEAR after I take my last dose of this crap poison!! I have been going thru H***!!! A nightmare I would LOVE to pass onto this Quack who pretends to be a doctor!
I am down to about 7.5 mg per day now from about 180 mg that he gave me originally Sept 14 2007. Believe me this was not easy thing for me to do. I went "Toxic" on this drug weeks ago and it has affected my ability to process, think and reason properly. I feel like part of my mind is now missing or went on permanent vacation!! Dizziness,feeling like I'm gonna pass out, Brain Fog and Mass Confusion is the order for the day~depending on the time of day???
"The side effects of prednisone include adrenal suppression, which can occur with periods of prednisone use to surpass seven days. Adrenal suppression refers to the body’s inability to synthesize natural corticosteroids, resulting in a dependency on the prednisone taken by the patient. This is why doctors do not recommend the cessation of prednisone when the patient has taken it for longer than seven days. They reduce the dose gradually over a few days in the case of short-term prednisone use, and over weeks or months in the case of long-term treatment. Stopping prednisone treatment abruptly can cause the life-threatening Addison’s disease, in which in the body no longer produces sufficient amounts of adrenal steroid hormones"
I want to SUE this Doctor for making me this sick!!!!!
SDR
GRRRRRRRRRrrrrr!!!!!!!
-- By lostris | Reply | (14) replies | Send Private Mail
September 7th
2007
10:37 PM
I was put on 10mg. Prednisone 5 times a day by my rheumatolgist. This past Wed. I had to go to my GP doctor because under my right armpit it was red & swollen 2 inches high and 5 inches across. I was in agony. He flipped when saw how much Prednisone I was taking. He said that is what caused my armpit problem. He could not drain my armpit because it was too hard. That was when I just went to pieces because I wanted some relief.He put me on antibiotics and pain meds. He noted a yellow spot in the corner of both eyes and amde an appt. with an optomolgist. He told me how to taper off of Prednisone and I will go back next week. It has been 2 days since that visit and here are my new problems: white bumps on my tongue, numb tongue and lips, pus sores in my nose,bloating, bright red spots on my thighs, bruises I can't explain, moonface, pain under my rib area, I could eat eat our house like a termite, not sleeping, sweating. My husband half expects me to grow a new leg or develop leposy or something. I had no idea a drug could do so much damage so quickly.Who knows what new side effect I can get tomorrow.
-- By veral | Reply | (1) replies | Send Private Mail
August 5th
2007
4:16 PM
I was a very healthy 23 yr old female. I cant believe that I finally found someone going thru almost what I am going thru. My name is Liane and My life changed on July 7th, 2007. I went to the hospital for frothy urine. They told me it was a UTI and gave me Levaquin for 7 days. I took it for only 5 days cuz ( I was allergic too) then were gonna start me on macrobid. Mean time my hands,face, and bottom half began to swell up. Me thinking it was from my period but this was different. I work in a jewelery store and once my rings that are a size 6 DID not fit at all I panicked. I had extremely bad back pain, high blood pressure. I did not feel same. On July 13th (Friday) I went to a hospital here in southern california and talked to a doctor and she said.."sweetie u don't have a UTI, I don't wanna scare u but I think that U have a Kidney Disease called Minimal Change Disease"!!!! WHAT!!!! Am I gonna die? She says no but come Monday u need to see a specialist and confirm. Now here is a Lasix pill to help take some of the water weight that u have gained away. Its already about 1:30am on Saturday the 14th. She says u will not sleep cuz u will be urinating all night. I said well anything to help me, i had went from a very healthy 5' 7" 155lbs woman, I worked out in the gym 5 days a week with my boyfriend who is a Police officer and bodybuilder for fun, so me swelling up and devastated me. I took the pill. and went to sleep. Nothing happened to me. That meant something was wrong. Later that day Saturday I felt BAD. My face kept swelling, blood pressure kept going up, heart racing. I went to E.R and told them I felt like I was gonna die, I think I have minimal change disease I need a specialist now. They admitted me for 5 days. My specialist came in and saved my life. I had a ultrasound and kidney biopsy and they confirmed what I already knew. I had Minimal change Disease. I ended up being allergic to Dilaudid, and compozine in the hospital. I was released on the 20th of july. and now began my treatments. 3 x's a day of Prednisone at 20mg each, simvastatin 20mg once a day for high cholesterol now, lasix 20mg once a day, and omeprazole 20mg once a day to prevent ulcers from the Prednisone., I hate the Prednisone. I broke out so much on my face. And its not pimples it bumps. I wake up every morning at 5a.m with nasty heart burn. then wake up every 2 hours after. Doctor told me to take all my meds at once and it helped a bit but still not completely. I too feel bloated in the mid section. I still suffer from edema in my legs down to my ankles. During the day gets worse but once I put my feet up and elevate them I'm OK. I have bad mood swings I don't know how my loved ones put up me. One minute I cry, 20 minutes I'm happy and wanna go out for a walk. This drug is gonna help me but then Do I really need to put myself thru this? But there is not other way. Just thought of sharing my story.
-- By lianerhymes1 | Reply | (2) replies | Send Private Mail
July 20th
2007
5:26 PM
I'm a 34 year old petite 110 lb female and have been on Prednisone for 7 weeks now for a kidney disease (Focal Segmental Glomerulosclerosis). The treatment is supposed to be 3-4 months to see if I go into remission. If not, then I'm "steroid resistant" and they will have to move to a more aggressive treatment (a type of chemo). So I'm praying that this prednisone works!!
The first 2 weeks were a peice of case, then I developed many side effects, but the following being the most troublesome:
- 2 weeks - Edema. I got really bad fluid retention in my lower body and was put on a diuretic. A few days later my heart started pounding so hard I thought it would pop right out of my chest. Well turns out I was totally dehydrated from the diuretic so I'm off that now but the edema seems to be under control anyway (following a low-sodium/low carb diet). At the same time as the edema my skin dried right up too, and I need to put moisturizer on all the time. Even when I bend over I feel the skin on my back stretching.
- 2 weeks - Bloating. Really bad bloating. I'm bloated constantly now. Eating a low sodium diet helps, but not much. At night I weigh 5 lbs more than I do in the morning. I have terrible gas (burping mostly) all of the time. Sometimes it looks like I'm 6 months pregnant! And I'm sure people think I am because as I mentioned I'm normally thin and now I have to wear looser clothing to hide my belly, which doesn't really work and just looks obvious.
- 3 weeks - Sore knees. It feels like there's something growing in between my kneecaps that make it very difficult to climb stairs and it feels spongy when I walk. I can not put any pressure on my knees, I can't squat down, bend to pick something up, kneel, anything. And it gets worse at night.
- 4 week - Moonface. And my face has been blowing up like a balloon ever since. As I sit here and type I can actually feel it throbbing and growing still. I've got fat on my neck under my chin now that actually feels like it's choking me if I sit hunched over. I'm finding the moonface very difficult to cope with. I do not like to look in the mirror any more. I feel like a candy apple.
- 4 weeks - Cramps. Terrible terrible hand and feet cramps. Sometimes if I'm using my hands to chop vegetables or write or even use a fork, my hand cramps up like a lobster claw. I try to use the other hand then the same thing. And then almost every day, my feet. First one, then the other. Excruitiating cramps that seem to go in 15 minute intervals that make it impossible to walk, stand, sit, anything.
- 4 weeks - Very moody and aggitated. I am usually very easy going, now i have patience for nothing. I will be in a good mood one minute, the next I feel like I can kill someone. My boyfirend and our dogs are being very patient with me... I just hope they know it's the drugs not me! I just don't seem to have any control over my emotions.
- 5 weeks - Extreme fatigue. I used to have lots of energy, especially at the beginning of my Prednisone journey. But now I'm just wasted all of the time. I walk to and from work and the last couple weeks I want to just lay down on the side of the road and have a nap as I walk home. I used to do pilates (as much as possible with the sore knees) but it's too hard now. And forget about any elliptical training or cycling. It's enough just to get to and from work and I'm just exhausted.
There are more issues and I could go on forever, but those are the most troublesome. I just try so hard to stay positive but it's very hard sometimes. I pray that this is working, and that it is not all for not. I can't wait to be off these drugs, and my heart goes out to each and every one of you enduring the same thing and pray that it works for your too.
Good luck everyone.
:)J
-- By jennyc | Reply | (4) replies | Send Private Mail
July 12th
2007
2:51 AM
I am a 39 year old woman who was on prednisone for 14 years as a regular med. for asthma. From the time I was 14 months until I was almost 15. I stopped taking it on my own when I was 14. I over heard the doctor tell my mother they wanted to start weening me off it because I would probably be sterile. But, it would take 6 months to ween me off. So I did it myself.I spent my entire 8th grade year in the hospital. After not taking it for awhile, my asthma actually improved and I also was able to go off the other med.I was on and now only have an inhaler when I need it.
I have the moon face, I was lucky and didn't get the barrel chest. But the lasting side effects are still there. I rarely sleep, I am still have nervesness. But the big one. I am now a Type 1 brittle diabetic and must wear an insulin pump. I go to the doctor an average of once to twice a week. I have more doctors than I know what to do with. I have had to have surgery done to my heart because of a murmur.
The doctors feel that the diabetes is from prolonged use of this med. and that it destroyed my pancreas. All it took was a cortizone shot and I went from nothing to this. I do have 2 children, I had them very young and I mean young. 23 & 21 years ago.I am sterile and never have been able to have more children.
I have had almost every side effect listed. Nausea, weight gain, insomnia, bloating, etc...
Taking myself off this med. like I did. Almost killed me...I don't remember my childhood other than living in the hospital and that was my childhood. I hated this med. I remembered everything and everyway it made me feel. I will not allow my family to use this when it is prescribed for them.
June 13th
2007
5:19 PM
Hi! I am a 36 year old female and have been on this HORRIBLE HORRIBLE drug (prednisone) for 2 1/2 years now..... Hopkins doctors still arent sure exactly what i have. My immune system is attacking my liver so to speak. My body is basically looking at my liver like it doesnt belong and is attacking it with large multiple lesions that is eating it away... the good thing is that it hasnt interupted the functioning of it yet but is leaving horrible scar tissue. I have been in and out of the hospital 13 times, have had just about every test imangable, 12 liver biopsies and they STILL have NO clue! They are leaning towards Church Straus desease and Wegners but the weird thing is i have half symptoms of both. The first year they had me on 80 mgs of prednisone a day which had seemed to put me in remission for about 4 months and then they came back even worse so i was put back on the prednisone, 80 mgs a day AGAIN along with 100 cc's of Methotrexate, another not so nice drug... i had EVERY SINGLE BAD SIDE EFFECT OF BOTH DRUGS!! This second time around was ALOT WORSE for some reason!!! My body DID NOT LIKE IT!! Nausea, hair loss, moon face, gained 40 pounds (and i was in great shape, worked out, i am 5'4 and was 110 pds!), EVERYTHING was swollen, legs, ankles, arms, neck, face, had the camel hump, fingers and especially my belly!!! UGH!!! Have bone, muscle, and SEVERE joint pain! Kaliedescope vision, dry eyes and then had mucus discharge (kindof like pinkeye), headaches, intestinal problems.... VERY CONSTIPATED and then the opposite!!! I literally felt as if i had turned into a man in my behind!!! Sorry to be so gross but thats how bad it was!!! Jaw problems, teeth and gums as well, skin sensitivity and have little bumps all over my skin (kindof like tiny little moles), itchy, broke out with acne and pretty much NEVER had more than 1 pimple a month, had facial hair (VERY DISGUSTING!!!! HAD IT WAXED EVERY WEEK!!!!) and then on top of all of that the swelling of my liver not to mention the PAIN! I was recently in the hospital again with 12 new lesions, pneumonia, and 104 fever. My doctors said the Methotrexate was the cause and i was having a bad reaction to it so they now have me on 100mgs per day of Azathiroprine. I am now finally down to a maintenance dose of 5 mgs of prednisone cause my body was starting to reject that as well. I thank god that i am now down to that dose!!!! It as only been 2 wks and the withdrawl symptoms are horrible worse then they were but i know what is to come =) loosing all this fluid and all of the HORRIBLE side effects i listed above. I will have to be on the maintenance dose of 5mgs the rest of my life and can live with that cause when my body gets back to somewhat normal i wont even notice that im on this CRAP!! I will be on the high dose of Azathiroprine for a few years and then on a maintenance dose of that as well for the rest of my life to keep whatever this is that i have under control.... the scary thing is is that they arent even sure that all of these meds will even work...... im a guinea pig..... The only thing that i am on out of all 25 pills/meds that i take everyday that works is my pain meds. Oh and i also forgot to mention that i had to be put on some "HEAD CASE" medication (thats what i call it =) ) for depression. Its a low dose but it does seem to help... I am terrified of what the future holds but continue to be strong and have an amazing support team... my fiance and family =) I dont even want to think about how i would be without them. I go back on the 25th of this month for my MRI so please who ever reads this keep me in your prayers as for all of you are in mine. I feel for each and everyone of you that has to endure this horrible drug everyday and i hope that everything works out you. =)
Sue =)
-- By sue36 | Reply | (5) replies | Send Private Mail
February 12th
2007
11:10 AM
The moon face and weight gain did not occur until week 4. But I started really drinking a lot of water - at least 100-120oz daily. This helped the moon face considerably, as well as start me on losing some of the extra weight. Be careful of sodium in the diet - that is the reason for the bloating. So - tons of water (try to get it in early in the day, that way you are not rushing to fit in all that water close to bedtime) and working out four times a week helps with the moon face and bloating. But I still can't get rid of obsessive thoughts - such as cleaning my house or finding a good price on lemons. I hope that goes away when I am off the Pred.
-- By forrealtor | Reply | (1) replies | Send Private Mail
October 4th
2006
7:46 PM
I HAD BEEN ON 80MGS. OF PREDNISONE FOR TREATMENT OF SEVERE SORIASIS. IT WORKED WONDERS FOR THE SKIN CONDITION. , I WAS SPEEDING MY BRAINS OUT , AND GOING 100 MILES PER HOUR. IT WAS SOMEWHAT EUPHORIC. I AM 45 YEARS OLD AND HAVE BEEN IN MENOPAUSE SINCE MY LAST CHILD WAS BORN 5 YEARS AGO. AFTER I TAPERED OFF THE PREDNISONE OVER A MONTH PERIOD... I STARTED TO HEMMORAGE. I HAD UNCONTROLLABLE VAGINAL BLEEDING, BLOATING , PAIN, MOOD SWINGS, DEPRESSION, ETC. THE BLEEDING DID FINALLY SUBSIDE AFTER BEING OFF THE DRUG FOR 10 DAYS. HOWEVER , NOW THE SKIN IS DETERIORATING, AND THE JOINT PAIN IS EXCRUCIATING. I CAN BARELY WALK. I AM A DANCE TEACHER, AND THIS IS BECOMING DEBILITATING. I ALSO HAVE A CANCER HISTORY, AND THYROID DISEASE. IT WAS AND IS ROUGH. I GUESS I HAVE A CHOICE BETWEEN HAVING HORRID, DISGUSTING SKIN ( AND UNABLE TO GET A PUBLIC JOB) AND BEING EMBARRASSED ALL THE TIME AND DEALING WITH THE VERY DIFFICULT SIDE AFFECTS OF THIS MEDICATION. I AM HOPING FOR A BETTER ALTERNATIVE. THE SUFFERRING IS UNBEARABLE. LIBBY B.
-- By ewilmotbishop | Reply | (1) replies | Send Private Mail
September 7th
2006
3:50 AM
I was on a prednisone pack for only 6 days. You taper highest dosage to lowest, with the first day at 6 pills and end with 1. I have had alot of side effects as well. Insomnia, bloating. Hungry as heck, thirsty.
I'm eating like I normally do and work out 4 days a week, but noticed a 4 lb. weight gain in less than a week. I won't use this drug again. It's hard enough to lose weight, especially when your doing every thing right. It's got to be the prednisone. I know I just want to eat all the time. And go to bed with my stomach growling every night stinks.
June 12th
2006
10:56 AM
I was on 40 mg a day and then after 5 or 6 days gradually reduced dosage as prescribed by my Dr. I kept breaking out with hives and the Dr. then put me on Prednisone. It took care of the hives, however, I have had awful side affects. Nights sweats, severe anxiety, severe bloating in my stomach, can't sleep, increased appetite, dizziness, moody and depressed. I hope I never have to take this medicine again.
-- By lllk913 | Reply | Send Private Mail
September 28th
2005
8:00 AM
Hi... I was glad to find this site..I have been on and off prednisone for 3 mos....mostly ON..but now I have been off it for a week....I had a terrible hive reaction to 'something' in June and the only thing to suppress it has been prednisone...needless to say, I didn't sleep either...I averaged about 4 hours/night til they put me on Dixopen (sp?)...definitely helped with the sleeping as well as the hives..I tried the Diurex for the bloating and weight gain too...it helped very little...be careful around the grapefruit daily (I did that 2 different times in the past and it caused a bladder infection...) I am going to try the Cranberry juice though!...I am now off the Prednisone for a week and really watching my calorie intake...so maybe the Cranberry juice will speed things up and get me back to my 'normal' weight...do you put the vinegar 'in' anything...yuk by itself...I sure hope to get my puffy cheeks down as well...any updates?
-- By cjmom | Reply | Send Private Mail
September 12th
2005
7:26 PM
Thank you all for all your posts. They help me feel like I am not alone in all this junk. I have been on Prednisone since mid July when I was diagnosed with Dermatomyositis. Even with all the side effects, primarily the weight gain and bloating, I feel better than I did in June. I could hardly walk. My sleeping is actually better now than it was with the pain of DM, and I have always been hypoglycemic so the elevation in blood sugar has helped me.
With that said, I have always been an extremely healthy and active person so the weight gain is killing me. I also prefer to be holistic. My biggest fear has always been long term medication, but here I am. My pred. level was just increased 2 weeks ago to 60mg / day. Within one week my face has become very round, and I look 4 months pregnant. I am very hopeful that someone will find that miracle diet/exercise regime to help balance this side effect. I work out at least 6 days per week. I eat healthy, but have recently gone back to a yeast & sugar free diet. All this with no success. I just started taking Methotrexate 2 weeks ago so I hope maybe it will give me the success Liz has seen in that area.
Other side effects: I am very happy to have my energy level back, but my strength isn't back so I get very frustrated and irritable. I have issues with blurred vision. And I have trouble concentrating. My thoughts often wonder while I am in conversation.
I hold you all in my prayers and hope that you will find ease as you go through this challenge. If we can all stay positive we'll get through it.
Best Wishes,
Elizabeth
June 9th
2005
12:12 AM
moon face, buffalo hump, bloating, stomach distention, heart burn, gassy feeling, cramping, increased/decreased appetite, night sweats, doube chin, hair growth, back aches, insomnia, moodiness, depression(and im a happy person most the time) mind racing contantly, WEIGHT GAIN!!!!!!!!! (40 lbs in 2 months or less) that i dont need. oh and these ugly purplish striations on my legs and stomach (look like stretch marks only purple and are near veins and are vertical)... hope they go away cause i'm self conscious of my body and am hoping to get the old me back so i can wear a bikini again......... while i'm young
-- By melissaann | Reply | Send Private Mail
May 26th
2005
11:20 PM
facial mooning , bloating , tingling in arms and feet, moody some days, cammel hump, weight gain which has stabalized but did gain aprox. 30 lbs. first few months. I've weaned down to 15 mgs from 50 mgs a day I've been on it for for 7 months. Every 2 weeks i go down 5 mgs. untill i get to 10mgs then I will go down 2 1/2 mgs. every 2 weeks untill I'm done. The side effects are still strong How long does it take to feel relief from them??? Does the hump go away??
-- By gress1 | Reply | Send Private Mail
February 7th
2005
10:20 PM
Severe diarrhea and bloating.
Frightened of this medicine.
February 7th
2005
2:02 PM
i am also a diabetic,I was given prednisone for itp started at 100 mg am now at present weaned down to 5 mgs every day still have 3 months on this drug the devil created, moon face bloating, hair loss depresson, anxiety etc
-- By hanfords | Reply | Send Private Mail
December 12th
2004
7:09 PM
I am 29 years old and just had my second transplant. I started on a dose of 70 mg a day and tapered down to 5mg a day during one month. I still have side effects of moon face, swelling and bloating in my stomach. I was wondering how long it takes for the medication to leave your system. I would appreciate anyone who has a similar experience to email me back- thanks
-- By trpage | Reply | Send Private Mail
September 30th
2004
2:36 AM
My asthma got out of control. First the Dr. put me on a 6 day
cycle of prednisone, still sick, then increased to 20 day, 30 day, 40 day then 60 a day...still can't breath.. went to hospital after 2 weeks, admitted and given intervenous 60 mg. every
8 hours.. the side effects are killing me..terrible bloating, i can't sleep more then 5 hours a night, i am depressed, yelling at my 7 year old daughter, unbearable muscle pain
in my knees to my ankles. hand and feet cramping rendering
me immobile....someone help me!!!!
July 4th
2004
1:31 PM
Started with 80 mg daily to treat kidney disease. Now down to 10 mg daily. Even though dosage is decreasing, side effects are increasing! Moon face, bloating of abdomen, thirsty, craving sweets, acute anxiety, paranoia, confusion, enhanced sensory perception and alertness but unable to do anything - totally inactive!
-- By heffbee | Reply | Send Private Mail
June 21th
2004
11:13 AM
Was on 20mg for 7 days, and then supposed to be on 10mg for 7 days to decrease inflammation in my sinuses. I am quitting today day 12. Prior to going on Prednisone, I had just lost 10 lbs. Now I think I have gained it back, and I don't think that I was eatting alot, although I was hungry alot of the time. Hopefully this is water retention and bloating. Does anyone know how long it takes to have the weight come off after going off the drug?
What really make me mad is that I think the doctor prescribed this as a "catch-all" just in case med. I don't think it was indicated at all. My ailment was sudden loss of taste and smell following a flu-like virus. The reading that I have done about this, indicates to me that there is no known remedy for viral damage to the olfactory gland. Prednisone would be indicated for sinusitus or something of that nature, but for nerve damage, there will be either spontaneous regeneration.....or not. So now I can't smell or taste and I have to go on a diet besides. great. Please let me know if the weight is water retention.....given that I wasn't eatting like a pig.
June 8th
2004
12:31 AM
I have had bloating, aching legs, feeeling of pressure in the eyes, spangly vision, blurring of vision - and I think that has contributed to my first ever car accident today after 17 years without an accident (my 2 year old was in the car at the time!!!!!), depression (and I am soooo angry that none of this was mentioned when I ASKED what the side effects were - I have battled with depression for many years and have not come this far just to have a drug take it away from me!) I have also battled with weight gain over the last 18 months and lost 60lbs. I asked about weight gain and was told it would just be an increase in appetite. I have honestly watched what I have eaten and gained 6lbs in 3 days!!!!!!!!!!!! Also mood swings. And why am I on it? I went to an ENT doc with a fluttering in my ear that has been annoying me for about 2 or 3 months. On further investigation, he said I had a lot of mucus in one of my nasal passages and that may well be giving me the fluttering sensation in my ear. Compared to the other complaints for which this drug is prescribed, I'd say it was pretty minor. I CANNOT BELIEVE HE PRESCRIBED THIS FOR ME. I feel dreadful and am facing a fine or day in court for a traffic accident that I feel is related to the use of this drug. I am also petrified that it will take me a long time to reverse the effects of this drug. I will be calling the doctor to get me off this drug first thing this morning...he even made the restlessness/mania sound positive...'some people report a feeling of energy and get their attic cleaned out...' What about screwing up my body??? I am scared. If anyone can help me feel less scared, I would appreciate it.
-- By sjh99 | Reply | Send Private Mail
May 30th
2004
2:44 AM
Have tapered from 40 mg to 10 overnight in order to have a test for my thyroid. This is causing severe itching all over my body. Other side effects: weight gain (6 lbs in 5 days), bloating in stomach, moon face, sleeplessness, anxiety. I just want to be normal again! I'm taking it to combat Graves Eye Disease.
-- By samlab25 | Reply | Send Private Mail
May 11th
2004
7:50 PM
I have Ulcerative Colitis. Took prednisone for 4 weeks. I experienced acne on my face, back, and chest, moon face, sleeplessness, bloating in my stomach, increased appetite, sweating at night. I gained 15 lbs in two weeks. I've been off of it now for about a week and a half and have lost some weight but my face is still round and I still have the acne. I don't sweat at night anymore and am able to sleep through the night now. I was wondering if anyone knew when the acne and the round face would go away?
-- By dmw4bd | Reply | Send Private Mail
February 6th
2004
1:22 PM
I am a 41 year old female who is diagnosed with severe adult onset asthma. I am on 40 mg per day. My peak flows avereage 50 which is very low considering you should be breathing at around 350. Has anyone used this medication for asthma and has it helped? I have already after 4 days experienced bloating, headaches, and a feeling of depression.
-- By dicow | Reply | Send Private Mail
January 27th
2004
6:04 AM
I'm a 25 year old guy who was diagnosed with IBD- Ulcerative Colitis right before Christmas. Started out on 40mg prednisone and now im down to 20mg (get to drop to 17.5 tomorrow!). At first the side effects were anxiousness, sleeplessness, and an insane hunger. Now those have died down for the most part, but I have gained 20 pounds (which isn't a huge deal as I lost about that in the hospital), my face is much fuller, my stomach is always bloated, increased acne, and increased facial hair growth. I will be on prednisone at some dosage through april...so im really hopeful the weight gain/bloating will decrease as i lower the dosage. I would be interested in talking to others who have lived through this or are currently in a similar situation...******
-- By jbelllion | Reply | Send Private Mail
January 16th
2004
4:57 PM
I have been on prednisone taper for about five months, starting at 40 mg for six weeks, and then tapering to 30 mg for six weeks, 20 for six weeks, and I am now down to 15 mg for macrodantin induced pulmonary fibrosis. I have had weight gain, bloating moon face, muscle cramping, hair loss, and mood swings. I will be glad to get off this drug, although it has helped me a lot. I also have hypersensitivity pneumonitis, and it does not help much for that. I will just have to move out of the area because I am very allergic to something and cannot find out what it is. The water retention and the moof face are the hardest to take. I also have had back pain since being on this, and I don't know for sure this is a side effect or not. I have heard of others who have had this and when they stopped the prednisone, their back pain went away. I will let you know when I am off in April.
-- By schnauzermom | Reply | Send Private Mail
January 15th
2004
2:08 PM
I am 16 years old and I am taking 60 mg of prednisone per
day. I have a kidney disease and that is why I have to take it. I have experienced weight gain, moon face, bloating, easy bruising, and hunger all the time. I would not recomend this medicine unless your illness is life threatning. If anyone would like to talk about it, please email me. Thanks
December 18th
2003
11:01 AM
bloating and weight gain...fortunately only occassional heartburn, sadness hits suddenly (again not often nor for any long period), frequent urination or sensation of urgency,
am at the moment decreasing dosage 1mg a week.
December 11th
2003
2:12 PM
I started to feel much better 3 hrs after I started taking 30mg of prednisone. I have had fevers, horrible body aches and an ugly purple, blistery rash on my hands and knees. I do however have the bloating and gastric distension also. I am trying to keep exercising and eat fruit and vegetables. The gastric distress is nothing compared to what I had had over the last year.
-- By kaiwerder | Reply | Send Private Mail
September 22th
2003
5:03 PM
Severe gastric reaction/bloating in stomach.Lots of discomfort in area of stomach and throat. Was on it for 12 days.
-- By melindatriplett | Reply | Send Private Mail
May 19th
2003
4:20 PM
Swelling and Bloating along with increased appetite and weight gain.
-- By tbash4 | Reply | Send Private Mail
This registry is a place to share positive or negative side effects of using PredniSONE. If you directly experienced a side effect while using PredniSONE, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
-- Please see our disclaimer
March 12th
2008
2:43 AM
I was on Prednisone for 8 days because of a sinus headache that wouldn't go away. I was also put on amoxicillin for a possible sinus headache. I started on 60 mg for 2 days and than 40mg for 2 days , 20 mg for days and last 10mg for 2 days. The first day I took my headache became 10 times worse and I considered going to the ER. The second day I was suffering from muscle fatigue in my legs and my thighs burned. It also triggered my sciatica pain and pelvic pain caused by ovarian cysts and ovarian tumor. I believe it was the bloating that put more pressure on the sciatica and the cysts that caused the pain. It took a couple of weeks for the sciatica pain to subside, never really got rid of the pelvic pain. I am never ever taking Prednisone again, it has way too many side effects. Also, I think it caused a yeast infection.
-- By mandrvar | Reply | Send Private Mail