August 5th
2009
10:27 PM
I was on prednisone for 1 year for chronic pericarditis, finally weaned off and no problem with my heart since. It now been 5 month and I now have chronic shoulder and foot pain, I've read that it can take up to a year for your body to adjust and produce the correct levels of cortisone, I'm taking voltaren when the pain is too much, I feel like a 75 year old in the morning and I'm only 48. I feel so sorry for everyone who has had issues as well.
-- By heart4life | Reply | (1) replies | Private Message me
June 19th
2009
12:53 AM
I had a cortisone injection into my left knee on Friday, June 5th and immediately started to react. Within an hour, I had extreme redness and heat in my face, neck and upper chest. Wheezing, hives in throat and mouth and behind my ears. Extreme headache that came on suddenly and started in the back of my head and stretched to the front. Dizziness, chest discomfort. I went to the ER and was given a nebulizer treatment, benadryl IV and prednisone because the doctors at the ER felt that I must have had an allergic reaction to some medication that was mixed with the cortisone injection, because they said that to be allergic to cortisone is very rare. About 20 minutes after they gave me 60mg of oral prednisone, they started my benadryl IV. I felt such a hot rush to my face, my ears were burning. Eventually, the reaction calmed down and they sent me home with a prednisone taper and benadryl every 4 to 6 hrs. Sunday morning, I took 60mg of the prednisone and within 20 minutes I knew that I was in trouble so I took 50mg of benadryl and on the advice of my doctor, called an ambulance. In the ambulance, I was given oxygen, a nebulizer and more benadryl IV. After that morning, I knew that my problem was the steroid. I hadn't had any sleep since Thursday, I had been nauseous ands been battling chest discomfort and a very bad headache. I spoke with my doctor on Monday and he wanted me to take Atarax,25mg, every 3 to 4 hours. I saw him on Tuesday and I went to an allergist on Wednesday. She started me on 50 mg of zyrtec twica a day and 25mg of Atarax at night to see if this would help the reaction that I continue to have. She said that it could be several weeks, at least, that I will continue to react, until the injectable steroid is out of my system. It had been 13 days, and Im still reacting.
-- By pegasus5652 | Reply | (2) replies | Private Message me
March 28th
2009
1:09 AM
A few years back I severely injured my back. As part of my treatment my doctor gave me prednisone. My joints, especially my knees hurt beyond belief. I even had go to my parents house because I couldn't move, it hurt too much. I called my doctor and you know what he told me?!?! it was all in my head.He accused me of trying to get pain pills from him. The joint pain got so bad that I had to be hospitalized. You know what they told me at the hospital. I was having a allergic reaction to prednisone. No S***t!??! anyway, since that time I have not taken prednisone. My concern now is that my doctor wants me to get a cortisone injection. . . I am scared I would get the same reaction. from the research I have done so far, it looks like it is from the same family. Does anybody know?
Thanks
B.
January 15th
2009
2:54 PM
I have been weaning off Prednisone for sometime, from 50mg down to 5mg in two week steps, 5mg at a time. I've had quite a few of the physical side effects of Prednisone, though none so severe that I would have considered not taking the drug, as it is helping the neuropathy that it was described for. When I hit the 5mg dose, I really seemed to be having trouble with my mental state. I seemed to switch back and forth from knowing what was going on to wondering if I was starting to go insane or losing touch with reality. Hard one to explain. It seems to occur later in the day when I am fairly tired. Back on 10 mg for the last three days and seem to be tired but not so mentally confused. Don't know if this is all from the Prednisone, though. Has anyone out there had any seemingly similar mental things happen on this drug. Thanks in advance for answering if you have had these experiences, they are scary and am hoping that it is the drug and not something else.
-- By roberto | Reply | (4) replies | Private Message me
January 1th
2009
9:26 PM
I was placed on Pred. in November for vasculitis. I was given 20mg for about 7 days, then cortisone for several days, with great results. Then the vasculitis came back, to nip it in the bud, the doctor gave me 10 mg of Pred. which I took for 5 days, no step down. Now I have a very irritated tongue... red, inflamed, hard to eat, burns constantly. This is the only new med I have taken in months, so it has to be the Pred.
-- By tlt | Reply | (1) replies | Private Message me
August 25th
2008
1:44 PM
I was prescribed Prednisone along with an H2 Blocker and an Antihistamine for a severe chemical reaction to using old lotion in a tanning bed. I only laid 2x, but I am severely paying for it now. I was only prescribed Prednisone for a 9 day treatment. By the 3rd day I had the acne. I suffered with Acne all of my life until I was 18 (I am 27 now) ... and haven't looked back at that terrible part of my life since... well, now I am faced to stare right back at it. Literally. I have only been off of the prednisone for 2 days, but I can not WAIT to get my life back. If I could take back the last 2 weeks over something so stupid and cosmetic as tanning, I certainly would. I have never had any previous problems with any of this, and this is the first time I have really had an allergic reaction to anything.... typically, Benadryl would have cured me. Although this time incurable with Benadryl and Cortisone, I regret the Prednisone. Severely. I hope this goes away within at least three weeks.. as my husband is coming home from Iraq and that is not the welcome home I want him to have (even if he is much less superficial about it then I am). Sigh.
-- By sbouvy81 | Reply | (1) replies | Private Message me
April 23th
2008
5:24 PM
Hi all,
My first time on this site, it's quite interesting to see how people have very similar side effects. My case is I fought with a Poison Ivy and lost, my left arm shows the battle scars. Before going to the doctor, I tried Calamine, Caladryl, Cort Aide, Ivarest, Aveeno Oat Meal Baths & Tee Tree Oil. All failed to help, so off to my doc I went. After what I told him I tried using, he told me to stop. He noted those things do nothing to help Poison Ivy rashes to go away, he prescribed for me to take 20mg of Prednisone 3x a day for 4 days, then knock it down to 2x for 4 days and then 1x for 4 days. He also prescribed Cortisone Cream and to buy OTC Doneboro to soak my arm, it smells just like vinegar..I wonder! I have been taking Prednisone since Monday, so far the only side effects that have shown up is Insomnia and coughing. I do have A LOT more energy than I used to have, my job is enjoying my spitfire mode. The question is, what will happen once I am off this stuff? I've read and heard a lot of nasty things about this drug and I guess I will find out in another 9 more days, I've never been on Prednisone before, I do watch for changes in my body. Making sure I am not growing a beard or mustache, that my boobs don't expand (even though it would make my husband VERY happy). I am sorry to see many on here are having a bad time with this, maybe some of you should get a second opinion. Some doctors today are babied by pharmaceutical companies to push drugs, with some issues some of you have you may want to research your health problems more. Never take the word of your doctor as concrete, they are human too and make mistakes. I believed one fertility doctor until I researched my condition to find out I would never be able to have children, they milked my health plan until I faced them with my findings of medical research sites and online articles by universities. Never again! Fool me once, shame on you, fool me twice, shame on me. Don't be fooled, research for yourself. I will keep you posted as to my next 9 day countdown.
Alison
-- By alison1960 | Reply | (1) replies | Private Message me
April 14th
2008
2:59 AM
I was put on Prednisonsone for Uveitis, inflammation of the eye. He started me on 20mg at 9 pills a day, then each week it was lowered to 6 pills then now i'm on 3 pills and then next week it will be 1 1/2 pill and i'll be off. I got the puffy face, my feet swelled, everytime i hate my stomach bloated and hurt, my face and neck turns red, i stayed hungry although i fought the temptation of eating for not wanting to gain a lot of weight, which I don't think I've gained any. But now I wake up in the middle of the night and severe knee pain, it feels like my knees they are in some kind of device that is crushing my bones they hurt so bad. i caught a bad cough and it's been around now for about 2 weeks and won't go away, i told the nurse about it and she says, i probably just got what everyone else has gotten, just a bad cough, well what's if it's some kind of infection? I look like a chipmunk, my face is so puffy. When i get off these prednisone in another week I WON'T BE going back on them, no matter what the case. I'm in more pain being on them and have more side effects while on them than the problem i was having with uveitis. I think some co workers thank I'm over reacting, but they're not here they don't see all the pain and frustration i'm going through while on this drug. The leg pain just started this weekend and i Know i can't deal with waking up everynight like this in severe pain. Everyone just makes me feel like i'm over reactin and it's nice to know that somebody out there is going through the same thing. Any comments will be great.
-- By tonyas | Reply | (13) replies | Private Message me
April 6th
2008
7:07 PM
I was on a Prednisone taper for 7 days (bronchitis). I have been off for 16 days now. I am still suffering from BAD headaches, head pressure and dizziness (also racing heart) - off and on??? Does anyone know how long it takes to get this stuff out of your system? My first day after finishing it my headache and dizziness got so severe that I threw up 7 times over the next 24 hours?
Is it something that I am eating or drinking that is 'reactiviting' the side effects of the Prednisone? I hate this.
Thank you.
Vanessa
-- By vanessa74 | Reply | (3) replies | Private Message me
February 29th
2008
2:18 PM
Are you aware about short and long term side effects of this Devil's drug??? Of course, everybody reacts differently while take or withdraw. But there are high number of people who react terribly bad!!! Doctors do not want to recognize and discuss this. They just keep silent... Do you know exactly how Prednisone works??? Nobody knows this for sure, even doctors!!! From my personal experience, and despite gradual withdrawal, I developed extremely high blood pressure, weakness, panic attacks, depression! Practically it ruined my normal life! Doctors have no clue how to deal with its devastating side effects. Steroids are not selective. When you take a steroid, the drug infiltrates the nucleus of every single one OF YOUR CELLS AND STARTS MONKEYING AROUND WITH GENES IT FINDS THERE!!! It probably plays with hundreds of genes. And just a small number of these genes control the pain and inflammation associated with inflammatory diseases, so steroids turn many of these genes off which is good thing. However, because steroids are not selective, they also regulate the genes that control kidney, liver, BRAIN, and HEART function - which is not good thing!!! It is likely that steroid treatment plays with other genes, too, including those we do not know about a lot right now...So, Prednisone pervades the entire body, which increases the likelihood of short-term side effects and long-term DAMAGE. My advice is: THINK TWICE BEFORE TAKING PREDNISONE!!!
-- By fatcat | Reply | (7) replies | Private Message me
January 27th
2008
3:56 PM
I don't have a new side affect with Prednisone but just want to share my feelings. I was diagnosed with Temporal Arthritis since last July 2007. I started taking 60 mg of Prednisone for 1 month. Didn't notice the side affects then. Weaned myself off through my doctor's instructions. But relapse occurred when I was only on 2 daily. With Temporal Arthritis, you get delibating and horrendous head pain which is caused due to inflammation of the main artery in the temple. I am back to 3 daily.
Besides my moon face, I am bigger. I really don't have a lot of the other side affects you all talk about. I am sorry you all have to go through that.
My depression is better. My sleep is horrible. Now I am going to a sleep study to see if I have Sleep Apnea.
I consider Prednisone a wonder drug. Although the side affects are horrible, I have to admit, I feel much better, most of the time. I do have inflammation in the neck. Not sure if that is pred or temporal arthritis, but am seeing a rheumatologist for that.
Teena
-- By tpace1954 | Reply | (4) replies | Private Message me
January 14th
2008
9:32 AM
Hi!
I have ulcerative Colitis. I had a bad flare up since Thanksgiving 07.I have been on Prednisone since the beginning of Dec.07. The first 3 days it was giving to me by IV every 6 hrs.I was hospitalized due to tremendous blood lost. After this my doctor put me on 60 MG a day. 6 pills of Asacol and I also was on ennama with Cortisone which totally almost killed me. The side effects were sooooooooooooo bad,let say I had them all.Right now I'm dealing with the side effects of the evil Pill " Prednisone" Moon face and this awful bloating in my upper abdomen, tiredness, no energies, heavy legs. It makes it really hard for me to get out & around.I hope my doctor will get me off this Prednisone. Not only messes it up your normal living no it also makes you look like a ugly bulldog! I hate it!
October 19th
2007
5:29 AM
In June I found out I had actue renal failure. One of the many medications I was given was prednisone. After a few weeks I grew so weak, tired and in a lot of pain. I even had to take a medical leave from work(4 months).
I was told to expect the moon face, hunchback, the acne..However, my sypmptoms worsened to point I didn't want to eat(lost 30 lbs) could hardly move and had to be hospitalized(almost went on dialysis). They flushed me out for a week at the hospital and avoided dialysis.
Once out of the hospital I proceeded to keep the weight off, but the side effects just mounted. I had thrush in the mouth(the worst feeling), sleeplessness, I had every side effect listed and I mean all with the exception of hallucinations and depression. The miracle was that what I was expecting weight gain, moon face did not happen.
Around September my doctor started weaning me off prednisone b/c I told him I cant take it anymore. Wouldn't you know it the minute I started getting weaned off the medication I got the moon face and acne. I cant beleive how much acne I have and the moon face and extra chin that came along with it are not cute. In 3 days I gained 10lbs and feel like I'm gainiing everyday. This might bring on the depression that has yet to occur. Why is this happening now that I'm being weaned. I started at 80mg a day and now I'm down to 30mg and next week down to 20mg.
I know this drug did its job and I pray that I dont have to be on it at all once the weaning process is over, but this is hell. I really feel doctors should tell you everything that you can expect. I didnt know enough about this drug(I know there is the internet I should have used it) and had I known then what I know now I seriously might have asked for some alternatives. This drug may be a miracle in the medical community, but for those of us who have to take it, its hell. Does anyone know how long it will take for the moon face, acne, and weight gain to go away?
October 10th
2007
12:08 PM
I am 19 years old and I recently was taken off of it 2 years ago when I switched doctors. Prior to the switch I had been on it for 16 years. I prob have some of the worse side effects. Because it causes an increase in appetite I ate but I didn't eat all the time, and I ended up gaining over 100lbs. I have a black-brown ring around my neck and for the longest time I thought it was dirt that wouldn't come off so sometimes I scrubed my neck sometimes to the point that it was raw.I have bad acne on my back and its just horrible.I cry every single night because of the side effects.I just want to know if anyone on here can help me.
-- By tsmith07 | Reply | (2) replies | Private Message me
October 2th
2007
12:08 PM
I'm a 37 year old female and have severe asthma and allergies and have used pregnisone on and off for 30 years. I believe I am the poster child for the long term side effects. My immune system is shot to the point that my normal medicines for asthma (ventolin, advair) and allergies (tylenol sinus, claritan, visine A) and ezcema (elidel, hydrocortisone, etc. - - NOTHING works!
In the past 6 months, I have developed various infections that the doctors have not been able to identify. My eyes are swollen and red with large amount of white/yellow secretions. Vaginal secretions. Face swollen. Skilled covered in a rash with ezcema out of control. Sharp pains in my back and stomach. Constant asthma. Abnormal hair growth. It is to the point that it is impossible to function and each doctor just wants to prescribe more pregnisone. I feel as if my body is a walking time bomb and it is so full of all the cortisone from over the years and has just decided no more.
I admit that I too readily believed in the doctors when they would rapidly prescribe the pregnisone. Only now am I paying attention to the long term side effects.
Has anyone had tests done to test their immune system and other organs for damage? Thanks and best to our pregnisone club.
-- By jmanes | Reply | (4) replies | Private Message me
September 30th
2007
6:41 AM
I am 21 years old and was recently diagnosed with rheumatoid arthritis in my hands, fingers, and wrists. My doctor put my on 60 mg of prednisone at first and then had me slowly go down to 20 mg a day. I have since been trying to go off of it myself. I can't stand the side effects any longer. I have this constant charlie horse pain in my hips and legs, i am so hot and constantly flushed, i feel so depressed ( i am normally a happy all smiles kind of person ) i have done nothing but cry everyday for the past week because I just feel like so many people don't understand or believe anything I am saying. I thought maybe some of this was all in my head until I found this site. Is there any other medications out there that don't have all these terrible side effects? I feel as though the pain from the arthritis is far less worse than this.
-- By korannicole | Reply | (2) replies | Private Message me
September 26th
2007
9:35 PM
PLEASE REPLY! ok i wrote on this board about a month ago, and i was complaining about all the horrible side effects i was having.....however things have gotten much much worse since then, and i must admit that i have been bad. very bad. i am secretly winging myself off of the steroids b/c I cannot handle the depression and not being myself anymore... I've been on Prednisone for a year now and started winging myself from 15mg when I last wrote on here to now 10 mg... my hair is falling out in HUGE clumps, and I am NOT overexaggerating when I say I am going bald... does anyone know if this could be from tapering the drug, or would you say it is probably because of my condition possibly returning from tapering the drug too low???? I just want to know if IMMENSE hair loss is affiliated with steroids...I have not seen anyone else mention anything.
-- By marian0000 | Reply | (6) replies | Private Message me
September 26th
2007
6:45 PM
I am a 34 year old male. I have been on 80mg of Prednisone 7 days a week for 2 months now. I will be getting my dosage lowered to 60mg tomorrow but am having a difficult time dealing with the Moon face, eye bags, acne, and sleepless nights. I go to the gym 4 times a week and am in shape other than this freak fake head it looks like I have now. Has anyone been able to find a way to make the effects not so noticable..as in diurex or diet pills. I would like to try anything but want to be safe at the same time. Thanks for any help and god bless. David
-- By graywolf1 | Reply | (5) replies | Private Message me
September 25th
2007
5:19 PM
I've took a very high dosage of prednisone for 6 years, from the age of ten years old. 17 years later, i still have an extreme moon face. The only thing that has ever helped me was a facial exerciser (a microcurrent devise), but those results can be hard an expensive to maintain. As anyone else ever had a moon face that wouldnt go away even after stopping their prednisone usage after a long period of time? Does anyone have any advice for me, on how i can finally get rid of this horrible extreme moonface? my face and all my facial features are swollen, including my eyelids, this has been goin on for years. I also have suffered for years from severe chronic diarrhea from an illeostomy reversal. Please help me.
-- By ezabbellla | Reply | (2) replies | Private Message me
September 23th
2007
9:21 PM
I was diagnosed with Crohn's Disease in June and had to take 60mg/day for about a month. Then my doctor tapered me off it so I took 40mg/day for a week, then 30 for a week, then 20, then 10. I stopped taking Prednisone altogether about three weeks ago but have noticed little change in my weight. I gained 17 pounds over the two months I was taking Prednisone and my doctor said it should 'melt away' quickly but it has yet to do so. I've lost a little of the moon-face so that's good but the extra weight is driving me crazy and nothing I do seems to help me lose it. Anyone hava any idea how long it will take to get back to normal?
-- By rachel_08 | Reply | (1) replies | Private Message me
September 15th
2007
3:47 PM
My Mother was diagnosed with Rheumatoid arthritis 30 years ago. She has been on prednisone at low doses since then. About 3 years ago she started imagining things, and hallusinations. About 2 years ago her prednisone dose went up to 60mg a day due to a stroke of the optic eye nerve. She has since been tapering down, now at 15mg a day. But tapering down makes her arthritis more painful. She has developed diabetes, loss of sleep, loss of apetite, loss of muscle tone. When she gets bumped, it's a big opened gash, rather than just a bruise. With the higher dose she was more moody & would get angry easier. The hallucinations & paranoia continue & are making me more & more concerned. I haven't read about this in any of the stories. Has anyone else experienced this side effect? I spoke with her Rheumatologist who suggest a psychiatrist to prescribe anti-psychotic drugs. She's already on 11 pills a day, does she need another?
Please let me know if anyone has experienced this as well.
Thank you.
September 15th
2007
2:14 PM
I am 65, suufering from ulcerate colitis. Imuran kills my lever, I had to take a strong dose of prednisone.up to 60 mg. now after ten days I am on 30 mg.
it helps for colitis but I am not sleeping. I took sleeping pills, I can sleep about 2-3 hours in 24h.
Who could help me to be able to sleep again ? What kaind of sleeping pills or tranquilisers are recommended ?
Thank for answering also directly to my Email ******
Thank you.
-- By politschki | Reply | (1) replies | Private Message me
September 13th
2007
9:47 AM
Hi, I was on Prednisone for a little over a month for Crohn's disease. I had minor side effects while taking it: couldn't sleep, no patience, dehydrated, dry eyes. It is the side effects from AFTER stopping prednisone that concern me. I''ve been off Prednisone for 3 weeks and I think I am losing my hair and getting acne-that I didn't have before or during taking Prednisone. Anyone experience side effects that started after stopping the med?
-- By strowmc | Reply | (5) replies | Private Message me
September 12th
2007
7:59 PM
I am a 19-year-old female pre-med student who has been taking this nasty drug for exacly 1 year now.... The amount I am on continues to change, for my disease keeps returning and leaving remission. I finally get down to 10mg from 40mg, and have to go back up when symptoms return!!! This is SO discouraging. The worst part is, no one understands the physical and emotional agony this drug brings on. I'm 19 and feel like I'm 90. My body aches, my weight is constantly fluctuating, I bruise from simply being poked (being a clumsy person, I look like I am beat!!), my bones feel as if they are about to break, and I am SEVERELY despressed. Being in college and taking rigorous classes, this is just too much for me to handle anymore... My 5-year relationship with the love of my life/best friend is falling apart because of my horrible mood swings.. don't blame him for leaving. I feel as if this drug has ruined my life more than the disease itself...Does ANYONE know if one's body and mind returns to "normal" after FINALLY being off this drug??? I pray to God the answer is yes... I would appreciate someone's reply and/or insight, because my Dr. fails to tell me about ANY side effects until I mention something. PLEASE REPLY!!!
-- By marian0000 | Reply | (7) replies | Private Message me
August 8th
2007
6:18 PM
Severe hair loss/thinning. I've been on a low dose of prednisone for 11 years. My dose varies from 5/10 depending on the flare up. Before prednisoe, I had A LOT hair on my head.... thick, curly,healthy, shiny hair. I have about half the hair left on my head that I had before. It's now dry, brittle, lifeless, and damages very easy. It's hard to get any length on hair, because as it grows, it's breaks off...it's quite thin and has been ruined by prednisone.
-- By gayle41 | Reply | (1) replies | Private Message me
July 26th
2007
8:39 PM
i have suffered from Chronic ASthma and Allergies since I was two weeks old and have been on and off Prednisone ever since. The first 6 years of life were in and out of the hospital, recieving ventolin, intal, beclifort, and prednisone treatments. at times I would be on up to 10 meds 5 times a day. My doctor who is still my Doctor today (Im 22) said that they didnt know how i survived. Im assuming it was the above list of meds, my wicked parents and faith. I remember as a kid , my mom would have to crush the prednisone up and put it in jam and i would cry becasue it is honestly the tiniest and wort tasting pill I have ever ingested! I shoul dhave known i was in for trouble.
the thing of it is that by grade 1 I was moonfaced and gained excessive weight in my stomach and back. my brothers were thin and active adn parents the same. but i was a real case, couldnt swim or skate or stay outside too long or go on sleepovers without my "machine" as i called my nebulizer. Frankly it sucked, bu i only say that now, becasue i realize that not everyone had to live this way. up until like teo years ago i just assumed that most people dealt with the same stuff.
anyway, im 22, my legs and arms are ridiculously strong, like we are talking hard. but since im 5'2 on the best of days , my rather large leg muscles make me look even stouter. I have had most fo the symptoms, my hair is a lot thinner, swelling etc, but the worst is the weight in my middle. I CANNOT get rid of it. I feeel like im clogged full of cortisone and steroid byproduct and that it is making weightloss in my middle , nonexistent. this really has affected my emotionally because og course i grew up in a country town and was fat and it scared me for life and now i have trouble being touch by men becasue i feel like they are just feeling my fat. which isnt my damn fault. I wish i had at least had the pleaseure of eating all my favourite foods in order ot become more than 60 pounds overweight. it scares me too because of course fat around the middle is the worse place to have ti and leads to all sorts of lovely things.. and my parents feel so bad becasue i had to go through the mental torture from kids and adults alike but like they say , it was either prednisone or death. i am also now a narcoleptic, and take effexor and alertec for that whcih has its own set of side effects, but none as severe as prednisone. I suppose we all have our crosses to bear though.
March 1th
2007
3:26 PM
I was dianosed with an immune disorder of the inner eye. It was advanced enough that regular treatments were not effective. So the dr. started me at 60 mg of prednisone and started to taper it off at 20 mg. every 2 weeks. At 6 weeks, it was observed that my symptoms had reappeared and so he started back at 60 and the tapering was much, much slower (50 mg, 40 mg 30 mg 25 mg 20 mg 15 mg 10 mg 7.5 mg 5 mg 2.5mg) the first week I had panic attacks and wanted to physically attack people. I couldn't sleep. After that I had mood swings, fuzziness, forgetfulness and confusion, all I wanted to do was lay on the couch. I had heart palpitations, moon face (people thought that I'd had dental surgury) went from a size 6 to a size 12. I had terrible yeast infections, and wanted lots of fluid and had frequent urination. It was horrible. By the time I was done (and I had withdrawel symptoms long after I stopped taking it) I'd lost 2 years to the side effects. I do get to keep my eyesight. Fair trade, I suppose. In the next year and a half I lost weight down to a size 2, not as good as it sounds, all my muscle tone had gone and I'm having to rebuild from being nearly skeletal. The worst part of it is.. at any time I can be put back on prednisone and will probably choose to over losing my sight. At what point does one have to worry about osteoporosis? How much prednisone for how long effects the bones? There are things I'd like to do, but I'm not sure if I should.
-- By dotsgrac | Reply | (2) replies | Private Message me
August 11th
2005
11:44 AM
Now listen I get so depressed , yes it helped my acne heal up and as I also have been diagnosed with COPD (Chronic Obstrustive Pulmonary Disease) where my asthma that I had as a child came back , I have gone off the Prednisone as of Monday this week (8 Aug 2005) I was on it for 2 weeks and was on 8 tablets each morning to clear up the acute Bronchitis I had that brought on the COPD.
Its now Thursday and I feel dizzy, nauseous and have a mean mean headache, but I realise this.... that putting foreign things like Prednisone into my body is going to ensure that once I am off it, my body tries to naturally get rid of it, so these side effects are just my body's way of getting rid of the extra cortisone. I am not overly worried. I don't want to gain weight because I have spent a long time losing over 25 kg's and I don't want it back. So I walk every day, I quit smoking and life is getting better and better.
I look to Lance Armstrong and his fight with cancer, it was a a physical disease and he survived he fought it with his MIND!!
Any disease that you have can make you feel depressed, unresponsive and as if you have no way out of the seemingly endless array of side effects from drugs etc.
You choose how you feel , its your mind that is the most powerful healer of all. So I may have COPD but its not going to stop me from living and make me wake up every single day with a strength that I never knew I had before.
I won't quit, if I feel depressed I will do something that will make me feel better and I will choose to be happy and make changes that will make me happy.
Disease is not the thing that makes you feel like a victim, You choose to be a victim by the thoughts you think.
Life is what you make it.
Keep strong, LIVE STRONG
Bronchitis 27 (Di)
August 4th
2005
3:12 PM
I think that from reading through the posts and getting more information about different points of view regarding this drug, I am more inclined to think that if it works for you and you are happy taking the Prednisone and it has helped you overcome your disease whatever it may be, then keep taking it if it helps you. Treatment using Cortisone is a personal choice and if you experience very bad side effects maybe your Doctor can put you onto something that will have the same healing but less risk? Everything in life is a personal choice, the best way forward is to get as much information on the drugs you are taking as possible and make sure the information is from a reputable source, eg. Medical Journals etc. I don't want to scare anyone into not taking Prednisone, personally for me it made me feel ill but we are all individuals and we all need to take responsiblity for our choices in life.
So just make sure that whenever medication is prescribed to you that you research it first, and ask your Doctor about it he/she is there to help you get well, not make you feel worse.
-- By bronchitis27 | Reply | Private Message me
August 4th
2005
2:55 PM
Hi everyone, Okay its day 6 of taking prednisone, I am feeling so light headed and awful that I decided to get a second opinion on my Bronchitis and all the cortisone that my Doctor has been giving me. Twice a day on Cortisone nebulizer and 40g of Prednisone a day. I am calling another Doctor I trust that I used before I moved State, tomorrow. I want to get a second opinion about how to wean myself off this Cortisone. I have then decided to go an see a Homeopath that helped me with my 35kg weight loss. She is brilliant. She is far from me to drive but after going through the side effects of this Prednisone I will drive anywhere to get better medical treatment. So no more chemicals in my body from now on I want natural medicine, it may take longer to heal but at least its going for the root of the problem and not the symptom. Wish me luck! -
-- By bronchitis27 | Reply | Private Message me
June 17th
2005
12:09 PM
Never stop taking predisone cold turkey you can get secondary addisons Adrenal glands use cortisone and stop or slow down when this drugis stopped cold turkey Your glands will stop prodution and you will have to take predisone the rest of your life Take this advise from one who has been there Check out web sites on Secondary Addisons its all there
-- By pudzzy | Reply | Private Message me
March 24th
2004
2:57 AM
been on prednisone for 16 yrs
to answer some questions
i have never heard of all of someone's hair falling out from it :) relax
mid section - shoulder.neck areas seems to add width - not water retention as much as a fatty layer build up
moon face - mood swings - weight gain - all normal
for your own body to begin making cortisone again you have to reduce dosage to 5 mg's - this is where you will see the most relapses and symptoms appearing from problems
makes one want to stay on prednisone
BUT the long term affects on your other organs etc are not worth long term use - trust me
cataracts are also common so if eye probs after extended use get your eyes checked - but if only using short term (under a yr) should be no long term probs
-- By info | Reply | Private Message me
September 19th
2009
3:32 PM
ive been on prednisone and cortisone..2 doses i woke up and couldn't move my legs at all. the more i walked the more it hurt..the more i sat the worse it was to stand up and walk..idk what to do..i have to take this for the rest of my life..its just terrible to move.and my doctor wont be around for 3 days.
-- By scarlette | Reply | (2) replies | Private Message me