PredniSONE and cushings syndrome

Been on Prednisone for 3 years now for ulcerative colitis. At first tolerated the drug quite well. But after a few months started to gain weight, acne. After 3 years of yo-yoing between large and low doses, each increase in dose made me feel worse. I am now at a state of osteopenia and of extreme tiredness and brain fog. I see 80yo with more energy than I. I cant walk up 10 sets of stairs without feeling tired out. I need to sleep 3-5 hours a day just in order to function. As mentioned before brain fog is amazingly bad. I'm a scientific researcher which can no longer work.

Prednisone has introduced to me what panic attacks are, mood swings, joint pain and swelling, extreme muscle fatigue and wasting, blurry vision, in habitual eating habits, depression.

This drug has ruined my life. I would have preferred having surgery to remove the colon and going to the toilet 10 times a day rather than not living as brain fog and tiredness that makes my life a dream-state nightmare.

I am 19 years old and I recently was taken off of it 2 years ago when I switched doctors. Prior to the switch I had been on it for 16 years. I prob have some of the worse side effects. Because it causes an increase in appetite I ate but I didn't eat all the time, and I ended up gaining over 100lbs. I have a black-brown ring around my neck and for the longest time I thought it was dirt that wouldn't come off so sometimes I scrubed my neck sometimes to the point that it was raw.I have bad acne on my back and its just horrible.I cry every single night because of the side effects.I just want to know if anyone on here can help me.

I'm a 37 year old female and have severe asthma and allergies and have used pregnisone on and off for 30 years. I believe I am the poster child for the long term side effects. My immune system is shot to the point that my normal medicines for asthma (ventolin, advair) and allergies (tylenol sinus, claritan, visine A) and ezcema (elidel, hydrocortisone, etc. - - NOTHING works!

In the past 6 months, I have developed various infections that the doctors have not been able to identify. My eyes are swollen and red with large amount of white/yellow secretions. Vaginal secretions. Face swollen. Skilled covered in a rash with ezcema out of control. Sharp pains in my back and stomach. Constant asthma. Abnormal hair growth. It is to the point that it is impossible to function and each doctor just wants to prescribe more pregnisone. I feel as if my body is a walking time bomb and it is so full of all the cortisone from over the years and has just decided no more.

I admit that I too readily believed in the doctors when they would rapidly prescribe the pregnisone. Only now am I paying attention to the long term side effects.

Has anyone had tests done to test their immune system and other organs for damage? Thanks and best to our pregnisone club.

I was diagnosed with Crohn's Disease in June and had to take 60mg/day for about a month. Then my doctor tapered me off it so I took 40mg/day for a week, then 30 for a week, then 20, then 10. I stopped taking Prednisone altogether about three weeks ago but have noticed little change in my weight. I gained 17 pounds over the two months I was taking Prednisone and my doctor said it should 'melt away' quickly but it has yet to do so. I've lost a little of the moon-face so that's good but the extra weight is driving me crazy and nothing I do seems to help me lose it. Anyone hava any idea how long it will take to get back to normal?