August 9th
2007
10:58 PM
Hi there... I have just found this site and I'm very grateful to everyone who has taken the time to sit down and tell us their story mine is very similar. BELIEAVE me I feel like I am pushing my family away and I'm losing my relationship with the one person who used to make me feel like I was the most beautiful woman in the world.
I'm a 40 yr female have or maybe had a great job that I loved... On April 12 I noticed a small red rash on my lower right leg no big deal went to the Dr. gave me some cream and sent me home well I went to work and by the afternoon things just seem to get bad my legs began to swell and little blisters started to pop up so I went to the E.R. they had no Idea what was wrong with me got me an appointment to see a skin DR. so I went home but the pain from the swelling was so bad I could not walk any longer went back to the E.R. they gave me some pain meds and called in some other DR. things had gone from bad to worse my feet had gotten to big I could not put on shoes and I had bruised completely across the bottoms of my feet they put me on 30mg of PRED. and it seem to be under control sent me home after 3 day in the hospital things were good for about a day or so I thought I would go back to work well that was not a very good idea.... My sister had to come and take me back to the ER where they did 2 biopsies and still have no idea what is wrong with me. so now they put me on 60mg of PRED the rash has gone, lots of scaring on my feet because of the blisters once they broke and dried out but I can live with that....
It's the side effects that they don’t tell you about,
MOON FACE I can't look at myself cause really that’s not me anymore,
WEIGHT GAIN I have always been thick but I can't handle the extra 30lbs I've gained,
MOOD SWINGS are unbearable,
PAINFUL JOINTS, CAMEL HUMP, BLOODY NOSE, BRUSING, SORE TEETH/GUMS, DRY EYES, FAITIGE, and worsted of all
I don’t have a support systems in my life so I'm fighting this by myself everyday, I have 3 kids that I have tried to explain all this to but they don't get it and well my boyfriend he tells me he understands that its the meds pushing him away but if I can't figure away to control this I will lose every thing including my job. I cant even get the energy together half the time to make it up and down the stairs which also comes with the pain of just trying to lift each leg up to climb the stairs, I also have the camel hump which I find very painful, The acne and the hair growth that I have to get wax off once a month cause I feel like a man I feel like a loser and as of the last couple of days I just want to give up I am now down to 20mg per day but I find that I am feeling so sick I cant think straight I hope and pray for each and every person out there that has to take this MED that you get better and I do hope that my symptoms wont come back. Thanks for being here and I’m glad I found this site. I know now that I’m not losing my mind completely. Elizabeth.
October 26th
2006
8:23 PM
I'm 26 years old and broke out in a horrible rash back in June. It was basically all over my upper torso, arms and my legs. I went to see a dermatologist and got a high prescription of Prednisone (40mg/day). The rashes went away, but I had many side effects. I gained 10 pounds in a few months (and it's hard for me to gain weight due to my high metabolism), my cholesterol shot up from 170 to 219, I was having mood-swings and feeling depressed, I was having dizzy spells, and it seemed like I was eating everything in sight. Now that I am off Prednisone, my cholesterol is back to normal and am not feeling depressed or having mood-swings. I am still waiting and working on losing the extra weight which does not seem to go away, esp. around my stomach area. I still feel light-headed at times but it's bearable. I hope there is a better drug or solution out there in case of another break-out. I do not want to go through that again.
-- By chokismith | Reply | Send Private Mail
July 10th
2005
4:13 PM
I have had psoriasis for 15 yrs and psoriatic arthritis for 5. After having a major flare up of psoriatic arthritis where my tendons and major joints swelled.My doctor finally decided to prescribe me something for the swelling after 4 months of not being able to walk most days. I first started with Sulfasalasine (500mg daily for 7 days, 500mg twice daily for 7 days, 500mg three times daily for 7 days, and 1000mg twice daily for 7 days). After a month my psoriasis started to flare and it looked as if i was having a rash so it was discontinued.
A week later i received a prescription for Plaquenil (200mg x2 for 14 days) and Prednisone (4x5mg) in the mail. It was a two week trial of plaquenil, and with the prednisone i was to decrease by half a pill every three days. By the end of the two weeks of plaquenil i was noticing a red blotchy rash on my chest. I contacted my doctor. 3 days later the rash had gone from my chest to my neck to my cheeks. By the 4th day i had swelling around my eyes and they were also red and blotchy, my hands were also swollen to the point where i couldnt bend them and I was having a fever and night sweats. My doctor finally contacted me on the fifth day after stopping the plaquenil, and told me to discontinue it. I went to the hospital on that day and told them i thought i was having a allergic reaction to plaquenil, they stood five feet away looked at me and said ok just keep taking the prednisone at 20 mgs for a few days. They didnt want to get involved due to the fact that i had psoriasis. But also failed to mention to me that it could be the prednisone causing this reaction also.
The next day i saw my dermatologist, she prescribed 1% hydrocorisone cream which helped with some of the dryness and pealing skin. The next day when i woke up i couldnt open my eyes, i was having shortness of breath ( im not sure if it was the panic from not being able to see) my throat felt as if i had strep throat,and the roof of my mouth felt as if i had burned it. My skin looked like a huge sunburn, the parts where i had psoriasis were very red,raw,and pealing excessively. I was admitted to the hospital for four hrs where they gave me a IV of benedryl and a steriod.My skin was so swollen they could just barely find a vein to put the IV in. After 50mg of benedry they realeased me and told me to keep taking 50mg every 4-6 hrs and they prescribed me 50mg of prednisone for 7 days. By the next day the swelling had gone down by 30% in my face, but i still looked like i had been in a fight, the pressure around my eyes was so much that i had to sleep sitting up. Of course i wasnt really able to sleep with the fear that if i closed them i wouldnt be able to open them again. They also leaking white stuff. My skin was pealing in very large sections. I was bathing in a luke warm bath with oil, which would help with the pealing of my skin but then when i came out i would be freezing cold. I would get hot flashes and then instantly cold 5 minutes later. I felt like i running a fever but my temperature was normal.
Two days later the swelling was gone in my face, but my legs, ankles and feet were abnormally swollen. My skin was still pealing and constantly itchy. My skin tone was all pink it was no longer red and blotchy, but after i would shower or bath my legs would have dark purple and blue spots on them that looked like bruises. I was unable to sleep for more then two hours straight, i would wake up feeling as if i was on fire. It took another six days for the swelling to go down fully in my legs, ankles and feet.
After taking 50mg of prednisone for 7 days I am taking 45mg for 7 days then decreasing by 1 pill every week. After taking 45 mg for 3 days my skin looks as if its a big rash, it feels grainy and tight. Its no longer pealing except for on my feet.
Im told i look as if i have a bad sunburn, my face is red and tight to the point where the skin around my eyes doesnt even stretch when i open them widely.The sides of my mouth keep cracking when i try to open it fully. I look as if i have really dry skin constantly, it is a fine dusty flakeness. I bathe in moisturizing bath oil but it doesnt even go past the first layer of skin it seems, and i moisturize with keri lotion 3 or 4 times a day but it doesnt seem to matter how much i do it 15 minutes later im just as dry.My skin is sensitive to light and feels like its on fire when exposed to any amount of sunlight. The skin around my armpits and breasts or anywhere that the skin has to strecth is red and sore. I still get hot flashes but most the time i am freezing cold. The skin on my hands is wrinkley and i have no sense of touch almost. My nails were so brittle they had to be cut all the way back.
I have numbing of the tongue, i cant even taste food anymore. I have dry mouth, and i feel as if im dehydrated constantly, i can drink bottle after bottle of water and still feel thirsty. I feel really hungry sometimes or not at all at others. Some days it feels like I IBS and then other days it can be fine. I am losing my hair. The roof of my mouth still feels as if ive burned it on something hot. My legs still look purple at times when im standing, and especially after being in the shower or bath. I am taking 1mg of both folic acid and zinc which my rheumatologist suggest to help slow the reproduction of my skin cells. I have blurred vision 90% of the time, and sometimes i see halos around letters. My mood swings are all over the place, some days i feel like just crawling into a ball and not moving, mostly because its too painful to move around and also because i hate how I look. And other days i just feel nothing at all. Im not exactly sure if when i was the 50mg of prednisone i was happy because of the drug or if i was happy in general because i realized what i could have lost. Not being able to see for 15 minutes really put things into perspective.
Im not sure how much worse it can get? I thought the swelling of my eyes was the worst part but from what i hear it can get much worse coming down off of prednisone. I was wondering if anyone else with psoriasis may have experienced any of these side effects while on prednisone? and roughly how long it took for them to go away.
-- By knelson_12_2001 | Reply | Send Private Mail
March 30th
2005
6:58 AM
I moved to Florida in Sept. and my face broke out and swelled tremendously. We went to the emergency room and they put me on prednisone for 2 weeks. Everytime I went off prednisone my face swelled back up. Three times I went to the emergency room within 8 months. They filled me with pills or shots and it was all prednisone. The eight month my allergy doctor said he had never seen anything like this. He had me to go to USF to see a dermatologist. He did testing and found out I was allergic to preservatives in makeup and other cleaning products. He put me on protopic which last month I found out its side effects and I have just stopped all medicines. My face right now is broke out in places but I refuse to put any medicine back on my face. How long does it take to get all these medicines out of your system? Does anyone know. I believe these medicines have caused me more problems after I took them than before.
-- By barrettblue | Reply | Send Private Mail
September 30th
2004
9:14 AM
I was put on Prednisone to reduce an Orbital Tumor. I was on it for 3 months with varying doses. I was hopitalized and they had given it to me through an IV. Currently I've been off of it for 2 months. It worked, but not without lasting side effects. At first I had SEVERE night sweats, I'd wake up in the middle of the night to change my PJs, pillow & sheets. I gained about 15 lbs, I was mean & short-tempered, I had a short attention span, I lost muscle mass, I felt shakey and jittery, I used to sleep well at night and still to this day I have a hard time sleeping. My current problem is SEVERE hair loss due to this medicine. I'm going to see a Dermatologist tomorrow to see if there is any meds that can reverse this. Although I don't like these side effects, I think it helped me when ALL my doctors said I should have surgery, the Prednisone worked enough that I didn't have to. However, there is no guaruntee that it wont come back....then I'll be back on this life altering medicine.
Good Luck to everyone out there!!
April 18th
2004
5:47 PM
weight gain, muscle cramps in legs and hands, large, colorless
welts on face with slight indentation in center. My dermatologist says that they will disappear when I am off the drug - have been on for about a year and a half for polymyalgia rheumatica - pain relief is worth the symptoms, but the facial welts concern me. I am only on 4 mg a day now and will hopefully be able to reduce by 1 mg a month until I'm off....last time when I got down to 3 mg my pmr symptoms returned- I have also developed small cataracts although I'm not certain they were caused by prednisone.
This registry is a place to share positive or negative side effects of using PredniSONE. If you directly experienced a side effect while using PredniSONE, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
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by celine302002, 3 replies, updated 2 days ago.
November 15th
2007
1:17 PM
My 12-year old son has been high dose prednisone for his asthma flare ups. I know that the "moon face" is common. However, since using this prednisone, he has bad acne breakouts on his forehead, cheeks, chin and even in his head. He also has broken out in a rash on his neck. Common or uncommon? There seems to be nothing to help with the acne, either.
-- By jolguin | Reply | (2) replies | Send Private Mail