November 18th
2009
9:16 PM
my 4 year old son was recently diagnosed with pneumonia, and because he has asthma, prednisone was part of his treatment plan. after just one dose of this drug, my son turned from well behaved, loving boy, to evil demon child. he was speaking with a very scary voice and telling his mother and i he wanted to kill us as he hit, kicked, spit, and threw things at us. he tried several times to hurt his little sister and said he wanted to see us all bleed. we were distraught. the stupid doctors said that he was experiencing a very rare side effect and was hallucinating. why didn't they tell us of this side effect beforehand? anyway, he did not stop acting in this way for almost 36 hours, from just one teaspoonful. needless to say, we will never administer this devil drug to our children again.
-- By dlz2355 | Reply | Private Message me
October 18th
2009
8:05 PM
short and unsweet, was put on it for osteoarthritis by a bone doctor ,took it for 1 week and had to get off it because the side effects were horrible. panic attacks, severe mood swings, dizziness, disorientation and more. The worst was yet to come 2 days after I told my doctor I couldn"t take it anymore. I was getting ready for work and thought I was having a heart attack. I drove myself to my doctor (praying the whole way, cuz God is in charge). He took my blood pressure which was 200/187. I was rushed to the hospital where I was admitted and put in the cardiac unit overnight for observation. Thank God I was released the next day with no APPARENT side effects. I have not been right since. I still have panic attacks, severe mood swings and fluctuating blood pressure. Do yourself a favor and when anyone mentions Prednisone RUN! Oh, I forgot to mention my doctor said had I waited another 20 minutes I could have been a goner. My osteoarthitis is worse(now I have to see another specialist) and I have medical bills out the wazoo. Prednisone is a very very dangerous drug nd the doctors are still prescribing it. What is wrong with this picture.
-- By hkrape49 | Reply | (1) replies | Private Message me
October 2th
2009
3:14 AM
I've been prescribed Prednisone since April and just recently experiencing hair loss (I'm Female)
-- By celinestuckey | Reply | (2) replies | Private Message me
September 7th
2009
4:50 PM
I am 24 and have suffered from severe to moderate acne my entire life. I have tried every cure out there and nothing has worked. I went on prednisone for an skin allergic reaction about 2 weeks ago. I started out with 50mg on the first day, and 40 mg the next, 30 the next day, and so on. I took it for a week. By the second day of taking prednisone, my acne was 100% cleared up and has been gone since. Now that I am off the medication, my acne is coming back. The only side effect from this drug was insomnia and CLEARING of acne. Does anyone have any idea why I had such a weird reaction to this drug?
-- By michellezerbi | Reply | (2) replies | Private Message me
September 1th
2009
1:24 AM
After my kidney transplant I was taking 40mg a day and only weighed slightly over 100lbs. I felt all of the same side effects: trembling, sweating, bloated tummy, paranoia, confusion, horrible acne, insatiable hunger, bad headaches. I started taking the pill and this helped a lot with acne and hair growth that started to appear. Ask your doctor if you can taper down to a more manageable dose. I'm still on prednisone and probably will be for the rest of my life, but I was firm with my doc and got it down to 7.5mg MWF. This level is much easier to deal with, and although I still have a slight "moose hump" (some kind of name) and disappearing eyebrows, my hair loss has evened out and I'm happy with what I have. Like many of you I used to have really thick hair. Things will get better, you just have to be persistent. No one should live that way, it's horrible and I don't think that doctors understand the drastic drop in quality of life that occurs.
-- By kat8181 | Reply | Private Message me
August 26th
2009
5:06 AM
26th August 2009 I am at the point of wanting to tear my husband into little pieces, nothing he does is right. My emotions are horrible ranging from angry to utterly furious. My anxiety level ranges between moderate to pounding heart almost panic attack level I presume. I am restless, cant sleep, swollen face, neck, puffed up shoulders, very weird stuff. My eyes are so so puffy I want to cry. My husband was so worried about my personality change he called the doctor who laughed and said that some people get some side effects with Prednisone. OMG why didn't the hospital staff and doctors say something about this when they were pumping the stuff into me? I actually was thinking my life was not worth living anymore.........everyone around me was angry at my bad behavior, which I could not control and still cant. What the hell is this all about, cant they use another drug? D. from Santa Barbara
-- By debbiefromsantabarbara | Reply | Private Message me
July 19th
2009
6:27 PM
Was in the hospital receiving IV and inhaled steroids for breathing problems. Sent home with 10mg prednisone twice a day. It was even worse. ---puffy face, no sleep,and extreme weakness in my thighs--hard to even walk up stairs. Had a CAT scan of my lungs and my dr. was alarmed---said for a 112 pound woman,my stomach was the size of an obese person! now I'm going to have a stomach emptying test to see if that or the steroids is the problem.
-- By sube | Reply | (1) replies | Private Message me
June 23th
2009
10:00 PM
Was on Prednisone for 11 days for an injury to my neck. I knew nothing about the drug except what my doctor told me that it would reduce inflammation in my neck and help with pain.
Well, it did nothing for the injury and pain in my neck. BUT.... I had HORRIBLE menstrual cramps and got my period 8 days early. I've had my period for 9 days now AND terrible pain in my upper left leg. I thought the pain was related to my leg and as the days went by I realized it was in my left hip! It's so bad I can't lift my leg without extreme pain. I KNOW IT'S FROM this awful drug.
I've been off of it for 4 days and the pain is still with me. I called my family dr. and was told Prednisone doesn't do that. BULL!! The paperwork I got with it from the pharmacy show "Changes in menstrual periods" "muscle/joint pain" "bone pain".
I wish I knew this BEFORE I ever took it.
Does anyone know if these symptoms and problems will go away after stopping it? I called the pharmacy and was told it will take 2-3 weeks for it to get out of my system!!
Has anyone had problems that eventually went away after stopping the drug?
Thanks and I hope everyone else is okay soon! This drug should be off the market. I received no help for my neck pain at all!!
-- By cheska | Reply | (5) replies | Private Message me
June 17th
2009
3:46 PM
I'm 15 years old and i've been taking prednisone for a few months, and from what i've read i'm on a really high dose. i was diagnosed with rheumatoid arthritis and another autoimmune disorder concerning my muscles at the same time. my doctor told me prednisone was my only choice; it was either that or i would lose the ability to walk. he told me there'd be side effects, but i had no idea it'd turn out like this or i would have fought harder for another course of action. i started out on 30mg twice a day, and since then was weaned down to 20mg twice a day and now i'm down to 30mg once a day. i've been looking up a bunch of information trying to figure out if there's a way to lessen the side effects or any hope at all that they will get better. apparently there isn't much. after reading a bunch of these stories i gotta say i'm not feeling great about this. i totally understand everything everyone is going through. i'm sure you can imagine what it's like being smack in the middle of high school with a huge puffy face, acne so bad on my face, chest, back, neck, and shoulders that wearing a bra could put me in tears, and mood swings so bad i've lost friends over it. everyone knows how brutal high school can be, where appearance and attitude are everything. and i try to tell my doctor about it and he literally looks at me like i'm a whiny teenager and says "you're just going to have to deal with it." and people like my mom and my closest friends don't get it either. nobody understands how beyond frustrating it is. i'll get into the worst moods and not have a reason for it, but i'll stay angry for hours or burst into tears over someone looking at me the wrong way. it'll get to the point where i have to isolate myself from other people because the abrubt mood changes get so bad. as bad as i hate to admit it, the pain from the arthritis is gone now and supposedly my muscles are doing better too. developing arthritis caused me to have to quit cheerleading, something i've loved doing for 6 years, because the pain got to the point where i couldn't get my arms above my head or bend my knees. however, i'd almost rather deal with the horrible joint pain than deal with the side effects of prednisone. if your doctor gives you and alternative method, take it. i've always been confident in the way i look and really outgoing and happy and now i sometimes catch myself thinking about suicide. that's shocking to me because i've got so much going for me, but this medicine makes me miserable. and when i complain about it, anyone i'm talking to just looks at me like i'm being a cry baby. my mom does too, she'll say things like "you just have to do this. i know it's not what you want but to be honest i'm sick of hearing you bitch about it."
i feel a little better knowing other people feel the same way - like nobody gets whats going on with them. the prednisone does give me days of really great euphoria and days when i feel like i could run a marathon, but waking up in the morning to the acne and huge face puts me to tears every day. i have to pee all the time, usually getting up at 2 or 3 am. i don't sleep well anymore and i do sweat all the time. which also sucks being a teenage girl. i'm always hungry, and when i eat i never feel full so i don't know when to stop. my neck and face have put on so much weight that when people see me in the halls or out and about they ask me what happened. mind you these are people i don't talk to, just ones i know from classes or whatever. and it's pretty bad when teenage boys i've never really talked to ask what happened to your face. kind of a blow to the ego, or whatever is left of it at this point.
i'd like to know if, as my dosage gets lowered, the side effects will diminish and when i'm off the prednisone completely if they will disappear altogether. any help there?
or if there is any way to help the acne or puffy face
my doctor just put me on something called methotrexate or something like that to help wean me off the prednisone, and does anyone know what those side effects will do? or if they'll affect the prednisone side effects?
i'm constantly obsessing over gaining weight and what my skin looks like and what i eat and how heavy my face feels and the occasional pressure in my eyes to the point where i just want to be put out of my misery.
and after reading other people's stories i really don't understand why this drug is still given out as freely as it is. but maybe all doctors are like mine, they just don't get it.
best of luck to anyone who's on prednisone, my heart goes out to you; i'm right there with you
sorry this became like a book it wasn't meant to be this long
June 12th
2009
6:20 PM
I'm sorry if someone has covered this already... my grandmother is actually the one on Prednisone because she was diagnosed with peripheral neuropathy about a year and a half ago and I believe they recommended it to help her strengthen her muscles so she could walk. It has really taken a terrible toll as she is now unable to walk, and even using a walker can be stressful and difficult. Once she was put on Prednisone they continued to increase her dosage and because of it she now has terrible tremors. It kills me to watch her go through this and wish that I could fight the illness for her. I just want her to be able to eat without feeling so stressed out because her hands aren't steady. The doctor did say that the medication is causing her tremors, and we were relieved to find out that it wasn't Parkinson's, and now they are beginning to wean her off of the medication but she is still taking it at the moment. If anyone has finally tapered off from the medication, who originally had tremors, did you find that your tremors did go away once you were off the medication? How long before the shaking stopped and you felt better? I just want to give her hope that after she is off the medication there will be some relief. I feel awful knowing there is nothing I can really do but support and be there for her, and do some research. If anyone could help me with my questions it would be greatly appreciated. I'm sad to hear other people's terrible issues with this medication and as far as I know I have only heard negative responses to this drug, so it's unfortunate that in this day and age they haven't found something safer that has the same effect that doctors are looking for in a medication. I wish everyone a safe and happy recovery.
-- By sca2985 | Reply | (1) replies | Private Message me
June 11th
2009
12:53 PM
Another update:
It has been 16 days off the prednisone and I still have the puffy face and the hives have returned. The Dr. said they could not send me for allergy testing because the prednisone would interfere with the tests for a month or 2. Wow, I had no idea this stuff can stay in your system for such a long time and I only took it for 7 days, so my heart goes out to all of you who have been on this drug for months or years. I can't even imagine what you must be going through. I was put on this drug for hives, but some of you are on it for far more serious conditions so I have no idea if it would be wise or unwise to discontinue this drug for those of you in that situation. Talk with your doctors tell them you want off and to advise another alternative to at least try. I see that the prednisone is no cure for hives it just treats the symptoms and as soon as the prednisone was stopped the hives were still there. In my case the chance of this drug damaging my body for just a moments relief from hives was not worth it. How wonderful for those who are able to tolerate this drug but for most people it seems to have horrible effects on the body. May God help you all to make the right decisions.
June 5th
2009
1:18 PM
A year ago I was diagnosed with Sarcoidosis and began taking 50mg Prednisone per day. The worst side effects in the beginning were weight gain, moon face, facial hair, hump-back neck, bruising (for example, just by my knees being together while I sleep,) excruciating joint pain and water retention to the point I felt my skin would split open. And poor vision which could have led to glaucoma, but an eye specialist put me on eye drops to reduce the pressure to normal levels. I've felt horrified and embarrassed by the change in my appearance but relieved that my sarcoid was being treated.
I feel confident in my case that Prednisone was the necessary treatment. My pulmonologist, opthamologist and regular doctor all agreed on a course of treatment. But I really advise people to get a second or third opinion before they take it. A friend of mine was prescribed a weeks course of Prednisone for a severe sinus infection. Luckily she didn't have any side effects but I really question if it was necessary. I'd also like to stress that if you're on Prednisone and experience worsening vision, please see an opthamologist who is a glaucoma specialist because it can lead to blindness if not treated.
And lastly, sorry this became a novel! I have been tapering off and I'm down to 20mg. But recently I've noticed my hair is thinning so much. I lose a ton when I brush it and it clogs the drain when I shower. Also my skin is shedding. When I shower and use a loofah sponge like I've always done and I lose layers of skin like a snake. I would really like to know if my hair will start to grow back when I'm finally off the Prednisone or am I going to lose it completely??
June 4th
2009
10:34 PM
I am on a 6 day treatment of PredniSONE 4mg for a foot injury that caused massive swelling. The swelling was gone after the first day of the treatment, but the side effects started the second day for me. I freaked out yesterday thinking that I was having a heart attack. I even asked the doctor if there were any weird side effects and told him that I have anxiety about taking medicine. He said it's harmless, and not to worry. I felt safe taking it the first day but now I've been experiencing increased heart rate, flushed face, pain in my muscles, left arm, and chest, tingling and itching, I can't sleep, when I do sleep in the morning I wake up tense and frustrated, I've lost my appetite, it's hard to go to the bathroom and I can't seem to get my thoughts together. I had an anxiety disorder before and had I known the side effects of this medicine I would not have taken it. Today I decided to skip a day by only taking three pills today and two tomorrow. I just want OFF THIS STUFF!!! and I never want to take it again. I can't believe its on the market and doctors are soo shady about it! And all this from the lowest dose... 4mg.
-- By babykrys | Reply | (1) replies | Private Message me
June 3th
2009
2:17 PM
I'm sitting here in tears reading all of your posts because I've also been on prednisone and have horrible side effects. I was diagnosed with metastatic breast cancer in my lungs in June of 2002 and, after starting at 60 mg/day then, I have been on 20 mg/day for years now. The very first posting that I read mentioned problems with the femur bone. Besides all of the other problems associated with this devastating drug, in December, 2007, I broke a bone in my left foot with no known cause for it. Then I started experiencing pain standing or walking in my left leg and was diagnosed with a fractured femur bone and after several months of trying to get it to heal (including an ultrasonic bone healing system), it just kept getting worse until an orthopedic surgeon recommended that I have a 16 inch rod put into my leg which I did and it ended up to be one of the worst decisions that I have ever made. After experiencing all of the prednisone side effects for almost seven years including depression, severe fatigue, weight gain, moon face, thin skin, cataract surgery on both eyes, hump on my back, mood swings, etc., the pain and suffering that were caused by that operation brought me to seriously consider suicide. I was also diagnosed with chemical neuropathy in both of my legs also which makes my legs so weak that I have to crawl up any steps and have trouble just standing. I actually have an appointment for this evening to have an x-ray done to see what is wrong with my knees and did not realize that this also is yet another side effect. I never make it through the night without waking up in pain and getting a pain pill and then getting up in the morning is almost unbearable with that "burning" pain. I am now on Cymbalta for depression, Xanax for anxiety, Percocet for pain, and of course 20 mg of Prednisone. I was told that I would have to remain on Prednisone for the rest of my life because of the lung scarring and COPD. After reading all of your comments, I have decided that I would rather put up with any breathing problems (and I don't even know how slight they may be at this point) than to remain on the Prednisone. I have tried weaning off several times but get so fatigued that I can't move and that's dropping one mg every week. I'm affected by the decrease but it gets out of hand when I get to 14 mg and I get so frustrated and depressed at not being able to do anything that I just go back up to the 20 mg/day. If you have been able to wean off of it, would you please let me know how you did it and what you had to go through? I'm 65 years old now but I have two wonderful granddaughters (ages 4 and 6) who I can't do any normal "Grammy" things with anymore at this point and I have to change this condition for them and for me. Obviously, the doctors don't recognize the severity of the drug because they just keep prescribing it and out of a regular doctor, an oncologist, an orthopedic surgeon and a neurologist, they can't seem to get together to come up with a solution. I have to say that I haven't considered suicide lately but I do wish that I would just die and be out of this pain. My family and definitely my granddaughters and wanting to see them grow up are the only things that keep me going. There are probably things that I'm forgetting but I'm sure that one of you have covered it in our posting. Although my family is so supportive, no one and I really mean not one of them, realizes knows what we all go through because of this drug. How could they know that something that is supposed to help you could cause these problems? My life is a living hell, all because a pulmonary doctor prescribed prednisone seven years ago and I trusted him to only do what was right without informing me of what was to come. I more than sympathasize with all of you. I sincerely appreciate the time that you took to post to this site and so thankful to know now that this knee pain is not something new that I have but another side effect of the prednisone. I wouldn't have known that if it wasn't for this site because I'd be willing to bet that after I would have had this x-ray done, one of my doctors would have just prescribed another medication to take. Please feel free to contact me directly with any comments or especially any help that you can give me. I know that all of you are going through the same thing so if I can do anything for you, even just listen and understand, please contact me also. Sometimes that's the only thing that people can do is to listen and someone who is in the same situation can always understand. I'm here for anyone who needs a hug for the day.
-- By karen122275 | Reply | (2) replies | Private Message me
May 27th
2009
5:12 PM
I have been on prednisone since I was two years old (I am now sixteen) because I have Autoimmune Hepatitis IIa. I would like to point out that there is still a life worth living being on prednisone, maybe I say this because I do not know life without it, but at least we're alive! Last year I had a flare up of the AIH and had to 6x my dose of prednisone. It sent me into a spiraling depression of constant sleep, crying, hopelessness etc....but I made it through. Just PLEASE keep hope that things would get better, because I know what it's like being on the dreaded drug better than most.
-- By xxanonymousxx | Reply | (13) replies | Private Message me
May 17th
2009
6:05 PM
The purpose of prednisone for sinus sufferers is to open up the sinuses. Now, I have found that 40-50mg a day is usually QUITE sufficient to do that. (For me – everybody is different) And, as I get better, I taper off each day to 30mg, then 20 as needed. What doctors forget is that people react very differently to medications. Why take more when all it does is make the side effects worse? The doctor doesn't know how you feel, YOU know how you feel. Don't blindly take this dangerous medication, LISTEN to your body.
If you have taken 40 mg, your sinuses are completely open, and your heart is starting to race, do NOT take any more that day! Or, at the very least, wait till it stops and then take 10 mg or even 5 to see how you do. I advise never taking all your prednisone in one dose - try to space them out over the day so you can see how you react. Never take any later than dinner so you can give the side effects time to wind down if you experience them.
In summary: I have found that taking unneeded prednisone after you have achieved the needed relief will not do much good, if any. However, the lack of sleep will be very detrimental.
One final tip: I have found that after I start to get better, 20mg prednisone taken with a couple Sudafed is about as affective as 40mg prednisone. However, be VERY careful combining medications if you get fast heartbeat! Two examples are cough medicines and (especially) Sudafed! I advise trying a half dose of Sudafed (1 pill or half a 12hr pill - 12hr pills are great for nighttime) first if you are on prednisone. You can always take more, but you can't un-take a pill.
Disclaimer: I've taken prednisone many times, but I'm not a doctor, yada yada...
-- By helpdeskdan | Reply | Private Message me
May 8th
2009
3:02 AM
I have been on prednisone for 11+ years due to having had a heart transplant. The prednisone keeps my heart from rejecting.
I have not taken it for 2 days and I am in the process of passive suicide.
I am driving out west into the desserts to sit and die. I can no longer
be around people for I am afraid I may kill someone or at least significantly hurt them. I have been homicidal and suicidal for 11 years due to this med. I would enjoy killing everyone and everything. I hate myself and I want to die.
Prednisone made me become "Evil"; Hell incarnated. I don't want to live
in a mental institution and my doctor will only give me Seroquel thinking this will help me. I tell him it doesn't help me but he thinks it does. Stupid fucking doctor. My transplant docotrs won't even listen to me when I talk about "mental" issues. Everything pisses me off. It is raining outside and this makes me so mad and stressed.
I have been in this psychotically angry and agitated state of mind for 11 years. I have punched myself many times in the head and banged my
head against walls trying to get homicidal and suicidal thoughts out of my mind to no avail.
I would like to try ECT (electro-convulsive-therapy) but I won't even
mention this to my doctor because he will literally laugh at me and make me so god dam mad that I would enjoy killing him right then and there. I'm sick and tired of living in hell everyday.
Do not take prednisone no matter what, unless your life depends on it. And then what type of life will you have? Maybe a life full of hate, rage, anger, homicidal and suicidal thougts even when you dream.
Fuck life!
Arthur X 1968-2009
April 30th
2009
12:12 AM
I was on prednisone in 2005 first time ever. It completely ruined my life. I was before the prednisone (for just 10 days) a very calm happy person. After seven days I started having terrible mood swings, blurred and darkened vision, savage anxiety all the time, and the deepest depression i have ever known. I lost a business, a marriage, half my family, my sanity, composure, and ability to work. The doctor better hope to hell I never catch her out and about. Anyway after four years of pure hell I am finally able to work again and feel pretty normal most of the time. This drug does much more harm than good. I had a simple yet severe allergic reaction and was prescribed this terrible drug. Words cannot describe the personal hell I have been through. I think that most if not all doctors should be put out of their misery. I for one have started a movement to take out the doctors before they take us out. This is war and Im not going away that easy. If your life has been destroyed by prednisone do not do anything drastic. Just remember that just because your doctor poisoned you that it does not last forever. You will eventually feel better. It might be after your sanity has been tested to the limits and you lose everything you ever worked for but eventually you will come around. As for me I am starting my plan very soon. I absolutely believe that their is a movement in this country to take out or cripple as many trusting people as they can. The fda, cdc, ama, and others are evil.
-- By flugey3804 | Reply | (1) replies | Private Message me
April 19th
2009
9:23 PM
Hi everyone, I have just read all thirty pages of posts to try to find some answers to my crazy reaction to prednisone. My thoughts are with you all since I have had an usually severe reaction to prednisone. I was on prednisone for 1 week in October 2008 at 60 mg/day for a sinus surgery. I am still having the following side effects at full force:
Axiety to the point I can't socialize
mood swings
hot/sweating even in freezing weather
whole body shakes
severe migraines
tooth sensitivity
muscle pains
extreme thirst (I drink almost 2 gallons/day)
hungry all the time
moon face
water retention around waist
acne
hair loss
rapid heart rate
dizziness
nightmares
night sweats
high blood pressure
high hear rate
I'm not exaggerating, my parent's can contend to that. I do have a history of having sever reactions to medication and I've had all the gland and blood tests which all check out. I never had a single one of these before the prednisone - I was a healthy 22 year old.
I was wondering if any could tell me when this hell will end - my job and well-being depends on it!
-- By ames | Reply | (6) replies | Private Message me
April 14th
2009
12:11 AM
I am 16 years old and i have an orbital inflamatory psedotumor myositis, which causes me to see double. It is a condition the doctors are kind of just playing a gussing game in how long i will have to take the steroids. Everyone is different., i have been to many doctors and they have described it to me as an autoimmune disease within my eye and not my whole body. I was put on 60mg of prednisone. I have been taking it for over 3 weeks now. I was sapost to be symptom free within 2 days, but it took me 9 days before i noticed a difference in my vision. I am going on my fourth week now and still see double but not as bad. The prednisone has been absolutely awful. i handled it farley well the first 2 weeks and since then it has been pure hell. I do get bad mood swings,and i really don't mean to act the way i do. People i was once really close to don;t want to be around me anymore. Mostly i think i am frustrated with the acne it has given me. I am completely plastered now all over my face neck and chest. It is really embarrassing. I just wish other people realized how frustrating it is. Its like i wake up every morning and take an UGLY pill. I am really self conscious to begin with and was actually feeling pretty good about the way i looked until i had to start this medication. It really does suck. I can't even imagine what some of you are going through right now after reading everyones stories. My heart really does go out to everyone who has to deal with this, and i will pray for all of you. If any one has the same diagnosis as i do or knows anything about it and how long it takes to be treated please let me know. I am begging to worry because i don't think the prednisone is going to work for me. the doctors are thinking about putting me on methotrexate which i am also concerned about but it is not sapost to make you break out which is really all i am worried about right now. I have already back down from prom after working my but off to pay for my dress,and i really don't want my summer to be ruined. i wake up every day and want to hide in a whole were no one can see me. going to school is really hard to. The girls love to make fun of me and the guys are just kind of turned off from how i look.
How long does it take for the acne to go away after getting off the prednisone.and does it go away as you taper the drug down? also how long does it take before most people develop a moon face? i have a range of being on prednisone anywhere form 2 months to a year. There is a possibility that i will never be able to be off of it.
April 8th
2009
1:12 PM
Hey all. I have had asthmatic bronchitis for about 6-7 weeks now and I have never had asthma or bronchitis before. It started off as a normal flu for 3 days with fever. Then when the flu went away, I started having trouble breathing and shortness of breath. It felt like I ran a marathon walking to the bathroom. I never had that before. The doctor told me it was bronchitis. All tests were fine. I was taking azithromycin (took 3 paks of them) and that was the only thing that made me feel normal, but it did not get rid of the infection. Then I was placed on cipro and steroids. Now I'm not on any antibiotics. I'm taking prednisone and just started the advair inhaler. I was having asthma attacks that I never had before. Very scary. Did anyone have asthmatic bronchitis before??? What did you do to get over it and how long??? Please help!!!
-- By elaina7 | Reply | (1) replies | Private Message me
March 28th
2009
1:09 AM
A few years back I severely injured my back. As part of my treatment my doctor gave me prednisone. My joints, especially my knees hurt beyond belief. I even had go to my parents house because I couldn't move, it hurt too much. I called my doctor and you know what he told me?!?! it was all in my head.He accused me of trying to get pain pills from him. The joint pain got so bad that I had to be hospitalized. You know what they told me at the hospital. I was having a allergic reaction to prednisone. No S***t!??! anyway, since that time I have not taken prednisone. My concern now is that my doctor wants me to get a cortisone injection. . . I am scared I would get the same reaction. from the research I have done so far, it looks like it is from the same family. Does anybody know?
Thanks
B.
March 8th
2009
10:14 PM
I am so sorry that I have the doctor that I do and I am so sorry he prescribed prednisone, 60 mg. If I ever get through this and switch doctors to find out what's really going on; I think all doctors who prescribe prednisone in large doses anyways should be put away for good!
-- By hollyhockacre | Reply | Private Message me
February 9th
2009
1:17 PM
I was diagnosed with SLE (lupus) when I was 14, I'm 21 now, and I've had to be on prednisone all this while. The dosages alternate between 60mg (the highest) and 2.5mg (the lowest), I just went for a routine check up today and found out that my protein level in my urine is at an all time high. So the doctor is pushing me back up to 30mg of prednisone. Its 2 am, and I am sitting in bed crying because I don't want to have to go through everything again; the weight gain, the moon-face, everything. I know I may sound shallow, because ultimately, the medicine is keeping me alive, but the side effects are terrible. Very few people understand that its not fat that you're gaining, and the remarks that I know I am going to get are enough to drive me insane.Is there anyway the water retention or the weight gain can be stopped or decreased?
-- By tiffanyt | Reply | (5) replies | Private Message me
January 26th
2009
1:00 PM
I was put into the hospital in March '06 after using a carpet protectant that I purchased at the pet store. The chemicals in the product burned my lungs and I spent about 3 weeks in the hospital and was given prednisone for 10 -12 days. I remained in the hospital after my lung function increased because of the sever pain in my knees. My husband was going nuts trying to tell the doctors that he read on the internet that prednisone causes problems with knees and joints but they didn't believe him and kept running tests. They eventually switched the steroid to solumedrol and the pain decreased. I was sent home with less pain which eventually went away....but not for long. 7 months later, I began to have knee pain, which continued to get worse each day. The 1st Ortho told me that I tore a ligament and that the dead bone on the MRI will grow back. I didn't like that answer and eventually went back to an orthopedic surgeon I saw a few years prior for an injury I had while doing gymnastics. He took one look at my MRI and diagnosed me with AVN in my right knee. I got my 1st total knee replacement in August '07, a manipulation in October '07. While recovering, I noticed that my left knee was hurting and thought it was from using it so much and compensating for the right one......but I was wrong. I got an MRI on my left knee and once again, I have AVN. I got my 2nd knee replacement in January '08, a manipulation in February '08 and a 2nd manipulation in March '08. I'm now 29 years old, with asthma (from the carpet spray) 2 fake knees and have had the worst 3 years ever while going through all of this. I now have pain in my 1st replaced knee......under my knee and toward the inside. I go back to my surgeon tomorrow and am dreading another surgery.
If anyone has any questions, I'll try to help you as much as I can.
J.
-- By jeechunk | Reply | (2) replies | Private Message me
December 8th
2008
3:39 AM
So basically this is my story.. I am 19 and have had severe asthma every\ since I can remember. I took prednisone up until I was 14, and from what I can remember I just stopped taking it around then. Then when I was about 18 I started up again because my asthma got worse. Between the time period of 14-18 I still had asthma, but started working out and became very active and healthy.I lost alot of weight had VERY THICK long hair. Then at 18 I got very sick and my doctor put me on prednisone knowing my asthma history. After being on it for a month my hair has become thin, I have gained weight, my face has rounded, my skin used to get tan very easily but now just flushes. I have headaches all the time, can't sleep at all during the night, then crash during the day. I am constantly depressed. I always have to pee. I can't be at the gym for more than 30 mins and then I just die im so tired. I can go on and on. I have tried so many time to get off but like I have read from the above comments,I become very sick and lazy I literally can't move. But what I need answers for, and what I was wondering, has anyone started to get hives/rash after coming off or being on prednisone. Every time I try to wean off of it I get them all over my legs!! NOTHING and I mean NOTHING makes them go away except when I start up prednisone again. My doctor thinks its okay and no other doctor can figure out why im getting these hives but its so obvious its from that because when I go back on it goes away. This is not a good medication to be on. I haven't seen hair loss as one of the major side effects but has that happened to anyone else. im praying to god i can wean of this drug if anyone knows anything pleaaaase let me knowwwwwww
-- By rileyb1989 | Reply | (6) replies | Private Message me
December 4th
2008
10:53 AM
I have been on prednisone continuously now for 15 years. I was put on it in March of 1995 for a lung condition called chronic eosinophilic pneumonia. I was 122 pounds when I first started prednisone. Now 15 years later I am 197 pounds. I am 35 years old with osteoporosis. I have dealt with depression, terrible headaches, stomach ulcers, hormonal imbalance, hair loss, swollen feet and ankles, I now wear glasses when I didn't before, I have thin skin now that looks older than my 35 years, I deal with night sweats, and in the summer out in the heat my very round moon face turns red as a beet. But, no one can get me off the prednisone. I have seen many specialists, and within 1-2 days of starting to wean past 10mg I get so sick I have to be hospitalized, I literally can't breathe or live without it. I hate this stuff and what its done to me, but I have no choice but to take it or I will die. Doctors have tried alternate medications, nothing but prednisone works. If there is ANYONE who has had to be on it as long as I have or have had success in getting off it after being on it for so long, I would love to hear from you.
-- By belladonna15533 | Reply | (4) replies | Private Message me
November 24th
2008
6:53 PM
I was put on prednisone for asthma. I tapered down from 80 mg to 10 mg over 2 weeks. After coming off of the prednisone, I experienced nausea, extreme dizziness, felt disoriented, and had muscle weakness so bad that I could barely stand up. After several trips to the emergency room, my doctor, and an endocrinologist, they figured that I needed to be tapered off of the prednisone more slowly. The endocrinologist started me back on 10 mg of prednisone and tapered me down to 2.5 mg. Since I have stopped taking the prednisone, I have experienced dizziness,headaches, tremors, a rapid pulse rate, blurry vision and a sensitivity to light. I have been off the prednisone for two weeks now and every day is different. I have some good days and some bad days. Although I have my strength back and the nausea has subsided, the dizziness is debilitating and it seems that my balance and fine motor coordination is off. I feel very mentally foggy. The doctors do not seem to have any answers for me as to why all of this is happening. It has been a very scary and frustrating experience. I am concerned that the prednisone has done some serious damage to my nervous system. Has anyone ever had these side effects? Do they eventually subside and how long will it take? It has been the longest month of my life dealing with all of the effects of this medicine. Any advice would be appreciated.
-- By 46075 | Reply | (2) replies | Private Message me
November 8th
2008
1:40 PM
I am writing on behalf of my elderly parent, Carmela, who has been diagnosed with Lupus since 1991. She has been on a small dose of prednisone since her diagnosis in 1991. In the last several months she has developed very many odd hazey type grey spots all over her body. Dermatologists and doctors are not giving her any answers. They took her off predisone because they THINK this may be the cause. She is on an inhaler and does not like it. She wants to go back on the prednisone as she is feeling chest congestion and lethargy. I read an article on the internet that describes prednisone may cause unusual bruising. I'm not sure if this is what her spots are. They are only the color grey and appear to be beneath the skins surface. They are soft or hazy looking. They are small, about the size of a dime. Has anyone heard of this before in Lupus (prednisone) patience. Any info you have is sure appreciated. S. ******
-- By suebinsted | Reply | (1) replies | Private Message me
October 25th
2008
2:33 PM
What side effects should one expect who has been prescribed 1000mg (one thousand) oral Prednisone.
-- By 47140 | Reply | (3) replies | Private Message me
October 24th
2008
11:24 AM
Crohn's Disease. I took 80 - 100 mg of this double-edged sword of a drug for over a year. I never noticed the side-effects (moon face, mood swings, permanent fat tissue swelling). I was so very ill from the Crohn's that nothing else existed.
Prednisone worked wonders in the short term, but trying to get off of it was an entirely different story. This drug plays an integral role in the body and touches critical systems and weaning off of it is awful. In the past 10 years, it seems that doctors are more careful about prescribing it, but too often I think people find themselves on the other side of it and seeing how the long-term effects and side-effects have severe impacts on their life.
If you haven't started taking prednisone, make sure you read and research it before you do. It took me at least a year to get used to living without it, and I needed surgery to remove the fat-tissue under my eyes because it was so swollen.
-- By kakareka | Reply | Private Message me
October 22th
2008
11:40 PM
I had a chronic sinus infection and my doctor put me on Levaguin and 80 mg of prednisone. I am 62 and I take only synthroid as a prescribe. drug. I told my doctor I was a borderline diabetic. She told me the side effect were bone weakening in the hip and pelvis and stomach upset. At first I had a lot of energy and sleep a lot less. I just thought I was getting better. I tapered down to 1 1/2 . After taking them for 11 days I was not able to function. My body was under extreme distress, I have very excellent blood pressure and I am in very good health. I have been off the drug for 4 days. I am still experiencing sweating, hypertension, extreme muscle spasms. I am unable to wear my contacts, I am short tempered and I am normally the opposite. I have horrible headaches and I very seldom ever get headaches. I told my doc and she said it would go away in time.
My body is fatigued I am have trouble focusing,sleeplessness. I don't know where to turn at this point. Sometimes I feel like I should go to er because of the hyperventilating and rapid heart beat. I am afraid to exercise. I am eating a lot of high protein foods, I am not gaining weight, I have lost 7 lbs in two weeks. PLEASE EVALUATE THE RISKS OF THIS DRUG IT HAS BEEN A NIGHTMARE FOR ME. DOCTORS DON'T ALWAYS TELL YOU THE WHOLE TRUTH AND THEY NEED TO BE HELD ACCOUNTABLE FOR THIS.
October 21th
2008
2:36 AM
Hi everyone.
I was prescribed prednisone for a hand injury that the swelling would not go down. I took it for 4 weeks. In the end of the first week I started breaking out in a rash that itched like crazy. They were small bumps that had nothing in them and they itched so bad I scratched them raw in my sleep. I informed the doctor about the rash and he told me it was to late in the game to get any side effects. This medicine also caused me to become very irate from any little thing. It also made me to lose my job while under a workers comp doctors care. This was about 6 years ago and I still am battling the rashes. They come and go but when they are apparent they take a long time to go away. I used to heal very fast but now it takes forever for an injury to heal. I have had blood work done and even had my liver checked out. They say I am as healthy as a horse so to speak. The rashes have scarred me all over. The bumps would turn to sores that took about 6 months to heal and they hurt, burned and itched all the time. I tried everything to control the itch and pain. I finally mixed aspirin with alcohol and some lotion together and this helped enough to get a fairly good night sleep as I was becoming exhausted. I am learning to deal with it in time but I will never be the same. My thinking is far from my normal thinking.
I had a list of side effects from prednisone and it was four pages long and the very first one was, Instant Death! The only side effect I was told by the doctor was that I might become easily irritated. In my opinion I think all doctors should give you an option after he has presented you with ALL the side effects of a prescribed drug and let you be the judge if you should take it or not. I now have a different doctor and he has prednisone as a drug I can not take. This medicine might be good for some people but it can have life changing effects for those that can not take it.
I feel for anyone that has had bad effects from it and hope you get over it some day.
October 6th
2008
3:29 PM
My 15 year old son was put on prednisone for orbital pseudo tumor about 5 weeks ago.He hasn't had many side effects except vomiting and the pattern seems to be every other day he has tapered down from 40 mg. to 20 mg. I thought maybe the pseudo tumor might be causing vertigo , i don't know if vertigo is sporadic like this? The vomiting didn't begin until right before his next day reduction on his prednisone. I don't know what to think of this drug at this point ,it did make his eye which was swollen completely shut, begin opening up about 5 hours after his initial dose of 40mg.But i don't know why he is vomiting off and on and it didn't completely stop his eye from hurting. Now the doctors want to biopsy his eye muscle since he is not responding well to prednisone reduction.God be with you all who are struggling with this medicine.
-- By cj62 | Reply | (1) replies | Private Message me
October 2th
2008
2:25 PM
Hi All,
I was diagnosed with dermatologists when I was 14 years old and put on very high dosage of prednisone to get my disease under control (40 mg a day at the beginning). My muscle enzymes were out of control (CPK was almost 8,500 when it should be s no control so I would suggest contacting doctors in Europe or Asia directly or through your doctor here in the states. Anyways, I wanted everyone to know that some people do get better and I wish you all the best of luck!
-- By jovan | Reply | Private Message me
September 28th
2008
3:49 PM
I have asthma and have been prescribed prednisone several times for it. Every time i take it i break out in an awful acne looking rash all over my arms and my chest and sometimes even my face. it doesn't start until about 3 days after i have started the medicine and it doesn't go away for about 2 weeks and it itches the whole time. I told my doctors that every time they would try to prescribe it and they did not believe me they said no one could be allergic to prednisone but it has happened to me 6 times now and it has never happened before i had prednisone or on many other medicine since then.i finally got them to switch the steroid to a different kind but every kind seems to do it. i had to refuse steroids the last time i was in the hospital for my asthma they just would not accept that i could not take the medicine.
-- By readytogo12367 | Reply | (1) replies | Private Message me
September 16th
2008
3:40 PM
Hi I am a 44 year old asthma patient. I have had asthma since the age 2 and have been on & off prednisone since that time. As a child until age 20 I was on predinsone daily. My question is has anyone experienced nerve problems due to long time use? I do have muscle weakness and spasms, but I am interested in if anyone has had nerve problems. Please email me at ****** and refer to prednisone.
-- By maureen1 | Reply | (2) replies | Private Message me
September 11th
2008
10:36 PM
Hi everyone,
i need to tell you about what just happened to me, because it seems most people are definitely not informed of all the possible side effects of prednisone - not only just relating to the dose of prednisone you take but also for how long.
I have been using prednisone for almost 14 years now, the doctors all tell me i'm unlikely to ever get off prednisone now because i've been on it too long. I know all about it's usual side effects (water retention, mood swings, thinning of all tissues including blood, acne, anemia, etc etc).
One side effect i was not advised of, not even in any educational material about prednisone either, was that long-term dependence can lead to Acute Adrenal Crisis. Which is deadly if not diagnosed and treated promptly. Thus i nearly died two weeks ago. I became rapidly ill with vague symptoms that i now know are symptoms of acute adrenal crisis. *THE ONLY REASON THE ACUTE ADRENAL CRISIS OCCURRED WAS BECAUSE OF LONG-TERM USE OF PREDNISONE*. Not many doctors will warn patients in advance of this. It is however, very very important that people are aware that long-term use of prednisone needs to be very carefully weighed with the benefits of using prednisone (i was started on prednisone in 1995 to treat severe Crohn's Disease).
Acute adrenal crisis can happen over weeks, months or years - in other words, it can come on so slowly that by the time you know there's something wrong you're already very very ill and in great danger.
I am very glad to have found this website and i hope you will all refer anyone who has any experience with prednisone to this site - education and knowledge is power - the power to stay alive.
(by the way, the treatment for acute adrenal crisis is to load up on prednisone - seems i'll probably never be free of this drug unless i can get my adrenal glands to begin working again (as prednisone "takes over" for the adrenal glands and they effectively go to sleep, and this is especially true for long-term use)).
My sympathies to everyone who has to go through the many nasty experiences with prednisone, especially the young children (I had to start it when i was 16). It really does mess with your body and mind, and in my case, became lethal.
Please pass on all your information relating to use of prednisone to everyone you can - it really is that important and seems to be the only way to avoid most of the disasters related to prednisone use.
take care everyone,
Linda
(Australia)
September 9th
2008
8:53 PM
Several years ago I saw a doctor at the University of Iowa Hospital and Clinics in Iowa City, IA and was diagnosed with a chronic disease. Although most researchers and scientists will tell you lifestyle and dietary changes are essential when diagnosed with a chronic disease, my doctor, Dr. Anne L., told me they don't matter. In the spirit of "Do no harm," dietary and lifestyle changes are often the first things doctors recommend their patients change.
Instead of harmless lifestyle changes, I was put me on a lot of dangerous prescription drugs. One of those dangerous drugs was prednisone.
It didn't help my disease, but its side effects have been devastating and debilitating. And these side effects are particularly annoying because I was told this was a drug that didn't have side effects. (And when I learned about the side effects, I wanted to stop using it, but my doctor told me I'd die if I did. So I had to keep using it. Once you're on prednisone, you can't stop taking it abruptly. It really can kill you. So before you take it, you need to be informed. If you later found out its a drug you don't want to take, you can't just stop.)
But this is what I really wanted to say.
Look, prednisone's a bad drug, and most doctors don't prescribe it so casually anymore, but under the care of a good MD, its effects can be managed. Most docs will tell you right away when you go on prednisone about the side effects that most people are concerned about, like weight gain and acne. The fact is, those things actually matter not just superficially, not just for self-esteem, but in terms of people's overall health and even for managing the chronic disease for which prednisone is likely prescribed. If one becomes depressed, this not only affects one's overall general health, but for many chronic diseases, it can cause the disease itself to relapse. And because prednisone itself carries a risk of depression, managing such side effects, side effects that are likely to make a patient become depressed, is paramount.
Certainly most doctors will readily prescribe either topical acne treatments oral antibiotics for cystic acne which prednisone often induces. For the weight gain itself, ignoring the chronic disease for which prednisone is probably being prescribed, doctors often recommend a different diet to the patient.
My point is just that prednisone isn't as evil when you have an average or mediocre doctor.
Now, on the other hand, prednisone really is a bad drug to begin with. So under the care of a bad doctor, it's almost inevitable that you're going to experience permanent side effects and yes, under such incompetent care, this drug could easily ruin your life. That's what happened with me.
So make sure you have a good or at least mediocre doctor if you're using this drug.
And as far as dietary and lifestyle changes, I've been able to manage my disease solely with dietary and lifestyle changes. So I didn't need prednisone in the first place. Regardless, I would never take this drug again and I would not recommend anyone else take it unless you have exhausted every other possible option, unless you know you're doctor is competent, unless you know about the risks and side effects and what to do when they occur.
I never would've taken if I knew about the side effects. It's really quite stupid to use this drug as a first-line treatment, which is how it was used in my case. It should only be used as a last resort, if at all.
If I had never taken prednisone, I would be perfectly healthy today. My chronic disease itself doesn't influence my daily life at all anymore. But every single day the side effects of prednisone are evident and debilitating and will be for the rest of my life.
-- By bresson | Reply | (1) replies | Private Message me
August 13th
2008
12:27 PM
Hi All - I have been off prednisone for one week and I am not doing as well as I thought I would be at this stage. My symptoms are not flaring, which is a very good thing but I am so tired and feeling very depressed and low energy. I thought I'd feel great once I was off the evil prednisone but so far I am feeling almost as bad as when I was on it. My moon face has not started to go away, which sucks, but I guess I have to be patient. I am so tired of this situation as it feels never ending. Part of the problem is I have continued to work throughout my ordeal, and it's been very hard at times to carry on like a normal person who is not sick. I have been sick since last November (with an autoimmune disorder) and I had really hoped by this time that I'd be on my way to being better :( Prednisone saved my life but the side effects are horrendous, as are the after affects of it. Good luck to all who are taking it. I share your pain and frustration.
-- By catzmommy | Reply | (6) replies | Private Message me
August 11th
2008
1:19 AM
After a year of battling effects from an eye injury, an optho-neurologist finally came to the conclusion that I had orbital inflammatory psuedo tumor. I was told to take 60 mg immediately and then take 2-40mg doses (AM and early afternoon). On Friday, July 18th I took 60 mg at 6:30 p.m. and was so nauseous and barely slept. That next day I took 40mg in the morning and another 40mg around 2:30 p.m.. Although I had been, throughout the year, experiencing pain in my left eye and cheek..what I experienced by 4:00p.m. that next day was more severe than ever. I started having shooting pain and a headache so excruciating that I was in tears. (I had two children naturally).
By 10:30 I had several hours of this pain when the worst happened. The left side of my face drooped and I had difficulty speaking. By the time I got to the hospital I could not move my left arm and left leg. After five days in the hospital and every test imaginable (cat scan, MRI, EKG, etc) they ruled out all stroke, MS and anything else that would show up on these tests. During the hospital stay (although they did not cite prednisone for this event), they started tapering me off. I went from 80 to 50 in one of these days and thought I would DIE. There was no pain reliever/narcotic strong enough to take away the headache. I spent ten days tapering and prayed every day for the end. Sweating, no sleep, crying and did I mention...my headache has still NOT gone away. I have a couple of hours here and there without this pain but for the most part I have been in this hell even after my taper. The clincher is that NO ONE at the hospital or afterwards would admit that this was a side effect but they also could not provide a response. It took three weeks for me to work my way back to walking and using the left side of my body. Has anyone heard of this before? Good luck to all of you, it has meant a lot to read your comments.
August 8th
2008
10:49 PM
My husband initially took Prednisone after getting strange lesions, severe joint pain, severe fatigue and severe stomach cramps/nausea. It worked great he was tapered off and no problems for about 18 months. Then he go sick again (2/08) and has been up and down on Prednisone for 7 months- currently taking 60 mg. daily. Some doctors think he has Wegener's, but testing is inconclusive (Wegener's starts with upper respiratory stuff, which he also had). His mood swings are severe and he's a different person, twitching, hand trembling, muscle spams, malaise, anxiety/depression, very fatigued, insomnia, severe stomach cramps/vomiting. How do you tell which symptoms are the Prednisone and which are the disease process? They want to taper him to make him sick enough to get some test results that show organ damage or something, but everyone chickens out and he ends up getting increased. How long should he be on Prednisone and not be put on something stronger?
-- By sonjajazz | Reply | (3) replies | Private Message me
July 24th
2008
1:35 PM
The first time I heard the word prednisone was late Dec 07 when I was hospitalized for severe pneumonia. I started off with a bad sinus infection that quickly advanced into pneumonia in a matter of a couple weeks. I tried 3 courses of antibiotics but I continued to get worse and got to the point where I was unable to breath on my own. Within a day of being at the hospital I felt like I was living in a dream world and from there I continued to get more stoned by the minute. I had no idea I was being pumped full of prednisone intravenously, along with my antibiotics. I was given a dose of 250 mgs daily, and obviously it was way too much for me. As I progressed into my dream world, I had a couple of “episodes” where I acted completely out of character, and got really paranoid and highly emotional. I pulled my IV out of my arm the one night and sat and watched the blood dripping from my hand, not really understanding where I was or what was going on. Later on I got really paranoid that the nursing staff was conspiring against me and talking about me behind my back (lol) , which I normally would not care about, but for some reason it made me really upset and I sobbed uncontrollably at times. I also tried to leave my room in intensive care a few times, as I was convinced that I was not supposed to be there and wanted to go home. My doctors were really freaked out so they gradually lowed my dose over the last few days I was in the hospital, even sent me for a CT scan of my brain in case I was going crazy. Prednisone is an extremely strong and evil drug – that is why I had the adverse reaction!! Not because I’m crazy! And one should never be given a drug like prednisone without their knowledge!! A few weeks after leaving the hospital I started going down hill again and the doctors realized that what I had was an immune disorder and not just pneumonia per se. After a few months of on again off again prednisone (never longer than a week at a time), I was put on a daily regiment (50 mgs) of it starting in May. Since then I have experienced all of the same side effects noted by everyone on here, weight gain, sleeplessness, anxiety, hair growth (the worst is on my face and fingers!!) dizziness, confusion, trembling hands, tooth aches, and the worst of all , big time MOON FACE! I feel like a complete freak most days. I am now tapering and am down to 10 mgs. So far I have seen no improvement in the side effects, accept now I have withdrawal side effects on top of everything - nausea, headaches, flu like symptoms and trouble breathing. I HATE this drug, even though I know it ultimately saved my life in the hospital and my kidneys – as I had complications caused by the autoimmune disorder. I see my doctor next week and I want off this drug completely. I am not sure the benefits out weigh the side effects to be honest. I want to feel normal again and be able to recognize my own face in the mirror People should use extreme caution when using this drug and it should only be used to save people’s lives, not used for minor things like poison ivy. That is unconscionable!!!! Good luck to all who are on this drug.
-- By catzmommy | Reply | (2) replies | Private Message me
July 2th
2008
8:34 PM
Prednisone is a popular medicine used to treat inflammation, but actually it is close to useless for anything. It can cause infections to flourish so any MINOR infection can blossom into acute wide spread sepsis. PLEASE use with CAUTION!!!
-- By 47140 | Reply | (1) replies | Private Message me
June 25th
2008
8:39 AM
Hi my son was on Prednisone for 20 years on and off for allergies now he is allergic to the Prednisone that the creams would help him was crap. At no stage was he or I told of the side effects. Now he is in intense pain has major skin sores, swollen knees and ankles, night sweats and sleep problems. This medication is terrible and now he sits hunched up like an old man his skin is so sensitive he needs painkillers for a bath or shower.
-- By neroli | Reply | (1) replies | Private Message me
May 31th
2008
8:48 PM
Prednisone
I am 17yrs old and i take prednisone. I was diagnosed with kidney falier when i was 13. i had my transplant at 15. well I have come to hate prednisone, I use to be 127lbs and now well lets just say i am way above that. Today i went online to find out how to reverse the side effects of the stupid medication but i can't.If you take the time to read this you should really look up cushing disease because you might want to know what that is if you are taking prednisone.No matter what i do i still gain weight.One time i went to on of my Ann Arbor checkup's and my food doctor said i was not eating enough i was on the line of developing an eating disorder.I have asked my doctors how to get rid of these horrible side effects and all they say is exercise,exercise.Well i am always active and still no results.They always check me for some of the side effects that i read above like the yellow in your eye, the lumps in your armpits swelling in my legs etc. well i hope you never have to take this medication if you do then you know what i am saying.
May 23th
2008
2:20 PM
My 15 months old was given prednisone for 5 days for an allergic reaction to either aints bites or Bactrim (doctors don't know). Anyhow he had like 10-15 BMs a day, maybe more, actually diarrhea. Went back to the doctor, she said that prednisone doesn't cause diarrhea. Well, let me tell you (cause I couldn't tell her), she needs to go back to school...prednisone caused severe diarrhea in my son!!!
-- By myson | Reply | Private Message me
May 21th
2008
1:19 PM
My Dad about 65 lost sight in one eye recently. Now the doctors are saying he is losing his sight in the other eye. He was on Prednisone for years. Recently he has been taken off. The doctors say they have a 30 day window to find out what is causing this inflammation or he could die. He is also diabetic and has sarcodosis. He has an MRI scheduled. Prednisone should be banned.
-- By deneese | Reply | Private Message me
April 27th
2008
3:41 PM
Well folks, its coming off time and it is no fun. i have only been on l5 mg and under for a short time, but im weaning and have laid aside the entire week for that. im tired, very sleepy, headache and feel as if a spoke or two is missing.lol
-- By debra2 | Reply | (3) replies | Private Message me
November 22th
2009
11:22 PM
There is a way out!!! Started taking Prednisone 25mg for acezma a few years back, had constant heart ache and fatigue during the month that i took it. But real choas strike after stoping it, later on i find out it was because i stopped the dosage too sudden, i must slowly reduce my tablets from 4 pills a day to half a peel a day n than none, over a course of 2 weeks so my body can adjust without it. (shity doctor did not give clear instruction). I was constantly shaking uncontrollably, had shortness of breath, i always felt cold n hollow inside, my skin was so painful with stuff ozzing out of the never closed wounds... went to the hospital, seen countless doctor... but my body was still not healing bk to normal, i was 21 years old. But than i went to c a chinese medicine doctor. they acknowledge that due to these steroids medication my body is failling n they gave me chinese herbal medicine to boil n drink for about a month! (it stinks sooooo much!) but i could c the impovement in two weeks, now i am alive n kicking, feeling my youth n strength has came bk to my body! is always better to heal a steroids/drugs demaged body with natural herbal therapy than seeing more doctors, getting more drugs in ur body.
-- By naturally_quiet | Reply | Private Message me