PredniSONE and god

short and unsweet, was put on it for osteoarthritis by a bone doctor ,took it for 1 week and had to get off it because the side effects were horrible. panic attacks, severe mood swings, dizziness, disorientation and more. The worst was yet to come 2 days after I told my doctor I couldn"t take it anymore. I was getting ready for work and thought I was having a heart attack. I drove myself to my doctor (praying the whole way, cuz God is in charge). He took my blood pressure which was 200/187. I was rushed to the hospital where I was admitted and put in the cardiac unit overnight for observation. Thank God I was released the next day with no APPARENT side effects. I have not been right since. I still have panic attacks, severe mood swings and fluctuating blood pressure. Do yourself a favor and when anyone mentions Prednisone RUN! Oh, I forgot to mention my doctor said had I waited another 20 minutes I could have been a goner. My osteoarthitis is worse(now I have to see another specialist) and I have medical bills out the wazoo. Prednisone is a very very dangerous drug nd the doctors are still prescribing it. What is wrong with this picture.

I am so relieved to have found this site... i have been miserable for almost 2 weeks, i broke out with hives last week and never found the cause but with that and some breathing problems they put me on prednisone. I have been miserable since, i couldn't eat drink sleep or do anything else at all pretty much and i have had diarrhea, and a ton of other symptoms... i feel bloated acid reflex muscle aches headaches dizziness chest pain & pressure very weak feeling mood swings and depression the jitters and heart racing and from what i read and researched this is all from the steroid prednisone.... thankfully the doctor ended my dosage sooner than it was prescribed and last night i took my last pill... i now am just wondering when or how long will it be till i feel myself again and can have a good nights rest?? I will never use this medicine again!! I am just soo relieved to have found some answers on here.

Was on Prednisone for 11 days for an injury to my neck. I knew nothing about the drug except what my doctor told me that it would reduce inflammation in my neck and help with pain.

Well, it did nothing for the injury and pain in my neck. BUT.... I had HORRIBLE menstrual cramps and got my period 8 days early. I've had my period for 9 days now AND terrible pain in my upper left leg. I thought the pain was related to my leg and as the days went by I realized it was in my left hip! It's so bad I can't lift my leg without extreme pain. I KNOW IT'S FROM this awful drug.

I've been off of it for 4 days and the pain is still with me. I called my family dr. and was told Prednisone doesn't do that. BULL!! The paperwork I got with it from the pharmacy show "Changes in menstrual periods" "muscle/joint pain" "bone pain".

I wish I knew this BEFORE I ever took it.

Does anyone know if these symptoms and problems will go away after stopping it? I called the pharmacy and was told it will take 2-3 weeks for it to get out of my system!!

Has anyone had problems that eventually went away after stopping the drug?

Thanks and I hope everyone else is okay soon! This drug should be off the market. I received no help for my neck pain at all!!

Another update:
It has been 16 days off the prednisone and I still have the puffy face and the hives have returned. The Dr. said they could not send me for allergy testing because the prednisone would interfere with the tests for a month or 2. Wow, I had no idea this stuff can stay in your system for such a long time and I only took it for 7 days, so my heart goes out to all of you who have been on this drug for months or years. I can't even imagine what you must be going through. I was put on this drug for hives, but some of you are on it for far more serious conditions so I have no idea if it would be wise or unwise to discontinue this drug for those of you in that situation. Talk with your doctors tell them you want off and to advise another alternative to at least try. I see that the prednisone is no cure for hives it just treats the symptoms and as soon as the prednisone was stopped the hives were still there. In my case the chance of this drug damaging my body for just a moments relief from hives was not worth it. How wonderful for those who are able to tolerate this drug but for most people it seems to have horrible effects on the body. May God help you all to make the right decisions.

I have been on various doses of prednisone on and off for 9 years for a kidney disease. The doses have varied from 70mg to 5mg. I have just about had enough. I cannot describe how debilitating this drug is. Every side effect on here I think I have had except excessive energy. Here is a small list:
Moon Face
Buffalo Hump
shaking like Parkinson
body aches
EXTREME weakness
heart palpitations constantly
joint pain
something would go on with my knees in the morning....it felt like something was boiling. It would be my guess as to what the "Bends" must feel like....it feels like someone is stabbing you in the knees with a knife.
Sleeping at least 16 hours a day
I could barely make everyday at work. It was so miserable to not be able to wake up, I would push myself in 15 minute increments....
You cannot know what it is like to be bed ridden for weeks and to have no doctor understand or believe what is happening to you. You just seem fat and lazy.

I am emotionally scarred by this medicine, there is not a day that goes by that I'm not terrified of having to take a large dose of this again. I just can't.
There is no quality of life at all. You can't do anything.
On top of that, there is no one to talk to, not even a doctor that understands what you are going through.
God help anyone that has to go through this. I understand.

I was diagnosed with Rheumatoid arthritis at the end of 2007 and have been on prednisone since then. I started on about 105mg a week and am currently trying to reduce it but it is really hard as the moment the dosage goes down I lose all mobility and cannot even get out of bed. I am only 23 years old and really feeling the disease to the extent that I cannot even cope with my life. The prednisone has really taken its toll on me and the side effects are crazy! I just want to go back to my old self as I am finding it sooo hard to get through a single day. My side effects include:

Insomnia, tooth sensitivity, depression, anxiety, mood swings, moon face (my face is so swollen that I cant stand looking in the mirror anymore, dizziness, temper, feelings of uselessness, nightmares, night sweats, water retention, and to top it all off the arthritis is getting worse and I am in constant pain. Is there anything anyone can suggest then please help me!

I started taking prednisone when I was only 12 years old and I was on it for about a year and a half. At the age of 10, I was diagnosed with glaucoma, uveitis and cataracts and for about 10 years now I have had all these illnesses. My experience with prednisone had been HORRIBLE. Within two months alone, I gained 50 pounds, my skin started to get really really thin, I started to develop stretch marks ALL over my body with the only exception of my face and hands. I started to get the chipmuk cheeks to the point that my family was afraid that I was going to literally explode. My liver was damaged. My kidney was damaged. The vertebrates in my spine where being chipped away. There was a point in that year and a half where the doctors told me that there was a 70% chance of me going blind. The bottom line was that PREDNISONE WAS BRINGING NOTHING FOR ME EXCEPT RUIN. On top of that, I was constantly depressed. Kids at school would point at laugh hysterically at me. And if people weren't laughing, they were struck by fear and were trying to figure out what exactly I was. I remember this one instance in my school cafeteria where one girl stood up on the lunch table, pointed at me and screamed SHE'S AN ALIEN!!

I was and still am scarred physically and emotionally. My arms and stomach are really saggy because the skin is soo thin. As I said my entire body is scarred with stretch marks. I can't show the slightest bit of my body to anyone because I am so ashamed, embarrassed and afraid of peoples judgments. I am afraid that no one will ever want to be in a relationship with me.

All I can tell you is that though I stopped using it about six and a half years ago, this dreaded drug has truly ruined my life from the very start of my childhood.

I have been on prednisone for 11+ years due to having had a heart transplant. The prednisone keeps my heart from rejecting.
I have not taken it for 2 days and I am in the process of passive suicide.
I am driving out west into the desserts to sit and die. I can no longer
be around people for I am afraid I may kill someone or at least significantly hurt them. I have been homicidal and suicidal for 11 years due to this med. I would enjoy killing everyone and everything. I hate myself and I want to die.
Prednisone made me become "Evil"; Hell incarnated. I don't want to live
in a mental institution and my doctor will only give me Seroquel thinking this will help me. I tell him it doesn't help me but he thinks it does. Stupid fucking doctor. My transplant docotrs won't even listen to me when I talk about "mental" issues. Everything pisses me off. It is raining outside and this makes me so mad and stressed.
I have been in this psychotically angry and agitated state of mind for 11 years. I have punched myself many times in the head and banged my
head against walls trying to get homicidal and suicidal thoughts out of my mind to no avail.
I would like to try ECT (electro-convulsive-therapy) but I won't even
mention this to my doctor because he will literally laugh at me and make me so god dam mad that I would enjoy killing him right then and there. I'm sick and tired of living in hell everyday.
Do not take prednisone no matter what, unless your life depends on it. And then what type of life will you have? Maybe a life full of hate, rage, anger, homicidal and suicidal thougts even when you dream.
Fuck life!
Arthur X 1968-2009

Due to chest infection I was on bottle after bottle of prednisone for 3 months.
I had the nerves of full blown menopause with no relief!! Thank god for a caring family. They could have walked out, no one could have blamed them. Anyway, I went on vacation for one week 9 months later, and came home with my 5th, yes 5th bladder infection, Dr. put a test strip, and low and behold...I have diabetics and (my number was 495 a1c was 10+), steroid induced he told me. 2 years later I do not eat sugar at all, (numbers are 120+ aic is still 7.5+) I still have diabetics and cataract in right eye. No one in my family has it, just me. Better make sure the cure for one is worth a lifelong battle with the other. There must be a better way to fix lung infections!!! I also had a heart attack since then, don't know when it just showed up on my last physical, I was clear on the physical prior to chest infection. I now have a DNR tatto on my right wrist...I don't have insurance and I'll be damned if the medical profession ends up with what little I have to leave to my family. As I said, make sure the cure is worth what it may cost you!!!

I was on Prednisolone for 6 weeks and finished them 2 weeks ago....I gained 18lbs in weight, which I still haven't lost..The swelling in my face has started to decrease...My stomach is so bloated, I look about 6 months pregnant and cannot get into any of my Jeans..I suffer permanent indigestion and constipation, plus discomfort and aching in my chest and around my heart..I have booked to see my GP again this week as I feel so uncomfortable.

OMG...I can't stand it anymore!! My legs are killing me!!...I am almost weaned off of it...tomorrow I take one 10 mg pill....and then the next day, I take 5 mg....and I'm done. Thank God!! I pray that I have no bad side effects from weaning off of it. I worry that I won't be able to breath again. Then what??...I will not take prednisone ever again!!...I think I would rather die then live on this horrible drug....If only I knew what it was before I started taking it.

I have COPD and with every cold that settles in the chest, I'm back on the antibiotics and prednisone. Like many of you, I hate it. When I first started it was with the dosepak and that didn't bother me at all, no side effects, but with progression of my disease and lungs getting worse, I'm now told to take 40mg for seven day and stop...NEVER, I have always take the 40 for 2 days and tapered down 10mg every 2 days. The last two times I've been on the pred I have been so nervous, almost tremmors, headache, muscle aches, dizzy and just can't put up with the side effects.
Like everyone else I'm told they are probably not from the pred. Took my last pill this morning and I thank God for that. Think I'll just have a little talk with Him and if He is willing, I won't need the ugly medicine.
God Bless all of you who have to take prednisone, I do know how miserable it can make you feel, and it just seems to get worse.
TALK TO YOUR DOCTOR, NO TWO PEOPLE ARE ALIKE AND NO MED IS RIGHT FOR ALL OF US.

So basically this is my story.. I am 19 and have had severe asthma every\ since I can remember. I took prednisone up until I was 14, and from what I can remember I just stopped taking it around then. Then when I was about 18 I started up again because my asthma got worse. Between the time period of 14-18 I still had asthma, but started working out and became very active and healthy.I lost alot of weight had VERY THICK long hair. Then at 18 I got very sick and my doctor put me on prednisone knowing my asthma history. After being on it for a month my hair has become thin, I have gained weight, my face has rounded, my skin used to get tan very easily but now just flushes. I have headaches all the time, can't sleep at all during the night, then crash during the day. I am constantly depressed. I always have to pee. I can't be at the gym for more than 30 mins and then I just die im so tired. I can go on and on. I have tried so many time to get off but like I have read from the above comments,I become very sick and lazy I literally can't move. But what I need answers for, and what I was wondering, has anyone started to get hives/rash after coming off or being on prednisone. Every time I try to wean off of it I get them all over my legs!! NOTHING and I mean NOTHING makes them go away except when I start up prednisone again. My doctor thinks its okay and no other doctor can figure out why im getting these hives but its so obvious its from that because when I go back on it goes away. This is not a good medication to be on. I haven't seen hair loss as one of the major side effects but has that happened to anyone else. im praying to god i can wean of this drug if anyone knows anything pleaaaase let me knowwwwwww

Started with a Pred pak for a sinus infection. Made my heart race and had tach and early heartbeat, which kept me from sleeping. Went to Cardiologist. Several doctors denied that the Pred would cause the rapid heartbeat. Then the Cardiologist did an echo and found a pericardial effusion and some weird spots on my lungs. They suspected lung cancer which may cause the effusion, so I had surgery to do a pericardial window and a lung biopsy. Then a pulmonologist decided to put me on Pred again...steady dosage...because she didn't know what else to do. (Didn't have lung cancer) I didn't have any more funny heartbeats, so maybe the pred didn't cause it after all. But I've gained 40 pounds. My hair has grown faster, and I've gotten some facial hair (not supposed to have that, being a female)...which I call fur. Moon face with cheeks that are hard, muscle cramps, can't sleep, but once I do go to sleep, I can't wake up. Tired all the time, headaches, joint pain-sometimes severe, dry skin, generally bad attitude, with very little patience, low potassium levels which add to my muscle cramping problems, difficulty swallowing, indigestion which I've never had, with painful and burning reflux. And occasionally when I eat, I have the rapid heartbeat again. I go in search of food like I'm going to store it in my thighs for winter. Anything you eat will turn to fat, including protein. Can't wait to get off this stuff which will take until June of next year. Then my doctor says it will be 3 months before all these effects wear off. No one told me I would get fur.

My 15 year old son was put on prednisone for orbital pseudo tumor about 5 weeks ago.He hasn't had many side effects except vomiting and the pattern seems to be every other day he has tapered down from 40 mg. to 20 mg. I thought maybe the pseudo tumor might be causing vertigo , i don't know if vertigo is sporadic like this? The vomiting didn't begin until right before his next day reduction on his prednisone. I don't know what to think of this drug at this point ,it did make his eye which was swollen completely shut, begin opening up about 5 hours after his initial dose of 40mg.But i don't know why he is vomiting off and on and it didn't completely stop his eye from hurting. Now the doctors want to biopsy his eye muscle since he is not responding well to prednisone reduction.God be with you all who are struggling with this medicine.

MY FATHER WAS DIAGNOSED WITH TEMPORAL ARTHRITIS. HE HAS BEEN ON PREDNISONE FOR ABOUT 5 MONTHS NOW, STARTING FROM 80MG/DAY. HE HAS TAPERED DOWN TO 40 MG/DAY,,BUT TH SIDE EFFECTS ARE STARTING TO BECOME UNBEARABLE.
WATER RETENTION,,SWELLING, MUSCLE PAIN,,WEAKNESS.
HE IS 80 YEARS OLD,,AND IT IS REALLY TAKING A TOLL ON HIM. IF ANYONE CAN GIVE ME ANY HELP OR INFO TO COUNTER SOME OF THE SIDE EFFECTS(MUSCLE PAIN AND WEAKNESS MOST IMPORTANT) IT WOULD BE GREATLY APPRECIATED.
THANK YOU.

I was prescribed Prednisone along with an H2 Blocker and an Antihistamine for a severe chemical reaction to using old lotion in a tanning bed. I only laid 2x, but I am severely paying for it now. I was only prescribed Prednisone for a 9 day treatment. By the 3rd day I had the acne. I suffered with Acne all of my life until I was 18 (I am 27 now) ... and haven't looked back at that terrible part of my life since... well, now I am faced to stare right back at it. Literally. I have only been off of the prednisone for 2 days, but I can not WAIT to get my life back. If I could take back the last 2 weeks over something so stupid and cosmetic as tanning, I certainly would. I have never had any previous problems with any of this, and this is the first time I have really had an allergic reaction to anything.... typically, Benadryl would have cured me. Although this time incurable with Benadryl and Cortisone, I regret the Prednisone. Severely. I hope this goes away within at least three weeks.. as my husband is coming home from Iraq and that is not the welcome home I want him to have (even if he is much less superficial about it then I am). Sigh.

Hi All - I have been off prednisone for one week and I am not doing as well as I thought I would be at this stage. My symptoms are not flaring, which is a very good thing but I am so tired and feeling very depressed and low energy. I thought I'd feel great once I was off the evil prednisone but so far I am feeling almost as bad as when I was on it. My moon face has not started to go away, which sucks, but I guess I have to be patient. I am so tired of this situation as it feels never ending. Part of the problem is I have continued to work throughout my ordeal, and it's been very hard at times to carry on like a normal person who is not sick. I have been sick since last November (with an autoimmune disorder) and I had really hoped by this time that I'd be on my way to being better :( Prednisone saved my life but the side effects are horrendous, as are the after affects of it. Good luck to all who are taking it. I share your pain and frustration.

My husband was stung by a wasp. He had a major reaction of hives and fainting spells. Naturally we went to emergency where the doctor prescribed.. you guessed it.. PREDNISONE !! sigh. He was told to take it only the next morning of his attack as the prednisone would make him too irritable to sleep. He woke up the next morning and all his rash was gone and he was feeling like a million bucks. NO more side effects from the wasp sting. We were always wondering WHY he needed to take prednisone for a wasp sting but wanting to listen to our knowledgeable and GOOD doctors, my husband took the prednisone. He was told to take 10 5mg pills in one shot, therefore, 50 mg. per day and then eventually wean himself off. Well, he took but the first 10 and within the 1/2 hour he developed an even greater reaction to hives than the day before. He became very agitated and moody... We drove back to the hosp. only to see the same doctor who'd tell us that he didn't HAVE to take the prednison if he didn't want to and that he was SURE that the prednisone had not caused this latest and worse reaction !!
For crying out loud. This is the year 2008. Couldn't the doctor have told us ahead of time that if the symptoms disappeared before even filling in the prescription ( which is what happened in this case ), THAT He should never have taken any drug? Prednisone is a killer. I know.. My mom DIED because of this darn drug only to find out that they were treating her for a disease that she probably didn't have after years of using PREDNISONE. These poor older people think that the doctors are GOD and that they have to listen to their every word. My husband, on the other hand, has thrown the drug away after just ONE USE. PLEASE, people, find other doctors and solutions and get second opinions.

I started taking 80mg a day for a rash I developed after the Celestone didn't work. This has been the worst hell I have ever gone throught, I would much rather have given natural birth. 80mg a day for 5 days, 60mgs a day for 5 days, 40 mgs a day for 5 days, then 20, and 10 for 5 days. I am on the3rd day of 40 mg. My face is so swollen. I have had to cancel social events as I cannot even carry on a decent conversation. The nervousness is over whelming. I cannot work . I come home and drink alcohol to take the edge off, which the affects are greatly exaggerated, but no hangover in the morning, which I'm sure is putting my body through hell. The Dr. gave me 25mg of vistarill to help me sleep. Wonderful drug! If it wasn't for my dogs, I would be insane, as they are the only living creatures I can stand to be around. I am going to cut my dosage to 3 days instead of 5 to start weaning myself off. I read on another web site that the moon face should start to dissapear when I go down to 10 mg a day. Thank GOD!

I am on my last of 10 days on prednisone and all I can say is Thank God! I am taking it for asthma and I feel worse than I did before! My chest feels like I am having a heart attack, I have labored breathing, I am confused and weak, terrible pain in my neck and shoulders, horrible metallic taste in my mouth that even Dentyne Ice can't take away, I feel exhausted all the time, I am starving myself only to gain a pound a day and I can't concentrate at all. There was no warning not to mix this drug with alcohol, and after a couple of drinks I black out. The thing that really sucks is that I am a professional flutist and it is affecting my breathing and ability to play! Someone please tell me these "side effects" will eventually go away as I am scared to death after reading about your experiences.

Hi. I was diagnosed yesterday with Bells Palsy, (the entire right side of my face is completely paralyzed) and given prednisone, a tapering dosage. I started my first dose of only 20 mgs last night and went to 60 mgs today, will keep on that dose tomorrow as well as one more day, taper down to 40 mg for two days, then 20 mgs for two days. My heart feels like it's going to beat out of my chest! I can feel it it's beating so hard and I can also hear it when lying down .Very freaky. My blood pressure today was 164/107. My normal bp is 110/70. I take medication for high blood pressure but it's not doing much good. I am also a diabetic and my sugar is whack! Had to increase my Metformin. I'm assuming since no one has died from taking this HORRIFIC medicine, we'll all live through it but at times, I feel like I am going to have a frigging massive panic attack! I have to calm myself down, listen to music, meditate. That does help some but not enough .I will be sooooooooo glad when I'm done taking this SH*T! Another thing I've noticed is I am bone weary weak, like I've run the Boston Marathon, competed in the 1000 meter butterfly medley and then played 3 sets of tennis on top of that! GOOD GRIEF, HE INVENTED THIS CRAPOLA?

I was put on Prednisonsone for Uveitis, inflammation of the eye. He started me on 20mg at 9 pills a day, then each week it was lowered to 6 pills then now i'm on 3 pills and then next week it will be 1 1/2 pill and i'll be off. I got the puffy face, my feet swelled, everytime i hate my stomach bloated and hurt, my face and neck turns red, i stayed hungry although i fought the temptation of eating for not wanting to gain a lot of weight, which I don't think I've gained any. But now I wake up in the middle of the night and severe knee pain, it feels like my knees they are in some kind of device that is crushing my bones they hurt so bad. i caught a bad cough and it's been around now for about 2 weeks and won't go away, i told the nurse about it and she says, i probably just got what everyone else has gotten, just a bad cough, well what's if it's some kind of infection? I look like a chipmunk, my face is so puffy. When i get off these prednisone in another week I WON'T BE going back on them, no matter what the case. I'm in more pain being on them and have more side effects while on them than the problem i was having with uveitis. I think some co workers thank I'm over reacting, but they're not here they don't see all the pain and frustration i'm going through while on this drug. The leg pain just started this weekend and i Know i can't deal with waking up everynight like this in severe pain. Everyone just makes me feel like i'm over reactin and it's nice to know that somebody out there is going through the same thing. Any comments will be great.

I am a 25 year old, who was perfectly healthy prior to recently when I was diagnosed with Nephritic Syndrome and Minimal Change Disease and possibly FSGS (kidney diseases) I was put on 60 mg of Prednisone for 1 month then I was lowered to 40 mg for one month and I am then dropping to 30 mg. I am also taking Fosamax for my bones and a Vitamin D pill because my last lab test showed low vitamin D levels.

I am dizzy constantly and can not live a normal life, I can not drive or do any activities that I had previously done. My chest is so tight and constricted all of the time, my heart rate is so fast and pounds at my chest. I have no energy to do anything, I can barely open a door at times. I am beginning to grow unwanted hair on my face. My abdomen is always bloated. I have pain in my rib cage, and shoulders. I feel very sore throughout my entire body. I do not really sleep at night, so I look very tired all the time.

I have actually lost weight, I have no appetite at all. I am down 10-15lbs.

Now for the Pro- my Kidney Diseases are currently in remission and this has happened much faster than the Nephrologist had thought.

I am very anxious to getting my life back to normal and getting off the Prednisone.

Has any one else experienced increased heart rate, chest tightness, or rib pain?

I wish everyone the best in their roads to recovery!!

I was on Prednisone for a year and weened myself off because of the side effects.I'm back on it now and can't wait to be off again.Not that i felt that much better off of it.They started giving it to me through my i.v. in the hospital about 2 weeks ago.I was admitted for a Crohn's Colitis flare up and dehydration.The first 3 days were ok but then i felt the Prednisone kick in.It wasn't that bad until i left the hospital and started 40 mgs by mouth.I couldnt really sleep at all.Really bad panic attacks.Crazy dreams, hearing voices.I'd wake up every 20 min. dripping with sweat.I'd panic all day and night.Now I'm being weened off and am taking 20 mgs.I'm really weak.Can hardly type this.Its hard to walk.My arms and legs feel so weird.I'm having a really hard time concentrating.I feel like I'm on drugs all the time.Really dizzy,every things funny looking.Its like a really bad panic attack that never goes away.I have 2 more days then I'm down to 10mgs.Then another 7 days then I'm off.Hopefully this will all pass and i can be normal again.I can't live like this.I don't even know if any of this is making sense.I hope all is well with everyone of you and will keep you in my prayers.Hopefully we'll all be normal again soon.God bless,Carl

Been on Prednisone for 3 years now for ulcerative colitis. At first tolerated the drug quite well. But after a few months started to gain weight, acne. After 3 years of yo-yoing between large and low doses, each increase in dose made me feel worse. I am now at a state of osteopenia and of extreme tiredness and brain fog. I see 80yo with more energy than I. I cant walk up 10 sets of stairs without feeling tired out. I need to sleep 3-5 hours a day just in order to function. As mentioned before brain fog is amazingly bad. I'm a scientific researcher which can no longer work.

Prednisone has introduced to me what panic attacks are, mood swings, joint pain and swelling, extreme muscle fatigue and wasting, blurry vision, in habitual eating habits, depression.

This drug has ruined my life. I would have preferred having surgery to remove the colon and going to the toilet 10 times a day rather than not living as brain fog and tiredness that makes my life a dream-state nightmare.

Hi! I was diagnosed with wegener's in Dec. 2007. I was hospitalized for 6 days. When I left the hospital I was taking 80mgs of pred's. After 8 weeks I am now down to 60mgs.{per day} I found it amazing how the doctors didn't inform me on the very well on the side effects of pred's. Plus bactrim,actonel,protonix,vitamin-d and cytoxin chemo once a month for six months or more.{i have had 2 four hour infusions,getting ready for my 3rd one in a few days}.
I have severe moon face,buffalo hump. My neck and throat feel full. Almost as if I was drowning.I've gained 25 lbs.,I have severe pain in my legs and knees,my back between my shoulder blades from the massive hump that I have,which by the way makes it hard to sleep. I am puffy all over,I feel like a huge sponge in the ocean!!!!! I only hope that when the med's are over I will return to normal. I cry a lot because of all the changes to my body! I don't feel like getting out, afraid people are laughing at me, my clothes look horrible,and my memory has been fading! I sometimes feel like I'm in the "o" zone.
I am grateful for the wonderful care my doctors have given me,I just wish that they would of prepared me a little better for what I was facing for possibly a year!
For every one out there that are facing all types of effects,just remember not to forget who you are and things will get better.

I have asthmatic bronchitis. In June 2006 I came down with an infection in my lungs, which also set off my asthma. Between the two I was hospitalized and put on 240 mg of intravenous Prednisone and the antibiotic Levaquin. I was cured of the infection and was able breathe normally again but it took a great toll on my body It took me 3 months to taper off of the Prednisone and almost a whole year to feel myself. I was a strong, physically active person before this happened to me and I have not gotten my energy level and endurance back to what I was before I was sick. When I was released from the hospital I went from 160 mg of intravenous Prednisone to 80 mg of pill Prednisone. That step down was too severe and I went through intense joint and muscle pain in my body that it woke me from a sound sleep in the middle of the night. I luckily had an old Vicodin that I took which only made the pain bearable. I should have upped the Prednisone to make it go away but I wanted off. This pain lasted one week with each day getting less. The side effects I experienced from then on were so plentiful that I almost can't remember them all. The physical problems were, thin skin that bruised or ripped and bled profusely with the slightest bump, blurred vision, sensitivity to light, muscle cramps in my legs and hands, sleeplessness, dry mouth and frequent urination. My stomach bloated and got stretch marks. I didn't have any before that. The muscles in my thighs and upper arms atrophied so bad that I could not walk up stairs w/o using my arms to help. My arms were also very weak and I got hemorrhoids; another muscle that was affected. I had a bad case of the drops. I couldn't hold on to anything and broke many glasses. I got moon face that took a couple of weeks to go away after I was off the Prednisone. Because I was on such high doses, my hair died and stopped growing. About 40% of it fell out in one month. It took 6 months to grow back and it all grew back curly. On January 30, 2008 my bronchial tubes closed again due to a sinus infection. Again I was hospitalized with 240 mg of intravenous Prednisone and Levaquin. This time I responded much better, because I jumped on the infection/asthma instead of waiting. I stepped down from 240 to 180 to 90 to 60 and decrease 5 mg a day until I was off. This time I did no lose my hair land did not get hemorrhoids. The other physical effects were pretty much the same but much less severe. However, this time the emotional effects of Prednisone were much worse than last time. I was not a nice person. I was short tempered and argumentative and even had to stop myself from resorting to violence a couple of times. That is definitely not who I am. Prednisone stops your adrenal glands from working and adrenaline is you chemical way of coping with stress. I have been off of the Prednisone for one week and still find it hard to cope with the slightest controversy. My brain is still in a fog and I get confused easily. I cannot handle too many questions at once and forget things. My face is still round. Both times, I have found it the hardest dealing with the Prednisone at the very end and even after I finished taking it. I think it builds up and even though the chemical is suppose to be out of your body in 24 hours, it's effects stay a lot longer. I thought I knew what to expect but the second time was different again. It is a horrible drug but my trade off was breathing. Sometimes I think, that if I have to go through this a few more times, the side effects will kill me before the asthma. I wish all you Prednisone users loads of luck and stay positive.

Hello everyone,

My name is Tina and I am a mother of 5 children and I was diagnosed with a very rare disorder called "VKH" It is a rare eye disorder that only strikes like 1 in 1,000,000,000 people. I was put on Prednisone to help with this condition and to reduce the swelling in my eyes. I was put on 70mg initially and was tapered down to 40mg. then things did not go as well as to be expected and I was bumped back up to 60mg. I am so happy to read these stories but also saddened at the same time. I have been on Prednisone for 5 months and have gained 20 pounds and have the moon face, the acne, the hair growth and the horrible mood swings. My husband and I had our 10 year anniversary last week and I spent it all alone because of my moods.......
It has destroyed my relationships and my self esteem. I don't like leaving the house barely because I hate how I look and I am so depressed I am not the same person as before. I cry all the time because sometimes I wonder if taking this drug is worth it!!! What makes things worse is I wonder if things will ever go back to normal for me or my family again.................

I'm a 22 year old who was diagnosed with dermatologists a couple months ago. I've been on different doses of steroids ranging from 5mg to 60mg for 5 months now. i was on 60mg the longest and just went down to 40mg. i go down to 30 mg next month. so far my side effects are moon face, swollen areas around my neck and collar bone, weight gain like 15 lbs, always have to wake up in the middle of the night and pee, my knees get shooting pains sometimes at night, light hair by my ears like sideburns, tired, helps with my muscle weakness a little, my eyesight seems blurry sometimes, chest always feels tight. I'm also on Methotrexate, Bactrim, folic acid, and Fosamax. it might be a reaction form all these but i think its mainly from the Prednisone. i cant wait to get down to the lower doses. i look like a different person and even tho all my family and friends know its still embarrassing. i fell like a whole different person. i cant wait to be normal again.

My daughter is a chronic asthmatic and has been on Prednisone for over one year. Since then she has experienced headaches, nausea, sleeplessness, depression, extreme anxiety, mood swings, blurred vision, aching... just about all of the side effects listed. Of particular concern to me are the mood swings, which at this time we are considering having her evaluated. I didn't realize that this drug could do soo much in terms of her behavior. Please help me to understand what is going on with her. She is 12 years old.

I was prescribed Prednisone for sinusitis and bronchitis. By day three I noticed I was taking 6 pills versus the 3 prescribed. I called the pharmacist and they recommended I take 1 for each remaining day. I declined, because by then I was experiencing a lot of leg pain. I thought I had a blood clot. Now that it's day 6 I've experienced muscle and bone pain throughout my body. Last night while lying down I felt lightheaded and like I was going to blackout. My legs are weak, I feel like I'm having an outer-body experience, and I'm restless. I've gained a little weight and have a dark red/purple rash on my chest. My stomach is still bloated, but does not hurt. I hope this ends soon. God Bless you All!

I found out that I had a brain meningioma almost two months ago. I am currently being treated with CyberKnife technology and thank God this nightmare will soon be history. In the meantime, I had to take Prednisone, through IV in the hospital and then in pill form after. I am weaning off now, but the side effects are terrible. My normal weight is 106 lbs and I don't even want to know what I weigh now and it was only two months of taking that pill. While on it, I could not sleep, and I ate every carb possible. I am so bloated in my abdomen, and my face looks like a balloon. Now that I am coming off, I feel like a Zombie, I fall asleep everywhere and I feel like I am in a constant fog, not to mention the headaches. Does anyone know how long the side effects last after you stop taking the Prednisone?

I am a 34 year old male. I have been on 80mg of Prednisone 7 days a week for 2 months now. I will be getting my dosage lowered to 60mg tomorrow but am having a difficult time dealing with the Moon face, eye bags, acne, and sleepless nights. I go to the gym 4 times a week and am in shape other than this freak fake head it looks like I have now. Has anyone been able to find a way to make the effects not so noticable..as in diurex or diet pills. I would like to try anything but want to be safe at the same time. Thanks for any help and god bless. David

Hi there... I have just found this site and I'm very grateful to everyone who has taken the time to sit down and tell us their story mine is very similar. BELIEAVE me I feel like I am pushing my family away and I'm losing my relationship with the one person who used to make me feel like I was the most beautiful woman in the world.
I'm a 40 yr female have or maybe had a great job that I loved... On April 12 I noticed a small red rash on my lower right leg no big deal went to the Dr. gave me some cream and sent me home well I went to work and by the afternoon things just seem to get bad my legs began to swell and little blisters started to pop up so I went to the E.R. they had no Idea what was wrong with me got me an appointment to see a skin DR. so I went home but the pain from the swelling was so bad I could not walk any longer went back to the E.R. they gave me some pain meds and called in some other DR. things had gone from bad to worse my feet had gotten to big I could not put on shoes and I had bruised completely across the bottoms of my feet they put me on 30mg of PRED. and it seem to be under control sent me home after 3 day in the hospital things were good for about a day or so I thought I would go back to work well that was not a very good idea.... My sister had to come and take me back to the ER where they did 2 biopsies and still have no idea what is wrong with me. so now they put me on 60mg of PRED the rash has gone, lots of scaring on my feet because of the blisters once they broke and dried out but I can live with that....
It's the side effects that they don’t tell you about,
MOON FACE I can't look at myself cause really that’s not me anymore,
WEIGHT GAIN I have always been thick but I can't handle the extra 30lbs I've gained,
MOOD SWINGS are unbearable,
PAINFUL JOINTS, CAMEL HUMP, BLOODY NOSE, BRUSING, SORE TEETH/GUMS, DRY EYES, FAITIGE, and worsted of all
I don’t have a support systems in my life so I'm fighting this by myself everyday, I have 3 kids that I have tried to explain all this to but they don't get it and well my boyfriend he tells me he understands that its the meds pushing him away but if I can't figure away to control this I will lose every thing including my job. I cant even get the energy together half the time to make it up and down the stairs which also comes with the pain of just trying to lift each leg up to climb the stairs, I also have the camel hump which I find very painful, The acne and the hair growth that I have to get wax off once a month cause I feel like a man I feel like a loser and as of the last couple of days I just want to give up I am now down to 20mg per day but I find that I am feeling so sick I cant think straight I hope and pray for each and every person out there that has to take this MED that you get better and I do hope that my symptoms wont come back. Thanks for being here and I’m glad I found this site. I know now that I’m not losing my mind completely. Elizabeth.

Chest pain, perhaps heartburn (or gas?) so bad that I can barely breathe...this only happens when I attempt to stop taking prednisone altogether. This time I tapered down from 50 mg to 25 mg (for a week) to 0 as of Sunday.

I had been taking prednisone to combat an allergic reaction to poison sumac. I began taking 50 mg/day for a week, doubled it for another week, cut back to 50 for a third week, quit cold turkey and the rash "caught fire," so I started up again. This time I'm determined to stay off, but I wonder how long I have to put up with this horrible chest pain!

I have been on pred for 2 years off and on for Temporal Arteritis that the doctors at long last have decided that I don't have. They started me out on 60 mm and now they are taking me off at 1mm every other week. I am down to 11mm now. I have experienced all the side effects except the acne and problems with periods. I gained 40 pounds and have such bad pains in my lower back that I can't stay on my feet for long. And I'm always hungry though I try to control it. My main withdrawal symptom is extreme itching from my neck to my wrists and thighs. especially where there is any pressure on the body such as waist bands etc. I tried to get off it once but it was at a faster rate and that is when the itching started. I will gladly put up with the itching as long as I can get off this "Satans curse" of a medicine. I also have jerking in my hands and a general feeling of shakiness. I was glad to read that someone else had painful sensitive teeth I didn't know it was connected to the pred. I too wonder if I will be able to lose all this weight after I'm off the pred. I do know that the moon face goes away because it did the one time I came off the pred then had to get back on it. I also have weakness in my thighs and arms. and my arms are always getting big ugly bruises or torn skin on them to the point that I have to wear long sleeves in hot weather.feel free to email me with your story. Especially if you are off of it so I can have some idea what might happen to me