September 3th
2009
12:48 AM
Prednisone is horrific! I went on it 10 months ago for autoimmune hepatitis which now I realize was a major mistake. I was to take 40 a day but only agreed to 20. Now I have very high blood pressure and am on Bystolic and Vasotec. I have gained 30 lbs and am seeing a shrink!. I have tapered the dose down to 5mg much to the docs dislike but I am depressed, anxious and a bit suicidal. Also, my lovely head of hair is at least halved and I look 7 months pregnant. Soon I'll become anorexic cuz I refuse to live any longer like this. Anyone else feel the same?
-- By deb1228 | Reply | Private Message me
August 29th
2009
7:38 PM
Over two years ago I had a very severe case of shingles which had gone untreated for over 4 days. I was given acyclovir for the virus, acetaminophen for the pain, a diuretic to lessen the high blood pressure and weight gain I would suffer from taking prednisone. I started with 60 mg of prednisone and the dosage gradually eliminated over 6 weeks time. I gained over 40 pounds.
After the prednisone I suffered the following side effects: gained 15 more pounds, feet and ankles started swelling, I stopped sweating except profusely on my forehead. It took a year before I could sweat on my whole head, but nowhere else.
This year I am now sweating on my chest and head and nowhere else, I have gone down two dress sizes without changing my eating habits or exercise habits. My face is still round.
I am hoping the fact that I am an ovo-lacto vegetarian (30 years) isn't what's making the side effects last this long. This was the first time I had ever been given prednisone, and was told only about the high blood pressure and weight gain as a problem.
-- By vrose | Reply | Private Message me
June 23th
2009
10:00 PM
Was on Prednisone for 11 days for an injury to my neck. I knew nothing about the drug except what my doctor told me that it would reduce inflammation in my neck and help with pain.
Well, it did nothing for the injury and pain in my neck. BUT.... I had HORRIBLE menstrual cramps and got my period 8 days early. I've had my period for 9 days now AND terrible pain in my upper left leg. I thought the pain was related to my leg and as the days went by I realized it was in my left hip! It's so bad I can't lift my leg without extreme pain. I KNOW IT'S FROM this awful drug.
I've been off of it for 4 days and the pain is still with me. I called my family dr. and was told Prednisone doesn't do that. BULL!! The paperwork I got with it from the pharmacy show "Changes in menstrual periods" "muscle/joint pain" "bone pain".
I wish I knew this BEFORE I ever took it.
Does anyone know if these symptoms and problems will go away after stopping it? I called the pharmacy and was told it will take 2-3 weeks for it to get out of my system!!
Has anyone had problems that eventually went away after stopping the drug?
Thanks and I hope everyone else is okay soon! This drug should be off the market. I received no help for my neck pain at all!!
-- By cheska | Reply | (5) replies | Private Message me
March 19th
2009
8:19 AM
I started Prednisone Feb 7,2009 because I Have inflammation in my ear and other problems because of the disease. He started me on a high dosage. I take 3 pills a day. My doctor warn me that I would gain weight but Im not concern with the weight gain because prednisone helps me feel better and I know it's working. I'm always hungry,my face is Moon shape, and I feel fat but what have me scare3 is I can't sleep(insomnia) any more and I have severe join pain.My muscles feel weak, My leg and knee aches and I can barely walk sometimes! Im scared I might get avascular necrosis!and my blood pressure go up and down! I never had high blood pressure but the last time I went to the Doctor my pressure was high! Also I get abdominal pain, and feel very sick to my stomach!
-- By sweetcocoa69 | Reply | (1) replies | Private Message me
March 10th
2009
6:59 PM
I was diagnosed with Ulcerative Colitis in Aug of 2005 and in remission for 9 months. I came out of remission in May of 2006 and have been on prednisone since then until right now. I would go on high dose of steriods, try a new medication, and try to ween off and get sick right as I went off the steriods, so I'd have to do this rollercoaster all over again. For a year now, I have been on steady, high doses between 60-100mg daily with no break. I tried to go below 20 and got really sick again and have run out of medication to try, so I had my colon removed. Right now, we are trying to ween me off the prednisone (since i dont need it for my disease anymore) but have to go over 3-4 months and very slowly since I've been on it so long to prevent the body from doing all the fun things it does when you stop prednisone cold turkey, like a coma and stuff. I'm SICK of the side effects this drug has had on me! I have had countless sleepless nights, heartburn, night sweats, weight gain (i went from 140 lbs to 215 lbs right now), the moon face to where i can't even recognize myself, red face, weird skin, sensitive teeth, thinning hair, hungry ALL the time, stretch marks, all the weight is in my stomach, the buffalo hump, high blood pressure and high eye pressures etc. These are all the side-effects that have been horrible on this miserable drug. I'm sure there are a lot more I am forgetting, but these are the ones that come to mind. Hopefully they will go away once I am able to finally get off this drug!
-- By atolo22 | Reply | Private Message me
March 1th
2009
11:48 AM
Have had skin excema most of my life on and off and just dealt with it with various ointments and such. To make a long story short I went to an emergency room one night about 9 months ago with a bad headache and instead of them dealing with just the headache they obsessed over my rash which is worse on my lower right leg. I was prescribed prednisone along with some antibiotic and not realizing what prednisone can do i took the 5 day plan. I knew immediately I was going to have problems as I was definitely on some kind of powerful stimulant. Anyway that was 9 months ago and I seem to have exchanged my excema for a permanent case of the type of hives that is worse at night before bed and is aggravated by any pressure on my skin. I do mechanical work and if I squeeze a screwdriver or bang on something with my hands they will swell and itch and my fingers will not bend very well. When I feel a slight itching in my hair or around my neck I also will have a slight headache. The hives can appear on my back or thighs or arms or belly at different times usually. Stress doesn't help either. By the way I am 60 and never had hives that I recall ever.
mtrsr50
November 7th
2008
12:54 AM
So far i am a 14 year old boy facing prednisone and have been on this drug over 4+ month periods at 10 mg first time and 100 second time. I have chrons's disease and it is hard to treat when it has a flare, so they have to put me on prednisone. I have experienced some of the worst side effects imaginable along with many other suffering victims of this drug, and they include: Headache, Severe Acne, Flu-Like Symptoms, High Blood Pressure, 50+ Pounds Gained, Moon face, Stomach Pains, and Much More. After i have been weened completely off i have notice these: SCARY Heart Palpitations, Out of Breathe, Feels like something is beating in my stomach, and feels like my heart drops to my stomach like pacing.
-- By chronskid | Reply | (2) replies | Private Message me
October 16th
2008
2:17 PM
Hi everyone well yesterday i started to to take Prednisone 2 hour later my heart is racing along with high blood pressure , so ill try to calm my self down blood pressure kind off got back to normal but heart still beating rapid, today i woke up my blood pressure was fine but my heart still pounding do ya know how long it t takes for my heart to go back to normal , and im sorry to hear about everybodys different reactions to this stupid pill hope everybody gets better.
-- By fernando86 | Reply | (1) replies | Private Message me
October 10th
2008
12:58 AM
I have Autoimmune Hemolytic Anemia (AIHA), was diagnosed in Feb. 2008. Have been ill for several years and finally it came to a head in Feb. I had a blood transfusion and then in the hospital 6 days later with a hgb of 4.0. I was so toxic and my blood so screwed up I nearly died. I was given another transfusion then (total of 5 pints of packed red blood cells) and started on Prednisone. For 3 days given liquid Pred injections, starting at 1000mg, tapering down to 250mg., then on the pill form at 100mg. Sweat poured off of me dosing down. I was off work for 2 months. I am still tapering but am now at 1mg. DR. added another drug, Danazol, after getting to about 10mg because my blood started going crazy again. My side affects with Prednisone have been, Euphoria, no depression, LOTS of hyper brain activity, thoughts running a 100 miles an hour but body at slow speed.Visual problems and a feeling of being highly drugged. 2 to 3 hours of sleep each night, compulsive behaviors and a lot of pacing back and forth. Couldn't hold my concentration because my mind wandered so much. Extreme Tremors in my back, hands and head. Wanted to talk constantly, if no one was around I talked to my Chihuahua or the TV. My cheeks puffed up and became hard and had a fat pocket puffed up on left side of my neck. My dog thought I was crazy, she was tired of the lights being on at 3 or 4 in the morning. Legs looked skinny but didn't gain weight until I got to about 60mg. Gained 25 lbs total. Tapering caused bad spasms in my calves, feet and hands. Thigh muscles would get extremely weak each time I went down a dose. At 50mg I started getting sleepy and could hardly stay awake. Went back to work at 35mg and couldn't remember how to sign on to my computer. Some memory problems since I was in the hospital, couldn't remember how to spell words I knew as a young girl. Started having hip pain about 3 months into the Pred, that hasn't stopped. At 10mg feet, knees, shoulders hurt deep in the sockets, muscles below my neck knot up, may take a while to totally get off this. Read on a couple of blogs where people cut a 1mg tab into 4 pieces to taper off the Pred. because of side effects. Had thrush in the beginning and break outs of shingles. I hope to God I never have to get back on this drug again, it is so HARD on the body but it did do what it was given for, to repress my immune systems. My next step is Spleen surgery, hope this is a cure for me, am sick and tired of being sick and tired. Wouldn't advise anyone to take Pred unless it's a life or death situation. It's prescribed too liberally and people have multiple problems, worse than I have experienced. I've probably forgotten some things, but there's enough I've mentioned to give you an Idea it's not good, but if Pred is all you have then you do what you gotta do!! My puffy cheeks have went down though, now my hair has become curly but at least I have hair and my chihuahua stills loves me!!!
-- By linn | Reply | (4) replies | Private Message me
September 25th
2008
9:07 PM
I was prescribed the 4mg methylprednisolone pack along with 50 mg tramadol for acute tendinitis in my wrist. I took the first 3 days of the prednisone and only 2 doses of the tramadol over the three days. For a total of 60 mg of prednisone.
The first day I had hot flashes and insomnia but attributed it to the tramadol because I had never taken it before and had taken the prednisone several years ago for poison ivy with no adverse reactions. I didn't take the tramadol the second night and then took it again last night along with my daily dose of prednisone. I had extreme difficulty falling asleep, heart burn, hot flashes; and tossed and turned all night trying to fall asleep. At around 2am, I began to have difficulty breathing, tightening in my chest, confusion, and racing thoughts. It felt as though my throat was closing up on me. My anxiety progressed to the point that I was pacing back and forth. I woke my husband up and told him to prepare to take me to the ER. After calling my insurance's 24 hour help line, it was recommended that I go to the ER. I had an x-ray, blood work, urine drug screen, and echocardiogram. Luckily, everything was negative. The ER doctor told me that I likely had a reaction to the prednisone and commented that some people will experience these symptoms when taking it. He stated that he had a similar reaction when he took it and it felt like he was climbing the walls, which is an accurate description of my experience that night. He recommended that I either stop taking it altogether or call my primary care provider and cut it down. He prescribed me xanax and administered some to me at the ER which greatly helped. The next day I stopped taking the pred but am still having dizziness, chest tightness, hot flashes, and mental dullness. I have decided to never take this medication again. Fortunately, I don't have any of the physical sx that some have experienced, and my heart goes out to you. I think the mental symptoms were traumatic enough for me and can't imagine having both as I would be a basket case. I have mood swings, some melancholia, and am very fatigued.
I think it is imperative to research any medication that is prescribed to you before you take it. Many providers will say that side effects are rare, but my experience is that side effects are more common than rare. My prayers go out to those of you who are going through what I am going through. I hope that it clears our systems quickly because this is no way to live. I'd rather put up with the pain of tendinitis or carpel tunnel than to have these symptoms.
-- By elise1966 | Reply | (6) replies | Private Message me
September 16th
2008
3:40 PM
Hi I am a 44 year old asthma patient. I have had asthma since the age 2 and have been on & off prednisone since that time. As a child until age 20 I was on predinsone daily. My question is has anyone experienced nerve problems due to long time use? I do have muscle weakness and spasms, but I am interested in if anyone has had nerve problems. Please email me at ****** and refer to prednisone.
-- By maureen1 | Reply | (2) replies | Private Message me
July 29th
2008
6:11 PM
Thank you so much for your website. I cannot begin to tell you what this drug has done to ruin my life.
I had been on it for over 4 years on a misdiagnoses (Never should have been on it) and was told
“It was no worse than Tylenol.” Ok I thought as I was suffering from a few swollen joints every
now and then but was fine otherwise.
Then one day I was working and someone noticed my face was swelling. I looked in the mirror and
low and behold my face was rubbing my glasses. I asked my doctor and he said “it will go away soon.”
I am very athletic so I continued to run and work out as I slowly went from a 30” waist to a 50” inch waist!!
People at my office thought I was on a food binge like no other. My wife was stunned on how fast this
happened as was my family. Now the problem had gotten much worse. Constant body aches and swollen ankles.
After a year I went from jogging, to walking, to using a cane to using a walker…how sad my family felt
for me and no friends insight. my company then laid me off as I used the walls as a walker and simply could
“perform up to par.”
Next came the extremely high sugar, blood pressure, Glaucoma and I suddenly noticed I was having problems
seeing. Went to the eye doctor and was told I was getting cataracts but it would take a couple of years to form.
90 days later I could not drive and could barely see in both eyes, now I was almost blind.
Now 80lbs overweight almost blind with Glaucoma, high blood pressure, diabetes and cataracts. not to mention severe depression and mood swings that were unbearable, and yes still using a walker from severe muscle pain.
Well the time came where I lost my health insurance and was unemployed. I was out of Prednisone
one day and called my doctor. He said come in for $320.00. I said I didn’t have it and pleaded for them to call
in a 30 day supply, I was told that they “weren’t a charity” and “go to the emergency room” click!! My wonderful
doc was gone. Well I went to the emergency room the next day and was told “they don’t give refills.” I had been
off prednisone for a day and as some people know if you stop that high of dose for that long you may die from
adrenal crisis. So I stood in the emergency room for 12 hours waiting to go into this crisis! Finally a nurse convinced
a doctor to see me for 30 seconds, gave me a refill and a list of welfare clinics and booted me out the door. They
hated my appearance and hated me for no cash.
One day I decided to end this nonsense and tread everything I could from sources I hadn’t read that were very old
regarding what was wrong with me. I went on self imposed diet of 1000 calories a day and lost 60 lbs…yes!!
I stated weaning from the Prednisone and took a ton of supplements I had read about. I got down to 7.5mg every
other day. Yes, suffering tremendous total body aches, severe mood swings, dizziness, severe hunger and
confusion but I plowed though. By the way I don’t recommend this but I couldn’t get a refill for a prescription from anyone
because I ‘had made to much money.” So I turned to the Internet for everything. I bought 500 5mgs for $23.00 screw the doctors I don’t need their prescriptions. I am now totally off for 6 weeks I do have some bad stiffness, muscle aches and mood swings but after 4 years of pure hell I am truly thankful to be off this dangerous drug, it ruined my life.
So I went to a new Doctor finally and my diagnoses was a food allergy and simply had a small stint of bursitis a total mis- diagnoses from my first Doctor! Doctors aren’t gods so take it from me trust yourself first and do your research.
My prayers to all who suffer from this drug. Damn the incompetent doctors who wrongly prescribe it!
Dan
PS Does anyone know how long these severe body aches last after completely stopping. Its been 6 weeks and its just a little better. My doctor told me to fight it out or get back on pred. NO WAY!!
July 29th
2008
6:08 PM
Thank you so much for your website. I cannot begin to tell you what this drug has done to ruin my life.
I had been on it for over 4 years on a misdiagnoses (Never should have been on it) and was told
“It was no worse than Tylenol.” Ok I thought as I was suffering from a few swollen joints every
now and then but was fine otherwise.
Then one day I was working and someone noticed my face was swelling. I looked in the mirror and
low and behold my face was rubbing my glasses. I asked my doctor and he said “it will go away soon.”
I am very athletic so I continued to run and work out as I slowly went from a 30” waist to a 50” inch waist!!
People at my office thought I was on a food binge like no other. My wife was stunned on how fast this
happened as was my family. Now the problem had gotten much worse. Constant body aches and swollen ankles.
After a year I went from jogging, to walking, to using a cane to using a walker…how sad my family felt
for me and no friends insight. my company then laid me off as I used the walls as a walker and simply could
“perform up to par.”
Next came the extremely high sugar, blood pressure, Glaucoma and I suddenly noticed I was having problems
seeing. Went to the eye doctor and was told I was getting cataracts but it would take a couple of years to form.
90 days later I could not drive and could barely see in both eyes, now I was almost blind.
Now 80lbs overweight almost blind with Glaucoma, high blood pressure, diabetes and cataracts. not to mention severe depression and mood swings that were unbearable, and yes still using a walker from severe muscle pain.
Well the time came where I lost my health insurance and was unemployed. I was out of Prednisone
one day and called my doctor. He said come in for $320.00. I said I didn’t have it and pleaded for them to call
in a 30 day supply, I was told that they “weren’t a charity” and “go to the emergency room” click!! My wonderful
doc was gone. Well I went to the emergency room the next day and was told “they don’t give refills.” I had been
off prednisone for a day and as some people know if you stop that high of dose for that long you may die from
adrenal crisis. So I stood in the emergency room for 12 hours waiting to go into this crisis! Finally a nurse convinced
a doctor to see me for 30 seconds, gave me a refill and a list of welfare clinics and booted me out the door. They
hated my appearance and hated me for no cash.
One day I decided to end this nonsense and tread everything I could from sources I hadn’t read that were very old
regarding what was wrong with me. I went on self imposed diet of 1000 calories a day and lost 60 lbs…yes!!
I stated weaning from the Prednisone and took a ton of supplements I had read about. I got down to 7.5mg every
other day. Yes, suffering tremendous total body aches, severe mood swings, dizziness, severe hunger and
confusion but I plowed though. By the way I don’t recommend this but I couldn’t get a refill for a prescription from anyone
because I ‘had made to much money.” So I turned to the Internet for everything. I bought 500 5mgs for $23.00 screw the doctors I don’t need their prescriptions. I am now totally off for 6 weeks I do have some bad stiffness, muscle aches and mood swings but after 4 years of pure hell I am truly thankful to be off this dangerous drug, it ruined my life.
So I went to a new Doctor finally and my diagnoses was a food allergy and simply had a small stint of bursitis a total mis- diagnoses from my first Doctor! Doctors aren’t gods so take it from me trust yourself first and do your research.
My prayers to all who suffer from this drug. Damn the incompetent doctors who wrongly prescribe it!
Dan V
May 20th
2008
4:05 PM
Hi. I was diagnosed yesterday with Bells Palsy, (the entire right side of my face is completely paralyzed) and given prednisone, a tapering dosage. I started my first dose of only 20 mgs last night and went to 60 mgs today, will keep on that dose tomorrow as well as one more day, taper down to 40 mg for two days, then 20 mgs for two days. My heart feels like it's going to beat out of my chest! I can feel it it's beating so hard and I can also hear it when lying down .Very freaky. My blood pressure today was 164/107. My normal bp is 110/70. I take medication for high blood pressure but it's not doing much good. I am also a diabetic and my sugar is whack! Had to increase my Metformin. I'm assuming since no one has died from taking this HORRIFIC medicine, we'll all live through it but at times, I feel like I am going to have a frigging massive panic attack! I have to calm myself down, listen to music, meditate. That does help some but not enough .I will be sooooooooo glad when I'm done taking this SH*T! Another thing I've noticed is I am bone weary weak, like I've run the Boston Marathon, competed in the 1000 meter butterfly medley and then played 3 sets of tennis on top of that! GOOD GRIEF, HE INVENTED THIS CRAPOLA?
-- By tatyanna | Reply | (2) replies | Private Message me
April 16th
2008
11:07 AM
I was on Prednisone for just over two weeks for a bad skin rash (allergic reaction). I went to the ER they gave me an injection on Prednisone. The next day my Doctor puts me on 40mg a day for 10 days then down to 20mg, and then 10mg. The side effects were (and are) crazy. Blood sugar and Blood pressure are through the roof. My heart pounds,races, skips beats. Hands shaking, nervous, and panic attacks. Yeah, sure, the rash is gone, but I feel like a train wreck. I took my last dose 2 days ago, and have been told it can take 2 to 4 weeks for this to get completely out of my system and end the side effects. Can anybody else verify this?? Good god, what a mess!!
-- By paul386 | Reply | (2) replies | Private Message me
February 29th
2008
2:18 PM
Are you aware about short and long term side effects of this Devil's drug??? Of course, everybody reacts differently while take or withdraw. But there are high number of people who react terribly bad!!! Doctors do not want to recognize and discuss this. They just keep silent... Do you know exactly how Prednisone works??? Nobody knows this for sure, even doctors!!! From my personal experience, and despite gradual withdrawal, I developed extremely high blood pressure, weakness, panic attacks, depression! Practically it ruined my normal life! Doctors have no clue how to deal with its devastating side effects. Steroids are not selective. When you take a steroid, the drug infiltrates the nucleus of every single one OF YOUR CELLS AND STARTS MONKEYING AROUND WITH GENES IT FINDS THERE!!! It probably plays with hundreds of genes. And just a small number of these genes control the pain and inflammation associated with inflammatory diseases, so steroids turn many of these genes off which is good thing. However, because steroids are not selective, they also regulate the genes that control kidney, liver, BRAIN, and HEART function - which is not good thing!!! It is likely that steroid treatment plays with other genes, too, including those we do not know about a lot right now...So, Prednisone pervades the entire body, which increases the likelihood of short-term side effects and long-term DAMAGE. My advice is: THINK TWICE BEFORE TAKING PREDNISONE!!!
-- By fatcat | Reply | (7) replies | Private Message me
February 20th
2008
11:19 AM
On 20 MG of Prednisone, also taking Nadolol for High blood pressure. noticed that I have brown spots in my underwear where urine leaks out. Don't know if this is blood or a side effect of the Prednisone.?? Anyone else get this?? Thanks for your help..
-- By sbsalina | Reply | (1) replies | Private Message me
January 26th
2008
6:53 PM
I was given 20 mg of Prednisone for 10 days for a rash and joint pain.
The pain went away and I felt great the rash got a little better. Two days ago I took my last pill. I woke up that night and my knees gave out. By morning I was great! Next night I woke with knee problem again had to slide down the stairs to the living room. I got to wondering if the knee thing could be associated with the Prednisone. I got on line and read all this terrible stuff. I am so Horrified! Today I am in pain like my body is bruised and my face is swollen a little. I have acid reflux as well. Non of this is typical for me. My knee thing is ok again, but I am just appalled! I have no MED insurance. I hope this isn't the beginning of worse things I am not taking that drug now. The Dr. didn't say I needed to taper...
I hope I have not damaged myself by taking this drug! My heart goes out to all of you! My question is - Why are the Dr.'s prescribing this terrible drug?
-- By harvesterbornagain | Reply | (24) replies | Private Message me
November 2th
2007
1:34 AM
Hello EveryOne out there...OK OK....
Now Why have I been out of touch since Sept 14th.... 2007???
I have been VERY VERY ill.....
Y'See, I went to see this new Doctor (Quack) for continued pain in my chest (sternum) area....that I have been having trouble with all Summer. (Severe Costochondritis/Fibromyalgia) By Sept 14th, this Quack who claims to be a Doctor had given me this prescription for Prednisone pills (20 mg each)....with orders to take mega doses of this toxic poison in order to combat the pain I was suffering. I was so desperate to get out of pain that I went ahead and filled the prescription and started taking the pills that eventful Friday night. I made the fatal mistake of trusting this Doctor!!!
If I had any sense God gave green apples I would have researched this a little before taking this medicine!! I would have run like all heck in the opposite direction!
I had been taking these reccomended large doses for approx two weeks back then per Doctor 'Quack's' order.... I have been hooked after the first week....and now currently desperately trying to get off of it with only marginal success!!
I have been on this Prednisone crap for some 49 days, currently and desperately trying to get off of it....with terrible side effects!! I have experienced every side effect known to the Devil himself and even discovered some new ones that I never knew was possible!? Case in point! I can't sleep night after night without terrible withdrawals all night long!!! I am forced to contend with them every night here. Not to mention I fight the withdrawals all days long too. I have this inept doctor and I am sorry I even went to him in the first place...!
The withdrawals I am now getting are harder to deal with than the original chest pain itself!!! Not to mention even eating the so-called 'wrong' foods sets off even more withdrawals almost immediately. I am now extremely sensitive to light and the sun~ not to mention.....noise....and stress....
I am much sicker from this Quack Doctor's so-called "HELP" than I ever was before....
I don't mind saying his name and trying to steer everyone away from this jerk Doctor here in Las Vegas who takes advantage of people in pain when they are desperate by feeding them toxic poisons and passing the poison off as something harmless thats gonna help them??? Just ask me who he is and I will tell you. I have no qualms about it....
Bottom line is I have spent this last month trying to get off this crap and I just found out that the withdrawals may bother me up to a YEAR after I take my last dose of this crap poison!! I have been going thru H***!!! A nightmare I would LOVE to pass onto this Quack who pretends to be a doctor!
I am down to about 7.5 mg per day now from about 180 mg that he gave me originally Sept 14 2007. Believe me this was not easy thing for me to do. I went "Toxic" on this drug weeks ago and it has affected my ability to process, think and reason properly. I feel like part of my mind is now missing or went on permanent vacation!! Dizziness,feeling like I'm gonna pass out, Brain Fog and Mass Confusion is the order for the day~depending on the time of day???
"The side effects of prednisone include adrenal suppression, which can occur with periods of prednisone use to surpass seven days. Adrenal suppression refers to the body’s inability to synthesize natural corticosteroids, resulting in a dependency on the prednisone taken by the patient. This is why doctors do not recommend the cessation of prednisone when the patient has taken it for longer than seven days. They reduce the dose gradually over a few days in the case of short-term prednisone use, and over weeks or months in the case of long-term treatment. Stopping prednisone treatment abruptly can cause the life-threatening Addison’s disease, in which in the body no longer produces sufficient amounts of adrenal steroid hormones"
I want to SUE this Doctor for making me this sick!!!!!
SDR
GRRRRRRRRRrrrrr!!!!!!!
-- By lostris | Reply | (15) replies | Private Message me
November 1th
2007
8:38 AM
I've been on Prednisone after and allergic reaction to penicillin (Amoxicillin) (bullous pemphigold - large blister on my arms and legs, some on the back and very little on the stomach) I've been on the medication for three days (40mg/day) I cannot standup or move my hands, my entire leg hurts and the foot is swollen (it could be from the penicillin). I'm hoping it will go away after I come off prednisone but has anyone experienced long term pain from this drug?
I'm pretty sure my pain is from the allergic reaction. Has anyone had long term pain from any type of bullous reaction?
-- By speedysa | Reply | (4) replies | Private Message me
April 30th
2007
8:19 PM
Was on Prednisone 2 years ago for respiratory problems 30mg. Gained 25 pounds, fat face, felt tired, etc.
However 2 years later, after weaning off Prednisone my muscles ache, joints are most always stiff, esp. hands plus my feet feel numb and my short term memory has not returned to normal----does any one else out there have similar problems. What can be done?
-- By corlogic | Reply | (7) replies | Private Message me
March 7th
2007
4:29 PM
I began a new dose of Prednisone yesterday. I was diagnosed w/ RA about 3 years ago. I have been on Embrel (didn't work) and am now on Humira and Methotrexate. I have been having extreme difficulty the last month and finally returned to my doctor for relief. (I have been on Prednisone before and had only the headaches) I was prescribed a higher dose this time (60 mgs 2 x daily) and have been battling with a racing heart that beats so hard it hurts. I have now taken my second dose and cannot walk more than 10 feet without feeling like I am having a heart attack! While it is helping the RA pain in my joints, I am so scared to move and so uncomfortable when I do, I am not sure what is better. The disease or the cure? Has anyone else battled with the racing heart? Oh and I also have high blood pressure and the Prednisone is making it higher even with my meds!
My only other instance with this effect was from a steroid injection about a month ago. That episode placed me in the ER receiving medication to lower my heart rate.
December 25th
2006
8:48 AM
Can you tell me if high blood pressure and head aches a side effect of Predisone?
-- By clevelandbrock | Reply | Private Message me
April 10th
2006
5:11 AM
My sister inlaw was taking prednisone - 100 mg per day, she had severe swelling, red face - she was hospitalized when her
doctor reduced her dose, kidneys were not working. she had
her dose increased and was under an outpatient program with
other drugs to be weaned off pred. She is now dead, her husband woke upbeside her and she was gone. Note she had
a history of high blood pressure.
March 9th
2006
11:24 AM
I have been on 60 mg of Prednisone since Oct. for FOcal Segmental Glomuruli Sclerosis. I think Ihave had every side effect you can imagine. I have gained over 50 lbs, I cannot sleep, I have steroid induced - insulin dependent - diabetes, high blood pressure, heart palpitations, hair loss, strech marks on my stomach, legs and under arms. I hae horrible mood swings, and joint pain. And to top it all off - the disease I was trying to fight is still here and all this seems as if it were for nothing. I am finally being slowly backed down off the steroids - but my dr. says it will be May before I am completly off.
-- By tucker1974 | Reply | Private Message me
October 14th
2005
10:29 AM
Never had high blood pressure until having had prednisone and also, prednisone played havoc with my blood sugars, with frequent elevations and never went down to what my previous readings on lab work showed. Have been told to watch out for becoming diabetic due to predisone. I have come to the conclusion that prednisone is POISON!!!!
-- By marydonna33 | Reply | Private Message me
July 22th
2005
9:23 PM
I just started taking what will be a week's worth of prednisone for a hive-like rash (unknown cause). My dosage began with 30mg today. Within one hour I was sweating so profusely I felt like a cartoon character....so I got online to find out if this was a normal side effect so quickly, and I found this forum.
If I'd read this first I'd probably have not taken it!
I will taper down over the seven days. Anyone know if I can
expect moonface & weight gain on this short, rather limited dosage?
The Dr. cautioned about swelling and a rather manic feeling (He described it as "vacuuming ferociously at 3 a.m.") but thought most of problems came in 50 mg-plus dosages or those for extended time...
I also take meds for high blood pressure & depression and low-dose hormones for menstrual issues.
Anyone know if any other corticosteroids are "better" than prednisone, or are they all similar in effects?
many thanks for your time
-- By chattycathy | Reply | Private Message me
February 23th
2005
2:19 PM
Mood swings, upset stomach, WEIGHT GAIN (50+LBS!!), forgetfullness, paranoia,hallucinations, feeling invincible, muscle weakness, high blood sugar, high blood pressure, thin skin, fatigue, not caring about anything, talking a lot, feeling hot all the time, excessive sweating resulting in body odor, not liking things that fly( I was especially freaked out by bugs and birds) lack of tactfullness, I'll add more when I think of them.... and heres the clincher......
one day when I was driving on the highway, I was suddenly convinced my car's engine was on fire.
-- By mindym22 | Reply | Private Message me
January 17th
2005
10:32 PM
I'm 33 years old. I'm starting to take Prednisone since 5 years ago. My side effects were :- moonface , weight gain , high blood pressure, skin rashes, dry skin , hair loss .....
God please help me to reduce the dosage ....
-- By patrisha | Reply | Private Message me
January 9th
2004
10:53 AM
I went in with what I thought was an allergy attack and found out I had what they call a pseudo-tumor behind one eye. Iwas prescribed prednisone. I told the doc I had High blood pressure before he gave methe prescription.
I had sleep loss, mood swings, sweating, and dropped weight because there was so much sugar in my blood stream. Prednisone caused the on set of diabetes. I now have to take Insulin shots at least twice a day. I was told 'it would go away' and I could stop the shots....still nothing.
-- By bgkdyous | Reply | Private Message me
November 16th
2009
10:13 AM
Where do I begin. I've been on prednisone for about 3 months now, and I feel like it has ruined my life. After having my son in February of this year I went for my 6 week check up and found out that I had high blood pressure and my kidney function was low. Before this I was pretty healthy. So, I was put on 30mg of prednisone in hopes that it would reduce or erase the inflammation. It reduced it for a while, then it went back up. While on the darn drug, Ive experienced moon face, weight gain, Im always hungry, acne, shortness of breath, and paining in my legs and back. The worse side effect has been the mood swings and anxiety, probably because it took something terrible happening to realize that they were really happening. My boyfriend told me that the drugs were making me act different, but I just thought he was picking on me as he did with my weight gain. Turns out, I have read everyone elses post and realized that many people experience what he says I've been going through. As a result of my mood swings and being so mean and demanding, my relationship may be over. I wish that he would understand that it's not me, it's the medication, but I can't convince him. Thats weird, especially since he pointed it out to me months ago. So now, I hate this drug. It's not making me better and it was a contributor in ruining my relationship. I want to just stop taking it, but Im scared I will get even sicker. There is no hope here.
-- By jeresmom | Reply | Private Message me