PredniSONE and inflammation

I am 50, pretty healthy, but have had a new condition of inflamed and severely painful joints and muscles limiting activity. Doc put me on 60 mg prednisone for 3 days, then 40 mg 3 days and 20 mg 3 days. First day was ok. Since then I have been a raving lunatic! I read the post about the person chasing their cat around and had to laugh and relate. I flipped off the neighbors workers because they were backing up a truck and it was noisy! It is all I can do to keep myself in check. I have canceled/rescheduled all unnecessary appointments until next week when I am finished. I "sleep" about 3 hours a night. Last night I peed the bed. I eat constantly. I have to work and concentrate (teach college) and that is so hard. I imagine my students must think I am on meth. I can't take it any more. I have 1 day left and I am not going to take the last one. I hope that this regimen will have calmed down the inflammation and if it recurs I will seek alternatives. AM NEVER going back to prednisone unless it is life or death situation.
Good luck to all those out there who have to take it long-term. Bless your hearts.

Hello I am 40 yrs old and got a lung infection which cause swelling in my lungs so the put me on high doses of prednisone via IV for 21 days in the hospital. The drug saved my life and took it at the same time.

After I got out of hospital i was on 60 mg for 6 weeks the 30mg for 6 weeks then 20mg the 10mg. It has been a living HELL over the last 5 months or so.

I told my DR. i have very bad blurred vision and he said it because the med runs my sugar up but I check my sugar and limit my sugar and it around 100 all the time which is normal soits not sugar. Then he said well them you need to see an eye dr. cuz your eyes are going bad. I begged to differ with him and told him if there was something wrong w my eyes then why is is one day I see fine and the next day all blurred and then back to normal!? it this stupid steroid if you ask me plus on day my right eye is bad and next day my left uggh!

The WORST side effect it the brain fog as yall call it. OMG I feel like im loosing my mind and going crazy. The dr. says hes never heard of such with a wise remark and says you know where your at now right? I know where i am and what I say but I feel like its not really happening. Its like im dreaming it. I feel like Im trapped in my head and I lookout blurry eyes.

Before I was a very confident independent person but now I feel scared all the time i feel hopeless and ive went through 3 girl friends over the summer because of the extreme forward attitude the med gives me. I am not the same person I was. I some time just want to die. I'm extremely tire if i do any exercise at all.

Plus I have all the other typical side effect like the moon face and weight gain. I don't even look the same cuz my eyes have huge bags under them and a double chin I never had.

I feel for all of you because i know what your going through.
I saw one comforting post in here where someone said within 2 weeks of completely getting off the pred. he was his normal self.
I CAN TELL YOU HOW GLAD I WAS TO READ THAT!

Please if you have finished the med and have got back to normal don't forget about this post. Please let us know because we need any hope we can get to keep our chins up and not loose hope and go completely crazy or worse kill ourselves.

I have about 4 more months of this LIVING HELL and I will surely let you all know if it get better. If you have come off of it and are reading this PLEASE let us know if we get back normal at least w the brain fog. I can take all the side effect ok except for the crazy dream zone zombie feeling.

I WOULDN'T WISH THIS KINDA HELL ON THE DEVIL HIM SELF!!
Let's pray for each other that the Lord keep out minds strong until we get off the nightmare drug call Prednisone.

side effects:
brain fog, blurred vision, puffy eyes, depression, confusion, dizzy, moon face, buffalo neck hump neck, hopelessness

ive been on prednisone and cortisone..2 doses i woke up and couldn't move my legs at all. the more i walked the more it hurt..the more i sat the worse it was to stand up and walk..idk what to do..i have to take this for the rest of my life..its just terrible to move.and my doctor wont be around for 3 days.

I used prednisone for sinus inflammation and it gave me bad side effects such as: irregular heartbeat and stomach upset and anxiety. It actually did help with the inflammation but I stopped using it because of the side effects. It made my lip puff out too, which i did not mind because i have small lips and i looked better with a bigger lip, lol! I am thin so if it made me swollen i did not care because i need to gain weight, i am only 105 lbs. I just started taking methylprednisolone tablets packet and they seem to work better and if it causes increased appetite that would be good for me because i lost so much weight because of my teeth and sinus pain i had everyday for four months. So far it is working but i just started it and will keep you posted. It does seem milder than plain prednisone I suggest you switch to this if the prednisone is not working for you. It sounds like most people are on too high of a dosage and take with food and a lot of water. Hope everyone feels better soon.

hair loss after prednisone?

i took 60 mg of prednisone for 1 month for a kidney inflammation. i tapered down for months and finally have been off it completely for a few weeks. i did lots of natural things and really had no side effects- my face did get puffy when i was tapering, at about 30 mg but that's gone now. and my lip hair came in fuller but it's pale blonde so it wasn't too much of a bother

however, suddenly my hair is falling out like crazy. i took advair for many years (only 1/2 dose) and didn't connect it with my hair thinning until i started reading this site. i weaned myself off advair and noticed soon after that my hair loss in the shower was minimal

then i went on the prednisone and i was still fine. has anyone noticed hair loss after stopping prednisone? will this stop after a while?

I have had life-threatening spasmodic breathing episodes for the last year. My GP attributed it to asthma, because that's what it looked like, and they have given me prednisone shots and later on, antibiotic shots, to control it (for about 6 weeks at a time). I have well-controlled type II diabetes, so predisone can cause it to go out of control fairly quickly. Prednisone also caused some occasional pain in my feet, probably because of the elevated blood sugar. All the asthma drugs they gave me actually made me sicker, like Advair, etc. Lo and behold, I was able to talk my doctor into a referral to an allergist, and my allergy numbers are off the charts! All grasses, most trees, and many animals were high enough to cause anaphylaxis, especially when surrounded by more than one. Anaphylaxis can cause the labored breathing I suffered. Meanwhile, I have the lung capacity of an Olympic swimmer. I have an elderly friend who has gone to the hospital several times this year with the same problem. After I found out my results, I talked to his wife, and they discussed the allergy and infection aspect with the doctor. Turns out he had fairly severe allergies and infections that made his life-long asthma go way out of control. With a medicine for infection, he is 10 times better - the asthma is under control because it is not being jump-started by the low-level infections he suffered. I don't even have asthma, it just looks like asthma. I will begin years of allergy shots, just like in my 20's. (I am 55). The upshoot? Some people are suffering severe asthma symptoms. Others have a combo of problems which are exacerbating the asthma-like problems. Doctors who think you only have asthma tend to only treat asthma. Prednisone greatly reduces inflammation, which is a common factor in all the above diseases. So, calming the symptom doesn't mean treating the source. You long-term asthmatics should also look inot taking allergy tests if it is considered safe (they DO inject a small amount of allergens in your skin), and not spend 100% of your time with the pulmonary specialist who is only looking at your lungs. Also, you really need to do some cause and effect testing with antibiotics or similar to see if you have some type of infection. My friend and I are both on our way to better health because we went beyond treating the symptoms.

I'm 15 years old and i've been taking prednisone for a few months, and from what i've read i'm on a really high dose. i was diagnosed with rheumatoid arthritis and another autoimmune disorder concerning my muscles at the same time. my doctor told me prednisone was my only choice; it was either that or i would lose the ability to walk. he told me there'd be side effects, but i had no idea it'd turn out like this or i would have fought harder for another course of action. i started out on 30mg twice a day, and since then was weaned down to 20mg twice a day and now i'm down to 30mg once a day. i've been looking up a bunch of information trying to figure out if there's a way to lessen the side effects or any hope at all that they will get better. apparently there isn't much. after reading a bunch of these stories i gotta say i'm not feeling great about this. i totally understand everything everyone is going through. i'm sure you can imagine what it's like being smack in the middle of high school with a huge puffy face, acne so bad on my face, chest, back, neck, and shoulders that wearing a bra could put me in tears, and mood swings so bad i've lost friends over it. everyone knows how brutal high school can be, where appearance and attitude are everything. and i try to tell my doctor about it and he literally looks at me like i'm a whiny teenager and says "you're just going to have to deal with it." and people like my mom and my closest friends don't get it either. nobody understands how beyond frustrating it is. i'll get into the worst moods and not have a reason for it, but i'll stay angry for hours or burst into tears over someone looking at me the wrong way. it'll get to the point where i have to isolate myself from other people because the abrubt mood changes get so bad. as bad as i hate to admit it, the pain from the arthritis is gone now and supposedly my muscles are doing better too. developing arthritis caused me to have to quit cheerleading, something i've loved doing for 6 years, because the pain got to the point where i couldn't get my arms above my head or bend my knees. however, i'd almost rather deal with the horrible joint pain than deal with the side effects of prednisone. if your doctor gives you and alternative method, take it. i've always been confident in the way i look and really outgoing and happy and now i sometimes catch myself thinking about suicide. that's shocking to me because i've got so much going for me, but this medicine makes me miserable. and when i complain about it, anyone i'm talking to just looks at me like i'm being a cry baby. my mom does too, she'll say things like "you just have to do this. i know it's not what you want but to be honest i'm sick of hearing you bitch about it."
i feel a little better knowing other people feel the same way - like nobody gets whats going on with them. the prednisone does give me days of really great euphoria and days when i feel like i could run a marathon, but waking up in the morning to the acne and huge face puts me to tears every day. i have to pee all the time, usually getting up at 2 or 3 am. i don't sleep well anymore and i do sweat all the time. which also sucks being a teenage girl. i'm always hungry, and when i eat i never feel full so i don't know when to stop. my neck and face have put on so much weight that when people see me in the halls or out and about they ask me what happened. mind you these are people i don't talk to, just ones i know from classes or whatever. and it's pretty bad when teenage boys i've never really talked to ask what happened to your face. kind of a blow to the ego, or whatever is left of it at this point.
i'd like to know if, as my dosage gets lowered, the side effects will diminish and when i'm off the prednisone completely if they will disappear altogether. any help there?
or if there is any way to help the acne or puffy face

my doctor just put me on something called methotrexate or something like that to help wean me off the prednisone, and does anyone know what those side effects will do? or if they'll affect the prednisone side effects?
i'm constantly obsessing over gaining weight and what my skin looks like and what i eat and how heavy my face feels and the occasional pressure in my eyes to the point where i just want to be put out of my misery.
and after reading other people's stories i really don't understand why this drug is still given out as freely as it is. but maybe all doctors are like mine, they just don't get it.
best of luck to anyone who's on prednisone, my heart goes out to you; i'm right there with you
sorry this became like a book it wasn't meant to be this long

my boyfriend has been on prednisone for 4 years and he is terribly snappy and aggravated all the time and short tempered and does not think that he is... i love him so i deal with it but its getting harder because he dosnt feel this is correct every time i ask him something he bites my head off and almost everything i do irritates him gets on his nerves the mood swings are out of this world sometimes and he totally thinks im being a lala in his words...will someone respond to this so i can show him and he will know im not just saying these things
all this

I had ankle surgery in March 2009. After several weeks of pain and inflammation, my doctor prescribed a Prednisone dose-pak to "settle everything down." Yesterday, day 1, I took 2 pills before breakfast, 1 after lunch, and 1 after supper. About 4 - 4 1/2 hours after taking my supper dose, I developed SEVERE abdominal pain (akin to labor pains) and diarrhea that lasted for several hours. The pain abated during the night and today I have had very sore abdominal muscles and a little bit of an upset stomach. I never took the bedtime dose

I don't care how much pain I have had in my ankle...nothing compares to the pain I experienced last night. I will never take this medicine again. According to all the information I have read about side effects, nothing indicated I would experience pain like this.

I am hopeful that now the stomach/abdominal pain "settles down."

My Doctor put me on prednisone 10mg for inflammation in my neck. I did 5 first day 5 second day 4 fourth day and when it was time for day 3 he took me off my upper body from waist to neck hurt so bad if anyone would touch me, blotchy to touch no visible rash stomach cramping nausea and I described sitting down as if I had a very bad sunburn, hunched over. I called his office and they said doesn't sound like a sided effect to stop taking well that night Thurs. I was in the ER for a what they are calling an "allergic reaction" gave me benadryl and sent me home next day very groggy, body still hurt not stomach and slept all day. Saturday night back at the ER bad headache and neck and face felt tingly very weird after a million test sent home. Sunday felt the same. Monday went to doctor's office with abdominal cramping nausea and tingling face/headache had an scan of head and more test gave me anxiety pills (I think they think I'm nuts now). Tuesday back at his office feeling worse more test everything so far is normal gave me something for headache (it worked!) and sent me to see a specialist to make sure it was not my appendix which it's not. I'm Still having stomach cramps upper stomach above belly button no more headache occasional tingly of face and no appetite having a stomach ultra sound today. I'm just wondering now if anyone has had the same symptoms? Starting to think maybe I am crazy. I wasn't on it very long so I'm sooo confused. I was also told at my 2nd ER trip that they didn't believe I could have an allergic reaction very impossible.

I was diagnosed with Crohn's back in the 80's finally, after suffering since I was 12 and being told I was a child with a "nervous" stomach...dad used to tease me because I had to use every bathroom I came across, not realizing there was a problem. I had a portion of my bowel removed in 84 - the ileum valve along with a portion of the upper and lower bowel surrounding it, which, at the time was the most diseased portions. Removing the valve means that I must inject vitamin b-12 for the rest of my life as that valve is the place - the only place in your body that absorbs and uptakes that vitamin for you. As with any inflammatory disease, other inflammatory problems can occur because of the high inflammation running in your body. For me, this meant a form of arthritis, rheumatism or whatever. Doc wants me to go to the rheumatologist, but so far I have gotten by without YET another diagnosis on my plate. Before the surgery I asked my internal specialist if seeing a nutritionist would help me. I was so, so sick at the time. He scoffed, looked disgusted and asked what do you eat that makes you sick? I said everything. He said, then what is a nutritionist going to tell you to eat that isn't going to make you sick? At the time, I was so sick I just wanted to die and accepted that as an answer. After the surgery and many courses of different drugs for Crohn's - all of them with side effects that kept me from living a "normal" life - all side effects seeming worse than the actual disease itself I did a tremendous amount of studying on the history of Crohn's.- Burrill B. Crohn (1884-1983) was the man to discover it. In one of the articles I read he prescribed a very low carb diet to his patients which seemed to help in the majority of them to keep flare ups at a minimum. I have found, through years of experimentation with different diets ranging from health food diets on down the line, that the low-carb diet keeps my disease in check. People are like kids though. They don't always do what they know is good for them. I love chocolate, breads and sweets. In some studies I have read that you crave what may be bad for you because the bacteria your gut harbors wants to live and makes you crave what it needs to live. So, when I yank carbs from my diet - after the initial withdrawal stage and cleaning out of the gut from having done so (much diarrhea), I begin to feel almost like a normal person again with energy and pain-free. I slowly introduce fruit back in - but, through a series of colonics I had some years back, the practitioner was able to determine many foods I was allergic to just by noticing what comes out in the movement that has not been digested. Apples I can have, but not the peel. Cantaloupes - no - watermelon - not very often, etc... you can mostly tell by looking at the stool what your body is rejecting. It is its way of telling you what not to eat. Like a kid though, I stray from what I know has been tried and true and when I stray too long, joint pain comes on with a vengeance. That is when I get slapped back on the steroids to get the inflammation to back off again. When I'm not on the diet the joint pain can be controlled with Celebrex, but, when not on the diet and not taking Celebrex, the pain is out of control and has to get reeled back in with a course of steroids. So, if I can stop being a stupid kid (I'm 50) and just friggin' do what I know I need to do, I'm 95% pain-free and medication free. I have stayed mostly med free now since I was diagnosed in 84 or so through the no-carb method. The only times I had to take meds for this was when I was stupid with food for too long and one other - I had a kidney infection that I didn't know I had. It threw the Crohn's out of remission big time causing me to have to be on heavy-duty antibiotics, steroids, etc. It nearly put me in the hospital. I thought I was having a Crohn's flare-up only, but turned out the kidney infection was there and caused the flare-up - inflammation - when it hits you anywhere in your body it can cause that Crohn's to rear its ugly head. It took them years to diagnose me and through my own trial and error, I have learned how to live nearly and mostly drug free with this disease. For me, the drugs and effects are worse than the disease itself. The drugs make it hard for me to work and live. I can live near normal without them and with the diet. Your doctors will tell you differently. Doctors are put through med school on grants from pharmaceutical companies, therefore, they only learn how to treat with meds - they get kick backs from the meds they prescribe too. They do not learn how to treat through nutrition, nor do they want you to know that either. There's big money in meds - look around at all the hospitals and the many, many people taking all these drugs - synthetic drugs that are created to mimic receptors in your body so that your body accepts them, only to have to work hard to throw off the toxic substances - the synthetics they are created with so they can be patented. It is the PRACTICE of medicine and they are PRACTICING on you. Do your own research and study and conduct your own trials. I'm not saying don't go to your doc and don't take the meds - get it under control, but once you have it under control, find a way to keep it there as drug-free as possible. Your liver that has to process the toxicity of those meds will thank you for it. Your entire body will thank you for it. When the bad flare-ups happen, get your juicer out and drink nothing but fresh juices for 3-4 days. Juices are pre-digested. Your body doesn't have to work hard to assimilate the nutrients in them. Did you know that your body never does anything MORE strenuous than digesting? You could run a marathon and the amount of energy your body expends would not even come close to the energy it takes to digest your food! When you are ill - pull the food so your body can free that energy for your healing. You won't believe how much better you'll feel. Once you get it reeled back in by only having liquid for a couple of days, make sure your starch and sugar intake are lower when you begin to eat again. The bacteria in your gut feeds on carbs - starches and sugar. A good read is Marilyn and Harvey Diamond's "Fit For Life" - it has a good explanation as to how the digestive system operates - how the bacteria works - how your body has different acids that are used to digest your foods and how some of the acids that digest some foods do not mix well with other digestive juices and how to avoid that combination. This has been my trial and error - I prefer to NOT have to see the doc for Crohn's often...I haven't been to a gastro guy in 9 years or so. I do have a regular doc that, if I have flare-ups, will put me on a course of steroids for a couple of weeks to reel it back in, but the fact that it has to be reeled back in at all is my own fault because I was a bad little girl and didn't watch what I ate. For me - that's the simple solution - the food. But, you have to get it under control first before you go that route. I take the drugs til I feel better. Then I get off them and mind the diet. By the way - the arthritis - when on the diet troubles me very little. When I'm high carbing and high sugaring - the arthritis KILLS me... hope this helps any of you... I have studied this disease and nutrition since my diagnosis in the 80's... if I had it to do over again, I would go back to school and become a nutritionist...

I started Prednisone Feb 7,2009 because I Have inflammation in my ear and other problems because of the disease. He started me on a high dosage. I take 3 pills a day. My doctor warn me that I would gain weight but Im not concern with the weight gain because prednisone helps me feel better and I know it's working. I'm always hungry,my face is Moon shape, and I feel fat but what have me scare3 is I can't sleep(insomnia) any more and I have severe join pain.My muscles feel weak, My leg and knee aches and I can barely walk sometimes! Im scared I might get avascular necrosis!and my blood pressure go up and down! I never had high blood pressure but the last time I went to the Doctor my pressure was high! Also I get abdominal pain, and feel very sick to my stomach!

I am so glad I'm not the only one that has the crazy symptoms. I am being treated for an inflammation in my optic nerve. I woke up over a month ago now with double-vision. I was on 100mg a day for seven days then went down to 60mg. I feel like I'm high all the time though. I have to take my pills at 7 in the morning and they are still effecting me until about 2 or 3 in the afternoon. I can't drive or do anything that would take a lot of concentration cause I just feel out of it around my eyes. Also I have tingling in my face and arm. Not sure if this is a side effect or if its the possibility that I may have Multiple Sclerosis. (getting an M.R.I. done for further testing) Does anyone else have those tingling sensations?
My vision has almost come back to normal now. The Prednisone has done wonders for that, but I really hate taking it.

I have been taking prednisone on and off since '04, totally unaware of the problems associated with it. In '07 I got double pneumonia and almost died, and that resulted in nearly 3 months of the 6 I was sick, of on and off prednisone use. I have never recovered from it, the inflammation that kept me from breathing and nearly killed me, comes right back within 2 weeks now, and back on the prednisone I go for another 2-3 weeks. I have been sick now for almost 14 months like this. What saved my life from pneumonia, now appears to be taking it slowly.

My doctor said I have to come off of it, or it will kill me. As it is, without it, I'm like someone with emphysema and I've never smoked a day in my life. At present, I have refused to do the re-dose, and my abdomen is so swollen it hurts and is so tight you could bounce a quarter off of it. My ankles, which never swelled before, now swell constantly and I now have to take a water pill now to wear shoes.

I'm 52 years old and had never been on ANY long term MEDS AT ALL, until they put me on prednisone. Now I take half a dozen. If there is any way, any of you can NOT take it, don't do it, not even for a short time unless it's the only thing that will save your life. It is like inviting a cobra into your home and then sitting there watching and waiting for it to make it's final strike. I think it has damaged me beyond repair. I go to a lung specialist the end of month.

I was giving prednisone for only 5 days (not sure about dose, but it tapered to one pill on the last day) for a bronchitis induced severe asthma attack. I have only had asthma twice in my 50 years, both times associated with a bad case of bronchitis. The "doc in the box" reduced his original dosage due to the 3 corisone injections I recently had in my spine. After reading these posts I feel grateful I wasn't on a higher, longer term dose. I have some of the same side effects listed here including uncontrollable appetite, fat gain around the middle, water weight gain, constantly having to urinate, superhuman energy, heart palpitations, and approximately two weeks after finishing, I began to get a mustache (hairs that were previously white became brown over a two week period). I have read on the internet and been told by my pharmacist that this is temporary. I have also read and been told that the 2mg estradiol I take every day since my hysterectomy causes the body to retain and not rid itself of the steroids as it normally would (estrogen is actually listed as drug interaction with prednisone). The doctor in the box apparently just ignored this interaction and prescribed it anyway. However the main reason I am posting is a very strange possible side effect that occurred approximately 1 week after my final dose. I was awakened in the middle of the night with SEVERE pain (felt like bone pain, not muscle) in my right knee that lasted until morning. By mid morning it was gone. The next night I had the same experience but in both knees. It lasted about 5 more days, gradually tapering in intensity, and then just went away. I do have severe arthritis in my lumbar and cervical spine, having had surgeries to repair injuries from a snowmobiling accident. I have normal arthritis elsewhere for a 50 year old, but have NEVER had issues with my knees. Has anyone had this strange symptom? None of my doctors (internist, rheumatologist, physiatrist - who gave me the injections and prescribed physical therapy for my spine) had any explanation. The only explanation I have is the prednisone because I had taken the Z-pac (antibiotic) with no side effects several times in the past. Weird!

Incidentally, I am off the prednisone for about 5 weeks, am still hungry all the time, still fat, still bloated. Unfortunately the extra energy is gone. Best of luck to everyone on this strange drug. My heart sincerely goes out to all of you on long term therapy. God bless.

Started taking 20 mg prednisone today for a bout of inflammation in my jaw and ear. I felt great when I first took the pill but now 7 hours later I am having terrible aches and pains in my hips, legs and shoulders. I am trying not to think that everything that can go wrong will go wrong but I feel worse than the ear ache I started with. Has anyone experienced such quick aches?

Hello everyone, I just started taking Prednisone today for severe Sciatica. I have read all your stories and now im so weary of taking another pill. Some of the side effects that y'all have experienced are awful. I think i would go crazy if i got all of that. I am on the Medrol Dose Pack and i started 2 pills before breakfast and now i have some stomach pains. Its sad that you have to take this for pain and inflammation and then end up with all other kinds of problems. Thanks for sharing your stories. I think im gonna stop taking it all together. Stacey

I was prescribed the 4mg methylprednisolone pack along with 50 mg tramadol for acute tendinitis in my wrist. I took the first 3 days of the prednisone and only 2 doses of the tramadol over the three days. For a total of 60 mg of prednisone.

The first day I had hot flashes and insomnia but attributed it to the tramadol because I had never taken it before and had taken the prednisone several years ago for poison ivy with no adverse reactions. I didn't take the tramadol the second night and then took it again last night along with my daily dose of prednisone. I had extreme difficulty falling asleep, heart burn, hot flashes; and tossed and turned all night trying to fall asleep. At around 2am, I began to have difficulty breathing, tightening in my chest, confusion, and racing thoughts. It felt as though my throat was closing up on me. My anxiety progressed to the point that I was pacing back and forth. I woke my husband up and told him to prepare to take me to the ER. After calling my insurance's 24 hour help line, it was recommended that I go to the ER. I had an x-ray, blood work, urine drug screen, and echocardiogram. Luckily, everything was negative. The ER doctor told me that I likely had a reaction to the prednisone and commented that some people will experience these symptoms when taking it. He stated that he had a similar reaction when he took it and it felt like he was climbing the walls, which is an accurate description of my experience that night. He recommended that I either stop taking it altogether or call my primary care provider and cut it down. He prescribed me xanax and administered some to me at the ER which greatly helped. The next day I stopped taking the pred but am still having dizziness, chest tightness, hot flashes, and mental dullness. I have decided to never take this medication again. Fortunately, I don't have any of the physical sx that some have experienced, and my heart goes out to you. I think the mental symptoms were traumatic enough for me and can't imagine having both as I would be a basket case. I have mood swings, some melancholia, and am very fatigued.

I think it is imperative to research any medication that is prescribed to you before you take it. Many providers will say that side effects are rare, but my experience is that side effects are more common than rare. My prayers go out to those of you who are going through what I am going through. I hope that it clears our systems quickly because this is no way to live. I'd rather put up with the pain of tendinitis or carpel tunnel than to have these symptoms.

My 12 year old son has been on 60 mg of Prednisone for two weeks now. His side effects have not been bad at all up to this point. He's gained about 6 pounds. His brain is unusually active right after taking the drug, and this effects lasts a few hours. He's always been a wildly creative kid but prednisone seems to intensify is creativity and the productivity of his brain. He has Tourette Syndrome and his tics waned overnight after beginning the meds so that is a big bonus if prednisone is responsible for that. He has always been an insomniac since he was a baby but prednisone makes him sleepy, so sleepy he takes naps during the day and goes to bed early, sleeping soundly all night, so soundly he had an accident and wet his bed last night. His head sweats when he sleeps. He has infrequent periods of mild irritability. His appetite has increased but not unnaturally so. Seems like he finally has a sustained healthy appetite. He goes to 45 mg for two weeks tomorrow so I'm interested to see what new side effects this brings on. No stomach problems despite taking this along with very high doses of antibiotic. Maybe the prevacid he takes with Lactobacillus is helping with that and the fact that he takes his meds with small meals or lots of fluid.

I am 49 yr old male and was diagnosed with a severe upper respiratory infection. Was put on Prednisone for 20 days. I never did experience depression, but I did experience the hyper state and was full of energy big time. It was actually nice ...had felt better than I had in a long time. Two of the side effects that I have been experiencing is sweating a lot more than normal ... I mean just the littlest of exercise and my shirt is soaked. Also my back and the back of my neck has broken out with acne ... that really hurts. I am using Desoximetasone which is a prescription cream and it has almost cleared all my acne up. I was about 250lbs and lost to 235lbs in the twenty days I was on it. I never changed my eating habits ...weight just fell off ...... man I wish they could put that it another pill without all the side effects. Now that I have been off for a couple of weeks ...I have gained some of the weight back ... but I'm really trying to change my eating habits and get back to 235 and go lower.
I wonder if everyone posting would also put their blood type on their comments. There are so many different opinions of Prednisone ...there has to be a reason why you have so many effects for some and very little for others. I did research this drug while I ws taking it and read that if you take it for longer than 30 days that your body will stop making the natural prednisone that it makes. Thats why you hear when people take it for long periods of time ...you are destined to take for the rest of your life.
As far as lung condition, I can breathe again and I think I'm totally cured ... I have a follow up with my lung doctor next week.
My prayers are with you guys .... I agree .. I don't think I want to take Prednisone ever again. My blood type is AB+

im a 20 year old male who was given prednisone to reduce the inflammation around my spinal cord in my neck from a herniated disk. 60MG in the morning for 4 days and 40MG in the morning for 3 days...... no real weening process which im seeing probably should have been administered. while i was on it the mood swings were nuts and i noticed feeling muscle weakness and joint pain along with the occasional burning or tingling. ive been off it for 6 days and now the muscles in my legs and feet twitch and im still crazy in the head with little sleep and sinus headaches that don't quit. how long does this shit go on?

Prednisone is a popular medicine used to treat inflammation, but actually it is close to useless for anything. It can cause infections to flourish so any MINOR infection can blossom into acute wide spread sepsis. PLEASE use with CAUTION!!!

I had been on a prednisone dose pack (not too strong??) about a month ago for a neck injury to take away some inflammation. No side effects to mention and my neck felt tons better. Yesterday I went back to my dentist after 5 days of pain from a root canal. He put me on a prednisone dose pack saying there was some inflammation in the bone, very common, and the prednisone should take care of it. I took my dose yesterday, didn't sleep well (common side effect it seems) but then today my heart is racing and feels like it skips a beat. I have read this happening to folks on much higher doses, anyone have this kind of side effect with 20 mg/day?

My Dad about 65 lost sight in one eye recently. Now the doctors are saying he is losing his sight in the other eye. He was on Prednisone for years. Recently he has been taken off. The doctors say they have a 30 day window to find out what is causing this inflammation or he could die. He is also diabetic and has sarcodosis. He has an MRI scheduled. Prednisone should be banned.

My doctor put me on prednisone for pain and inflammation and I have never felt better in my life. It's a miracle for me right now and I'll take my chances with the side effects for being pain free. I'm a happy lady for now.

Predisone is the only other alternative for antibiotic therapy. Predisone has been known for years to have a lot of side effects. Always keep in mind you must be weined from the medicine never stop without consulting your doctor and if your doctor gives you a dose that does not require weining please also consult your pharmacist and the pharmacist really knows the drug compared to your doctor. Doctor's typically only know what the medication reps tell them whereas the pharmacist has extensive medication knowledge and will also know your current medication conflicts. Be sure that your doctor is aware of all medications including all herbal supplements and other the counter medications. With predisone you really have to out weigh the symptoms verses the side effects then determine are they really worth going through to eleviate your symptons. Keep in mind Predisone is a steroid a very potent anti-flammitory and reduces the inflammation so the infection can heal.

I was put on Prednisonsone for Uveitis, inflammation of the eye. He started me on 20mg at 9 pills a day, then each week it was lowered to 6 pills then now i'm on 3 pills and then next week it will be 1 1/2 pill and i'll be off. I got the puffy face, my feet swelled, everytime i hate my stomach bloated and hurt, my face and neck turns red, i stayed hungry although i fought the temptation of eating for not wanting to gain a lot of weight, which I don't think I've gained any. But now I wake up in the middle of the night and severe knee pain, it feels like my knees they are in some kind of device that is crushing my bones they hurt so bad. i caught a bad cough and it's been around now for about 2 weeks and won't go away, i told the nurse about it and she says, i probably just got what everyone else has gotten, just a bad cough, well what's if it's some kind of infection? I look like a chipmunk, my face is so puffy. When i get off these prednisone in another week I WON'T BE going back on them, no matter what the case. I'm in more pain being on them and have more side effects while on them than the problem i was having with uveitis. I think some co workers thank I'm over reacting, but they're not here they don't see all the pain and frustration i'm going through while on this drug. The leg pain just started this weekend and i Know i can't deal with waking up everynight like this in severe pain. Everyone just makes me feel like i'm over reactin and it's nice to know that somebody out there is going through the same thing. Any comments will be great.

Very few side effects. My father was put on 30 mg of Prednisone to control an inflammation that he was having in his body. It seemed to work well. He had also lost considerable weight, had anemia and was admitted to the hospital prior. So I wasn't worried about the common side effect of Prednisone of weight gain, as post-hospital we were glad he was gaining weight. I don't know if it was a side effect, as he only slowly gained a pound or two each week and then eventually plateaued about about his old weight.

We've now started tapering it, at my recommendation, not the doctor's!, and we are not seeing any return of side effects yet. He did have a bit of the puffy face, and is a bit compulsive, but we don't know if that's because of his Alzheimer's or the Prednisone.

I wanted to let some other know, as I've done a lot of reading/research, looking at the prescribing and pharmakinetics of the drug, it seems important that the taper is most critical when you are nearing 5 mg. This is because 5 mg is about the amount that your body naturally makes, so if your adrenal glands have stopped making it, it would take some time for them to 're-awaken'.

Therefore, the typical recommended tapering schedule is something like 10 mg per week, then slowing it down at 10 mg, and then real slow at 5 mg, eventually going to like 1 mg pills, as you try to continue down to no pills.

While I think Prednisone did put an end to a life-threatening inflammation for my father, I like many others would have liked much more upfront info and options from the docs. We are now on a slow 3 month taper schedule, that nobody realized we'd have to do when we started.

BTW, my dad has mild/moderate swelling in his ankles and toes, but nothing in his hands or abdomen. We don't know if it's because of his loss of weight, muscle and weakening of his heart, and/or some interference with his adrenal-regulation from an ACE inhibitor, Lisinopril, that he is on for his hypertension, or the Prednisone.

Any advice on the swollen ankles would be appreciated.

Are you aware about short and long term side effects of this Devil's drug??? Of course, everybody reacts differently while take or withdraw. But there are high number of people who react terribly bad!!! Doctors do not want to recognize and discuss this. They just keep silent... Do you know exactly how Prednisone works??? Nobody knows this for sure, even doctors!!! From my personal experience, and despite gradual withdrawal, I developed extremely high blood pressure, weakness, panic attacks, depression! Practically it ruined my normal life! Doctors have no clue how to deal with its devastating side effects. Steroids are not selective. When you take a steroid, the drug infiltrates the nucleus of every single one OF YOUR CELLS AND STARTS MONKEYING AROUND WITH GENES IT FINDS THERE!!! It probably plays with hundreds of genes. And just a small number of these genes control the pain and inflammation associated with inflammatory diseases, so steroids turn many of these genes off which is good thing. However, because steroids are not selective, they also regulate the genes that control kidney, liver, BRAIN, and HEART function - which is not good thing!!! It is likely that steroid treatment plays with other genes, too, including those we do not know about a lot right now...So, Prednisone pervades the entire body, which increases the likelihood of short-term side effects and long-term DAMAGE. My advice is: THINK TWICE BEFORE TAKING PREDNISONE!!!

Stay away from Prednisone

My prayers to all of you who take these destructive "medications". here's my short story.

I had been diagnosed with Sarcoidosis back in 2003. My doctor gave me 60MG per day (three 20 MG tabs) for over six months, with the weening off period lasting another six. To make a long story shorter. I went through many of the same problems like, bloating in the face and body, rashes, a bump that looks like a wart--that still won't go away, and a continuing state of memory loss. I get baffled easy now. I also continue to go through mood swings.

But here's the kicker, I haven't taken Prednisone for over 3 years and I was trying to begin lifting weights. I thought I popped something in my arm, but the doctor says that I have "aseptic necrosis", that has developed in my left shoulder and soon to start in both sides of my hips. For those who don't want to "google" the term, basically parts of my shoulder and hip bones are not getting blood flow and are dying (necrosis).

With my memory loss, I am having difficulties performing at work and doing routine tasks at home. I did not think this "medication" would have affected me this much.

Prednisone needs to be on the banned list of medicines.

Hello everyone,

My name is Tina and I am a mother of 5 children and I was diagnosed with a very rare disorder called "VKH" It is a rare eye disorder that only strikes like 1 in 1,000,000,000 people. I was put on Prednisone to help with this condition and to reduce the swelling in my eyes. I was put on 70mg initially and was tapered down to 40mg. then things did not go as well as to be expected and I was bumped back up to 60mg. I am so happy to read these stories but also saddened at the same time. I have been on Prednisone for 5 months and have gained 20 pounds and have the moon face, the acne, the hair growth and the horrible mood swings. My husband and I had our 10 year anniversary last week and I spent it all alone because of my moods.......
It has destroyed my relationships and my self esteem. I don't like leaving the house barely because I hate how I look and I am so depressed I am not the same person as before. I cry all the time because sometimes I wonder if taking this drug is worth it!!! What makes things worse is I wonder if things will ever go back to normal for me or my family again.................

I don't have a new side affect with Prednisone but just want to share my feelings. I was diagnosed with Temporal Arthritis since last July 2007. I started taking 60 mg of Prednisone for 1 month. Didn't notice the side affects then. Weaned myself off through my doctor's instructions. But relapse occurred when I was only on 2 daily. With Temporal Arthritis, you get delibating and horrendous head pain which is caused due to inflammation of the main artery in the temple. I am back to 3 daily.
Besides my moon face, I am bigger. I really don't have a lot of the other side affects you all talk about. I am sorry you all have to go through that.
My depression is better. My sleep is horrible. Now I am going to a sleep study to see if I have Sleep Apnea.
I consider Prednisone a wonder drug. Although the side affects are horrible, I have to admit, I feel much better, most of the time. I do have inflammation in the neck. Not sure if that is pred or temporal arthritis, but am seeing a rheumatologist for that.

Teena

I was given 20 mg of Prednisone for 10 days for a rash and joint pain.
The pain went away and I felt great the rash got a little better. Two days ago I took my last pill. I woke up that night and my knees gave out. By morning I was great! Next night I woke with knee problem again had to slide down the stairs to the living room. I got to wondering if the knee thing could be associated with the Prednisone. I got on line and read all this terrible stuff. I am so Horrified! Today I am in pain like my body is bruised and my face is swollen a little. I have acid reflux as well. Non of this is typical for me. My knee thing is ok again, but I am just appalled! I have no MED insurance. I hope this isn't the beginning of worse things I am not taking that drug now. The Dr. didn't say I needed to taper...

I hope I have not damaged myself by taking this drug! My heart goes out to all of you! My question is - Why are the Dr.'s prescribing this terrible drug?

I have read some of the board and would like to know if anyone else has had prolonged side effects after being off Prednisone for almost a year. I think Prednisone caused all my current health problems. Was on the higher dose 5 day plan for a severe inner ear infection. I stopped taking it after the third day cold turkey, which I know was wrong because of blurred vision and stomach distention so bad I thought I was going to burst (almost the same as when I was pregnant). The first 4-6 weeks of stopping it were pure _ ell. So many withdrawal symptoms. I went to my doctor and he said I couldn't possibly be having all those symptoms from the Prednisone since I was only on it three days (but it is the regimen where you take the higher doses/multiple pills in the beginning and then it lowers the dose each day). Every few days it seemed I was having something new happen - heartburn, sweating, headaches. Then my thyroid function began acting up (hypothyroidism) and glands seem to swell with my monthly cycle. I started having a daily dry throat. All my symptoms seem to be on my right side: blurred vision, dry throat, swollen lymph glands, ear pain, groin swelling. It is one month shy of a year when I originally took the Prednisone and nothing has decreased, only new symptoms appear. My doctor keeps treating each symptom individually and won't look at the whole picture. I tried acupuncture and it didn't help. Any suggestions/comments?

Hello,

about a week ago I admitted myself to ER because of terrible breakout of hives (never had them before) but was covered from head to toe.

Doctor prescribed PREDNISONE 80mg for 4 days, and gave me an IV with the drug a week ago Saturday night (don't know how much was there), 12/29/07, I took my daily dose 80mg Sunday noon. I only slept about an hour or two. By new years eve 12/31, I have started getting cold chills, feeling unbearably cold, then the next day 1/1, I felt like I was 100 years old, all my joints were stiff, I couldn't get up from bed, couldn't sleep much but there is still more.

By Wednesday I have felt even more stiff and hives were not going away, I went to the doctor (my stiffness went away after couple hours in the morning) he prescribed more PREDNISONe for another week, luckily I have stopped taking the medication after 5 days of 80mg, plus whatever they gave in in an IV but I still have what I think are side effects from taking it.

Ankles are still sore, I cannot sleep because an extreme numbness sets in my left hand middle to index finger, it is no numb it hurts like an elephant is sitting on it, that is why I am still up at 4:30 in the morning. When I am up it just tingles. Not sure what to do but can't sleep at all for last 3 days and getting really tired.

If I knew what Prednisone does I would never take any of it, I'd rather deal with hives oh and they still didn't go away, I have had them for about 10 days now, they did stop itching. Honestly I felt very very sick a day after taking it, I didn't associate this with Prednisone, until I found this website. Please if you can stop taking it or see for yourself how much you should take 80mg is definitely too much, for me at least.

Did anyone have to deal with joint stiffness, and numbness how long does it take for it to go away. My wife says to to ER again because I can't sleep I am just very uncomfortable with the numbness and rattle in bed, but guess what they could shoot me up with more Prednisone.

I was diagnosed with Crohn's disease in July. I had my colonoscopy/endoscopy the day before 4th of July. Got sick with what I thought was the flu on June 26th. That's when I first landed in the hospital (dehydrated & sick). After the diagnosis I was first put on Entocort and Pentasa (Pentasa is supposed to be a remission drug - keep you from having flare-ups). Entocort didn't work so they switched me to Prednisone. I've been on Prednisone for about 6 months now. Going from 20 mg to 40 mg and then I'm finally weaned down to 5 mg. I get to go completely off of it Jan. 13th. Scared of what other side effects might occur from coming off the drug. While on it I've had emotional problems, acne(never had a problem with it before), moon face, gained 30 pounds, joint pain (I was in therapy for as long as insurance covered. - I recommend water therapy, it helps for some people as it did me), trouble sleeping (haven't slept a full night since I got sick), certain days I'm really really thirsty, I've had sort of what I'd call restless leg (I had this before I was on this medicine but it has gotten significantly worse - mostly at night or when lying down), and dry skin.I have to say though that the WORST side effect is the FOG. It's horrible. I enjoy learning and using my brain and when I'm on this I can't think, I mix up words, and it feels like my brain is covered in cobwebs.I had to drop a calc 2 class and that got me off the track I'd set with my academics. My inflammation rate is down where it's supposed to be as of the last blood test a couple weeks ago. So I guess the Prednisone and Remicade are doing what they are supposed to - but I still don't feel as if the pain (not associated with Prednisone - caused by the disease) has gone completely away even if the inflammation has gone down. And Prednisone's effects are just horrible. Some nights I feel depressed and just want to cry and cry. The past months have been trying because of several hospital stays, switching to many different doctors (gastrointernologists, nephrologist, urologist (kidney stones), primary doctor - and they think maybe I should see a rheumatologist), and Pentasa (it began shutting my kidneys down). I just hope that when I come off the Prednisone the side effects will fade (hopefully quickly but lets be realistic - ill just be happy if they go away sometime in the next few months) and I won't flare up again. Anyone know the best way to get rid of the weight? I'm already drinking lots of water and I go walking and do exercises everyday.

QUESTION: When tapering Prednisone does anyone have a place(s) on their stomach that are sunken in and feels dry compared to the skin around it?

Anyways, I hope that everyone overcomes their difficulties, whatever they might be or concern. It's hard to have a life when you are constantly fighting your own body to stay healthy.There are plenty of situations in life that are already hard enough to deal with without medical issues of your own. Best of luck to all!

Prednisone is evil. I realize it can be helpful for some people, the only time it should ever be used (in my opinion) is for life-threatening situations. It should not be used for anything that is not expected to cause loss of life, limb of function. I am a 46 year old female with asthma. This drug has been prescribed for me many time over the past 25 years and every time I take it, the side effects are worse and take longer to go away. While this drug may initially help with an asthma exacerbation (and I have my doubts about that), I believe, that with time, it can cause difficultly breathing.

I feel like my body is a toxic dump! I often wonder how many people this drug has killed and how many people may have killed themselves while using (or coming off of) this garbage...YES PREDNISONE IS THAT BAD! Please, if you are being asked to take this drug for something you can live with (minor pain, inflammation, allergies etc.) then weigh your options very carefully. IMHO the risks associated with taking this drug are usually not worth it!

I was prescribed to take 30mg/day (Prednisone) to try to reduce the inflammation brought upon by Ulcerative Colitis. I have taken Prednisone before....up to 60mg/day, when I was first diagnosed with UC. I don't really remember all of the side effects I experienced, but I do remember my calves and feet swelling, a bit a of moon face and very little weight gain due to the UC. Does anyone have any suggestions to how/and when I should take the daily dose of Prednisone (early morning, with food...what kind of food)? Also, I would love to hear from anyone with Ulcerative Colitis and how they are coping with the disease. From their diet when in remission to during a flare-up! Thanks...

I was put on Prednisone for 7 days 50 mg/day and lowing dosage every 2 days by 10 mg for what my specialist called sudden nerve hearing loss. I suppose it was supposed to help shrink any inflammation with the hearing nerve.

After being on it for 3 days, I noticed a few of the usual side affects mentioned here. Extreme appetite, insomnia, thirst, etc. By the fourth day, I had severe mood swings and by the fifth day, I felt like I literally could hurt someone bad. I was very irritable and full of rage. It's about as close to a pyschotic episode as I ever want to be and I'm glad I talked to my family dr about getting off this med immediately and since I wasn't on it very long, quiting wasn't a problem.

People and their loved ones need to be very carefull if they are taking this med. I'll never take it again.

I must add my recent experience with Prednisone to this forum:

I have been suffering from constant lower back pain and a torn shoulder injury (rotator cuff) for the last several years. A week ago I got a slight case of Poison Ivy. My doctor gave me Prednisone - starting at 60 mgs. a day, tapering down to 10 over 12 days. I was unsure as to whether I wanted to be on a steroid , especially after reading some of the testimonies here at this forum. But I went ahead and took it. I must say this has been one of the most amazing experiences for me.
Not only did my Poison Ivy immediately begin to go away, but lo and behold, practically ALL my back pain and shoulder pain went away. I also found myself with this amazing positive mental attitude. I began to get up and enjoy my job everyday (normally I am somewhat depressed and stressed out). It was such a major change for the better - I feel like I have been living the resurrection!! Yet I know it is only due to absence of pain and increased energy brought on by the Prednisone. I feel like a happier, younger version of myself. Prednisone has even helped me sleep better! So, evidently, for some people, prednisone is a wonder-drug.
I did note a very slight manic edge at times, but never unmanageable and always very positive. As soon as I decrease the dose, the pain and inflammation in my back and shoulder starts to return. What a shame that this drug causes osteoporosis and other long-term affects. I wish I could stay on it forever!!

Hi, I was on Prednisone for a little over a month for Crohn's disease. I had minor side effects while taking it: couldn't sleep, no patience, dehydrated, dry eyes. It is the side effects from AFTER stopping prednisone that concern me. I''ve been off Prednisone for 3 weeks and I think I am losing my hair and getting acne-that I didn't have before or during taking Prednisone. Anyone experience side effects that started after stopping the med?

Hello everyone. Thank you for sharing your stories. I no longer feel so confused as to what I am experiencing while on Prednisone. I was prescribed this medication for my back (I have a ruptured disc). I am 24 years old. I took a short five day treatment of prednisone about three weeks ago. I was very foggy and forgetful. I was tired and bloated. The worst side effect I have noticed is ACNE! Oh my gosh, I haven't ever experienced a breakout like this before. This breakout is a continuous side effect long after I stopped taking the drug. I went to the doctor again yesterday for a check up on the status of my back injury. He has prescribed a THIRTY day treatment and even more aggressive approach with prednisone!!!! I am so scared to start this treatment because of what I have already experienced. HELP! Does anyone know if the acne will clear up? Will it scar? Does anyone have any tips on this?
Thanks.

My thoughts on Prednisone are that it is USELESS!!! It is a popular medicine used to reduce inflammation, but other than that it is good for NOTHING!! It can cause ANY infection to flourish which means ANY minor infection can blossom into widespread SEPSIS. There has got to be something better. By all means...REFUSE PREDNISONE!!!!!!!!

Hi there... I have just found this site and I'm very grateful to everyone who has taken the time to sit down and tell us their story mine is very similar. BELIEAVE me I feel like I am pushing my family away and I'm losing my relationship with the one person who used to make me feel like I was the most beautiful woman in the world.
I'm a 40 yr female have or maybe had a great job that I loved... On April 12 I noticed a small red rash on my lower right leg no big deal went to the Dr. gave me some cream and sent me home well I went to work and by the afternoon things just seem to get bad my legs began to swell and little blisters started to pop up so I went to the E.R. they had no Idea what was wrong with me got me an appointment to see a skin DR. so I went home but the pain from the swelling was so bad I could not walk any longer went back to the E.R. they gave me some pain meds and called in some other DR. things had gone from bad to worse my feet had gotten to big I could not put on shoes and I had bruised completely across the bottoms of my feet they put me on 30mg of PRED. and it seem to be under control sent me home after 3 day in the hospital things were good for about a day or so I thought I would go back to work well that was not a very good idea.... My sister had to come and take me back to the ER where they did 2 biopsies and still have no idea what is wrong with me. so now they put me on 60mg of PRED the rash has gone, lots of scaring on my feet because of the blisters once they broke and dried out but I can live with that....
It's the side effects that they don’t tell you about,
MOON FACE I can't look at myself cause really that’s not me anymore,
WEIGHT GAIN I have always been thick but I can't handle the extra 30lbs I've gained,
MOOD SWINGS are unbearable,
PAINFUL JOINTS, CAMEL HUMP, BLOODY NOSE, BRUSING, SORE TEETH/GUMS, DRY EYES, FAITIGE, and worsted of all
I don’t have a support systems in my life so I'm fighting this by myself everyday, I have 3 kids that I have tried to explain all this to but they don't get it and well my boyfriend he tells me he understands that its the meds pushing him away but if I can't figure away to control this I will lose every thing including my job. I cant even get the energy together half the time to make it up and down the stairs which also comes with the pain of just trying to lift each leg up to climb the stairs, I also have the camel hump which I find very painful, The acne and the hair growth that I have to get wax off once a month cause I feel like a man I feel like a loser and as of the last couple of days I just want to give up I am now down to 20mg per day but I find that I am feeling so sick I cant think straight I hope and pray for each and every person out there that has to take this MED that you get better and I do hope that my symptoms wont come back. Thanks for being here and I’m glad I found this site. I know now that I’m not losing my mind completely. Elizabeth.

Hi! I am a 36 year old female and have been on this HORRIBLE HORRIBLE drug (prednisone) for 2 1/2 years now..... Hopkins doctors still arent sure exactly what i have. My immune system is attacking my liver so to speak. My body is basically looking at my liver like it doesnt belong and is attacking it with large multiple lesions that is eating it away... the good thing is that it hasnt interupted the functioning of it yet but is leaving horrible scar tissue. I have been in and out of the hospital 13 times, have had just about every test imangable, 12 liver biopsies and they STILL have NO clue! They are leaning towards Church Straus desease and Wegners but the weird thing is i have half symptoms of both. The first year they had me on 80 mgs of prednisone a day which had seemed to put me in remission for about 4 months and then they came back even worse so i was put back on the prednisone, 80 mgs a day AGAIN along with 100 cc's of Methotrexate, another not so nice drug... i had EVERY SINGLE BAD SIDE EFFECT OF BOTH DRUGS!! This second time around was ALOT WORSE for some reason!!! My body DID NOT LIKE IT!! Nausea, hair loss, moon face, gained 40 pounds (and i was in great shape, worked out, i am 5'4 and was 110 pds!), EVERYTHING was swollen, legs, ankles, arms, neck, face, had the camel hump, fingers and especially my belly!!! UGH!!! Have bone, muscle, and SEVERE joint pain! Kaliedescope vision, dry eyes and then had mucus discharge (kindof like pinkeye), headaches, intestinal problems.... VERY CONSTIPATED and then the opposite!!! I literally felt as if i had turned into a man in my behind!!! Sorry to be so gross but thats how bad it was!!! Jaw problems, teeth and gums as well, skin sensitivity and have little bumps all over my skin (kindof like tiny little moles), itchy, broke out with acne and pretty much NEVER had more than 1 pimple a month, had facial hair (VERY DISGUSTING!!!! HAD IT WAXED EVERY WEEK!!!!) and then on top of all of that the swelling of my liver not to mention the PAIN! I was recently in the hospital again with 12 new lesions, pneumonia, and 104 fever. My doctors said the Methotrexate was the cause and i was having a bad reaction to it so they now have me on 100mgs per day of Azathiroprine. I am now finally down to a maintenance dose of 5 mgs of prednisone cause my body was starting to reject that as well. I thank god that i am now down to that dose!!!! It as only been 2 wks and the withdrawl symptoms are horrible worse then they were but i know what is to come =) loosing all this fluid and all of the HORRIBLE side effects i listed above. I will have to be on the maintenance dose of 5mgs the rest of my life and can live with that cause when my body gets back to somewhat normal i wont even notice that im on this CRAP!! I will be on the high dose of Azathiroprine for a few years and then on a maintenance dose of that as well for the rest of my life to keep whatever this is that i have under control.... the scary thing is is that they arent even sure that all of these meds will even work...... im a guinea pig..... The only thing that i am on out of all 25 pills/meds that i take everyday that works is my pain meds. Oh and i also forgot to mention that i had to be put on some "HEAD CASE" medication (thats what i call it =) ) for depression. Its a low dose but it does seem to help... I am terrified of what the future holds but continue to be strong and have an amazing support team... my fiance and family =) I dont even want to think about how i would be without them. I go back on the 25th of this month for my MRI so please who ever reads this keep me in your prayers as for all of you are in mine. I feel for each and everyone of you that has to endure this horrible drug everyday and i hope that everything works out you. =)

Sue =)

My doctor prescribed me Prednisone on May 3. I'm on 10 mg. I start out on 3 tabs 2x a day for 4 days, then 2 tabs 2x a day for 3 days, then 1 tab 1x a day for 2 days. I was put on this for a sudden attack of joint pain/stiffness/swelling of my elbows, wrists, hands, knees, ankles and feet. I was in extreme pain. So far this drug has given me no side effects other than needing to urinate a little more often than usual. My pain is gone, as is the swelling. I'm almost scared to go off this b/c of the fear of the pain coming back. My blood tests came back on Friday and my doctor told me that I had Rheumitic (sorry, I know that's spelled wrong) inflammation and if the pain did come back after I stopped the Prednisone that I'd have to do more blood tests. I just turned 30 and I'm scared to death what else might be wrong with me.

I took prednisone at 60mg/day for a week for inflammation that would not go away. I didn't sleep for 5 straight nights and was too anxious to eat anything. I became psychotic after a few days and would seriously worry that the sun wasn't going to come up that day and the world was going to end. I became so depressed that all I could do was cry. It took serious energy to do anything...even showering or walking to the bathroom. Since this short episode I have not been the same. I am now being treated for clinical depression with 2 types of antidepressants. I would recommend taking prednisone at a much lower dose (say 10mg/day) for treating non-life threatening problems to avoid the psychological side effects.

Hello- I was Dx with Sarcoidosis in February, 2007. My lung specialist put me on 20mg Prednisone, increasing to 40mg within two weeks. My Sarcoid symptoms were from enlarged lymph- extreme trouble breathing, middle and lower back pain, kidney pain. Within a week of being at the 40mg level my heart rate and BP became so erratic that he had to start weaning me down. Initially I had extreme energy which felt good after suffering from fatigue but was short lived due to the cardiac problems.

The Prednisone has resolved much of my inflammation for the Sarcoid but I will not go on this again. I have been weaning now for over three weeks. Down under 5mg of Prednisone and it is almost unbearable. Each time I took a drop my mental symptoms became intolerable. Anxiety, extreme fatigue with extreme weakness, irrational thoughts, blurred vision. Within the last couple of days I could hardly get myself out of bed. My weight has increased steadily, bloating stomach, stiff joints, skin rash.

My biggest complaint is that doctors are not giving us enough information as to how this will affect from a negative side. Yes, it takes care of the inflammation but no one prepared me for these awful side effects and withdrawal symptoms. I feel like a nut case most of the time with no coping skills.

In January I was diagnosed with polymyalgia rheumatica and temporal arteritis (giant cell arteritis). I was put on 60 mg prednisone and an array of other meds to help with pain, inflammation, water retention, and stomach problems from everything. I've lost some vision from the TA. I've experienced the weight gain, the moon face, stomach problems, depression, fatigue, muscle weakness, lack of memory and concentration, and generally feel miserable. The brain fog is awful! I don't trust myself doing much of anything these days!

When I was first put on the prednisone it completely took away all my TA and PMR symptoms. I could walk and get up and down again, didn't have the headaches, and didn't hurt all over.
My doctor tried to taper my dosage about 6 weeks ago and all my symptoms returned and increased as I went down on the prednisone. He upped me back to 60. That time the symptoms didn't go away. They lessened but were still there.

He's trying to taper again, and I'm down to 30 mg now and feel worse and worse. My sed rate has been normal, so the doctor thinks it's from the prednisone. Does it mimic all the TA and PMR symptoms? I also am having a lot of hand and feet cramping.

Does anyone else have these two illnesses? I would be interested in your experience. I want off these meds! Anyone found an alternative approach that's helped?

God bless!

I am so happy to have found this site! I thought I was losing it!

I had taken Prednisone two years ago when I had pneumonia that would not go away, and realize now that a lot of the problems I had during my two months of sickness were due to this drug. I do not remember how long I had taken it back then. I could not do any work and what little I attempted, I kept making mistakes that seemed right to me. For example, I had started to address Christmas cards and put all the stamps on the wrong side where the return address goes. When my husband came home, he pointed out what I had done. I had finished a big batch of them and it had never occurred to me that the stamps were on the wrong side. I cried for no reason and had weird mood swings constantly - don't remember how I slept. I was taking so many medications and it was a busy time of year for me that I thought my problems were due to the combination of all. I now know differently, which brings me to today.

I am on my 5th day of a 7 day dose (30mg first 2 days, 20mg thereafter) to relieve inflammation from a persistent cough due to sinusitis that started Dec. 27th. I have numerous symptoms! The worst being the mood swings, confusion & lack of sleep (averaging 3 hours a night). I thought I was going crazy. The side-effects surfaced pretty quickly. I had a rush project due today that I had started last Sunday. I am usually pretty good working under pressure and deadlines - not perfect, but pretty good, and there was enough time to finish all assigned to me. It took me forever to finish simple tasks and I made some mistakes that I never would have. This was a first time working with some colleagues who all must think I am a nut who cannot produce. I had a weird meltdown in front of the team leader and was totally not myself. My husband has been so worried about my erratic behavior that he refuses to let me drive. He dropped me off at an appointment and upon his return home found our front door wide open. I had walked out the door without closing or locking it. Now, granted I have been sick and am under stress, but I have never had the mood swings or lack of focus that I have experienced in the past few days except for the time I had taken the drug earlier. I was prompted to do a search on prednisone when I realized the similarity in symptoms. When I found this site, all the symptoms I had been experiencing and discussing with my husband were right here - I cried twice while watching Top Chef on TV Wednesday. Along with symptoms mentioned, I have a strange feeling in my stomach, numbness and I have a loss of appetite rather than hunger. Anyone else find that? I just looked at the clock and found that it took me over an hour to write this post. Thank God for spell-check!

All the posts are extremely helpful! I really feel for those of you who need to take it for long periods of time. I hope they find alternatives for you soon.