PredniSONE and insomnia

I'm a 56 year old male. I'm taking pred as a trial therapy for CIDP, which can be described as MS "lite". The treatment has been three days of one gram per day methylprednisolone infusion, followed, for the rest of the month, by 20 mg prednisone a day. Then another three days of infusions, etc. It's called "pulse treatment." Side effects have been a bit of insomnia, mainly during the three-day period of infusions, feeling a little hyper, slightly hoarse voice, huge appetite. I seem to be able to control these rather well, and haven't gained weight, so far. I'm told I look a little flushed, but don't have a Barry Bonds face, noy yet anyway. The two side effects that have been problematic: Flatulence. Ever read Confederacy of Dunces? I feel like Ignatius O'Reilly. The most problematic has been the urge to pee, which is most intense a couple of days after the infusions are complete. It's really intense for two or three days, then subsides a bit, but still makes me get up in the middle of the night, something that I've only rarely experienced before. Tests for urinary tract infection are negative. Will do this treatment for a few more months and then get spinal tap and EMG test to see if there's an improvement. Haven't noticed any so far, but that's expected.

Prednisone has messed up my head. I had Bells Palsy (which is paralysis of one half of the face) and can be very scary. I have had some depression before but this stuff made me fall off the face of the earth. I went from someone in control and quite happy to the absolute pits. The depression was quite severe and sudden and I had no ability to stop the downward spiral. It has played havoc with my life. In its defense, it cleared the Bell's Palsy up very quickly but the grief it has caused me through my altered mind state wasn't worth it. Insomnia (eg - no sleep for 6 nights straight) was a trigger and then the mood swings took over and then bang....full blown depression and an inability to focus, work properly or function. I am now on the road to recovery but it has been a pretty turbulent 2 months. Be very careful with this drug....very, very careful.

I have had rheumatoid arthritis for 20 years,controlled reasonably well with a combo of methotrexate, naproxen and enbrel. I do a 10 day course of prednisone several times a year for bad flares. I absolutely hate taking prednisone because it turns me into a crabby, edgy, insomniac who can't stop eating. It makes me bloat and that REALLY makes me nuts because I've done so well at weight watcher's, I don't need that nasty, upset stomach over full bloat feeling. And the "roid head" headache thing ? I'm on the phone all day at work so that's bad, too. The insomnia is the worst, really, because I just lie there awake. When I stop taking it I return to normal within 2 days. I only do it when I am absolutely desperate - I already lost some tendons in my left hand to arthritis related damage so I tend to use the prednisone when the fluid builds up in the right hand or if I'm really too sore. I'm also aware that long term prednisone usage is a one way ticket to osteoporosis / osteoarthritis, so I really have to feel like I cannot deal before I take it. It's a hate/hate relationship.

I was on Prednisone a couple years ago and it gave me severe insomnia, I ended up tapering as quickly as possible, I was so wired I couldn't function. My son was started on it today, and I was a bit worried about letting him take it, he has asthma and is in the middle of a flare up that started 5 days ago and isn't getting much better. So we started the Prednisone tonight, and within an hour he almost had an accident with diarrhea which is not like him at all, he is a 30 minute on the toilet taking his time kind of boy. Now I'm worried it's going to be a long night, and worry that tomorrow nights dose will be worse?

I was prescribed medrol by my GP due to an ongoing rash that needed to get under control. I believe I had the 40mg dose/wein pack. The first two days I felt as though I were on speed. Day 2 at the grocery store I stopped to take my blood pressure because I was sure my heart was racing out of my chest. Thankfully, it wasn't and happened to be palpitations that I was having. I had hot flashes where my face and chest would get red like a sunburn. There were the sweats and the leg weakness/soreness. I did have sporadic headaches but, nothing a Tylenol wouldn't alleviate thank goodness. I've read here that numerous people had very bad headaches. My last day on the meds I started to experience the fatigue. Today is my first full day off and I certainly felt flu like. Sporadic lightheadedness, weakness and fatigue that would all come and go throughout my workday along with sporadic energy. I'm glad that I found this site so at least I know that this is normal and will subside in a few days. Other side effects I experienced were worsening of my post nasal drip along with a funny taste in my mouth, mood swings, insomnia, hyperactivity and muscle aches.

I am 24 and have suffered from severe to moderate acne my entire life. I have tried every cure out there and nothing has worked. I went on prednisone for an skin allergic reaction about 2 weeks ago. I started out with 50mg on the first day, and 40 mg the next, 30 the next day, and so on. I took it for a week. By the second day of taking prednisone, my acne was 100% cleared up and has been gone since. Now that I am off the medication, my acne is coming back. The only side effect from this drug was insomnia and CLEARING of acne. Does anyone have any idea why I had such a weird reaction to this drug?

I'm 15 years old and i've been taking prednisone for a few months, and from what i've read i'm on a really high dose. i was diagnosed with rheumatoid arthritis and another autoimmune disorder concerning my muscles at the same time. my doctor told me prednisone was my only choice; it was either that or i would lose the ability to walk. he told me there'd be side effects, but i had no idea it'd turn out like this or i would have fought harder for another course of action. i started out on 30mg twice a day, and since then was weaned down to 20mg twice a day and now i'm down to 30mg once a day. i've been looking up a bunch of information trying to figure out if there's a way to lessen the side effects or any hope at all that they will get better. apparently there isn't much. after reading a bunch of these stories i gotta say i'm not feeling great about this. i totally understand everything everyone is going through. i'm sure you can imagine what it's like being smack in the middle of high school with a huge puffy face, acne so bad on my face, chest, back, neck, and shoulders that wearing a bra could put me in tears, and mood swings so bad i've lost friends over it. everyone knows how brutal high school can be, where appearance and attitude are everything. and i try to tell my doctor about it and he literally looks at me like i'm a whiny teenager and says "you're just going to have to deal with it." and people like my mom and my closest friends don't get it either. nobody understands how beyond frustrating it is. i'll get into the worst moods and not have a reason for it, but i'll stay angry for hours or burst into tears over someone looking at me the wrong way. it'll get to the point where i have to isolate myself from other people because the abrubt mood changes get so bad. as bad as i hate to admit it, the pain from the arthritis is gone now and supposedly my muscles are doing better too. developing arthritis caused me to have to quit cheerleading, something i've loved doing for 6 years, because the pain got to the point where i couldn't get my arms above my head or bend my knees. however, i'd almost rather deal with the horrible joint pain than deal with the side effects of prednisone. if your doctor gives you and alternative method, take it. i've always been confident in the way i look and really outgoing and happy and now i sometimes catch myself thinking about suicide. that's shocking to me because i've got so much going for me, but this medicine makes me miserable. and when i complain about it, anyone i'm talking to just looks at me like i'm being a cry baby. my mom does too, she'll say things like "you just have to do this. i know it's not what you want but to be honest i'm sick of hearing you bitch about it."
i feel a little better knowing other people feel the same way - like nobody gets whats going on with them. the prednisone does give me days of really great euphoria and days when i feel like i could run a marathon, but waking up in the morning to the acne and huge face puts me to tears every day. i have to pee all the time, usually getting up at 2 or 3 am. i don't sleep well anymore and i do sweat all the time. which also sucks being a teenage girl. i'm always hungry, and when i eat i never feel full so i don't know when to stop. my neck and face have put on so much weight that when people see me in the halls or out and about they ask me what happened. mind you these are people i don't talk to, just ones i know from classes or whatever. and it's pretty bad when teenage boys i've never really talked to ask what happened to your face. kind of a blow to the ego, or whatever is left of it at this point.
i'd like to know if, as my dosage gets lowered, the side effects will diminish and when i'm off the prednisone completely if they will disappear altogether. any help there?
or if there is any way to help the acne or puffy face

my doctor just put me on something called methotrexate or something like that to help wean me off the prednisone, and does anyone know what those side effects will do? or if they'll affect the prednisone side effects?
i'm constantly obsessing over gaining weight and what my skin looks like and what i eat and how heavy my face feels and the occasional pressure in my eyes to the point where i just want to be put out of my misery.
and after reading other people's stories i really don't understand why this drug is still given out as freely as it is. but maybe all doctors are like mine, they just don't get it.
best of luck to anyone who's on prednisone, my heart goes out to you; i'm right there with you
sorry this became like a book it wasn't meant to be this long

I was diagnosed with Chrohn's in February. I am 25 years old. I was put on prednisone and asacol to control my systems. I was on 40mg then down to 20mg and finally last Friday 5/22 after weening off I was off the drug completely. I also had EN (a complication of Chrohn's) with severe pain, swelling and bruising in the feet and legs. In fact that was the only reason I went to the doctor, I was just dealing with everything for years. With Prednisone I experienced a slight moon face but also a huge bloated, pregnant like belly, it's awful. I have to hide it with baggy shirts. I also gained about 20 lbs, I have abdomen pain, hair on my upper lip, my ear clogs and clicks, insomnia, insane amount of energy. Oddly though people have been saying they are moody, the good thing the drug did was put me in an excellent mood all the time and took away my acne.

My Question: When do these side effects go away, I have been off for a week. Primarily the bloated stomach and weight gain. I know it takes a while, but how long???

I was diagnosed with Rheumatoid arthritis at the end of 2007 and have been on prednisone since then. I started on about 105mg a week and am currently trying to reduce it but it is really hard as the moment the dosage goes down I lose all mobility and cannot even get out of bed. I am only 23 years old and really feeling the disease to the extent that I cannot even cope with my life. The prednisone has really taken its toll on me and the side effects are crazy! I just want to go back to my old self as I am finding it sooo hard to get through a single day. My side effects include:

Insomnia, tooth sensitivity, depression, anxiety, mood swings, moon face (my face is so swollen that I cant stand looking in the mirror anymore, dizziness, temper, feelings of uselessness, nightmares, night sweats, water retention, and to top it all off the arthritis is getting worse and I am in constant pain. Is there anything anyone can suggest then please help me!

my boyfriend has been on prednisone for 4 years and he is terribly snappy and aggravated all the time and short tempered and does not think that he is... i love him so i deal with it but its getting harder because he dosnt feel this is correct every time i ask him something he bites my head off and almost everything i do irritates him gets on his nerves the mood swings are out of this world sometimes and he totally thinks im being a lala in his words...will someone respond to this so i can show him and he will know im not just saying these things
all this

I hate predisone. I took it for 5 days, 40mg a day because of my bronchitis. After my last day of taking it, I became really emotional. I was crying for no reason. My heart was beating really fast, I was dizzy and insomnia is the worst. My legs also ache really bad and they are so weak.

I've been off of prednisone for 4 days and im starting to feel a little better but I still can't sleep.

Does anyone know how long the insomnia will last?

Hi everyone, I have just read all thirty pages of posts to try to find some answers to my crazy reaction to prednisone. My thoughts are with you all since I have had an usually severe reaction to prednisone. I was on prednisone for 1 week in October 2008 at 60 mg/day for a sinus surgery. I am still having the following side effects at full force:

Axiety to the point I can't socialize
mood swings
hot/sweating even in freezing weather
whole body shakes
severe migraines
tooth sensitivity
muscle pains
extreme thirst (I drink almost 2 gallons/day)
hungry all the time
moon face
water retention around waist
acne
hair loss
rapid heart rate
dizziness
nightmares
night sweats
high blood pressure
high hear rate

I'm not exaggerating, my parent's can contend to that. I do have a history of having sever reactions to medication and I've had all the gland and blood tests which all check out. I never had a single one of these before the prednisone - I was a healthy 22 year old.

I was wondering if any could tell me when this hell will end - my job and well-being depends on it!

I have been on Prednisone for 3 months for PMR (polymyalgia rheumatica)and so far the pros have far outweighed the cons. PMR is an extremely painful condition that affects the shoulders and hips especially at night and early morning, I spent all of December and January sitting upright in a chair trying to sleep, untill I was diagnosed and prescribed Prednisone and oxycodone. I started at 25 mg and I'm now down to 15mg. The side effects that I do have are weight gain (about 10 pounds), mild mood swings and insomnia.I am an avid bicycle rider (25-35 training miles per day on week days a lot more over the weekend),I am 60 years old and now back on the bike. The strange thing is after about one month back in training I am much stronger this year than last even with the added weight. Last year, a solo, 30 mile hard ride I would average about 17 mph this week I went out on my same training ride at 19.4 mph, over 2 mph faster. Everything I read about Prednisone says that it wastes muscles,but I have become stronger. Is it possible that it's the Prednisone?

I started Prednisone Feb 7,2009 because I Have inflammation in my ear and other problems because of the disease. He started me on a high dosage. I take 3 pills a day. My doctor warn me that I would gain weight but Im not concern with the weight gain because prednisone helps me feel better and I know it's working. I'm always hungry,my face is Moon shape, and I feel fat but what have me scare3 is I can't sleep(insomnia) any more and I have severe join pain.My muscles feel weak, My leg and knee aches and I can barely walk sometimes! Im scared I might get avascular necrosis!and my blood pressure go up and down! I never had high blood pressure but the last time I went to the Doctor my pressure was high! Also I get abdominal pain, and feel very sick to my stomach!

I was recently diagnosed with ulcerative colitis and was hospitalized in March 2008 for pancreatitis - a reaction I had to Asacol. A week later I was discharged then went back to the hospital a day later for a severe flare-up. There, they started me on antibiotics and prednisone through an IV. When I left the hospital I started taking 40mg. The initial side affects were severe sweaty palms, racing heartbeat and dizziness. Within 2 weeks I started experiencing insomnia, acne, hair loss, extreme mood swings, depression, anxiety, and was OCD on top of the sweating to where the skin on my palms was starting to peel. It suddenly got out of control fast. I became suicidal - nearly attempted suicide twice. I was paranoid, had severe lack of concentration to the point that I felt cognitively delayed, couldn't do anything on my own, lacked emotion, and felt that I WAS crazy. Luckily my family was very supportive. During the second suicidal attempt they begged me to stay at a psychiatric hospital. I did and was there for about three days. A week later I was finally completely tapered off prednisone. Within 2 weeks I was completely normal and back to myself. My three months of hell was finally over. I tell myself I will never take prednisone ever again but the truth is it might be the only thing down the line that can save my life. I hate this drug and I don't recommend anyone take it unless it's the last option you have.

I am on prednisone frequently for respiratory infections as I have a chronic lung condition. I was just hospitalized for a week and on 80 mg per day IV. I have tapered by 5 mg every 3rd day. I have a rash in my hairline and actually in my hair. I have blurry vision, insomnia, cravings for food, weight gain, puffy face, swollen stomach, and pain so bad in my left hip joint that I can hardly bear weight.
In Aug, 2008, I had my right hip replaced from avascular necrosis caused by steroid use for my lung condition. I am worried that AVN is now also in my left hip. The steroids take the swelling down in my lungs so I can breathe, however they are destroying my bones. I am so scared of another hip surgery. I realize that I need to be thankful that my joints can be replaced, but it is a horrible side effect of this drug.

I was diagnosed with Ulcerative Colitis when I was 20. (i'm now 26) I was on 80mg of prednisone for about 2 years. I again about 45 lbs, between water retention and just an increase of appetite and extra calories. I developed moon face and all the other horrible side effects. I was sweaty, bitchy and fat. Needless to say I was miserable. My doc put me on Remicade as an experimental drug, and it seemed to work well. We were able to wean myself off the prednisone and within 6 months the weight came off with the help of some Weight Watchers. 6 years later I'm back on the prednisone, but only 40mg this time, and hopefully for only a couple weeks. It's only been a week and I have insomnia, night sweats, mood swings (my poor boyfriend) rapid heart rate, and weird dizzy/nausea spells in the afternoon. My face seems a little bit fuller, but I think I'm being overly critical since several people have told me I look like I've lost weight in the last week. (it could be due to my flare up making me lose weight) My suggestion is that although this drug is horrible and makes you think you are losing your mind, it does help. Try and breath through the mood swings and remember it's not you. Ask your doctor for a tranquilizer if you have too. (The first time I was on prednisone, my dr. prescribed Xanax because I was so bad. It helped a lot) As for the weight gain, it's hard, and I'm trying to snack on carrot sticks and fruits instead of a whole bag of cookies. One good side effect I have noticed is that my complexion if the clearest it's every been. It's really incredible to be honest. Please know you aren't alone, and although you might not look like how you used to, your loved ones (hopefully) understand that this is a side effect and see you for how you've always been. It sounds sappy but sometimes we need to be reminded of that. I know I do. Good luck to you.

I was giving prednisone for only 5 days (not sure about dose, but it tapered to one pill on the last day) for a bronchitis induced severe asthma attack. I have only had asthma twice in my 50 years, both times associated with a bad case of bronchitis. The "doc in the box" reduced his original dosage due to the 3 corisone injections I recently had in my spine. After reading these posts I feel grateful I wasn't on a higher, longer term dose. I have some of the same side effects listed here including uncontrollable appetite, fat gain around the middle, water weight gain, constantly having to urinate, superhuman energy, heart palpitations, and approximately two weeks after finishing, I began to get a mustache (hairs that were previously white became brown over a two week period). I have read on the internet and been told by my pharmacist that this is temporary. I have also read and been told that the 2mg estradiol I take every day since my hysterectomy causes the body to retain and not rid itself of the steroids as it normally would (estrogen is actually listed as drug interaction with prednisone). The doctor in the box apparently just ignored this interaction and prescribed it anyway. However the main reason I am posting is a very strange possible side effect that occurred approximately 1 week after my final dose. I was awakened in the middle of the night with SEVERE pain (felt like bone pain, not muscle) in my right knee that lasted until morning. By mid morning it was gone. The next night I had the same experience but in both knees. It lasted about 5 more days, gradually tapering in intensity, and then just went away. I do have severe arthritis in my lumbar and cervical spine, having had surgeries to repair injuries from a snowmobiling accident. I have normal arthritis elsewhere for a 50 year old, but have NEVER had issues with my knees. Has anyone had this strange symptom? None of my doctors (internist, rheumatologist, physiatrist - who gave me the injections and prescribed physical therapy for my spine) had any explanation. The only explanation I have is the prednisone because I had taken the Z-pac (antibiotic) with no side effects several times in the past. Weird!

Incidentally, I am off the prednisone for about 5 weeks, am still hungry all the time, still fat, still bloated. Unfortunately the extra energy is gone. Best of luck to everyone on this strange drug. My heart sincerely goes out to all of you on long term therapy. God bless.

Hi,
I have been taking 40 mg. of prednisone a day now for about 3 weeks for inflammatory lung disease. My doctor says I will probably be on this dosage at least a year. I have been having the insomnia and anxiety, but that has decreased since I started taking St. John's Wort in the morning with my dosage and a Valerian, hops, scullcap herbal mixture for sleep (available at health food stores) about an hour before bed. Thought this may help some of the rest of you. God bless you.

i am a 36 year old female taking it for the swelling in the brain because i have a brain tumor called the acoustic neuroma. the swelling has happened after gammakniffing..the mri shows dead spots in the tumor but it has increased in size due to swelling causing a lot of problems. i took a tapered dose for six days but the docs said i ll be needing more ,so now i am 20 mg a day for 6 weeks. i am having insomnia and occasional nausea.now i am scared after reading the other reviews.

I have been on Prednisolone about 4 times in recent years. the highest dose was last year when i was on 80mg reducing weekly by 5mg. I have had most of the side affects you all talk about above. I have severe colitis so the side-effects of this drug are something i have to put up with. at the moment i have all the classic side-effects i usually get, rapid hunger, swelling to my face (moon face), neck has layer of fat, swollen back (buffalo hump), bruising easily, horrible taste in my mouth, swollen stomach. the one good side effect is it gives me lovely smooth skin lol. anyway the point of my post isn't to rip this drug appart as i have to say for me its a wonder drug and this time has prevented me from having my bowel removed! from personal experience once you finish the steroid treatment after a few weeks you'll notice the swelling go, my hunger usually fizzles out quite quickly (altho i have a large appetite in the first place!!) none of the side effects are permanent, so please all rest assured you will go back to normal just try not to put on too much weight while on the drug.

Started with a Pred pak for a sinus infection. Made my heart race and had tach and early heartbeat, which kept me from sleeping. Went to Cardiologist. Several doctors denied that the Pred would cause the rapid heartbeat. Then the Cardiologist did an echo and found a pericardial effusion and some weird spots on my lungs. They suspected lung cancer which may cause the effusion, so I had surgery to do a pericardial window and a lung biopsy. Then a pulmonologist decided to put me on Pred again...steady dosage...because she didn't know what else to do. (Didn't have lung cancer) I didn't have any more funny heartbeats, so maybe the pred didn't cause it after all. But I've gained 40 pounds. My hair has grown faster, and I've gotten some facial hair (not supposed to have that, being a female)...which I call fur. Moon face with cheeks that are hard, muscle cramps, can't sleep, but once I do go to sleep, I can't wake up. Tired all the time, headaches, joint pain-sometimes severe, dry skin, generally bad attitude, with very little patience, low potassium levels which add to my muscle cramping problems, difficulty swallowing, indigestion which I've never had, with painful and burning reflux. And occasionally when I eat, I have the rapid heartbeat again. I go in search of food like I'm going to store it in my thighs for winter. Anything you eat will turn to fat, including protein. Can't wait to get off this stuff which will take until June of next year. Then my doctor says it will be 3 months before all these effects wear off. No one told me I would get fur.

I was prescribed the 4mg methylprednisolone pack along with 50 mg tramadol for acute tendinitis in my wrist. I took the first 3 days of the prednisone and only 2 doses of the tramadol over the three days. For a total of 60 mg of prednisone.

The first day I had hot flashes and insomnia but attributed it to the tramadol because I had never taken it before and had taken the prednisone several years ago for poison ivy with no adverse reactions. I didn't take the tramadol the second night and then took it again last night along with my daily dose of prednisone. I had extreme difficulty falling asleep, heart burn, hot flashes; and tossed and turned all night trying to fall asleep. At around 2am, I began to have difficulty breathing, tightening in my chest, confusion, and racing thoughts. It felt as though my throat was closing up on me. My anxiety progressed to the point that I was pacing back and forth. I woke my husband up and told him to prepare to take me to the ER. After calling my insurance's 24 hour help line, it was recommended that I go to the ER. I had an x-ray, blood work, urine drug screen, and echocardiogram. Luckily, everything was negative. The ER doctor told me that I likely had a reaction to the prednisone and commented that some people will experience these symptoms when taking it. He stated that he had a similar reaction when he took it and it felt like he was climbing the walls, which is an accurate description of my experience that night. He recommended that I either stop taking it altogether or call my primary care provider and cut it down. He prescribed me xanax and administered some to me at the ER which greatly helped. The next day I stopped taking the pred but am still having dizziness, chest tightness, hot flashes, and mental dullness. I have decided to never take this medication again. Fortunately, I don't have any of the physical sx that some have experienced, and my heart goes out to you. I think the mental symptoms were traumatic enough for me and can't imagine having both as I would be a basket case. I have mood swings, some melancholia, and am very fatigued.

I think it is imperative to research any medication that is prescribed to you before you take it. Many providers will say that side effects are rare, but my experience is that side effects are more common than rare. My prayers go out to those of you who are going through what I am going through. I hope that it clears our systems quickly because this is no way to live. I'd rather put up with the pain of tendinitis or carpel tunnel than to have these symptoms.

This is my second bout with what my doctor thinks is erlickiosis. The first time I was at the point where I could only move like an old man doing "the nursing home shuffle". Everything was swollen. Feet, hands, knees even my jaw was hurting. I couldn't stand on my own even though two weeks prior I was walking 3-5 miles per day on some good size hills. I was hospitalized and given steroid injections. Within 12 hours I was standing on my own. I was given Perdnisone 30 mg X 3 days 20 mg X 3 days 10 mg X 3 days 5 mg X 4 days. Except for some insomnia and peeing 5 times a night there were no other effects. Within 2 days I was crippled again. Now my GP was in Africa and my Internist was leaving for vacation in India. Internist would not put me back on Prednisone because he wanted me to see a Rhumatologist. I made an appointment but it was SIX WEEKS OFF. Two days later i was admitted to a different hospital. This one was where my Rhumatologist had access. Long story short Prednisone 80 mg 7 days 60 mg 7 days 40,20,10mg 7 days each. Had to start taking insulin again. Glucose never went over 200. Avg glucose last 5 weeks is 120. Gained 5 pounds because I work out every day with free weights and lots of cardio. Hopefully, I won't have to many side effects when weaning is accomplished.

My husband initially took Prednisone after getting strange lesions, severe joint pain, severe fatigue and severe stomach cramps/nausea. It worked great he was tapered off and no problems for about 18 months. Then he go sick again (2/08) and has been up and down on Prednisone for 7 months- currently taking 60 mg. daily. Some doctors think he has Wegener's, but testing is inconclusive (Wegener's starts with upper respiratory stuff, which he also had). His mood swings are severe and he's a different person, twitching, hand trembling, muscle spams, malaise, anxiety/depression, very fatigued, insomnia, severe stomach cramps/vomiting. How do you tell which symptoms are the Prednisone and which are the disease process? They want to taper him to make him sick enough to get some test results that show organ damage or something, but everyone chickens out and he ends up getting increased. How long should he be on Prednisone and not be put on something stronger?

hi all. thanks for writing your comments here. it has helped me today, another HORRIBLE day of prednisone hell. i have been seriously ill for 8 months been told ever other week I'm likely going to die from lung disease (i'm 35) and after a painful lung biopsy have been told my lung problems are almost all reversible... after a year on high dose prednisone. i was on 40mg a day for a month a while back and was so out of control from rage and crying and insomnia and panic/suicidality, ravenous appetite, that they lowered me to 30. then after biopsy they said i should be on 100mg to cure me, we settled at 60mg. it's been 24 days. The moon face started about one week in. i've gained 8 lbs. i am an emotional wreck. i have at least one rage filled attack per day where i am screaming and want to kill somebody or destroy something. some days i am so filled with hopelessness and worry i just want to die. my body changes (after just losing 30 lbs and being a work out fanatic my shortness of breath makes it impossible to walk up 2 flights of stairs without resting) face changes, acne, excess body hair (oh my god please make it stop i'm like a chia pet and i'm so afraid it is going to get worse) double chin, puffy eyes and cheeks, absolutely uncontrollable emotions and mood swings, inability to be logical or reasonable. i don't want to leave the house, i'm panicked and scared all the time. i never sleep. ambian gives me minimal relief (just started taking it) i feel like i'm losing everything, except my lung functioning is returning and i'm not going to die from this illness (they assure me THIS week) i understand light at the end of the tunnel, but living like this is unbearable most days, almost impossible the rest of the time. am i alone with the severity of this? or are all the others like me too busy hiding the sharps and crying in a corner to write on this board? thanks for listening :)

figures, forgot to mention what HELPS. no eating after 8 (7pm is better) no salt, no sugar, exercise, even just a walk every day, anything physical, i walk like a grandma on the treadmill but i still do it, sometimes it is the only thing that stops my crying. no alcohol, support and understanding from loved ones, it's not you, its the drugs. good luck.
figures, forgot to mention what HELPS. no eating after 8 (7pm is better) no salt, no sugar, exercise, even just a walk every day, anything physical, i walk like a grandma on the treadmill but i still do it, sometimes it is the only thing that stops my crying. no alcohol, support and understanding from loved ones, it's not you, its the drugs. good luck.

I have been on prednisone since November 2007 for minimal change disease, 65 mg, in May I started to decrease the dosage (per Drs. orders) and by the time I got to 15 mg all my symptoms came back and I swelled up again. I was again put on a higher dosage of prednisone and put on Cytoxan 75 mg. I am now decreasing prednisone, back to 15 mg every other day and will be off Cytoxan next month. Hopefully this will work. Right now my main complaint of side effects is chest pressure, anything I eat or drink makes my stomach swell and I feel like I can never take a full breath. I recently had chest and abdoman xrays and an ultrasound, all negative. Does anyone have this symptom? I also have moon face, weight gain, hump on back, insomnia, headaches, digestive problems ,shakes, night sweats, vision problems, extreme tiredness and hair loss. How long before all this goes away?

my doctor put me prednisone 40 mg for 9 days to treat my inflammation of my neck and shoulders. I took my last dose 5 days ago. I'm still experiencing side effects like insomnia,anxiety,nervousness,fast heart rate and upset stomach. how long will side effects .

my sister was put on Prednisone for a inflamed heart and fluid around the heart, she started with 6 pills a day at 5mg for 7days, then 5 pills for 7days then 4 all the way down to 1 a day. When she got to 1 a day the EXTREME chest pains came back she was in and out of the hospital so many times it was crazy, she was then put back up to 6 a day and slowing get weaned off, however her side effects are insane, major swelling, moon face, weakness, INSOMNIA bad, rashes and bruzes are appearing everywhere, coughing a LOT, sore throat, foggy vision, shortness of breath, thats put it this way she is a MESS and to top it off her husband of 24 years passed away on April 30th, 2008 with a massive heart attack at 47 years old, she feels like she is going to go CRAZY, if anyone has any suggestions it would be so appreciated. Thank you SAD SISTER!!

You people are freaking me out. I just started today with my first dose of prednisone for my first bronchitis diagnosis. I've been sick for 3 months and thought this would be a good med for me to rid the coughing. I'm starting to reconsider taking any more if all I can expect is long term adverse effects. I took this once before years ago for a severe skin allergy. I got the psychosis initially but then adjusted the dose. Then, I would get euphoric and full of energy, like being on a stimulant. I had no idea the round face thing was due to this, I thought I just ate too much while I was home sick for 2 months. I think I'll try the herbal alternative route. If it works, I'll write again and let y'all know. Thanks for all the comments.

Does anyone have the side effect of reduced sensation of smell and taste?

I just got off of 7 days of 20 mg. Prednisone twice a day for severe poison ivy. I've always had the reducing dosages before but went to a new young doctor who said this was better. I experienced extreme insomnia for several nights. Last night I slept better, but today I'm feeling dizzy and have slight soreness in my back and neck. I'm really hoping this all clears up soon since my son is getting married in 12 days and I don't want to be dizzy and moon-faced at the wedding.

Following a deadly allergic reaction to Celebrex, I was given an injection of prednizone, and prescribed 60 mgs. of Prednizone per day for a week. By the third day, my anxiety and what they call "steroid psychosis" was so bad I thought I was going mad. I suffered horrible insomnia, crying attacks, paranoia, fear...you name it. On the fourth day, my knee swelled up horribly and walking was nearly impossible. I stopped taking Prednizone cold turkey on the fourth day (which you are NOT supposed to do, but my doctor didn't tell me that). It has been over 6 weeks since the episode and I am still suffering knee and joint pain, gained 26 pounds and have a red face and horrible acne. My knee has a horrific bulge still. I had an MRI on the knee, and they say that I have fluid buildup on the joint. I have no idea how long it will take to get this drug out of my system, but I would caution anyone to seriously reconsider taking it unless it is life threatening. I believe my allergic reaction could have been treated with just benadryl alone.

Hi. I was diagnosed yesterday with Bells Palsy, (the entire right side of my face is completely paralyzed) and given prednisone, a tapering dosage. I started my first dose of only 20 mgs last night and went to 60 mgs today, will keep on that dose tomorrow as well as one more day, taper down to 40 mg for two days, then 20 mgs for two days. My heart feels like it's going to beat out of my chest! I can feel it it's beating so hard and I can also hear it when lying down .Very freaky. My blood pressure today was 164/107. My normal bp is 110/70. I take medication for high blood pressure but it's not doing much good. I am also a diabetic and my sugar is whack! Had to increase my Metformin. I'm assuming since no one has died from taking this HORRIFIC medicine, we'll all live through it but at times, I feel like I am going to have a frigging massive panic attack! I have to calm myself down, listen to music, meditate. That does help some but not enough .I will be sooooooooo glad when I'm done taking this SH*T! Another thing I've noticed is I am bone weary weak, like I've run the Boston Marathon, competed in the 1000 meter butterfly medley and then played 3 sets of tennis on top of that! GOOD GRIEF, HE INVENTED THIS CRAPOLA?

I was prescribed prednisone for an allergic response to crab. I had been given it before for out of control asthmatic bronchitis and had experienced the usual, muscle pain, strange metallic taste in mouth, water retention, insomnia and elevated BP. But after the crab allergy I was given it IV all at once. The next morning my fingers were all tingly and that pins and needles thing began to travel up my arm, also I was anxious, really anxious and I felt like my eyes weren't focusing right. I took some benadryl and felt a bit better. For the next six weeks I was in hell. I felt absolutely insane. I had panic disorder and only felt OK at home, so I avoided going out at all costs. A visit to my doctor yielded a diagnosis of steroid reaction and prescriptions for zyrtec and klonopin. At 7 weeks out, one morning, I was just fine again, no panic BP normal.

Undaunted, I took 20 mgs one day a few months later, had to drive 12 hours on inflamed back and thought the anti-inflammatory action would be worth it. 7 more weeks of insanity resulted. Never again. I now know what crazy feels like.

I was given this for bee stings. I wish I had more stings and no prednisone!! I shoke, Sweated from feet and hands, thought i was on the virge of a heart attack, insomnia for 9 days, quit my job of 7 years, drove my truck 2,000 miles over the coarse of a week, almost beat up my finance and my dad, (I'm never a violent person!), went to E.R. twice and given sleeping pills that didn't work, CRAZY STUFF TO SAY THE LEAST!! I lost my job, got a battery charge that my public defender thinks we cant beat, and almost lost the love of my life. Now over the past couple months I have had sever depression and have had to put my whole life back together. I'm grateful I didn't die though! THIS SHOULD NOT HAPPEN TO ANYONE, BUT IT DOES TO A LOT OF PEOPLE!! Please call me or email If there is a lawyer who could help stop this! ******
God bless America!

Hi all,

Well since my last post on April 23rd at 5:24, so far I have been coughing a lot. My throat is so sore just from coughing, I've been coughing up thick yellow mucous. Going into the 3rd day being on Prednisone, I couldn't take it anymore. The doctor originally requested me to take 3 pills a day for 4 days, then 2 pills for 4 days and then 1 pill for 4 days, I decided to change it. I took 3 pills for 2 days, then 2 pills for 2 days and 1 pill for 2 days, I couldn't take the side effects of severe insomnia, coughing, very dry mouth and shortness of breath going into the 3rd day. Since being prescribed Prednisone on Monday, I found myself today to be miserable. Whenever I cough my head feels like it's expanding, soon to explode and my brain hurts, I fear coughing because my throat hurts as does my body. I don't ever want to take this drug again, it's toxic. As for me now, I plan on going and laying down and sleeping like Rip Van Winkle and make up for lost sleep I didn't get during the week. Only being on this stuff for one week definitely made me sympathize with many of you who used it for years, one week was a rude awakening I don't ever want to experience again. Now I am going to go grab my stuffed bunny and crawl in bed for restful sleep.

Hi all,

My first time on this site, it's quite interesting to see how people have very similar side effects. My case is I fought with a Poison Ivy and lost, my left arm shows the battle scars. Before going to the doctor, I tried Calamine, Caladryl, Cort Aide, Ivarest, Aveeno Oat Meal Baths & Tee Tree Oil. All failed to help, so off to my doc I went. After what I told him I tried using, he told me to stop. He noted those things do nothing to help Poison Ivy rashes to go away, he prescribed for me to take 20mg of Prednisone 3x a day for 4 days, then knock it down to 2x for 4 days and then 1x for 4 days. He also prescribed Cortisone Cream and to buy OTC Doneboro to soak my arm, it smells just like vinegar..I wonder! I have been taking Prednisone since Monday, so far the only side effects that have shown up is Insomnia and coughing. I do have A LOT more energy than I used to have, my job is enjoying my spitfire mode. The question is, what will happen once I am off this stuff? I've read and heard a lot of nasty things about this drug and I guess I will find out in another 9 more days, I've never been on Prednisone before, I do watch for changes in my body. Making sure I am not growing a beard or mustache, that my boobs don't expand (even though it would make my husband VERY happy). I am sorry to see many on here are having a bad time with this, maybe some of you should get a second opinion. Some doctors today are babied by pharmaceutical companies to push drugs, with some issues some of you have you may want to research your health problems more. Never take the word of your doctor as concrete, they are human too and make mistakes. I believed one fertility doctor until I researched my condition to find out I would never be able to have children, they milked my health plan until I faced them with my findings of medical research sites and online articles by universities. Never again! Fool me once, shame on you, fool me twice, shame on me. Don't be fooled, research for yourself. I will keep you posted as to my next 9 day countdown.

Alison

I have taken Prednisone several times for allergic reactions.The main side effects I have encountered are 1.Shakiness 2. mood swings 3. anxiety-mild depression 4.upset stomach 5 rapid heartbeat.6.insominia. To counteract the anxiety, moodines, insomnia I take benadryl. I talked to my pharmacist and she said Benadryl is ok to take with Prednisone- you should still talk to your Doctor or Pharmacist. The Benadryl takes some of the edge off of the prednisone. As for the upset stomach I just make sure I eat before I take the Prednisone.

I felt so powerful at times and then useless within a couple hours. Crying and bouncing with joy. Anxiety, insomnia, depression. scary feeling, but felt no physical pain and was able to recover from illness.

Hello.

I was started on Prednisone on Saturday (3/15) for Bronchitis. So far I have taken 40mg, 40mg, 30mg, 30mg, 20mg, - I am to take 20mg for two more days than 10mg for three days. I also just finished a Z-Pack of antibiotics and am taking Mucinex and Ventolin HFA...

I have head pressure, dizziness, and weird visual disturbances. The problem I am having is my breathing feels WORSE on the Prednisone??? Is this possible??? I feel like I am losing my mind. I have insomnia and am extremely jittery. I have never taken Prednisone before - but want so badly to breath better - but it is not helping and in fact seems to making the problem worse?

Has this every happened to anyone? Please help I am so frightened.....

Thank you

I have read some of the board and would like to know if anyone else has had prolonged side effects after being off Prednisone for almost a year. I think Prednisone caused all my current health problems. Was on the higher dose 5 day plan for a severe inner ear infection. I stopped taking it after the third day cold turkey, which I know was wrong because of blurred vision and stomach distention so bad I thought I was going to burst (almost the same as when I was pregnant). The first 4-6 weeks of stopping it were pure _ ell. So many withdrawal symptoms. I went to my doctor and he said I couldn't possibly be having all those symptoms from the Prednisone since I was only on it three days (but it is the regimen where you take the higher doses/multiple pills in the beginning and then it lowers the dose each day). Every few days it seemed I was having something new happen - heartburn, sweating, headaches. Then my thyroid function began acting up (hypothyroidism) and glands seem to swell with my monthly cycle. I started having a daily dry throat. All my symptoms seem to be on my right side: blurred vision, dry throat, swollen lymph glands, ear pain, groin swelling. It is one month shy of a year when I originally took the Prednisone and nothing has decreased, only new symptoms appear. My doctor keeps treating each symptom individually and won't look at the whole picture. I tried acupuncture and it didn't help. Any suggestions/comments?

Survivors Of Prednisone
Type: Common Interest - Health & Wellness
Description: Many of those with auto-immune diseases such as Crohn's Disease are forced to go on a prescribed steroid known as Prednisone. The effects of Prednisone are terrible. Prednisone creates water retention (puffiness) in your face and torso. It causes severe mood swings. It also causes your hair to fall out. And that is just going on the Prednisone. Once you get off the Prednisone, you then have to deal with the adrenal insufficiency as Prednisone can shut down your adrenal glands.

There seems to be little support for people who have been on Prednisone. They seem to be left alone to deal with the side effects and the confusion and fear that it causes.

This is what this group aims to do:
***
Provide awareness of how Prednisone can and has affected lives.

So if you are feeling down or suffering from crazy mood swings or can't handle looking in the mirror anymore then come and let it all out !

I had a kidney transplant a year and half ago, and had to take Prednisone as one of my post-transplant med's. I was on it for about 2 months and I went through a lot of the same side effects mentioned by other people, increased appetite and weight gain in odd places, sleeplessness, and acne. Then recently I had an allergic reaction to an antibiotic and was again prescribed prednisone for three weeks, but this time the acne is so bad it looks like a rash, and it's all over my back, chest, neck especially, and on my face. I can deal with it because I realize it's what I need to do, and I am grateful that there is a drug that can treat the symptoms from the allergy, but I am wondering how long it will take for the acne to clear up once I finish the 3 weeks? Does anyone know how long it takes when you've been on it for that amount of time? Any thoughts would be helpful. Thanks.
Megan

In June I found out I had actue renal failure. One of the many medications I was given was prednisone. After a few weeks I grew so weak, tired and in a lot of pain. I even had to take a medical leave from work(4 months).
I was told to expect the moon face, hunchback, the acne..However, my sypmptoms worsened to point I didn't want to eat(lost 30 lbs) could hardly move and had to be hospitalized(almost went on dialysis). They flushed me out for a week at the hospital and avoided dialysis.
Once out of the hospital I proceeded to keep the weight off, but the side effects just mounted. I had thrush in the mouth(the worst feeling), sleeplessness, I had every side effect listed and I mean all with the exception of hallucinations and depression. The miracle was that what I was expecting weight gain, moon face did not happen.
Around September my doctor started weaning me off prednisone b/c I told him I cant take it anymore. Wouldn't you know it the minute I started getting weaned off the medication I got the moon face and acne. I cant beleive how much acne I have and the moon face and extra chin that came along with it are not cute. In 3 days I gained 10lbs and feel like I'm gainiing everyday. This might bring on the depression that has yet to occur. Why is this happening now that I'm being weaned. I started at 80mg a day and now I'm down to 30mg and next week down to 20mg.
I know this drug did its job and I pray that I dont have to be on it at all once the weaning process is over, but this is hell. I really feel doctors should tell you everything that you can expect. I didnt know enough about this drug(I know there is the internet I should have used it) and had I known then what I know now I seriously might have asked for some alternatives. This drug may be a miracle in the medical community, but for those of us who have to take it, its hell. Does anyone know how long it will take for the moon face, acne, and weight gain to go away?

I was put on Prednisone for 7 days 50 mg/day and lowing dosage every 2 days by 10 mg for what my specialist called sudden nerve hearing loss. I suppose it was supposed to help shrink any inflammation with the hearing nerve.

After being on it for 3 days, I noticed a few of the usual side affects mentioned here. Extreme appetite, insomnia, thirst, etc. By the fourth day, I had severe mood swings and by the fifth day, I felt like I literally could hurt someone bad. I was very irritable and full of rage. It's about as close to a pyschotic episode as I ever want to be and I'm glad I talked to my family dr about getting off this med immediately and since I wasn't on it very long, quiting wasn't a problem.

People and their loved ones need to be very carefull if they are taking this med. I'll never take it again.

Prednisone is a miracle drug that is saving my life. I realize that the side effects can happen and do. I've experienced them too: pockets of fat on my face even though I've lost 25 pounds; loss of hair; Thrush in the mouth and other yeast infections; hyperactivity; insomnia; blurry vision; the shakes; reduction in muscle tone; and secondary infections because of compromised immune system. I have pulmonary fibrosis and waiting for a lung transplant. There is no known cause, cure, or treatment of this terminal disease and most patients die in 1-5 years. Prednisone is the only drug that will at least slow the disease down until I receive that transplant call. I realize that most people on this post are not terminally ill and you can say, "no" to this drug; but just wanted you to know that for some of us it's a miracle drug.
Di

I took Prednisone for an allergic reaction to a Bee bite that turned into cellulites after a few days. My arm and leg swelled up to the point where I had to go into the emergency room. They put me on a prednisone drip and then prescribed prednisone for 10 days tapering down from 60 mg a day to 10 mg a day.
I felt horrible on it! Could not think straight, massive headaches everyday to the point where I could not go to work! Then once I went down from 30mg to 20mg a day, the with drawl that your body gets is the worst!
Nassau, more headaches and forget about thinking straight! and yes your face does look like a moon after a few days... Try drinking a lot of water
Now I am on my 2nd day with out it and I still feel the side affects but I hope they will go away soon :(
This drug works but I hope I never take it again.

I must add my recent experience with Prednisone to this forum:

I have been suffering from constant lower back pain and a torn shoulder injury (rotator cuff) for the last several years. A week ago I got a slight case of Poison Ivy. My doctor gave me Prednisone - starting at 60 mgs. a day, tapering down to 10 over 12 days. I was unsure as to whether I wanted to be on a steroid , especially after reading some of the testimonies here at this forum. But I went ahead and took it. I must say this has been one of the most amazing experiences for me.
Not only did my Poison Ivy immediately begin to go away, but lo and behold, practically ALL my back pain and shoulder pain went away. I also found myself with this amazing positive mental attitude. I began to get up and enjoy my job everyday (normally I am somewhat depressed and stressed out). It was such a major change for the better - I feel like I have been living the resurrection!! Yet I know it is only due to absence of pain and increased energy brought on by the Prednisone. I feel like a happier, younger version of myself. Prednisone has even helped me sleep better! So, evidently, for some people, prednisone is a wonder-drug.
I did note a very slight manic edge at times, but never unmanageable and always very positive. As soon as I decrease the dose, the pain and inflammation in my back and shoulder starts to return. What a shame that this drug causes osteoporosis and other long-term affects. I wish I could stay on it forever!!

Hi, I was on Prednisone for a little over a month for Crohn's disease. I had minor side effects while taking it: couldn't sleep, no patience, dehydrated, dry eyes. It is the side effects from AFTER stopping prednisone that concern me. I''ve been off Prednisone for 3 weeks and I think I am losing my hair and getting acne-that I didn't have before or during taking Prednisone. Anyone experience side effects that started after stopping the med?

I am a 19-year-old female pre-med student who has been taking this nasty drug for exacly 1 year now.... The amount I am on continues to change, for my disease keeps returning and leaving remission. I finally get down to 10mg from 40mg, and have to go back up when symptoms return!!! This is SO discouraging. The worst part is, no one understands the physical and emotional agony this drug brings on. I'm 19 and feel like I'm 90. My body aches, my weight is constantly fluctuating, I bruise from simply being poked (being a clumsy person, I look like I am beat!!), my bones feel as if they are about to break, and I am SEVERELY despressed. Being in college and taking rigorous classes, this is just too much for me to handle anymore... My 5-year relationship with the love of my life/best friend is falling apart because of my horrible mood swings.. don't blame him for leaving. I feel as if this drug has ruined my life more than the disease itself...Does ANYONE know if one's body and mind returns to "normal" after FINALLY being off this drug??? I pray to God the answer is yes... I would appreciate someone's reply and/or insight, because my Dr. fails to tell me about ANY side effects until I mention something. PLEASE REPLY!!!