PredniSONE and left eye

After a year of battling effects from an eye injury, an optho-neurologist finally came to the conclusion that I had orbital inflammatory psuedo tumor. I was told to take 60 mg immediately and then take 2-40mg doses (AM and early afternoon). On Friday, July 18th I took 60 mg at 6:30 p.m. and was so nauseous and barely slept. That next day I took 40mg in the morning and another 40mg around 2:30 p.m.. Although I had been, throughout the year, experiencing pain in my left eye and cheek..what I experienced by 4:00p.m. that next day was more severe than ever. I started having shooting pain and a headache so excruciating that I was in tears. (I had two children naturally).
By 10:30 I had several hours of this pain when the worst happened. The left side of my face drooped and I had difficulty speaking. By the time I got to the hospital I could not move my left arm and left leg. After five days in the hospital and every test imaginable (cat scan, MRI, EKG, etc) they ruled out all stroke, MS and anything else that would show up on these tests. During the hospital stay (although they did not cite prednisone for this event), they started tapering me off. I went from 80 to 50 in one of these days and thought I would DIE. There was no pain reliever/narcotic strong enough to take away the headache. I spent ten days tapering and prayed every day for the end. Sweating, no sleep, crying and did I mention...my headache has still NOT gone away. I have a couple of hours here and there without this pain but for the most part I have been in this hell even after my taper. The clincher is that NO ONE at the hospital or afterwards would admit that this was a side effect but they also could not provide a response. It took three weeks for me to work my way back to walking and using the left side of my body. Has anyone heard of this before? Good luck to all of you, it has meant a lot to read your comments.

My throat started to tighten like someone with a fish or nut allergy.
My left eye leaks a sticky liquid and the lid is starting to droop. The lid also stick to the eye or feels like it, the eye feels like its fluttering. I have server Edma, I can hardly walk and cannot get rid of it even with water pills.

Hello everyone,

My name is Tina and I am a mother of 5 children and I was diagnosed with a very rare disorder called "VKH" It is a rare eye disorder that only strikes like 1 in 1,000,000,000 people. I was put on Prednisone to help with this condition and to reduce the swelling in my eyes. I was put on 70mg initially and was tapered down to 40mg. then things did not go as well as to be expected and I was bumped back up to 60mg. I am so happy to read these stories but also saddened at the same time. I have been on Prednisone for 5 months and have gained 20 pounds and have the moon face, the acne, the hair growth and the horrible mood swings. My husband and I had our 10 year anniversary last week and I spent it all alone because of my moods.......
It has destroyed my relationships and my self esteem. I don't like leaving the house barely because I hate how I look and I am so depressed I am not the same person as before. I cry all the time because sometimes I wonder if taking this drug is worth it!!! What makes things worse is I wonder if things will ever go back to normal for me or my family again.................

The first time I received the prednisone was in the hospital (3 pills @20 mg each. I felt different, something wasn't right. I kept telling the doctor this, but they didn't seen too concerned. During my time at home, I began to feel like there was another person inside my body. I have had some memory lost and felt like a zombie at times. I could actually feel my body move inside of me. I became quest depressive and dizzy with no desire to do anything but sleep. I have been weaning down, but there have been other side effects. There were several times when I wanted to stop taking the pills, but I was told not to because if I did this would create more problems. I did end up in ER room in the hospital for heart papitations. I now have a twitch in my left eye, I hope this will all clear up. Also, my bladder is quite more active these days. I can't wait until I stop taking these pills. I just pray that it hasn't affected any other organs in my body.

I have been taking 120 mg every other day for Idiopathic Focal Segmental Sclerosis kidney disease for 1 1/2 months. I lost ability to read in my left eye and was diagnosed with Central Serous Chorioretinopathy. My kidney doctor told me this was very rare, but is now taking me off the prednisone gradually. I have had all the usual side-effects but the most bothersome has been the sleepiness/no energy during the day. I have been getting up every hour on the hour every night to urinate. Ambien was prescribed, but nothing really changed. I decided to try it without the Ambien last night. I actually slept longer getting up about every 2 hrs. However, I woke up with a terrible headache this morning. Anyway, hopefully my side effects will go away as he Prednisone is reduced. I can't wait to see what the next drug does to me.

I was put on Prednisone to reduce an Orbital Tumor. I was on it for 3 months with varying doses. I was hopitalized and they had given it to me through an IV. Currently I've been off of it for 2 months. It worked, but not without lasting side effects. At first I had SEVERE night sweats, I'd wake up in the middle of the night to change my PJs, pillow & sheets. I gained about 15 lbs, I was mean & short-tempered, I had a short attention span, I lost muscle mass, I felt shakey and jittery, I used to sleep well at night and still to this day I have a hard time sleeping. My current problem is SEVERE hair loss due to this medicine. I'm going to see a Dermatologist tomorrow to see if there is any meds that can reverse this. Although I don't like these side effects, I think it helped me when ALL my doctors said I should have surgery, the Prednisone worked enough that I didn't have to. However, there is no guaruntee that it wont come back....then I'll be back on this life altering medicine.
Good Luck to everyone out there!!