PredniSONE and migranes

I am glad that I found this website! I have been trying to find out how long it takes for my moon face to go away. I was prescribed 60mgs daily of Prednisone while 35 weeks pregnant for 3 weeks. When pregnant, I developed a condition called Thyromocypenia (my white blood cells die off during my pregnancies). In order for my OB to not have to put me under again for a repeat c-section, she referred me to a hematologist who put me on this drug. I asked him about side effects and he stated that the most common is increased appetite, which did not affect me. Even though I was pregnant at the time, my appetite did not change, but what did change was my face after I stopped taking the Prednisone. While in the hospital after the birth of my son, they did taper the dosage for 3 days and at the point of discharge, I was completely off the drug. I left the hospital on a Wednesday and overnight my face had swollen so strangely that I went back to the hospital on Friday. I had no idea that there was such a thing as this moon face syndrome. The nurse that attended to me in the emergency room told me about it. She said that she had taken Prednisone before for asthma and it took her face 3 weeks to return to normal.

I just had my son on 5/4, and my face has been swollen exactly a week today. I can see where some areas are reducing, but it is still not back to normal. My face did not swell at all during my pregnancy and I only gained 18lbs, so this was really startling for me to have been through 9 months looking great and after giving birth sitting up with a pie face, swollen nose, swollen lips, a swollen neck, and swollen shoulders. I also experienced a couple of migraines that nearly took me out. I hope to never have to take this drug again!

Where to begin. I swear I could be the poster child for the reasons why NOT to take prednisone or medrol.

I am 27 years old use to take prednisone. I stopped resonding to pred, roughly 4 years prior to my new pediatric doc at that time. The did a "steriod connectic" test where they can figure out if your body repsonses to prednisone. They give you a certain dose and take blood through an IV every 30 mins for up to 18 hours , well I wasn't there for 18 hours. It left my system after 2, I think.. Up to this point in time, I have had a Spinal Fusion in 92, due to Infantile Scoliosis, but the Pred didn't HELP AT ALL. I had secondary to my disease. I had SEVERE Osteoprosis, my 15 year old body looked like an 80 year old woman. The docs swore they had switched x-rays.lol

So I went from Pred to Metholypredislone( Medrol) stronger than Pred. They started to treat me around 15 with bone suppliments, like Miacalcin, Fosamax, etc. now I get the IV drug every 3 months call Pamidronate .. I am finally stable with my osteoprosis after being on this for 4 years..I guess the usual dose is only for two years..

I had a toxic reaction from the medrol/pred, I woke up with a nerophathy & miopathy( loss of nerve and muscle stegnth.) I could barley MOVE.. I had to rebuild the stength and re-work my nerves and muscles. I have osteo-arthritis, compress fractures in my back. I bruse like someone beat me. I get the worst headaches. I was tested for migranes, but it was the pressure in my vessules in my head, were so bad from the pred/medrol. Oh yeah, I have the the hypher activity when on it like ADHD & ADD. I act like a diabetic when on them too. My sugars "yo-yo", the jump , then get really low.

That's all I can think of, it's hard though because steriods have saved my life, yet I swear sometimes the side effects aren't worth it. I can say I have been off those things for almost 3 years.. So things are going good. :-) Feel free to email me with any questions.

Kelli