October 19th
2007
5:29 AM
In June I found out I had actue renal failure. One of the many medications I was given was prednisone. After a few weeks I grew so weak, tired and in a lot of pain. I even had to take a medical leave from work(4 months).
I was told to expect the moon face, hunchback, the acne..However, my sypmptoms worsened to point I didn't want to eat(lost 30 lbs) could hardly move and had to be hospitalized(almost went on dialysis). They flushed me out for a week at the hospital and avoided dialysis.
Once out of the hospital I proceeded to keep the weight off, but the side effects just mounted. I had thrush in the mouth(the worst feeling), sleeplessness, I had every side effect listed and I mean all with the exception of hallucinations and depression. The miracle was that what I was expecting weight gain, moon face did not happen.
Around September my doctor started weaning me off prednisone b/c I told him I cant take it anymore. Wouldn't you know it the minute I started getting weaned off the medication I got the moon face and acne. I cant beleive how much acne I have and the moon face and extra chin that came along with it are not cute. In 3 days I gained 10lbs and feel like I'm gainiing everyday. This might bring on the depression that has yet to occur. Why is this happening now that I'm being weaned. I started at 80mg a day and now I'm down to 30mg and next week down to 20mg.
I know this drug did its job and I pray that I dont have to be on it at all once the weaning process is over, but this is hell. I really feel doctors should tell you everything that you can expect. I didnt know enough about this drug(I know there is the internet I should have used it) and had I known then what I know now I seriously might have asked for some alternatives. This drug may be a miracle in the medical community, but for those of us who have to take it, its hell. Does anyone know how long it will take for the moon face, acne, and weight gain to go away?
July 26th
2007
3:42 PM
I am really hoping someone can help me with the side effect issues I am having after taking Prednisone to cure a tumor on my larynx.. I was on the drug for six months.. taking 60 mg a day. It saved my life and at the same time it was just about to kill me, I am not kidding. The horrible effects it had on my body was really worse than the tumor that was taking my life. It would have almost been easy to die.
But today I'm very grateful for the miracle it did on my throat. I did not have a voice for many years.. today I can sing and that makes it's a great gift.
I was wondering, after being on it for so long and coming off nice and slowly, should my joints be in this much pain? My body aches are horrible.. all the muscles hurt and that never seems to go aways. Is this normal?
July 13th
2007
7:58 PM
had 12 days of prednisone for poison ivy starting out on 60 mg tapering down posion ivy started to spread again and was started on hexadrol x13 days have moon face shortness of breath changes in ekg did echo and chemical indused treadmill every thing good that way but i feel like i am losing what little mind i have left am a home health nurse and some times even with directions am fuzzy headed and also blew migraines into full force after finishin doseage severe joint pains fatigue very moody irritable and you know the rest never full when will this get out of my system can any one help also peri menopasal been married only 8months he is a saint
-- By uv642___________________________ | Reply | (1) replies | Send Private Mail
July 19th
2005
8:33 PM
In regards to your son....I remember I also used to get this unbearable stomach pain, it was so bad that I couldn't even walk straight, my back was usually curved to the front, sometimes it felt like a sharp pain right next to my belly. It usually seemed to happen after eating salads, soup or too much liquid....my belly was bloated but I wasn't eating much...it was terrible. Anyway, so I went to the Dr. and prescribed me this medication called "Dicyclomine." Ask your Dr. about it...it took away the awful sharp pain like magic. I also heard from a friend that Apple Cider Vinegar does wonders and I must say it worked for me...didn't need to take Dicyclomine anymore. It might be helpful and may relief you son's tummy pain.....you can get it at any natural food stores...it worked like a miracle on me so I figure might as well pass the word around ;) Good luck w/your son's recovery :) & if you try the Apple Cider Vinegar pls. let me know how it worked for you.....thanx
-- By gypsi480 | Reply | Send Private Mail
July 18th
2005
11:41 AM
I have used prednisone for 7 months for PMR and it is a miracle drup!!Praise the Lord!
-- By bill282 | Reply | Send Private Mail
July 5th
2005
5:10 AM
Greetings.....I have been on Predisone for a couple of years now.. I have Sarcoidosis and had double vision, lumps all over my body, had brain surgery because they though I had a brain tumor, but didn't. They sent samples to 5 big hospitals in the US and no one could find what it was. I had biopsies on my arm and it's Sarcoidosis.
Take the Predisone my sight can back in one day, but I have gained over 80 lbs., swollen severely, can't sleep well, and my body hurts.
I had Cytoxan treatments ....didn't work
I was on Remacade treatment and even the Dr. didn't realize how much better I was. It was stopped because of painful lumps on my middrift. Big mistake! Now all symtoms have returned and worse.
I was to go back on the Remacade but I had a rash and bleeding from my rectum. Is the bleeding from the Presidsone? Does any know? They said I shouldn't have the treatment because where the bleeding is I could get an infection. I also have/had Rectal Fissure, it that from the Predisone too?
I'm a miracle in Progree....Thank you and God Bless!
-- By glo2jesus | Reply | Send Private Mail
November 25th
2004
6:33 PM
Amazing stuff at this site. I have rheumatoid arthritis and am taking Pred, which acted like a miracle, stopping my excruciating joint pains and enormous fatigue. But even at the low dose of 5mg, I had frightening mood changes, irritibility, suicidal thoughts, reclusiveness, wanting to hide, and difficulty with abstract thinking. I reduced to 4mg, then to 3mg and suddenly I have returned to normal. I have much more energy, and the mental/emotional symptoms have gone. Prednisone is very powerful drug, but one that should be used with extreme care. My MD did try to bring down the dose as much as possible. My impression is that many MDs are prescribing much too much.
-- By sigsurvey | Reply | Send Private Mail
This registry is a place to share positive or negative side effects of using PredniSONE. If you directly experienced a side effect while using PredniSONE, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
-- Please see our disclaimer
I need to take it all my life- isn't there any natural remedy somewhere?
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by lisa39, 6 replies, updated 3 days ago.
May 10th
2008
11:31 PM
My doctor put me on prednisone for pain and inflammation and I have never felt better in my life. It's a miracle for me right now and I'll take my chances with the side effects for being pain free. I'm a happy lady for now.
-- By barbara57 | Reply | (2) replies | Send Private Mail